Recurrent Miscarriage Support - tests, treatment, trying again - thread 9

(996 Posts)
bakingtins Sun 19-Jan-14 07:41:10

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

bakingtins Sun 19-Jan-14 07:43:59

DS1 2006, MC 10 weeks 2009, DS2 2010, 3 MC 8-10 weeks Sept 2012-June 2013. NHS tests normal, Prof Q diagnosed high NK cells. Now 20 weeks pregnant after treatment with prednisolone, heparin, progesterone.

TinyTear Sun 19-Jan-14 07:45:24

4 mc 1dd

Mc 1 to3 in 2010 then DD born Jam 2012 and last mc in October last year.

St Mary's said all tests normal so now deciding whether to check NK cells with Professor Q

Hessy Sun 19-Jan-14 07:52:38

I'm going to say hello, although not strictly recurrent mc.

DS born Nov 2011. MMC Sept 2013. Ectopic pregnancy resulting in loss of Fallopian tube Dec 2013.

Hoping to be pregnant again soon.

bakingtins Sun 19-Jan-14 08:00:06

Hi Hessy good to hear from you. We are less strict about definitions than the NHS! How are you bearing up?

DownstairsMixUp Sun 19-Jan-14 09:37:20

Hi hessy agree with baking, im the same as you welcome :-)
Ds born september 2009. Mc february 2013. Mc september 2013. Currently cautiously 7 weeks pg.

butterfly86 Sun 19-Jan-14 09:45:24

Thanks for the new thread baking!

4mc- mmc 9 weeks April 2012 , mmc 10 weeks sept 2012, mc 6 weeks dec 2012, mc 6 weeks march 2013. All tests normal, prescribed progesterone pessaries this time now currently 16 weeks pregnant.

Welcome Hessy

tannyLoo Sun 19-Jan-14 09:58:16

Welcome Hessy, thanks for the new thread Baking.

Two DS, born 1999 and 2012 (usual complicated family history)

Four MCs in a year. MC at 6 weeks in Dec 12, MMC at 11 weeks, measuring 6 weeks in April 13, MC at 6 weeks in Oct 13 and MC (blighted ovum) at 6 weeks in Dec 13.

My NHS diagnosis is super fertility, I am in the 2WW currently and taking a load of supplements and progesterone. I am aslo having acupuncture.

2014 is a New Year and a new beginning!

nearlyreadytopop Sun 19-Jan-14 10:01:07

ds1 2011, mc1 6/7 weeks 2012, mmc2 17 weeks 2013, mc3 6/7 weeks 2013.
All nhs tests normal though possible links to pcos.
Currently 7 weeks pregnant. Have been taking metformin since August 2013.

Justonemoretime Sun 19-Jan-14 10:08:56

Hello Ladies,
3MMC, no DC.

MMC 1 Nov 2011, 6 and a bit weeks. HB seen early 6 weeks, gone early 7 weeks. ERPC, retained products, resolved naturally. Spotting throughout, hence early scans.

MMC 2 May 2012 6 and a bit weeks. HB seen early 6 weeks, gone early 7 weeks (pattern same as previous). ERPC, retained products and infection, repeat procedure, still bleeding, hysteroscopy revealed large clot. Referred to gyne specialist at UCLH, put on HRT, all resolved by September.

Local RMC advised blood tests and karyotyping due to possible family issue which had come to light. All clear on all counts. Advised to change diet. End of 10 years veggie for me and 17 for DH. Put on baby aspirin as a precaution and advised progesterone from BFP.
AFs very light. UCLH monitoring pending further investigations when, against the odds, BFP again! Everyone amazed as only 2mm lining.

Beloved cat (tragic, I know - this hit me really hard TBH. I think I had focused a lot of displaced love in his direction) killed on road October 2012.

MMC 3 June 2013. Very early scans from UCLH confirm 'in the right place' then massive clothes soaking bleed a week later. Local A&E useless. UCLH walk in clinic confirm hb still there; 6.7 weeks. Aspirin/progesterone combo identified as the culprit for the bleed. Then scanned again at 9.1 weeks. Lovely, arms and legs and everything. hb 174 bpm. Signed off to 'normal' local services. All fine, booked in. Scan at 13 weeks revealed baby had died at about 9 and a half- 10 weeks. Insisted on UCLH doing my ERPC, went to walk in clinic to organise it and they were great. Got it done with U/S guidance, all fine, not retained products.

Referred to St Mary's in October 2013. Scans show uterine abnormalities, so hysteroscopy booked with Prof Regan. Heart shaped uterus diagnosed and corrected. HRT (leading to nice heavy AF) and IUDs inserted to air healing. No scarring (thank goodness). All blood tests normal. TEG test to be repeated when (if) BFP the 150mg aspirin if TEG shows up clotting issue when pg.

Grandfather died Oct 2013
FIL died Nov 2013
Other Grandfather died Jan 2014

Sorry for essay. It makes grim reading, really (I know everyone's does). But I wanted to record it, and bear witness.

AF arrived yesterday.

Justonemoretime Sun 19-Jan-14 10:17:43

Forgot to say, MMC 3 was Turner Syndrome. sad At least it was an answer.

tannyLoo Sun 19-Jan-14 10:24:09

((hugs)) Just

Justonemoretime Sun 19-Jan-14 10:31:09

Thanks Tanny. I know everyone has a sad story to tell on here. It's good to have a safe place to share. xx

TinyTear Sun 19-Jan-14 11:06:51

yes, i know i don't participate much but it's good to have this place to talk in.

squizita Sun 19-Jan-14 11:12:35

Thanks Baking! Hello Hessy.

I have no DC and have had 3 losses. First two were at 5/6 weeks- scan on the 2dn showed sac in right place but too small for anything else, both naturally passed, both over a weekend and nothing to test. 3rd was a MMC and T69 after an ERPC so after junior Docs wanting to hack at me to find out, the lead Gynie at my local hospital thankfully stepped in and was referred to Charing Cross for partial molar monitoring. Luckily my HCG went down and stayed down so was given the all clear to try again.
Had tests at St Mary's RMC and they found I has antiphospholipid syndome so pregnancies can be supported to about 70% success using aspirin and clexane. The T69 was a case of dreadful random bad luck and highly unlikely to occur again.

Currently coming up for 6 weeks and my 1st scan at St Marys on what I hope will be confirmed as a normal pregnancy (due to the 69, don't dare say it till I see it's in the right place). On clexane and aspirin daily.

JBrd Sun 19-Jan-14 11:51:07

Marking my place on the new thread.

1 DS, followed by 3 mc: ERPC at 11 wks Jan 2013, natural at 9 weeks April 2013 and semi-medical at 9/10 weeks August 2013. Nothing found in investigations apart from a possible clotting issue, but I am on heparin anyway when pg due to my medical history.

Currently in the 2ww, planning to poas on Friday...

Notgivingup1 Sun 19-Jan-14 11:55:49

Phew found you all! Hugs to everyone, it's always hard to go through everything that has happened.
Here's mine so far...
3 MMC between May 2012 and May 2013. ERPCs for all and needed 2 for the first MMC which went on for 3 months. Awful! Had genetic testing on the second one - normal and it was a boy. Third one. Sounds the same as just. Spotting throughout but Heartbeat seen at 7 and 8/9 weeks. All was fine so EPU signed me off. Scan at 12 weeks, no heartbeat and baby measured about 9+2. Testing showed it had Turners.
Went to see Raj Rai at St Mary's privately and cleaned out my savings! Nothing found but plan is heparin from next BFP as he thinks there could be issues with cell death in my placenta and heparin also helps with that. There were no heartbeats seen with the first two pregnancies so something went wrong v early on. Now under the NHS at St Mary's and they will repeat TEG test when pregnant. Going back next week for a review appointment as had results in September but no BFPs since and having very light periods/shorter cycles. I'd got pregnant pretty much straight away with the others. Currently in ovulation time so BD'ing away!

Notgivingup1 Sun 19-Jan-14 11:57:35

Oh and hello hessy

squizita Sun 19-Jan-14 12:03:17

First panic of the new thread. 2 red/pink dots (literally, smaller than fulls stops) when going to the loo. Could be part of loo roll, could be fluff from bathrobe... could be a problem. blush Serves me right for counting up my days/weeks and thinking I've passed the date of my 1st 2 losses. Idiot.

bakingtins Sun 19-Jan-14 12:41:50

Don't panic squiz The clexane and aspirin are going to make you more prone to spotting. Hopefully that's all it is.
When is your scan?

butterfly86 Sun 19-Jan-14 13:38:06

squiz I have no idea how as I don't wear red knickers but almost every day there are minute red fluff fibres on the loo roll I'm sure it must be part of the roll I have no idea how they get there confused
Hopefully its nothing for you to worry about.

squizita Sun 19-Jan-14 13:54:05

Baking thanks, scan is on Weds. Thanks, yeah I have had a little nose bleed too and have a naturally bleedy cervix (checked out- all good just bleedy). Think I'm just getting the 'not gonna make it to the scan' fear. Butterfly I agree ... so many pink and red fibres. We should work for CSI. grin Promptly threw up and nearly swore after my left boob lightly touched a towel rail which was reassuring.

Hessy Sun 19-Jan-14 13:57:49

Hello back everyone smile

BakingTins, I'm doing ok. Good days and bad.

Can I ask you all a couple of questions?

I didn't really think/know I was pregnant when had ectopic confirmed; had only had one AF since mc and what I thought was second AF was actually a bleed related to ectopic. I must have got pg within weeks of mc.

First question - sonographer said ectopic pregnancy had a heartbeat. hmm But I never found out how many weeks pregnant I was. Do you know how early a heartbeat can be detected?

Second question - did you leave it a while after each mc before trying to conceive again? Do our bodies need a rest? I don't want to, I want to try and conceive as soon as possible. But should I wait a while? I'm 36 so don't have a huge amount of time to hang around...


Hessy Sun 19-Jan-14 13:59:12

PS fingers crossed for you Squizita x

squizita Sun 19-Jan-14 14:19:16

Thanks Hessy I've always been told wait a full cycle before ttc. I did have 3 in quick succession and then waited 6 (enforced by partial molar + tests) and felt a lot more robust but that could just be coincidence. 36 isnt terribly old - I am 35 and St Marys ruled out age as a factor, bar ttc can take longer in the 1st place than in 20s.

squizita Sun 19-Jan-14 14:19:44

3 losses, 6 month break.

SoonToBeSix Sun 19-Jan-14 14:45:34

Hessy the main reason for leaving it one cycle is to accurately date a new pregnancy. If you want to try again straight away you can. thanks

bakingtins Sun 19-Jan-14 16:07:48

Hessy HB can normally be seen around the six week mark, possibly a few days before.

DownstairsMixUp Sun 19-Jan-14 16:12:11

squiz Still knicker checking then smile (me too!) FX for the scan on wednesday!

Hessy as baking said, some can be detected from just before 6 weeks but going by an average it is about 6. I was 6 weeks 6 days when I had my scan the other day and the heartbeat was a flicker on the screen. I didn't bother waiting for a cycle after erpc but didn't fall pregnant anyway till the 3rd cycle.

jbrd FX for poas on friday, hoping you get a bfp!

Feel ok today really. Boobs have finally let off hurting, about the same stage they stopped hurting with ds so not too worried about that. Feeling very, very tired and morning sickness?! should be called evening nausea. Last couple of nights after dinner i feel horribly sick and bloated. Hoping the little bean sticks, roll on 12 week scan (if hospital ever get back to me! grin)

katieash76 Sun 19-Jan-14 17:04:27

Hi again all, I posted in about nov time and was after a bit of advice if possible. First a recap,
3 mc all around 6wks in 2009
DS born 2010, no medical help getting pregnant, happened straight after 3rd mc
1 mc jan 2013 again 6 wks
19 wk loss June 2013, dd had Down's syndrome which we were fine with but excess fluid developed on lots of organs including heart and lungs and she didn't survive
Mmc nov 2013 at nearly 10 wks followed by erpc, was on progesterone.

Now it seems I've just had a chemical pregnancy, had bfp from 10-14dpo but now it is bfn. Was on progesterone again. My question really is tomorrow I have an appointment with consultant to see if anything showed up from product analysis following erpc in nov and I'm wondering what we should ask? Haven't had recurrent miscarriage testing or anything, just me and dh had blood tests when had late loss to see if the Down's syndrome came from us, it didn't. So does anyone have any advice as to whether I should ask to get referred somewhere like st Mary's (I live near bath). Or any other particular questions?

Sorry for a long post and thanks in advance for anyone who has any advice!

tannyLoo Sun 19-Jan-14 17:26:29

Katieash I live near Bath too and had an appt last week at RUH with gynae consultant about my RMC issues. I feel a bit fobbed off, and although they are all very nice, don't seem able to do much in the way of testing. If I was more assertive or patient I would have asked for a referral to St Marys.

They do have a really good new consultant who I saw about my suspected ectopic. She's called Miss Ficquet. I will ask to see her in future.

Hope that helps...

LateBloomer414 Sun 19-Jan-14 19:25:13

Thanks for the new thread, Baking.

I'm (just) 40, no DCs. Suspected MC in June 2012 (pg not confirmed). MC Sept 2012 at 6 wks, ERPC. MC May 2013 at 11 wks, baby measuring at 7 wks and heartbeat very very slow. ERPC in June. DH diagnosed with cancer a week later. Break from TTC from Aug to Dec but back on the proverbial horse now. Exploring IVF as when I started looking into it we weren't sure when DH's fertility would get the all clear. Hoping to conceive naturally rather than going the IVF route. Have been seen by St Mary's, MCs are unexplained.

Hessy Sun 19-Jan-14 19:56:16

Thanks for the advice everyone. Possibly with just one tube I have my excuse to get on with it and not wait.

Fingers crossed for you too Downstairs. Sorry we're all here...

TinyTear Mon 20-Jan-14 08:36:32

We have decided, if I don't get pregnant this month we will go to Professor Q next month and not waste any more time.

at least we will be able to say we tried it all...

squizita Mon 20-Jan-14 08:55:37

Tiny good luck with your plan! Hope all goes well whichever road fate takes you down this month!

Think I've worked out why I'm worried about this scan. Those of you who've been here a while: remember the scan-after-scan-what-is-wrong (I think I had 7 scans over 3 weeks)? Screen after screen of a weird misshapen sac and junior docs diagnosing ectopic etc' and scaring the hell out of me.
Before that, all scans I ever had have been to confirm MC after natural loss.
Once I had a week 5 scan confirming sac (but no HB etc' too early) was in the right place and that's the closest to a good scan I've even got: they booked me for an 8 week scan I never got to. sad
I just associate scans with seeing ...'free floating blood and tissue, no sac' sad. Or something terrifying. I'm scared my body can't produce an embryo, just an empty sac full of mutant pre-cancer cells like last time: because 2 losses happened before my 1st scan and the one that was scanned loads was T69/blighted Ovum (which do have something in them: just too small for a scan to ever see).

Logically this is ridiculous because my diagnosis explains the 2 5-6 week losses very neatly (clot ruined lining/placenta forming etc'), and the other loss was a random occurrence. But I'm still pooping my pants.

TinyTear Mon 20-Jan-14 09:07:32

squiz good luck

the thing with scans for me, it's odd, all the scans i had first at EPU and the RMC, the screens are facing the sonographers/doctors and not you, only if something is ok, they turn it towards you and it's fine

When I went for my first (and only as all losses were early) 12w scan I found it really really strange the screen was clearly facing me and I could just look and look and look...

For scans I always brace myself to the question "are you sure of your dates"

I am due on next weekend (not on my DD 2nd birthday party Pleeease) so by next week will know... have already bought ovulation kits as I will need to email professor Q on the day i ovulate to set up the appointment...

never been to Coventry before...

TinyTear Mon 20-Jan-14 09:08:02

latebloomer I am also (just) 40 - 1973 vintage

Ruggle Mon 20-Jan-14 09:33:52

Hi all

Recap from me:
39, no DCs of my own but have a very cheeky but adorable step daughter.
MMC at 11 weeks in July 2013 followed by mc at 5 weeks in November. Conceived straight after and am now 10+4. I haven't yet had a scan and am petrified that when I do it will show a blighted ovum. I have been throwing up between one and 5 times a day for the past 4 weeks...which everyone tells me is a good sign....but I am still not convinced anything's growing in there.
I have an appointment sceduled with a fertility consultant in Feb which I decided not to cancel, just in case things don't work out.
It's horrible not to be able to enjoy pregnancy and look forward to holding my baby. Instead I wake up each morninf wondering if I'm going to start bleeding and making sure I have a supply of pads in my bag.

FiremanSamsWife Mon 20-Jan-14 09:34:39

Hi all

Can I tentatively join? I hope its not cheating that I'm not going to actively ttc for a while though. Story as follows:

Early mc October 2010 followed by DS born in October 2011.

Since trying for number 2 we've had first mc in May 2013 (early scans due to constant spotting showed baby stopped developing at 6 weeks, medically managed miscarriage at 9 weeks), second mc in October 2013 (natural at only just 5 weeks ish) and I am now waiting for a scan on Thursday to confirm mc number 3 - scan 10 days ago showed a 5 week baby with a v slow hb when I should have been 8 weeks. I'm showing no signs of mc this time so if the scan is as suspected I will book myself in for an ERPC, both because I can't bear to wait (still feeling nauseous and have sore boobs which is just a cruel reminder) and also because I'd like the sac tested.

Apparently there's a 4 month wait to see our recurrent miscarriage clinic so my DH and I have agreed to take abreak until the summer so I can get some weight off, and get physically and mentally healthier.

Sorry that's so long! Crossing everything for you today Squizita, and sending Just some hugs, what a shitty year you've had. Huge congrats for the good scan too Baking - fantastic news! Hope all the pg ladies stay that way!

DownstairsMixUp Mon 20-Jan-14 10:20:20

TinyTear Do you have one of the big screens on the wall when you go for scans or just the one the ultrasound person uses? If it's the first one, I now ask for that to be turned off till they say it's OK as I know as soon as I see the screen something isn't right thanks to some brief placement I did in ultrasound as a student nurse. The 5 week scan on my last one it was just a very small round circle with nothing in it and I knew "blighted ovum" but I also tried to keep sane by reminding myself that sometimes you can't see as well at that early stage and read a lot on that misdiagnosed website. I think you just become an expert on seeing ultrasounds the more you go through! I have never been to coventry either, hope it goes all well for you.

squiz Really hoping your scan goes well. Honestly, I think it's normal to do what you are doing, you almost try and come up with explainations for "why" just to give yourself some answers. With that B/O I had I had light brown spotting throughout and told myself I should of known. I got told I had an ectropian and I always wonder if it was the cells from the failed baby that were sitting on my cervix causing the bleeding even though I am not a doctor etc so I have no idea. I just wanted any sort of answers. Fingers crossed for you. X

ruggle sorry to hear that but the sickness is always a good sign, I've heard sickness is a real good sign and studies have shown women who have sickness are less likely to miscarry! Could you not go for a private scan to ease your worries? Just google ultrasounds your area, there is quite a few near me. Expensive but worth it as the NHS weren't really very sympathetic towards me at all.

Welcome FiremanSamsWife and sorry to see you here. x

squizita Mon 20-Jan-14 10:20:36

Tiny How odd they would turn the screen. That would make my anxiety even worse! shock My hospital never did that thing with the screen: I could always see one screen and the doc the other. I've never had the 'are you sure of your dates' question something else to dread purely because, well, it's been pretty clear what's happened in the past.

Ruggle congrats! FX for you! Pads in your bag? LOL I wear a pantliner every day - otherwise I think I'm tempting fate! And I'm worried I just feel a bit sick in the mornings not upchucking left and right. Even though I know sickness varies wildly and some hardly get it at all!

Fireman Hi! Sorry to hear your story: hope you get your appointment soon and get some answers. Thanks for your fx... my scan isn't today, it's Weds - just been having absolute nightmares!

squizita Mon 20-Jan-14 10:24:13

Downstairs is that sickness thing a medical thing? Now so worried I don't feel sick enough. sad Although I know several people (including my mum) who never felt sick and carried to term.

TinyTear Mon 20-Jan-14 10:28:30

Squiz and downstairs

At my local EPU (Royal Free) there is only one screen - the one the technician uses...

At St Mary's they had one for the sonographer and one for me, but that was oddly places so i would have to turn my face to see it, so i could choose not to look if I wanted...

then the normal department has a screen just facing you so you see it all instantly...

tannyLoo Mon 20-Jan-14 10:31:36

Tiny my scan experience is the same as yours when I go to EPAC. I hate it. That question is a killer.

The only silver lining for me last time was that it confirmed blighted ovum rather than ectopic, and I then had a mid cycle one that was so nice, as it had no anxiety attached to it. Almost reminded me of the good old days!

DownstairsMixUp Mon 20-Jan-14 10:43:52

squiz there's a few studies on it but tbh, I never had sickness with my DS, i think I puked once the whole pregnancy (and i was 30 weeks!) and pretty sure that was just a dodgy dinner I had. Also, I only feel sicky in the evenings with this one, been sick just once and again, I do think that was the dinner I had! My boobs don't hurt anymore, I'm just tired! Try not to worry, there's studies on everything nowadays!

Tiny You should ask for them to turn off any forward screens or keep the us screen away till they know its ok, most of them would be kind enough to do that, I hate that knot feeling in my stomach I get waiting for scans, that and the desperate need for a wee is no fun!

Lancashire21 Mon 20-Jan-14 10:56:50

Hello everyone
I do find this a source of help and comfort - even when I am quiet on these threads. Having had a lot of early miscarriages (at 6/7 or so weeks) and no children, I have had every test going and have tried a bunch of things - aspirin, clomid - all sorts. At District General, then Liverpool Women's and most recently Coventry for biopsy with Jan Bosens (Prof Quenby's clinic). The test for NK cells was a last attempt to find a cause and results - normal. I was very upset as I badly wanted there to be 'something wrong' with me that might be fixable. I have phone consultation with them tomorrow to discuss. Not sure what they will recommend.
Very very best wishes to all - especially anyone having a rotten time just now. It's hard x

ac73 Mon 20-Jan-14 11:24:05

Hello to all. Just adding my story to the new link - copied and pasted from previous page so don't feel you have to trawl through it again! Hard to believe that this is my story and that I am still vaguely sane! This is very long and very sad, stick with me!

The last eight years have been a long and challenging journey for myself and my husband. I will aim to keep this brief and factual. I have no doubt that you will be able to appreciate the huge emotional impact running through it.
- May 2005 our first child was born. Induced at 38 weeks 5 days. I had obstetric cholestasis. All was fine although he was on the small side (just under 5 pounds). We stayed in hospital for 10 days trying to sort out his feeding and were then allowed home. All was good but our little boy was not putting on lots of weight, the health visitor was mildly concerned. At 12 weeks, the day after his immunisations, he seemed unwell -initially I put it down to the injections. He then went downhill - difficulties with breathing. We rushed him to a and e where he had a barrage of tests over the next 3 weeks. He was put into PICU but after a few days we were moved onto the general ward - we thought he was getting better. Another episode of breathlessness and we were back on PICU. After about 3 weeks we were left with two possible causes - tumour or a rare genetic disease (SMARD1). An MRI confirmed that it was not a tumour and SMARD1 was diagnosed. He died after 5 weeks in PICU. About two weeks after he died we received genetic confirmation that he had SMARD1. Each of our pregnancies has a 1 in 4 chance of being affected. SMARD can be tested for via CVS during the 12th week of pregnancy.

We decided that we wanted to have more children. Sadly since our son died this had been the pattern of our pregnancies.
-Miscarriage (about 6 weeks)
-Miscarriage about 10 weeks (detected at SMARD screening test - no heartbeat. There had previously been a heartbeat at the early dating scan)
-Termination - the baby made it to the test but had SMARD. We terminated the pregnancy as the baby would have died like our son.
-Miscarriage about 10 weeks (detected at screening test - no heartbeat. There had previously been a heartbeat at the early dating scan)
-Miscarriage about 9 weeks
-Miscarriage about 10 weeks
-PGD (basically IVF but with a screening test) - resulting in 3 SMARD free embryos, one was implanted. This resulted in a positive pregnancy test but then a miscarriage at about 9 weeks. It may have been a chemical pregnancy (no scans - my choice)
-1 embryo implanted into surrogate - negative test result
-Natural pregnancy which made it through the screening test and all was fine! We really thought this one would make it! Sadly at 20 week scan the baby was very small and it looked like it wasn't going to make it. Two weeks later it had died.
-Miscarriage at 9 weeks.

The miscarriages are not linked to SMARD and we have been told that the miscarriage at 22 weeks was not linked to our other recurrent miscarriage issues. No reason for any of the miscarriages have been found. We have had tests at our local hospital and privately by Professor Regan. More recently have had nk cells test by Shehata and Quenby which were high and both recommended steroid treatment. We also have one frozen embryo left. What to do? At the mo trying naturally but I am nearly forty one and time is not on our side. Just had 3 months of taking progesterone but no BFP.

Best wishes to all. Xxx

squizita Mon 20-Jan-14 11:29:20

Downstairs thanks! Very reassuring hearing your experiences with DS and now. I do feel sick in the mornings but it hasn't got past the odd 'dry heave' and some tea chucked up yesterday. The irony is that excessive sickness can be linked to molar so I'd be fretting either way. grin Just dry heaved - you can't wish an obnoxious dry heave in a smelly unisex work toilet no matter how much you want to, so guessing it's genuine.

