Ectopic pregnancy support thread

(869 Posts)
tasmaniandevilchaser Sun 18-Mar-12 18:15:29

Hi everyone, this is a place for anyone who's had an ectopic pregnancy - whether you want to moan, cry, fret or just have a chat with other people who understand. I know there's lots of other good websites on ectopic pregnancies but after hijackingchatting with sunshine on another thread, I thought I'd start one here.

Well I'll get the ball rolling with my story - after a MMC in November (found out at the 12 wk scan that the baby had died at 10 wks) I was just getting myself sorted, having counselling, when I had the ectopic. I know I am lucky in that I have a lovely DD. Having had a normal pregnancy, I knew from the beginning this one was not good and as soon as I got a BFP I was down at the hospital.

After 10 days of mental torture, waiting around, scans, rescans, blood tests, it got too late for the methotrexate (they finally saw the ectopic in a scan on a Friday early evening and the methotrexate wasn't in stock hmm)

I finally had the surgery to remove one tube on the Tuesday. This was the end of February, at first I wasn't sure how I would cope, but I am just plodding on. I know I am lucky that it didn't rupture, but honestly I can't think of having an ectopic as being lucky. Especially after a MMC sad.

Anyway, come join me if you want to share your story, I have wine, brew and thanks

TerrysNo3 Thu 05-Feb-15 11:36:41

Glad to hear that *Cinnamon", take care of yourself anyway and good luck for if/when you decide to TTC again.

Cinnamon84 Thu 05-Feb-15 10:02:54

Hi Terrys, thanks so much for getting back to me... Was having a bit of a meltdown yesterday waiting for results and didn't know where to post.
Doctor called first thing this morning and said hcg levels have dropped massively so it's not looking like ectopic thankfully. I don't know why she put that thought in my head in the first place when it was ruled out 3 weeks ago.

Thank you for your reply, don't know what I would do without mumsnet xx

TerrysNo3 Wed 04-Feb-15 23:20:09

hi cinnamon I'm really sorry but I have nothing to advise you on but I didn't want your post to go unanswered. Please do take care of yourself and come on here and I'm sure someone can help.

I'll be thinking of you and keeping my fingers crossed. thanks

Cinnamon84 Wed 04-Feb-15 09:47:47

Hi everyone, sorry to hear your stories. I went through a miscarriage last week. Doctors are a bit confused as I didn't seem to bleed a huge amount (I'm not sure how much as I was wearing thick pads which might have absorbed a lot and I didn't really understand how much to expect.) I passed something on Friday, which was like solid tissue but when I went for my scan on Monday the doctors saw an area of liquid (possibly blood) that looks like it has leaked out from somewhere, and also hcg levels are high, which concerns the dr. Just been for my second blood test and waiting for the results to come back tomorrow. I'm not really sure why I am posting this message but just processing information I guess. I did do some yoga on the day of passing the tissue, and did lots of upside down poses, shoulder stands etc, which might explain why blood has moved around. I've been feeling not right around my digestive system for about 3 weeks now, before any of the bleeding or spotting starting, and my stomach still feels tender and when I sit down it feels like I need to poo even though I don't. I'm just petrified that more than 1 egg was fertilised and that I've passed one but there's another stuck around my bowels or somewhere.
Sorry for essay/mind dump... Just having a hard time dealing with all of this and waiting for results.
Any support/ positive stories would be much appreciated xxxx

Lovemylittlebear Fri 30-Jan-15 17:54:30

Wow fantastic news terrysno3 smile Let us know how you get on and very best of luck, fingers crossed for you xxx

TerrysNo3 Tue 06-Jan-15 22:19:02

Hi all, just want to post a message of hope. almost 6 months after my ectopic in July (left tube removed) I have just got a Bfp!! Obviously it's really early days and who knows what might happen but I just wanted to share that I CAN get pregnant with one tube!!! grin

Llexy Tue 30-Dec-14 17:39:28

Hi there was wondering if anyone has some advice for me feel like I'm going insane, had a miscarriage of twins in October 2009 then a ectopic of twins one was in my tube the other in my uterus that had stopped growing in march 2014 loosing my right tube, found out I was pregnant 2 wks ago had scans an bloods got told 4 days later to expect miscarriage next day I started bleeding but nothing to heavy bled for 3 days and just had brown spotting since the past 3 days I have been having all the symptoms of ectopic again foned epas went bak over they done a test and it was negative is it possible to still have a ectopic with a negative test ? I just have that same gut feeling that I did last time that I never paid attention to which resulted in me losing my tube the last thing I want is to loose my other tube the hospital have assured me it's not ectopic due to the negative test but I'm really not convinced would just like to no if anyone has or knows of someone that this has happened to x

drmalpani Sun 28-Dec-14 19:49:34

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Caitmous Mon 22-Dec-14 00:13:14

Bumping for BlueSkyGirl thanks

jodiburak Sun 30-Nov-14 02:36:09

thank you terryNo3 the link worked.
and thank you Lovemylittlebear

Lovemylittlebear Sat 29-Nov-14 07:53:50

Sorry to see you on here. Fingers crossed it works for you. Things do start to get a bit easier over time xxx

TerrysNo3 Fri 28-Nov-14 23:56:17
TerrysNo3 Fri 28-Nov-14 23:55:45

hi Jodi so sorry to see you on here sad I can't give you any advice as I had the surgery and I don't think this thread is very active so whilst it's good for some support I would suggest you go onto the Ectopic Pregnancy Trust website as they have a chat forum but they also have volunteers who man the forum so you usually get a good response

[[ Here it is]]

I hope the methotrexate works and that you recover well, take care of yourself. thanks

jodiburak Fri 28-Nov-14 01:01:10

thank you Bakingtins,
I found out 2 days ago i have an ectopic pregnancy. i went for an ultrasound due to bleeding. The baby is half in my uterus horn and half in a fallopian tube. I got a dose of methotrexate to help me pass the pregnancy as i did not want surgery. I am 8 weeks along and the baby heart stopped beating yesterday before the injection. I have had a very sad week and now i am almost numb. I have not passed any tissue yet and am wondering what to expect? Also has anyone else had the methotrexate injection at 8 weeks gestation with an ectopic pregnancy...did it work? or did you need surgery at a later date? Help me understand what is happening or going to happen. please and thank you.

bakingtins Thu 27-Nov-14 23:02:04

Bumping for jodi.

