Hi
We lost our baby girl on Tuesday 19th Feb, thought to be due to an infection caused by amniocentesis. I am feeling really sad today because our 20 week scan was scheduled for today and it should have been a really happy day. I had been really looking forward to today as I was keen to find out the sex and was really hoping for a girl. We were also planning to tell everyone including our 3 other children ( 2 DS & 1 DD) round about now.
I don't want to scare people as I know there are a lot of women on here who have amnio with no ill effects and I would like to point out the chance of losing a healthy baby due to CVS/ amnio is very low. But it does happen.
This is what happened. My screening test for DS had given me a risk of 1:135, mainly because of my age (40). Nuchal scan was 2.5mm, HCG was 1.96 mom, papp-A 1.07 mom. I was offered a choice of a) doing nothing b) CVS a few days later with a 1% chance of miscarriage or c) wait another 2 weeks and have amnio with a quoted 0.5% risk. Having 3 children already, we felt we wanted to know or sure so I opted for the lower risk test available which was the amnio.
I had it done at 15 weeks 5 days. On the day everything seemed fine. The membranes were fused - the doctor had said that if they weren't yet fused she wouldn't do it and I would have to come back at a later date. It took 2 attempts to get the fluid out but I had been warned that this sometimes happens and a clean needle was used for each attempt. Everything was sterilised beforehand and the doctor checked the baby's heartbeat afterwards and everything looked fine.
I had no side effects in the next 3 days. On the 3rd day, the midwife called to give me the good news that baby did not have T21, T13 or T18. Everything seemed to be working out well and we were planning to tell close family that weekend. Then the next day (Friday before half term), I had some cramping in the evening but put it down to tiredness. Saturday morning it continued but became more like early labour contractions so I rang the out of hours GP. As well as contractions, I had a slight fever (37.6) and I specifically mentioned to the doctor that I was worried that it was an infection caused by the amnio. She listened to the baby's heartbeat and then reassured me that infection was extremely unlikely and that I would have been more ill if this was the case so I was told to go home and rest and come back if things got worse. The cramping carried on all weekend and on Sunday evening I started leaking amniotic fluid. Monday morning I phoned the midwife at 9am and was told to go straight to hospital (with my 3 kids who were on half term). We spent the whole day up there having tests and scans and at the end of the day i was told (not in front of the kids thank goodness) that it looked like a chorioamnionitis infection, probably due to amnio, and that I would be advised to terminate the pregnancy for my own safety.
I had to go back the next morning for a 2nd opinion and the scan showed that baby had already died. Thankfully I was spared the decision to terminate but it still came as so much of a shock as up to then I'd somehow deceived myself that everything would be ok. Because of the risk of septicaemia I had to be induced straight away, and had the both the abortion pills taken together rather than 24 hours apart. It was the most painful labour ever because my body wasn't ready and I wasn't allowed an epidural because I had a high risk of clotting. Also, I was being sick all the way through presumably because of all the drugs as I've never had this happen in my other labours. My tiny but perfect daughter was born that night at 16 w 6d, about the size of my hand.
Still finding it really hard, thinking of what should have been. Every time I see a baby girl, either real or on the telly, it's just a constant reminder of what I lost. And I'm dreading the arrival of the royal baby this summer as I was due about the same time. I don't begrudge anyone else their babies as I have 3 healthy children and certainly wouldn't want anyone else to go through this, but I still find it hard seeing baby girls (strangely baby boys don't have the same effect). I feel cheated as we had already gone through a lot and overcome so many obstacles (getting pregnant at 40, morning sickness, amniocentesis, not having Downs syndrome) and just as everything was looking rosy, I turned out to be the unlucky 1:1000 who gets an infection.
Wondering if anyone else has been through something similar and how you coped.
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Miscarriage/pregnancy loss
late miscarriage caused by amniocentesis
25 replies
nennyrainbow · 11/03/2013 12:52
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