Lancashire: how frustrating not to have the answer after all the tests. Prof Q sounds very comforting and sensible though, even if no NK result I'm sure they can put a care plan together for you.

bakingtins Mon 20-Jan-14 13:40:44

Squiz I have vomited exactly once in my 7 pregnancies, and it has been no different in the successful ones than the MC. it was a pretty good vomit though, up came my breakfast hot chocolate on a replacement bus service with no toilet
The only time I feel really sick is after scans, I think I have so much adrenaline coursing around that when it's all over I feel awful. It's very hard to enjoy them when you've had so many negative ones. I was panicking about the 20 week one even though I could feel the baby moving and had a very detailed scan at 13 weeks that was fine. I take a good book to distract me whilst waiting and ask the sonographer to tell me as soon as humanly possible that they can see a heartbeat, then I will lie patiently for as long as they want whilst they do their measurements.

Lancashire I'm sorry you didn't get the answer you were looking for. It's worth asking about the other treatments they are trialling (clexane and progesterone) because I was put on those as well as the steroids and the NK cells was the only thing wrong on the biopsy (they look at how your endometrium decidualises in the lab too, but mine was ok) Clexane is supposed to be cytoprotective for the placental cells, and progesterone promotes retention of a good uterine lining for implantation. The 'scratch' they do at the time of the biopsy is also supposed to improve lining and therefore outcomes for the next few cycles.

squizita Mon 20-Jan-14 13:54:10

Thanks Baking. Wow that sounds a barf and a half. I'll be careful what I wish for!! grin Thanks for the scan reassurance. smile Yeah I will explain to the sonographer (think they know my history anyway) that I'm nervous.

nearlyreadytopop Mon 20-Jan-14 17:36:44

congratulations ruggle hope you get a scan soon.
I had a reasurrance scan this afternoon and its still there with the heart beating. It was a couple of days smaller than I expected but the nurse said not to worry they allow up to five days before they get concerned. I asked for a swab for infection as im paranoid and she very kindly took one.
My sickness seems to be getting worse, im really hoping it doesn't turn into hyperemesis this timesad .

Ruggle Mon 20-Jan-14 17:42:54

Downstairs, I don't think an early scan would reassure me at all...but also if things happen to go wrong I would prefer to let nature take its course, and it would be much harder for me to deal with the sickness and nausea for several weeks knowing that it was all for nothing. So, I'm just going to wait for my 12 week scan, bang on 12 weeks, next Thursday, and go from there.

LateBloomer414 Mon 20-Jan-14 21:53:41

Nearly, so glad you had reassurance today. It is so stressful. Squiz, your paranoia is normal and completely understandable.

Tiny, we are now officially Ladies of a Certain Vintage. Let's keep it our secret that it's the ' 73 vintage! I am struggling with 40, tbh . I think I wouldn't feel so insecure about it if is had successful pregnancies. I know that must sound odd, but the clock just ticks so much louder now it seems. Sigh confused

BonnieBeaumont Mon 20-Jan-14 21:55:54

ac73 I can't begin to imagine what you have been through. I'm so very, very sorry. x

bakingtins Mon 20-Jan-14 21:59:05

nearly glad to hear it's going well smile

I told everyone at work about the baby on Friday and they have been so lovely blush I even got a "Nappy Days are here again" cake brought in today. Ahh.

Justonemoretime Tue 21-Jan-14 07:25:24

Congrats to pg ladies, it sounds like its all going in the right direction. Good luck for tomorrow, Squiz.
I was wondering, a few ladies have made reference to having been told they have 'good' fertility. I presume that they've had a test for their FSH levels? I don't think I've had that test? Is it a routine one? If they didn't do it, do you think its because they weren't concerned about my 'sell by' date? I'm 37 and paranoid something has been missed.

bakingtins Tue 21-Jan-14 07:49:12

I had day 2 FSH/LH and AMH (antimullerian hormone) which is an indicator of ovarian reserve. I was 38 at the time.
The other thing you might mean is being told you are "super fertile" which at the moment seems to be a theory rather than something that can be tested for. It means you get pregnant easily but allow substandard embryos to implant which subsequently miscarry.

tannyLoo Tue 21-Jan-14 07:50:12

Hi Just, I am one of them. Yes, I was tested for FSH. You'll know if you've had it because they draw blood around the beginning of af, at least that's what they did with me.
I'm 41 so geriatric in the eyes of obs/gynae. I don't know if that made a difference though.

I'm currently in the 2ww and symptom spotting like a crazy lady. Hopeful but this is the easy bit...

tannyLoo Tue 21-Jan-14 07:54:25

Baking cross post! Nicely summarised grin . Still feels like a fob off even if it fits my pattern. I do feel better about trying again as I feel more prepared.

Justonemoretime Tue 21-Jan-14 07:54:50

Thanks Ladies, I've never had any of the those tests as far as I know, and no-one has mentioned the super fertility thing. I've got pg within 3 cycles every time, so maybe they don't think I've go an issue either way.
hmmmm. Just finished another short AF, 3 days. sad

squizita Tue 21-Jan-14 08:03:07

Just Raj Rai based his assessment on the fact that if I do the OV POAS thing (or even count to 13 days) I always get pg within 1-2 months, usually 1. He said you don't need tests to work that one out and congratulated my smug husband on his highly mobile sperm. He mentioned superfertility theory and said at that rate there might be some 'poor eggs' getting through but that they would be randoms not a pattern (based on my sticky blood).

Baking how sweet of your colleagues! smile

Tanny FX for the 2ww.

Felt sick as a dog this morning. smile

Notgivingup1 Tue 21-Jan-14 11:04:06

just on my way to St Mary's to talk about my super short AFs and hoping for a mid cycle scan to check lining as never had one. To top it all off feeling a bladder infection coming on. Damn SMEP! On the super fertility thing - at the time was told I would fit the profile but that the research was only theory and in conclusive. So it was left at that. Good luck for tomorrow squiz - totally totally understand what you mean about scans. I hate them but tend to calm down when I am in there. They will totally understand I am sure.

Hi to everyone else

butterfly86 Tue 21-Jan-14 17:56:37

nearly good news about your scan smile

Hi to everyone else!

Ive been to the midwife today and she listened to the heartbeat even though I had a scan last week it was still reassuring to hear it smile I also think I've been feeling little movement's the last couple of days nothing definite but tapping here and there.

Millysdream Tue 21-Jan-14 18:35:08

New to this so don't know the lingo so bear with mesmile Am 31, no children, 3 miscarriages all between 6-8 weeks. Got married dec 2012 and had miscarriages in jan, May and august. Am currently 7 weeks pregnant. Heartbeat seen- let's hope this is a sticky bean! Going to recurrent miscarriage appointment on Monday. Been waiting for this appointment for ages! Only had a few basic blood tests and hubby had sperm checked and all ok so far.

Will they still do miscarriage tests on me if I am pregnant or will they just support me with this pregnancy?

Waited so long I will be gutted if I miscarry again and have to wait another 4 months for tests.

Wishing everyone health and happiness xxc

Millysdream Tue 21-Jan-14 18:36:53

Any advice greatly received as all this is new to me and the last year has been a blurr

nearlyreadytopop Tue 21-Jan-14 18:40:32

hi milly
I'm not sure about the tests but just wanted to say hello and welcome. There are a few of us around the 7/8 week mark and it so good to come here and share worriessmile

Lancashire21 Tue 21-Jan-14 19:10:11

Baking - glad things are going well. Hello troops x
Wondered if I could ask if anyone has heard much on possible recurrent tubal pregnancies?
Basically I have just (6.30) had my phone chat with Prof Q following my scrape tests in Coventry which all came back fine. So much so that she said my womb lining was better than she'd expect for someone like me who has had a lot of early losses. Gave rise to thought that my pregnancies may have been tubal. But so many?! She didn't know. Wants me to go on day 21 progesterone & then to explore IVF. Bloody hell
Have never explored it as I conceive on my own. And I'm 41 so this is a total nightmare. This is the closest I have felt to giving up in the last horrid six years.

squizita Tue 21-Jan-14 20:16:20

Not hope st Marys went well!

butterfly great to hear you've had another reassuring scan!

Milly they may be able to do one clotting test from what I understand - but most tests are done not pregnant. However you can ask for 'TLC' such as reassurance scans perhaps?

Lancashire sorry don't know anything about that. How awfully stressful for you! Hope prof Q sorts it for you.

squizita Tue 21-Jan-14 20:21:10 Am pooping my pants (metaphorically. Really the hcg is slowing that kind of thing). Well i'll know in 24 hr...

Justonemoretime Tue 21-Jan-14 20:50:12

Squiz, good luck for tomorrow. FX

Lancs, sorry you're feeling down and frustrated. Horrid when you pin so much hope on getting an answer, only to find you have yet another hurdle! Hope you get some answers/action soon.

Welcome Milly, sorry you find yourself here, and congratulations on your latest pg. Which RMC clinic are you going to? When I was with St Marys the message seemed to be that if you were pg you should let it play out (you might not need them) and then come back if you (sadly) do need them again. But other clinics might be different. I should think you are entitled to an early scan at any rate and maybe they can do some blood work. St Marys is the only place that does the TEG (sticky blood/clotting) test, which is the one they repeat when you're pg, so if you're with another clinic they wouldn't offer it either way. Best of luck with it.

Thanks for all the advice this morning about the fertility testing - I'm paranoid something obvious has been missed, but I guess that if I can get pg reasonably quickly up 'til now, that's why they didn't do it. AF only 3 days again, so more worry (from me - Prof Regan said it was fine). Must chill -the f*ck-- out.

Millysdream Tue 21-Jan-14 21:00:50

I am going to st Mary's manchester. I just worry that if I miscarry again I will be worse off that before as I will be back to square one on the waiting list. So frustrating! X

Millysdream Tue 21-Jan-14 21:02:06

I am going to st Mary's manchester. I just worry that if I miscarry again I will be worse off that before as I will be back to square one on the waiting list. So frustrating! X

bakingtins Wed 22-Jan-14 07:44:23

butterfly glad you heard a HB, it's a lovely moment.

lancashire I'm sorry you didn't get your answer. I don't know about recurrent tubal pregnancies, always thought ectopics (is that what she meant?) were a random thing. Have you ever had symptoms of an ectopic or alternatively a scan proving sac/embryo is in the womb? We had all our hopes pinned on that phone call, and had pretty much decided to call it a day if she had no answers, so I get how you must feel. I don't know where we would have gone from there. Take a while to let it sink in before you decide on next steps. flowers

milly welcome! I suspect the clinic won't be able to do much in the way of testing, but they can and should support you with extra scans and TLC in this pregnancy. You should also be in their system so if you need their help in future you are not back on the waiting lists.

not hope your appointment went well.

squiz good luck, everything crossed for you.

tannyLoo Wed 22-Jan-14 08:02:37

Squiz good luck today.

TinyTear Wed 22-Jan-14 08:33:23

Good luck Squiz.
What time are you going?

JBrd Wed 22-Jan-14 09:05:47

Thinking of you, squiz, good luck!

sweetsherry Wed 22-Jan-14 09:41:14

Hi - I've been reading for a while and feel like I'd to join in, if you don't mind.

2013 was a bit rough for me..

Just for the back story, we got married in late 2003 and started TTC in early 2005 (I still occasionally kick myself for that 'lost time').

Nothing happened though, which didn't worry me for a while but eventually we got investigations done. I had a lap and dye in March 2008 (nothing unusual was found) and got a natural BFP in May 2008 and had DS 8 months later.

So despite taking 3 and a half years to get there, #1 was, in retrospect, a breeze.

In Sept 09, we started TTC#2 - bit of deja vu, as nothing happened for the next 3 and a half years. Did 12 cycles of Clomid, and 6 cycles of injectables - nothing. Having all but given up, we went on holiday in May 13 for my 40th birthday, expecting AF, which didn't come. Surprise BFP! Sadly, we found out at the 12 w scan it was a m/c, it had stopped growing at 6.5. It was pretty devastating.

I then had another surprise natural BFP in Dec 13, but it all ended in the toilet as a complete m/c at 6w, a week before Christmas. I had hoped for that 'extra fertile' thing after a m/c to be true, but the first post-mc cycle ended in a BFN last week.

So here I am, 40 and still TTC#2.

Looking on the negative side, I definitely am not 'superfertile' and I definitely don't have an 'unfussy' womb..I have spent the best part of a decade TTC, it's only in the last year I have started being able to conceive.

But looking on the bright side, I have now conceived twice in the last 7 months - maybe I can do it again. What made the difference, I am convinced, is diet - I quit sugar a year ago.

I had a test this week for coagulation issues and that was normal. Every other blood test is normal. I do have low AMH (or did when I got it tested in 2011), but normalish FSH.

Sorry for essay, it's hard to keep it brief..

Good luck to everyone, especially Squiz today.


Purplefrogshoe Wed 22-Jan-14 09:45:22

Good luck squizita I'm still waiting on appointment for tests sad hi to everyone else! sorry can't name check on phone at work

bakingtins Wed 22-Jan-14 10:37:57

Welcome sherry hope you find some comfort from joining us. 2013 was a crappy year for many of us, but 2014 is going to be better. Also, may of us are a similar 'vintage' (I'm 40 this year) so you are in good company.

JBrd Wed 22-Jan-14 10:57:37

Welcome to the thread sherry I'm also one of the older 'vintage', I turned 42 a few weeks ago. There is also a lovely thread for the 40+ ladies on the Conception board, feel free to join there, too.

I agree that 2013 was a tough tough year - which should really mean that 2014 can only be better, right?! <<clutching straws>>

Notgivingup1 Wed 22-Jan-14 11:17:15

Thinking of you squiz. They were so lovely yesterday so you are in good hands.

So basically it was nice not to be fobbed off and they did say that the combination of short cycles, v light periods and not getting pregnant (when it had always been v easy before) should be checked out. Going back next week for a scan to check lining and will do the day 2 hormone tests. Never had any of this done before. So will know more next week. Obviously don't want anything to be wrong but pleased I pushed for someone to investigate! DH is really struggling with this as the getting pregnant part was never the problem and he now feels like something else has been added to the mix. just he did say that short periods are not necessarily a sign that anything is wrong but given that I've had 4 ERPCs he just wants to check lining again.

lancashire so sorry you didn't get concrete answers. It's really hard to deal with when you are told it may be something you'd never even thought about. If you have more questions do go back to them once you've had time to think. I have some friends in RL who were dreading IVF but it all worked out for them.

Welcome sherry and sorry for the rubbish year that was 2013. You'll get lots of support here.

butterfly that's really lovely news and glad you are doing ok.

TinyTear Wed 22-Jan-14 11:19:01

Welcome Sherry

squizita Wed 22-Jan-14 11:57:52

Not glad you're getting somewhere. Hope it proves fruitful!

Sherry Hi! Yup 2013 was sh*tty indeed for many of us, fingers crossed.

So... there I am crying about how I'll never see a heartbeat with legs akimbo and the lady starts the fanny cam... literally 2 seconds later she goes "oh there's the hearbeat- grab that little monitor dear you'll see it better. Normal size for dates, normal yolk, normal fetal pole..." and that was it. I had to pinch myself. Official dates 6+4, embryo measured 6+2 but apparently that's fine as implantation etc cause variations?
Got the brusque-but-pleasant doctor (for once I needed no sympathy lol), he said my odds were 65-70% of success- which I'll take as they're well over 50% -and they're scanning me again 4th Feb. smile

He did say my single positive result actually meant I had 2 conditions combined (raised thrombo and antibodies) but that was why I'm on both aspirin and clexane combined.

So now it's back to living for the next jab/scan for a couple of weeks. A least I know I don't just produce blighted ovums!

tannyLoo Wed 22-Jan-14 12:05:08

Hi sherry and our recent newbies, sorry you're here. I hope you find it a useful thread. It's been a life saver for me tbh.

bakingtins Wed 22-Jan-14 12:29:41

Squiz that is brilliant! Is that the first time you've seen that? Hope it is etched onto your memory. grin

tannyLoo Wed 22-Jan-14 12:34:23

Squiz how did I miss that???

Wonderful wonderful wonderful news. The words we all want to hear! Congratulations x

squizita Wed 22-Jan-14 12:36:03

Baking smile Yes. All other losses were either sudden (so no scan before) or blighted ovum/partial molar (so loads of rather scary scans). Was scared my body couldn't make a bean!! smile Now just got to keep it going...

sweetsherry Wed 22-Jan-14 12:38:51

Glad it was a good scan Squiz!

Thanks for the welcome!

I'm eating lots of protein at the moment, convinced it will help my dodgy eggs along. Just had a pile of salmon+lime pickle, with a side of crispy salmon skin. Weird, but not horrible.

Normal is somewhere long in the past..!

FiremanSamsWife Wed 22-Jan-14 13:18:57

So pleased for you Squiz! Fantastic news!

TinyTear Wed 22-Jan-14 13:24:51

Great news!

JBrd Wed 22-Jan-14 13:39:52

Fab news, squiz! Now just one day at a time until the next scan smile

Makes you wonder how women managed before ultrasound...

Notgivingup1 Wed 22-Jan-14 13:59:02

Really good news squiz you've obviously reached a new milestone so first step to better things. Very happy for you

Purplefrogshoe Wed 22-Jan-14 16:27:41

yay squiz fab news grin

DownstairsMixUp Wed 22-Jan-14 17:04:06

Hi Sherry Welcome and sorry to see you here. X

Yay Squiz Did you have a internal scan then? I had a abdominal and it was so uncomfortable as I went ott with drinking. blush congratulations! You are a week exactly behind me, fx we both go full term, wonder who will pop first?! grin

Lovely about hearing the heartbeat butterfly nothing beats that little thud thud, so reassuring.

Ah ok ruggle fair enough, everyone has their own coping mechanisms. I always find it interesting to hear how different we all cope with these things.

Sorry haven't been on, I am literally wiped out, been napping when I get home from work. I feel like a cat, eating, sleeping, work, back to sleep, bath, eat, back to sleep! It's wiping me out this time, worse than my only succesful pregnancy with DS. Also really moody. Obviously I am still polite with customers as it's my job but inside I am getting annoyed at things ha! Such a moody cow :-)

Tumtimes1 Wed 22-Jan-14 18:10:59

Hey guys

squizita great news on the scan! Sounds like we had the same pre-scan experience, I too was crying before I'd even laid down on the bed for my 6w1d scan today. Thankfully also heart beat found for me too. Next scan is next Tuesday.

Hi everyone else, welcome sherry and good to see you freelancegirl I'm not on fb now but will update on here every now and then. This board is such a comfort to know we're not on our own.

Randomly today in my appointment with my consultant he has also said I should go on clexane. Now my bloods that I've had so far have been negative for thrombolias, but I do get v-veins, migraine with aura and have haematomas. I presume that's why he has prescribed it, so I'm now on this every day at 40mg. I am hoping that starting this at 6w 1d isn't too late. Anyone else started this then?

squizita Wed 22-Jan-14 19:15:19

Tum congrats on a good scan! If bean has a HB then clexane is in time I guess, best of luck.

thanks everyone for your kind words!

Downstairs I'm quite emosh at the moment too. erm I cried at power ballads in my car yesterday haha!

DownstairsMixUp Wed 22-Jan-14 19:17:23

grin at squiz I know something is up to as I usually hate mushy stuff people post on Facebook but it sets me off lately. blush

butterfly86 Wed 22-Jan-14 20:45:03

Great news squiz and tumtimes smile seeing that little flicker is lovely isn't it!

bakingtins Wed 22-Jan-14 22:03:58

Good news tum I started clexane at 5+4 after my first scan and it has been fine. smile

squizita Thu 23-Jan-14 08:03:31

Hmm ... talking of clexane, mine has started to bruise again after 15-20 days of hardly anything. Same needle/brand. Same routine. Odd! Great big blue bruises too, gonna run out of space soon! Before was like a dot bruise of less than 1/2 cm.

squizita Thu 23-Jan-14 08:10:29

...also St Mary's have me on 20mg with a diagnosed condition. I double checked yesterday too- is this the standard dose?

DownstairsMixUp Thu 23-Jan-14 08:28:46

Quick question ladies I still haven't had a letter about my referral or even a date for booking in and I'm 8 weeks soon. The referral was faxed 9th January what do I do now?! I tried hospital direct and was fobbed off to obstetrics and I have called several times different days times and no one ever answers and there's no answering message function. Gp has said referral was 100% faxed high priority. Not sure what else to do now!

JBrd Thu 23-Jan-14 08:53:13

Downstairs could you talk to the midwife directly to get some advice? Otherwise maybe get the GP to call and follow up on the fax... How annoying.

Argh, I had to use every willpower possible not to poas this morning. 13 DPO, and my temps are staying high... So tempted. But really want to hold out one more day.

TinyTear Thu 23-Jan-14 09:07:49

i'd be chasing your GP!

I chased and chased to get an 8w scan last time. i wouldn't have coped not knowing anything till then, and before that i also had my booking appointment booked and the 12 w scan date...

bakingtins Thu 23-Jan-14 09:21:16

squiz I was on 20mg clexane.

downstairs I agree with getting your GP practice to chase the referral for you if you can't get through directly. It drives me mad how inefficient the NHS is and they still do most things by snail mail. I got a copy of the 8 week scan report sent to my GP through the post only about a week ago, I'm 21 weeks confused

jbrd fingers crossed for a BFP tomorrow. Admiring your willpower!

If anyone has any positive thoughts to spare I'd appreciate them for my dad. He has had a cancer scare and is having a colonoscopy today sad it's likely to be a few days before we know anything, but obviously a worrying time.

DownstairsMixUp Thu 23-Jan-14 09:37:57

jbrd I don't have a midwives number as they referred me to obstetrician as I'm too high risk for normal midwife care apparently.I think 13dpo should be good for a first response?!

tiny that's why I booked that private scan was worth it but so annoyed that the NHS have been a bit useless!

baking I know they was the same when I needed to see my neurologist everything just takes ages! Oh well I'll book another Gp appointment tomorrow as receptionists won't do anything and I'll tell him tomorrow the situation! Sending positive thoughts to your dad and some thanks to you.

FiremanSamsWife Thu 23-Jan-14 10:26:54

Ah baking sending positive thoughts your way for your Dad, must be so scary xx

So had my second scan today, as expected no further growth and no heartbeat. Actually relieved as was panicking I would go in and there would still be a v slowhb and I have a hard decision to make. Scan actually showed two sacs, one so tiny it wasn't picked up on the first tummy scan and only showed on the internal today, not sure how that makes me feel really.

So booked in on Wednesday for the ERPC, they said as the foetus is so small they may not be able to test fkr much but will give it a try. I'm scared, never had a general before, can anyone tell me what happens? I know it's really short which is good.

Congratulations on all the happy scan news in here lately, gives me huge hope!

DownstairsMixUp Thu 23-Jan-14 10:31:11

Hi FiremanSamsWife sorry to hear your news, sending some thanks your way. I found the erpc fine to be honest, the general made me a bit groggy when I first came round and I slept like a log that night but honestly it was very straight forward and minimal fuss. I bled for about 2 weeks after and had my first period six weeks after. Pain was very very light cramps. They gave me codeine but paracetmol was really fine for it. Hope you're OK. x

JBrd Thu 23-Jan-14 10:45:55

Fireman Sorry to hear your sad news. Hope that you get lots of support from friends and family.
I also found the ERPC very straightforward and very little pain or discomfort. Felt a bit groggy afterwards, but more or less 'normal' again the next day. The little pain I had was easily managed with paracetamol. Bled for about 10 days afterwards (stop & start), and then AF returned 5 weeks after.
To be honest, the worst thing for me was that you're not allowed to eat or drink before! I had to go nil by mouth from about 10pm the night before, but didn't get to theatre before mid-afternoon the next day - I was totally ravenous. Make sure that you have a substantial meal as late as possible, would be my advice. Good luck!

Baking sending lots of positive thoughts your way thanks

TinyTear Thu 23-Jan-14 10:50:59

Hi fireman
so sorry...

I had 2 ERPCs, the last one at the end of October last year.

The general was ok, i just felt myself drift and then woke up from a lovely deep sleep and drifted on and off for a bit.
but recovery was quick, i was just left lying down in a room for a bit, then ate some food and they ask if you have been to the toilet and if you are ok before letting you out with a 'responsible adult'

my first one was at 9am so i was let home at 3pm
this one I was delayed as there were emergencies so didn't go in till 11am or something so went home at 5pm (because had to wait for my husband to get our DD from nursery and come to get me)

hardest for me was that i was told not to breastfeed that night and it was difficult getting my DD to sleep as my husband can do it when i am not there, but with me there she wanted the mummy milk, so that made me cry not being able to help her...

both of mine were on wednesdays and with the first one i worked from home on friday but with the last one i took close to two weeks off as mentally i couldn't cope.

with both i bled for 2 weeks ish and then got the first AF about 4 to 5 weeks later

TinyTear Thu 23-Jan-14 10:52:16

baking sending positive thought to your dad

FiremanSamsWife Thu 23-Jan-14 10:54:57

Thanks so much Jbrd and Downstairs, that makes me feel a little easier about it all.

Now I know there were two sacs I feel even more of a failure, which my head knows is stupid, but I feel so unbelievably sad for.

So hard, I feel I have to be strong for everyone, but inside I'm falling apart.

FiremanSamsWife Thu 23-Jan-14 10:56:05

X posts, thanks tiny too x

TinyTear Thu 23-Jan-14 10:57:17

Don't feel you have to be strong. I did that and didn't allow myself to break down...

I had counselling after the last mc and that was something they needed to tell me - i am allowed to cry and to feel sad. it's allowed!!!

squizita Thu 23-Jan-14 11:35:39

Fireman So sorry to hear it has been confirmed. sad My ERPC was - as others have said - quite worry-free and less physically painful than my natural losses. I just felt groggy for 24hr, bit sore, 1 week bleeding.

