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Mumsnet Miscarriage Code of Care campaign: Let your local healthcare trust hear your experience

(51 Posts)

MNHQ have commented on this thread.

RowanMumsnet (MNHQ) Mon 17-Feb-14 14:12:19

Hello

As lots of you will know, three years ago we re-launched our Miscarriage Code of Care campaign, which grew out of Mumsnet posters' experiences and concerns about the care some women receive when undergoing treatment for a miscarriage. And we know that there are still lots of you who are having tough times, and receiving care (whether in or out of hospital) that is less than ideal.

So to help us to plan the next phase of activity on the campaign, we're asking MNers to share their stories of what how they've been treated during their recent (within the last two years or so) experiences of miscarriage.

When we carried out a Freedom of Information exercise in 2012, lots of hospital trusts seemed to be saying that they had implemented many of the terms of our Code of Care - but some recent threads on MN indicate that lots of you are still experiencing poor treatment and care. And where this goes against the stated policies of hospital trusts, we think the management of the trust should be held to account.

So we've decided to trial the idea of working with the website Patient Opinion, an independent health service feedback site which aims to 'pass your stories on to the right people to make a difference'. You can see more information about what Patient Opinion does, and how it works with people's information, here.

We're asking Mumsnetters - where they are comfortable doing so - to post accounts of their experiences, good and bad, using this link. Obviously we realise that this is a very sensitive area, and lots of you will have anonymity concerns, so read on to see how it all works.

If you submit your story, it will be published on a dedicated Mumsnet page on Patient Opinion. Whenever a hospital trust responds to one of the points our users have made, that will be flagged up as well. Accounts of miscarriage-related experiences from other Patient Opinion users will also be shown on this page.

You can choose an anonymous username on Patient Opinion, so nobody will be able to link your account on there to your account on Mumsnet.

Being able to track what sorts of issues people are flagging will hopefully be a powerful tool for us at MNHQ, enabling us to see what sorts of problems are still occurring, and how responses from individual trusts measure up against their Freedom of Information responses. The information will also be really useful to us in deciding where best to concentrate the next phase of the campaign.

So for those of you who feel able to help, do please get posting your experiences. Once we have some published stories (and, hopefully, constructive responses from the trusts) to share with you all, we'll come back with a link to the page where they can be seen.

Thanks - as ever, do please let us know what you think.

MNHQ

HoratiaDrelincourt Mon 17-Feb-14 15:45:33

Very important.

My two experiences were pretty good, which says to me that there is no excuse for any trust failing to reach those standards.

Armadale Mon 17-Feb-14 16:07:10

Thank you for doing this. I will post on the link given.

My experience has been that the differing standards between hospital trusts in miscarriage care is absolutely staggering- I have know incredibly caring, professional and competent EPU's and also the complete opposite.

Paintyfingers Mon 17-Feb-14 18:46:30

I think this is a good idea.

I was shocked by a thread on here this year where a poster at 7 weeks pg and bleeding was not referred to epu but sent home to mc (contrary to NICE guidelines) hmm

PseudoBadger Mon 17-Feb-14 18:50:21

Will do, had a terrible experience (thread on here) and a fob off from an official complaint to the chief exec.

Fishandjam Mon 17-Feb-14 22:00:17

Will do (though mine was Aug 2011 - is that too long ago?) I had a very good experience.

HoratiaDrelincourt Mon 17-Feb-14 22:01:19

Can't complete this. There is something wrong with the formatting. Once you've put in your details in the first few boxes you can no longer get to the "Sign and send your story" bit. Kind of crucial...

RowanMumsnet (MNHQ) Tue 18-Feb-14 09:16:17

HoratiaDrelincourt

Can't complete this. There is something wrong with the formatting. Once you've put in your details in the first few boxes you can no longer get to the "Sign and send your story" bit. Kind of crucial...

Oh no! We'll have a look now. Anyone else having trouble?

RowanMumsnet (MNHQ) Tue 18-Feb-14 09:18:25

Hmm it seems to be working for me (desktop site on Chrome) - which device/browser/site version are you using, Horatia?

RowanMumsnet (MNHQ) Tue 18-Feb-14 09:31:22

OK, apologies Horatia; we've spoken to Patient Opinion and it seems this might be something to do with a technical difficulty with the way we've embedded their form. It shouldn't affect most people but unfortunately it will affect some.

Could you bear to post it again using this link please? We promise it'll work this time.

