Recurrent Miscarriage Testing, trials and tribulations...Part 7!

(988 Posts)
squizita Fri 07-Jun-13 19:04:04

Hi all, carrying on from part 6. All kinicker-checkers, blood-testers, clinic-attenders and finger-crossers welcome. Nothing but love and crossed fingers...

squizita Tue 02-Jul-13 09:33:52

Latebloomer - I would query that too. It sounds like you're in area for st Mary's! GPS can be quite clueless... Mine said we were out of area then the hospital kindly informed her we weren't.

I got bitten breaking up a fight between 2 small, girly girls. It was a hair pulling, biting, scratching one of the kind little girls can have... Mistaken identity. She thought my hand was the other girls! Not very macho haha!

butterfly86 Tue 02-Jul-13 11:35:39

Hi everyone hope you are all ok? Just a quick one as I'm at work I'll catch up properly when I can but just want to say fab news tea! So pleased for you smile

Sorry for me me me post but just got my progesterone result I had it done 7 days after I got a smiley on cb digital but I was really bleeding heavily when I got the positive. My result has been marked by the gp as satisfactory no further action required it was 1.3! I dont know if the bleeding has given an innacurate reslult of I've just got practically no progesterone.

LateBloomer414 Tue 02-Jul-13 20:19:26

Butterfly, what does 1.3 indicate?is it low progesterone? sorry, I'm still remedial when it comes to all this stuff.
Squiz- do you work in a prison or a school?!?!? Hope the violence subsides and your hand heals! Thank you and Baking for the suggestion to find out more from my GP. I rang her back and she basically encouraged me to game the system. Since St Mary's isn't on the electronic booking network she's booked me in for an appt elsewhere while we wait for them to call me back and find out how long the wait is. We decided to switch to the Royal London as DH's cancer care is through the Barts trust. The oncologists are trying to get us scheduled to freeze and bank his sperm before surgery- we figured being in the same hospital group would be smoother to coordinate for when we want to use it.
Hoping everyone else is doing well!

Bakingtins Tue 02-Jul-13 21:04:22

What is the normal range for 21 day progesterone, butterfly ? I would think if you were bleeding it's difficult to draw any conclusions from that to apply to a "normal" cycle. What did they have to say about it?

Good work, LB !

butterfly86 Tue 02-Jul-13 23:17:00

I think anything over 10 indicates ovulation has occurred but over 20 is desirable and I think over 30 to sustain a pregnancy. Maybe the bleeding cocked it all up but I did have a + opk on day 19 so I must have ovulated? The receptionist just said it had been marked as satisfactory.

Lb I hope you manage to get everything coordinated its great that they are going to bank his sperm at least you don't have the worry of not having the option to ttc after all this awful bit is over. Fingers crossed everything goes smoothly for you.

teaandchocolate Wed 03-Jul-13 19:36:53

Hi everyone!!

Once again I'm so sorry I've been quiet on here recently. Feel like I'm neglecting you all. I've just been feeling so pants. Sick, exhausted, banging headaches & turned into an insomniac which doesn't help. Anyway, I'm not moaning - if this works out will be all worth it.

Butterfly I agree you should push for further investigation as I'm not sure why they're not concerned about bleeding during ovulation. I don't really know about progesterone levels. Could you see a specialist rather than just a GP?

Latebloomer glad you're getting sorted. I went to the royal free for my first scans and erpc and wasn't hugely impressed to be honest. Although I'm sure the consultants are good. I would always rather see a rmc specialist where possible. I've seen a few general gynae consultants and often feel that i know more about rmc than they do!!

News is I had another scan today. Was supposed to be next week but was moved as clinic was cancelled. All looked fab!! Baby measured 40.9mm so bigger than dates and although he couldn't do nuchal test properly he said the fluid looked small. Next scan is proper nuchal at 12 weeks. I'm in a quandary about whether to book a private scan alongside nhs (want nhs one as want to keep seeing the consultant as I really like him but he doesn't scan privately). Private ones are more accurate and have better equipment. But is it worth having two scans right next to each other? And will nhs one be better as a consultant is doing it? I'm just rather paranoid about chromosomal defects as I know one of my mc had one & pretty sure at least one other did too. And a friend lost her baby at 20 wks for same issue so I'm obsessed with trying to see problems early.

I'm so sorry if this is an inappropriate conversation for this board and I really hope none of you are upset or offended about this. I just don't feel ready for a pregnancy board really and I know that you'll understand my paranoia about abnormalities. Please just ignore this post though if you'd rather not discuss.

Hello to everyone else too!! Hope you're all doing ok.

orangebowl Wed 03-Jul-13 22:46:59

Hey tea. Fab update smile. Being quick as exhausted and off to bed (33 weeks today!) but just wanted to say why not do private scan at 14 weeks? That's what we did and it helped me as I was getting worried again by then. Sonographer at that scan was even able to tell us it was a boy!
X

LandsN Thu 04-Jul-13 07:17:32

So glad it's all looking good tea I second having scan at 14 weeks I had one at 16 weeks which was whe I was told it was a boy but also gave me something to look forward to and made time pass quicker and gave me a paranoia stop gap between 12 and 20 weeks x school 33 weeks that's amazing I am 24 weeks Monday and feel like its dragging on the plus side midwife next week so all good hope everyone else is ok x

teaandchocolate Thu 04-Jul-13 10:12:59

Thanks Lands and School and so exciting you're both getting so far now!

