Late loss at 19weeks in Nov, now seems I have a rare ectopic ceseraen scar pregnancy?! so scared

(12 Posts)
tasmaniandevilchaser Thu 04-Apr-13 10:28:01

Jkb I'm so sorry, it's so hard. Life is very cruel sometimes.

If you're starting to bleed I would really go back in to hospital. I know it's probably not where you want to be right now but they need to keep an eye on you.

Take care of yourself x

lemonsherbet Thu 04-Apr-13 08:05:03

HI JKB

I did not want to leave your last post unanswered. I am so sorry you are having such a rotten time of it. I lost a little boy in 2011 and have then had a miscarriage and a chemical pregnancy after that. despite that I can not imagine the pain you must be going through. It is so tough that this baby was due of the death of your last baby, and that s/he was due today. Anniversaries and significant dates are always hard to get through. I think if you are worried will the hospital not see you again? Especially when you have been told there is a risk of rupture.

With my miscarriages mine started with brown spotting. It was like a heavy period that lasted much longer than normal.

I can not find the words to express how sorry I am. I am sure someone who can offer more advice will be along shortly but I am here for a bit of hand holding if you need it. Hugs to you and your family.

jkb Wed 03-Apr-13 17:48:01

Hi

sorry for the delay in updating... I have been in hospital,, & just spent half an hour updating & it didnt save it & crashed...

I was taken into hospital & rushed for an MRI scan which revealed baby jad implanted very near to scar (1.6mm) but not acually in it.... however the MRI also revealed a bulge next to the sac which could be a weakened area & so I was still at a risk...
they also did my HCG levels every 48 hours.. they were rising by about 2000 ...but NOT doubling... & so combined with he scan the consultant decided she were 99% sure my pregnancy wont continue (not viable) & so tried to bully me into taking methotrixate.
I just couldnt do it..... i cried & cried & just culdnt do it? if I were definetly at risk I would have had to... but they just said the risk didnt seem to be so much...but they couldnt be sure? How could i end this babies life if I have any doubt it may actually survive? not after losing my precious baby in Nov... i didnt feel it was my decision... its down to mother nature?? I couldnt have lived with the what if's?
so they agreed & kept me in hospital.... i was devestated.. couldnt see my children (as no children policy) & eventually on sunday... another consultant on duty agreed I could go home if I promised to go back in as soon as I bleed or have pain.... it was my little girls 4th bday sunday...but we had already decided to not tell her (awful I know...but she would 7have been devestated to have it without her mummy) so we plan to do her bday this weekend bless her...

So i have been home since sunday.... & had another ultrasound Tuesday... the sac had grown 5mm in 6 days... which is good.... however fetal pole showed at 2mm (which they thought it measured 6 days prev ) & so thats not good??? however... they said all looked ok with the scan & to make sure no development they have to give it a longer soace of time... to be sure its not viable... as the doc said he CANNOT be sure at this stage (going by scan) that it isent viable??!!!!
so we have been sent away for 2 weeks.... rescan in 2 weeks....
They redid my hcg, & its still increasing but slower & slower... the increase is now only 792 in 48hrs... so its obovious this little one has given up....
So I am here now.... knowing im going to miscarry..... its my little angels due date tomm too just to make this even more cruel.... & even tho I know its all over.. I stilll stupidly am hoping for a miracle?! how could this go wrong again... it was due on my angels anniversary? it was so RIGHT!???
I have had brown/pinky discharge all day today....just when I wipe... so think this is the start??? is this how miscarriages start? Im terrified... cos when the blood kicks in... is it a miscarriage?? or me rupturing?? how will i know....

sorry for this long rant... im just so depressed & dont know how im gonna get through this... Again! xxxxxxxxxxxxxxxx

tasmaniandevilchaser Fri 29-Mar-13 09:18:49

I'm so sorry this is happening to you, it's such a rare complication, very very unlucky. I expect you've already found the EPT website, there will be good advice on there. There's also a thread on here-ectopic support thread. Hope you're doing ok today.

Hope2013 Tue 26-Mar-13 12:52:15

Hi JKB, like the others I have never heard of this before either, but just wanted to say that I am so sorry to hear what you are going through. Please let us know how you get on x

Bakingtins Mon 25-Mar-13 19:28:06

jkb I'm so sorry you are facing this. I also remember you from last year - I lost a baby in September and another in March. It's really unfair.
I hope you got some answers today.

MrsJohnDeere Mon 25-Mar-13 13:39:26

So sorry you are going through this. Life really is very cruel at times. I remember you from November. You miscarried around the same time as me.

Hope someone comes along soon with some practical advice.

Will be thinking of you tomorrow and hope all goes as well as it can flowers

goosey123 Mon 25-Mar-13 13:16:19

oh jkb. I recognise your name from late last year, so sorry to read what you are going through. your post resonates with me, I also had a late loss last October, got pregnant again and my due date was also the anniversary of losing the baby in October. Sadly the 2nd pregnancy didn't work out either. I'm afraid I've not got any experience of what you are facing now, hope someone comes along soon. I hope you get the care and support you need x x

nectarini1983 Sun 24-Mar-13 16:21:27

I dont have any advice im afraid as never heard of that happening before your post. Hope you get definitive answers soon.

So sorry for what you are going through. It is very cruel after what you've been through already.

purple84 Sun 24-Mar-13 13:32:11

Jkb
So sorry about what you are going through, sorry no advice but wish you all the best either for this pregnancy or the next xx
Hope you get some answers soon x

PearlyWhites Sun 24-Mar-13 10:22:24

I don't have any advice just wanted to say how sorry I am thanks

jkb Sun 24-Mar-13 10:14:09

Hi

I was wondering if anyone has ever experienced an ectopic ceseraen scar pregnancy (where baby embeds into the c section scar). I was scanned friday (6 weeks pregnant) & they said baby is embedded very very LOW & appears to be on my c section scar. If this is the case its the rarest & mst dangerous form aparently as it could rupture & kill me at any time! I have bene sent home & am being sent to Addenbrookes tomm morning for another scan & CT or MRI to know for sure if its on the scar? if it is then treatment must start.

Has anyone ever had this? what happened to you?
Also....if they are wrong & its not on the c section scar BUT is implanted VERY low in the womb....is there any chance it can survive? they seemed to think NOT :-(

I lost my baby last november at 19 weeks gestation, this was the most painful time of my life & when i found out i was expecting again & baby was due on the day my previous baby died I just felt it was meant to be- a miricle.... why is life so cruel
xxxxxxxxxxxxxxx

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