RowanMumsnet (MNHQ) Tue 18-Feb-14 09:33:46

Fishandjam

Will do (though mine was Aug 2011 - is that too long ago?) I had a very good experience.

We're very happy for people to post up good experiences (and we're really pleased to hear you had one), but ideally we're looking for accounts from the last two years or so. But of course if you'd like to go ahead and post anyway, please feel free.

RowanMumsnet (MNHQ) Tue 18-Feb-14 10:25:27

Me again... we've altered something technical (widget height, fact fans) in the story-telling link, so nobody should have any problems now; do please let us know if you do.

Chacha23 Tue 18-Feb-14 12:41:09

I'm having some issues, the "next"/"submit" buttons appear and disappear at random.

Also, I can't seem to be able to sign my story, even though I'm entering my mumsnet email, password and tried various usernames - not sure what I'm doing wrong?

RowanMumsnet (MNHQ) Tue 18-Feb-14 13:32:58

Chacha23

I'm having some issues, the "next"/"submit" buttons appear and disappear at random.

Also, I can't seem to be able to sign my story, even though I'm entering my mumsnet email, password and tried various usernames - not sure what I'm doing wrong?

Argh. So sorry Chacha23. Could you bear to try again using https://www.patientopinion.org.uk/youropinion?cc=mn1 instead? It should definitely work on there.

HoratiaDrelincourt Tue 18-Feb-14 16:26:51

Will do - it only stopped working when I added too many keywords blush and couldn't delete them to get the buttons back.

Mine was only 13m ago (gazes adoringly at 3mo DS) so well within the window.

Armadale Tue 18-Feb-14 18:49:20

Hello, I have now filled in on the website, I followed the link above and unfortunately when I went to send it lost all the data. I had C&P'd it into word, so didn't lose it, but I followed a link on the patient opinion site to repost it, so I don't know if that means it will not be collated with other stories of MC for this, and just listed on the website generally?

I have the login password they sent me as confirmation if you would like me to PM it, if you need to collate with other stories.

Paintyfingers Tue 18-Feb-14 21:40:25

It will be very interesting to revisit all of this in light of the latest NICE guidance on mc.

RowanMumsnet (MNHQ) Wed 19-Feb-14 09:46:29

Thanks so much to everyone who's shared their accounts. The tech difficulties should be well and truly sorted now, whether you post using the MN link or the https://www.patientopinion.org.uk/youropinion?cc=mn1 link, so please do get posting if you feel able and wiling to do it. Many apologies to anyone who had to do it twice blush

Some stories are already coming through; we'll post up the link soon.

Thanks
MNHQ

Chacha23 Wed 19-Feb-14 10:11:12

will try and write mine again later today - I should have copied it, silly silly me.

MrsGiraffe12 Wed 19-Feb-14 16:47:04

Done xx

Keely19 Wed 19-Feb-14 17:06:57

I had two miscarriages after my first child. My first pregnancy was normal so I didn't expect any problems next time so when I started bleeding and didn't feel normal I called my midwife who referred me to the hospital straight away. I was told it looked as though I was having a miscarriage and to go home and see how I went! I didn't know what to expect how much I should bleed or for how long, unfortunately I passed the foetus so knew I had miscarried but really didn't know what else to expect so called the hospital who said they didn't have time to speak to me I then called my gp who said it was all normal and couldn't understand why I was so upset/angry! When I got pregnant again I had changed drs & the hospital were really helpful although I did know more what to expect. Then I got pregnant again & the hospital were great lots of early check ups & scans and now I have a lovely 2 year old but def more pregnancies, can't go through that again!

RowanMumsnet (MNHQ) Wed 19-Feb-14 17:39:21

Keely19

I had two miscarriages after my first child. My first pregnancy was normal so I didn't expect any problems next time so when I started bleeding and didn't feel normal I called my midwife who referred me to the hospital straight away. I was told it looked as though I was having a miscarriage and to go home and see how I went! I didn't know what to expect how much I should bleed or for how long, unfortunately I passed the foetus so knew I had miscarried but really didn't know what else to expect so called the hospital who said they didn't have time to speak to me I then called my gp who said it was all normal and couldn't understand why I was so upset/angry! When I got pregnant again I had changed drs & the hospital were really helpful although I did know more what to expect. Then I got pregnant again & the hospital were great lots of early check ups & scans and now I have a lovely 2 year old but def more pregnancies, can't go through that again!

We're sorry to hear about your experience Keely19 - the Better Miscarriage Care campaign is all about asking healthcare professionals to have empathy and respect in their dealings with women who are miscarrying. Congratulations on your two-year-old though!