Baking Thinking of you and your dad. thanks Hope all goes well.

Downstairs yeah I would chase. My GPs admin are RIDICULOUS and it seems fairly typical. They've faxed referrals to the wrong place before so it is worth double checking!

JBird POAS FX coming your way!

Showed my latest humdinger of a huge purple bruise to my school nurse. He was a bit OMG. Hoping I've just been clumsy... never had bruising like it for the last 20 days!

bakingtins Thu 23-Jan-14 12:37:32

fireman I'm sorry your loss was confirmed. There's always a shred of hope there even if you are pretty sure it's going to be bad news. I haven't had ERPC but I had a GA after my DS was born to remove placenta and it was fine, I woke up feeling like I'd had a really good sleep but also like no time at all had elapsed.

squiz could you have hit a blood vessel? Some sites just seem to bruise more than others. It was better for me lower down towards my hip.

squizita Thu 23-Jan-14 12:57:19

baking That's what I was thinking. Also, having tried all the easy spots and having little bruises, I may have now journeyed onto the less fatty more bruisy spots! Going to try the thigh next. Heard somewhere if there's not enough fat the clexane doesn't work but as the closest I get to sport these days is playing Angry Birds I should be OK! grin

TinyTear Thu 23-Jan-14 13:31:30

Ahrgh fucking fucks!

on my birthdboard for my daughter the following post:

"to have another baby or not to have another baby... that is the question? last chance at 44 years old. What are the pros of having two"

which is fair enough to ask, especially if you are older and there isn't much time...

but the comments?
especially from someone who is now expecting her 5th (she wanted a girl and it's another boy, she was already devastated the 4th was a boy) about how shit olnly children are and how you can tell someone is an only and only children have cartain 'traits'

oh fuck the fuck off...

some people have no choice.... some people would love to have just the one and have none... some can't get a second...
this woman is starting to annoy me a lot. she is sort of queen bee, and i thought she was ok, but she has been unbearable in the past 6 months or so...

and breathe....

FiremanSamsWife Thu 23-Jan-14 13:37:57

Thanks all, had a massive sob and now curled on the sofa with chocolate and tea. And thanks Tiny, I will remember that xx

Ugh, some people and their comments, I can't make up my mind if they just don't think or if they do and still don't care how it makes others feel! One of my oldest 'friends' responded to my news today telling me that at least I had one, I should be grateful for him. She ended up making me feel guilty for being sad about tying for a second!

Tumtimes1 Thu 23-Jan-14 13:47:19

Sending you positive thoughts "Baking" xx

so sorry Fireman to read about your loss. Sending you my love.

Squiz I was looking at pics the other day of clexane bruises, it looks brutal. So far mine is half a centimetre like yours were. I wonder if they have got bigger as the blood is thinner.

Can someone advise me please? I have noted that when I laugh or cough there is a very tlight swinge on the right hand side and its making me worried. Has anyone else experienced this? I cant feel it when just sitting normally. Its just when i (ahem) strain.

TinyTear Thu 23-Jan-14 13:54:14

could be muscles growing / stretching... can be normal...

tannyLoo Thu 23-Jan-14 14:16:01

Tiny I like "fuck the fuck off". I can see it having multiple applications.

Anyway, Queen Bee knows fuck all about only children. I'm one and I'm lovely!

My mum is the other way round and said to me after my first mc "You've got enough, haven't you?"

Bloody bollocks to them!

Fireman so sorry it's turned out this way. I had a termination when I was a young thing (don't think that doesn't haunt me) with a D & C. As other people have said, I just felt sleepy and sluggish for a few days, and very hormonal. I recommend back to back Cagney and Lacey on iplayer and copious tea to aid recovery. Thinking of you brew thanks

TinyTear Thu 23-Jan-14 14:19:43

tanny exactly! and I have one sister who I don't get on with. so there!

bakingtins Thu 23-Jan-14 14:57:32

tum don't worry about twinges - it's just the uterine ligaments being stretched. I'm still getting them if I make a sudden movement.

tiny I think all our experiences of resisting the urge to say "fuck the fuck off" is going to guarantee us a sainthood.

fireman I think you might like this short film If there is one thing I've learnt from all this it's never to say "at least..."

And whilst I'm posting youtube clips here is the documentary about RMC testing at St Mary's, for the benefit of any newbies who haven't watched it.

squizita Thu 23-Jan-14 15:29:44

Tiny oh god there are sooo many people who think they know it all. Ones with no kids ("don't waste the NHS' money on your whim") ones with one kid ("well that makes it easy for you") and ones with a brood (much the same as queen bee). Pffffttttt the lot of them.

Tum I had lots of twinges. Often on one side and has always been the luteal cyst (normal) aching. Also muscles can cause that.

Just had an embarrassing 'oh god i'm bleeding' run to the loo to find it was all CM. blush
Bruise is now black, raised and size of a tennis ball (round, not the lump!) thinking I brushed a blood vessel AND wore a belt the wrong place (rubbing it). Doh. Gonna try other places.

Tumtimes1 Thu 23-Jan-14 15:58:20

Squiz what did the doc say about the bruising? Can you get it down with ice or something cold?

Thanks guys for you comments - I hope it is the ligaments stretching!

FiremanSamsWife Thu 23-Jan-14 16:05:08

Baking that clip sums up everything! I am seriously tempted to send it round some of my friends wink its hard cause you know they are trying to help. I will bear the video in mind for how I am with one of my friends going through a really tough time at the moment.

Thanks tanny, I haven't actually moved from the sofa since I got home... nice to give in to the feelings though.

Lancashire21 Thu 23-Jan-14 16:32:33

Fireman - sorry for your news. Take care of yourself. Sofa, tea and comfy pants has helped me through.

Keenoonvino Thu 23-Jan-14 17:34:06

hi all, just jumping in to this thread. I've been on mumsnet awhile, but have only just found this board. I've only read half the thread, as I can't figure out how to bookmark where I was, but will catch up in a bit.

I had a miscarriage at 7 weeks, then a MMC at my 12 weeks scan (growth stopped at 10 weeks), a healthy DS who is now 2.5 and I have since had another MMC (scan at 8 weeks showed all was well and a routine scan at 10 weeks show baby had died at 9 weeks) and have just had another "natural" miscarriage at 6 weeks.

I have been really fed up and not sure what next steps to take. Blood tests from NHS came back normal, just been to a private gynae and he did an internal scan and said all looked normal.

I am about to ovulate so I guess I'll be in the 2WW soon, so if I get pregnant this month I'll be on asprin and progesterone.

I couldn't cope after my last MMC, esp since an 8 week scan showed all was well. I really thought I was in the clear.

Glad to have found this support!

Lancashire21 Thu 23-Jan-14 19:10:47

Keenoonvino - very sorry for your losses. You will find this a great source of support and some of the most comprehensive info anywhere on recurrent miscarriage. It's one of the meanest things in life, but you are not alone.

squizita Thu 23-Jan-14 20:09:51

Keeno Hi. So sorry to hear about your losses. Hope you find it reassuring and helpful here, I've found it amazingly kind and supportive.

This 1 bruise is daft. It's THE SIZE OF MY PALM. Like purple 3 or 4 inches. Slight bump (which interestingly follows the shape of my belt- perhaps it dug in?). Gonna try my uber flabby thigh tomorrow: seeing as only 1/2 the tum will be in action jab-wise for at least a week, don't have much choice!

DownstairsMixUp Thu 23-Jan-14 20:53:22

TinyTear she sounds an absolute pain in the arse. Some people really just speak without thinking about it! I'd be tempted to cut her off to!

squiz I have had a increase in CM to so maybe that's a sign it's normal at this stage for us! I still do the odd panic though to. blush How are you coping with tiredness? Mine is overwhelming at the moment!

Hi Kee welcome and sorry to see you here. It's a great place though, full of support and lovely ladies. smile

Well a midwife FINALLY CALLED!! It took me emailing a complaint yesterday, she was very apologetic though. Picked up notes and have booking in next friday. Hopefully I make it to the 12 week scan.

Notgivingup1 Thu 23-Jan-14 20:55:38

Ouch squiz that sounds evil! Is one allowed to use arnica cream in pregnancy as that might help?
keeno hugs and welcome. It just totally wears you down sometimes but hope you can get some comfort here.
baking I am sending positive vibes for your Dad. Hope you are ok as can be. It's horrid waiting for results.
fireman I am really sorry. Sending you a big hug. Like everyone has said, you are completely allowed to feel sad and grieve. I've had 4 ERPCs and I have to say they really are fine. It's never pleasant having an op but it was also the first time I'd had a GA and was worried but it's actually quite nice being put to sleep! I never had much pain after and did bleed on & off for 2 weeks. Then got period within 6 weeks. Hope it's all straightforward for you.

Can I ask a really silly question. Think I need antibiotics for this bladder infection as it's not getting better & I've tried everything. In 2WW and don't have much hope of a BFP it ok to take antibiotics do you think? Obviously I will tell GP but so paranoid about EVERYthing.

Jbrd fx for tomorrow!

bakingtins Thu 23-Jan-14 20:55:55

keeno welcome - glad you decided to join us.

downstairs 'bout time too!

squizita Thu 23-Jan-14 21:02:47

Aha... top tip from Stockport NHS here The drop on the end of the needle can cause bruising. They also spurt a bit as they retract (which I have been doing to remove the needle to avoid wasting precious clexane) - might explain!

Justonemoretime Thu 23-Jan-14 21:16:14

Welcome Keeno, as the others have said, sorry you find yourself here. Its a really good place to get support and advice, and feel like you're not facing things alone.

Downstairs, glad you finally got her attention.

Squiz I have been getting ma-hoosive bruises from acupuncture recently - I think sometimes you can just nick a vein under the skin. Shocking shades of purple, though! Owch! I showed one to my mum, I think it quite upset her sad

Fireman, So sorry for your sad news today. I am the (very sad) Queen of gyne ops (6 in the last 2 and a half years) and they are really nothing to worry about. You will feel woozy and as has been said, you will awake feeling as though no time has passed at all. You may be a little sore but get them to hit you with the pain killers and then get a good nights sleep. Take it easy with a good film/book/homes under the hammer and then resume normal life when you are ready. You will probably bleed for a couple of weeks, which will start heavy and reduce to spotting. If more than 5 weeks, go back to your GP. You should get a BFN within a couple of weeks. Your AF should return in about 6 weeks, maybe as little as 4 (my AF after most recent ERPC with U/S guidance was bang on 28 days). Any questions, don't hesitate to ask. Enjoy the morphine. In my experience, you will feel physically better after a couple of days, too, as the pg symptoms will fade (sad I know but you will feel more like yourself again).

Baking FX for good news about your Dad. Its horrible and I feel for you. Hopefully, what ever the issue is, it will be treatable (even better, not be an issue at all!).

FiremanSamsWife Thu 23-Jan-14 22:13:46

Hi Keeno, sorry to see you here but as others have said you'll get huge support and knowledge here, hopefully you'll get a sticky one soon xx

And thanks for all the supportive messages, Just I really appreciate that, I don't feel as scared now, as my DS keeps getting me up at 5am these days I'm now looking forward to the sleep! Can't actually wait for the pg symptoms to leave.

Horay for midwife finally calling downstairs!

Bobsmum1 Thu 23-Jan-14 23:01:06

Hi all, sorry i've been quite for a while.
(Me: mmc 8 weeks 2011, 1 dd 2012, mc 5 weeks 2012, mmc 12 weeks, mc 5 weeks, both 2013, 5 weeks 2014. Diagnosed sticky blood.)

thanks to baking keeno and fireman

Great news on the hb squiz! A bit further up thread you mentioned something about your single positive result, and thrombo and antibodies, so being on clexane and aspirin. You've said before about us having the same kind of sticky blood, but i'm only on aspirin (and a bit skeptical about the medical advice i've had). Do you mind me asking a bit more about what tests/results you've had/ what you were referring to? Sorry if its cheeky of me to ask, just ignore if you din't feel like sharing! Am just desperate for any guidance.

I cant remember who it was that recommended Prof Regans book to me, but thank you whoever it was! Its a really useful book!

Bobsmum1 Thu 23-Jan-14 23:02:10

quiet not quite. Duh.

JBrd Fri 24-Jan-14 00:12:30

Not yes, there are antibiotics that are safe to take when pg. I've just had some for a bladder infection. Just tell your GP, it should not be a problem.

tannyLoo Fri 24-Jan-14 06:57:51

There is a bit of a poas party on the ttc thread this morning.

jbrd will let you know how hers has gone.

I got a bfp. Very faint but only 10 dpo. Try, try, try again...

Justonemoretime Fri 24-Jan-14 06:58:55

Tanny, a line is a line. smile

TinyTear Fri 24-Jan-14 07:42:42

tentative congrats Tanny

squizita Fri 24-Jan-14 07:44:08

Bobsmum I had thyroid and all the sticky bloods tested (due to my partial molar, it's unlikely I have a repeating genetic issue as that is so rare and random and happens when a normal egg mutates). But I had them at St Mary's and I understand their equipment is v sensitive.

Tanny the line would be faint at 10 DPO but it's still a line! smile

Just yes I think it must have been a little blood vessel. Tried in my thigh today - injection left a drop of blood (heard that's normal) but didn't hurt much bar the usual burn so fx. Also I think my belt line aggravated it yesterday so the thigh is just covered by trouser fabric or tights.

squizita Fri 24-Jan-14 08:33:52

Oh, also Bobs I discovered that I kind of have a condition 'and a half'! Raj Rai didn't go into it in detail- just mentioned it as if it wasn't a problem- I think because the treatment for the anticardiolipin antibodies was the same as for my 'very slightly raised' thrombolipin so I was more than covered. This was what the 'in pregnancy' consultant said on Weds. But even so, I've not heard of any of the bigger centres just giving anyone aspirin these days for clotting so deffo query it!

JBrd Fri 24-Jan-14 08:47:32

<<Deep breath>>

Well, I am joining tanny today - it's a BFP for me, too.

I am happy (mainly relieved that I won't have to do SMEP again next month), but mainly feel numb and a bit scared. GP appointment on Monday to get the referrals and drugs going (need heparin and progesterone, and am thinking of starting aspirin, too...).

DH's comment, when I told him, pretty much sums it up: 'Here we go again...' confused

But for now, I am pregnant smile

katieash76 Fri 24-Jan-14 08:50:26

Hi everyone. I had consultant appointment and they were surprised I'd never had any testing before (6 losses) so they took a load of blood from me to test for whole range of things. Also took some from DH. So hopefully may be getting somewhere. No results from erpc testing though unfortunately.

Last weekend I thought I was having a chemical pregnancy but now don't know what's going on! Got faint bfp last fri and sat then bfn Sunday but bfp every day since! Clearblue conception indicator thing still only saying 1-2 though which concerns me. Does anyone know if taking progesterone can delay the inevitable in that if you're going to lose it then it is sustained a bit longer by the progesterone?

Finding it all very stressful at the moment, pregnancy number 8 but only 1DC.

Tanny I hope you get a sticky one!

squizita Fri 24-Jan-14 09:10:26

JBird Woop! smile FX for you.

Katie Sorry to hear of your losses. The ERPC testing- was that not back yet or inconclusive? It can take a couple of months. Do hope the tests provide some answers.
Sorry I don't know much about the pregnancy situation - the strength of urine etc' can vary. Perhaps speak to your GP about 48hr blood tests? For peace of mind? FX for you.

katieash76 Fri 24-Jan-14 09:26:04

Congrats Jbird, my DH pretty much says the same thing every time I show him a bfp!

Thanks for the advice squizita, the erpc results just weren't back despite it being 9 weeks ago and that was the initial point of the appointment!

Tumtimes1 Fri 24-Jan-14 10:47:14

Congratulations Jbrid and Tanny!

squizita Fri 24-Jan-14 11:04:18

Katie mine took about 8 or 9 weeks too. :/ Apparently they sometimes have to grow the cells so it can take ages. Frustrating and worrying. I suppose the best possible outcome to hope for is something "one off" because it gives an answer but isn't going to happen again.

Bruise Watch: today's is the size of a dot made by a chubby felt tip pen. Tiny. Phew.

nearlyreadytopop Fri 24-Jan-14 11:25:58

yay tanny and jbrd lovely news. Join the rest of us with our regular knicker checkinggrin

Notgivingup1 Fri 24-Jan-14 11:36:27

Yay to the BFP tanny and jbrd! I have everything crossed for you both.

katie I would ask your GP for blood tests if you are post ERPC & you are worried. I was getting weird ongoing BFPs after one of mine and they did blood tests one week apart to check that the hormone level was going down. If it doesn't think they send you for a scan to see what's going on.

TinyTear Fri 24-Jan-14 11:56:19

Congrats jbrd as well

DownstairsMixUp Fri 24-Jan-14 13:04:22

Hi Katie and welome, sorry to hear of your losses, six is rather a lot, can't imagine how you must feel. I've no idea in the regards to your question though I do know them conception indicators can be highly inaccurate!

Congrats Tanny and jbrd your so patient waiting to test! Bless your DP, mine didn't overreact either though, he didn't want too get his hopes up at all.

notgivingup i think it is fine to take them, BNF have an onine website you can type in the tablet and it brings up all the info for you though if you want to reassure yourself.

Hows bruise watch squiz?

I spoke too soon the other day. Woke up and felt so sick then was sick, first time so far. Feel bloody awful today, managed to eat some dry toast but I don't know if it will stay down. Seeing midwife next friday, hurrah!

bakingtins Fri 24-Jan-14 13:41:16

Wow - what a morning! Congratulations to tanny and jbrd hope some 2014 positivity rubs off on you both.
katie have you had a negative test since your last miscarriage? Hopefully this is a new pregnancy for you too. If your urine was more dilute on the second test you might get a negative early on so I'd take the subsequent BFPs as a good sign. Step away from the clearblue tests, they will drive you potty.

katieash76 Fri 24-Jan-14 13:54:45

Thanks all for your advice! This is definitely a new pregnancy, got negative tests 4 weeks after my erpc and we started ttc again when we got a positive opk a few weeks ago. My DH keeps telling me to stop testing but I can't help thinking the progesterone will hide if it doesn't progress properly. Have been offered early scans but I tend to dread scans because since my DS nearly 4years ago we never get good news!
Will have to just keep everything crossed and just see how this plays out.

TinyTear Fri 24-Jan-14 14:03:49

Well I am due on this weekend so might test on Monday if nothing happens... but i half not want to be pregnant as it means i can check when I ovulate to sort out the appointment with Professor Q

At the moment the only thing to do if I do get pregnant now is to increase my thyroxine as soon as I get a BFP

FiremanSamsWife Fri 24-Jan-14 14:13:16

Congratulations tanny and Jbrd!

Also to you katie, hope they are all sticky ones x

tannyLoo Fri 24-Jan-14 19:17:15

Thanks everyone!

Feeling very wobbly about the next few weeks, so won't be able to get excited about it just yet.

Having your understanding makes a massive difference...

squizita Fri 24-Jan-14 20:03:22

Tiny best of luck either way!

Tanny wobbly is understandable. We can wobble together, I'm nuts again after brief post scan sanity.

Just spent 10 minutes staring at a pant liner (TMI) trying to work out if cm was cream ... Or white with a bit of dreaded brown. The clue should have been it took 10 minutes of staring at something off-white (TMI 2) on something white. Durrrr.

bakingtins Fri 24-Jan-14 20:47:11

Maybe we need CM colour charts....

One day at a time. Someone said that the days in limbo when you suspect a miscarriage but haven't had it confirmed are in "dog years" each day lasts for seven. I think early pregnancy after MC is the same.

squizita Fri 24-Jan-14 21:29:08

Yep Baking ... Just waiting for (and hoping to reach) the next stage! Taking a day at a time!

TaytoCrisp Fri 24-Jan-14 22:09:46

Hello everyone,

I'm looking for a suitable thread and this seems like a good place.

I found out I was pregnant 2 days ago and can hardly believe it! I am 40 and this is my fourth pregnancy:

2010: beautiful DD arrived after emcs. Our joy.
2011: mc: beautiful DS born at 23 weeks, just below the threshold of viability and died.
2012: mc: tiny baby girl at 14 weeks.

Tests after my first mc showed I have factor v Leiden (thrombophilia) but otherwise all is normal. I was advised to take aspirin and heparin. After the second mc my consultant suggested I should carefully think before trying again. I left it for a few months then got an appointment with st Mary's where they found that I have significant cervical damage following the delivery of dd1. A cervical stitch should help with this..

So here I am. It has taken me one whole year to get the courage to try agsin and I am pregnant straight off ( I know We are incredibly lucky this way).

So the plan is to be as hopeful as possible; get the heparin injections ASAP, then hope we get as far as 14wks to have the stitch. Bated breath until week 24 though...

So congrats and good luck wishes to all the ladies that are pregnant on here. And sending positive fertility thoughts to anyone ttc (dd was a honeymoon baby so conception is my forte!).

I might lurk for a bit or drop in and out (sometimes distraction works very well for me:-)), but am sending positive baby baking thoughts to the thread.

bakingtins Sat 25-Jan-14 07:46:12

Hi Tayto are you from NI by any chance? I had a Uni flatmate from C Antrim who used to import Tayto crisps by the boxful!
I'm sorry to hear about your losses. I hope that this time the combination of treatments works for you. That's 4 of you all with BFPs in the last few days so your anxiety will have good company. We are determined to have lots of thread babies in 2014.

bakingtins Sat 25-Jan-14 07:47:23

And I'll take any positive baby baking thoughts that are going! wink

TaytoCrisp Sat 25-Jan-14 09:25:10

Thanks baking. I'm actually from the south of Ireland- you were not far off. Many congratulations on your pregnancy. Great to be just over half way now!

My friend advised on turning all thoughts to imagine baby "sticking", "burrowing", " attaching", "binding", "affixing" etc! I'm not sure I'd go that far but it cant do to any harm.

4+3 now - such a long way to go...I can't quiet imagine it actually happening. But I am very hopeful..

DownstairsMixUp Sat 25-Jan-14 10:21:56

Hello welcome Tayto these early days do go slowly don't they...

baking that sounds about right. I've managed to calm down a bit about the cm but like squiz every so often I get in a tizz over nothing.

Feel sick again this morning, seems to go on for a few hours, feel better in the afternoon then starts again late at night. It's horrible but I must be mad as I'm enjoying feeling this way as it's giving me some positivity that things might be OK. blush

squizita Sat 25-Jan-14 11:35:20

Welcome Tayto - so glad you got to st Marys and they got to the root of your conditions. Fx for this bean!

Downstairs not having massive sickness, but like you it's a Sicky sandwich of nauseous mornings, day ok, evening queaze.

tannyLoo Sat 25-Jan-14 12:59:58

At 3+2 I'm already experiencing severe nausea, morning and evening and before and after eating. This is earlier and more intense than in all my MCs, and I wonder if taking progesterone has had an influence.

Here's hoping I continue to feel this ill!

kirinm Sat 25-Jan-14 14:19:20

Hi, do you mind if I join?

My history: 1DC (aged 17), 1 ectopic - sept/09, 2x MC both at 6 weeks 2011 and 1 MMC at 11 weeks 2 days ago.

I'm sort of reeling at the moment, can't stop crying but after my ERPC yesterday I has bloods taken and will have some more taken in 6 weeks and be seen in the RMC in 3 months. I have no idea what happens there. Do you have decent experiences?

squizita Sat 25-Jan-14 16:56:25

Hi kirin so sorry to hear your heartbreaking story. It's good news they've referred you. Several of us here have had tests which have diagnosed conditions (or equally ruled things out) and speaking personally I found the process very helpful both physically and mentally. I hope you will too.

TaytoCrisp Sun 26-Jan-14 11:31:39

Hi kirin - so sorry to hear of your dreadful losses. It must be very hard for you right now. Thinking of you x.

Thanks for the welcome ladies.

squizita Sun 26-Jan-14 12:18:35

Hi all - another rather obvious anxiety dream from me grin last night's involved Mr Raj Rai poking my belly once and saying "Oh no you're not pregnant anymore" with no scans, bloods etc. Even in the dream I was like "err how can you tell exactly?". Then I woke up feeling vomitous with no blood in knickers which was immediately reassuring. Think it's because week 7 (today) was when I had one of my losses so it's at the forefront of my mind.

squizita Sun 26-Jan-14 12:31:16

...also made the error of reading several MMC stories before bed yesterday. Need to stay away from them! blush No good for the noggin.

bakingtins Sun 26-Jan-14 17:26:41

Welcome kirin and sorry for the losses you've been through. It's good that you are now getting the ball rolling on testing. It helps to be doing something proactive.

kirinm Sun 26-Jan-14 17:55:31

Thank you for the welcome. I'm still really struggling with my emotions so finding thinking about the future (in a positive light) tricky. I half want to start trying as soon as possible but at the same time think it might be a good idea to wait for the outcome of the tests.

