Pls help,what is wrong with my 9 week old?

(37 Posts)
suedetteuk Sun 22-Sep-13 21:30:31

Basically, since my sons birth nothing has seemed right. He had jaundice and was very sleepy and wouldnt wake up ever. Then when that cleared he started choking on his milk which is terrifying. He has diarea all of the time, he only turns his head to the left and screams in pain whenever I turn it to the right. He was on cow and gate so we changed milk cos he seemed in pain (arching his back, never settled) we changed to comfort milk. He then got worse again and spent days crying. Tried colief and he is better, but still has diarea every day and I change his outfit every single time he poos. Asked HV and she suggested to get a sling, and said do not change his milk. He is swallowing constantly and making high pitched sounds when he breathes. Doctor says he has a lazy larynx. Does anyone know what is up with him? Just want him to be well!! Feel like I am not getting answers from anyone as some docs refer him to a pediatrician, others have said no. Dont know what to do anymore, going out of my mind with worry. Sorry for the novel!

DoItTooJulia Sun 22-Sep-13 21:32:34

Hi suedette.

That sounds tough.

When you say diarrhoea, what do you mean?

Osteopath and demand referral to paed
If gp says no tell him in no uncertain terms that if he doesn't refer you and there is something wrong with your baby that is consequently untreated you will sue him

Sockywockydoodah Sun 22-Sep-13 21:34:10

I don't know about the milk, but if he finds it painful to turn his head to one side, you might try taking him to a cranial osteopath to get him some relief.

Poor him, and poor you. Hope you get some answers.

suedetteuk Sun 22-Sep-13 21:34:43

Hi Julia, Its basically green/yellow water that he is passing every time and it goes through the nappy, vest, the lot sad

MissStrawberry Sun 22-Sep-13 21:34:48

You seem to be having a few problems sad. The only one I can advise on is the turning one way. He could have torticollis. You need to have him seen where he will get diagnosed and then be given some exercises to do with him to loosen up the muscles in his neck so he can move freely before it develops into more problems.

suedetteuk Sun 22-Sep-13 21:35:28

Thanks, will def be going back to the docs

Sounds like cows milk intolerance and/or reflux. I'd park yourself in the GP tomorrow and demand a referral and some hydrolysed formula.

Write a list of what he's doing and ask the GP to explain what they think it is.

suedetteuk Sun 22-Sep-13 21:37:13

Thank you all for your replies, new to the site so sorry if I miss anyone when I reply.

suedetteuk Sun 22-Sep-13 21:38:43

CreatureRetorts, I mentioned a lactose intolerance ready present in my family and they wnt believe it and said that as he isnt losing weight, he is ok.

AnotherStitchInTime Sun 22-Sep-13 21:39:15

Didn't want to leave you unanswered, I hope there will be some more knowledgeable people along soon. If I were you I would get this moved to the breast and bottle feeding topic as there will be more traffic and advice on there.

My thoughts are:

Cows milk protein intolerance

Or

Reflux possibly both.

DoItTooJulia Sun 22-Sep-13 21:42:32

Suedette, follow your instincts. Sometimes you need to be super assertive with the doctors or health visitors.

A cranial osteopath may help with the turning his head.

Hope you get some answers soon. I hope you are ok too.

suedetteuk Sun 22-Sep-13 21:46:16

Thanks everyone, I will be changing his milk, I cnt put up seeing him suffer anymore. I will def go back to HV/Docs and hopefully get some answers x

LadyMetroland Sun 22-Sep-13 21:46:41

Ask to see a different doctor and insist on a pediatrician referral. Be very assertive as some gps are crap. Hope he gets better soon.

Smartiepants79 Sun 22-Sep-13 21:49:44

Doctors and be as bolshy/stroppy as you can be.
Insist on a referral. Request a second opinion if needed.
I second seeing the osteopath. Not cheap but has worked for several friends.

AnotherStitchInTime Sun 22-Sep-13 22:15:02

If you are in or near to London there are places you can get free Osteopathy for babies here and here and a low cost one here.

hettienne Sun 22-Sep-13 22:20:00

You need a proper doctor, a paediatrician referral, not a cranial osteopath. If your baby can't turn his head one way it needs seeing by someone medically qualified.

LePamplemousseMousse Sun 22-Sep-13 22:25:31

I would also say cows' milk allergy. The head turning can be something called Sanifers Syndrome which is caused by gastric pain. I know because my DD had this.

