Long, sorry.
DD1 has always had epic meltdowns, right from 10mths or so. Consequently I've read many, many books and articles about ways to help her, help us, etc etc. We go through patches of calm and patches of storminess so I'm used to ups and downs, but I really thought she'd have gained some self-control and self-regulation skills by now. To be fair to her, she probably does have fewer meltdowns, but now when she does properly lose it, it's getting quite frightening.
There are 2 types - the devastating (to her) disappointment ones when she just bursts into uncontrollable sobbing, and she's often mortified about, particularly if they happen at school or in public, and she says afterwards she doesn't want to do it but she couldn't hold it in any more. These can be triggered by relatively minor things (like not being able to take a jointly made bit of artwork home, even though I've eg photographed it) but often turns out to be a 'last straw' thing, once I've heard about all the other little things that have gone wrong that day. I can at least understand these a bit more.
But she's also started having uncontrollable, quite frightening rages. This morning it was because her younger sister (they share a room - we hope she'll have her own room by the end of the year) turned off their alarm clock. Apparently they have some kind of arrangement where DD2 can turn it off if it's been going on a while and DD1 is showing no signs of shifting. DD2 said this morning she had a headache so she jumped up and turned it off. This was absolutely not unreasonable. DD1 screamed like a banshee, threw herself around the room, risked hurting herself and damaging things, saying the kind of stuff people say when they've lost it (I HATE HAVING A SISTER) The entire street must have been able to hear her. I took DD2 out of the way and said what I usually do - that we can talk when she's blown herself out because it's impossible to listen/fix anything in that state.
These 'rage' meltdowns are a loss of control, they're not tantrums to get something she wants. They seem to happen more around times of stress or excitement. Last night she was up doing something she loves and has been looking forward to for ages, and any kind of costumed event (yeah thanks WBD) causes immense excitement and a LOT of planning in our house, so this was partly down to the fact that she had planned leaping out of bed and getting dressed really fast so I could do something specific to her hair, and the one tiny detail of her sister getting to the alarm first amounted to, in her head, the entire plan going down the pan. This makes 'treats' or even just 'nice stuff' (and I'm mainly talking about events: theatre, cinema, days out, but also eg finding just the right new shoes) almost inevitably involves some kind of vile outburst. It makes me sad, down, not want to bother.
She's always handled disappointment badly. We don't try to protect her from it because she needs to practise and that's life, but we do sometimes try to manage her expectations because she imagines how things are going to be (sometimes without any kind of justification eg anything from thinking we're going to go abroad for a holiday this year to getting an ice cream at the park) and then falls apart when it doesn't happen.
She's always found school (the institution and structure, not the work - she's pretty bright academically) challenging and she's had a tough couple of years around friendships and some unpleasant behaviour towards her at school, which to the school's credit they've been very proactive in dealing with. She has contact with a senior TA who's very sympathetic and who's discussed calming down strategies, and worked on confidence (which she actually has buckets of in many ways but school has ground her down a bit) but I'm starting to wonder if we need to look elsewhere for support. She can be very anxious and for a good few years has displayed symptoms which in an adult you'd think of as depression, but we've coped with it all ourselves so far, and we talk about everything. She's smart - she knows when she's being handled or fobbed off so we're as honest and open as we can be.
So, do I go back to school and ask them to step up work with her? Do I go to local CMHS? I've wondered occasionally whether she may be (mildly) on the spectrum but I've mainly been of the opinion that we should (re)expand our ideas of what's 'normal' rather than pathologise everything.
And yes, I've considered mindfulness - for me mainly (I don't always have great MH tbh) and maybe doing it together.
Any advice welcome (though don't talk to me about charts or rewards/punishments. She's not that kid. She'd seen through their inconsistencies and pointlessness at school by Y1, despite still being a sucker for a sticker at the dentist)
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Y5 9yo loses control and it's getting serious
9 replies
Mij · 03/03/2016 09:44
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