Pls help,what is wrong with my 9 week old?

(37 Posts)
suedetteuk Sun 22-Sep-13 21:30:31

Basically, since my sons birth nothing has seemed right. He had jaundice and was very sleepy and wouldnt wake up ever. Then when that cleared he started choking on his milk which is terrifying. He has diarea all of the time, he only turns his head to the left and screams in pain whenever I turn it to the right. He was on cow and gate so we changed milk cos he seemed in pain (arching his back, never settled) we changed to comfort milk. He then got worse again and spent days crying. Tried colief and he is better, but still has diarea every day and I change his outfit every single time he poos. Asked HV and she suggested to get a sling, and said do not change his milk. He is swallowing constantly and making high pitched sounds when he breathes. Doctor says he has a lazy larynx. Does anyone know what is up with him? Just want him to be well!! Feel like I am not getting answers from anyone as some docs refer him to a pediatrician, others have said no. Dont know what to do anymore, going out of my mind with worry. Sorry for the novel!

MissStrawberry Tue 24-Sep-13 17:39:31

Okay, splitting hairs imo and clearly my mistake but no need to be so rude. They don't fix "The rhythm in your head" as stated by you.

And a gynaecologist is medically qualified but they aren't going to be able to sort your heart problem so not such a good argument.

hettienne Tue 24-Sep-13 17:45:53

What do they fix then?

MiaowTheCat Tue 24-Sep-13 18:46:05

Ignoring the bun fight - sounds like DD2 who was subsequently diagnosed with cows milk protein allergy and is a changed little girl on Neocate. Like you - I knew something was up from birth - I was querying the amount of spitting up/vomiting on the post natal ward and got fobbed off.

I'd suggest videoing the worst of the back arching reaction and also doing things like noting down WHEN it happens relative to when the feed has gone down. I've found that saying "I have the reaction recorded" does reduce the fobbing off you get in your way. In our case a very good health visitor pushed things through for us and picked up on it all fairly quickly thankfully - but it was some very very dark days.

I'd work on the gut stuff first and then if the head turning issue is still there and NOT allergy related you can tackle that afterwards to be honest.

Took us a good 2-3 weeks to see an improvement once we went onto Neocate - suddenly we just had a smiley little girl (and she's got one cracking smile) and her horrible red skin rash she'd developed faded... still interesting nappies but that was a known side effect of the changed formula. She still throws up a fair bit but it's happy vomiting at least and manageable!

Insanityismymiddlename Wed 25-Sep-13 12:50:18

Google Lactose Overload my DD has this and putting her on lactose free milk was the best decision I made, DDs symptoms were identical to yours so may be worth a look.

LePamplemousseMousse Wed 25-Sep-13 15:12:07

OP - just wondering how you are getting on? Did you manage to see your GP and get a referral (or at least a response) on cows' milk protein intolerance?

Hope things are looking up.

BigDomsWife Thu 26-Sep-13 21:30:33

I believe you need a medical Doctor (G.P). He may refer you to a specialist if need be. As always on Mumsnet, there are women arguing over things that defer from the OP's concern.

OP, please see a Doctor just to make sure all is well with your DC.

Jennym9211 Sat 28-Sep-13 09:09:12

Cranial osteopath ive been told it works wonders, i feel for u i had a tough few weeks with my lil one

ButteryJam Sat 28-Sep-13 09:20:30

Definitely ask for a referral to a paedetrician. Insist on it. If the GP doesn't give you one, take your LO to A&E. I'm told best time I around 7am in the morning.

Write everything down. Take videos. Take sample of poo.

From what you describe, especially the green poo, it does sound like an allergy to cows milk, but see what the GP/paedetrician says.

All the best.

Kafri Sat 28-Sep-13 10:48:03

Hey

This sounds so familiar - we had screaming constantly for the first 12/13 weeks. DS was referred to consultant at 4 weeks and it was a case of trying different combinations of meds and milk until we found the one that worked for us. He had silent reflux.

I was tearing my hair out at times and I had the support of my doctors so I can't imagine what it's like without their support.

DS slept upright on us for the first 8 weeks - would scream the second he was lay down. After 8/9w we worked out that he would sleep on his tummy (which I had a loooonnnng fight with myself about)

I tried Cranial Osteopathy as I felt i'd pretty much tried everything else but to be honest I didn't hold much hope and it didn't do much to help - so much so that the guy refused to let me pay and told me he couldn't do anything to help (and he was a highly recommended CO, not some backstreet guy) That said, though - there are plenty of people who will disagree and say it worked wonders for them - which was one of the reasons I tried in the first place.

WRT meds, we tried...

LF milk
Gaviscon
LF milk and Ranitidine
CMPF milk and Ranitidine
CMPF milk and Omeprazole

It was the last combination which seemed to make the difference to us but even that wasn't perfect. It didn't help that DS seemed to be a generally frustrated baby. He was on hyper alert from day 1!

He's now 9m and is much much better - in fact, we have been weaning the Omeprazole over the last few weeks and he had his first night without it last night - so far so good. As well as that, I have slowly been introducing bits of dairy too - the odd yoghurt, or proper milk on his breakfast etc. Anyway - it's a bit long but I just wanted to say there is light at the end of the tunnel - although the tunnel seems never-ending in those early weeks.

Looking back - I'll admit I so did not enjoy those days of 16/17 hour screaming. DS was our little IVF miracle and I hated that I wasn't enjoying what i'd wanted for soooo long. Now, he's amazing - a happy giggling baby. His frustration has diminished as he crawled early and is nearly walking now.

I guess i'm trying to say that it sounds like reflux which can be helped - but I don't think there's a miracle cure and whatever combo works for you will also need time to help too

Phew, that was long.

suedetteuk Fri 24-Jan-14 09:24:35

Thanks for all of the replies. He is now 6 months and is fine smile had a few problems with wheezing. He went to physio and his neck is sorted, he now rolls and moves about normally. Thanks for all of the info xx

suedetteuk Fri 24-Jan-14 09:25:44

He is still on Comfort milk, I am too scared to try anything new, but now he is eating, only 6 months to go

DirtyDancing Fri 24-Jan-14 18:53:07

Pls see a specialist osteopath. Do you live anywhere near south London as I know a great one?

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