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Miscarriage/pregnancy loss

Recurrent Miscarriage Support Thread 18 - tests, treatment, trying again.

999 replies

bakingtins · 20/02/2015 18:57

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

OP posts:
twilightstruggle · 20/02/2015 19:20

Ttc #1 since 2012. 5 miscarriages (ffs). Feb 2013 (11 weeks mmc), July 2013 (6 weeks), Oct 2013 (6 weeks), April 2014 (6 weeks), Feb 2015 (9 weeks). Unexplained. My age apparently (32) and bad luck. Grumble grumble. My saving grace is DH who is a complete rock.

Catching up with some things from last thread which I missed. Tiny - can't believe posts to mc association were moderated. That feels sort of... not on. Aren't all our feelings supposed to be ok. Bit disappointed in them.

bakingtins · 20/02/2015 19:29

MC1 in 2009 between my boys, then 3MC Sept12-June13, all at 9-10 weeks. NHS tests including genetics on foetus normal, went to Coventry and diagnosed with high NK cells in August 2013. Next pregnancy successful on heparin, progesterone and steroids, Dd born May 2014.
DD diagnosed with infantile spasms Jan 15 and currently having hospital outpatient treatment (totally unrelated to the MC but yet another kick in the teeth)

I think moderating a MC forum for unacceptable strength of feelings is downright weird. Won't happen here - rant away whenever you need to!

OP posts:
Marchgirl · 20/02/2015 19:29

Me 37. Dh 44
dd born aug 12. Normal, naive pregnancy.
Mc1: mmc in Jan 14. Diagnosed 9.2, measured 6, completed 12.1 after 2 x med man
Mc2: natural mc in Jul 14. Scan at 7.1 after spotting. measured 5wks with dodgy sac. Passed at 8.1
Mc3: mmc in Oct 14. Scan at 7wks showed hb but another dodgy sac. Follow up a week later showed it had died. Another failed med man but passed several days later. Foetus sample could not be cultured so no result on that
Rmc investigations in nov/dec 14 showed Everything normal. She trotted out the line "probably just bad luck, just keep trying and eventually one will stick". Prescribed progesterone from bfp but i took it from 7dpo (as per Coventry protocol)
also started acupuncture.
Bfp on 2nd cycle back ttc
Mc4: very early mc in Feb 15 (decided i don't like the term chemical pregnancy) at 4.5.
Feel broken. Totally broken.
Now planning to go to Coventry in April. Although got a surprise phone call from consultants sec today saying she wants to see me again in a month. She didn't say why, but presumably to discuss the email I sent her a month ago begging for heparin. It wouldn't have helped this one anyway and now I'm going to Coventry it seems a moot point, but I'll go anyway

Jady77 · 20/02/2015 19:30

Me 37, DP 45
MC1 13.10.14 Natural @ 6 weeks
MC2 12.1.15 ERPC @ 6 weeks
Tested clear for thyroid antibodies TABLET trial.
Normal tests for GP, but not sure anything significant tested.
Await results for blood clotting
First AF last week
Intending Coventry visit after next cycle.
Taking vitamin D, agnus castus and usual conception supplements.
Receiving counselling.

Still very sad. Has been a horrid week.

On the subject of temping I always wake several times in the night so not sure temping is going to work. Seem to vary between 35.1 and 36.5 which seems very low. Not sure if I should be warning thermometer up first. Tested DP and he's even colder!
Also checking mucus and cervix or rather DP is, hoping I can identify Ov soon.

Sorry to have read such sad posts this week.

Brummie I feel for you and feeling told off. Totally agree with Just. I find it hard that even my own family don't get just how painful this is.

Seems like there's a lot of us on this thread now! This year has to get better doesn't it?

tannyLoo · 20/02/2015 19:30

Like a tomcat. Will add stats in a bit but feeling roapy. Don't get excited. Yet.

Marchgirl · 20/02/2015 19:31

Your age twilight?? Really? Ridiculous to suggest that!

bakingtins · 20/02/2015 19:34

Ropey tomcats, tanny ? Is this code for early labour? Grin

OP posts:
twilightstruggle · 20/02/2015 19:36

Gets excited (disobedient)

Jady77 · 20/02/2015 19:39

Also being disobedient, getting the timer out!

