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NOW CLOSED Are you the parent of a disabled child in the UK? Please complete a survey for Scope - you could win £100

(32 Posts)

MNHQ have commented on this thread. Read here.

AnnMumsnet (MNHQ) Fri 24-Jan-14 14:12:34

We have been asked by the charity, Scope, to find MNers who have a disabled child to complete their survey.

They say "this survey is open to anyone in the UK who has any disabled children under the age of 18 with any longstanding physical, developmental or mental impairment, illness or condition. By ‘longstanding’ we mean anything that has affected your child or children over a period of at least 12 months or that is likely to affect them over a period of at least 12 months. If you have more than one disabled child, please answer thinking about your oldest disabled child who is under the age of 18.

We want to hear about your experiences of accessing mainstream activities, groups and services for your disabled child.

The Government’s Children and Families Bill is currently passing through Parliament, providing a good opportunity to address the issues affecting many families.

But we need your help! Please fill in our Parents? Experiences survey to help us raise awareness of the issues faced by disabled children and the parents of disabled children. The survey will only take around five minutes to complete".

Everyone who takes part will be entered into the prize draw, where one lucky winner will receive £100 in shopping vouchers. These can be spent in all major high street shops, as well as supermarkets, restaurants and even travel agents.

Here's the link again

thanks and good luck
MNHQ

coppertop Fri 24-Jan-14 14:28:51

I've just gone through the survey but don't really want to give out my name and address to a third party. Is there any way of changing it so that we can just put our MN name as we do for other surveys, and have MNHQ contact us if we win the vouchers?

Sorry to be a pest.

zzzzz Fri 24-Jan-14 18:24:45

Googled because hadn't heard of the

www.scope.org.uk/

ouryve Fri 24-Jan-14 18:30:32

They've been around a long time, zzzzz. They were compelled to change their name back in the early 90s, I think it was, as they were previously called The Spastics Society.

zzzzz Fri 24-Jan-14 18:37:24

Having a child with a disability doesn't give you instant knowledge of charities, disabilities or facilities, mores the pity. I'm sorry I should have been clearer. I didn't know who they were, I'm sure most of you are much better informed and I wasn't trying to say they were shonky, just save anyone else in the same position some time.

I got half way through and decided the process was a little "glass half empty for a tired Friday night". Besides which it's hard to answer questions about facilities that don't as far as I know exist.

lookdeepintotheparka Fri 24-Jan-14 18:59:33

Done

Glad to be asked about accessibility issues as its something we find quite difficult to deal with having a child with a mild disability.

ouryve Fri 24-Jan-14 19:42:55

Sorry - I didn't mean to come across as having a dig at you, zzzzz. I was familiar with them because there use to be one of their collecting boxes (little girl with the old fashioned leg callipers) in our local shop, when I was little and I lived near one of their charity shops at the time they did the re-brand.

I'll have to look at the survey properly when I'm less tired. It's hard to answer surveys about accessibility when, for a lot of things, we simply don't bother if it's unworkable.

Ineedmorepatience Fri 24-Jan-14 20:02:28

Done, we have had very mixed experiences with clubs so welcome any attempts to make them work better for our children!!

It can be done but sadly inclusive extra curricular activities seem thin on the ground!

zzzzz Fri 24-Jan-14 22:14:05

ouryve your post was fine. Mine could have put people off. I think clubs etc would transform our lives.....sadly nothing fits.

StarlightMcKingsThree Fri 24-Jan-14 22:15:48

All a bit irrelevant if you can't access the services to comment due to the length to time your child spends on transport getting to and from school ruling out any chances of an after school club that starts any time before 6pm.

StarlightMcKingsThree Fri 24-Jan-14 22:17:20

As far as clubs at weekends go, I find the ones independently funded (i.e. no LA funding) the most inclusive, with high expectations as well as high levels of tolerance. Usually, but not exclusively, religious groups.

charleypops Sat 25-Jan-14 10:26:48

IMHO Scope could and should have been doing a lot more for years to get out there and get businesses and organisations to comply with government guidelines regarding accessibility. Why most businesses feel as if they don't have to get a portable ramp for wheelchair users I do not know.

BorisBeckersCupboard Sat 25-Jan-14 18:23:07

coppertop I filled in the survey but didn't add my name/address.etc and it went through fine.

MissBetseyTrotwood Sat 25-Jan-14 21:57:03

Done it. Bit depressed now though. There's not much out there for the stage we're at with DS2 at the moment.

Downssideup Sat 25-Jan-14 22:04:18

Done. Our experiences generally fit between the responses asked for, but this survey did make me realise how much we have found the easiest path for us, and just how much we actually avoid trying to do.

AnnMumsnet (MNHQ) Sun 26-Jan-14 12:07:28

All feedback on any aspect of the survey very welcome here: all comments will be read. thanks

RightRoyalPainInTheArse Sun 26-Jan-14 16:18:10

Done it, was quick to answer as we don't attempt any mainstream activities any more. All completely impossible without 1-2-1 support and that is very difficult to arrange.

swearymclairy Sun 26-Jan-14 16:35:55

Done. Feel a bit glum now though.

PolterGoose Sun 26-Jan-14 17:24:38

I've filled it in, of sorts, my ds refuses to do any out of school activities so we've never used any clubs etc.

RowanMumsnet (MNHQ) Mon 27-Jan-14 09:27:43

coppertop

I've just gone through the survey but don't really want to give out my name and address to a third party. Is there any way of changing it so that we can just put our MN name as we do for other surveys, and have MNHQ contact us if we win the vouchers?

Sorry to be a pest.

Thanks for flagging this issue. We've checked it with Scope and they say 'We have included the other fields for those that wish to participate in the prize draw, as we will need to send them the voucher if they win. None of these fields are compulsory but they do enable us to contact the user swiftly when they win the draw. Details will not be used for other purposes (unless permission has been given) and people can by-pass this option altogether if they would prefer not to participate in the draw and remain completely anonymous.'

Thanks
MNHQ

coppertop Mon 27-Jan-14 23:08:28

Thanks, Rowan and BorisBeckersCupboard. smile

Galena Tue 28-Jan-14 10:59:47

Done

MaryBS Tue 28-Jan-14 11:22:50

I've completed the survey.

I've also been in contact with Scope regarding my experiences, following a campaign they'd run in their shops. Can I just say they were very respectful of my personal details, only contacting me because I was willing to tell my story, and unlike other charities, they haven't phoned me up because I am on their database, to get me to make regular giving. And it was very therapeutic to tell my story to someone who would listen! I hope the government listen!

peggyblackett Wed 29-Jan-14 06:49:39

Done. Also feeling depressed now.

liveotherwise Fri 31-Jan-14 10:44:28

Survey completed. It didn't really seem to be aimed at non physical disabilities though?

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