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Prostap injection - anyone else?

(35 Posts)
bumhead Sat 15-Dec-12 22:08:47

I am not sure if this is in the right section but I guess it is.
I have PMDD (severe PMS) and was put on 30mg Citalopram to deal with it.
It's a hormonal thing not a depression thing but the Citalopram helps a little, it isn't solving the monthly problem.
So I was referred and the Consultant prescribed 9 months of Prostap (like Zoladex) injections, to put me into medical menopause. After which I will be looking at a Hysterectomy and removal of my ovaries.
Had my first injection yesterday in my stomach which is bruised and hurting today,
Has anyone else had this and any side effects?

SummerTime123 Wed 27-May-15 20:09:56

Thanks sleepy46! Am just on prostap at moment with the view of adding HRT in with the 3rd and final injection. They are talking of removing overaries etc but they want to make sure it's def my hormones before they do it! I definitely get worse before I am due on but don't get much relief throughout the month.

Sleepy46 Wed 27-May-15 19:20:20

Ahh Summertime, poor you. It is awful having migraine. I have suffered with it for years as part of my PMDD but I have to say since being in Prostrap and Livial HRT addback, my migraines have stopped completely. Are you on Livial too or just Prostrap? I have been struggling with being on this treatment and sometimes feel like giving up on it but I am persevering, maybe your migraines will cease as your hormones fully shutdown, because I know that my migraines were menstrual migraine and came mid cycle and continued to my period so it was the hormones that did it for me. It can take a couple of months on Prostrap for things to settle and for your body to become accustomed to it, so stick with it, because I felt horrendous for the first 2 months and am starting to feel better now. Good luck.

SummerTime123 Wed 27-May-15 18:34:54

Hi, first time on a site like this but I am struggling and am hoping someone out there can reassure me?!
I have suffered migraines for at least 10 years (I am 33) I have seen specialist and had every tablet going. Last year I was given Botox (31 injections in head) but no relief, I tried it for 9 months. I have tried every complimentary therapy going. Doc's feel there is a strong hormonal link so I have started prostap. Had 2nd injection yesterday. Migraines have increased in frequency and severity. I usually have at least 15 bad days a month now I have more! Is it likely to get better?! Or would it have started working by now? I get so down as migraines effect every part of my life.
Any advise appreciated.

Sleepy46 Sat 28-Mar-15 14:47:25

Hi Clare, Sounds like your first month seemed alright. I am going on Monday 30th to start my prostrap injections. I have been quite anxious and worried about it, but now I think I've got to the point, that Im so fed up with PMDD controlling my life for the past 10 years that I've got no choice, I'm also nearly 48 and peri menopausal so that adds to the misery aswell. So have resigned myself to the fact that I will start these injections and see how things go. I have to say though all the negative stuff I've read on the internet is quite scary. Have you been able to go to work (presuming you do ) since the injection?

clare4100 Fri 27-Mar-15 22:42:31

I have just had my second injection...I'm pleased to say that the first month has gone fine, hardly any pain, thd pain before the injection was awful. I haven't put any weight on, although not had any hrt so not sure if this is linked with weight gain? Had a few hot flushes but would rather them than the pain! So far so good :-) I have however had a fair bit of bleeding, this will hopefully stop now. Tablets to control the bleeding have helped.

Sleepy46 Fri 20-Feb-15 11:12:02

Ahh your comments and words are just what I need, thank you for your kindness. To be honest, what you said about the injection changing you or your personality is not as daft as you might think, because I have been thinking that too. My hormones, whether up or down, are what have shaped me and I was thinking that if my hormones are no longer there, what will I be like and yes, will I be any less of a woman and will I suddenly look old, because it is actually our hormones that keep us young looking. I just hope that I don't get loads of lines on my face - arrgh!! couldn't bear that! I also hope I don't get fat (that is, any fatter than I already am!) ha! I have read that Prostrap puts weight on you. As for my relationship with my husband, well I have heard that the HRT breathes new energy into a relationship, I hope it does, my poor husband is very understanding, but I think he is fed up of my saying I don't feel like sex all the time, but it's not me, it just my bloody hormonal state that stops me wanting to do it, both physically and mentally you just don't want to do it, it's weird, so here's hoping that the new chapter in my life on Prostrap will put me on a good equilibrium and breath new life into my relationship. I have taken comfort from your words and yes, I will embrace this rather than fight it and see where it will take me, hopefully on a new, positive, happy phase in my life.

