UnlikelyAmazonian's DS is gravely ill

(507 Posts)

Please pray for UA's son,4yo ,who has just been diagnosed with Leukaemia and is on his way to Bristol Children's Hospital this evening.
UA is currently banned from MN after an altercation on Relationships,but she has continued lurking and really misses the support which helped keep her strong for her DS since her very abusive xh disappeared 4 years ago.
She is a very dear friend of mine and her DS is her entire life.She is absolutely devastated and has no family.

HeathRobinson Thu 17-May-12 20:43:40

So sorry to hear this.

Best wishes to UA and her son.

Will send positive thoughts and prayers. We are not far if she needs anything.

ThatVikRinA22 Thu 17-May-12 20:47:58

i wondered where she was, and im very sorry to hear that her son is so ill. The poor love, she must be devastated. She and her little boy will be in my thoughts.

How long is the ban for? she sounds like she could do with some support, people have tiffs on here all the time - How about it HQ? What about a compassionate un-ban?

What sad news!
Please give your best to UA and her darling son.

I also think she should be un-banned.

Lulumama Thu 17-May-12 20:50:14

thoughts and prayers, hope he gets the best possible treatment ASAP and is on the mend... thinking of them both x

AlistairSim Thu 17-May-12 20:52:47

Please tell her we are thinking of her and her dear little DS.


ToothbrushThief Thu 17-May-12 20:58:12

I do not know what precipitated the ban but a compassionate un-ban as Vicar says would be good.
Best wishes to her.
(I'm reporting this post so MN see it)

Heyyyho Thu 17-May-12 20:58:26

Oh no, oh no sad

Praying for them both

Chunkamatic Thu 17-May-12 20:59:36

Poor little lad. They will both be in my thoughts.

I agree that she should be un-banned in these circs.

So sad to hear this. Didn't realise she'd been banned - I liked her posts a lot. Please pass on my love.

MikeLitoris Thu 17-May-12 21:02:25

Oh god! I remember reading some of her posts about her ex. What a nightmare for her.

If your reading UA, wishing you and your ds strength and good luck right now.

heliumballoon Thu 17-May-12 21:02:37

I'm so sorry to hear this. I was on UA's original threads years ago and she struck me as an intelligent, interesting woman who had a massive dose of bad luck. For this to happen to her DS therefore seems doubly unfair. Sending MN good wishes to Bristol.

I don't know her but please un-ban her. If she needs support from here she has to be allowed to receive it. I presume she didn't actually kill anyone?

Praying for her boy XXX

Am so sorry to hear this, they've both been through enough already. They're both in my thoughts. My DS had cancer and made a full recovery and even with the wonderful support of family and DP and I supporting each other it was horrendous time. I know that UA doesn't even have that so I'm glad you are there for her Piranha.

And I agree about the un-banning. It really would be a shame to deny her such a wonderful source of support at a time like this. So MNHQ howsabout it?

Earthymama Thu 17-May-12 21:06:23

Having a crap time here at the moment but it's nothing compared to this.
I hope her son makes a full recovery.

Love and Blessings, may the Goddess watch over you and send healing and compassion xx

bamboobutton Thu 17-May-12 21:06:25

this is so sad, poor little lamb.

i would be more than happy to knit a little toy or something to cheer him up in hospital.


MarshaBrady Thu 17-May-12 21:07:11

Poor little boy and UA. Many, many good wishes.

Also do un-ban.

bronze Thu 17-May-12 21:07:11

Thinking of you and your wee boy UE

Methe Thu 17-May-12 21:08:14

UA is one posters who's 'story' I remember.

I will keep them both in my thoughts x

FrozenChocolate Thu 17-May-12 21:08:27

Love and best wishes to UA and her darling boy.

Another vote for a bending of the 'rules'. Mumsnet is all about support and companionship, I would hate to think of anyone being denied this.

Annunziata Thu 17-May-12 21:09:07

How terribly sad, will remember them both tonight.

NightLark Thu 17-May-12 21:09:52

what Methe said. Are bans always forever? Un-ban if possible please. Maybe the other half of the altercation could ask MN towers if they see this?

Hullygully Thu 17-May-12 21:11:26

Oh oh

Remember her, but not the altercation.

Big love, vibes and positive thoughts xxxx

thinking about them both.

Thank you so much ,everyone. I have reported my OP to MN and asked them to un-ban her. She was banned for some very straight talking on a thread in Relationships in which she used strong language and cut to the quick. Several posters reported her.
She was very upset by the ban ,it was the second one,for similar reasons.

They are in transit right now,but she has tx'd me that she will be buying a laptop tomorrow so that she can keep in touch on FB.

Those of you who remember her original posts will know that she has had some devastatingly bad luck and is completely unsupported. DS is all she has ,and she keeps going for him. He luck has not improved recently,and now this - out of the blue this evening. They were here with me a fortnight ago. Me and my dc are 3 hours away from them,although Bristol is less than an hour,so I will do everything I can. Just want a magic wand sad((((

hellhasnofurylikeahungrywoman Thu 17-May-12 21:13:40

Please un-ban her if possible. I don't know her or why she is banned but she must be in need of support right now.

Methe Thu 17-May-12 21:15:41

They can un-ban. They unbanned Valhalla several times and they knows she's here now under an alias so obviously aren't that bothered as long as it's not blatant trolling.

Dropdeadfred Thu 17-May-12 21:16:49

Best wishes to her ds

HolofernesesHead Thu 17-May-12 21:17:23

I'll be keeping UA and her ds in my prayers. Hope his recovery is swift and full.

Sunnywithachanceofshowers Thu 17-May-12 21:17:57

I'm sorry to hear that. Sending get well wishes for the little one x

FarloRigel Thu 17-May-12 21:18:20

Have PM'd you.

bumpybecky Thu 17-May-12 21:20:00

I had wondered where she was. So sorry to hear such devastating news sad sending very best wishes to her ds

MNHQ please unban UA

DaenerysTargaryen Thu 17-May-12 21:20:23

I will keep them both in my prayers and thoughts, I can only try to imagine what she's going through and to be alone with no support at such a time is just awful please MNHQ reconsider, she obviously needs the support of MN at this time sad

I'm in Bristol so if there's anything I can do I will

BertieBotts Thu 17-May-12 21:21:59

How awful. I hope that he is okay and makes a full recovery.

akaemmafrost Thu 17-May-12 21:21:59

I remember her very well. So sad to hear this.

Please in-ban her MN. If ever a ban should be lifted this is it.

DameHermione Thu 17-May-12 21:23:40

Thoughts and prayers with ua and her ds

SweetGrapes Thu 17-May-12 21:24:08

Even the olympic cheats don't have lifetime bans. Seems a bit much under the circumstances.

Thinking of UA and her ds and sending positive vibes xxxx

Follyfoot Thu 17-May-12 21:26:25

Very sad news. It would be awful if there was support for her on here and she was unable to access it sad

monstertufts Thu 17-May-12 21:27:54

How absolutely awful. I don't know her, but will keep her in my thoughts and prayers. One of the worst things that could happen to a parent. Children can and do recover from this, and I hope UA's little boy does too. xxxx

edam Thu 17-May-12 21:28:14

Oh I'm so sorry, will send very positive thoughts and prayers to UA and her little boy.

Voidka Thu 17-May-12 21:28:19

I agree to the Unbanning.

Thinking of UA and her DS.

Very sad news. I will add her and her DS to my prayers.

I agree with an unban. After all MN is the type of support she needs right now.

treefumaster Thu 17-May-12 21:30:15

So sorry to hear this. Keeping her and DS in my thoughts. Agree that MN can provide support when there isn't anyone else around so I hope she can come back.

They are both in my thoughts.

C'mon MNHQ lift the ban, She'll have a lot of waiting around to do at the hospital and MN's can offer a lot of support.

SharonGless Thu 17-May-12 21:33:15

Sending thoughts and prayers to UA and her DS

Meglet Thu 17-May-12 21:33:42

oh God sad.

I wondered why I hadn't seen UA around lately. Her DS is gorgeous.

MN please un-ban her.

ledkr Thu 17-May-12 21:34:59

come on mumsnet un ban her she needs us right now
I will pray for her and her ds,i was given a shit prognosis 17 yrs ago and im still going strong xx

Sending my thoughts too, poor UA and little A. Hoping you will hear some better news soon.

ErikNorseman Thu 17-May-12 21:38:17

How devastating sad UA you and your darling boy are in my thoughts xxxxx

Message withdrawn at poster's request.

ErikNorseman Thu 17-May-12 21:40:24

I have reported the OP to add my support to lifting the ban - maybe others could too? Whatever she might have said or done in the past she is a long standing MNer and she deserves to get support here if she wants it.

FarloRigel Thu 17-May-12 21:43:06

Adding my support for un-banning; as the mother of a child who is currently in remission from leukaemia, I can't imagine how you could say anything bad enough to justify going through this journey without as much support as you can get your hands on.

Rindercella Thu 17-May-12 21:43:25

I am so so sorry to hear this. UA is a remarkable woman and her DS is utterly gorgeous (I remember seeing his photos on here).

Wishing them both every ounce of strength, luck and love that they need to get through this and come through the other side with good health and each other.

Tannhauser Thu 17-May-12 21:43:45

I'm very sorry to hear this. You and your DS are in my thought UA.

Seabright Thu 17-May-12 21:45:03

How about a partial ban? No posting on Relationships and (maybe) AIBU for a set period, to prove "good behaviour"?

She has had such bad luck, thoughts & prayers with her.

oh gosh how utterly terrified she must be right now.

thinking of her and her little DS, and hoping everything turns out ok

CMOTDibbler Thu 17-May-12 21:47:54

So sorry to hear this, I remember UAs original threads too.

MooBaaWoofCheep Thu 17-May-12 21:48:00

also support unbanning her.. we should be here where she can get the support she needs while she's going through this1!

usualsuspect Thu 17-May-12 21:48:12

Sorry to hear this ,sending my best wishes to UA and her DS

OhDoAdmitMrsDeVere Thu 17-May-12 21:50:14

Have PM'd

Hope UA gets the support she needs. I've been through this with my DD (she was 3.5) and hope that her DS makes as good a recovery.

I know some of what's ahead of them and will be thinking about her and her DS.

Wishing them both strength.

McKayz Thu 17-May-12 21:52:46

Thinking of UA. I don't remember her threads but I do 'know' her name.

Please MNHQ unban her. She needs MN.

Oh UA, I'm so sorry. I truly hope you're allowed back on here for us to try to support you properly. Sending a kiss to your DS x

Hassled Thu 17-May-12 21:54:45

I'm so sorry - I remember her well and she and her DS will be in my thoughts.

