MNHQ here: consultation on how the government deals with information about your health

[RowanMumsnet]

Hello

As some of you will know, there have been a few kerfuffles over the past few years about how the NHS deals with data and personal patient records. The government has got a new plan and wants to know what people think about it, so we're flagging it up to you.

You can see a bit more detail about the proposals here.

Feel free (as ever) to use this thread to discuss, but if you want your views to be fed into the consultation please do so directly via this link. The consultation closes on September 7.

More details from the Department of Health...

"With the health and social care system becomes increasingly paperless and digital it also becomes more important that there are adequate and robust protections in place to protect the information held within it."

"Dame Fiona Caldicott has proposed 10 security standards to be applied in every health and care organisation that handles personal confidential information. She has also emphasised the vital importance of data sharing and is proposing a new consent/opt-out model, which will give people a less complex choice about how their personal confidential information is used."

"This consultation seeks views on the proposed health data security standards and the consent/opt-outs model. We would like to hear from health and care professionals and organisations and the public."

Thanks
MNHQ

[cozietoesie]

Thanks, Rowan. 60 pages of review? That's going to take some study - see you next week at the earliest - so you might consider stickying this? (I'm posting on the app so you'll have to forgive but I can't see whether you already have.)

It's an important topic and I'd hate for it to slide into oblivion due to time drifting by.

[RowanMumsnet]

Sorry Cozie! Yep it is stickied. Sorry it's not more digestible...

[jacoblant]

Hi All,

The National Data Guardian's review is quite detailed and the consultation doc is written more for health and social care professionals.

Healthwatch England has created a short survey on the bits that seem to be of most interest to the public which you can fill out here - www.healthwatch.co.uk/news/patient-data-nhs

We will be using the responses to inform our own submission to the consultation so the more views we collect the better.

Thanks for any help you can provide in sharing this.

Jacob