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Pregnancy

Antenatal care makes me feel 'dismissed'

8 replies

BlinkAndMiss · 20/04/2015 01:51

I had a difficult and traumatic time during and after labour with my first baby. I almost died and still feel to this day that if it wasn't for my own actions I would have, once I'd sought medical attention my mum had to insist on me being seen as I became too incoherent. It was a long road to recovery, both mentally and physically.

After a lot of deliberation, DH and I decided to have a second child. DS is now 3 so it's been a while but since I got pregnant I've got more and more worried. My situation was unusual but I just thought that since it was so serious I'd be monitored more closely and given a bit more reassurance. So far my antenatal care has been awful.

I have the same midwife as last time but she's not connected to the hospital I'll be giving birth at, she's at the midwife led unit which can't offer the medical care I fear I'll need. I saw her when I was 8 weeks pregnant and she reassured me that she'd help me get access to further care by being high dependency and for more checks to be carried out on me before I left hospital after the birth. Then she went on the sick. At my 12 week scan I was spoken to by a consultant because I was 'high dependency' and she practically laughed me out of the room and signed me off. When I rang my midwife there was no one available, I had an appointment at 16 weeks and it was a different midwife who basically said the same as the consultant, despite my obvious fear, and told me it wouldn't happen again because no one is that unlucky (!).

My next appointment was at 28 weeks - a different midwife to the last one and my original one was still on the sick. Again, not listened to and told I wouldn't be given any extra care 'just incase' but they'd probably check my temperature before I left the labour ward if I asked them. I requested to see a consultant regarding a possible c-section should the position of the baby be the same as DS1 (I feel that this was a contributing factor to what happened) and she said she couldn't refuse this but that a c-section was unlikely to be offered as there was no medical need. I'm not comforted my a c-section, it scares me, but she made me feel like I was trying to use it as a get out. I know it's a serious operation, but I am grasping at straws to try and find something which might stop things heading down the same path as last time.

I went to my GP for advice, she said that I'd only need to ring them if I thought something was wrong afterwards and they could come out to me. I'm not sure I trust them, I rang the out of hours number last time and was expected to drive 40 minutes to the hospital - it was snowing and I had a 5 day old baby, it was about midnight. They didn't offer help or an ambulance but said that if I felt I didn't want to make the journey then I could go to the GP the next day. When I rang to GP the next day there were no appointments. My mum ended up taking me to hospital where I was put In the waiting room until I passed out. That was the only time I was given any medical attention, at which point I'd been seeking it for around 15 hours. The GP I spoke to about all of this was a registra and I'm not sure she'll even be there by the time I go into labour, so don't feel that there will be anyone who knows my situation should I need to ring and request a call out. It's not something they routinely do and the out of hours number has been replaced with 111.

My next appointment is when I'm 34 weeks, currently I'm 32 weeks and despite ringing to speak to my midwife she is never available. She appears to be back off the sick but the receptionist told me that last time and she wasn't there. Obviously I'm planning on bringing all of this up with her when I see her but I don't think that she'll actually be there. I feel so powerless and that I'm heading into another difficult and dangerous birth situation without any extra care or reassurance. I have no idea what to do to make myself feel reassured, I know that most situations can't be avoided but since I told every midwife that visited me at home in the days after DS's birth that I didn't feel right and told by all of them that there was nothing wrong, I'm sure that something can be done and written in my notes. I asked for some antibiotics to be prescribed for immediately afterwards and was told no, I also asked to be kept in for longer and was told that it wouldn't be possible unless I presented as ill straight away.

I just want them to check my blood and urine for infection before I leave, or something to give me peace of mind. So far I just feel like they have me down as some sort of paranoid wreck (which to be fair, I probably sound like). I feel like they're not listening yet I know other people who have gone in, demanded a c-section because of a difficult time in a previous labour and it's been granted. I'm not sure what it is about my situation that makes the medical profession so dismissive of it. And my midwife is supposed to be the one person I can speak to, yet she's never there.

Does anyone have any advice about who I turn to next or what I can do? Sorry this is so long!

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Gunpowder · 20/04/2015 05:10

You poor thing. I'm so sorry you had such a tough time with DC#1 and now you are being sent pillar to post and no one is really listening. I think in your situation I'd contact the supervisor of midwives and explain the situation. There might be a birth reflection service they can offer or maybe she will get stuff moving in the right direction for you.

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willnotbetamed · 20/04/2015 07:12

I don't have any advice for you really, but wanted to send you a supportive hug Flowers. Sounds like you have had an awful time, and it's terrible that you can't find anyone to take your concerns seriously. The issue is not how likely this is to happen again, but how worried you feel about it - the worry needs to be taken seriously. Is it too late to find a doula or someone like that who has lots of experience of childbirth and hospitals and can familiarize herself with your situation and advocate for you during the birth and afterwards? Having as much support as you are able to get would seem really important. I would also keep bothering the midwives and the GP.

Very best of luck with finding someone who is competent to listen to your concerns, and with managing to stay sane through the rest of your pregnancy and afterwards.