Can anyone tell me what your experience of the RMC is? Is it literally just some blood tests or do they assist you during future (hopefully) pregnancies?

bakingtins Sun 26-Jan-14 20:35:17

I had the standard NHS blood testing done mostly by my GP after paying to see a consultant privately after my 3rd (but not 3 in a row) miscarriage, so by the time I got to RMC unit after a 4th miscarriage they had nothing to offer me except support in a new pregnancy (early scans etc) I went private again for immune testing which got me a diagnosis, and I have to say RMC have been very good in this pregnancy, they scanned me 5 times in first trimester and were very supportive.
You should also be getting a blood test for you partner as they should be checking karyotypes for both of you to make sure neither of you carry any genetic defects you might be passing on. Most of the testing is just blood tests, and they will probably want to do a scan to make sure there are no issues with your ovaries or womb. If you have the opportunity to request testing on any material removed in the ERPC this can be very useful information, if the embryo was normal it's more likely to be an issue with you than the 'bad luck' that is always bandied about. If the embryo had some sort of genetic defect again it's v useful to know if it is a spontaneous mutation arising by chance or something that one of you carries, in which case you'll be offered genetic counselling.
It's worth bearing in mind that only 50% of women get a diagnosis from the standard NHS tests even after 3 consecutive miscarriages. It can be hard to be in the "unknown cause" group, even though statistically you have a better chance of a good outcome in this group. Easier to cope if you are given a reason for the previous miscarriages and an action plan for any future pregnancy, even if that is only improving your chances and no guarantee of success.

squizita Sun 26-Jan-14 21:01:25

I had nhs tests at St Marys, they found a "sticky blood" condition (which they specialise in). They sent care advice to my GP which is now on my record. St Mary's have been very supportive since I got pregnant, they scan me every few weeks and check how my meds are working. They say with the meds every pregnancy has a 65-79% success chance which although high risk is firmly over 50/50 odds.

As Baking says genetic testing is useful - I had a "random" genetic loss and it was reassuring to hear it wasn't a recurring genetic issue, and have closure on that loss. But without the clinic tests, the NHS docs may have assumed my 3 losses were bad luck/random, so having both was so valuable.

TaytoCrisp Sun 26-Jan-14 23:15:23

I have had two mcs but as both occurred in the 2nd trimester I had the usual tests. My consultant identified factor v Leiden (blood clotting disorder) so I took heparin injections during my third pregnancy. This also resulted in a loss. My consultant re-ran the usual tests and found nothing new. Later in the year, wanting to leave no stone unturned I got a private appointment at st Mary's (goodbye savings!). After some discussion they agreed I should have a hysteroscopy which then showed I had significant cervical damage (which occurred when delivering dd). But I am so glad I went for the second opinion, otherwise I would be very likely to have had another late mc( which I dread to even think about).

The point is, I would push for all tests you can get. The miscarriage association website has very good info on all the routine and less routine tests. You could take a look there karim.

I was promised great support after my first mc (23weeks) but ended up really disappointed by the treatment I received in hospital during second mc (14weeks). Im Trying not to dwell on it now though as i just found out I am pregnant (though it's always in the back of my mind).

TaytoCrisp Sun 26-Jan-14 23:19:43

squiz hope you are keeping away from the mmc stories tonight!

I think we ladies on here are well due some lovely rainbow babies ths year! I'm keeping my eyes peeled for inspiring stories :-).

squizita Mon 27-Jan-14 07:41:59

Thanks Tayto, no more bad dreams. Had a mini wobble when I woke up this morning feeling too well but had a poke at the old booboids and a couple of minor nausea waves since then so OK now.

squizita Mon 27-Jan-14 07:42:35 fact I had a rather saucy dream! blush

Ruggle Mon 27-Jan-14 08:06:01

Just read this in today's Daily Mail:

It definitely wasn't the cause of my miscarriages, unless fortified cereals could also be I didn't and don't take any supplements except for vut D as my blood tests showed very low levels (22 when it should be 70).

Purplefrogshoe Mon 27-Jan-14 09:18:55

I just read that too ruggle not great when I have pmt and have to go to work! Thanks daily mail sad

squizita Mon 27-Jan-14 09:33:17

Ruggle I wouldn't worry too much ... the Daily Mail has an actual policy of 'scare stories' regarding women's health which is alarming and downright immoral. They are notorious for it (one minute vitamins cause miscarriage, the next not enough will kill you...).

squizita Mon 27-Jan-14 10:58:59

... actually very angry angry at the DM for reporting this. Just going to cause anxiety. And lots of women don't understand % enough to interpret the risk accurately and will be terrified/guilty if they lose a pregnancy (I can, but have anxiety anyway and I bet I get nightmares and fears now!).

Millysdream Mon 27-Jan-14 14:16:51

I went to my recurrent miscarriage appointment today. They said that because I am pregnant they can't start testing me now , which is what I expected from what you said to me in here. On the upside they scanned me all all is looking well. Am 8 weeks 2 days! Each day counts! Got another scan, midwife appointment and consultation in just over 2 weeks. Going to take it easy till then and try not to let my mind go into over drive. Although I am constantly boob checking. I know there is a few of us on here who are pregnant and am hoping 2014 is our year! Good luck to everyone. 2013 is well and truely gone!

squizita Mon 27-Jan-14 15:43:58

Millys Boob checking! grin I just realised my style of boob checking (cheeky poke to the underside with my knuckle) makes me look like Les Dawson when he's in drag as an old lady. I also mouth "cervical mucus" or "knicker check" when I have to run to the loo when out with DH. All I need in a pinny!!!

Justonemoretime Mon 27-Jan-14 16:19:59

Oh the Daily Fail strikes again. What a rag!
Glad you had a good scan, Millys.
Waves to everyone.

Millysdream Mon 27-Jan-14 17:37:49

Boob checking- I squeeze them together from the sides (creating a fab cleavage). I have done this at work when no one is looking - god forbid I ever get caught. If they don't hurt so much, I just squeeze them harder lol

Justonemoretime Mon 27-Jan-14 18:04:31

Lol, I do a little jump to see if they hurt when they move. Or take the stairs at a pace; if it hurts when they move, I'm satisfied. wink

katieash76 Mon 27-Jan-14 19:38:21

Hi everyone. Looks like I am having miscarriage number 7 at just under 6 weeks. My hospital have done blood tests last week looking for various possible miscarriage reasons (i had a routine appt there) and we will get the results in a few weeks but they didn't seem to think there would be anything else they could do if those tests didn't show any cause. So I'm now looking into how we would go about going private to somewhere like st Mary's, do I just ring them up and say my case? I really don't think 7 losses is down to "bad luck" or my age (nearly 37) and want to try to get some answers asap.

So any advice how I can get seen by st Mary's asap?

Justonemoretime Mon 27-Jan-14 19:50:21

Katie, I'm so sorry to hear this. Get your GP to write to and fax Yash at st Marys, she's the clinic coordinator. it will probably take a couple of months to get an appointment. In the meantime, keep anything you pass in a Tupperware and go to the best EPU near you. Walk in to the clinic at uclh if you can get there. If you have an erpc, make sure you insist on getting genetic tests done on the 'products' (sorry). This will give you lots of info that will be very useful going forward. You are entitled to tests and help, if you're not being offered them, make a fuss. The squeaky wheel gets the oil. Good luck.

DownstairsMixUp Mon 27-Jan-14 19:59:47

squiz grin at the saucy dream! I have them all the time at the moment. I remember it was the same with DS and got progressively more often during later pregnancy to!

ruggle I would ignore that to. DM loves to write scare stories (particuarly on women's health I notice hmm) Some of the things i read on there I really can't even believe it can be passed off for journalism!

Millys I am exactly one day behind you! smile I don't boob check anymore, just the minute I take my bra off and it feels like i've been carrying three stone around all day I realise it's ok. Nausea on and off to so trying to not drive myself crazy till 12 week scan.

squizita Mon 27-Jan-14 20:32:12

Katie sorry to hear about your losses, agree with Just - you're eligible on the NHS so do ask!

Downstairs grin reckon I'm owed some of those dreams after my recent nightmares!

Millysdream Mon 27-Jan-14 21:16:23

Downstairs- my sickness comes and goes. My appetite is off. I tend to be sick if I eat something heavy and full of flavour. Have been eating lots of white bread and mash potato as not fancied much else.

Katie- so sorry to hear about your loss. Sending you lots of love and hugs. Please don't give up. Get as much advise from the ladies on here about hospitals and consultants near you and don't take no for an answer. Easy for me to say as I have only had 3 miscarriages. It is so hard xxx

aMuminwaiting Mon 27-Jan-14 21:41:52

Hi all. I've been on several threads over the years but not for a while. It's been nearly a year and a half since I was pregnant last. I had exploratory surgery at St Marys two weeks ago. I've got a flow up in March and we should get the go ahead to try again. I'm full of conflicting feelings right now. I've had six miscarriages. My first was almost 22 weeks. My last was absolutely trouble free until 16 weeks and then my cervix shortened and funnelled. I had an emergency stitch but it only held for a week. There were complications from losing her through the stitch and it's been a long haul getting to where I am now. I'm prone to UTI's which is something Professor Regan is keen to address. I'm two weeks into a 6 week course of antibiotics for an infection they noticed during surgery. I'm really hopeful but very apprehensive. I'm also feeling very lost as my husband and I leaned heavily on my Aunt and Uncle for support. They understood how we felt and never judged us for struggling with pregnancy announcements and family gatherings. My Uncle died just before Christmas after cancer took him in an extremely fast and viscous way. I miss him so much. He would have been such a major part of our little family. My Aunt is still there but I know I can't expect her to be the same person as she's mourning the loss of the love of her life. In an ideal world there would be no stress when we try again but this is far from reality.

TinyTear Mon 27-Jan-14 21:50:53

Sorry to hear your story aMuminwaiting

Have you heard of TAC (transabdominal cerclage (I think)).

A friend of mine who had to have an emergency stitch at 18 weeks and then be on bedrest till her daughter was born, then had this done for subsequent pregnancies - basically I think they just close the cervix completely and any baby will have to be c-section, but it works...

might be worth investigating...

"An abdominal cerclage, the least common type, is permanent and involves stitching at the very top of the cervix, inside the abdomen. This is usually only done if the cervix is too short to attempt a standard cerclage, or if a vaginal cerclage has failed or is not possible. However, a few doctors (namely Dr. Arthur Haney at the University of Chicago and Dr. George Davis at the University of Medicine and Dentistry of New Jersey) are pushing for the transabdominal cerclage to replace vaginal cerclages, due to perceived better outcomes and more pregnancies carried to term"

bakingtins Mon 27-Jan-14 22:40:12

katie so sorry to hear you are going through another loss. St Mary's accept tertiary referrals (referrals from a consultant in a relevant discipline) from across the UK, or you could go there as a private patient. I second the suggestion to try to get material from this miscarriage tested if you possibly can I had to pee through a sieve for days as it makes a big difference to discover if you are losing healthy embryos because of some problem with you or if they were lost because of genetic defects. I'd also suggest you consider getting tested for NK cells which is not generally available on the NHS, particularly if there is nothing in the tests you've had and the embryo is normal.

muminwaiting welcome to the thread. So heartbreaking to hear what you've been through. I hope St Mary's are now giving you the care you deserve. Also sorry to hear about your Uncle, sometimes it is something quite seperate that suddenly makes it all unbearable. I hope others can offer you the support you need IRL, and we are always here to listen.

milly really pleased it is going well.

TinyTear Tue 28-Jan-14 07:00:54

So... Tested yesterday at 3:20am and seemed negative... But still didn't get AF...
Looked at the test from the bathroom bin today and looked like a faint line

Just took my extra 25mcg thyroxine just in case and will test again tomorrow...

Meep... But it could be just an evap line...

bakingtins Tue 28-Jan-14 07:40:29

fingers crossed, tiny

Hongkong5 Tue 28-Jan-14 08:31:55

Hi, I hope it's ok for me to join this thread. (I've never posted before)

I've had 2 miscarriages, one at 5 weeks (happened yesterday) and one at 6 weeks. I'm feeling bit low wondering if I'll ever get any further than this and not sure whether it is just bad luck or whether I should be trying to get some tests done. I'm 36 and beginning to panic that my age is against me.

I'm so sorry to read about people's losses. Congratulations to those with a bfp and fx crossed they progress well.

aMuminwaiting Tue 28-Jan-14 08:51:58

Sorry this has happened to you again Hongkong5. Most places will only do further testing after three consecutive miscarriages. In my case I had to shout and scream at my GP to get a referral to the recurrent miscarriage clinic after six and even then no appointment came through. When I moved house and changed surgeries they asked me! I got an appointment really quickly then. For the first two I got the 'just bad luck' but the thing is that for many women that is the case otherwise they wouldn't say it. Early miscarriages are usually due to the baby not being genetically able to survive and the body rejecting them as a result. The statistics for miscarriages and the most common are before 12 weeks is one in five pregnancies but my Aunt who is a midwife says it's more like one in three but a lot of women don't even realise they'd been pregnant at that stage. Not something any of us could do because we are all acutely aware of every tiny change in our bodies now! I really hope that for you it is a case of the next pregnancy going smoothly.

St Marys will do the shirodkar stitch tinytear. I've got a consultation in March where Prof Regan will talk me through that in more detail. I'm really hoping it is something that holds my cervix completely closed until I go in for delivery rather than the cerclage I had before which did nothing other than tear my cervix. Anyone on here had the shirodkar?

Hongkong5 Tue 28-Jan-14 09:11:09

Thanks aMuminwaiting. I think I am probably just feeling emotional today and overthinking things, I'm a natural worrier and always assume the worst!

squizita Tue 28-Jan-14 09:17:33

AMum so sorry to hear your story and very sorry about your uncle. Glad St Mary's are sorting you out though.

Tiny FX for you. I had a false AF alarm and (thankfully) took my aspirin just in case - a few days later I got a BFP. smile All sorts of things like pee dilution can change things (I wonder if that's why people get symptoms e.g. sickness at different times too?).

Hongkong Hi, sorry to hear you're going through another tough time. sad The 2nd loss is often the toughest as you're not eligible for tests yet but so fearful - nevertheless the vast majority of women are successful 3rd time, fx that's you. St Mary's do test privately if you feel you cannot wait.

Hongkong5 Tue 28-Jan-14 09:31:25

Thanks squizita. Just feel bit sad today so really appreciate these messages and advice.

squizita Tue 28-Jan-14 10:04:31

Quick question - latest worry from me! About a year before TTC I had slight bleeding on intercourse. Got it checked out by gynies at local hospital, several colcoscopy thingies and bit of lazering/freezing cells: nothing serious, they said it "cervical erosion" (which also comes up as 'ectropian' online) probably caused by hormones after coming off the pill. Interestingly I had similar bleeding after my partial molar recovery (when similarly my hormones were falling).

Should I ask about this at St Mary's? Is it dangerous to pregnancy? My understanding is it's just the skin on the outside of the cervix affected and not its integrity... is that right?

bakingtins Tue 28-Jan-14 10:35:48

Welcome hongkong and sorry you are suffering another loss. I agree with squiz that the second loss is emotionally very tough, as it's hard to swallow the 'bad luck' line again but you are not taken seriously wrt referral for tests etc. The figure normally used for MC is 15% of confirmed pregnancies (where your period is late, so if you include chemical pregnancies it would be a higher figure) so about 2% of women will have 2 in a row purely through bad luck. It's about 1% of couples that will go on to have three in a row and of those they will only find a cause in half the cases that are investigated, which is why three is the cut-off for starting tests. You can go privately to get tests done, you need to weigh up whether you can face trying again or whether you want it investigated now. It costs about £200 to see a consultant privately. I went private after my third miscarriage, but it was not 3 consecutively so I didn't 'qualify' on the NHS, and the consultant advised tests which my GP was then happy to perform. You can normally contact a consultant to discuss a referral, if they would not do anything after 2 MC I'm sure they will tell you that. My situation was a little different as I had 3 losses at 8-10 weeks after having seen a heartbeat, which is unusual.

squiz I'm pretty sure a cervical ectropion is an annoyance and makes you more prone to spotting, but doesn't affect the function of your cervix. Ask at St M's anyway though.

aMuminwaiting Tue 28-Jan-14 10:53:09

Ectropion or erosion is not harmful to a pregnancy in any way. It's the cells of your cervix growing outside the wall. The protrusions are sacks of (tmi coming your way now) mucus and are really tender so can bleed really easily. They're due to hormones so can feel worse when your pregnant or having a period. My GP sent me to the hospital to have mine removed because she thought the added worry of bleeding from that in my next pregnancy would drive me nuts and possibly mask bleeding for another reason. However I do still have spotting and when last examined the doctor could still see the ectropion (so not sure what the consultant removed?!). Anyway. It's an annoyance and very scary to see blood when pregnant so an incredible worry to have on that score but unfortunately the more times you've been pregnant the more chance you are of having it.

Hongkong5 Tue 28-Jan-14 11:11:44

Thanks bakingtins. people seem to recommend St Mary's and I saw that Zita West has a clinic that will see you after 2 miscarriages. At the moment I feel like I need to do something but at the same time it really could just be bad luck and I am overreacting. Having read this thread you realise all the things that can go wrong and I'm so sorry for everyone's losses.

squizita Tue 28-Jan-14 11:19:53

Thanks amum and baking! grin I will ask but it's very reassuring to hear it's just an annoyance not a risk.

kirinm Tue 28-Jan-14 12:25:43

I had surgical management on Friday and the hospital confirmed they'd taken tests from the foetus / placenta (to be honest not entirely sure as wasn't really taking much in). Not sure when I'll get those results back.

Made the mistake of drinking done alcohol yesterday in an attempt to get back to some form of reality and that just ended with hysterical crying for two hours. So thankful for having an incredibly supportive and sensitive boyfriend.

Congratulations on all BFPs. I can't work out how to highlight names as I'm on my phone.

aMuminwaiting Tue 28-Jan-14 12:45:52

So sorry kirinm. There's tons of tests they can do, chromosome testing as well as checking the functions of organs depending on how developed your baby was. I had a whole list of test results for my last baby, including looking at her organs and she was 17 wks. They usually don't bother going into details, you just get 'normal' or a medical explanation of things that aren't right which I normally get my Aunt to decipher for me. Evie's tests all came back normal apart from signs of preeclampsia which was put down to my waters breaking early. It's such a horrible feeling isn't it? You want them to find something that can explain why it happened and something that can be put right next time. Finding nothing leaves you in limbo land. I always feel so empty. Physically, because my baby's gone from my body but also mentally. You invest so much hope that it just leaves you so raw. Glad you've got a supportive boyfriend. My hubby and I were shocked at how both friends, family and the medical profession forget that the baby is not just a woman's. He still gets ignored at the hospital like it's nothing to do with him. OR has to ask if he can come into see consultants when he has just as much right to be there as I do.

bakingtins Tue 28-Jan-14 12:51:10

First trimester miscarriage they are normally testing chromosomes to see if there was any genetic defect. They will also be able to tell what sex the baby was so worth thinking whether you want to know or not. It takes about 6-8 weeks to get the results. They may also look at whether the placenta was normal. It will probably give you some closure to have a reason for the loss, or if the embryo was normal it's a spur to getting something done in terms of pursuing the cause of the miscarriages.

kirinm Tue 28-Jan-14 13:12:10

Muminwaiting - so sorry to hear about your loss. I feel devastated at 11 weeks but by 17 weeks I can't imagine how heartbreaking that just have been.

I have to say my friends and family were really good and acknowledged my BF feelings in this. We did have a great midwife.

Baking - we've decided we'd like to know the sex. I think it will help with some closure. I have to say I was quite impressed that the referral to the RMC was dealt with so quickly. I didn't expect it. I guess I'll have to wait and see if the process is as smooth as they suggested.

Notgivingup1 Tue 28-Jan-14 13:22:22

hongkong so sorry that you are going through this. I did find my 2nd miscarriage difficult to deal with as you are not entitled to testing under the NHS. If it's any comfort I know a few people who've had 2 and went on to be absolutely fine in the next pregnancy with no treatment. Having said that I did do some of the basic tests after my 2nd. As the others have said you would Prob need to pay for those privately. Wishing you all the very best whatever you decide to do.

amuminwaiting so sorry to hear of your losses, I just can't imagine what you've been through. I hope that St Mary's are able to give you the help & support you need. I am a patient there and do find them really good.

Katie I am sure you can go to St Mary's as an NHS patient. The waiting list last year was 3 months which does seem like a long time. You can see Raj Rai or Professor Regan at their private clinic too which of course is much quicker. Their private secretary is Mary Stanton. I can find her email address if you want. If you are doing tests now it's probably best to wait for those results first so that you have those to talk through with them. They will want you to have had a period after your miscarriage before you go anyway. I think the only benefit to going privately is to speed things up as you get all the same tests under the NHS anyway. They don't test for NK cells (either privately or under the NHS)

aMuminwaiting Tue 28-Jan-14 13:58:53

I wonder if any of us see each other there and never realise. I met a lovely young woman when I was waiting on the ward to be shown to a bed. There was a group of six of us all waiting in the hall to go up this narrow flight of stairs and we all looked like we were going for an exam…which we were really but you know what I mean. I know the woman I spoke to was also seeing prof Regan. She was asking about the clexane injections because I've had them in two pregnancies and she was a bit nervous about doing them. Maybe we should have a special look or nod we can give each other!

TinyTear Tue 28-Jan-14 14:04:00

I went to St Marys between February and June/July 2011, did anyone go around then?

squizita Tue 28-Jan-14 15:00:46

I went Sepember-October 2013 and then last week (Weds) in the morning! (I was the one who blubbed before my scan and then came out all relieved).

butterfly86 Tue 28-Jan-14 15:27:16

Hi Ladies wow it's been busy on here sorry I've not been around!

Welcome to all the new ladies but so sorry you all find yourselves here there are some really sad stories sad

Congratulations on all of the bfp's! smile sorry I can't name check as I'm on my phone but I'll catch up when I'm not at work.

I'm feeling really anxious again especially the last few days I'm not having my scan for another couple of weeks but im worrying something is going to be wrong. Im paranoid my uterus isn't as big as it should be I can feel the ridge low down but nothing higher up confused I looked at my notes and last week the midwife wrote =D so I suppose that means its ok but Im. so worked up! Im having acupuncture tonight so hope she can chill me out. Have any of you pregnant ladies had or having the flu jab? The midwife said to have it so I'm booked in for thursday but surprise surprise Im worried about the risks. Sorry I'm a paranoid wreck.

TinyTear Tue 28-Jan-14 15:37:30

butterfly I had the flu jab in my last pregnancy.

it was hilarious, they opened the clinic at 11 so at 10h55 there was a GIANT queue outside the GP of OAPs and 2 pregnant women grin

butterfly86 Tue 28-Jan-14 16:25:48

Lol Tanny smile was that pregnancy successful if you don't mind me asking?

bakingtins Tue 28-Jan-14 16:45:12

Signing off for a few days, ladies - lovely hubby is taking me off for a 'dirty weekend' and Grandma is looking after the boys.
My Dad has had the all clear after his tests, they don't know what is wrong with him but he doesn't have bowel cancer smile
Will catch up soon...

butterfly86 Tue 28-Jan-14 16:48:08

Oooh enjoy Baking smile great news about your dad!

squizita Tue 28-Jan-14 16:50:09

Oh baking what a relief re your dad. Hope whatever it is is quick/straightforward to treat now!
Enjoy your weekend!!

JBrd Tue 28-Jan-14 16:55:24

Fab news, baking! Dirty weekend?! shock grin A lady in your 'condition'? wink Have a great time!

cutie4416 Tue 28-Jan-14 17:33:36

hey there, i have been looking for other woman who have been through what i have been. someone to talk to.
i have been pregnant 11 times i believe now 1 son to show for it. i am pregnant now, only 5 weeks along. all my mcs have been around 7 weeks, they took a very long time to figure out my problem. they have finally. im on tons of different meds to help this pregnancy. praying it does. my son really wants a brother or sister.
i have antiphospholipid anti bodies syndrome.

Notgivingup1 Tue 28-Jan-14 18:47:59

Great news baking and enjoy your long weekend!

squizita Tue 28-Jan-14 19:18:45

Cutie hi. Sorry to hear of all your losses. I've got a similar condition and similar losses in terms of when but only had 3 before I was tested. They have me on meds too - so glad youre now diagnosed! Sending positive vibes for you!

cutie4416 Tue 28-Jan-14 19:35:49

hi wouldlove to be included in your chat. does anyone here have antiphsopholipid antibodies syndrome??

TinyTear Wed 29-Jan-14 06:18:40

Here we go again...

Today I am pregnant...

tannyLoo Wed 29-Jan-14 06:59:03

Tiny I'm really pleased for you. Totally understand how you're feeling. Good luck x

I'm probably out again. Number 5. The lines just aren't getting any stronger after 5 days, so I think it might be a chemical pregnancy. I'll ring EPAC in a bit, although I'm only 4 weeks so they might not see me.

I was so hopeful yesterday.


tannyLoo Wed 29-Jan-14 06:59:04

Tiny I'm really pleased for you. Totally understand how you're feeling. Good luck x

I'm probably out again. Number 5. The lines just aren't getting any stronger after 5 days, so I think it might be a chemical pregnancy. I'll ring EPAC in a bit, although I'm only 4 weeks so they might not see me.

I was so hopeful yesterday.


TinyTear Wed 29-Jan-14 07:03:04

Oh Tanny, sorry to hear that. How are you feeling?
I only tested the once with my DD so never followed lines getting darker.
Try and book a 6w scan

Justonemoretime Wed 29-Jan-14 07:12:54

Hi Cutie, sorry you find yourself here, welcome. You'll find this thread is a really supportive and a great source of info.

Tiny congrats... hope its a sticky one... fx.

Tanny, are you near London? UCLH at Euston have a walk in EPU who are excellent. Good luck.

tannyLoo Wed 29-Jan-14 07:14:23

Thanks Tiny. A bit low tbh. You know it might happen, but when it does, it still feels like a kick in the gut.

Testing is the only way I get any inkling of what is going on, and this fits with my last couple of MCs, where they didn't even get going properly.