LadyMuck44 Thu 19-Feb-15 17:10:15

Hi Sleepy46. You are right in thinking I'm only having the Prostap injection & not HRT as I'm not suffering in the slightest with menopausal symptoms. I have my injection in my tummy & that just feels like a scratch when the needle enters my tummy.

Don't be fearful of having the Prostap as from what you've said on here, I don't feel it'll make you feel any worse than you do already. Who knows you may feel tons better either having it on it's own or topping it up with HRT. On the off chance that you do feel worse then you can stop having them. I understand that they wear off if you don't keep having them.

As for going to work straight away I can defo say IMO that you should be able to go to work the same day as having it. I've got a tiny bruise on my tummy from the injection but that's it!!

I too was dreading the potential side effects & feel bit silly saying it, felt that by having my hormones stopped I'd be less of a woman somehow. My husband is pleased as we both thought I might change personality (lol) as no longer producing the hormones but I'm pleased to report it's not affected our relationship at all.

I hope you take comfort from my experience & maybe embrace this issue instead of fearing it. I don't think you've got a lot to lose but potentially everything to gain.

Sleepy46 Thu 19-Feb-15 14:11:00

Hi Ladymuck I too have never posted anything on a forum before, but saw this and am that desperate to speak to other women in the same boat as me, that I thought I'd speak up. I see other women at work, who are late 40's early 50's and I think why am I suffering so much each month and yet they look relaxed and calm and all chirpy and there's me slumped at my desk feeling horrendous and looking a mess (at least that's how it makes me feel). You start thinking is it just me and no one understands. So , you haven't suffered any dizzy spells, visual disturbance or anything when you started on prostrap.. Were you able to go to work after you had had the injection and carry on as normal? I take it you only have prostrap and no HRT? I hope this works for me, I know my husband hopes it works, cos I think he's had enough of me moaning all the time and saying Im tired, get off...

LadyMuck44 Tue 17-Feb-15 22:33:39

I've never posted on a forum before & am really pleased Sleepy46 that my experience of Prostap has given you hope. I had my latest injection yesterday & this time it's a 3 month dose. My gynae is confident now that I've not experienced any side effects (so far) that she's happy to keep administering them every 3 months rather than monthly til I reach a natural menopause age or to reassess if/when the Prostap stops working for me.

I'm hoping Mother Nature is now being kind/fair to me as I've suffered so horrendously since I started my periods aged 10 with this (I'm 45 now). Here's hoping that as good karma I sail through a medically induced or natural menopause with ease! Fingers crossed.

Sleepy46 Tue 17-Feb-15 21:02:02

Well after all the negative stuff and horror stories I've read about Prostrap, the last review has really given me hope. I feel a bit more positive about having it now, fingers crossed I will feel fantastic too. Thanks LadyMuck44.

LadyMuck44 Mon 16-Feb-15 18:07:53

Hi Ladies, I've had problems all my adult life with my periods ie being excruciatingly painful, very heavy & short cycle! For the last 15 yrs or so (I'm now 45) it also became unbearable between periods with the pain. I've been hospitalised numerous times from it but all any of the NHS Drs or GP would say is that there was nothing wrong with me medically & thought I had irritable bowel!! I was at my wits end as I knew it was something to do with my ovaries/ hormones/ menstral cycle.

Anyhow to cut a very long story short my husband has BUPA through his work & we decided enough is enough & to use it to seek a private consultation with a gynae. I was seen immediately by her & told her all about my medical history. She ran a few basic tests & established that she was certain it was hormonal as well as having loads of fibroids & if I wanted a long term solution that she would if I wanted to, give me a full hysterectomy! I was gob smacked that it was that easy to have one. I advised her that I just wanted the constant pain in my abdomen & womb/overies area to stop permanently.