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MrsAnxiety1 · 20/04/2015 07:27

I'm sorry about your awful experience. It sounds a lot like some of my experiences of the NHS but not regarding antenatal/postnatal care. I would write to your midwife supervisor and also to your PALS representative and explain, in full detail, what happened last time, how desperate you are for it not to happen again, explain how traumatised you were left and your experiences of being pushed pillar to post and not helped. See what they say. Let each recipient know that you're sending the letter to the other party.

When I made a complaint to PALS, I found them very useful and they managed to put the boot up my GP and hospital consultant and got them to do their job!

If still no help, I'd consider finding a private midwife/doula as someone mentioned and I'd consider taking matters into your own hands ASAP if you can! Good luck - I'm sure you'll be fine this time.

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Bue · 20/04/2015 10:56

Sounds like you're having a really rough time of it, OP. It's terrible that your care has been disjointed and you don't feel listened to. It's hard to gauge from your post what actually happened, but reading between the lines it sounds like you became septic after birth? From the consultant's perspective, you are not actually a high risk pregnancy this time and it would indeed be VERY rare and unlucky for something like this to happen again. A c-section also probably isn't the answer to your fears (as it carries a higher risk of developing an infection than a vaginal birth) - it sounds as if what you really want is someone to sit down with you, go through what happened last time and address your concerns this time and make a plan. I too would urge you to get in contact with a Supervisor of Midwives, who can escalate the situation to the right people.

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Jackie0 · 20/04/2015 11:03

I think I'd go private if it were financially feasible.
Your fears seem entirely justified

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TotallyKerplunked · 20/04/2015 11:31

I had a horrible time with DC1 and now i'm expecting DC2, i've seen a different midwife for each appointment and my anxiety levels have been huge.

I feel for you and I felt exactly like you, like any concerns/fears were dismissed and even laughed off, I've even been told off for "expecting a c-section for no reason" - I never requested one.

What helped me was contacting the supervisor of midwives and getting access to the hospital after births service. It has only been since I talked through the birth and its aftermath that my concerns have been taken seriously. The afterbirths service were able to get me referrals to the mental health team, put procedures/recommendations in place for the birth of DC2 and help me get a birth plan agreed by the midwife team. This has helped so much, just to have somebody listen properly to my concerns and document them, I wont deny that I still have a lot of fear surrounding the upcoming birth (especially as i'm likely to have a similar labour this time as i've developed the same condition) but I don't dread it.

If your hospital offer this service I would highly recommend it, good luck.

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BeforeIChangeMyMind · 20/04/2015 12:06

I'm sorry you're going through this OP.

I agree with what MrsAnxiety and others have said about writing to the supervisor of midwives at your hospital and to the hospital patient liaison service (PALS). Don't rely on a midwife who is never there. Start making some waves and then they will listen to you. It's sad that you're in the position where you need to, but don't leave it any longer.

An after births service may be a good way in, too.

When you write, it might be a good idea to set out clearly what you want the outcome to be. So something like "Given my previous experience, outlined above, I would like to agree with you in writing that that the following will be part of my care in this pregnancy".

Then list the things that would reassure you. You might also want to make clear that you are happy to meet with a senior midwife or other appropriate care provider to discuss everything. The important thing is for you to get something "on record" that your hospital will need to respond to.

Fingers crossed for a better experience for you Flowers.

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BlinkAndMiss · 20/04/2015 20:14

Thank you for the lovely responses, I don't feel as ridiculous about making a fuss now. I've just managed to get back to the thread as I've been at work today and it was nice to come back and see so many lovely replies :). Bue yes that's exactly what happened. I still don't know where the infection started, they treated a kidney infection and several others - so I don't even know what to look out for this time other than the severe symptoms that were 'obvious', but by that point it was already too late. I do know that I had several temporary catheter treatments during the labour as I had an epidural, I've blamed those for the kidney infection but I have never had this confirmed as a reason. Perhaps there isn't a reason. However, it's actually more reassuring to have someone on here say that it is incredibly unlikely, I think my trust for the medical profession has waned a little so to have so some unconnected say it makes me feel that there is some truth in it.

I think I will start by writing to the superviser of the midwife I am supposed to have and looking into the after birth service that my hospital (hopefully) provides. I've been sort of hoping that my midwife would actually do something but it does seem that she has no intention at this stage so I need to be proactive and take things into my own hands. JackieO I do have the means to look at going private, I've never used it before but that's my back up plan should the NHS not come through for me. I think I'll have to act fast though.

TotallyKerplunked I'm sorry you're also going through an awful time, it seems that talking though what happened has helped you so I have hope that it will be the same for me. I agree that I don't think the fear will ever be taken away completely, but it's the just knowing that there are things that can be done to help which make the difference. I suppose there is nothing that can be done about infections etc a lot of the time, but it's having the peace of mind that treatment can be organised rather than feeling abandoned that makes all the difference. I just want that peace of mind too.

Thanks again for the kind replies, I'm sorry to those of you who are having a difficult time of it too. Hopefully we'll all come out the other side of childbirth relatively unscathed and healthily :).

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