Sorry. I really don't want to rain on your parade!

tannyLoo Wed 29-Jan-14 07:26:38

Hi Just. Thanks. I'm near Bath, which is my local EPAC. They know me there now, which helps.

AhBut Wed 29-Jan-14 08:39:31

I've been drawn to this thread after many years if being away from the pain of RM, and hope you don't mind an old hand popping in to say hi, and hopefully to give you some hope.

It is bollocks Tanny, you're right, and I really feel for all of you. Our pain stopped over 12 years ago, with a DS finally, but the pain keeps coming back at times to haunt you!

To give you hope, he was my 10th pregnancy after losses at 22, 19, 14 and a load early on. Plus another early one after him, at which point we decided to call it a day. But I got there - drugs, suture, surgery and months in hospital. And he's wonderful, which I hope will give you all some hope that it can work out. I smiled at references to Raj Rai .... He delivered my son almost 12 years ago! Glad he's still around.

A friend just texted me her 12 weeks scan photo and it hurt, still hurt after all those years! I'm paying the price for all the ERPCs and surgery now with gynae problems, but that's a small price to pay for what we got in the end.

Keep going ladies, if I can do it anyone can! and thanks for letting me listen, it's been cathartic for me!

JBrd Wed 29-Jan-14 08:44:03

Congrats, Tiny, fingers crossed it's a sticky one!

tanny Sorry to hear that things are not going well, but don't give up hope just yet! Can you get blood tests done to check your hcg levels?

aMuminwaiting Wed 29-Jan-14 08:52:59

Thanks for the motivation AhBut, it's really good to know there's hope. You say drugs, suture, surgery. What drugs did they give you? What kind of suture and surgery? Are you ok talking about it? I just want to feel like next time will be the right combination for me I guess. My times were similar to yours; 21+5, 11, 7, 12 (but had stopped going at 8), 5 and 17weeks.

I've had so many people telling me my body has been through hell and I'm going to pay for it long term. But what's the alternative? It's not our fault our bodies don't do what other seem to do as easily as sneezing! Also, my bug bare is (and I'm sure I'm not alone here), people cutting out bits of magazine articles/newspapers or excitedly telling you as soon as you walk in a room that there was some woman on the telly who'd had loads more miscarriages than you and she's got a baby now. I know they're trying to help but it grinds my gears people. I told my Mum last time she plonked a newspaper article on my kitchen counter that I'd waited a long time to see professor Regan and it would be a cold day in hell that I'd stride into her office with a newspaper article and say, "look this woman had 14 miscarriage and then they gave her this drug which I'm sure as a specialist in your field you must have just overlooked, can I have my baby now please?".

AhBut Wed 29-Jan-14 09:38:21

Hi muminwaiting, I agree, there's no alternative and I wouldn't have done anything differently even if they'd warned me. I think I'm just a bit surprised how my current problems have made me relive some of the old emotion.

What I did, and it might not work for everyone, was built a wall around me and put myself in a bit of a bubble. I lost touch with good friends because it was too difficult (kids due on the same day and stuff) .... But we picked up again a few years later and they all understood and we're fine. Their kids are all older than mind, and I've stopped wondering 'what if' and now they help me out with advice as they've been there and done it already! During my successful pregnancy I literally only talked to my mum and 2 girlfriends, one who did all the practical things like buying me clothes, food when I was in hospital etc, and never asked anything emotionally of me. She was amazing!

I get the impression that medically things have really moved on since my time. Lesley Regan was relatively new, and I've never heard of Professor Q. I had a septate uterus with double cervix and vagina, which took a few goes to separate and had to be re-done later too. I have Sjogrens, but no other auto immune problems. My first 22 week loss was an IUD, no real reason found except possibly the uterus which hadn't been corrected by then. My cervix seemed to become incompetent over time and the suture ripped through it when I went into labour with the 19 week baby, normal baby, no reasons found.

With my son I had an IVF cycle, the rationale being to get a load of embryos to analyse to see if there was a pattern with the early losses. No one expected me to actually stay pregnant, but I did, only to be told at 18 weeks that the 12 or so spares that they'd analysed we're all completely abnormal. By then my cervix had started to open and I'd had another stitch, but was faced with a potentially abnormal baby as his was the only embryo they hadn't analysed. We opted just to carry on, rather than risk an amnio, and I had the equivalent of 20 week scans every week to check him out. I took aspirin and clexane throughout, and was on a trial drug to maintain cervix closure. My cervix opened to the stitch at 22 weeks, I survived a DVT at 24 weeks, and I stayed in hospital til he was born at 35 weeks. He had a bed in SCBU waiting for him the whole time, but never needed it! Quite how we got there I don't know, but honestly it really can work.

I think what made the biggest difference to me was feeling like the team at QC were really bothered about me. In my sons pregnancy I could ring whenever I felt awful and they'd just scan me, no questions asked. If you can build that relationship with a team I'd say that would really help. But it's hard to be engaging when you feel like shit and when people are thrusting stories of hope at you isn't it? I always just trusted in my own feelings and tried to block others' opinions out. It's left me with physical scars and emotional ones - I'm the most pessimistic person there is when it comes to my own health. And I've never stopped checking my knickers either - bloody frustrating habit!!

Knowing when to stop is an important question to consider too. After my very last loss I knew my uterus was completely knackered by the look on Mr Margara's face at the HSG, and we didn't want to miss out on DS's early years chasing a dream of a sibling. He loves being an only, it's not what I would have wanted for him, but if you're genuinely happy in life what the hell. I knew when it was time, and that's different for everyone.

I hope that's if some help, am thinking of and feeling for you all.

squizita Wed 29-Jan-14 11:44:26

ahBut thanks for your story. Wow. It really puts things into perspective, as you say how lucky we are nowadays with treatments and very sensitive scans. I'm feeling very blessed indeed that after just 3 losses I was referred and diagnosed. So happy you got your DS eventually. smile

squizita Wed 29-Jan-14 13:02:04

Cutie I have APS, a pretty cut-and-dried case. My tests showed no genetic problems, no problems on a scan with my uterus, no factor V, no Lupus etc. I have anticardiolipin antibodies and high thrombo, making me a classic 'no symptoms except when pregnant' APS case (except they think it might aggravate my bad back from time to time).

I have been given a 65-70% chance of success per pregnancy (or at least at this stage, early days, guess it can go up or down I guess) with clexane and 150mg aspirin daily from week 4. I go to St Marys every 2 or 3 weeks at the moment for scans and check ups.

This site is useful for information and advice:

cutie4416 Wed 29-Jan-14 13:47:44

has anyone had success with taking heparin injections with aspirin?

JBrd Wed 29-Jan-14 13:51:46

ahBut Wow, what a story! Certainly puts things into perspective... I completely agree about it being priceless having a supportive medical team, it makes such a difference.

squiz How are the clexane injections going? I've now also been told to start again, got the leftover syringes from last time out yesterday. I'm sure there will be some nice juicy bruises soon grin.

I've also been told to take 75mg aspirin per day - we will see! Hopefully, my GP can arrange for the referral with the haem consultant really soon, so I can ask if I might need a higher dose.

It's all so wishy-washy! My thrombophilia tests (which was repeated twice) both showed deficiency in protein S, which is implicated in clotting mechanisms, but the results were never clear enough to say 'yes, you have a clotting disorder' or 'no, you don't'.
On the other hand, not sure what else they could do if I had, other than heparin and aspirin...Sigh.

Sorry for the rant. I hate this limbo before 12 weeks! Today, I'm going down the route 'It's all going to go wrong again' sad

squizita Wed 29-Jan-14 14:48:11

Jbird Found that the 'flabby' bits right at the top/side of my thigh seem to produce only small, dark round bruises about the size of a dot from a felt-tip-pen. Much better than my belly! I checked on Youtube and various NHS pages and the upper thigh seems OK to inject for Heparin (anywhere fatty it seems) so I'm going to rotate between there and lower belly. I used to hate those hard to shift wobbly tops but now so relieved that fatty layer's there to inject!

I hate the limbo too. Keep thinking MMC alllll the time even when (as today) nothing is obviously wrong and indeed my symptoms seem 'normal' for my time (nausea, sore boobs, the usual). I wish I had a see-through tum!!

FiremanSamsWife Wed 29-Jan-14 16:32:46

Hi ladies

Congratulations tiny, keeping everything crossed for you xx and congratulations baking, huge relief to hear about your dad!

Sorry I've been a bit quiet, just home now from the ERPC, bleeding more than I thought I would and very woozy but not too sore and tucked up in bed. I've just eaten a whole tub of maltesers.... whoops! They're sending away the products for examination so we'll see what comes back from that. Thanks to everyone who replied with what tk expect, I went in much calmer for all your kind words.

Hope all the knicker checkers are keeping calm and thank you for your story ahbut, positive examples help so much.

Hope anyone worrying about mc or who might be mc ing is ok xx

Justonemoretime Wed 29-Jan-14 17:27:38

ahBut thank you for taking the time to share your story. So good to know that it can all work out in the end. Can I ask, what was the treatment for your Sjogrens? My tests at St Mary's have been all clear, but I have a maternal Aunt with Sjogrens and I wonder whether it's worth mentioning? I have no idea whether it is common in families?

Justonemoretime Wed 29-Jan-14 17:28:14

Glad you're OK and recovering Firemans. You eat as many maltesters as you like. smile

FiremanSamsWife Wed 29-Jan-14 17:38:13

Thanks Just, DH has been sent out for more chocolate already smile

TinyTear Wed 29-Jan-14 18:43:13

un-MN hugs fireman
take your time to recover and remember you are allowed to cry and eat as much choccy as you want

katieash76 Wed 29-Jan-14 19:00:43

Glad firemansam the erpc went ok.

Have been offered a private appointment at st Mary's and I can choose between an appointment with prof regan or with raj rai. Any opinions on who would be better? Also can anyone tell me what they'll go through in the first consultation and where they tend to start with tests?

squizita Wed 29-Jan-14 19:18:31

Take care of yourself Fireman and rest up. thanks

Katie I saw Raj Rai, he is very good. But then again Prof Regan literally 'wrote the book' on miscarriage! Either would be extremely good I'm sure.

aMuminwaiting Wed 29-Jan-14 20:30:51

I see professor Regan and was really nervous because some people had said they found her a bit short with them and switched to Raj Rai. I've found her to be no nonsense and thorough though which is exactly what I want. My first consultation was talking through my history which took quite some time! I took all the paperwork I had on my miscarriages as well as test results. I also told her about things the consultants I'd seen disregarded such as how prone I am to UTIs and that I'd felt I had them shortly before my miscarriages and she told me there and then that I would be coming in for exploratory surgery and keyhole to look at my bladder properly….thus the six weeks antibiotics. I also got offered a last minute cancellation appointment so saw her a month before I thought I would which was great. I had a whole list of questions to ask her but she was so thorough I didn't have anything to ask by the end of the consultation. I saw her end of October and had bloods done afterwards, then a pre-op start of December and in for surgery two weeks ago so it was all quite quick.

Justonemoretime Wed 29-Jan-14 20:54:39

I saw prof Regan. She is no-nonsense, and that's reassuring. She did my op to remove my septum in my uterus and the consultation a month later. When she told me and Dh we had the 'green light' I said, flippantly, that we could DTD that afternoon. Prof Regan looked at us over her glasses and said, totally dead pan, "please do at least try to wait until you get home," wink

squizita Wed 29-Jan-14 20:57:42

Just grin

TinyTear Wed 29-Jan-14 21:05:12

ahaha Just
But honestly, my DD was conceived at lunchtime after my morning appointment with Raj Rai as I had to get back to work that afternoon and only had the morning off


aMuminwaiting Wed 29-Jan-14 21:06:27

:D Well those long stuffy train journeys are dead romantic aren't they?!
Yes she has a dry humour. She's so little. I thought from her book photo she'd be this tall, looming woman. When I first met her she said "ok follow me" and then stormed down the hall and a very young student smiled at me and said "just take a seat in here and she'll be back". It's nice to have someone so confident after years of being told so many conflicting things. Frankly, some of the people I saw in the early days were complete idiots. The worst was the very first consultant who said I must have been in a car accident or something and that's why my baby died! He must have just wandered into the hospitals, I can't imagine how someone so stupid could have passed medical exams!

FiremanSamsWife Wed 29-Jan-14 21:08:25

Has anyone passed any clots after an ERPC? I stupidly didn't think I'd bleed much but I've had fairly heavy bleeding (for me, I'm not going through pads quickly) but I've just passed a fairly large clot. I'm not in any great pain but didn't think I'd get this!

FiremanSamsWife Wed 29-Jan-14 21:09:17

Just and tiny, that made me laugh!

Justonemoretime Wed 29-Jan-14 21:14:05

Firemans it sounds pretty normal but if it carries on for a couple of days, is very painful or starts to smell foul see your GP. Try not to worry. If you're soaking through a pad in less than an hour, call NHS direct or go to a&e. Good luck. I'm sure you're fine.

FiremanSamsWife Wed 29-Jan-14 21:18:31

Thanks Just, naively I didn't think there would be much bleeding at all. Every day is a school day I guess!

aMuminwaiting Wed 29-Jan-14 21:27:11

As long as you're not in a lot of pain and not going through more than a pad an hour you should be fine. Watch out for any fever. I picked up an infection after I had ERPC. If there's anything you're worried about call your surgery or hospital. I used to worry that I was panicking about nothing and getting on the doctors nerves but I don't worry anymore!

aMuminwaiting Wed 29-Jan-14 21:28:23

I need to be quicker typing and not chat to the hubby at the same time so I don't write exactly the same thing!

TaytoCrisp Wed 29-Jan-14 21:47:05

This thread seems very busy! I've lost track after only a few days.

just very funny! I'm with prof. R too, i can just image her say this! I bet she's really funny on a night out with her pals!

aMum you have a really terrible time.. But I really admire your determination to keep going. Great that you are at st Mary's, if anyone can get to the root of things they can. Hoping for good news for you over the coming months.

baking have a fab weekend break!

cutie hope things are going ok and sorry to hear of your many losses. 5 weeks is so early (I'm the same) I wish it could be week 30! I hope you get past the difficult 7 week mark where yourlosses occurred, and maybe you can relax a little bit then. What a strange mixture of hope and anxiety.
Btw - Heparin and aspirin did not work for me last time, but I'm heading in the same direction next week and hoping they will work this time.

tanny what a disappointment... It's not over yet but I guess you need to prepare it to go either way. Thinking of you.

ahbut what a story! I can't believe you had the strength and courage to go through all that. Send some this way - I'm a wreck after 2 mcs and am so scared that one more will finish me off! But what courage and persistence. So glad you have your DS, though I can image that it is still painful for you given all your losses. Thank you for sharing.

jbrd I think you are right - it is so wishy washy, and there is a huge lack of research in this area. If you had a blood clotting disorder, there would be no other intervention - aspirin and heparin seems to be the main/only option. Feeling the same about 12 weeks - we need nice treats to distract ourselves. Fingers crossed for you..

Thinking of you fireman hope you are ok.

katie I'm sure both would be excellent. I'm with prof r and her no nonsense approach suits me. Though occasionally she has been very rushed ( I ave phone consultations due to distance), but she sends fantastic follow-up letter which ensure everything is as clear as it can be. Very best of luck.

squiz hope the bruising is not too bad! I remember going for pedicure on heparin and I had major bruises on my legs (not just in the injection locations). I think the girl though I had been beaten up. I bruise easily but the heaps run just made then much more obvious. If all is well after 6 week scan next week will be joining you for the bruise fest!

Got myself in gear today and informed me go and local consultant that I'm pregnant. I do need to get a grip as I was on the verge of tears informing he gp. My preferred strategy is distraction but then that gets overridden by significant distress at times.. Oh well. I got in touch with a counsellor I saw before - may as well get all the support possible r the weeks/months ahead!! And my consultant was really great and called me back, already making plans to see me next week...

So very happy, very hopeful and very anxious!!

TaytoCrisp Wed 29-Jan-14 21:49:46

Meant to say"informed my gp and local consultant..."

Fingers waning after too much iPad tapping. Must be briefer!

DownstairsMixUp Wed 29-Jan-14 21:50:52

squiz I had an ectropian after I came on Yasmin and it shouldn't effect the pregnancy at all but can cause brown spotting which can be worrying when you are pregnant I agree with everything amum said to, you CAN have it removed if it bothers you but mine did bugger off on it's own. I always used to inject clexane into the lower belly for patient's, some were on it long term though and got fed up of brusing so I'd move to the thigh, a lot said they preferred it there!

Kirnim I am sorry to hear of your loss but it's good they are doing some tests for you. I think a lot of has have turned to alcohol before, the day of my erpc i came home and drunk even though I shouldn't of and it didn't make me feel any better sadly but at the time you think it will. thanks for you.

butterfly tut for panicking to much (not that I can talk) I am meant to have the flu jab due to other medical issues but never get it. blush What does the NHS websie say about it? I usually scroll to the comments from people to see what they say.

Welcome cutie sorry to hear of all your losses. Hope this pregnancy sticks for you.

Tiny I am doing the same attitude as you, one day at a time! Then I tick the calender on my phone to when I turn a new week. Makes it a bit easier having little steps to get to.

Firemansamswife Have they given you some codeine for the pain? If it makes you feel a bit better after i had an erpc the bleeding was the heaveist for 2 - 3 days then it did get a lot more managable. Eat as much chocolate as you want, I think it has medicinal purposes for times like this! I remember the notes saying some clots could be normal, if it carries on though probably best to get it checked out. Hope you are getting plenty of rest.

Sorry if i missed anyone!

I am still pregnant and trying to focus on that. Knicker checking down to a minimum, paranoia slightly up but all in all I am ok!

katieash76 Wed 29-Jan-14 22:04:45

Thanks for all the tips re st Mary's, prof regan sounds like a character! Think I'd quite like a no nonsense approach!

Firemansam, I had clots not long after my erpc and was quite crampy but painkillers I was given by hospital eased that. I also got an infection, I went back to work too soon (secondary teacher) and 3 days later i was rather ill and gp gave me very strong antibiotics and signed me off for few days. Look out for it, though I was led to believe its not that common.

I would definitely recommend chocolate and trash tv! After all my losses (7) I always go for big chunks of Brie!

FiremanSamsWife Wed 29-Jan-14 22:21:17

Ah thanks all, that's put my mind at rest. I'm not actually all that sore, haven't needed painkillers yet. I have a massive pack of pate to chomp through tomorrow, then once I'm on my feet I'm on mission keep fit! Got a pill prescription so I can give myself a few months off knowing I won't get pregnant and I'm going to try to get my podgy unfit body into a better state of health before trying again.

Tay I'm really glad you have everything in place, I'm keeping everything crossed for all you ladies in the early phases, they really are the worst... xx

tannyLoo Thu 30-Jan-14 07:12:48

I'm well jealous of everyone getting treated either at St Marys or by Prof Q. I feel like screaming at my provincial gynae team that just taking aspirin won't make all pregnancies work!

I spoke to one of the nurses at EPAC yesterday, who is lovely (they all are), but the only thing they can offer is to scan me at 6 weeks (I'm currently 4+1). She is right. If it's failing it will continue to, whatever the results of a blood test are.

So I'm going to try to keep going, taking the progesterone and aspirin and all my supplements, and l'm going to try not to test. it only increases my anxiety.

If this one doesn't work out, I'll be asking for a referral to St Marys.

I also had my first free counselling session through work. God knows what he thinks he's taken on. I just sat and blubbed and kept apologising.

Sorry (apologising again) I'm very navel gazey at the moment.

AhBut Thu 30-Jan-14 07:24:56

Just - I don't think there's any treatment for Sjogrens, but I took clexane probably just for good measure! As far as I recall it gives an increased risk of congenital heart problems in the baby, so worth knowing if you're positive for it as they can monitor that via late scans and be prepared.

I'm going to bow out now and wish you all well ladies. Keep strong, believe me, you CAN get there. Believe in yourselves and keep using each others' support - there's nothing quite like someone who really understands. Thanks for letting me share!

TinyTear Thu 30-Jan-14 08:17:14

tanny nothing wrong with not being in London, in fact, if this one doesn't work I will be going to Coventry to see Professor Q...

When are you due? I am also 4w +2 or 3 allegedly due 6th October (and I shall keep saying allegedly until I get scanned)

TinyTear Thu 30-Jan-14 08:18:46

And positive thoughts to all of us going through the first few weeks

I am going to put a post it up on my computer reminding me every morning


(today I am pregnant)

tannyLoo Thu 30-Jan-14 09:53:16

I like that Tiny, I've got a pink post it handy...

My alleged due date (ADD) is 7th Oct. I like the synergy of us both being pg at the same time again. God I hope it works out for both of us this time!

DownstairsMixUp Thu 30-Jan-14 10:01:59

Tanny I'm 7th of september, exactly a month in front! One day at a time!

squizita Thu 30-Jan-14 10:05:42

TIAP and Downstairs our ADD in the same week I think! Fingers firmly crossed.

TinyTear Thu 30-Jan-14 10:43:22

So we have 2 for the 6th/7th September and 2 for the 6th/7th October

Good luck to all of us!!

JBrd Thu 30-Jan-14 10:55:35

Lots of bump buddies - 4+4 here, my ADD is 3rd October smile

Although this should all probably be discussed in the antenatal thread, I'm feeling a bit mean going over all the pg stuff on here confused

TinyTear Thu 30-Jan-14 11:06:33

Shall we create an October antenatal Micarriage group? we did that in June 14 and that is where I met tanny

TinyTear Thu 30-Jan-14 11:09:39
tannyLoo Thu 30-Jan-14 11:10:51

Jbrd it feels far too soon to step out of this safety net.

Although I do feel in a bit of a limbo, not knowing where to take all my paranoid rantings concerns...

tannyLoo Thu 30-Jan-14 11:11:50

Tiny you star! grin

TinyTear Thu 30-Jan-14 11:12:08

I created the Oct one (but Septemberites, feel free to join) as it might be better to be at similar levels... x

squizita Thu 30-Jan-14 11:50:34

Thanks-joined. smile

nearlyreadytopop Thu 30-Jan-14 12:28:50

just checking in, hope everyone is doing ok?
I had my booking appointment this morning and was a nervous wreck. The lovely midwife did a quick hb scan before we started to reassure me. Everything looks good, edd 2nd sept.

TaytoCrisp Thu 30-Jan-14 14:11:58

Great news nearly!

My add is 1 oct, I will check out the antenatal thread too.

SweetPeaPods Thu 30-Jan-14 16:13:27

Hi everyone. This thread was great while ttc ds.
I'm now pg again, just 4wks, but terrified about mc again. I was under rmc clinic last pg but no reason was found for my 3 mcs (2 of them mmcs). Not sure if I'll be able to relax any more in this pg than the last one! I'm hoping to be able to get a reassurance scan around 6-8 weeks. Dr was great last time she scanned me every week.

bakingtins Thu 30-Jan-14 20:45:20

Hi everyone, I'm back. Welcome to newbies, congratulations to tiny , welcome back and congratulations to peapod, and hello to everyone else! A lot has happened in the last few days....
Had a lovely couple of days in Stratford with DH going into lots of shops you couldn't possible take a 3 yr old into, drinking hot chocolate in Costa, bought the contents of Waterstones and stayed in a very posh hotel. smile

TaytoCrisp Fri 31-Jan-14 00:12:05

Welcome back baking, break sounds fab! And now the weekend is here - well planned!

So I'm trying to decide whether to tell my boss that I'm pregnant.. I know it seems ridiculously earlier but...

On the positive side - I can let her know why I need to bunk off next week on an as of yet unconfirmed day for scan and consultation; and why I'll have a number of "hospital apps" in the coming weeks / mths (if all well). She is very empathic, and while I don't know her well enough to call her a friend I am sure she would understand.

On the negative side - it just seems way to early to tell her as only three other people know including DH. And that's 2 more than would usually know at ths very early stage!!! it might seem like over-sharing at this stage...

Justonemoretime Fri 31-Jan-14 07:11:36

Tayto, its a personal decision, of course, but I find it easier to be up front with my work as I'd rather they knew why I was running off all the time to hospital! If your boss is reasonable and nice, I'd be inclined to tell. Good luck with whatever you decide.
Baking, welcome back. Glad you had a nice time.

squizita Fri 31-Jan-14 07:50:26

Tayto I told mine. She knows about my losses so is aware it's "high risk". She was very understanding and said she'd do the official paperwork etc' after week 12 (very positive bless) but I should go to appointments as required.

SweetPeaPods Fri 31-Jan-14 07:55:14

Tayto I told my boss when I was only 5wks with ds. He knew I had previous mcs so he needed to know incase I ended up at hosp again.
Not going to tell them so early this time as I'm still on mat leave so not sure whether to tell them before I go back or when I go back. I'll hopefully be nearly 17 weeks so definitely showing I'd imagine.

Purplefrogshoe Fri 31-Jan-14 09:01:52

Congrats on all the BFP's and hello to all the newbies! I have a question about vitamins, can anyone help? I have always had 31 day cycles but my consultant has put me on vit b complex and high dose vit d (2500) but ever since I've been taking them my cycle one day longer each month, now currently 34 days and no AF!! Is this because of the vib b?

TinyTear Fri 31-Jan-14 10:03:54

I usually tell my boss around 6 weeks ish as because of previous mcs I want him to know...

Tumtimes1 Fri 31-Jan-14 10:38:47

Hey - this is the first time I have told work early, and again it is because I need them to understand that I may have to leave early/work from home and also because I don't want the added stress of sneaking around. She also knows about previous miscarriages.

TaytoCrisp Fri 31-Jan-14 11:56:24

Thanks so much ladies. That has reassured me - I will tell her. It feels like the right thing for me to do this time.