Armadale Wed 19-Feb-14 17:41:51

Hi Rowan, did you see my enquiry upthread? I'm really keen for my experiences to be counted as I entered them on patient opinion just for this appeal, and am not sure now if they will be...

Bridget14 Wed 19-Feb-14 18:20:34

I sadly m/c on the 17th of April 2013, was completely devastated!
I had a perfect normal first pregnancy so didn't think twice about having another perfect one!
But sadly that was not the case,

I remember spotting and calling and getting an early scan for that day we went in, I just knew it wasn't right, I was measuring at 5 weeks when really I should of been 10,
The scanner said "we will scan you again in two weeks but it might not work out"

I thought that was a little harsh, then I started really badly bleeding went back in dying the night, they didn't se that bothered, I didn't get a scan or anything I had bloods taken and had to wait for results before I could go home and the woman poppe her head in and said "your bloods are normal you can go" we were thinking normal for what!? Being pregnant or having a m/c was told I needed to call back in morning for scan that day or stay in over night and get it done in morning I choose to go home and call when I did there was no appts till a few days after!

I then sadly m/c in my home on the 17.04.2013 it was horrible and broke me! I went in for my scan to tell me what I already knew, she was sympathetic but they kept referring to it as a fetus it wasn't really a baby! To me it was my baby! An it hurt when they kept stating it wasn't! I was giving information on how to cope, and if she seen me before he "waiting time" she wouldn't e concerned about the pregnancy,

I am 32 weeks pregnant & from the start I have been terrified! My midwife at the start was great but now she is like get on with it get over it! I'm very upset about this as when I say my cocerns it's brushed to the side!

I'm hoping that my baby will be happy & healthy in 8 weeks time!

I feel for every single person who has suffered a m/c and after this baby I will not have anymore as I can't do the worrying again!

I feel like there should be more understanding with being pregnant after a m/c and also a better treatment for people going through one!

oopsadaisyme Wed 19-Feb-14 18:39:46

I have had three miscarriges, all of which were horrific and I received zero care.

My first, I was 19 - I found out I was pregnant at 8 weeks, and started bleeding a week later - I went straight to the hospital, they gave me an internal scan, said baby was fine and sent me home -

I stopped bleeding, then two weeks later I was out for a friend with coffee, I started bleeding again and she took me to the hospital, who said they could not see me without a referral from my doctor (After I was only there two weeks previous)??? - we drove all the way back to my doctor who saw me as an emergency, told me I was loosing my baby, then we drove all the way back to the hospital - I had another internal scan, a doctor told me I was loosing some lining but could still see baby and heartbeat and 'this happens sometimes' - I got sent home, and miscarried on the toilet -

Went for a scan the next day, just to be told 'my cervix was clear' -

The only care I got was a cuddle from the receptionist who had seen me the day before and I collapsed on her in tears..

The next time, I was 25, and just got told over the phone by doctor I was miscarrying, and just 'sit on the toilet and hopefully it will 'all' come out...

Number three pretty much the same as number two -

oopsadaisyme Wed 19-Feb-14 19:03:36

I'd just like to add, no after care was offered, no help, nothing - I suffered terribly afterwards with depression because of my miscarriages - terribly - nightmares, guilt, everything -

Aftercare of people who have suffered a miscarriage I believe is paramount, its a bereavement - but after receiving no care whatsoever during a miscarriage, I did and do not expect anyone to care afterwards -

Thank you mumsnet for bringing this up x

Heatherbell1978 Wed 19-Feb-14 20:23:10

I had a miscarriage in November 2013 at 6 weeks. I went to A&E initially as it was a Sunday, I was bleeding and I didn't know what to do. I got seen fairly quickly but when they called the gynae ward, they were too busy to see me and I was just sent home with the number for the EPU. Had the most awful night and then called them first thing. They didn't seem too concerned and I had to beg for an appointment that day as I was due to fly to London with work that same day. Once I was there my experience was good but it was the getting there that wasn't ideal. I was scared, it was my first pregnancy and I felt like I was fobbed off a bit to start with.

becstar77 Thu 20-Feb-14 17:24:20

I lost my son at 21 weeks in October last year. The initial process, although harrowing, was made bearable by some very kind hospital staff.