Crazytictac Thu 17-May-12 21:55:05

So very sorry to read this. Sending very best wishes for UA's son and to her too

NormaStanleyFletcher Thu 17-May-12 21:56:11

I have reported lulumama's post (as she is never reported) asking for un-banning.

ScrambledSmegs Thu 17-May-12 21:58:40

So sorry to hear this. Sending UA and her son my very best wishes.

I agree un-banning in these circumstances would be appropriate. I hope MNHQ takes the same view.

ICutMyFootOnOccamsRazor Thu 17-May-12 22:00:20

Oh no poor UA, and her poor boy this is so sad - I knew she got banned but never saw the thread in question.

MNHQ please consider unbanning her so we can all give her (((hugs))).

Rindercella Thu 17-May-12 22:03:07

Have PM'd - I reported Seabright's post as I thought it was a good idea.

UA will be able to access all sorts of help and advice from people who have sadly been where she is now. The sort of help that is immeasurable. And then of course just seeing all the well wishers when she feels most alone will help hugely.

Please unban UA MNHQ. Thank you

BonnieBumble Thu 17-May-12 22:04:16

Sending best wishes to them both.

lisad123 Thu 17-May-12 22:05:52

Please tell her we are thinking of her sad

tribpot Thu 17-May-12 22:06:22

This is such unbelievably sad news. Please send all my love and support to UA and her ds.

Cluffyfunt Thu 17-May-12 22:11:34

Sending Huggs to UA and her DS xx

You were so very kind to me at a time I really needed some kind words and straight talking.
I am so sorry for your troubles my love and am hoping for you and your DS.

UA, love and strength for your DS and yourself.

MNHQ, please consider unbanning.

OctopusSting Thu 17-May-12 22:14:45

Piranha - i will be in Bristol tomorrow - please PM me and let me know if she needs anything buying & taking in to the hospital and i will try and help smile

I will send her this thread - cut and paste if ban not lifted - tomorrow,as soon as she is on line. Not sure when she will get time to sort out a laptop.
I have txt'd and will keep txting in am. She asked me not to ring until she rings me.
I will let her know in the morning about all the wonderful messages on here. I know it will mean lots to her. xxx
Thank you for all the pm's too. xxx

Thank you all the Bristol posters. I will let you know tomorrow ,too. xxx

saladfingers Thu 17-May-12 22:18:58

This is when she needs MN the most.
Come on MNHQ, have a heart and let us try to help
Sending positive vibes to Bristol to UA and her DS

YourFanjoIsNotAHandbag Thu 17-May-12 22:19:26

I lit a candle for UA in church this evening.

I will pray for her.

I hope the ban is lifted.

Levantine Thu 17-May-12 22:22:35

Oh no, so so sorry to hear this, totally devastating. Thinking of you UA xx

schobe Thu 17-May-12 22:24:17

This is devastating. I've always loved UA and her posting style and just cannot believe this cruel thing could possibly have happened to her DS.

My thoughts are with you both UA.

MustControlFistOfDeath Thu 17-May-12 22:42:20

Thinking of you both xx

StabbyMacStabby Thu 17-May-12 22:43:15

How awful for them, so cruel that such dreadful things happen. Wishing them both well xx

ToryLovell Thu 17-May-12 22:45:09

I had no idea UA had been banned - I always found her posts interesting and insightful and while she is a straight talker it is always done in a supportive way. I do think that the ban should be lifted.

UA and DS are in my thoughts

BerryLellow Thu 17-May-12 22:47:49

How bloody awful, so sorry to hear this UA

Groovee Thu 17-May-12 22:48:07

Thinking of them xxx

maples Thu 17-May-12 22:50:51

So sorry to hear this UA sad

tootssweet Thu 17-May-12 22:52:51

Thinking of you both - hope you are able to see all the support waiting for you on MN soon (please HQ?)

efffy Thu 17-May-12 22:59:01

Thinking of them both. sad

Please unban MNHQ

mumofjust1 Thu 17-May-12 22:59:53

So sorry - love and strength to UA and her little one x

Jinsei Thu 17-May-12 23:08:33

How very sad. sad poor little boy and UA. I too support the un-banning.

suburbophobe Thu 17-May-12 23:11:02

Oh, what awful news. My heart goes out to her, and her DS...

I'd always enjoyed her posts on here and had wondered why I never saw any any more. I really feel for her for what happened to her re. ex.....(what a nightmare).

Please send her my love and strength. I will be lighting a candle and holding them in the light and calling upon Archangel Raphael.....

suburbophobe Thu 17-May-12 23:12:10

Oh yes, please unban her!

serin Thu 17-May-12 23:12:29

I will pray for strength for both of them.

hairypotter Thu 17-May-12 23:15:03

How very sad, sending positive thoughts and virtual hugs to both of them.

MadameOvary Thu 17-May-12 23:16:19

Adding my support and keeping this bumped. Come on MNHQ, do the decent thing and allow UA to get the support she desperately needs.

So much love and strength here xxxx

PinkChampagneandStrawberries Thu 17-May-12 23:18:47

So sad will be thinking of them x

How sad,

MN is a huge source of support and advice, and comes into its own at times like this.

Wishing her strength and praying for her son.

simpson Thu 17-May-12 23:20:51

Omg, this is awful news. I have seen UA around on MN and remember her story. I hope her lovely ds is doing ok.

Please unban her MN.

Come on MNHQ where are you????

mamalovesmojitos Thu 17-May-12 23:22:27

UA you may not know me but I remember your posts. Im so sorry and I'm sending you and your gorgeous ds love, warmth and thoughts. Hope you're ok xx.

Wishing UA and her darling boy all the love and hope in the world. Get well soon little man.

Come on mnhq unban UA please.

I've reported my post and this thread too. Having a resource like this would have made such a difference to me when I was going through it. I know UA can sometimes be very assertive in her posts but she offers some great, unflinching advice because she's lived through it. She tells it like it is, which some people don't like to hear. Please lift the ban MNHQ, let us support her through this.

I contacted mnhq 2 hours ago,but no one has got back to me. I reported posts in the past and had an email very quickly.

ThatVikRinA22 Thu 17-May-12 23:32:10

i reported too for the same reasons, perhaps they are considering it all? or maybe no one is at work....

Solo Thu 17-May-12 23:32:39

Sending UA and her Ds love, strength and prayers.

Didn't realise she'd been banned either, but it seems right that she should be allowed to get support from here at this time.

BeaWheesht Thu 17-May-12 23:33:12

Oh UA, I'm so sorry. I wish you and your boy all the best wishes in the world.

DioneTheDiabolist Thu 17-May-12 23:38:28

Prayers and best wishes to UA and her son.x

DirtyMartini Thu 17-May-12 23:39:23

How appalling - poor little boy and poor UA. I don't know her, but it is so troubling to hear about any child being seriously ill. Will be thinking of them both.

MakeHayAndSneeze Thu 17-May-12 23:42:14

What horrible news - lots of love and prayers for UA and her little boy.

chipmonkey Thu 17-May-12 23:42:33

Oh, poor UA. sad Prayers and candles here xx

SerialKipper Thu 17-May-12 23:49:29

Think I remember a bit of the stuff that presumably led to the banning - would completely support unbanning her.

Thinking of you both, UA and AmazonianBoy.

TheSecondComing Thu 17-May-12 23:55:12

Message withdrawn at poster's request.

Just heard from UA. DS has just had a transfusion and is asleep. I told her about this thread and she was very touched.This was all via tx as she can't phone. She is desperate to get a laptop as her phone doesn't do email/online. If anyone in Bristol has one they can lend,it would help enormously,as I can't see her getting into the city to shop tomorrow.

Just sending my love, so sorry to hear this. x

DaenerysTargaryen Fri 18-May-12 00:57:14

Arrrgh my laptops broken it keeps freezing, I've been using my phone for months now sad I honestly don't think I know anyone who would lend one, I'll ask Dp if he knows of anyone.

thecook Fri 18-May-12 01:01:28

I am so sorry. I have returned from the church this evening (Ascension Day) but just logged on. I am going to say a prayer now.

I never read the thread in Relationships in which she got banned but I have read threads about her abusive DH previously.

Thumbwitch Fri 18-May-12 01:09:08

Oh God, that poor woman, she has the worst luck! I remember her well from her first threads about her wanker H; and have wondered where she went!

I also hope that MN un-ban her, this is no time for her to be unable to access the support on here sad

thank you for starting this thread, Piranha and I really hope MNHQ respond positively to the request to unban.
Have PMd you as well.

thecook Fri 18-May-12 01:13:09

Thumbwitch - I agree love. The poor lady needs support more than ever. I am going to message MNHQ now. I have prayed and will continue to do so. Also going to search my drawer containing my candles and light one to burn through the night.

Alibabaandthe40nappies Fri 18-May-12 01:16:18

Oh no, oh that poor little boy, and poor UA sad

Sending love and prayers to them both.

MNHQ please un-ban her.

AmberLeaf Fri 18-May-12 01:20:38

I wondered why I hadnt seen her for a while, I thought she'd namechanged.

Her gorgeous little boy [I remember her pics] what rotten luck sad

I too think that her ban should be lifted.

Thumbwitch Fri 18-May-12 01:27:00

I have reported this thread to MNHQ as well, to ask them to unban her - she needs support. sad

seaofyou Fri 18-May-12 01:37:55

UA Wishing your ds a superfast recovery and mega virtual ((((HUGS)))) to get you through tonight and treatment.

MNHQ she is going through the worst time of her life EVER and needs now the support if anyone ever needed it! Show human kindness here please!

YardBroom Fri 18-May-12 03:53:03

So sorry to hear that your little ds is unwell. I am hoping and praying for a complete recovery.

MNHQ you need to act.

giraffesCantGoPotholing Fri 18-May-12 04:16:26

So sorry to hear this, thinking of her. Unsure what happened but recognise her nn.

fridakahlo Fri 18-May-12 04:31:03

Oh Bloody Nora! angry sad
UA, I hope your ds gets through this as quickly as possible and with the smallest amounts of pain and trauma possible.
I will light a candle xx
I support the unbanning too.

timetoask Fri 18-May-12 05:11:14

Hoping and wishing that her little boy recovers fully. Keep strong. Xxx

giraffesCantGoPotholing Fri 18-May-12 06:03:57

Oh incase mnhq are intersted in opinions from on here then also support unban from the info I have read.

KnottyLocks Fri 18-May-12 06:37:48

Sending love and strength to UA and her darling boy. X

BuddhaBelly Fri 18-May-12 06:46:00

Normally only lurk but couldn't read and run. My thoughts are with UA and her ds. Also supporting unbanning her so she can access much needed help advice and support. Will report too

TheOldestCat Fri 18-May-12 06:55:01

More positive thoughts for you, UA, and your lovely boy.