I've just booked a private scan for 2 days before the nhs one. Probably totally unnecessary but its only money and I'm hoping it will be reassuring! To be honest I'll probably end up paying for another private scan at 16 weeks as I can't imagine I'll be able to hang on until 20 weeks...if I ever get that far! I do hate the thought of paying a fortune for the private tests only to be told there's no hb.

Bakingtins Thu 04-Jul-13 11:58:43

Glad it's all going well, Tea.

I have RMC appt this afternoon, have already been welling up just thinking about it. Definitely a no mascara day.

teaandchocolate Thu 04-Jul-13 12:37:13

Good luck Baking. I'm hope you get some answers and reassurance or at least a plan of action. Let us know how you get on.

LandsN Thu 04-Jul-13 13:32:52

Arrrgh back at hospital again midwife thinks my waters might b leaking just waiting to see doctor either that or I just loosing all controll over my bladder a bit early x

teaandchocolate Thu 04-Jul-13 13:37:46

Oh no Lands!! How scary. I hope everything is ok. How longs it been going on for? Keeping everything crossed for you.

LandsN Thu 04-Jul-13 13:41:29

Only today baby is fine heartbeat fine moving etc they have said it could just b my bodys way of expelling excess water just got to be examined by doctor but no pain or bleeding is all a good sign x

teaandchocolate Thu 04-Jul-13 13:43:28

Ok that all sounds promising. It is all so stressful this baby making malarky. Keep us posted. Rest as much as you can.

LandsN Thu 04-Jul-13 13:48:19

Thanks tea I will do I know I feel like a right moaner lol must confess though I googled it and scared the living daylights out of myself so glad they insisted on me coming in x

teaandchocolate Thu 04-Jul-13 13:53:08

When will they know if its amniotic fluid? Are they keeping you in? I feel like you should just lie down and cross your legs!!

LandsN Thu 04-Jul-13 13:59:16

They are going to do a internal examnation to see where its coming from and I suppose decide from there they said I will probably have another scan too which I wont object too I might just admitt myself for the next 16 weeks to be on safe side and yeah agree I feel like crossing my legs especially as I can hear somone in labour eeek !!! X

teaandchocolate Thu 04-Jul-13 14:12:56

Glad you're being looked after. Keep us posted. I'm sure listening to someone's labour is the last thing you need!!

LandsN Thu 04-Jul-13 18:07:49

I am home all is good apparently it's excess water which I have never heard of but all is ok thank god and I think they either moved the woman or she had baby but it stopped very soon made my eyes water though x

Bakingtins Thu 04-Jul-13 18:22:45

So I discovered what comes next in the MC1= you were unlucky, MC2= you were very unlucky, MC3= you were extremely unlucky series. MC4= we don't know what is wrong and we can't help you.
We got the cytogenetics back, baby was perfect. I am a serial killer of healthy embryos. sad
There are no further tests they can offer, no treatment other than what we've already tried. They will scan me regularly if I get pregnant again but that's it.
I asked about NK cells and got the standard "it's all very controversial and experimental at this stage" we can't recommend you pursue that.
DH says he can't cope with the emotional trauma of another MC confused and I'm not willing to try again unless there is something to tip the odds further in our favour.

Of the 70% of RMCers that succeed, do you think that's because prev losses were chromosonally? Have any of you who are pregnant had no explanation and lost at least one normal baby?

Bakingtins Thu 04-Jul-13 18:41:31

LandsN glad to hear you have the all clear!

Bakingtins Thu 04-Jul-13 18:43:08

because previous losses were chromosonally abnormal ?

teaandchocolate Thu 04-Jul-13 19:07:15

Baking I'm sorry the appointment was so disappointing.

I guess the only real next steps would be immunology testing but I totally understand your hesitation with all the issues that surrounds it and the money.

I don't know if I've lost chromosomally normal babies as only one was tested. I think maybe my issue is I get pregnant too quickly. I guess that's not relevant to you if you know 100% that the baby was fine

Would you consider seeing one of the nk specialists at least for a first appointment to get a feel for it?

There's also St Mary's to consider which can do teg testing and apparently finds clotting issues when noone else can.

Sorry I can't be more insightful.

Justonemoretime Thu 04-Jul-13 19:11:36

Bakingtins: so sorry that you have not had better news. http://www.fertility-academy.co.uk/contact-us/ do NK tests, I have been thinking about getting this test. I guess you need to process the latest info and then decide whether you'd rather regret not trying or not one more time. I think the total cost would be something like £800 with all the consultations etc.

PG ladies, good news! Fingers (and legs!) crossed things proceed well.

It's two weeks since my ERPC, hoping the spotting is almost over. It's faded and no longer red (sorry TMI) and very infrequent. Last few times it's gone on for months and got worse, I had retained products after both MCs and repeat procedures etc. Hopefully this time it has worked first time. Looking forward to a bath and a swim and not having to wear big pants etc! smile

Apparently my appt at St Mary's is 'being processed' so hopefully I will hear from them soon.

Got congratulated on my pregnancy yesterday. Don't know who felt more awkward.... sad

Best wishes to all.
xx

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