If it's an allergy lactose free won't help as it's the protein causing the problem. The green diarrhoea also fits that picture. If it's an allergy you'll need fully hypoallergenic formula like nutramigen or neocate (prescription only)

Get a referral to a specialist and don't let up with your GP until you get one. They are notoriously poor for taking these kinds of symptoms seriously. Sorry to other posters, but I'd not waste time with an osteopath etc at the moment. We went down all those routes and it just delayed a proper diagnosis - the osteo won't be able to help the diarrhoea and if the head turning is liked to gastric pain won't help with that either.

Hope your poor baby gets sorted soon xx

microserf Sun 22-Sep-13 22:28:59

Another mum saying push for the referral to a paed. GPs are utterly rubbish for pooh poohing these types of symptoms and you need to fight to be heard.

I'd be worried with these symptoms that there is a serious lactose intolerance here.

LePamplemousseMousse Sun 22-Sep-13 22:44:17

Also DO NOT switch to Soya formula. Babies who are allergic to milk are usually also allergic to soya so this can make things worse. No paediatrician will recommend soya now as it's also high in plant oestrogens and not suitable for small babies. I'm amazed that some GPs and HVs still suggest it, and that it remains on sale.

I missed the bit about the choking/reflux but that would doubly suggest the head turning is sandifers syndrome. My DD did this hundreds of times a day, and it was explained to me that they turn their heads to cut off the oesophagus to try and stop the milk/stomach acid coming all the way up - it's trying to avoid pain. The arching and going rigid are also classic symptoms. Within a short time of switching to neocate the head turning and arching both stopped.

Some GPs are either stubborn or ignorant when it comes to intolerances in babies.

I wouldn't use soya milk - it caused similar symptoms in mine who were dairy intolerant.

Also lactose intolerances is slightly different to cows milk intolerance (lactose is sugar in milk, cows milk intolerance is intolerance to the protein) and is rare in babies but common in adults. Cows milk intolerance is more common in babies.

I found taking a written list to the GP helped as I'd get flustered otherwise.

steppemum Mon 23-Sep-13 09:15:11

op
write a list of symptoms, as you did in your op. Make a note of times and regularity eg he arches as soon as he is fed, or wakes himself up arching etc.

Don't keep changing the milk, that is why hv said don't change. It takes babies a while to adjust to new milk. You need a referral to get the RIGHT milk for him, and then switch to that.

If you think you will get flustered, take someone with you who believes you. Someone who has kids and can say this isn't normal would be good.

Take a dirty nappy (put it in a sealed clear plastic bag) There is a world of difference between normal poo and green water, and any gp worth his salt should know that.

I think lactose intolerance can be tested for? Insist that he is tested.

Sometimes gps do a lot of placating of new mums who are a bit panicking, and they miss the genuine cases which need to be referred. You need to stand your ground

MissStrawberry Mon 23-Sep-13 20:05:41

hettiene - a cranial osteopath is medically qualified hmm.

OP - listen to your instincts. My DD was badly let down by inept GP's and while we have gone privately and mostly had good treatment after diagnosis at 10 years of age we have learnt of a new problem. Not ALL doctor's are experienced enough in out of the ordinary baby issues.

A cranial osteopath will cost you around £40 and they are excellent at picking up problems and it is a very gentle treatment which works quickly and fully.

Clobbered Mon 23-Sep-13 20:11:41

Er, cranial osteopaths may be qualified as cranial osteopaths, but 'medically qualified' ie doctors, they are not.
How do you think a cranial osteopath is going to help with what is clearly a gastrointestinal problem of some sort?
Sigh.

hettienne Mon 23-Sep-13 20:11:59

Cranial osteopaths are alternative practitioners who fix the rhythm in your head hmm They are no more medically qualified than homeopaths.

MissStrawberry Tue 24-Sep-13 17:39:31

Okay, splitting hairs imo and clearly my mistake but no need to be so rude. They don't fix "The rhythm in your head" as stated by you.

And a gynaecologist is medically qualified but they aren't going to be able to sort your heart problem so not such a good argument.

hettienne Tue 24-Sep-13 17:45:53

What do they fix then?

MiaowTheCat Tue 24-Sep-13 18:46:05

Ignoring the bun fight - sounds like DD2 who was subsequently diagnosed with cows milk protein allergy and is a changed little girl on Neocate. Like you - I knew something was up from birth - I was querying the amount of spitting up/vomiting on the post natal ward and got fobbed off.