Bumping for morning traffic.No news from mnhq,But UA is hugely touched by all the support and love.X

Partly to bump this...

My love and prayer to UA ans DS as well, wish I was closer lovely and hope to see you back on here very soon - HQ?

Sending UA and her ds all my thoughts xx

Badvoc Fri 18-May-12 07:51:42

Thinking of you both x

Bunbaker Fri 18-May-12 07:53:40

Thinking about UA and her son and best wishes for a speedy recovery xx.

LittlePebble Fri 18-May-12 07:53:41

Praying for UA and her DS x

Oh no! I remember UA very well. Tried to meet up with her once but I had to cancel.

I am about an hour from Bristol too if she needs anything.

Please unban her MNHQ.

Hope she manages to get hold of a laptop. Or she could buy an iPad if she can afford it. She could download books too and stuff for her DS.

BawdyStrumpet Fri 18-May-12 08:05:15

Oh how awful! My thoughts and prayers are with them...

Peachy Fri 18-May-12 09:30:10

Oh the poor, poor sould!

They should lift her ban, exceptional circumstances.

I am off today but would eb happy to pop over to bristol any day from moonday as it is not far from me, and take anything she needs. My MN persona is fairly well known and I have some experience of leukaemia (cousin died from it, other cousin survived it) so could someone please pass on my offer and
my email which is (usual MN format ) peachesand cream at bt internet dot com. I don't know if an appeal will be raised but happy toa ct as a hub if needed, or just visit for comfort

Poor, poor family- leukaemia is one evil thing

roguepixie Fri 18-May-12 09:31:04

This is such sad news. I am saying prayers for UA and her DS and will light a candle at Mass on Sunday.

I cannot imagine the hell that she is going through. The pain and desperation must be unbearable.

Please MNHQ, please unban her. To leave her outside a community that can, and wants to, support her is unconscionable. Whatever has been said in the past (and I have no idea what happened) is just that ... in the past. Let's move beyond it and get UA back on board and receiving the support and help she needs.

ComradeJing Fri 18-May-12 09:36:08

Oh poor UA and her dear son.

Sending best wishes, thoughts and prayers.

perfumedlife Fri 18-May-12 09:37:54

UA am thinking and praying for your boy, so very sorry you are both going through this.

MNHQ you need to do the right thing here.

Whatnamethistime Fri 18-May-12 09:42:36

Wishing UA little boy a speedy recovery.

I'm only an hour from Bristol - sadly I'm at a funeral today and tied up tomorrow - if she hasn't managed to get a laptop by Sunday can you pm me and I'll dig out my old notebook.

There are a few keys missing but she would be welcome to borrow it.

Thank you peachy,I will pass that on and will get back to you.
Whatnamethistime - that is a very kind offer,I will pass it on and get back to you.
Thank you so much everyone.

Peachy Fri 18-May-12 10:24:58

Piranha ther is a Sn Support group on FB which ahs many MN posters, and two who have experience of leukaemia- she would be more than welcome if she wants to join up in lieu of MN posting

orangina Fri 18-May-12 10:31:47

Oh, I'm SO sorry to hear this. Have lurked on many of UA's original threads re: her EA other half, and I think she is fab and strong (know nothing about ban etc).

Sending massive healthy vibes for the full recovery of her DS, you will both be in my thoughts.

orangina Fri 18-May-12 10:33:30

Piranha, please keep us updated on her son's progress if you can and if UA is happy for you to do s... will check in regularly.

exexpat Fri 18-May-12 10:37:30

I don't know UA but I live very close to the Bristol Children's Hospital (about a 20-min walk) so if there is anything I can do, just let me know.

Mama1980 Fri 18-May-12 10:42:20

I don't know ua but I will be thinking of her. I have a 4 year old ds myself. My son was in hospital for a long time following his birth and I know Bristol are great. Adding to the others please unban her in the circumstances sad

Sending support and healthy vibes.

I really hope MNHQ will unban her so that she can reach out for support herself, if she so wishes.

Thanks exexpat. She will be there for a few weeks and it will be good to have support wrapped around for her. I am in Merthyr,but have 5dc in school here and I work ft with an hours commute each way in the other direction,although luckily ,I am off next week. But am recovery from abdo surgery and am a bit sore.

I will keep this thread updated. I hope she can get online soon.

Rindercella Fri 18-May-12 11:09:18

Is there any news from MNHQ yet re lifting UA's ban?

<subtle bump>

HelenMumsnet (MNHQ) Fri 18-May-12 11:19:32

Hello everyone.

Apologies for not posting until now. We hope you can appreciate that this is quite an unusual situation and not something we'd have wanted to comment on without some thought.

First off, we'd like to say that we almost never discuss who's been banned and why. But since the fact that UnlikelyAmazonian was banned is already 'out there', it might help to clarify that we never ban anybody lightly. Unless they're an out-and-out hairy-handed trucker

Generally speaking, we issue a series of reminders and warnings first, and sometimes impose a temporary ban that we can then lift after some discussion. A more permanent ban is, usually, only imposed after repeated breaking of our Talk Guidelines despite all that.

That said, we agree with many of you here that this is an truly awful, heart-rending situation that UnlikelyAmazonian finds herself in - and our thoughts are very much with her and her son right now. We completely see that posting on MN right now could be a lifeline of support and strength for her.

For that reason, although UnlikelyAmazonian hasn't contacted us herself about being allowed to post again, she is now free to do so. We'll drop her a line to let her know.

Thanks so much to everyone who mailed in/sent a Report. You'll all be getting a reply shortly.

Hopefullyrecovering Fri 18-May-12 11:20:39

UA and her DS are in my thoughts

Please unban, MNHQ

Hopefullyrecovering Fri 18-May-12 11:21:19

X-posted - thanks MN!

ScrambledSmegs Fri 18-May-12 11:22:57

Thank you Helen. Very much appreciated.

Peachy Fri 18-May-12 11:23:52

Oh well done MN smile

It is appreciated mnhq

Thumbwitch Fri 18-May-12 11:28:26

Thank you Helen - that is great news that you have agreed to lift the ban. thanks

headfairy Fri 18-May-12 11:29:38

Piranha, I've pm'd you. I also know UA in RL but don't live locally so I can't offer much more than my heartfelt prayers that her ds recovers soon. Poor little chap, we were just discussing only a short time ago about how we should get our boys together (they're only a few months apart in age).

Well done MN on being so understanding and lifting UA's ban.

McKayz Fri 18-May-12 11:31:02

Oh that's fab news. Thanks Helen

Thank you ,MN X I will let her know right away.
She can't get online at the moment so hasn't been able to see this,but I know she will post as soon as she can xxxxx

BalloonSlayer Fri 18-May-12 11:38:39

Oh no I have only just seen this.

Thoughts and prayers are with you, UA, and your little darling boy.

MadameMessy Fri 18-May-12 11:40:04

How terribly sad.
Well done for lifting ban MNHQ
hoping UAs ds is doing well, and UA finds some support back on hete

MadameMessy Fri 18-May-12 11:40:26


UA wanted me to pass on massive thanks to everyone. She will be getting a borrowed laptop soon and says she will post as soon as she can xxxxx

I know this means a lot to her xxxx

FarloRigel Fri 18-May-12 11:56:39

Hi UA, just to let you know when you get on here there is a support thread for parents of children with all kinds of cancer including leukaemia. Please come and chat to us anytime. Big hugs thanks


doyourworst Fri 18-May-12 13:22:56

I've been sitting staring at my keyboard with my fingers poised for about 5 minutes but the words aren't coming.... Just thoughts and compassion.


Crazytictac Fri 18-May-12 19:13:31

I've been thinking of UA and her son all day. I hope she's bearing up as ok as you can do in these circumstances

bronze Fri 18-May-12 19:14:34

Was wondering if you had heard anything

Also realised my phone corrected ua to UE before. Sorry ua

schobe Fri 18-May-12 19:37:02

Excellent news re ban being lifted. Thoughts still with you.

BawdyStrumpet Fri 18-May-12 19:38:13

Well done, HelenMN! I am miles away but if anyone wants to co-ordinate efforts, I am more than happy to do anything I can,..

NormaStanleyFletcher Fri 18-May-12 19:46:44

Well done MNHQ smile

fuckarama Fri 18-May-12 19:50:44

Nice to see HQ doing the right thing smile

My thoughts are with UA and her DS.

Great news MNHQ! I hope UA and her lovely boy are doing ok tonight.

RabidAnchovy Fri 18-May-12 19:57:53

Sending prayers xx

Boudoiricca Fri 18-May-12 19:59:10

Oh my goodness... I so very rarely posted any more but am genuinely gobsmacked and gutted to read this, UA you poor love. I remember your posts from 4 (!) years ago and how your humour and wit and strength shone thro. And particularly your incredible love for darling ds. Can't quite believe this cruel rotten news is true. Am very far away but sending big love, light and sunshine to guide you through dark times xx

Well done MNHQ smile

I appreciate this hasn't been easy for you but think you are doing the right think for UA.

I hope UA and her DS are OK and hope she gets on here soon so we can offer handholding and support.

hellhasnofurylikeahungrywoman Fri 18-May-12 20:30:11

Thank you MNHQ.

<Clasps HelenMumsnet to her bosom>

good stuff.

BawdyStrumpet Sat 19-May-12 00:12:53

Is there anyone nearby who can get to the hospital? Tis a big ask, but if UA is coping all on her own.....

fridakahlo Sat 19-May-12 02:53:13

I wish I could but I am thousands of miles away sad.

Thanks for wonderful messages of support, and to HQ for letting me back on.

Just to say, after lots of tests ds has Acute Lymphoid Leukaemia though still more to find out. This type apparently has high success rate with treatment - chemo steroids etc. It's a three year journey according to consultant and is going to be a long tough one for us both.

Ds had had loads of coughs and colds - usual for four yr old, then bcame really listless and tired, didnt want o walk anywhere, was very pale. took him to GP who sent us up to hospital for blood tests and later that day, I was given diagnosis. Lfe utterly altered in course of 12 hours. I can't believe it. We came straight up to Bristol in the night and here we are.

Ds being a star though is bewlildered and grumpy. My friend here with us til monday. hospital and staff fantastic. they have given me this lap top to use. Ds asleep next to me. am knackered and afraid. I have great friends though no family so we are not alone. but support on here is valuable.

thanks pirhana. x

Thanks for wonderful messages of support, and to HQ for letting me back on.

Just to say, after lots of tests ds has Acute Lymphoid Leukaemia though still more to find out. This type apparently has high success rate with treatment - chemo steroids etc. It's a three year journey according to consultant and is going to be a long tough one for us both.

