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Q&A on hearing loss in children with experts in paediatric hearing care sponsored by Phonak - ANSWERS BACK

(38 Posts)
LucilleMumsnet (MNHQ) Mon 20-Jan-14 11:30:00

We're running a Q&A with Phonak, the world's leading manufacturer of hearing instruments and a team of leading experts in paediatric hearing care to answer your questions on hearing loss in children and how to provide them with the best possible care and support.

Do you have to repeat yourself regularly and are concerned it might be because your child has a hearing loss? Or has your son or daughter already been diagnosed with a hearing loss but still struggles to hear in some situations despite using hearing aids?

Whether you want to establish if there's a problem with your child's hearing, or you're keen to understand how to provide further support to a child that’s already been diagnosed with hearing loss, our experts are here to help.

This is to mark the launch of a groundbreaking new hearing device, so we've teamed up with a panel of experts that lead the way in paediatric hearing care to answer any questions you might have on children with hearing loss.

The futuristic wireless 'Roger' device, which looks like a gadget worthy of James Bond, can help those with hearing difficulties to hear and understand more, particularly speech in noisy environments and over distance. Launched by Phonak, the revolutionary Roger device promises to improve the learning and development of 45,000 youngsters in the UK who are living with hearing loss.

Our panel of leading experts:
• Claire Benton, Clinical Lead for Paediatric Audiology within Nottingham Audiology Services
• Tony Murphy, Wireless Communications Specialist at Phonak UK. Tony is the go-to guy when it comes to wireless technology. He’ll answer any technical questions about Roger and how it works
• Frank Quinn, whose 7-year-old sons were the first children to be fitted with Roger in the UK. Frank will provide first-hand experience of the technology and how it has helped aid the learning and development of his children

The Q&A is now closed but you can read the answers to all the questions in the archived Q&A

This Q&A is sponsored by Phonak.

isitme1 Sun 26-Jan-14 09:00:09

My niece has recently been diagnosed with some type of hearing loss. They arent sure if shes fully deaf now or if she has some hearing remaining in one ear. 1 ear is fully gone.
Shes under a year old and her newborn hearing was fine. We are waiting for her to see the specialists.

Whats the best way we can help her live a 'normal' life? Where do we start with all of this as nothing has been discussed. Will this device you have mentioned be available to her by nhs? Thank you

Itisme please see my NDCS advice, they have all sorts of support for newly identified deafness, including weekend workshops. They have been a godsend for my family. Good luck.

isitme1 Sun 26-Jan-14 09:42:54

Can I ask whats ndcs? blush

It's the National Deaf Children's Society. It's a charity that does exactly what it says on the tin smile

here is a link to them.

isitme1 Sun 26-Jan-14 10:27:20

Thank you very much for that will check it out x

Paintyfingers Sun 26-Jan-14 12:55:04

Ndcs are amazing and the advice and support for me when DS had glue ear was invaluable. Their lovely paed audiologist called me back and answered all my questions and they provided support when a pre school setting I called made a few ill informed comments about deaf children hmm

Paintyfingers Sun 26-Jan-14 12:55:39

Apparently their talk forums are fab too, though I've never used them myself.

ShoeWhore Sun 26-Jan-14 22:38:27

Hmm not much info in the OP. My son had glue ear and I am now told may have permanent mild hearing loss - my niece has just been told the same thing. I'd like to know when this new aid might be appropriate and if it could help him in the longer term if he needs it. at the moment he is happy wearing his hearing aid but he got upset at a concert last week as he said it was too loud and hurting his ears. He's 6.

LucilleMumsnet (MNHQ) Mon 27-Jan-14 10:53:38

This Q&A is now closed and we've sent your questions over to the experts. We'll post up the answers next week, thanks to everyone who took part.

LucilleMumsnet (MNHQ) Thu 06-Feb-14 15:21:46

You can now see the expert answers, as well as plenty of information about Roger, here.

deakymom Sun 16-Feb-14 00:18:02

hearing loss after an ear infection is our problem he still has a little gunk in there and all we get is eh? eh? whats that? mmm? i would love to have something done about this

RachelMumsnet (MNHQ) Fri 21-Feb-14 16:57:29

Phonak have asked us to post the following message following the recent Q&A:

Thanks for all your questions. We hope the answers provided by Phonak’s experts have been helpful. If you’re still keen to find out more about the Roger system and hearing loss in general, you can do so by visiting www.hearingadvisor.co.uk

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