I recently had the combined test on the NHS and was given a 1 in 40 high risk rate of Downs. My husband and I were devastated. We talked our options through with the specialist mid wife. She explained that we could go for a CVS or amnio, but both procedures had a risk of miscarriage. We asked if we could be re-scanned by a Consultant (our sonographer had struggled to get a measurement) and we were told this wasn't an option.
In the end we decided to pay for the combined test to be re-done at the Fetal Medicine Centre in London by the Prof who pioneered the test originally & was recommended to us as the leading UK expert (cost of £180). We are so thankful we did this. Our nuchal measurement was checked and rechecked multiple times (our NHS sonographer took only 1 measurement after struggling to get a measurement at all) and the most they got was 2.2 compared to the NHS 2.9. They also looked at multiple soft markers including the nasal bone, flow of the heart, flow of the liver etc... and lowered our risk to 1 in 9072!
Both my husband and I are now feeling quite cross that the NHS would have proceeded with CVS or amnio without re-checking the nuchal.. We recognise that nuchal measurements can flux but 2.9 to 2.2 strongly points to a human error. If we hadn't gone to the Fetal Medicine Unit then we could have proceeded with an unnecessary invasive procedure putting our pregnancy at risk.
We're thinking about challenging our hospital's decision not to offer a re-scan as we'd hate other parents to go through an unnecessary CVS/amnio. We know the NHS can't offer the more sophisticated soft marker assessment but we do think they should offer to re-check the nuchal measurement. Before we raise our concerns I just wanted to check if anyone has had a similar experience or has any comment?
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Inaccurate high risk NT scan -any similar experiences?
48 replies
Hovis1980 · 28/03/2013 09:16
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