Ds had had loads of coughs and colds - usual for four yr old, then bcame really listless and tired, didnt want o walk anywhere, was very pale. took him to GP who sent us up to hospital for blood tests and later that day, I was given diagnosis. Lfe utterly altered in course of 12 hours. I can't believe it. We came straight up to Bristol in the night and here we are.

Ds being a star though is bewlildered and grumpy. My friend here with us til monday. hospital and staff fantastic. they have given me this lap top to use. Ds asleep next to me. am knackered and afraid. I have great friends though no family so we are not alone. but support on here is valuable.

thanks pirhana. x

Thanks for wonderful messages of support, and to HQ for letting me back on.

Just to say, after lots of tests ds has Acute Lymphoid Leukaemia though still more to find out. This type apparently has high success rate with treatment - chemo steroids etc. It's a three year journey according to consultant and is going to be a long tough one for us both.

Ds had had loads of coughs and colds - usual for four yr old, then bcame really listless and tired, didnt want o walk anywhere, was very pale. took him to GP who sent us up to hospital for blood tests and later that day, I was given diagnosis. Lfe utterly altered in course of 12 hours. I can't believe it. We came straight up to Bristol in the night and here we are.

Ds being a star though is bewlildered and grumpy. My friend here with us til monday. hospital and staff fantastic. they have given me this lap top to use. Ds asleep next to me. am knackered and afraid. I have great friends though no family so we are not alone. but support on here is valuable.

thanks pirhana. x

Thanks for wonderful messages of support, and to HQ for letting me back on.

Just to say, after lots of tests ds has Acute Lymphoid Leukaemia though still more to find out. This type apparently has high success rate with treatment - chemo steroids etc. It's a three year journey according to consultant and is going to be a long tough one for us both.

Ds had had loads of coughs and colds - usual for four yr old, then bcame really listless and tired, didnt want o walk anywhere, was very pale. took him to GP who sent us up to hospital for blood tests and later that day, I was given diagnosis. Lfe utterly altered in course of 12 hours. I can't believe it. We came straight up to Bristol in the night and here we are.

Ds being a star though is bewlildered and grumpy. My friend here with us til monday. hospital and staff fantastic. they have given me this lap top to use. Ds asleep next to me. am knackered and afraid. I have great friends though no family so we are not alone. but support on here is valuable.

thanks pirhana. x

TanteRose Sat 19-May-12 05:22:01

Oh UnlikelyAm - hugs to you and your brave brave boy. Very glad that you were able to rejoin MN.
I am on t'other side of the world (lunchtime) if you want to talk.
You must be feeling as bewildered as your DS sad but I am sure you are in good hands at the hospital

DutchOma Sat 19-May-12 06:43:49

Welcome back, hope you got some more sleep after posting four times hmm.

Badvoc Sat 19-May-12 06:44:22

Thinking of you both xxxx

Thinking of you and your little boy and hoping for a swift recovery. Welcome back and well Done on MNHQ for making the right decision thanks

BeaWheesht Sat 19-May-12 07:00:46

I'm glad their success rate is high. You must be so tired and in shock. Get as much rest as you can manage.

Thinking of you both x

Alibabaandthe40nappies Sat 19-May-12 07:12:48

Well done MNHQ

UA - I am sending loads of love and prayers to you and your darling boy. Sounds as if you are in good hands.

Badvoc Sat 19-May-12 07:22:49

My MILs friends gs had the same illness as your ds at the same age UA

He is now a strapping 18 year old!!!


Bagpusstree Sat 19-May-12 07:26:49

I'm so sorrysad You are both in my thoughts. Sending prayers. xx

Niceupthedance Sat 19-May-12 07:48:36

UA your story was one of the first I read on MN and gave me strength to start motherhood alone. Want to wish you all the best and a speedy recovery to your DS.

StellaAndFries Sat 19-May-12 07:49:51

UA I'm sending you both all of my loved and best wishes x

ripsishere Sat 19-May-12 08:13:38

I don't know you story, nor you but my DD will light a candle for you in church tomorrow.
Well done MN for making the right decision.

OhDoAdmitMrsDeVere Sat 19-May-12 08:14:05

Hi AU,
The three years won't all be like the first months.
And you will be an expert in a few weeks.
Hang on x

Thumbwitch Sat 19-May-12 08:35:34

So glad you're back online UA and back on here, more to the point. (((((hugs)))) for you and your boy - sounds like a mad thing to say but I'm "glad" it's ALL and not any other variety, and better he should have it earlier than later (seeing as how he has it anyway - obviously not to have it would be far better) as that gives him better chances.

Hope that everything goes as smoothly as it can and as you know, being in Oz means that I am online at the oddest hours, so if you have a need in the middle of the night, let me know (PMs work best) and I'll almost certainly be here. xxx

gingercurl Sat 19-May-12 10:05:51

Praying for you both.

Doobydoo Sat 19-May-12 10:28:42

Sending you both strongest positive vibes.Am very pleased you are back on.xx

lisad123 Sat 19-May-12 10:46:09

UA, we had the same with dh, it all was within 12 hours. We are now 3 years post dx, and it takes months but you do settle into a new kind of "normal". You won't feel like this for the whole three years, I promise you, but do take time, take offers of help, look after yourself too and do your research.
If you need anything we are all here, sadly a few of us have been where you are but please do ask for help.
There is a children's cancer thread on health when your feeling up to posting they are a great support. X

UA I remember you well from your posts. I am so sorry your son is unwell especially after all you have already been through. Sending love and strength to you both.

I live 15 minutes from the hospital so if you need anything, coffee, laundry done, anything please just shout x

ThatVikRinA22 Sat 19-May-12 11:07:19

hi UA - so glad HQ did the right thing here - keep posting as and when you need to - and best of luck with everything.

best of luck lovely. x

roguepixie Sat 19-May-12 12:44:30

I am adding both you and your DS to my prayers and will light a candle at Mass tomorrow.

I do not know you or your story but wish you and your DS every hope, prayer and support on this journey. All these prayers and good wishes are winging their way to you, giving you every possible good vibe going. I am so glad that you are back on MN.

It seems such an odd thing to say but I am glad that his condition is one that is more easily treatable, responds well to treatment and has such a high success rate.

Thank you MNHQ for reversing the ban.

Glad to 'see' you back, UA smile.

Your little boys sounds like a reslient wee soul. I have in the past worked with children with various cancers and they humbled all of us adults all the time with their bravery, dignity and just plain ability to get on with things in the face of horrible treatment.

I really hope he and you will have as smooth a journey through this all as is possible.

PavlovtheCat Sat 19-May-12 13:17:14

I am thinking of you and your little boy. Strength and love to you both.
Pavlov x

Suedonim Sat 19-May-12 15:03:36

UA, I don't know you but I saw a link to this thread on FB. If good wishes were deeds then your wee boy would be cured already. Thinking of you both.

Hi UA. Glad to see you back but not the circumstances.

Poor DS.

If you need anything just shout. I am about an hour south of Bristol.

Solo Sat 19-May-12 19:11:29

Excellent news that UA is back on, thank you MNHQ and glad you can post again UA smile I hope you are as strong as you have always been on here...such awful news, but I hope things will be sorted well for you both.x

tribpot Sat 19-May-12 19:15:05

No words, UA, just deep sympathy and sorrow.

FriskyMare Sat 19-May-12 19:25:21

UA my heart goes out to you, we were in your situation 12 years ago when dd then aged 2.6 was diagnosed with ALL. You will soon find yourself in a little bubble of you, DS and doctors/nurses. Has he had bone marrow taken yet? DD was in remission within days but still had 2 years of treatment (longer I know for boys), fingers crossed it will be the same for him. It will be hard and you have a long road ahead of you but once you are informed of treatment you will start feeling more in control.
Much love to you bothxxx

DD is now a beautiful happy healthy 14 year old who has just taken part int the Manchester junior run in aid of Leukaemia and LYmphoma Research and I am so proud of her.

Thanks everyone. Means such a lot. My friend is still here which has been a godsend. Chemo starts next week. Its ging to be awful I know. I looked at cancer in children thread but found it too dificult right now. Not really sure what to expect of it all. Dreading ds looking ill, which he ill. I am going to be so strong as strong for him though. Thanks.

btw very encouraging to hear stories from those who have children who have come through and are now older happy and healthy.

FriskyMare Sat 19-May-12 20:40:00

Keep us posted about how his treatment is progressing, it's amazing how they can perk up once they have had platelet/blood tranfusions. Once your ds is feeling well again it will be much easier for you.

I'm sure I speak for many when I hope to offer you advice and support especially over the next few weeks.

BelleDameSansMerci Sat 19-May-12 20:49:51

Lots of love to you both, UA. x

simpson Sat 19-May-12 21:02:21

Thinking of you and your DS.....

BertieBotts Sat 19-May-12 21:48:07

UA, your posts were such a source of support to me all those years ago (has it really only been 3, because it feels like a lifetime ago) in recognising XP's behaviour as narcissistic and giving me the courage to leave. Those were long threads and the small core of regulars on them (of which you were one) really and truly changed my life. I will never ever forget the kindness and support of MNers at that time. I know it can't compare, but I hope that you can access some of that kindness and support now when you really need it.

I am really devastated to hear your news and I hope that things go well with the treatment.

Rindercella Sat 19-May-12 23:07:44

So pleased MNHQ have done the right thing. I the support and advice from fellow MNers can be an absolute Godsend in times such as these.

UA, I hope that DS is as comfortable as he can be. Thank God he is now in hospital and is being treated. It really is the best place for him and actually, as awful and terrible as the news of the diagnosis is, I am sure that knowledge is power and now you know what the devil is you're dealing with, you can equip yourselves with everything you can to beat the fucker.

You are an amazingly intelligent, strong and resourceful woman and you really need to make sure you use every available resource and offer of help. There are sadly so many who have been in the same situation as you and your DS so although this is all new and bewildering for you, there are some amazing people around who have been there and who can help you through this.

My thoughts are with you both and I have everything crossed for your DS .

ledkr Sun 20-May-12 19:04:30

Good decision mnhq, welcome back AU now behave yourself grin

Hope you can get some support here I have a friend whos's dd had lukeamia and is now 24,sending you good vibes.

Seabright Sun 20-May-12 21:18:43

So glad you are back & am hoping we can be of support to you. Shout whenever you want something, someone on here will hear you and try & help.

Love & hugs!

giraffesCantGoPotholing Mon 21-May-12 00:35:43

Thinking of you. Would advise some good lipbalm - this is the one expat and her dd been using - helps with dried up chemo lips. And get some good hand cream for you for all the washing/antibacterial gel, I like that norwegian formula stuff as its not all greasy.