Marchgirl · 20/02/2015 19:43

Quiet little yay! building here tanny. Hope things are progressing

ronconcoke · 20/02/2015 19:43

Thanks guys (from previous thread). EPU told me I had to get referral from GP. She was v sympathetic - particularly as I cried while telling her sorry story - and said she would refer me straight away but was a bit worried they only test after 4 mc's??!! I said I thought it was 3....that would be ridiculous. Anyway she said she'd let me know either way. So just have to wait now. Meanwhile it's back to the hospital tomorrow morning to give repeat bloods to measure falling hormone levels. My progesterone was v low in this pg apparently which could be a reason why I mc. Who knows....

Anyway it's Friday and a cold beer is calling! Couldn't have said that a week ago....

Flen · 20/02/2015 20:03

mrsdiddly I see Mr Ajala, who also practices out of the Nuffield in Brighton. www.nuffieldhealth.com/hospitals/brighton/335421/consultants/mr-tosin-ajala
He was very kind and gentle with us (although I know bythesea has had slightly different experiences of him!) He likewise won't prescribe "just in case" and seems interested in the impact of stress - he offered us weekly scans as a way of trying to help the stress...

My stats:

Mc 1 (previous relationship) - Dec 2007, missed mc seen at 13 weeks scan, was 6-7 weeks in size, D&C
Mc 2 - April 2014, full natural mc at 11.5 weeks.
Mc 3 - October 2014, missed mc at 9.5 weeks, baby was measuring 6.4 weeks, D&C.

NHS tests came back as all normal, karyotyping on mc3 also normal.

I am 36, DP is 34, we have no children.

Currently in TWW after trying again, will take 75mg aspirin from next BFP and have weekly reassurance scans.

I am on a no-wheat and no-dairy low GI diet, have not been drinking for nearly a year, taking maca root daily along with supplements and fish oils. I am having acupuncture and have no idea what on earth else I could be doing to look after my health!

Oh, and I write things about miscarriage here: thingsaboutmiscarriage.wordpress.com/

Brummiegirl15 · 20/02/2015 20:26

Thanks Baking

Me 38, DP 45 been ttc'ing since April 14 - no dc's
Mc 1 at 5 weeks in May 14
Mc 2 at 8.5 weeks in August 14 ERPC
Mc 3 at 9 weeks January 15 after seeing heartbeat at 7 weeks. ERPC. Took baby aspirin for that one, didn't work.

Currently having acupuncture and counselling and desperately drinking Raspberry leaf tea and pomegranate juice to increase lining and taking iron (floradix) royal jelly and l-arginine

Awaiting appt regarding RMC with Mr John Watts at Worcestershire Royal Hospital on 9th March after being bumped from 23rd Feb. Now this has tipped me in another month for trying again we've decided to try Coventry alongside consultant appt. just waiting to ovulate before getting an appointment from Kerri.

Currently feeling a bit unreasonable and irrational because struggling to deal with jealousy over pregnant colleague and pregnant friend. Irony is though I'm waiting avidly for mini Tanny to rock up which just goes to show we do group pregnant women in real life!

So tonight am eating mini eggs, drinking wine and just booked a weekend with DP in Cornwall post Coventry. Lots of shagging to be done!!

TinyTear · 20/02/2015 20:46

Quick stats:

MCs 1, 2and 3 in 2010

Tests at St Mary's clear.

Dd born Jan 12

Mc 4 in Oct 13 and mc5 in march 14

Coventry tests normal but went on their protocol of progesterone from cd21 and heparin from 6w scan and now 33w pregnant... Eeeeeek...

tannyLoo · 20/02/2015 20:48

Really, nothing to see here, move along... trying desperately to convince self

Me:42, DH:44

DS1 born in Nov 1999 Uncomplicated pregnancy, previous relationship
DS2 born in Feb 2012 Uncomplicated pregnancy, with DH
MC 1 Dec 2012 - 6 weeks, natural MC
MMC 2 Apr 2013 -11 weeks but measured 6, natural but horrific haemorrhage
MC 3 Oct 2013 - 6 weeks, natural MC, but not much bleeding. Referred for RMC testing but in the meantime got pregnant again.
MC 4 Dec 2013 - 6 weeeks, natural MC but was suspected ectopic. Empty sac finally appeared just before MC started. Thin endometrium seen on scan.
Blood tests and scan all came back normal (lining still on thin side) and healthy. Diagnosed as "super fertile" ( no shit!) and told to keep on trying, as one might stick.
MC 5 Feb 2014 - 6 weeks, natural MC, low bleeding. Was prescribed progesterone and clexane from 5 weeks, but sac was already empty and irregular shape.

