Desperately seeking women with HPA-1A antibody.

[smasher]

Im interested to know if there are any sufferers of the HPA-1A antibody which causes alloimmune thrombocytopenia(destroys baby's platlets invitro)this can cause brain haemorrage and other bleeding disorders. Reason being is that i to am a sufferer of this and have had 2 sucessful pregnacies with this problem. Having gone through what i went through i want to help other pregnant women with this problem and offer my advice on how to cope throughout this stressful time.

[helsi]

bump for smasher - soryy don't suffer myself but this seemed to be something you migt need help with.

[Lexie100]

Will bump it for you.

[SueW]

Smasher you could contact the National Childbirth Trust on 0870 444 8707. They have a national experiences register which holds details of people like you who are willing to support others through special situations they may encounter during pregnancy and early days of parenting.

There's also Contact a Family although their service is aimed more at families with children who have problems rather than dedicated to pregnancy.

[zippy539]

bump

[smasher]

what do you mean by 'Bump'??

[Snugs]

Smasher - Bump is just a blank message to keep the thread in the active conversations, so that more people get a chance to read it. Many MNers go straight to active conversations and might miss it otherwise.

HTH

[stupidgirl]

Not sure if it's the same thing, but I have what was described to me as 'rhesus disease', where my (rhesus neg) blood attacks the baby's. This is due to having rhesus positive baby first time around, and it then affected me throughout my second pregnancy.

It has also meant I have just had to give up donating blood which I am gutted about.

[smasher]

Stupid girl, thanks for reply. It very much like rhesus factor in that the antibodies affect the baby, except it can affect all pregnacies from 1st and gradually gets worse.I've recently had my second child, they didn't find out this problem on my first until he was born with platlet count of 7(normal platlet count is around 150), he almost suffered a brain haemorrage and was in special care for a week.
So in my second pregancy they were aware of what could happen, and were prepared from 13wks onwards. However, i was not. At this time i was not aware that this affected the pregnacy from conception and that this baby could at anytime have a brain hamorrage or bleeding disorder. I had weekly ultasound head scans on my son and i also indured weekly immunoglobulin transfusions, to neutralise the antibody. From what i have experienced i would truly like to help others who have been in these types of situations of high risk pregnacies. I can no longer have anymore children as the risk is greater as no. of pregancies increases, but i have 2 beautiful healthy boys and can ask for no more!

[Bunch]

I had this exact same condition! I've tried to find others but to no avail! I had a trouble free pregnancy and birth 7 years ago then a miscarriage followed by a son 3 years ago who had major problems due to undetected alloimmune thrombocytopenia. He's fine now but we went thru a pretty traumatic time and I've been advised not to have anymore babies which makes me v sad!