It was that easy, after fighting the NHS for all these years & being dismissed to "take a paracetamol if in pain" from NHS Dr's. I first saw the private gynae 4 months ago & have been on Prostap injections monthly since to prepare me for a hysterectomy.

Well I'm pleased to report that having the Prostap injections has changed my life!!!! I haven't experienced any pains whatsoever through the month, not even a twinge. I feel FANTASTIC!! When I told my gynae when she asked was I experiencing any menopausal symptoms I can honestly say I've not had a single symptom ie no hot flushes/weight gain/lethargy etc etc. my gynae is amazed as normally Prostap will induce an early menopause. My gynae has agreed to keep me on Prostap long term as it seems to be working for me. We have decided if having Prostap injections keeps my pain at bay then I can stay on it & not undergo a hysterectomy at all.

Hooray for husband having BUPA as without it I would still be suffering terribly having to use the NHS who clearly failed me in this instance.

Sleepy46 Wed 11-Feb-15 13:12:17

Hi, is anyone still reading this thread who has been on Prostrap injections with Livial add back. I am 48 and have suffered for years with severe PMDD, absolute nightmare every month, as you all probably know, two weeks of the month I am full of energy, happy, confident woman and then the next two weeks, cant bear to go over the doorstep, no energy whatsoever, depressed mood, migraine, aching from head to foot, the list is endless. I am constantly off work and worried I am going to lose my job. Have tried all kinds of herbal remedies over the years and the ladycare magnet, but nothing seems to work. I have now reluctantly decided to start Prostrap injections with Livial HRT and am due first injection at the end of March. I wont lie, I am absolutely terrified to take it, after all the negative horror stories I have been reading about it. Please, does anyone on here have any positive experiences of this and has it improved their quality of life. I need some hope here... help!!

Lisamngirls Fri 14-Nov-14 21:47:38

Hi there, is the anyone still around on this thread. I have been on prostap for a couple of years now for pmdd.......not sure whether to make the final leap for the full hyst? Would love to chat about this, Lisa xx

sunflower1093 Mon 07-Oct-13 20:07:56

I have severe PMS also and have spent years suffering .This became worse around the age of 40 im now 43 .
Finely I was referred to a Consultant and prescribed 9 months of Prostap injections along side HRT add back to put me into medical menopause. After which I will be looking at a full Hysterectomy or removal of my ovaries.
I have to say its saved me starting this treatment.Feel like I have my life back .
Im due what should be my last three month injection on the 9th Oct .Seeing the consultant on the 21st Oct where I will be having a scan again and discussing which operation is best to go with.
I have had a few scares on the way ,one being womb lining becoming thicker and bleeding .I cant fault the speed in scanning ,blood tests and the tests to rule out womb cancer.This is why im being scanned again this month to check on the lining again.
Mentally I feel well as I do with all the physical effects that I was having.
My weight is under control but I have put weight on.(Hoping this will go after the injections stop).
If anyone has since stopped their injections and has gone a head with an operation please can you let me know how your getting on.
I will remain taking the add back after my operation.
Thanks for any of your input
x

CARROTSATNAVBEN77 Tue 17-Sep-13 10:25:15

Hello; My Daughter is 35 she had prostap injections 14yrs ago and now she cannot talk, walk, eat ,write, properly and now doesn't talk hardly this is what its done to her .

Flojobunny Wed 26-Jun-13 18:05:06

I have just found this thread. I have had my first pro stap jab for PMT, I'm on day 21 of cycle and have started to bleed so was looking to see if this is normal or if I need my next jab earlier or something?
Glad to see it has helped, scared about the side effects, especially since I was having depressive symptoms and all the info states how depressed it can make you.