Handsfullandlovingit Fri 31-Jan-14 15:45:43

Hello, I hope you don't mind if I pop in from the posifrikentivity ttc board? I have two dcs under 5 and since have had a mc at 5 weeks and a mmc at 12 weeks and erpc.

whispers I am late. 20 days post ovulation, on day 31 of what is normally at 25 day cycle.

We have been telling ourselves to hold off testing until its obvious, to protect ourselves. Better a late period than an early loss right?

But if I got a bfp and started bleeding say next week, would the NHS class that as a miscarriage? I would have my 3 in the bag you can now have investigations pass.

What would you do? Thank you so much.

TinyTear Fri 31-Jan-14 15:49:57

if you get a good GP yes, they would count it...

My second one was a bit weird as there was hardly any time betwen 1 and 2 so when I had the 3rd my GP refered me straight away. i used to say that one was a half, but she counted it as a proper one and i got my referral

although when i count now, I don't count a chemical i had in March last year but i have 4 ones, so don't need to...

JBrd Fri 31-Jan-14 16:02:19

hands Test, and if you get a BFP, make an appointment with your GP and/or midwife straight away - then you are on the system as being pg, and if (heaven forbid) anything bad happens, you will be down with 3 MCs.
Would be my advice, anyway.

nearlyreadytopop Fri 31-Jan-14 16:12:10

agree with jbrd
Hopefully you won't need the rmc tests but better to have it recorded.

Handsfullandlovingit Fri 31-Jan-14 16:34:09

Thank you so much all. If the GP will recognise this as a loss, it is definitely sensible to test now. DH is really resistant so I will have to give him a big beer and a hug and show him this thread to see if it changes his mind. I wouldn't be forgiven for testing on my own. We will both need a big hug, whatever the outcome! This is a proper head** this ttc after mc.

squizita Fri 31-Jan-14 16:38:21

Hands Yes, one of mine was very early. But the GP knew hence the NHS viewed it as a MC.
...But then again, statistically more likely will be your GP will find out early, so you'll feel a bit more looked after and then 9 months after that you will have a baby! smile Posifrickentivity! FX!

Handsfullandlovingit Fri 31-Jan-14 19:41:04

BFP. Thank you for the wise words. I'm all of a wibble.

bakingtins Fri 31-Jan-14 19:44:34

Congratulations handsfull smile

TinyTear Fri 31-Jan-14 20:42:32

Congrats. Join us in the September October RM thread as well. Link above... Can't copy now

JBrd Fri 31-Jan-14 20:54:49

Handsful YES! I knew it! Fab news!

nearlyreadytopop Fri 31-Jan-14 21:08:35

congrats handssmile

TaytoCrisp Fri 31-Jan-14 21:40:31

Nice one hands. Congratulations! Bring out the rose lemonade!

squizita Sat 01-Feb-14 09:21:09

Hands Congratulations! smile

tannyLoo Sat 01-Feb-14 22:31:44

Handsful come and join us in the limbo that is the gap between ttc and being pg proper. It's lovely news that you got your bfp, I hope you're not too anxious still trying to work out how much is too anxious myself and get through these early days ok.

Purplefrogshoe Sun 02-Feb-14 10:27:33

Hi everyone, congrats hands

I'm really starting to freak out, AF now really late, I thought maybe the vit b complex had made my cycle longer but woke up this morning with really sore boobs and still no AF! Really freaking out that my mole has regrown, I'm due to do a pee test tonight but I won't get the results until Thursday at the earliest sad

Notgivingup1 Sun 02-Feb-14 10:54:59

purple sorry I really don't know about this but wanted to send you hugs. Could you be pregnant? I do know that vitamin b can lengthen your cycle. Hope you get reassuring answers ASAP

squizita Sun 02-Feb-14 10:57:10

Purple after I had reached under 2 on my HCG bloods, I was taking vitamin B and my cycles got longer. I also had awful PMT symptoms. Hope it's that for you! FX. Mine stayed at 0 was all good.

Purplefrogshoe Sun 02-Feb-14 11:20:26

Thanks, don't think I could be pregnant as really careful, I'm puzzled as to why consultant put me on vit b complex as I already have 31 day cycle ! Really hoping its pmt hmm

DownstairsMixUp Sun 02-Feb-14 14:53:19

Congratulations sweetpea on your pregnancy smile

bakingtins I am very jealous of your time away, I do love a Costa's! Sounds like you had a fab time. Will have to get up to Stratford myself one day, it's not too far from where I am originally from so could do it when visiting home!

tayto I have told work (didn't particuarly want to) but kept getting bad sickness and have been off twice. You don't have to tell them till like 15 weeks or something isn't it?

Agree with everyone else handsfull defintely tell so your all on the system. Congrats on the BFP!

I have had terrible sickness, saw the midwife and I'm going to go GP as I've had two days off work now, not good. She's also referred me to go on aspirin as my last sucessful pregnancy i had pre eclampsia. I feel OK. Feelign a bit anxious as it's been a while since I saw the baby. Only thing keeping me happy is feeling sick and tired but still worried about another mmc. Hope everyones ok!

duvetheaven Mon 03-Feb-14 14:19:06

Hi all
Just wondered if there is anything else I should be doing
MMC (2006)
MC - 2007
DD - 2008 - completely uneventful pregnancy : )
I now have a new partner and Oct 2013 MC at 6 weeks and Jan 2014 just had a 'chemical ' pregnancy as I tested early and then had a late pregnancy so there was a conception. I have reported this to the GP so in the event of a 3rd MC I could be referred for tests. I have acupuncture once a month.
Bakingtins - I noted your post about Prof Quenby - I am thinking about this? I am 43 years .
Any ideas welcome for tests or increasing my chances of a pregnancy working out?

duvetheaven Mon 03-Feb-14 14:20:01

line 7 about should be late period not late pregnancy

bakingtins Mon 03-Feb-14 16:08:30

Hi duvet welcome to the thread and sorry for all you've been through. It's worth speaking to the GP now about referral even if you strictly speaking don't meet the NHS criteria, I went private to see a consultant after my third (but not third in a row) MC and GP was then happy to perform many of the tests on the NHS. You can self refer to see Prof Q, but her tests are quite specific for implantation problems (NK cells and poor development of uterine lining) and would normally only be done in women who have had the all clear on the standard testing first.

duvetheaven Mon 03-Feb-14 16:37:37

Thanks bakingtins. I went to the GP recently about a different mater and she could see from my notes the recent two Mc's but gave me the 'well you have had one child so the MC's must be bad luck ' - paraphrasing. When I went to the local EPU back in October she said try baby aspirin but she said that to me without doing any tests. I did try it for recent pregnancy but now perhaps that was a mistake. Hmm, I am not hopeful that I will be given the NHS testing now but it is worth a try? A shame my GP did not suggest that when I saw her last week! Hope 2014 is our year for all on this thread! Thanks again .

katieash76 Mon 03-Feb-14 17:32:11

Hi all, had another erpc today as my miscarriage was not getting going on its own. Second erpc in less than 3 months. Hospital gave us results today from the product testing from the last erpc which showed that all was normal. This implies to me that it is something with me that is causing my 7 losses if the product results are all normal. Last time after erpc we ttc straight away when we could but we're going to leave it this time, at least until after we see prof regan at end of march. My body has been through a lot in last 12 months, natural miscarriage, 2 erpc, and a delivery at over 18 weeks. I need an emotional and physical break.

Sorry for essay, just needed to vent!

Justonemoretime Mon 03-Feb-14 17:40:22

Katie, hope you're recovering is straightforward, and you get some answers soon. Take care of yourself. (Hugs)

bakingtins Mon 03-Feb-14 17:56:49

katie flowers hope your physical recovery is quick. I can't remember if you have had all the standard tests, but this was what prompted me to start down the immune testing route (NHS tests all normal then lost another baby that was tested as perfect)
I hope Prof Regan has some answers for you. A break to recover a bit sounds like a good idea.

Notgivingup1 Mon 03-Feb-14 18:45:40

Katie so sh@! what you have been through. Hope you are able to take some time off work and recover. I think waiting to have some further tests is a good idea although I know that can be a hard decision to make. I did feel much better physically for having the summer 'off' last year. I also felt that I needed a plan for next time. Hugs and let us know how you are

katieash76 Mon 03-Feb-14 19:26:01

Thanks everyone for your support and kind words. No one in real life understands any of this and I do get a lot of "at least you can get pregnant easily" and also "at least you have one child". And while I am SO grateful to have a DS I would so love another one.

After my last erpc I had week off work (i am a secondary teacher) then got an infection and had another couple days off. Mentioned to my DH about going to work for a bit tomorrow and he was less than impressed but think I will probably go back Wednesday. My work are always very understanding but I get guilty and the longer I have off the more work I have to do when I return.

Baking, I've had blood tests on Nhs which we get results for at the end of this month. Going to prof regan because Nhs said after blood tests nothing else they can do if they come back normal so we wanted to book in prof regan in case bloods fine. Also not too impressed with my hospital, today was 3rd time I asked about previous erpc results and only got them because a lovely young doctor took pity on me and rang up to get them. Everyone else has just gone "results probably not back yet".

Justonemoretime Mon 03-Feb-14 19:30:13

Katie I'm a secondary teacher too (because life's not challenging enough) and I was told that school insurance wouldn't cover me for 48 hrs after a general anaesthetic. Put your feet up and maybe plan a few lessons if it takes your mind off things (it can help if you are dwelling) but do take care of yourself and take the time you need to recover.

TaytoCrisp Mon 03-Feb-14 21:21:38

So sorry to hear of all the losses you have experienced recently Katie. But i do agree with just that it would be good to take some time to recover. I think there is a cumulative effect which you may not realise initially.. do try to take a little more time off, and as just says, you can do some planning at home if you need to. Thinking of you xx.

Purplefrogshoe Tue 04-Feb-14 21:44:53

So sorry katie take care of yourself and take the time off you need

Still no AF I am worrying myself sick and sorry for the tmi but I seem to have developed bleeding piles overnight!??! Pee sample sent off but thing it will be Thursday before results sad

Waves to everyone

TinyTear Wed 05-Feb-14 14:43:43

Hello, again agree that you need time to recover...

In my first 3 miscarriages I just went back to work asap...

Last October on number 4 i took 1.5 weeks off to recover... and went for counselling after...

- -

in my news, I am 5+2 and saw my GP today. he gave me the flu jab straight away and sent me for thyroid and random glucose bloods...
my pulse was a bit elevated so I shall go back tomorrow to retake blood pressure and pulse...

and... the best was he actually PHONED the EPU and booked me a scan in 2 weeks when I am 7+2

bakingtins Wed 05-Feb-14 14:47:22

That all sounds v positive Tiny good to have the next scan in the diary.

squizita Wed 05-Feb-14 16:57:27

Katie I'm a HoY and believe me, you need to take the time off. It's an emotionally and mentally draining job - you cannot do it after a tragic time like this. Take care of yourself. In a state you'll be doing yourself no favours and the kids won't be getting the 'best' of you anyway so rest and recuperation is vital.

Quick update: my 8 week scan went OK, everything looks normal. For those of you going through tests, hope this reassures you that once you're 'on the radar' treatments, TLC and monitoring are out there. smile

tannyLoo Wed 05-Feb-14 22:38:10

Sorry to have been absent, Baking. It's nice to be missed!

DogandBeth Thu 06-Feb-14 09:55:57

Hello can I join this thread please? This morning I started my 4th mc. This is my 3rd in 11 months so I hope the doctor will refer me for investigations. Will write more details when feel a bit stronger if that's OK. Just wanted to join the thread so I don't feel so alone

TinyTear Thu 06-Feb-14 10:00:01

i'm so sorry. i also had 3 in a short time back in 2010...
wishing you strength but remember it is allowed to cry x

butterfly86 Thu 06-Feb-14 11:59:04

Morning everyone hope you are all ok smile

I'm going to take a break from mumsnet for a while, it has been an amazing source of support for me and I will pop back I'm just really struggling with feeling anxious that something is going to go wrong I have my 20 week scan next week and Im terrified. I don't think it's helping me to read things on the boards either in miscarriage or pregnancy I just need to try and relax and enjoy my pregnancy (not sure if that's possible!). Wishing all you pregnant ladies all the very best and all the ladies going through the tough times I hope you get some answers and your rainbow babies soon.
I will be back at some point, Butterfly x

tannyLoo Thu 06-Feb-14 12:02:38

Wishing you all the best, butterfly, we'll be here! x

TaytoCrisp Thu 06-Feb-14 12:38:45

DogandBeth Sending you a big hug at this difficult time.

Butterfly thinking of you, very best wishes for you scan. Look forward to hearing you good news in few months! xx

JBrd Thu 06-Feb-14 12:55:57

Dog So sorry that you are in this situation. I had 3 mc in a row last year, it is just awful. Hope you are getting lots of support, look after yourself! You should be getting some tests done now, at least. If you can, try and give the 'product' of your mc to the hospital, so that they can investigate it.

Butterfly All the best, fingers crossed all goes smoothly for you! Sometimes it's good to get some distance.

Katie Yes, try and get a break! It's so hard, having to go through this time after time. Your body might recover, but the mind is a different matter. Do let us know how you get on with Prof Regan.

I'm 5+4 today. No symptoms whatsoever. My belly is covered in spectacular bruises, and I seem to be popping pills all the time, as well as inserting pessaries twice a day... Currently following the head-in-the-sand tactic, trying to ignore that I'm pg to get by. Still waiting for the midwife to get in touch for the booking apt, as well as for the referral to the haematologist. Waiting waiting waiting...

bakingtins Thu 06-Feb-14 18:56:56

dogandbeth I'm so sorry you have had a shitty year. I had 3MC between Sept12-June13 and it is shared to pick yourself up when every time you gather your courage you get slapped down again. I hope the testing process brings you some answers and some hope for the future. Here to support you through it when you need us.

butterfly good luck for your scan next week. We will look forward to an update when you are ready.

Thankyou to all those now on the Sept/Oct thread for popping back. I am a nosy cow do like other how you are all getting on!

I am having a crap week,but for non-pregnancy related reasons. AFAIK baby is doing fine, have 24 wk appt next week. DH has started a new job and I might as well be a single parent, he hasn't made bath time once this week and basically hasn't seen the kids, or much of me, for 4 days. This had better not be the way it's going to be! We thought we had found a rescue dog to replace our beloved pooch who we lost back in September, but he turned out to have massive separation issues and has had to go back. Spent all day steam cleaning the kitchen, sanding down the chewed baby gate, and still have all the carpets to Vax after his escapades. sad

TaytoCrisp Thu 06-Feb-14 22:01:32

JBrd What a soldier you are! I cant complain about a heparin injections when you have through all that. I hope you are getting lots of special treatment!

Baking sounds like you really need a rest this weekend. I hope your DH can take over and give you some time to relax, you will need it. Maybe have a nice take-away to cut down on dinner prep - you deserve it after all that steaming and vaxing! Good luck for the 24 wk appointment; im nervous thinking about that one, but once you get to wk 24, you are at the last lap!

DogandBeth Fri 07-Feb-14 12:33:08

Thanks for your kind words and replies. I don't have much rl support as only 1 person apart from dh knows we are ttc or about the mc so it's nice to be able to post here. Last few times I've just painted a smile on and soldiered on alone but this time dh has managed to get parental leave for a couple of days -(we have 2 dc one of whom has quite severe autism so has rather complex needs) which means I can get a bit of rest while he looks after the dc. Just feel a bit number at the moment.

DogandBeth Fri 07-Feb-14 12:34:13

That should be numb not number. Sorry am posting on phone

willitbe Sat 08-Feb-14 10:08:50

Hi, I hope you don't mind me coming asking the question about stopping med's. I know a few of you from other threads and was not sure where to post the question.

On Monday I will be seeing local hospital consultant to get further prescription for med's, before I go I want to know what different experts advise. Eg Regan/Rai, Quenby etc

The only thing that seems consistent is stopping progesterone at 12--14 weeks. Also aspirin stopping at 34 weeks.

But what about the heparin injections? The only test that turned up positive for me was the test while miscarrying. So do these injections stop at 12 or 34 weeks or another time? Are there different answers from the different experts?

And prednisolone, when does this get tapered / stopped? Is it 12 weeks or later???? I have not been tested for NKCells, have been prescribed on the basis of a positive ANA test.

I am trying to think positive about this pregnancy. I. Have 3 children already, but 12 first trimester miscarriages in between 2007 and 2012. I hope you don't mind me asking about this?

willitbe Sat 08-Feb-14 10:10:17

TEG test positive while micarrying.

squizita Sat 08-Feb-14 10:40:51

Willitbe I am on clexane (heparin) and aspirin - diagnosed at St Mary's with APS (sticky blood) and as local, decided to go with their ante-natal. Was advised before TTC and upon booking in with midwife that my care plan is clexane daily up to 32-34 weeks (consultant will decided). They didn't mention even stopping the aspirin but I guess it would be same time. (Note to self: ask at next visit).
I know with different conditions people take clexane up to different times though. Lucky hmm me I get it until (touch wood) I'm pretty ready to pop! Joking aside it's quite reassuring to know mother nature will get a helping hand until the bun is baked.

tannyLoo Sat 08-Feb-14 11:34:53

It would be on a Saturday, wouldn't it?

Just got a letter from my gynae to say I have high IGM and he wants to test again in 3 months. He doesn't know I'm 5.5 weeks pg now, but dr google says it can be an indicator of all sorts of things.

Should I call on Monday? I'm already bricking it as it's the stage I normally mc, and feeling so helpless sad

tannyLoo Sat 08-Feb-14 12:01:04

Has anyone been put on heparin without a second blood test? Is this a possibility at my stage?

bakingtins Sat 08-Feb-14 14:23:15

willit I was on Prof Q's protocol. Progesterone from day 21 to 12 weeks. Pred from BFP then tapering from 10-12 weeks, stop at 12 weeks.
Clexane from scan showing intrauterine pregnancy at 5 weeks until 12 weeks. I have no clotting issues though, clexane was only to protect the placenta. If there's a ignored clotting issue it would normally be used into third trimester.

bakingtins Sat 08-Feb-14 14:33:49

tanny AFAIK it could indicate that you have APS/clotting disorder. I would think since you are already pregnant they would put you on clexane as a precaution rather than repeating the test. Phone on Monday. I started my clexane at 5+4
Fingers crossed you get some help on Monday. My local pharmacy seem to always have clexane in stock so if they'll fax you a prescription you should be able to get hold of some quickly.

willitbe Sat 08-Feb-14 14:36:43

tannyloo - some places don't start the heparin til 6 weeks, but contacting Monday sounds like a good idea.

Bakingtins - thank you for the information. I think I might have to ring St Mary's and find out what their protocol is for heparin with positive teg test. They were not going to put me on heparin, their recommendation for me was 150mg aspirin only. But local doc said heparin, so now don't know whether I should be stopping at 12 or 34 weeks. It is so confusing when you get conflicting information and advice from so many different docs. I think I need to work out if, despite not having any other clotting disorder tests turn up positive, if the aspirin will be sufficient after 12 weeks?

tannyLoo Sat 08-Feb-14 14:47:47

Thanks Baking and Willit. I really want to do everything I can to make this one work. I feel old and tired and like giving up if this one fails...

bakingtins Sat 08-Feb-14 14:55:11

Ignored = diagnosed clotting issue.

Justonemoretime Sat 08-Feb-14 14:59:46

Hi Willitbe, I was told by st Marys that the treatment for a positive TEG test when pg (following normal when not pg) was treated with 150mg aspirin, no herapin. So sorry for your losses. Good luck.

Tanny, I think you're right to call st Marys or email Yash asap. Hope they get you sorted out asap.

Mid 2ww. Feeling like it will never happen... sad

JBrd Sat 08-Feb-14 15:07:43

Tanny - I started heparin when I got my BFP, and will have to stay on it until the end, increasing the dose after 20 weeks (that's what the haematologist told me last time). Also on aspirin, but only 75mg at the moment. But for me, the heparin is because I had a DVT a couple of years ago, nothing to do with the mcs (but I'm hoping for benefits regardless wink).

Def tell your GP or whoever is looking after your bloods that you are pg, the hormones have a big effect on your blood features.

TaytoCrisp Sat 08-Feb-14 15:21:09

Agree that the guidance is confusing. I do think that because st marys are doing a lot of research in relation to clotting etc that they are a bit ahead so I would follow their guidance if poss.

I'm on heparin since 6 weeks for clotting issues (factor 5 Leiden). I was also on aspirin for last pregnancy and advice from my local consultant. But st marys are saying to wait for the results of the teg test to decide whether aspirin Is recommended. So I'm waiting. I don't think it really makes a huge difference, but of course we need to work out what the best approach is for our own circumstances to Maximise our chances.

Kmm2211 Mon 10-Feb-14 14:32:32

Hi, I've had 3 miscarriages in a year and today was my first appointment after them being changed and cancelled every month since October. I have to say the experience was awful. We were vetted by the consultants assistant before hand and was really emotional during this. At one point it didn't look like we were going to see the consultant at all!
Had bloods both me and my husband today in total 3 and half hours there. Have a beautiful 6 year old daughter but it's really hard.

tannyLoo Mon 10-Feb-14 15:57:26

Hi. I've been prescribed heparin in a last ditch effort to save an unviable pg.

I've looked back through to try and find the advice on injecting but haven't had any luck.

Baking, Squiz, anyone else?
Trying to stay strong but want to curl up in a tight ball...

squizita Mon 10-Feb-14 16:41:05

Tanny fx for you. If they've given you the clexane there must be some hope?
I was shown how to inject back in October for about 1min, so relied on these 2 guides when I actually got pregnant I used these 2 to help me inject:

Thinking of you. thanks

KMM sorry to hear your story. Where are you being tested?

willitbe Mon 10-Feb-14 16:55:41

Just back from my hospital appt. doctor declared that I should start reducing pred immediately as I am 9 weeks now, that without a test for uterine NKcells that pred was not even recommended (I haven't even had the blood tests for it, but she didn't ask if I had had any NKCELLS testing!!!) so she was dictating on her personal opinion only. She said I could stop the progesterone before 12 weeks, stop the heparin at 12 weeks and stop the aspirin at 12 weeks.

I said I had had a positive TEG test, her reply well that is a controversial test, and wrote in my notes that there was "no clinical reason" for continuing the aspirin, but and that I was advised that continuing upto 34 weeks with it was "at own risk". So she did give me a prescription for 75mg daily dose (not the 150mg dose at Mary's recommend) but that was it.

Fortunately my chemist does not not how many weeks I am and previous prescription says pred, progesterone, high dose folic acid and heparin til 12 weeks. So I will be continuing until after my 12 week scan with all the med's. I am ignoring the doctor to stop the pred now, I will do it at 12 weeks.

On a different note has anyone had the "harmony" blood tests, or know where and what cost it is?

willitbe Mon 10-Feb-14 16:58:58

Tannyloo, I just followed the instructions on the packet initially on how to inject, but others here gave advice on, not rubbing afterwards, injecting very slowly, and delaying before removing needle. It all helped avoid bruising.

Glad to hear they are doing all they can for you.

squizita Mon 10-Feb-14 17:16:14

Willit I am encouraged to take aspirin and they don't even bother giving me a prescription (it is so cheap) so if you want to keep taking it, do! Can you request a second opinion? She sounds very opinionated and her idea of 'contraversial' seems very out of date. Even my local ob/gyn overworked docs at my local A&E knew of all the tests and wrote me a note to get me referred for them.
Are you outside a big city? Just wondering as her reaction seems odd.

TinyTear Mon 10-Feb-14 17:37:54

Will it my friend did harmony at the feral medicine clinic in Harley street.
I will do it if I have a bad NT + bloods.

Tumtimes1 Mon 10-Feb-14 19:26:07

Hi Tanny I am sorry to read on the other thread about your scan today. This whole process is extremely upsetting and exhausting on so many levels. I do believe that there is still hope and I have everything crossed for you. Re: the heparin I stick to alternating between the right and left of my stomach. I also rub ice on the area before hand and squeeze the flabbage before injecting. Sometimes it bruises sometimes it doesn't.
Let me know how you get on - I'm thinking of you.

Its interesting to read about the coming off meds discussion. This is one of my biggest thoughts at the moment.
Mr Shehata has me coming off my progesterone at 16 weeks. Dunno why that is. I have been told to stay on aspirin 75mg for the rest of the pregnancy (right up to birth). I am PROBABLY going to be on clexane for majority of pregnancy.
I am not sure when to stop the 5mg of folic acid. Any ideas? Should it be to 12 weeks?
Am also on prednislone and I know I have to ween off at 12 weeks, but is that to ween off BY 12 weeks, or AT 12 weeks.. Its all confusing and being a RM sufferer with no live children its hard to work out whats for the best. I feel like one false move and I could end up making a detrimental mistake.

Tumtimes1 Mon 10-Feb-14 19:26:56

willit my friend got diagnosed the TEGS positive and was told on next pregnancy to take 150mg aspirin and no heparin.

Halfbaked Mon 10-Feb-14 19:33:02

Hi baking directed me here. I'm having my third miscarriage in 10 months.

I have a scan tomorrow, does anyone have any advice about questions I should ask at this point? Am I likely to get tests or will I be referred first?

Also I have not yet passed any "products" if I do before tomorrow appt., should I try to collect it and how? Will they think I'm weird if I turn up with it?

Sorry for all the questions, I'm just trying to get my head around what happens next.

healthyhippo Mon 10-Feb-14 19:57:18

Similar position to you halfbaked, but second in five months.
Scan tomorrow and not passed products yet. Plan to pop them in a small jar in the freezer if they pass tonight. If it's odd, too bad, but if I don't take them they can't have the opportunity to test them.