Afterwards, you have nothing. You are left totally isolated and totally clueless about what to do, and how to get through it. Everything is left up to you, at one of the very weakest and helpless times of your life. Contacting the relevant charities is only signposted by the charities themselves, who provide all the things you need in the hospital when you are lost and hopeless in the midst of your nightmare. I'm still suffering deeply now, and am only coping because I'm paying through the nose for some top psychiatric help. I'd be in depression without that, so I don't know how the majority get through it.

lettysmith21 Thu 20-Feb-14 22:19:13

I was ill for 5 weeks. My husband tooj me to my gp many times and told him there was nothing wrong with me even though I was in pain and bleeding heavily. I was having an ectopic. This resulted in me collapsing and my husband finding me unconsious. I was rushed to hospital and my husband was told I was going to die. I had emergency surgery and releases a week later witha midwife visiting me once as the only after care. I felt like no one cared that this was a baby we had waited 6 years for.

Dildals Fri 21-Feb-14 15:18:57

What about doing something similar for parents experiencing a stillbirth?

Chacha23 Fri 21-Feb-14 16:58:58

I reposted my story, worked well this time.

like other in this thread I had an "ok" time with the miscarriage itself (hah), it's really the aftercare I found lacking. I felt so abandoned, with no idea how to deal with the grief.

I have had 2 M/C.

The first was hard but was dealt with really nicely by the EPU. I opted for a D+C and was looked after on a general gynae ward by a heavily pregnant nurse which really upset me. I know it wasn't her fault but it was just so raw.

However the upset was totally eclipsed by the second experience. In our city we have 2 hospitals, I was receiving my car at one and knew I was having a m/c. I was in so much pain that I ended up going to A+E at the other. I was addmitted on the Thursday morning and told that they needed to wait for my notes to be sent over from the other hospital (2 miles down the road). I waiting nil by mouth for 36 hours. I had to have a drip as I was so dehydrated which then blew so my arm swelled up but they wouldn't remove it. The worst thing was that for some reason I couldn't pass everything, a junior doctor examine me and tried to pull out something she thought she could see. I screamed in pain so much that the old lady next to me started shouting. I went down to surgery at 10pm and left as soon as I could in the morning. It was a horrid experience.

Luckily I have had 2 lovely DC's since then and had great care with lots of early scans and reassurance.

I have to agree that aftercare was lacking too. I was given a Miscarriage Association leaflet at EPU the first time, the second time nothing at all.

PalaceGirl Fri 21-Feb-14 20:18:54

I miscarried last April and was devastated, however the care I received from my local hospital and doctor was surprisingly supportive. I'm now pregnant again and looking positively forward to a summer baby.

stepmumgem Sat 22-Feb-14 16:50:28

I don't feel like I had a very good experience... had a miscarriage with my first pregnancy. At 6 weeks I had suspected ectopic pregnancy so was admitted to hospital to find ruptured cysts on my ovaries. At the scans baby was very small but they didn't seem concerned and brushed off any questions I had then and at further appts. After a car crash and telling professionals from that moment on that something wasn't right and I needed them to check (this was not an option) we finally got to the 12 week scan date. It was confirmed here that I had a 'missed miscarriage' at around 9 weeks (same week as the car crash - coincidence possibly but can't help but think if only things had been checked).
When I was taken into the hospital for the op to remove the baby they took me down to the Labour suite (where I could hear women having babies) and did the procedure. They then put me on a side room in the ward where everyone had their newborn babies. To me this is absolutely ridiculous because you are trying to grieve and get through the process yourself and surrounded by all these women who have what you couldn't. I was then discharged a few hours after as I couldn't handle being there and was handed a leaflet about miscarriage.
The treatment during my stay I would not describe as warm or caring to be honest and I felt as if I was a burden to the staff just being there.
Since then I have found out I am pregnant and the miscarriage has not been mentioned although it still really hurts. I've tried bringing up how I feel and what I'm scared about but again brushed off. Every time I feel a pain or go to the toilet I expect it to be happening again and when I don't feel this baby move for an hour or so I start panicking that again my baby will be gone and I don't even know. I wish there had been more support offered at the time because I think my emotional recovery would have been much easier.

momomomomo Sat 22-Feb-14 20:24:42

My experience was of a 'missed miscarriage'. I went in for a 12 week scan full of hope and excitement only to be told the baby had died at 7 weeks, there were no signs. I was taken into a private room to be told my options. The hospital were v kind and very sympathetic. When I later phoned from home to say I was miscarrying they advised me, if possible to wrap myself up in a blanket, take some painkillers and try and get through it, but that I could come in if I needed and they were always on the phone. I cried all the way through the EPRC experience, they were lovely.
The part that I struggled with was the inability or unwillingness of my female peers to talk about their experiences. I needed to feel that I was not alone.