I'd suggest videoing the worst of the back arching reaction and also doing things like noting down WHEN it happens relative to when the feed has gone down. I've found that saying "I have the reaction recorded" does reduce the fobbing off you get in your way. In our case a very good health visitor pushed things through for us and picked up on it all fairly quickly thankfully - but it was some very very dark days.

I'd work on the gut stuff first and then if the head turning issue is still there and NOT allergy related you can tackle that afterwards to be honest.

Took us a good 2-3 weeks to see an improvement once we went onto Neocate - suddenly we just had a smiley little girl (and she's got one cracking smile) and her horrible red skin rash she'd developed faded... still interesting nappies but that was a known side effect of the changed formula. She still throws up a fair bit but it's happy vomiting at least and manageable!

Insanityismymiddlename Wed 25-Sep-13 12:50:18

Google Lactose Overload my DD has this and putting her on lactose free milk was the best decision I made, DDs symptoms were identical to yours so may be worth a look.

LePamplemousseMousse Wed 25-Sep-13 15:12:07

OP - just wondering how you are getting on? Did you manage to see your GP and get a referral (or at least a response) on cows' milk protein intolerance?

Hope things are looking up.

BigDomsWife Thu 26-Sep-13 21:30:33

I believe you need a medical Doctor (G.P). He may refer you to a specialist if need be. As always on Mumsnet, there are women arguing over things that defer from the OP's concern.

OP, please see a Doctor just to make sure all is well with your DC.

Jennym9211 Sat 28-Sep-13 09:09:12

Cranial osteopath ive been told it works wonders, i feel for u i had a tough few weeks with my lil one

ButteryJam Sat 28-Sep-13 09:20:30

Definitely ask for a referral to a paedetrician. Insist on it. If the GP doesn't give you one, take your LO to A&E. I'm told best time I around 7am in the morning.

Write everything down. Take videos. Take sample of poo.

From what you describe, especially the green poo, it does sound like an allergy to cows milk, but see what the GP/paedetrician says.

All the best.

Kafri Sat 28-Sep-13 10:48:03

Hey

This sounds so familiar - we had screaming constantly for the first 12/13 weeks. DS was referred to consultant at 4 weeks and it was a case of trying different combinations of meds and milk until we found the one that worked for us. He had silent reflux.

I was tearing my hair out at times and I had the support of my doctors so I can't imagine what it's like without their support.

DS slept upright on us for the first 8 weeks - would scream the second he was lay down. After 8/9w we worked out that he would sleep on his tummy (which I had a loooonnnng fight with myself about)

I tried Cranial Osteopathy as I felt i'd pretty much tried everything else but to be honest I didn't hold much hope and it didn't do much to help - so much so that the guy refused to let me pay and told me he couldn't do anything to help (and he was a highly recommended CO, not some backstreet guy) That said, though - there are plenty of people who will disagree and say it worked wonders for them - which was one of the reasons I tried in the first place.

WRT meds, we tried...

LF milk
Gaviscon
LF milk and Ranitidine
CMPF milk and Ranitidine
CMPF milk and Omeprazole

It was the last combination which seemed to make the difference to us but even that wasn't perfect. It didn't help that DS seemed to be a generally frustrated baby. He was on hyper alert from day 1!

He's now 9m and is much much better - in fact, we have been weaning the Omeprazole over the last few weeks and he had his first night without it last night - so far so good. As well as that, I have slowly been introducing bits of dairy too - the odd yoghurt, or proper milk on his breakfast etc. Anyway - it's a bit long but I just wanted to say there is light at the end of the tunnel - although the tunnel seems never-ending in those early weeks.

Looking back - I'll admit I so did not enjoy those days of 16/17 hour screaming. DS was our little IVF miracle and I hated that I wasn't enjoying what i'd wanted for soooo long. Now, he's amazing - a happy giggling baby. His frustration has diminished as he crawled early and is nearly walking now.

I guess i'm trying to say that it sounds like reflux which can be helped - but I don't think there's a miracle cure and whatever combo works for you will also need time to help too

Phew, that was long.

suedetteuk Fri 24-Jan-14 09:24:35

Thanks for all of the replies. He is now 6 months and is fine smile had a few problems with wheezing. He went to physio and his neck is sorted, he now rolls and moves about normally. Thanks for all of the info xx

suedetteuk Fri 24-Jan-14 09:25:44

He is still on Comfort milk, I am too scared to try anything new, but now he is eating, only 6 months to go

DirtyDancing Fri 24-Jan-14 18:53:07

Pls see a specialist osteopath. Do you live anywhere near south London as I know a great one?

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