We were told at the wk20 scan there was a problem with baby.
Fast-fwd 13 wks, problems have been confirmed. Both kidneys huge (polycystic kidney disease) and appear to have no function. This means no AF and as such, baby is expected to die v.soon after birth as he will not have enough lung function.
Felt better able to cope a few weeks ago than I do now (33wks). Hospital we were referred onto initially were considering 'pinging' us back to the previous (which we didn't want, as if baby is better than expected, previous hospital don't have facilities). That was rather scary, not knowing what to expect and knowing that the consultants might not want us there if we did turn up.
Hospital not happy with us having an elective (they want natural, even though baby is breech and we are told labour will probably kill him as he'll get so squished without the AF). I want to be able to say goodbye and have the option of family saying goodbye.
At 33wks I now have PGP which means I can't walk much, feel exhausted all the time, dream about going into labour, disturbed sleep, and generally feel like crap. So many aches and pains, I'm (almost) constantly convinced labour is imminent.
Not only that, bump is now v.obvious and I'm too gutless to tell strangers who coo "oo, when's the happy event then?" the truth. I just smile, tell them the due date and pretty much run.
Most babies with DS' problems die. However, I do know two people who were told the same thing about their babies (10yrs ago, mind) and they are now 11 & 9 respectively. I am hoping DS will be one of these exceptions (and yes, I am a realist and know that is unlikely). So why, as I get closer to the birth am I finding it harder to cling onto any shred of hope and getting more scared?
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Miscarriage/pregnancy loss
It's getting harder, the closer I get (long)
14 replies
KarenHL · 14/11/2010 21:42
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