BunnyTamer Sat 22-Feb-14 22:50:00

Just typed it all out and it didn't submit, back to the first page without anything I've filled in. Will have to try again another time as I can't face typing it all out again.

Chacha23 Sun 23-Feb-14 11:19:13

Oh my god stepmumgen, I cannot believe they had you stay in the labour ward for the ERPC. That is just cruel. It makes me so angry on your behalf.

--
Since then I have found out I am pregnant and the miscarriage has not been mentioned although it still really hurts. I've tried bringing up how I feel and what I'm scared about but again brushed off. Every time I feel a pain or go to the toilet I expect it to be happening again and when I don't feel this baby move for an hour or so I start panicking that again my baby will be gone and I don't even know. I wish there had been more support offered at the time because I think my emotional recovery would have been much easier.
--

I could have written the exact same thing thanks

andrearobinson1986 Sun 23-Feb-14 21:54:09

After 4 normal pregnancys with health babies as the out come I found out I was pregnant with baby number 5 when my youngest was 8 months. I was only 3 weeks when I found out. 2 weeks after finding out I started spotting. Went to epu and had a scan but couldn't see baby as wad to early on. Sent home still bleeding for 2 weeks. After 2 weeks 8 was scanned and told everything was fine just a bit snug. Seen my little baby's flickering heart. Sent home and told to ring my gp if I carried on bleeding. Went to my gp as advised 3 weeks later and told I had an errosion on my cervix and could possibly bleed till term. 1 week later I started loosing clots (sorry for tmi) so back I went to ecu. To be told things didn't look optimistic. All bloods come back "normal" to return in 48 hours for scan. I was Ment to be 10 weeks 5 days but my pregnancy measured 6 mm and told to go home "to let nature run its cause" decided I couldn't so asked to be booked in for surgery the following week. The whole experience from sat to finish was the biggest rollercoaster of my life. One ill never forget sad

RowanMumsnet (MNHQ) Mon 24-Feb-14 09:36:34

Armadale

Hi Rowan, did you see my enquiry upthread? I'm really keen for my experiences to be counted as I entered them on patient opinion just for this appeal, and am not sure now if they will be...

Sorry we missed this Armadale. Your story should be in the mix anyway hopefully, but do PM me with your Patient Opinion log-in details if you like and we'll check with the team there to make sure.

RowanMumsnet (MNHQ) Mon 24-Feb-14 09:40:08

Dildals

What about doing something similar for parents experiencing a stillbirth?

Thanks for the suggestion Dildals. Do please use the same process for posting on Patient Opinion, but using the appropriate tags for your experience - we'll see if we can look at those stories at the same time and pick out the common themes.

RowanMumsnet (MNHQ) Mon 24-Feb-14 09:48:34

Thank you to everyone who has shared their story here. If your experience of miscarriage was within the last two years or so, please do post it up on the Patient Opinion site as well; it will help us to pick out any trends, and it should also (hopefully) mean that someone from the relevant hospital trust will read your account.

We're really sorry the posting process didn't work, BunnyTamer - please let us know if you have the same problem again.

sanchita Mon 24-Feb-14 15:15:37

I had a miscarriage 4 months ago - first time i have been pregnant and i was so overjoyed as we had been trying 10 months and only just got married. My GP was very good and understanding but the care i received during and after was horrendous. In particular the A&E experience - waited over 3 hours and nobody gave me any pain relief or any kind of support as the experience became worse the longer i was at hospital. No adequate advice from the moment we were told it was a 'failing pregnancy'. I think more women who can talk about the experience should do - in particular to their friends as i never knew miscarriage was a long process - i just thought it was a one off event. I hope this campaign starts to gain momentum again as there is still so much that needs to be done to help woman who feel so scared and vulnerable.

Daisy362 Tue 25-Feb-14 12:24:35

I was treated appallingly. I had to wait in a&e while bleeding heavily for hours. When I was finally called in they asked me to take a pregnancy test and rather casually said it was negative. They didnt seem to realise how important being told that I had definitely miscarried was to me. I said I had never been in hospital before this so it was a weird experience and the nurse informed me that 'that's what happens when you decide to have children'. I was also told that I would be discharged shortly as I was 'not ill'. Overall I felt there was a massive lack of sensitivity and a lack of awareness of the devastation miscarriage causes. I was offered no emotional support and left to deal with everything alone

Paintyfingers Tue 25-Feb-14 13:27:34

I am so sorry to read of so many people having such awful experiences hmm

Sanchita, I totally agree that we should all talk about mc more openly in RL where we feel we can and want to. I have told most people I know in the hope that no one else mc will feel as alone as I did but could call me instead.

