Long shot...pregnancy and Parkinson's

[quarkee]

Hi evryone, I know this is a long shot but I was wondering if you or anyone you know has experience of being pregnant and having Parkinson's? I know most people who get it (PD not pregnancy!!) are old but 5% are not and I am one of those lucky 5%. This is my second pregnancy, my son is 2 years old (just) but i was recently diagnosed with PD and am looking to see if there are others in the same boat as it can be a bit daunting at times thinking about the future etc. Thanks
Quarkee

[vicsta]

Sorry no help I'm afraid, don't want you disappearing unanswered. BUMP and good luck

[cass66]

not much advice other than to contact your neurologist (prob via their secretary) and you may need to be seen by a neuro who has an interest in obstetrics.

doing a search on google brings up issues regarding the safety of PD drugs in preg, and whether or not PD gets better or worse or stays the same in preg.

I don't think there's much research or case reports out there, for, as you say, most people are older.

have you tried the PD support sites??

good luck. C.

[quarkee]

thanks - there's not much on the support sites but i have an appt with the neurologist tomorrow (as luck wld have it) so i will ask him - not on any drugs at the mo as I didnt want to put tiddler at risk. thanks for the responses

[quarkee]

neurologist is off sick aggghhh !!!

[NikNakF]

BUMP

[vicsta]

BUMP Again!

[Kaz1967]

Cant really help but totally understand why you are worried. Because most of those that get it are older support from those in a similar situation is likely to be rare. Different symptoms slightly but maybe you would get some useful support if from Multiple Sclerosis sights it is another neurological disorder which has some similar symptoms which commonly effects women of child bearing age.

Jackie Rotherham may be worth contacting wrote a guide for midwives on disability in pregnancy (she is a midwife and disabled herself) she works for
Liverpool Women?s Hospital NHS Foundation Trust Disability Service, Trust Crown Street, Liverpool, L8 7SS
tel no I have found for her 0151 702 4223,
[email protected]

Done a quick search for medical papers and I can't find many. And to read them in full (not sure how comfortable or confident you would be with that) you will need either to ask your GP if he can get hold of them for you or if you have a uni near by which trainee doctors you may be able to go in and do some looking your self.

Oldest paper says:
Ten of the 17 completed pregnancies were associated with permanent worsening of PD symptoms, which did not affect overall disability. Among the series as a whole there was no excess incidence of obstetric complications or fetal defects.

NEUROLOGY 1987;37:1245
Parkinson's disease and pregnancy
Lawrence I. Golbe, MD
www.neurology.org/cgi/content/abstract/37/7/1245
{nb defects appear to be related to medication not the illness}

The others I found on Pub med
Pregnancy in Parkinson's disease: a review of the literature and a case report. 1998
The effect of pregnancy in Parkinson's disease 2000
Parkinson's disease and pregnancy: case report and literature review 2000
Pregnancy in Parkinson's disease: unique case report and review of the literature 2005

Hope that is of some help