Think I'll ask for the meds as cant have any more time off work. Will also ask about tests as I'm 37 sad

Tumtimes1 Mon 10-Feb-14 20:07:00

HI Halfbaked I am sorry to read you are going through this.
Personally, if you can manage it - i would try to collect and bring it with you tomorrow, in a clean container (with lid), as this is your third you are fully entitled to testing.
Tomorrow I would ask what their referral protocol is and what they test for. How long referral's take as well. That way you can (depending on where you are based) decide if you are happy with what tests they go through and f you are looking at getting any additional ones (i.e. NK CELLS). Books wise its worth reading Lesley Regan's miscarriage book. She is NHS mainly but I found this book if anything a real comfort and answered many of my questions. Again, sorry to read this is happening and I hope you get some answers soon. x

Tumtimes1 Mon 10-Feb-14 20:07:47

Hi healthyhippo sorry to read this is happening to you too. I fully agree to take along with you if you can manage it. You are entitled to testing. x

tannyLoo Mon 10-Feb-14 20:36:27

Thanks for your messages. Squiz those were both more useful than "the pharmacist will tell you what to do"!

First one done.

Halfbaked Mon 10-Feb-14 22:28:02

Thanks Healthyhippo and Tumtimes useful advice, thanks for the book recommendation too.

thanks to you healthyhippo

It will probably feel a bit more real tomorrow. Previous miscarriages were fast, this is dragging on and I feel strangely detached from what's happened.

bakingtins Mon 10-Feb-14 22:35:12

tanny sorry you didn't get more positive news today. What did the scan actually show? My best plan with the heparin was bag of peas on the skin, stay away from midline, lower down nearer hips was better, stretch out the skin and slide needle under at 45 degrees, inject slowly and allow product to disperse before withdrawing the needle, don't rub, ice the area again afterwards.

halfbaked and hippo glad you came across to join us but sorry for your reasons for being here. We're the club nobody wants to join, but we are all lovely despite that. I collected products from my 4th miscarriage by peeing/passing through a sieve (sorry for TMI) and took products in next morning in a clean container (stole a pot from work but a sandwich box etc would be fine. I wouldn't freeze them unless you've specifically been told to do that, the freeze-thaw can damage cells. I hope you both get some answers from getting products tested.

willit you need to have stopped the pred by end of first trimester or it can interfere with hormone synthesis necessary for sex differentiation, but it's really important to taper down, not just stop. I was told to taper from 10 week scan (from 20mg to 10mg to 5mg a day) and I stopped at 12 weeks. The placenta should have taken over by 12 weeks so you can also stop additional progesterone at that point - I did a few days of one a day using up what I had as it just felt a bit harsh to stop dead. I stopped clexane dead on 12 weeks (but I don't have a clotting issue, if that were the case it's important to continue) and also stopped the high dose folic acid, continuing with pregnancy vitamins that just has the 400mcg in.

kmm welcome. Sorry for your losses and that you didn't have a more positive experience today. I hope something good comes from it in terms of some answers. I had most of the testing done by my GP having seen a consultant privately, by the time I got to the RMC clinic they had nothing to offer me except the information my baby was perfect sad which was a real low point for me. They have been much more helpful in my subsequent pregnancy....

tannyLoo Mon 10-Feb-14 23:00:04

Baking thanks for the injection advice. The scan showed a irregular shaped sac with a possible shadow of something inside. It was about 3x1.5cm.

The pg test was the killer though. No line in three mins and only a really feint one at 5 mins.

Justonemoretime Tue 11-Feb-14 07:24:32

So sorry, Tanny sad

There has been some talk of TEG tests on here recently and maybe someone can answer a question about it. In my increasingly pessimistic mind I am worried that the positive TEG and treatment of 150mg aspirin comes too later for that pg, and would only be effective on the next pg once its a known issue. Rationally, I know hope this is bonkers, but its the impression I'm getting. I haven't been able to get an answer out of St Mary's. Mind you, its academic at the moment in the absence of a bfp... Thanks for any advice.

TinyTear Tue 11-Feb-14 08:39:22

FeTal medicine, not feral! Bloody phone

bakingtins Tue 11-Feb-14 10:49:33

I'm sorry tanny it's shitty to be back in the limbo again. Have you got another scan booked?

Notgivingup1 Tue 11-Feb-14 18:42:12

Hi everyone, sorry for the silence of late. Been trying to sort my head out a bit. healthyhippo and halfbaked I am so sorry that you find yourself here but I hope you find it as supportive as I have done. tanny those limbo scans are awful and just shit. Take good care of yourself and hope you have a follow up booked v soon. Hugs.

Sorry, rant alert - so I've been trying to find out why I've been having these 3 day AFs and short cycles. After my GP basically laughing it off St Mary's did agree to see me and I had a scan which showed that my lining was only 5 mm on day 25 - think it should be over 8. Hence weird AFs. Now back on the possible scarring issues (from ERPCs) even though I was told that was all fine back in Sept. Grrrrrr. So that needs to be investigated again! Apparently it could also be to do with my low BMI (need body fat to produce oestrogen) so told to put on weight which I am sure is good advice as lost quite a bit recently. Then did the day 2-4 hormone tests as a precaution and got the results yesterday - no explanation at all. But from what dr Google says it looks like I could have an ovarian reserve issue. Interesting when I was told in the summer that I fit into the 'super fertile' category as I got pregnant v quickly all 3 times but guess the last time I conceived was 10 months ago so maybe things could change? . So now I am totally confused and freaking out! I've tried to get them to call me to explain the results but no luck...Am I wrong or is it odd to send a patient results with no explanation? I would have thought that the tests would be repeated next month but don't know where to go from here. Totally feel like giving up to be honest. Sorry, rant over.

bakingtins Tue 11-Feb-14 22:23:18

not that sounds really frustrating. It's not great to send results with no explanation. Did you have an AMH test? I had that as part of RMC investigation to check out ovarian reserve, mine was adequate which was about as much as I could expect at 38.
Wouldn't mind the advice to put on weight though! Bring on the wine cake biscuit and let the comfort eating commence!
Hope someone gets back to you with more concrete advice on your results soon.

squizita Wed 12-Feb-14 07:45:06

Not if it's St Mary's that have sent you stuff with no explanation, give them a ring. They will usually be able to contact you (via Yash) with some explanation within about 48 hr because they clincians meet very regularly.

Halfbaked Wed 12-Feb-14 08:43:52

Yesterday was a bit of an emotional roller coaster.

I had the scan and saw an embryo measuring about 5weeks, well protected, Dr asked if I could have got my dates wrong, would be 7weeks. Glimmer of hope, but blood tests showed I have less than 1 of progesterone should be 40. Still having a blood test in 48 hours to check hcg level.

happyhippo you mentioned drugs, can I ask for something to speed up the process?

Like many others on this thread I'm a teacher, and finding having this time off really tough at this time of year. I'd rather be in work keeping busy, but feel a bit like a ticking bomb waiting to fully miscarry. I guess I'd rather that happens at home.

bakingtins Wed 12-Feb-14 08:55:32

halfbaked thinking of you, the limbo stage is so tough. If it's confirmed as a miscarriage then you can ask to have medical management, which involves having prostaglandins as oral tablets and vaginal pessaries to open the cervix and make the womb contract. If you are already bleeding they just give you the pessaries to insert, twice at 24 hour intervals. You'd probably need to stay in hospital for a few hours after the first one just to make sure no adverse reactions, I was given the second dose to do myself at home.
I know it must be hard being off work, teachers in particular always seem to struggle with feeling they are letting their pupils down, but you really need to make your physical and emotional health number one priority at the moment and take any time you need.

tannyLoo Wed 12-Feb-14 09:10:34

Ffs. Just got a babycentre email about my baby at 23 weeks.

TinyTear Wed 12-Feb-14 10:01:12

bastards! i now stopped joining anything until i get a confirmed scan...

bakingtins Wed 12-Feb-14 11:25:41

Sorry tanny you don't need those kicks in the teeth right now.

squizita Wed 12-Feb-14 12:09:29

Tannysorry to hear. sad

Halfbaked I couldn't handle the limbo, especially not at work with kids everywhere. I did as Baking mentioned and asked for treatment (in my case ERPC). Don't feel guilty about time off: if you're at work sad and frightened, that's no good for you or the kids. Better to take the time you need and recover. x

Notgivingup1 Wed 12-Feb-14 12:37:44

halfbaked so utterly rubbish and I agree with what the others have said. I get that guilt thing about work so much - I went back far too quickly after my first one and it ended up carrying on for ages. You just have to look after yourself - that's an order!

Thanks baking and squiz. Bit disappointed with St Mary's to be honest but I suppose 3 days is nothing to them & they'll get back to me at some point. They didn't do AMH which I also find odd as I thought that was the better test these days as FSH can be quite inaccurate for various reasons. I think I'll ask my GP to do it. baking did you do it through your GP at the time? Meanwhile stuffing my face with nuts and cake...all in a good cause!

bakingtins Wed 12-Feb-14 14:59:23

No, it was done by the private consultant, she said the GP wouldn't fund it. No harm is asking though.
If they won't, it's quite straightforward to get it done privately by BUPA/Spire etc.

bakingtins Fri 14-Feb-14 07:59:05

tanny how are you doing?

halfbaked hope your bloods today bring clarity. Hand-holding for an anxious wait for results.

not did you get any sense out of your clinic?

TinyTear Fri 14-Feb-14 08:36:58

Got a call from my GP yesterday and it seems I have been taking too much thyroxine as i was a bit hyper so reducing dose again...

let's see how it goes... 4 days until the scan


tannyLoo Fri 14-Feb-14 13:44:09

I'm off work, as they have increased my workload and I couldn't cope and was crying all over the place.

Physically I'm fine. Not many symptoms at all and sleeping well. No bleeding yet. I have hated doing the heparin injections but am a bit chuffed (weird how I can still be) as I've only got one small bruise so far.

Emotionally I'm a wreck. I am sure this pg is going to end soon and yet there are moments of hopefulness that it could be ok. I'm also incredibly angry at every one and thing around me.

TinyTear Fri 14-Feb-14 13:56:50

oh tanny I remember those feelings of anger and honestly I am bracing myself for them come tuesday after my scan...

I think as i didn't expect to get pregnant in January i am not sure I am mentally prepared...

and the terrible twos make me wonder if I reeeeally want another

tannyLoo Fri 14-Feb-14 14:04:01

Tiny ha ha. I can empathise with that one!

JBrd Fri 14-Feb-14 14:04:53

tanny <<sending hugs>> Stay at home, have a cuppa and hide under a blanket! You poor thing. I get the anger, I have never experienced such rage as when things were going wrong. When will you get another scan? Are you bleeding at all?
It is such a shit situation to be in sad

tannyLoo Fri 14-Feb-14 14:05:29

Will keep everything crossed for you for Tuesday. We can't both be out again! x

TinyTear Fri 14-Feb-14 14:15:57

Thanks Tanny
I will keep everyone posted and I hope you are not out either! xx

Notgivingup1 Fri 14-Feb-14 15:34:22

Thanks for checking in Baking. Finally heard back from them last night. It seems the results are fine. Good in fact. So that teaches me not to use Dr Google. I am going to leave it at that for now as don't really need the stress of more tests and just carry on eating cake! It has been a bit of a wake up call to the extent of my underlying anxiety- need to find a way to take a step back. I still think they should have just told me that it was fine when they sent me the results!

Hope everyone else is doing ok. purple was thinking of you and wondered how you got on with your latest test results. Know you were worried because of no AF.

tiny glad they are looking after you and being proactive.

bakingtins Fri 14-Feb-14 16:01:57

That's good news. They could have told you that in the first place and saved you the anxiety though. Enjoy your cake

Notgivingup1 Fri 14-Feb-14 18:46:11

tanny so sorry our posts must have crossed. Didn't want you to think I was being utterly selfish. Glad you are off work - you need that space. So get the rage thing too - the injustice of it just makes you so ANGRY. Get under a blanket, hide from this awful weather and look after yourself. You can rant & rave here all you like

butterfly86 Sat 15-Feb-14 07:38:27

Morning ladies I know I wasn't gone long but I wanted to give you an update everything went fine at 20 week scan yesterday, it was such a weight off my mind I've been unbelievably anxious this week I've been horrendous to live with! And we found out we are team pink smile

Hope everyone is ok

TinyTear Sat 15-Feb-14 08:21:59

hooray! great news Butterfly

Purplefrogshoes Sat 15-Feb-14 09:42:57

tanny the limbo is awful! Fx for you

tinytear good luck

butterfly yay and yay for team pink grin

not good news but they should have told you instead of leaving you to worry angry

My hcg finally came back as non detectable! AF finally showed up on day 41 and was really short, goodness nows what's going on, all my tests so far have come back fine confused

Hope everyone is doing ok brew cake thanks

DogandBeth Sat 15-Feb-14 10:29:39

Hi all, haven't posted for a few days but have been thinking of you all. So sorry to hear those of you who are going through it, I was there too a week ago x
I have an appointment with the gp on Monday to talk about the miscarriages and what happens next re testing etc. As this is my first appointment about this, I wondered if any of you who are further down this road than me had any tips, what I should do or ask or anything ? I am a bit nervous about it- I haven't met this gp before although she seems nice enough on the phone but I've had a few bad experiences with HCPs recently over care for D's so I'm a bit wary these days.
I stopped bleeding on Wednesday but don't appear to have passed any 'products'so I don't have anything like that to taken hopefully its not still inside of me!
Anyway, any advice gratefully received
Thanks d and b x

DogandBeth Sat 15-Feb-14 10:30:39

That should say ds not D's

Mammanat222 Sat 15-Feb-14 11:11:44

I'm a newbie - both to the forum and this chat.

I am a recurrent miscarriage sufferer. We had 3 losses one after another in 2011 (8w, 5w and 6w) within the space of 8 months. All natural.

We had all of our tests and they came back as clear - as we were advised they would. "70% of RM remains unexplained" was the figure we were offered when we went for testing. My scans were clear as well.

We had one successful pregnancy and I have since had a 4th loss (again early and natural - 6w)

We're currently waiting to try again and I am scared. I know I have a child and I should be thankful believe me I am incredibly thankful I just worry that we've used up all of our luck.


bakingtins Sun 16-Feb-14 18:18:36

butterfly wonderful news, hope that has allowed you to relax a bit.

purple glad to hear AF showed up and your HCG is back to normal. Hope your cycle is more settled from now on. Are you free to TTC or do you have to be monitored further?

dogandbeth I'd be pushing for referral to your local RMC clinic, sometimes attached to EPU, sometimes part of the gynae services at the hospital. You need some follow up to ensure the recent MC is complete, either a scan or a negative HPT. Prob worth testing before your appointment, if it is still positive they should arrange follow up for you. It wouldn't be a surprise if it's still positive at this stage, but if it is they need a plan to monitor levels (might be as simple as retesting in another week) I've only recognised 'products' in one of my four MC, and then only because I was catching stuff in a sieve sad Just because you didn't see anything doesn't mean they are still inside.

mamman welcome! Sorry to hear about your losses. You don't need to apologise for your child, several of us have children we are hugely grateful for, it doesn't make the losses hurt any less. I was in the same 'unexplained' category after standard testing but have been found to have high NK cells and am 24 weeks pregnant after appropriate treatment. 4 miscarriages was too many for me to accept the 'unlucky' verdict. Did you have treatment in your successful pregnancy?

Halfbaked Sun 16-Feb-14 20:11:58

Hi dogandbeth I'm in a similar position to you. thanks
I had my 3rd miscarriage last week, I didn't think I'd passed anything, they said its likely that my body will re absorb anything that's left. I was advised by the EPAU to do a pregnancy test in 2 weeks, my HCG levels were going down according to the blood tests.

I've got a GP appointment this week to ask to be referred to the recurrent miscarriage clinic, which is held in the EPAU but they couldn't refer me!?! They (EPAU) said it would be a 4week wait, a quick search showed it's more likely to be 9weeks. What are other peoples experiences?

I think because I'm 38 and DH is 44 we fall into the most likely to be bad luck category, but I'm willing to have tests. I know that realistically I'm not that old, but it does feel like time is slipping away. Did most people stop TTC and wait for test results or just carry on?

DogandBeth Sun 16-Feb-14 22:00:15

Thanks for that baking tins will try and get a referral, and thanks for the advice re 'products' that's really reassuring. I got a negative test earlier in the week so I'm pretty sure the mc is complete.
Hi halfbaked, sorry for your losses too xx I'm the same age as you, and my dh is a similar age to yours- know what you mean about time slipping away. Was also wondering about whether to carry on ttc whilst waiting or not. Was thinking I would try this month as I believe that you can be quite fertile after an mc ( could be wrong but I think a midwife told me that.) Although not sure if I could handle an mc 2 months in a row, but guess I should be more positive. Will let you know how I get on tomorrow and I hope your appointment goes well this week.
Hi mamannat222 sorry for your losses too. It is scary to ttc again isn't it x

bakingtins Mon 17-Feb-14 07:15:30

It's a personal decision but we took a break from TTC whilst tests were done, but we went private to see consultant so got ball rolling quite quickly. For the NK tests you had to be not pregnant anyway as it involved a uterine biopsy, and results were only a month. The test that takes ages is karyotyping for both parents, worth asking if GP can get this one underway whilst you wait for referral?
They find something in about 50% of cases, worth thinking about how you feel if they find something and you are pregnant and untreated in the meantime vs how you'd feel if you are 'unexplained' a few months down the line and have waited.

donttrythisathome Mon 17-Feb-14 21:22:40

Hello everyone. I'm a former poster here and an occasional lurker.

I just wanted to update with some positive news. I am 12+2 weeks pregnant today, and fingers crossed things are looking well, though still awaiting results of combined screening.

I have stayed away from the thread as I really needed to just focus energy inwards and not imagine the worst. I am still not excited, but feeling more relaxed every day. No-one IRL knows yet. I will tell once I have the capacity for excitement.

For those who don't know my history, in case it helps, I have one DD, had 3 mcs over the space of a year. Did the usual RMC testing which was all negative. Third mc was karotyped, and was a chromosomal fault.

Then tested for NK cells at Mr. Shehata's clinic in Epsom. This was on the NHS, my GP referred me when asked to.

The results were normal level of NK cells, but abnormally high activity from them. So, I started on prednisone (steroids) for the second half of cycle, continue on prednisone and add progesterone once pregnant.

I completely empathise with everyone in here, I have gone through all the emotions. It is horrible.

I am delighted to see so many pregnancies and action on the RMC testing. The advice on here is brilliant and I would jot be where I am I think without it.

Good luck everyone. Still keeping the energy within so probably won't post for a while but sending some of the good energy your way!!

tannyLoo Mon 17-Feb-14 22:11:04

Well it's finally here. MC number 5. Spotting and pain a week after barely there pg test result and inconclusive scan.
Shitbuckets. sad

Purplefrogshoes Tue 18-Feb-14 00:16:51

Not to TTC till end of march, hopefully all my tests should be done by then! Hope you are doing well baking

Great news donttry

tanny I'm so very sorry sad awful news, sending hugs

mamman dogandbeth halfbaked I'm so sorry for your losses

bakingtins Tue 18-Feb-14 07:43:58

donttry that is such wonderful news! Congratulations! I'm so thrilled for you.

tanny that is indeed shitbuckets and I am so sorry. Sending you a massive hug, a family size bar of dairy milk and a large bottle of wine to commiserate.

That says all there is to say about the RMC journey, doesn't it. Such a roller coaster of emotions, sometimes all in one post. None of us deserve to have been through such a load of crap as we have, every single one of us deserves their happy ending. I wish I had remained in total innocence of what it's like to repeatedly lose pregnancies, but I am very grateful for the wonderful support I've had along the way.

TinyTear Tue 18-Feb-14 08:04:32

oh tanny so sorry for you...

I have my scan in a couple of hours... should be 7+2 but fuck knows what will happen... this will either me chid 2 or mc 5

JBrd Tue 18-Feb-14 08:29:37

Tanny So so sorry you have to go through this again. It's just brutal what life throws at you sometimes. Hope that you have lots of support, look after yourself.

Donttry That is wonderful news, so glad that you could get the support that was necessary.

Tiny Good luck for today!

I have a scan on Saturday - and am not very positive at the moment... Still brown spotting, thankfully no more blood since that one episode yesterday (which means I've probably jinxed it now), I am so so scared. All my mcs started with brown spotting, so I'm currently thinking why should this be any different. The only thing that is different from last time is that I'm on progesterone, and I'm not entirely convinced that this is the answer to everything...

Notgivingup1 Tue 18-Feb-14 09:44:03

tanny it's total shit and I am so sorry. It's just not right that we've had to go through so much heartache. Hope you are being well looked after.

jbrd and tiny I am keeping everything crossed for your scans. In my last pregnancy I seriously asked my DH if there was a way I could be knocked out for scans - know that dread so well but I am wishing that for you it will be happy news this time.

butterfly and donttry thank you for making me smile that's really lovely news and we need to hear that!

To all of you going for testing - do push for the care you deserve. I think there are still so many doctors out there who just don't know anything about this so they should be referring you to the specialists.

purple that must be a huge relief.

TinyTear Tue 18-Feb-14 09:58:05

Heartbeat seen and measuring 6 and half weeks she said.

Will be scanned again in a couple of weeks. Still not in the clear but further than I've been with the other miscarriages.

Don't want to get my hopes up.

bakingtins Tue 18-Feb-14 10:00:49

Tiny that's great! grin Hang in there until the next one...

tannyLoo Tue 18-Feb-14 10:17:22

Tiny made me cry. So pleased it went well.

TinyTear Tue 18-Feb-14 10:59:49

Thanks all... xx

Tumtimes1 Tue 18-Feb-14 17:42:05

Hey all - just checking in as haven't been on here for a bit. I am now at 10 weeks pregnant which is the furthest I have ever been in my life. I am definitely not out of the woods yet and worry myself silly constantly.
But I would just like to say that I agree with notgivingup to definitely embark on pushing for the care you deserve. I have spent a long long time convincing apparent specialists to offer me tests that I have seen others on these threads have been given. To also be referred to different care not readily available so easily.
I also want to say what a huge support this thread is and the fact that we have all been through our own heartache is in itself a comfort that we understand what each other is going through wherever we are in our stage of journey. As "baking" says, each and everyone of us fully deserves to get there in the end.

DogandBeth Wed 19-Feb-14 10:41:05

Thanks for the advice, baking. Doctor is going to refer me to hospital for testing, so need to wait for an appointment now. Shes going to see if she can get the blood tests done through the gp surgery to speed things up a bit.I have been thinking about it and I think its probably best if we stop ttc for now especially as we have the added complication of Ds being genetically tested and have just found out theres something funny showing up in his DNA but they don't know what so he's being referred to a genetics specialist. So worried for him- and the possible implications for the future...hope to know more when we've seen the paediatrician next week.

Tanny I'm so sorry for your loss x

Notgivingup1 Wed 19-Feb-14 17:21:43

dogandbeth that must be worrying about your DS. Hope you get some good guidance from the doctors. Maybe some time out is a good idea with everything going on but it is such a personal decision. We took some time out while tests were being done as I just needed that time to get in a better frame of mind.

tannyLoo Wed 19-Feb-14 21:44:06

I've had a bit of a day of it. I'm trying to keep going, and have an appointment for a scan and to see a consultant tomorrow.

I wonder if anyone diagnosed with clotting or APS type issues had problems with light bleeding when they miscarried, or found out that their endometrium was affected. In my last 3 MCs I've only bled for 3 days, and then only lightly. This is despite having normal healthy flows normally.

Any similar experiences anyone?

Thanks for your ongoing support. In the depths of all this I am finding the strength to keep going x

bakingtins Thu 20-Feb-14 07:03:38

Glad you have got the ball rolling beth and hope you get good news about your son next week, it must be an anxious wait.

tanny thanks for updating, have been thinking of you. Light flow has not been my problem confused but it strikes me you've had a lot of losses one after the other so maybe your endometrium is thin at the moment. Can you ask for a mid cycle scan to measure thickness? Or even better go see prof Q and get an endometrial biopsy done. I think there has been some discussion on the pred thread on conception about supplements to build up lining but can't remember details, might be worth posting there too. Hope you get the help you need today.

TinyTear Thu 20-Feb-14 08:31:03

Tanny i second what baking said.
We also decided if I miscarry again we will book to see Prof Q for further testing...

Justonemoretime Thu 20-Feb-14 08:49:42

Morning. Sorry I've been quiet for a few days. Sorry you're going through it again, Tanny. sad
I don't know about light flow during mc (I've always had mmcs and then ERPCS with all the bleeding associated with that). I do have light AFs though. This one in particular has been 2 days 'normal' followed by another 4 days of very light spotting. I have been put on HRT twice over the years and the boost in oestrogen always leads to a much heavier AF. If anyone knows a way to boost AF with non-medication means, I would be interested to know.
I have been feeling quite down since the latest BFN and AF and have finally decided to seek some therapy to come to terms with some of the negative feelings (8 bereavements in 3 years including relatives, babies and pets have given me a rather negative outlook). DH and I have also decided to give ttc a break this month and see Prof Q, then enjoy the holiday at the start of April knowing I am not PG and then see how things go from there.
Waves to all.