LadySybilDeChocolate Mon 21-May-12 12:32:54

I'm so very sorry to hear your news. Sending you some good vibes and a huge bottle of hope and strength. xx

Meglet Mon 21-May-12 12:39:51

UA My cousins little girl was diagnosed with ALL almost 3yrs ago. They're in the States so I daresay the treatment is slightly different but she has just finished the bulk of treatment and is now a thriving 6yo. IIRC it was 12-18 months of the most intense treatment then maintenance. I think they have fortnightly clinic visits now, but she's at kindergarten, swimming and able to do everything all her friends do.

Thinking of you and your DS.

VJayazzle Mon 21-May-12 17:45:58

UA my thought are with you and your ds. Stay strong xx

Mama1980 Mon 21-May-12 18:01:13

Ua I don't know you or your story but I am glad you have been allowed back on. My ds had to endure the most brutal year of treatment following complications from
His premature birth. Doctors are amazing. I have a friend near Bristol who would be happy to drop anything in if you are in need. Stay strong xxx

worrywortisworrying Mon 21-May-12 18:03:41

UA - I know your story from WAYYY back.

Can't believe you are faced with this and wishing you every bit of strength, and good luck and faith that I can muster.


Riveninside Tue 22-May-12 18:03:46

Prayers from me. If you need anything just say. I'm at BCH a fair bit.

Jux Tue 22-May-12 18:25:50

Thinking of UA and her son. Will lit a figurative candle for them.

I hope she gets unbanned.

Jux Tue 22-May-12 18:26:42

Light a candle, that is.

Thumbwitch Wed 23-May-12 03:08:13

Jux, she has been unbanned - messages from MNHQ and UA herself on this thread. smile

Jux Wed 23-May-12 08:12:12

That'll teach me to post without refreshing!

Good news re the unbanning.

UA, I'll be thinking of you both.

Hello. Ds is now two days into chemo/steroids etc. It's a blizzard of drugs and syringes, IVs, drips and god knows what. He has had a lumbar puncture and a portacath fitted. He has been in good spirits. But then the syringes arrive with does of thisaxethamine and thatallopinol and god it's horrendous. He had three to take at the same time tonight and he did so well, brave little man, then vomited the lot a few minutes later. And I don't blame him either.

Spent two and a half hours trying to persuade him to take two syringes this morning, but eventually had to pin him down with help of the nurse. Hideous.

The ward is so hot. I am so knackered and we are only two days in. Another MNetter met me outside for a smoke this afternoon which was wonderful.

My lovely friend arrived from Yorkshire for a couple of hours this afternoon and sat with DS while I went and raided shops for food, more tee-shirts etc.

It's a horrible journey. I am shit scared. Ds is such a trooper and even covered in sick he managed to keep half an eye on the ninja turtles dvd. He has more bloody strength and stamina than me.

btw Ds is finally asleep which is why I can get away to computer room and write. Thanks for supportive messages again. They help.

caramelwaffle Thu 24-May-12 00:13:05

Thinking of you both <hug>

Alameda Thu 24-May-12 00:18:50

hello, I remember you (own name has changed about seventy times though)

don't know how I missed this thread until now but am so glad you are back and want to add my love and best wishes, thank goodness you have some support in real life too x

Solo Thu 24-May-12 00:19:31

Kids are amazing aren't they. Wishing you both the best and praying for you too.

Thumbwitch Thu 24-May-12 00:27:06

(((hugs))) UA and DS. Much strength to you both - it's a foul time but it will, all things willing, be worth it afterwards.
Spout all you like on here - it's what we're here for. xxx

DaenerysTargaryen Thu 24-May-12 01:13:41

Computer room? Have you not got your own laptop? I was trying to find you one and then op posted to say you had one?

I'm in Bristol please let me know if I can be of any help to you. I've been thinking of you both it must be horrible in this heat sad

AlfalfaMum Thu 24-May-12 01:30:46

SO sorry to read this UA. Bloody hell.

My dear friend had leukaemia when she was a teenager, and she is now a beautiful sporty woman in her late 30s.

Will keep you and DS in my thoughts xx

((((((hugs)))))) to you both from all of us xxxxxxxxxxxxxxxxxxxxx

Crazytictac Thu 24-May-12 21:52:41

I've been thinking of you and your DS a lot. Poor little chap but he really does sound a tough little nut if he's still managing to keep up with his DVD.

Can't imagine how horrible it must be for you to see him go through it. Wishing you both well

BertieBotts Thu 24-May-12 21:57:00

UA - I work in a second hand DVD shop and can get all sorts of things really cheaply. If you let me know what kind of things your DS likes I'll keep an eye out for you and post some down xx

TheCrackFox Thu 24-May-12 22:09:09

UA - I am so glad that Mumsnet has lifted it's ridiculous ban. I am sending positive vibes to you and your beautiful son (seriously, he is beyond gorgeous). Xxx

yakbutter Thu 24-May-12 22:11:45

Message withdrawn at poster's request.

headfairy Thu 24-May-12 22:45:14

Aw bless him, poor little mite. So impressed with your ds being so brave. You sound like you're being incredibly strong. Big hugs to you both xx

Ds been so good today. Had needle re-insterted into his portacath as he yanked it out. 'I hate you mummy'. Ouch ouch ouch for him.

So hot on this ward. I am very tired as another little boy is having a really rough time and cries loudly a lot so not getting much sleep.

Going to make a cup of tea now. Not something I thought I would ever write. ha

giraffesCantFitInThePalace Thu 24-May-12 23:52:51

thinking of you.

Sharksandfishes Fri 25-May-12 00:14:58

I will keep praying for you and DS. I'm in Australia so I'll be awake if you want to PM or chat.
You are so brave x

Solo Fri 25-May-12 00:18:39

Lots of love and prayers from me too.x

seaofyou Fri 25-May-12 01:10:36

UA don't think about having to force the meds as bad....your ds only 4yrs old and he will thank you when older when understands...he is such a brave soildier having lumbar puncture etc...going through more than most adults do in 4 small years...you must be so proud of ds and you are amazing Unlikely.

Are you allowed a fan at the bed? Ask for one.

They were very fast in getting ds treated and fab they have started chemo...how long is it for the chemo? When will you both be able to return home for a break?

I know you dont even want to think of this but the costs of staying in hospital is expensive has anyone mentioned DLA...I think it is immediate and help with costs of daily visits to hospital shop to buy ds books/magazines/toys/nightwear etc but stops after 12 weeks in hospital, so not sure if they start it whilst in hospital?

Does anyone know any charities that can help UA with anything to make life easier ie Respite so UA can get home to have shower etc...do you stay their at night UA? Do you have a bed too to sleep in? I can't imagine how exhausted you must be and when your friend is their do not feel guilty about going home for a sleep....as you need to look after yourself too so you can look after ds.

Keep us all posted when you can x

Thumbwitch Fri 25-May-12 02:07:50

There may be a MacDonalds House there, I don't know - but it might not be necessary for UA if she has a bed on the ward. When my niece was in KCH having her brain tumour dealt with, my sis and the whole family stayed in the local MacDonalds house (niece was 21mo)

lisad123 Fri 25-May-12 09:28:14

Macmillan also do grants to help with the extra cost of a person with cancer.
DLA Is possible but is a huge form so get someone to help you.

MadameOvary Fri 25-May-12 10:11:15

The heat doesnt help. Could you have a fan, as suggested upthread? i'd happily have one delivered for you.

OhDoAdmitMrsDeVere Fri 25-May-12 11:20:20

ClicSargent social workers can help you with the DLA form and they should also give you some cash to help tide you over.

headfairy Fri 25-May-12 12:40:02

I'm miles away I'm afraid, but UA, you know me, if there's anything I can do/send/organise don't hesitate to ask. I hope your ds is a bit more comfortable today. It's marginally cooler here, not much respite though. It's only a degree or two down.

Lilymaid Fri 25-May-12 12:48:46

ClicSargent pay out a grant of £170 pretty well automatically when a child/young person is diagnosed/admitted to hospital. DS received one within days when he was diagnosed with leukaemia last year

Vev Fri 25-May-12 13:28:56

Luekaemia is evil and it's a gruelling journey. Hope he's feeling well soon. Look after yourself amazon and keep strong.

ZuzuBailey Fri 25-May-12 20:08:44

I got a grant from ClicSargent (when it was the Malcolm Sargent fund) for driving lessons so DD wouldn't have to travel to hospital every week on the bus. I was also helped with a hefty heating bill.

We had a holiday in a lovely caravan courtesy of the Leukaemia Care Society

UA and her DS should be assigned a social worker by the hospital who can liaise with these charities on their behalf. They deserve all the help they can get and are in my thoughts.

seaofyou Sat 26-May-12 22:05:51

Yes UA please get a SW to help you fill out the forms. Also Family Fund help children who are sick under 16 I think they might give driving lessons. They do washing machines, dryers, holidays etc.
Caldwell Children Charity may be able to help you?
Make a Wish Foundation do holidays I think?
Also when DLA is awarded you apply for carers allowance and phone tax credits to get extra premium. This will all help cover costs as it so expensive buying anything at hospitals. If you can drive and have not got a car the mobility element you can get a car for 3 yrs to help with ds outpatient appointments.

How is your lovely boy this weekend UA? I hope you got a fan? I hope you have got some rest/sleep too.

I am so pleased there are other MNs here who know where you can get some help.

pageturner Sat 26-May-12 22:12:12

Hi UA. I don't really come on MN any more but a friend let me know about this. I am so, so sorry to hear what you and your beautiful boy are going through. I won't post much, but you can be sure that I'll be following the thread and thinking of you both. Sending all positive thoughts. x

mumofjust1 Sat 26-May-12 23:36:51

Still thinking of you both UA x

As someone else mentioned, Leukaemia Care are fantastic - they helped us hugely when my dad had acute myeloid leukaemia, give them a try if you can

Praying for your brave ds, and wishing you strength


Thumbwitch Sun 27-May-12 00:01:51

Hope you're still getting support from outside, UA - and lots of useful ideas here for more support to help you through practically. I hope that you take them all up - it's hard enough dealing with this emotionally, it would be lovely to have some of the practical difficulties dealt with by others.

(((hugs))) as always for you and your lovely boy xx

Its crap and hideous. I could write so much more but I am so so tired. I have to force his meds down still and he wails and his face is red and streaming. He looks and feels humiliated as he is always such a brave canny boy outside of all this.