After all that, I had a proper melt down and spent days in bed watching reruns of Star Trek. I was signed off long term sick, had fortnightly acupuncture and a massive list of quack medicines to help my lining develop. Went to Coventry in May, following genetic tests, and was pregnant before my NK cell results were back. Was treated with progesterone, clexane and prednisolone as a precaution. Tests came back normal, but I continued on all meds until I was roughly 12 weeks.

I am a complete Coventry protocol convert and wish their research was being followed by other RMC units and clinics as it really feels like there was more than good luck this time round.

Currently 38+3 and waiting oh so patiently for baby Tan to appear.

Jady77 · 20/02/2015 20:51

Pregnant women are a funny thing. One friend recently have birth and I was so happy for her, although was in the throws of a very upsetting fallout with DP when text with her news came through and fell to bits. Last night found out another friend is pregnant through Facebook and have had cruel thoughts, but too ashamed of myself to even type it.

This week I've had 2 people close to me (Mum & DP) attack me & accuse me of things completely through their own insecurities/paranoia. Completely separate things, but has been so hurtful that they think it's a good idea to come at me with these irrational attacks just a month after losing my 2nd baby. DP has been very apologetic since and went for counselling as a result, Mum is another story though. Left me feeling I'll never be happy this lifetime. Not sure where that came from sorry. Guess I needed to share.

Think I'll pop to shop for mini eggs, craving them now!

Justonemoretime · 20/02/2015 20:58

Thanks for the new thread, Baking. Just marking my place. Ribs agony this evening so going to try a bit of yoga type stretching. Good luck Tanny!

cloudjumper · 20/02/2015 21:26

Thanks for the new thread - marking my place, will add my stats when I get to my computer.

Loopyaboutmy2boys · 20/02/2015 21:39

So my recap is as follows. DH is 37, I am 38.

Pregnant first attempt and ds1 born 2010.
Pregnant first attempt and ds2 born 2012.
Unplanned BFP before periods had returned whilst still breastfeeding ds2 in Sept 2013 when ds2 was 12 months. Natural mc about 6 weeks we think.
Pregnant first attempt but had ERPC for mmc March 2014, had early scans to establish dates due to long cycles, baby died 6 weeks 2 days they think.
Put ttc on hold until moved house.
Pregnant first attempt Xmas 2014, natural miscarriage at 5-6 weeks.

Have consultant appointment booked for 9th March with Mr Watts at Worcester just like Brummie girl. After reading the postings on here I feel like a textbook case for Coventry, as I have no problem at all in getting pregnant, but the last 3 haven't lasted the course. Either that or am concerned that my uterus is fucked after an EMCS, an ELCS and then an ERPC.

We had someone visit us on valentines night so celebrated the following night, and I think my body might have kicked back into action and ovulated pretty quickly afterwards so am now in a 2 ww, perhaps a very stupid decision but we are giving it one last shot before putting our lives in the doctors hands.

Without sounding like a loon I hope, with the exception of my first pregnancy I have always felt ovulation pains, and have always felt implantation pains although obviously I didn't realise what they were in the first pregnancy as didn't think for a minute that we would have got pregnant so quickly! Every time without fail I have correctly felt pregnant way before a test could be used. To the point I feel like law of averages I can't keep getting it correct. But I am feeling things tonight, so will be watching and waiting until it's a sensible time to test, although it would be Sod's law AF turns up now I have put it on here in black and white!

tannyLoo · 20/02/2015 22:02

Loopy you do sound very similar to me. I had success at Coventry and if you do end up upduffed this month, I suggest getting some progesterone and heparin ASAP if you can.