Chacha23 Tue 25-Feb-14 15:15:24

Also totally agree that we should talk about MC more. When I got pregnant I knew (abstractly) that miscarriages were relatively common, but I didn't know anyone who had ever MCed, or so I thought anyway. So it seemed like something that doesn't really happen to normal people, and I kept wondering why it had happened to ME.

But then I slowly started finding out that a lot of people I knew, even in my family, had had miscarriages before. They had just never mentioned it. Even my own mum!!

squizita Wed 26-Feb-14 12:40:05

I'm a recurrent miscarrier and have sent my story.

One thing that I've noticed from MN is a lot of women - and GPs are confused about what is a 'chemical pregnancy' and what is an early loss. They'll blithely dismiss a miscarriage as a 'chemical' if there's not a large foetus. Like, they think you can have a 'chemical pregnancy' at 6 or 7 weeks, so don't get aftercare and/or advise women to go through it repeatedly because it's not recurrent miscarriage it's 'oh so common chemical pregnancy'.

Ironic and dangerous - considering my 7 week loss resulted in 5 months of treatment for retained, possible partial molar materials and a cancer scare.

Not to mention, many recurrent early miscarriers have underlying health causes with their thyroid, blood or lupus. And the losses are tragic but also a valuable signals to clinics of other conditions.

Also, it's a slap in the face for a woman mourning her loss.

If a sac has grown, even a small one, it's not a chemical pregnancy. If you're on week 5, it's definitely not. There are reasons both emotional and clinical why this needs to be both GPs and women's minds!

squizita Wed 26-Feb-14 13:14:19

To clarify "They'll blithely dismiss a miscarriage as a 'chemical' if there's not a large foetus." not the unfortunately woman MCing, the GP or a poster on MN repeating what hers told her.

RowanMumsnet (MNHQ) Tue 04-Mar-14 14:46:37

Hello

Just wanted to say a big thank you to everyone who's posted their experiences up so far: do please continue to do so if you haven't yet.

You can see a record of recent accounts of miscarriage experiences on Patient Opinion here, and as you'll see, there are responses from members of staff on some of them.

We'll be reading through all the accounts and seeing if we can spot any overall trends that will help us to think about the next phase of the miscarriage care campaign.

Thanks again
MNHQ

RandomInternetStranger Sat 08-Mar-14 00:42:29

My first experience was terrible. It was my first mc and I didn't know what to do, if I needed to do anything, all I knew was I'm rhesus negative and XH was positive and that I could develop antibodies to rhesus which I'd need an anti d jab for. So I went to A&E not knowing if it was an emergency or not. I was obviously upset at losing the baby and scared as it had never happened before and I didn't know how serious the rhesus thing was. The doctor who treated me had a student with him which was not great at such a sensitive time and he treated me like crap, like a hysterical, over reactive, stupid little girl. He even said "don't be silly, you were barely pregnant if it was only 7 weeks and it's all gone now, I can't find anything, are you sure you were even pregnant?" I was devastated. I didn't bother going to the GP or hospital for the next 3 mcs after that as the last thing I needed was that attitude again. It still upsets me now to think of it and I wish I'd said something at the time. sad

Lifeasafish Fri 25-Apr-14 14:47:43

I miscarried Aug 13, first pregnancy after nearly 3 years of infertility investigations and a round of IVF.

My 6 week scan at the IVF clinic showed I would miscarry and I was provided with a letter to take to A&E so they could refer me to the EPU to confirm that the pregnancy wasn't ectopic.

A few hours after discovering my longed for baby wasn't to be, my local A&E did not act upon the advice from the IVF clinic and instead I was informed by a gynae doctor in A&E that I had never been pregnant and I should go home and wait for my period.

Two days I waited at home for the MC to begin. I was not given any advice or options on how my MC could be managed.

9 months later I am still waiting for an explanation of why the clinic's advice had been ignored, what the procedure was for my presentation and why I had been treated so callously while overtly distressed.

My treatment hindered my mental and emotional recovery and that MC is still more painful than my second (IVF) miscarriage a few months later as my treatment was fine second time around and I was able to choose not to MC naturally.

I guess I should chase my complaint again now...

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