Lancashire21 Fri 21-Feb-14 14:11:23

Hello all. Haven't posted for a while. Been quite fed up. Thinking of everyone who has been having a horrendous time over the last few weeks - you're never alone. I echo what has been said about pushing and pushing for tests. x

Notgivingup1 Fri 21-Feb-14 17:20:42

Seems like a bit of spring has arrived today which must be a good sign! Just recovering from horrendous flu so for once v much hoping I don't get a BFP next week as I am sure my body hasn't been a great environment. Nice to hear from you lancashire and just sorry to hear that things are difficult. just I wrote a long reply to your post but it wiped so here goes again...I've been looking into light AFs - seems that mine are caused by a thin lining. I am sure it has something to do with all the ERPCs I've had though - got a hysteroscopy (spelling?) booked in May - Raj Rai wanted to give me some time to put some weight on as that can also effect having a decent lining. Anyway in the meantime I've had a read around about natural ways to improve your lining and this cycle I've tried: one glass of pure pomegranate juice a day (pretty gross), one cup of raspberry leaf tea a day, vitamin e and vitamin c - did this until ovulation and then stopped. I'll let you know how I get on when I get my AF next week! Brazil nuts and pineapple core are also meant to help. There are supplements you can take but the above is about as far as I wanted to go with self medication for now. Sounds like a good idea to go for some counselling as you've had to deal with so much and it's absolutely not surprising that you are feeling sad - I've tried it once a long time ago and found it very helpful. Also going to see Prof Q but going to have to wait until May as we are away over the next two months during the times I would need to go. Let us know how you get on...
Hi to everyone else xx

Justonemoretime Fri 21-Feb-14 19:13:48

Thanks Not, good info. I have some raspberry leaf tea so will give that a go. I quite like it smile . When you have your hysteroscopy, be aware you will be on the ward in a gown all day and your OH will be sent to wander the streets all day. That's how they roll at St Mary's, no partners on the ward! Good luck with it, and enjoy some yummy treats in the mean time. smile xx

bakingtins Fri 21-Feb-14 19:54:28

Waves at lancashire nice to hear from you. Sorry you are having a tough time at the moment.

tanny how are you today?

I'm thinking of emailing Prof Q and asking to be put on commission! Hope she is able to help many of you.

Notgivingup1 Fri 21-Feb-14 20:07:15

Ha ha, yes she should be employing you as her chief rep baking!

tannyLoo Sat 22-Feb-14 17:13:06

Hi Baking, I seem to have slipped back a couple of days. I didn't see the consultant on Thursday as he was busy elsewhere, so I left there feeling a bit let down and empty. I went to see my GP yesterday to get a sick note and he wrote to the consultant whilst I was there to ask about a plan of action. I could have kissed him!

I thought this was another light bleed miscarriage a couple of days ago, but it's not gone away, and today has got heavier again. Stupidly I threw myself into making a necklace (I'm a silversmith in my spare time) and ended up having to come back to bed feeling like I've been run over again.

I guess I just need to take it easy for now, and hope I hear from the gynae consultant soon.

I'm doing lots of crying, and drinking of sugary tea...

Tumtimes1 Sun 23-Feb-14 13:07:43

Hi Tanny - I think you're right, taking it easy is the best plan right now if you can. Sometimes with my previous MC's its gone heavy/light etc over a few days. When I think I am at the end, I find that I am not which is upsetting and exhausting so I really do feel for you.
That was great of your GP to be proactive and get that ball rolling for you. It's that type of initiative that really helps.

bakingtins Sun 23-Feb-14 19:05:13

Tanny glad to hear your GP is being supportive. Hope you are managing to take your own advice and take it easy. IME there's a cumulative effect of losses and at some point you need to stop trying to be positive and move forward and just wallow and be looked after. Plenty of time for positivity a bit further down the road.

Hi ladies

Haven't read back on this thread but do you mind if I join?
I had 3 chemical mcs nov/dec/jan, had February off and due to ov this coming week.
I have a beautiful 2 1/2 yo ds who I absolutely adore.
I'm so scared about the next few weeks and it all happening again.

I have a recurrent mc clinic appt tomorrow afternoon and I don't really know what to expect apart from blood tests etc.
I had a scan after my last CP and the nurse was absolutely fabulous and she said the consultant was brilliant.
I'm just writing down questions to ask at the moment.
Can anyone shed any light on what goes on at the appt? I'm in the uk, not sure if that matters.

So sorry for all of your losses, it just absolutely is the worst thing ever.

Btw my appt is with prof Quenby at university hospital Coventry, apparently that's a good thing!

bakingtins Sun 23-Feb-14 21:54:56

prof Q is great, I saw her privately for NK testing after my 4th MC, she's really down to earth but also v positive. I would think you'll have the standard tests first (blood tests and poss a scan , though sounds like you've done this already) but she's at the cutting edge of research and does work on immune problems and inadequate endometrial growth. I don't know whether you can have the tests on the NHS if you've been referred to her, at moment not covered in the nice guidelines as it's all new, but worth asking and not ridiculously expensive privately (£350) if the standard tests don't give you an answer. Good luck!

That's good to know baking. Coventry is my nearest big hospital (we have a local one but only half open), my gp referred me to her so hopefully the nhs will cover it, but if not I'll sort it. Thing is, I've been reading about the nk test, but I'm due to ov tomorrow or weds, and wasn't told not to try this month so if I am pg this month I don't really know what they will do to help it stick as it were.

Mrsgiblin1983 Mon 24-Feb-14 11:01:38

Morning all,
Hope you don't mind me joining in. Sorry that we're all here ��

I've now had 2 mc 1st at 7 weeks in nov 2013 and 2nd just last week at 5+2 weeks.

Spoken to my gp this am he's not to worried but if I have anymore problems he said I'd be referred straight away. Hate the fact you have to wait for 3 mc's before the nhs will even look at you. I also asked if I could start taking aspirin (as I have read a lot on here about clotty blood and lots of ladies been subscribed it) he said that a low dose will do no harm and he's happy for me to try. I've also got a good herbal shop in town so plan on going there later see if she has any tips.

Good luck to all

So I've just come out of clinic with Prof Quenby (aka the nutty professor) omg she is hilarious!!!
Anyway, she's given me a prescription for progesterone pesseries to insert twice daily from cd21-28 (great timing as I'm cd13 today), and I'm currently waiting for bloods.

She said she can see no problem with me from my bloods (said taking my baby aspirin wouldn't have affected results), just a case of keeping a pregnancy.
She also said my progesterone isn't a massive problem but it's not massively high, and due to my spotting from 7/8dpo she's prescribed the progesterone.
She's told me to keep it up for 3 months then they'll do further tests if needs be.
But she also said see you at 6 weeks for your first scan in a few weeks!!
It was soooo good to come out of an appointment feeling positive!!
She did say however that maybe it won't happen the first month, but she is certainly positive for one I the next 3 months. gringrin

katieash76 Mon 24-Feb-14 16:17:01

Hi all, not been on in a few weeks. Welcome to any newbies! So sorry to tanny for your recent loss, hope you are taking care of yourself.

I saw my consultant today as a follow up from blood tests and last erpc. (Those who don't know, I've had 7 losses but have a DS which was a straightforward no medical help pregnancy after my 3rd loss). Blood tests were all normal and karyotyping normal also. He did more blood tests looking for other things but in mean time has literally prescribed me everything! Progesterone again (made no difference last 2 times), heparin, prednisolone and high dose folic acid. He talked a bit about NK cells and said rather than testing he'd just prescribe me everything as "there's no harm in it"! We have a first appointment at st Mary's booked in a month privately, now wondering if any point going as even if they find anything what other treatment would they give me? I know I have no uterus or cervical problems. Just think that st Mary's is expensive and if we're just going to end up with similar treatment is it worth it?

Consultant also said to just get on with trying again as long as mentally ready as no medical reason to delay.

Any advice greatly appreciated!!

Justonemoretime Mon 24-Feb-14 20:01:41

Choccy, great news. Glad you have a plan. It's always better when you have a plan!

Katie, where was this clinic with the highly benevolent throw everything at the problem consultant? I know that St Mary's are much more specific strict/picky about what they prescribe, and their tests are much more sensitive, in particular the TEG test which is a blood test where they literally run down to the lab with your blood to process it in 30 mins to see if its clotting normally. They also repeat this particular test once you're PG again as some ladies seem to develop a clotting issue only when PG. I am taking a month off ttc at the moment due to going for tests at Coventry and at first I thought the same (lots of money, already seen someone, want to get on with it etc.) but after 3 months of no luck we decided that one more month and a little bit more money was worth it just to know we'd done everything possible to find out if we could get treatment or whatever. It's a personal decision, and, as I say, it took me 3 cycles to realise it.

However, St Mary's do insist that they test you in a non PG state, so if you rock up there PG, they might not test you and you'd go to the back of the queue (of a line you would not need to stand it as you would, I'm sure, have a boring and successful pregnancy!).

Good luck with whatever you decide.

bakingtins Tue 25-Feb-14 16:19:06

katie that sounds like the protocol I was on which has worked for me (touch wood) but I'm v surprised you are bring prescribed steroids without a diagnosis since they are certainly not risk-free. I know of a couple of people on the pred thread who have permanently damaged their adrenal glands, there are lots of more minor side effects (insomnia, muscle weakness, weight gain) increased risk of cleft lip/palate for baby and increased risk of low birthweight baby. For me, set against 3 consecutive losses and a high NK cells diagnosis, it was a risk worth taking, and Prof Q's protocol is moderate dose (20mg) from 4-10 weeks of pregnancy then tapering off, so fairly short term. I'm having additional scans for the potential growth issues and 20 week scan showed lip & palate were fine. I'd think carefully before taking them without a diagnosis though, the doctor should at least have talked through the risks with you.

katieash76 Tue 25-Feb-14 19:51:29

Thanks for all the advice. The steroids I've got are only 10mg a day so quite low dose and I'm to take them up to just before 12 weeks and wean off. He said that a low dose over a short period shouldn't give bad side effects. I think if I do get pregnant I will definitely take the other prescriptions and think carefully about the prednisolone. But after 7 losses I am willing to give anything a go!!

bakingtins Wed 26-Feb-14 07:16:47

Phone and talk to him about it again katie The London NK doctors are using 25 or 40mg for immunosuppression, often with IVIG or intralipids. Prof Q has a slightly different approach and thinks the NK cells are a marker for a local steroid production deficiency, so is using lower doses, most people on her protocol seem to be on 20 mg. Ask questions about what it's based on? No point having the associated risks without a firm idea what they are supposed to be doing for you. Or come have a chat to others on the pred thread ( conception board) to help you decide.

Mrsgiblin1983 Wed 26-Feb-14 19:43:12

Evening ladies. I've been to see a very good herbalist and she has recommended 'vitex agnus castus' it levels out you hormones. I'm going to give it a try x

bakingtins Thu 27-Feb-14 07:30:01

Hi mrsG sorry I missed your earlier post. I think a second MC is very difficult to deal with because you find it difficult to swallow the 'bad luck' a second time but nobody is taking it seriously. Hope you are coping ok, look after yourself.
my consultant advises against taking aspirin unless you have a diagnosed clotting problem, as she thinks it can interfere with implantation, but there are still plenty of doctors out there telling women to take 75mg and plenty of women who attribute their subsequent success to aspirin. I don't know anything about Angus castus but someone else might be able to help.
Are you planning on TTC again soon?

TinyTear Thu 27-Feb-14 08:37:25

I know someone who had 2mc but is expecting her 4th child (any day now) did take agnus castus to help get pregnant. not sure of details though, but i know it worked for her

tannyLoo Thu 27-Feb-14 09:11:43

There are plenty of people who take AC on the ttc after mc thread. Seems to be popular.

<<waves>> Hi everyone. Shitsville at Tanny Towers, but I think it's probably after a difficult counselling session yesterday.

I have agreed with dh to have 3 months off ttc. Can't even think about it at the moment...

TinyTear Thu 27-Feb-14 09:18:49

tanny god yes counselling is hard.
I had 5 sessions after my October mc and the first 2 lest me SHATTERED and in tears and knocked out the whole day...

but it works and by the last one I told her I was ready to stop and didn't even have my 6th session

I hope it will be good for you. it gets worse before it gets better but it's liberating to talk and cry

TinyTear Thu 27-Feb-14 09:19:05

lest = left

Mrsgiblin1983 Thu 27-Feb-14 09:29:27

Yes baking your right. Very frustrating with my just a 'bad luck' diagnosis! Heard lots of good thing about the agnus so definitely worth a try. Yes I just got the 75g aspirin so will try that to. Ttc straight away, going to start my ov testing again in the next few days And hopefully I'll get pregnant quickly again. Xx

bakingtins Thu 27-Feb-14 10:56:56

tanny sending you HUGS. I hope the counselling is helpful in the long run, if difficult at the time. I think agreeing to have a TTC break for a bit is probably healthy too, you've been through so much. It will all stand you in good stead if you decide to try again a few months down the line.

Justonemoretime Thu 27-Feb-14 21:07:37

Quick question, I now have my appt booked for prof Q. I'm also still under st Marys. Is it OK to have both? Would St Mary's still see me if I was following prof Q's advice? Don't want to bite the hand that feeds me and end up out in the cold...
Hope everyone else is coping? Hugs to Tanny, a break to recover sounds wise.
Welcome newbies, sorry you find yourselves here.

vicki2122 Fri 28-Feb-14 06:43:34

Hi second miscarriage now I cant believe my luck I didn't think it would happen again hmmI'm getting tired of ttc now but husband is more determined now than ever to have our first child

bakingtins Fri 28-Feb-14 07:26:13

just I don't know about St Mary's, but my local clinic were happy to provide the treatment recommended by Prof Q. They weren't offering me any answers or any treatment other than their already failed protocol, so I don't think they had any room to object! I think she had said something about offering private prescriptions if I had trouble getting the meds, but GP did the prescriptions based on her report and RMC clinic did the scans and follow up.
vicki sorry to hear you've had another MC. The 2nd one is hard to bear, I think everyone feels "why me" at that point. You've already had your share of bad luck. sad

Mrsgiblin1983 Fri 28-Feb-14 10:29:57

Hi vikki, im in the same 'bad luck' boat as you! Good luck with ttc. Are you doing ov testing? At least you know you trying when you need to be xx

Notgivingup1 Fri 28-Feb-14 19:13:50

Hugs tanny - it's just rubbish and you need time. Welcome newbies - that second miscarriage is horrible as you just get sent home with no plan or answers. I did do some testing privately (which all came back normal) and just needed to do something!
just I've asked myself the exact same thing and I would have thought they are very used to this but I know what you mean - wouldn't want them to suggest that they therefore wouldn't do the monitoring. I would ask Prof Q for her opinion on how best to manage it. Sorry I can't remember what your treatment plan with St Mary's would be for next pregnancy?

Justonemoretime Fri 28-Feb-14 19:24:28

Thanks Baking and Not, I will see how the land lies once I've got a plan from prof Q. My plan from St Marys is repeat TEG and then possibly 150mg aspirin if TEG not normal. I'm a 2x unknown and 1x genetic cause with uterine abnormalities (now corrected). So, off to Coventry next Friday and take it from there.

bakingtins Fri 28-Feb-14 19:27:12

It's only an issue if she finds something that needs additional treatment, cross that bridge if you get to it.

Notgivingup1 Fri 28-Feb-14 20:29:48

I agree. I think they've got to expect you to get a second opinion. Surely we are entitled to that. I've got a provisional apt booked with the Prof in mid March so be interesting to see how you get on next week - hope it goes well for you. St Mary's can be annoyed with both of us!

Justonemoretime Sat 01-Mar-14 08:46:40

Thanks. I think I'm getting a bit paranoid that something else will go wrong. shock Too much thinking, not enough action! I will let you know what comes of my prof Q appt. Feeling weird not to be ttcing this month, but thinking of the big picture...

vicki2122 Sat 01-Mar-14 20:40:12

Thanks for the support everyone start to think y me?

TinyTear Tue 04-Mar-14 11:55:06

Number five.

Will write more later


bakingtins Tue 04-Mar-14 13:05:47

tiny I'm so sorry. That is shit. Are you having spotting/bleeding or do you already know for certain it's over? Wish I could give you a real ((HUG)) but virtual one will have to do.

tannyLoo Tue 04-Mar-14 13:19:29

Tiny no! I can't express how sad I am for you. You poor poor thing. I so thought you'd make it this time. We're all here for you, please use us to vent... Big hugs and "fuck the world" vibes from me xxx

TinyTear Tue 04-Mar-14 14:12:15

Hi. I know for certain.
Two weeks ago measured 6.2mm and today only 4.7mm and the HB was gone

Opted for medical management but as I want it over the weekend I will go there to take the tablet on Thursday.

Next and final attempt will be going to professor Q

TinyTear Tue 04-Mar-14 14:45:30

And no spotting, bleeding, cramps or pains.
this fucking body thinks it is still pregnant. so much that the bastard sac had actually grown a bit!

bakingtins Tue 04-Mar-14 15:49:33

sad I am gutted for you.

Justonemoretime Tue 04-Mar-14 20:38:18

Tiny so sorry for you sad xx

Notgivingup1 Tue 04-Mar-14 22:25:16

tiny so so sorry. It is totally shit. Big hugs xx

Lancashire21 Wed 05-Mar-14 11:26:04

Tiny - am so very sorry, it's unspeakably awful. Thinking of you. x

TinyTear Wed 05-Mar-14 13:39:47

A line is not a baby
A line is not a baby
A line is not a baby
A line is not a baby

Just had to leave my birth group from my daughter as there have been about 4 people posting photos of pregnancy tests.

Funnily enough I don't mind the photos of 12w scans as much...

I know I will go back in a few days as they have been my support for more than 2 years, but I need a break

sweetsherry Wed 05-Mar-14 13:49:47

Tiny - sorry this has happened again, it's just rubbish.

AFM, I must confess, I have been lurking rather than posting, because after long-term infertility and now RMC, I just don't really know where I belong IYKWIM.

There quite a few BFPs a few weeks ago and I thought it was too BFP heavy to be a comfortable place. And then would you believe it - I got a BFP myself about 4 weeks ago. And then another 3 weeks ago m/c at 5 weeks..

So, I have now had 3 and have been referred to a specialist, albeit with no idea of when I might actually get an appointment.

Back on the TTC treadmill (again!) but OV is in hiding.


TinyTear Wed 05-Mar-14 15:02:30

I left here when I got the BFP and went to the RM October thread, but we were then asked back smile

One thing I learned after all the mcs is not to stuff my bfps where they are not wanted....

anyway... i asked yesterday about more tests (just in case) but as i had DD after mc 3, the count reset and would only be offered tests again after a 3rd it seems

JBrd Wed 05-Mar-14 15:32:16

tiny It's so tough, especially when people start announcing pregnancies. Have you told any of your birth group friends about your mcs? You might be surprised at their reactions - as far as I know, anyone who has had a mc in the past becomes very cautious with sharing pregnancy news. Everyone (well, most people anyway) who knew about mine was always kind enough to email or text me before they were going to announce it openly, so that I could be prepared. And I am planning to do the same, if/when I get to announce this one.
It is such a shame, I think sometimes, that mc is not talked about more openly. But then again, it is such a personal thing... Not easy!

I hope that the tests will give you some answers and that you will get the support you need from the medical team. Don't be afraid to ask about timelines etc., sometimes they need a bit of a push in the right direction! Good luck!

TinyTear Wed 05-Mar-14 15:35:08

yes, they know, i posted yesterday...

one of the two who announced it today actually sent me a private message apologising afterwards as she didn't think... which was a nice thing to do...

I guess I could do with a few days break anyway...

bakingtins Wed 05-Mar-14 15:39:36

sherry welcome to the thread. I'm sorry to hear you've had MC3, but hope that means you can get the ball rolling on testing and hopefully some answers.

Purplefrogshoes Thu 06-Mar-14 00:06:18

Tiny I'm so sorry sad

tannyLoo Fri 07-Mar-14 08:05:14

Tiny just wondering how you're doing. Hope you're ok and getting plenty of support in RL. Thinking of you xxx

TinyTear Fri 07-Mar-14 08:28:06

Hi Tanny

I went to the EPU yesterday to take the first tablet. Felt a bit guilty as I could only go after work and nursery pick up, so there were 4 other women waiting at the EPU and I had my 2yo there...

She was quite good, quiet, drawing and I bought a new book, but still, when I had my first 3 before any other children, some days I was so angry that seeing kids tipped me over... but there was nothing else I could have done...

Tomorrow morning I have the second lot of tablets and then the miscarriage should start an hour or two later... I picked these timings so my husband can look after our daughter...

My body is still holding on, no bleeding, no cramps, no nothing... stupid body...

How are you doing? will you get more tests done? have a longer break?

thanks for asking

tannyLoo Fri 07-Mar-14 09:00:04

Tiny it all sounds desperately sad. I know that feeling of wanting to make it easier for people around you, even the ones you don't know!

I really hope tomorrow goes ok and it will be a bit of "moving on" to the next phase iykwim.

I had a meltdown at work on Tuesday and came home as I was close to resigning. I'm just struggling with multiple losses and it's all got a bit too much. My GP has signed me off for a week and a half, so that should help.

My next move is a second blood test for clotting, which I have to get done in a month. Will then meet with gynae and discuss next moves. We are imposing a 3 month wait on ourselves before we ttc again. I don't have the energy or resilience right now...

What about you? Is it too soon to have plans?

TinyTear Fri 07-Mar-14 09:22:17

the plan once this mc is finished is to have one period, then look for ovulation and book the appointment with Professor Q for the NK cell testing... then one last try...

I will be 41 in August and don't want to go though it many more times...

one more attempt and that will be it...

Good to have a break tanny... sometimes you need to get your head in order. have you been offered counselling?

tannyLoo Fri 07-Mar-14 09:56:11

Yes, I've been thinking of going to see Prof Q too. I will get as far as I can with my twattish gynae first <grits teeth>...

I am having counselling at the moment that was arranged through work's EAP scheme. I started it before the MC and it's been a bit weird having it through the whole thing. It's a male counsellor but that's not too bad. We're due to finish next week, but I'm requesting an extension.

I am determined to wait to ttc until I have some clear answers about causes. For too long I believed the "bad luck" line, thinking it would be ok next time round. I'm not sure how many more goes I have in me, and I'm going to be 42 in May, so am fucking ancient. blush

TinyTear Fri 07-Mar-14 10:02:35

yes, I came under the 'bad luck' in St. Mary's as all their tests came back normal... then I was indeed lucky that my 4th pregnancy was successful...

But two more is not normal either...

sigh I'm still not sure I want to restart couselling. they did say I could self-refer again if I needed... need to see how I am after this weekend

tannyLoo Fri 07-Mar-14 10:06:43

Personally, I've found it a bit intense having it now, but that may be a good thing...

Being a bit proactive in booking it might be no bad thing.

That and chocolate. And a good box set.

Justonemoretime Fri 07-Mar-14 23:08:28

Saw Prof Brosens at Coventry today. Two biopsies due to thin-ish lining - ouchie. Feeling reasonably positive, got progesterone from day 21 to 28 if bfn, carrying on if bfp. No aspirin at all allowed. Waves to all.

Youandme12 Sat 08-Mar-14 17:33:23

I've found out today that I'm miscarrying sad x

bakingtins Sat 08-Mar-14 19:46:19

Glad you are feeling positive just How long until you get results?

Sorry to hear that youandme How many MC have you had? Are you heading down the testing route now?

Justonemoretime Sun 09-Mar-14 10:00:22

Youandme, so sorry to hear this. Hope it's as untraumatic as possible and that you get some answers.

Baking, results should be in about 4 weeks. He was not sure whether my samples would be OK as my lining was between 5 and 7 mm (ideally it needed to be 9mm), but he took 2 samples (ouch). Hopefully this means that my lining will be super irritated for next 3 months. I was pleased though, because I was only managing 2-3 mms this time last year. I think the acupuncture is working, in that department.

Hopefully the samples will show something up one way or another, rather than be duds. He gave me the 200mg progeterone anyway and told us to start trying again next cycle.

Justonemoretime Sun 09-Mar-14 10:30:36

Baking, what did you make of the views on aspirin? Did you ever take it before? I presume you haven't taken it this time?

bakingtins Sun 09-Mar-14 11:43:48

I took aspirin for MC4 on instructions from my local RMC clinic and didn't this time. I've no diagnosed clotting issues but was put onto clexane by Prof Q because it's supposed to be cytoprotective for the placenta.
I have more trust in what they (Profs Q/B) are saying based on their studies/evidence than in the local clinic who were just "we don't know what's wrong, we can't tell you why you lost a perfect embryo, we can only throw these "can't hurt" therapies at the problem"
I think the work Profs Q/B have done has suggested that far from being "can't hurt" aspirin can interfere with implantation, though it can also be useful in some clotting disorders.

Fingers crossed your samples are diagnostic, either way.

Justonemoretime Sun 09-Mar-14 11:55:37

Thanks Baking, I agree. I will wait and see what they advise. I can see that, if you're already 'letting in' too many embryos, and aspirin improves your chances of 'letting them in', then, whilst it might help some people, it would be a disaster for people who actually need to improve the quality of implantation, rather than any other issue. I'm still conflicted as the 'longest' pg I achieved was when I was on aspirin (the Turners one). But I will go for my TEG test anyway and Prof Brosens said that if Prof Regan says I do need it then he would be OK with me taking it after 9 weeks. I guess I'll have to see how things play out over the next few months. How many cycles did it take you to conceive after the biopsies? After seeing Prof Brosens, I did feel like I'd FINALLY found someone who could actually DO something at last!

bakingtins Sun 09-Mar-14 16:32:11

Cycle 1! And then I was freaked out because I wasn't ready for it at all. Best to get the benefit of the 'scratch' though!