He's having a three hour blood transfusion tonight as he's been so low and quiet, angry, miserable. Its unbearably hot on ward but I have been bought a fan now which helps. The ward is so noisy it's hellish. The children have packs of marauding families in all the time, bellowing and giggling and rolling in a bit pissed sometimes. Ds puts his hands over his ears. Ive got him some ear plugs. we just arent used to this level of noise and confusion - our house is just he and I, our doggies. No catastrophising fucking parents/grannies/grandads/uncles aunties and 42 cousins. Horrible.

How can they all be so bloody jolly?

Ds is doing very well and we went out for a stroll in buggy today but he didnt say a word and wanted to come back to the ward.

We might be allowed out midweek to stay in Clic house nearby but i dont know. I havent had a shower for two days and really truly?? well the nurses just leave you to get on with it. It must be very normal for them - screaming cancerous kids and upset parents.

There really should be more help for lone parents like me doing this on our own th ough.

They homnestly havent got time to give much of a shit or any one on one care as they constantly hjave to dish out drugs.

I have to change ds and my sheets, make our tea (both of us as the food is so hideous he wont touch it).

Shocking really.

Havent previewed this so sorry for typos

oshuk Sun 27-May-12 20:28:22

This puts all our problems into perspective. Keep your chin up UA.

oh, and this morning, the nurse asked me how i would like ds's drugs made up ffs. I said surely it must be all in handover notes as we have been in here 10 days now. she said there's nothing written down at all.

so i had to tell her how to mix dexamethasone for ds and how to crush the septarin and rinitidin and bring it with a yoghurt.

she still got the dexamethasone mix wrong..ie too much of it. how can that happen ffs???

IwishIwasmoreorganised Sun 27-May-12 20:41:52

I'm so sorry to hear that you're going through this UA.

I'm not able to get to Bristol I'm afraid, but will happily post anything that will make life easier or more comfortable to you - just pm me you name and where to send it.

Wish I could help more, but you're both in my thoughts


Thsnkyou organised. x nothing really to send us except platelets and a lot of good luck. lololol but actually not funny. [shit silly mum]

out2lunch Sun 27-May-12 22:33:01

yy to posting anything anything at all that could help x your last post so sad - hang on in there.hoping for the best for you both x

SerialKipper Sun 27-May-12 22:36:16

Sending bucketfuls of good luck.

tudorrose Sun 27-May-12 22:46:14

Hello, just found your thread and haven't managed to read it all yet.
Am so sorry you are going through this.

I spend a lot of time in Bristol Hospital on Ward 38, my daughter spends at least two weeks in hospital every three months and if I rememeber rightly that is the ward next door to you. My daughter has CF.

I don't know much about cancer but I know lots about staying in Bristol Childrens Hospital unfortunately, so if I can help in any way please say.

MadameOvary Sun 27-May-12 22:55:09

Oh UA - that sounds fucking awful. I have a severe intolerance to noise and that would drive me batshit without all the stresses you are under. I regularly use earplugs- would you like me to send you a load via eBay? they are the 3M ones and a fresh pair makes all the difference. Also would your DS listen to music? An MP3 player or ipod?
Please have a think about anything that could help you and your lovely boy carve out a wee space for yourselves and I'll happily send it, be it earplugs or an essential oil vapouriser (if such a thing is allowed), toys etc.

Really want to go to Build a Bear and get one with a voice that says "Shut the Fuck Up, you're doing my head in"
(Not really appropriate but hopes it might make UA laugh)

lisad123 Sun 27-May-12 22:56:35

Oh UA sorry to read your last few posts sad horrible to be in hospital ward and you think the nurses would be better. Which hospital are you at again? If your nearby I'm happy to come and sit and come play puzzles and bring DDs ear defenders. I'm crb checked grin
Hope he gets moved soon so at least he can get a peaceful time. I have to say I would be tempted to go tell them to shut up, it's a hospital and yes always nice to have visitors but some kids need more rest than others sad

giraffesCantFitInThePalace Sun 27-May-12 23:05:55

can you talk to them about ng tube for meds? He may well end up with one anyway soon. Can you see a play specialist to talk about taking meds.

giraffesCantFitInThePalace Sun 27-May-12 23:07:43

do they have visiting times?

are you all on one big ward? thought that would be nightmare for infection with immunocompromised patients from chemo?

Thanks. yes exactly giraffes? anyway, we are in oncology ward for under 10's and yes we have play specialist who helped ds with shit we went through last week. but she doesnt work weekends.

and there is a Wii machine that ds has found and loves
but it is locked away at weekends because of thefts. what aq crapulous wo we live in eh?

Yes went to see Friends lady but just not suitable for ds 4.

We are ok though I am feeling quite desperate actually. What would happen to ds if I had to go home for three dayds or I got worse?

Oh yes silly me ds would be a TV chdf.

Thumbwitch Sun 27-May-12 23:45:38

Hello lovey, sorry to hear things are so extra uncomfortable for you and DS. sad

Must be awful being in so hot a room - I know they can't risk anyone getting a cold while under treatment but still. When I had DS in hospital, it was December and it was stiflingly hot on the ward. Thank god I got a private room (because I was threatening to leave) where I could open the window and get some fresh air!

The nurse with the meds - there HAS to be something written down somewhere re. your DS's schedule - can you speak to the oncologist about it? Especially if she made it up wrong, FGS! Don't they have special nurses who are trained in this stuff doing it? shock

serin Mon 28-May-12 00:05:45

Oh what a nightmare for you both.

Could you ask to speak to the ward manager and explain that you are finding it difficult to cope with the noise levels and the heat. The staff will be used to both and maybe they assume that you are ok.

The NHS that everyone raves on about does have gaping holes in it sometimes doesnt it? Crap food is really just not on.

You are in my thoughts.

Thumbwitch Mon 28-May-12 00:36:46

You'd probably rave on about it as well if you didn't have it any more, Serin. It's not perfect by a long way - but compared to having to pay for my clexane, scans and other medications throughout my current pg (all free under the NHS), it's still something worth hanging on to, although it needs improvement (and NOT by bringing in more fecking managers - by improving working conditions at ground level!)
Anyway. Not the place, apologies UA.

And the food in the NHS is utterly dire, I completely agree - can a friend or someone bring in food for you so that you don't have to do it every day? Please do take up the offers of help on here - I know you're a fiercely independent woman but the strain of managing mostly on your own is going to take a toll - do let those who can help you before you collapse.

tudorrose Mon 28-May-12 09:42:53

Hi, I am coming to out patients for a check up for DD3 on Thursday morning so if I can bring anything/do anything please please say.

It's shit though, I hate having to ask for help when DD3 is in hospital, even if its just for something like a friend taking DD2 to school when they walk past my house to get there anyway. I struggle to do things and get upset when I really don't have too.

tudorrose Mon 28-May-12 09:49:28

Just read my last post and it sounds really patronising. Worded it badly, I meant I am just my own worst enemy, wasn't accusing you! blush

Conflugenglugen Mon 28-May-12 09:56:06

Sending you healing angels, UA xx

expatinscotland Mon 28-May-12 10:06:05

Hope things improve soon, UA! Sorry to read this.

Just dipping in and out.

Jux Mon 28-May-12 10:48:27

I had a friend in our youth - many moons ago - who had this as a child. Treatment wasn't so good in those days, but she survived and by the time I met her when we both about 20 she was 100% fine. I'd never have thought she had ever been ill, let alone so seriously. In those days, when she was 5ish, she was almost a guinea-pig for treatment! We've lost touch now, but she's a musician and travels the world playing, so I catch the odd glimpse of her on telly from time to time.

IwishIwasmoreorganised Mon 28-May-12 10:55:17

Anything at all UA, toys, colouring, an iPod for some music or stories, snacks, clothes.

I feel helpless and can't even to imagine how tough this is for you and you ds right now, so if I could do just a little package to bring a smile fleetingly to your faces then I'd do it in a shot.

Please do ask your ds's oncologist about the mistakes with the medication - that's just not on.

Hoping that hings become more bearable very soon


expatinscotland Mon 28-May-12 11:24:59

Oh, yes, don't put up with crap! Go to the ward sister first, use PALS to make formal complaints and use the registrars to get the consultant. We've been here so long, and Aillidh's leukaemia (AML) is so rare and required so much treatment + stem cell transplant that I just go to her cons or the transplant doc with everything.

headfairy Mon 28-May-12 11:32:20

Oh UA, so sorry to hear the ward has been so hellish. I hope you get some help soon. I'm so so so glad I'm a regular blood donor, don't mean to sound like some kind of super hero because I'm not, and I know many can't give blood. But I think if you are medically able to, everyone should try just once. Knowing it could be a lifesaver for someone like your ds makes it even more important. I'm also on the bone marrow list and would leap at the chance if I was a match. Hugs to the boy and you xxxx

expatinscotland Mon 28-May-12 11:43:39

The machine noises you will get used to. Right now, she's on 3 IVACs, a syringe driver, a ketamine pump and a morphine pump. The only ones that now wake us are the ketamine and morphine pumps, so I make sure anaesthesia tops them up by 11PM because they are super loud. The feed machine is loud, too, but she's on TPN now so we don't have that. Get them to show you how to use it and top up the feeds at night so it doesn't go off. It'll only go off if the line is occluded then.

Many low-risk ALL's wind up not needing an NG tube so that's good! DD has a Hickman line in. Again, low-risk ALL's usually only have it in for 8 weeks but it's a godsend, IMO! Saves trashing out the veins with canulas. She has one in now because she needed more access for drugs and she hates it. Even on her, with good veins, she's got through 3 of them in less than a week.

Some staff are louder than others. But things like talking loudly with other staff in the room or switching on overhead lights during the night isn't on unless there's a somewhat emergency. Talk to teh ward sister about this.

Get you some silicon earplugs!

You will learn you need a stiff set of balls or lazy people will walk all over you.

expatinscotland Mon 28-May-12 11:45:58

FWIW, you cannot open the windows in many paed onc wards due to infection control.

expatinscotland Mon 28-May-12 11:52:39

It's like any other place: you get good ones and bad ones, trouble is, you're stuck living with it.

In DD's case, she won't be out until at least July.

Sometimes they borrow nurses from other units and they are shitheads. I had one this morning. So DD's consultant was in, I've had the misfortune of having lots of close contact with her, so I told her, 'Well, we have permission to use Skype and the net from Dr. X, too, let's go bother her with this trivial matter, too, just to clear silly non-issues up, she loves being interrupted for superfluous reasons. It puts her in such a good mood. Ever seen her in action? Nearly all of us have. It's why most people stay out of her way. But c'mon, I'll go first.'

She left.

MadameOvary Tue 29-May-12 11:39:21

How are things today UA? Thinking of you x

We are hopefully going to be allowed some overnights at the Clic Sargent House from today which will be great as it's so peaceful there. Waiting for blood results before we can leave though as he's a bit dehydrated and may need to stay in on drip.