Frecklefire · 20/02/2015 22:42

Me - 40yrs, 1 wonderful son, 19 months.
Dh - 49, yikes.
Mc 1 - june 2014, 6 weeks.
Mc 2 - oct 2014, 7 weeks.
Mc 3 - feb 14th 2015, 11 weeks (scan showed didnt progress past 7 tho.)
All natural mc .

barkingtreefrog · 20/02/2015 22:52

An entire thread in a fortnight?! No wonder it's difficult to keep up!!

me: 35, dh: 34
TTC #1 since Dec 2011.
clomid bfp summer 2013, mc at 7 weeks, AF didn't return for over 3 months, started acupuncture to kick start my cycles again.
5 further rounds of clomid failed.
iui bfp summer 2014, mc at 6/7 weeks
iui Jan 2015 failed.
Consultant appointment on Monday to discuss IVF, hopefully starting next month. This is the last shot.

brummie just picking up on the last thread, you are being absolutely reasonable and totally sensible by avoiding pg friend. The circumstances of her pg are completely irrelevant, if it upsets you to see her don't do it. I had counselling at my clinic after the iui mc and I remember asking her for coping strategies for facing pg friends. She said if I didn't want to see them I shouldn't bother, why wasn't I being kind to myself? This really stuck with me. I have avoided single and accidentally pg friend as I just get so upset each time I see the bump. She's due any day, but I should have a newborn at home right now. I can't talk about her planned water birth or how she wants my dh to be a positive male role model in her son's life. I can and will look after her dog for a couple of weeks when baby arrives. But I am not the person to provide counselling over her worries about being a single parent when I'm facing the possibility of never being a parent myself

sebsmummy1 · 20/02/2015 23:02

Just marking place, will update tomorrow as must sleep

longestlurkerever · 20/02/2015 23:20

Me 34, dh 35 next week. Dd born Aug 11, straightforward pregnancy. Ttc dc2 since Mar 13 (2 years - eek!). Chm pg Aug 13, Mmc at 11 weeks (gestation 6) Jan 14, mc at 7 weeks (gestation 5- 6) Jun 14. Tests clear at St Mary's but pcos diagnosis. Ttc with agnus castus , bfp Sep 14. Now 26 weeks pregnant with a girl.

Have been feeling much more confident since 20 week scan but strangely tearful this week. It was the due date of mc3 so maybe it's that, or hormones, or all the sad news on the thread. Not sure.

jady I was sorry to read your post. Hugs and hope you do feel happier soon, and your mum apologises.

loopy I hope you're right. Keep us posted.

Justonemoretime · 21/02/2015 07:18

Morning All,
Here's my stats:
3x mmcs, #1 and #2 at 6 and a half weeks, both discovered on scans following spotting. This was Nov '11 and May '12. Then some local tests, all clear. Prescribed 400mg progesterone from bfp and baby aspirin 'just in case', investigations for thin lining following repeat ERPCs and complications from MMC#2, which needed a course of HRT to 're-set' my cycle, which had pretty much shut down.
Then conceived #3 and got past danger point, saw a good scan at 9.1 weeks only to discover mmc#3 at routine 13 week scan. Turned out baby had Turner Syndrome after genetic testing. That was June '13.
RMC testing at St Mary's, London all clear, but uterine septum removed October '13.
After no joy for 3 months, went for NK testing at Coventry, all normal there, too, well, thin lining and 'lower end of normal', but normal NK cells.
Took another 7 months to conceive again and was prescribed the protocol I'm on 400mg progesterone twice daily (from bfp - was originally 200mg twice daily, but increased due to some light spotting) and daily heparin injections which I started at 5.5 weeks after 'location' scan.
Now 22 weeks. I'm off both the heparin (stopped at 13 weeks) and progesterone (weaned down and finally stopped at the beginning of 15 weeks).
Had 2 tries at the 20 week scan due to stubborn (but, thank goodness, perfectly healthy) baby. The latest issue is that the pregnancy has been classified 'high rick' because the placenta has totally grown over my cervix. Got the diagnosis of Placenta Praevia earlier this week. So we're looking at a re-scan at 32 weeks and, if it hasn't moved - its a complete case so they think this is quite unlikely - I'll need a planned c-section at 36 weeks. In the mean time, if I have any spotting I'm straight on to the labour ward for 48 hours (at least) until it settled and bed rest if that should keep happening. Really want to avoid an emergency c-section before 36 weeks!!! So taking it as easy as possible now (which is not easy because I am normally quite active and I keep forgetting).
I'm 38 and DH is 37. We have no DC, and have been trying to start a family for 3.5 years.
Sorry that we have so many ladies with so much raw grief at the moment (although you are most welcome, of course). I hope you find the support and help that you need here and in RL and that your stories also come to a happy ending.

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