Lovemylittlebear Sat 08-Nov-14 18:27:50

Thanks caitmous smile I'm in Wales and don't know of any services. I'm paying privately ATM for counselling and everything else which we can't afford to be honest. Hope everyone else is doing well xx

Caitmous Sat 08-Nov-14 11:22:19

Also, I had six months worth of free therapy from a pregnancy counselling charity. They are London-based. Let me know if you are and I'll DM you the details. Really helped.

Caitmous Sat 08-Nov-14 11:19:57

A good friend of mine had acupuncture for her fertility issues. She said she wasn't sure it helped in the end (she ended up conceiving through ivf) but got a lot from the holistic approach it took. She formed a close rapport with her acupuncturist and they spent time talking through a wide range of aspects of her life.

I think anything that feels right must be right. Go for it.

Lovemylittlebear Sat 08-Nov-14 10:32:54

I'm ok thanks smile coming to terms with it again. My best friend got pregnant at the same time so that's a bit hard as I'm happy for her but I am a bit jealous. My partner is reasonable lol...not overly conscientious but he is helping me through it with his optimism and sense of humour. I'm going to give homeopathy a go - I don't know if that's a bit wacky for me but I'm willing to try anything ATM. Does anyone else have any experience of homeopathy or accupuncture helping? Thanks xx

Caitmous Thu 06-Nov-14 20:34:14

Just caught up with the posts. I'm so sorry love. Really upset for you. How are you today? I hope you've got lots of real life love and care xx

Thanks for post mbd. I love hearing these positive outcomes, gives me hope.

Lovemylittlebear Wed 05-Nov-14 14:01:59

Thanks mbd for your lovely post.

Tranquility - feeling pretty negative about it all atm. I don't know what I'm doing wrong sad hope you are ok xxx

Tranquilitybaby Wed 05-Nov-14 09:52:44

How are you love?

TerrysNo3 Wed 05-Nov-14 08:24:55

mdb thanks for sharing your story, it sounds like you went through a horrid experience but it's great to know that even after all that you gave an amazing happy ending smile

MBDBBB Wed 05-Nov-14 06:36:40

Hello ladies. I just came across this thread and I felt I wanted to share my story with you, hopefully to give you some hope, and offer my support to those of you who are going through this.

I had my son with no issues in 2010. In 2011 we decided to start trying again. I quickly fell pregnant but very early on experienced some light pinkish bleeding. I had no pain but just this strange bleeding. I went into the EPU at the hospital and tests showed that my HCG levels were pretty high but there was no baby in the uterus. Initially they couldn't see anything in my tube either but an internal scan showed up the ectopic. Because my HCG levels were so high they said surgery was the safest option and they removed my right tube. Fortunately my left looked healthy.

I recovered well and we decided to try again late in 2011. I expected it to take ages with one tube down but again I fell pregnant quickly. I had a lot of pain from the start this time but no bleeding and although I was pretty sure something was going on the pg test was negative. The pain I had was on the right side where my tube was removed and the doctors were pretty dismissive. I had a lot of deferred pain under my ribs which I now know was due to bleeding.

I was at work when I suddenly had a huge pain in my right side. Somehow (very stupidly) I drove myself to a&e where I was left sitting for an hour until I begged to be sent straight to gynaecology. They were pretty dubious and dismissive. While they were spending a lot of time sorting out a scan I keeled over and passed out on their floor. Needless to say they then took me seriously and rushed me into surgery. Apparently I had had another ectopic in the same side as before and it had managed to implant itself into the little stump of what was left of my tube, which is pretty rare. I had also lost about 3 litres of blood internally and had I not got myself to hospital it could have been a whole different outcome.

I found the second ectopic much harder to recover from physically and emotionally. Thankfully my left tube remained unscathed though and I was assured I could still conceive. I felt doubtful, but thankful for my beautiful boy I already had.

In 2012 I conceived again and I was petrified. I had a lot of pain on my right side but this time the doctors were much more vigilant and I had an early scan at 7 weeks which confirmed the pregnancy was in the right place and I could even see a heartbeat. My pregnancy went smoothly and I now have a 21 month old beautiful girl.

I still experience pain when I ovulate on my right side and it is a reminder to me of what has gone before and also how lucky I am.

I know not every story ends as well as mine but I thought at one stage that there was no light at the end of the tunnel but it turned out there was.

To all those going through a hard time, I send lots of love and prayers. Know you are not alone in your experiences and there is always hope xxx

Lovemylittlebear Mon 03-Nov-14 08:31:46

Thank you - I shall ask for an hsg test. I hope its a MC too. Either way it looks to be sorting itself out, but I would have liked to have known if the fertilised egg made its way down to may uterus or not or if it got stuck in my tube again. It was right sided pain and cramping I was having (same feeling as last time) but my HCG dropped quickly by over double in 48 hours, so I don't know if that is more indicative of a MC or not? either way the Dr said there was no way to know if it was a misscarriage because it was tubal or a normal MC. They said I need to have three failed pregnancies before they will assess me.

I hope your next scan goes really well smile Thanks for the advices

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now