There is No laptop or PC at Clic so I won't update much. But he is doing well: plumping up, grumpy, quiet, etc. I have cut his hair short in advance of it falling out as it was quite surf-dude-long.

He is coping amazingly well, though is desperate to get off the ward.

He still has to be pinned down to be given the meds which is crap for us both.

He has a lumbar puncture and bone marrow aspirate tomorrow.

He is on course so far with the treatment.
Not looking forward to going home actually as it's going to be a hell of a lot of up and down and up and down to hospital 2 hours away, three or four days a week for chemo.

Expat, so sorry your daughter is going through similar but i know you are a strong woman. You will get through it.

Thanks so much to headfairy. You are a star. What lovely gifts! H was very excited. x

expatinscotland Tue 29-May-12 17:36:52

Glad he is getting out! They're going to throw away the key on us sad. We are also 2 hours away from hospital, it sucks.

FriskyMare Tue 29-May-12 17:41:43

I remember DH and me having to get DD (then 2.5) in a headlock trying to syringe her chemo (about 2ml of it) into her mouth. She got used to it eventually and even started to take it herself.

Keep strong. xx

expatinscotland Tue 29-May-12 17:54:30

Can he not get it through an NG tube? A's chemo has all been inpatient, through her Hickman line, but she flat out refuses to take meds orally and always has, and she does need quite a few of them, so she has an NG tube in for them.

The drawback is that they were out about once a month and have to be passed again.


Holdmyhand Tue 29-May-12 21:48:04

Thinking of you both and sending all my love xxxx

thegreylady Wed 30-May-12 10:36:40

Just want to add thoughts and prayers to the rest. You and your DS sound like such a brave strong pair. I wish you all the luck in the world.
I am so glad that mnhq lifted the ban.

MrsSnaplegs Wed 30-May-12 10:53:50

UA - it is good to see you back but such a shame it is in these circumstances. My thoughts and prayers are with you and DS.

There is lots of wonderful support here still, I hope you can find strength in it.

headfairy Wed 30-May-12 21:15:13

Oh I'm so glad you got the package. I was worried it wouldn't get to you! I hope you both manage to get some rest at the Clic Sargeant house xxx

headfairy Wed 30-May-12 21:16:59

Oh and it must have been so heartbreaking for you to have to chop ds's beautiful blonde locks off sad

giraffesCantFitInThePalace Sun 03-Jun-12 00:03:27

Anyone know what ds name is so I can put it on my race for life sign?

giraffes,have pm'd you.

KalSkirata Thu 07-Jun-12 19:25:36

Been to visit UA. She is finding it very tough and her poor ds is very poorly now with the chemo and steroids. She isnt getting any support to get time to have a shower or go get food and ward is pretty manic sad
Going in tomorrow to sit with him so she can get a shower but she says she says if any Bristol mumsnetters want to visit that would be great.

headfairy Thu 07-Jun-12 19:38:20

Kal. I wish I could help, I know UA in RL, but I'm miles away in London so I can't manage to offer practical help. Is there anything else I can do?

TheCrackFox Thu 07-Jun-12 19:41:46

I would love to help but I am in Edinburgh. Bumping in the hope that a Bristol mumsnetter will see this.

ChuckUFarley Thu 07-Jun-12 19:52:03

Prayers and love.x

I am of no practical help either (in Scotland).

Anything we could send UA and her DS??

Kal, it is lovely that you can do that for UA - she will feel so much more human after a shower.

KalSkirata Thu 07-Jun-12 20:01:39

I will ask her. I told her not to be embaressed to ask for help. anyoe know if she is entitled to respite help from anyone?

Does she only want mumsnetters that she 'knows'? I'm in bristol and I would definitely visit and sit with her son so she can shower or do whatever she needs to but obviously if she's uncomfortable as she wouldn't know me then if there's anything else I can do let me know.
I do have a 9mo so would have to sort childcare (which isn't a problem just would need planning)

Is the clic sargeant in bristol also?

All the best UA x

mummylin Thu 07-Jun-12 20:24:58

Wishing your ds returns to being a healthy little boy as quickly as possible.Do take any help you are offered.

MrsSnaplegs Thu 07-Jun-12 21:17:59

I'm sorry I'm too far away to offer to visit but if there is anything else we can do from a distance please let us know smile

lisad123 Thu 07-Jun-12 22:31:08

Can't get to Bristol but happy to help jn any other way.

Nyx Thu 07-Jun-12 22:45:02

Just to say, you and your son are in my prayers, UA. I'm in Scotland so can't visit, otherwise I so would! Wishing you both all the best, and I'm glad you are back on here for help and support.

CardyMow Thu 07-Jun-12 22:53:26

My thoughts are with you and your DS, UA. You won't remember me, as I have Namechanged, but four years or so ago, you helped me to extricate myself from an abusive relationship.

I wish your DS a speedy recovery. (((HUGS))). And I din't care if it's in-MN to give hugs!!

Mardycow, were you another name with cows in it? If so I remember you and your story well. but you're probably not.

Thanks for offers etc. I have no room to put anything as tiny room in Clic House which is horrible and i dont'want to go back, and certainly no room round the bed in hospital. I dont know what I'll be doing either. staying in or out. we are in this weekend as ds has infection.

Its all pretty shocking when you have no support. There really is nothing to help with just feeling human. I smell and I am eating a pot noodle. My darling son is three weeks into three years of treatment and I am so hungry and tired. But you know what? There are children much much sicker than mine on this ward. The mothers are amazing. They fight. Some have been here months. One chap has been here alone with his son since february so it's not only single mothers doing it.

A few babies in isolation with tumours and they may never go home. I am lucky. But it takes nerves of steel and most people dont have nerves of bloody steel.

If you want to do anything to help, think of a name for a charity that helps truly lone families and start throwing money at it.


Migsy1 Fri 08-Jun-12 22:39:18

Praying for you and your son.

kissmyheathenass Fri 08-Jun-12 22:53:12

UA, I have a friend 2 years into the 3 year journey that faces you. It gets easier. The treatment is so tough for you both but so effective.

The ds of another very close friend was diagnosed with a different type of cancer 2 years ago. The family went to hell and back but their ds is now so healthy and happy, doing well at school, etc etc. They have just returned from a "make a wish" holiday to florida disney and have had a wonderful time. Getting through the cancer treatment was gruelling and awful but they are past it now as you will be too one day. You sound remarkably strong.

Thankyou. I am sure these first few weeks are probably the worst. I wonder if the hsopital and key workers make sure they are doubly so in order to prepare us for what is to come.

If they make it very isolating and painful/sleepless, terrifying and debilitating to start with, it sort of prepares us all?

I don't know.

Any good news story is welcome.
Whopping pizza just been delivered. so so hungry. scoff scoff scoff

chocolatespiders Fri 08-Jun-12 23:29:05

So sorry to hear your ds is poorly and undergoing treatment, I am a lone parent and cant begin to imagine what you are going through..

Could childrens social care offer you any help... A social work assistant to stay with DS while you shower and restock your pot noodle supply grin

UA- I wish you strength to get through this with you DS who sounds amazing.

lisad123 Fri 08-Jun-12 23:36:07

I think this is the best one for donations here

lisad123 Fri 08-Jun-12 23:38:15

Or this one

KinkyDorito Mon 11-Jun-12 21:27:14

I'm sorry to hear about your son.

If you would like some parents to chat to, then our thread is on Children's Health www.mumsnet.com/Talk/childrens_health/1368190-Children-with-cancer. My DD has leukaemia too: she is a year into treatment now.

Also, this group is very helpful: www.facebook.com/groups/213470895357205/

It was set up by a mum who goes to hospital with me. Her DS also has ALL.

Sending you love and best wishes. I know how shit the stays in hospital can be.

KinkyDorito Mon 11-Jun-12 21:27:46

I'm sorry to hear about your son.

If you would like some parents to chat to, then our thread is on Children's Health www.mumsnet.com/Talk/childrens_health/1368190-Children-with-cancer. My DD has leukaemia too: she is a year into treatment now.

Also, this group is very helpful: www.facebook.com/groups/213470895357205/

It was set up by a mum who goes to hospital with me. Her DS also has ALL.

Sending you love and best wishes. I know how shit the stays in hospital can be.

Meglet Mon 11-Jun-12 23:10:51

I don't know if anyone else has suggested it but could the hospital chaplain help? Someone to sit with your DS while you have a break for an hour or so?

KinkyDorito Tue 12-Jun-12 07:08:42

Do you have a social worker? We got one automatically through CLIC (based at hospital). CLIC also have volunteers who are CRB checked who can give you respite, just to get out and get some air. However, I realise it isn't easy to leave hospital as you want to keep a handle on everything.

windywendy Tue 12-Jun-12 22:22:36

I'm very sorry to read this UA. My 3 year old DS was diagnosed with ALL and transferred to Bristol in January so it feels very familiar reading your posts. You will get through this though, I promise. It is never as bad as the first few weeks and you will have happy times and laugh again soon.

I think I read that you travelled 'up' to Bristol? If so, that is the same for us and I am wondering if you will be having the rest of his treatment in the same hospital as is? If you want to pm me or anything I'd be glad to help with anything. If you are at the same hospital they are all wonderful and I will do what I can to help you out too x

Thumbwitch Wed 13-Jun-12 04:40:20

Lost you for a bit, so sorry! blush

Wish I could help more but I'm way to far away to be of practical use. Aren't there any voluntary workers left in hospitals, Friends who do visits and so on, who could sit with your DS for a bit while you have a little break, wash etc.?

I hope the treatment is going well, even though it's horrible to go through - and that DS is coping ok. Breaks my heart just to think of it sad

(((((hugs))))) for you both, you're in my thoughts and prayers all the time. xxx

Just found thia thread. I am so sorry. You are both in my thoughts and prayers. I am too far away to.be of any help but pm me if I can post anything for either of you

Madsometimes Thu 14-Jun-12 21:22:51

Thinking and praying for you and your ds. How is he coping with the treatment?

ReindeerBollocks Thu 14-Jun-12 21:30:35

I'm too far away but happy to send food parcels or gifts to help. I hope that your DS is tolerating the treatment and I hope you've managed to get a shower /some food x

Birnamwood Fri 15-Jun-12 13:14:55

Thinking of you all UA and sending healing thoughts.

For everyone who is feeling helpless, please can I direct you to this thread? I'm running 10k in aid of Clic sergeant and any donations will be greatfully appreciated smile

mathanxiety Sun 17-Jun-12 00:35:48

Have just seen this shock

UA I wish you and your DS the very best. They say nobody is asked to carry more than they are capable of carrying, but sheeeesh. This is a biggie.

Will pray for you both.

