Sorry - super long post alert!
So had 20 week scan on Friday, they identified a number of abnormalities with the brain - excess fluid, lemon shaped skull, small head measurement and couldn't see a cerebellum. Couldn't see all the spine to say if spinal related. Then went back yesterday for more detailed scan with fetal medicine specialist - basically she confirmed most of the above but thought she might be able to see the cerebellum. If that's what she was looking at it is severely deformed, but may also have been ordinary brain tissue she was looking at, couldn't say for certain. She then spent a long time looking at the spine to see if she could find a hole - indicating Spina Bifida - but again she couldn't say for certain that she had found anything (very minuscule bulge that would normally be overlooked as normal spinal development was only thing she could see as possible hole).
The outcome of all of this is that we know our baby will have severe physical and mental disabilities - best case scenario it is spina bifida at it's most severe (specialist thought this was most likely, but mainly because alternative is even rarer), but could be something much worse if in fact it is an isolated brain issue and that was not a cerebellum that she could see. So we're left with the choice of carrying on with preg and having a child who will almost certainly have no real quality of life or terminating the preg - how the F*£& do we even think about making that decision??
Sorry I don't really know what I expect of anyone on here (obvs can't decide this one for me), think I need to just need talk as much as anything. Thank you for reading.
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Help, somebody , please.
16 replies
RangerMummy1 · 31/08/2016 07:35
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