Patienceobtainsallthings Wed 20-Jun-12 11:22:57

Thinking of you and DS ,UA .
Sending you both love ,strength and peace for your journey x

thegreylady Thu 21-Jun-12 21:48:54

Sending love and prayers-hope you are getting some rl support x

Thanks for messages. Ds has now finished first phase of treatment, called 'induction'. He is waiting to see if he well enough to start the next phase, which is more chemo - administered orally by me. He has had a very torrid time. There is a chemo called Vincristine which has given him terrible pain all over his body and constipation. We have had many sleepless nights. Lots of tears. making him take all the medicines is awful. have had to pin him down sometimes. he's sicked them up etc.

All these things are very normal but that doesn't make it any easier to deal with sadly. There is a support page on FB for families with children with ALL and we share our experiences - many are going through exactly the same traumas.

main point is, he seems to be responding well so far to the treatment. But ikt's a long and rather dark road ahead. Still more months of chemo and drugs and lumbar punctures to get through. He has been incredibly brave. he's inspirational really. I am proud of him and love him more and more if that';s possible!

Alibabaandthe40nappies Tue 26-Jun-12 10:06:47

UA that is a lovely post smile You are an amazing woman, very easy to see where your son gets his fight from. Wishing you both lots of love and support x

pageturner Tue 26-Jun-12 23:11:51

Keep hanging in there, UA. You, and your beautiful boy, are doing amazingly. x

seaofyou Wed 27-Jun-12 00:45:41

UA you are the bravest mum I have come across on MN and your DS is starting to respond which is totally amazing! Please hold on in their every day for your beautiful boy...side effects awful but the drugs so important. Remember each day is another step towards recovery and just focus on that end day...keep positive and strong for your DS...you are an amazing mum UA and your DS is such an example of the bravest little man who like his mum is a fighter through and through (((hugs)))

Thumbwitch Wed 27-Jun-12 15:12:40

UA, so glad you have more support from people going through the same process as you and your DS. It sounds horrendous, truly it does - but he is an amazing little boy and he WILL come through it, fighting every inch of the way. As will you - you're a battler, and let's hope this is the battle to end all battles for you and your DS - you've had enough to contend with!

Take care of you both, lovely - always thinking of you xxx

lizbee156 Wed 27-Jun-12 15:52:04

Sorry I've come to this so late and you may know all of this already...

I know others have mentioned CLIC but Bristol Children's Hospital has a family fund you can apply to.

Sending you my best wishes.

BrainSurgeon Wed 27-Jun-12 16:36:49

Best possible wishes from a humbled mum of a 4 yo DS - the light of my life... I can't even begin to imagine how hard it must be for you both, I've been crying my eyes out reading what you and DS are going through.
Will be thinking of you, I hope that treatment works really quickly so things get a bit easier.

mathanxiety Fri 29-Jun-12 15:31:20

Keeping up the prayers, UA.

BCBG Fri 29-Jun-12 15:44:58

Thinking of you all going through this process x

MaryBS Fri 29-Jun-12 15:48:22


Quenelle Fri 29-Jun-12 15:54:56

I'm so sorry to read about your son UnlikelyAmazonian. My brother had leukaemia at the same age as your DD nearly 40 years ago. I was only 6 years old but I remember him being so poorly, and so incredibly stoic for such a young child. It was a dark, frightening time for the family but thankfully he recovered.

I remember DB could only chew tablets and I remember him having to eat the many pills he was given every day with toffees.

I will be thinking of you and your brave, inspirational boy and wishing you the very best for the coming months. And also expatinscotland, kinkydorito, windywendy and any others going through this.

Prayers and best wishes for you and your brave little DS x

SucksToBeMe Fri 29-Jun-12 16:02:29

Keep fighting kiddo xxxxxxx

whiteandyelloworchid Fri 29-Jun-12 16:03:31

thinking of you and your son ua.
really hoping he can fight this thing off.

AnyoneForTennis Fri 29-Jun-12 16:51:01

Ave just read this. UA I used to be on lots if threads with you. Lone parents threads particularly.

So sorry you are both going through this. Hope you are getting some support. What you said about lone parents having little support is so so true.

BlueFergie Fri 29-Jun-12 17:26:50

UA - you won't know me but i remember you very well. I remember in my early days on MN what an amazing support and source of advice and strength you were to women in abusive relationships. I also remember the terrible stories about your own relationship.
I know also that you are an incredibly generous and giving person. I know this because I recall a particular thread from years ago purporting to be from a scared woman in a terribly abusive relationship. I think it was later shown to ba a troll but I and many others followed it for a long time and it was very convincing and distressing. During it you offered a lot of advice and support and also offered this woman a place to stay in your home. I know after you were very annoyed (and rightly so) by this persons deceit. But I want you to know that it has stuck with me as the most generous and selfless offer I have seen here of anywhere else. I thought then and still think now that you were an amazing person, and I always remember you for it.
I am sending you and your gorgeous DS (whoses pictures I also remember) strength and love. If he has inherited his mummy's spirit he his half way there already. Xxx

MittzbethSalanderLovesJuice Fri 29-Jun-12 18:13:39

Deeply sorry to hear this UA sad thoughts and prayers are with you xx

Migsy1 Fri 29-Jun-12 22:03:09

Saying prayers xx

giraffesCantFitInThePalace Fri 29-Jun-12 22:12:11

Any chance of him needing/getting an NG tube? you can give meds through that and then takes away the pin down thing. That is horrid for you to have to do that.

I often think of you x

Jux Fri 29-Jun-12 23:56:07

Thinking of you, UA. Hoping things are going well for you both.

Doobydoo Sat 30-Jun-12 09:23:26

Thinking of you both.xx

MittzbethSalanderLovesJuice Sat 30-Jun-12 10:35:21

Hi UA, hope you are doing as best you can in what v is a terrible time.

DS although now 14 still has some toys that he has yet to sort through. Would your Ds like a little selection of HotWheels cars to play with? I will disinfect them and they are in quite good condition?
No worries if not, just a thought xx

perceptionreality Sat 30-Jun-12 10:37:56

Thinking of you and your ds, UA and sending prayers Xx

Lovely messages of support. Thankyou so much. Ds has had very good news in that his blood results this week mean he will be on what's called Regimen A, which is the 'least intensive' treatment process and which means his chances of relapse (ie the leukaemia coming back at a later stage) are slimmer.

He has had a week off the chemo this week as his counts are too low to begin the next gruelling phase. He starts that on Monday - another Lumbar puncture (General anaesthetic which is horrible as he passes out in my arms) and then fingers crossed begins the oral chemo.

But this week therefore he's been back to more his old self - fantastic to see, as he will dip and disappear again soon. He's lively, funny, throws his head back laughing, eating like a horse (national run on salami due any moment as he's eating it by the packet load, so stock up people) and has been able to have a couple of his little mates to play.

I too am thinking of expat and windy and the others who are going through this. You never think it will happen to you. Then it does. And since it has, we have come across so many other families going through it. You think you won't cope, but you do. I met Riven when we were in Bristol - she really is an amazing woman. She came and had coffee and helped me out. Thank goodness for Mumsnet as well as my RL friends.

Thumbwitch Sat 30-Jun-12 13:24:29

That's hopeful news, UA! Glad to hear he's doing well and needs the least intensive course of treatment. Love and strength to you both xx

schobe Sat 30-Jun-12 13:30:25

Great to hear an update and brilliant news about regimen A.

I think about you both often - keep on keeping on.

usualsuspect Sat 30-Jun-12 13:30:44

Sending strength and love your way xx

DutchOma Sat 30-Jun-12 13:54:18

Thank you so much for the update UA.

gingercurl Sat 30-Jun-12 19:29:07

Thank you for update UA. Remembering you and your DS in my prayers.

gatheringlilac Sat 30-Jun-12 23:43:03

Thinking of you both. Wishing the absolute best for you. All love to you.

Alibabaandthe40nappies Sun 01-Jul-12 00:00:32

UA that is good to hear smile Sending your DS strength for this week.

NoComet Sun 01-Jul-12 00:11:39

I've been sending healing vibes North to Alilidh.

I'll do my best to send some South for UA's DS.

Glad he's feeling better and hope he continues to. F

tribpot Sun 01-Jul-12 00:19:03

Thinking of you, UA.

Rindercella Sun 01-Jul-12 00:42:06

I have thought about you and DS often over the last few weeks UA. I am so pleased to hear things are more positive and that DS is regaining a little of his old self again.

I am so sorry you are both having to go through this. Your DS sounds amazing and I bet it fills you with joy to see him scoffing <must buy shares> and playing with his friends.

I have everything crossed that DS continues to make such good progress. xxx

PS You're doing an amazing job x

I often think of you UA. I don't often post on this thread.

I want to say I will post anything you need. Just pm me, I would come and see you but am too far away (manchester.)

I'm holding your Ds up in prayer.


Vev Sun 01-Jul-12 09:34:42

Glad your little one is doing well. Good luck for the next round.

Meglet Sun 01-Jul-12 21:14:09

Glad to hear the treatment is going as planned. My cousin has just gone through the same thing with her (now) 6.6yo DD. Lots of treatment and very hard work getting her DD to take some of the medicine but with chances to catch their breath, and enjoy some 'normality' inbetween.

Hope your DS's treatment carries on going smoothly. Have you managed to get any more support?

I'm keeping you and your DS in my prayers. Love to you both x

gingercurl Tue 03-Jul-12 22:45:11

Still praying for healing and strength for UA and herds

SecretNutellaFix Wed 04-Jul-12 23:55:40

Have been thinking of you UA on your journey. Hope everything continues positively for you.

CJfromTheWestWing Thu 05-Jul-12 09:07:06

Thinking of you and your brave son UA

Jux Fri 06-Jul-12 10:03:35

How is he doing, UA? And how are you too?

Is it this week he's having treatment? I have difficulties with dates, and get weeks mixed up. Iam sending healing white light to you in Bristol as wellas to Scotland.

gingercurl Fri 06-Jul-12 12:12:26

"herds?" just noticed. blush "her ds", of course!

Still praying.

Thinking of you and sending positive vibes xx

nannyof3 Mon 09-Jul-12 17:46:35


How is your ds? Hopefully no update is because all the news os good!

Hi and thanks for concern. smile DS is doing well. He's has been off chemo for two weeks as blood counts not good enough to start the next round. But today when we went to hospital his counts were good so he had the lumbar puncture and tonight has started next block of chemo. It means he has started what's called the 'Consolidation' phase.

Haven't felt like posting anything as have been on expat's thread and our problems with leukaemia are nought in comparison. My heart is with her.

ArthurPewty Mon 09-Jul-12 20:23:19

glad to hear things are moving along okay.