Bowwow123 Fri 14-Jun-13 17:43:03

Hi,
Just found this discussion as I have been browsing the net looking for ladies having similar experiences to my own. I have pmdd and have had it really rough over the last 4/5 years. My symptoms changed from anger and aggression, which I could deal with, to anxiety/fear etc (add that to the hormonal migraine and heavy prolonged periods and I had definitely had enough!!)any way as a last result I asked for a hysterectomy, I'm 41 got three lovely kids and knew I could not try any more drug therapy. I've had everything from the mirena to six months of norethisterone six months off cycles, numerous pills and then more recently citalopram for the one half of my cycle and then hormone therapy for the second, which worked for just over a year till my own hormones took over again! anyway I just wanted to say that I have been on prostap for 19 months and think it's brilliant. I know longer wake with panic attacks and confusion and other than struggling with my weight all of my other symptoms have gone. I had a small break of two months about 9 months in and begged to be put back on them as all the ugly pmt symptoms hit me like a sledge hammer almost immediately. I am now and have been waiting for my hysterectomy and can't wait for my hospital to catch up with their waiting lists so I can finally get on with my life. btw I started kliovance add back hrt approx. ten days into starting prostap and was told it was definitely needed to keep my body ticking over (bone health etc) so please do speak with your doctor to make sure you get yours. I hope this is helpful to anyone starting the prostap journey. the risks of the med far out way the misery of the dreaded PMDD!

Dreamdorset Sat 13-Apr-13 11:30:35

Hi,

I have just been offered prostap injections for the next 3-4 months withthe view of a full hyst due to PMDD. Was wondering how you are getting on?

Thanks

Chihuahuas Sun 03-Feb-13 15:08:34

Ps there are guidelines that all gp practices should be aware of too for managing Pms. A collaboration between naps and my gynae.

Chihuahuas Sun 03-Feb-13 14:56:33

Hi ladies. It's a Facebook based group. We are an offshoot from the naps forum which since it closed down for 6 months and then reopened has never been the same. If you want to message me and your on Facebook I can add you.

The early menopause group where I moderate is also on Facebook and was started up by a Pmdd survivor called Donna Barrowman and a women's health specialist who had the op for Pmdd herself. On both groups we've helped lots of women.

Ps your gynae is wrong about not having hormone replacement. If your def having the op then you should be able to take oestrogen only and vaginal oestrogen will sort out any thrush and uti type feelings. 9 months isn't that LNG to go on unoppsed oestrogen. Why suffer unnecessarily? Unfortunately most ladies still have to battle to get hrt post op which is just silly as British menopause society guidelines state there is no evidence of risk taking oestrogen replacement up to normal menopause age. As long as benefits outweighs the risks oestrogen will always be on my shopping list.

I also saw a private gynae who specialises in Pms works from Londonbthen transferred my care to an nhs gynae. I bypassed my gp as she said I was just a depressive person.

Everyone who knows me can't believe how much ive changed.

Hot flushes are under rated. When I used to get them I got palpitations, awful feeling of doom and anxiety then vomit then get hotter than the sun then colder than the North Pole bleugh.

X

bumhead Sun 03-Feb-13 13:35:14

Kiwi I had to go private too because my GP practice were next to useless.
My private doc is marvellous and he suggested the Prostap so wrote to the GPs telling them to give it to me.
They claim they don't do it there (EVERY GP practice does Prostap but somehow mine is special! hmm) they referred me on again and the consultant I saw this time (was actually at a private hospital) sorted out two injections on the NHS and wrote a strongly worded letter to my GP practice demanding them to stop messing about and give me my further injections. They haven't even bothered replying! angry so I have to start hassling the practice manager one month before my jab is due and if no joy then get back in touch with my consultant! It's a joke! How many women with PMDD and up killing themselves because they can't get any help or their Drs are obstructive??
How are you feeling about your op now?
The hot sweats are awful aren't they? I've taken to wearing a vest and cardi so if I'm flushing I can remove a layer but I do worry about smelling sad

kiwigirl42 Sun 03-Feb-13 12:47:21

It just seems to be a battle all the time to get help

I so know what you mean. I paid privately to see a gynaecologist when my migraines really kicked off who wouldn't agree with me that they were hormonal. Its taken 6 fecking years to get them to try Prostap etc and finally agree. Basically its wreaked my life. I 've lost a lot of faith in Dr's and the NHS - unless its 'exciting' they just don't want to know. Just another middle aged woman with a health problem was the impression a lot of them gave me.

Still haven't got a date for my op. It is supposed to be this month so am on tenterhooks!
I hadn't realised how bad hot sweats could be until now. Horrible things. And I smell funny - like an old lady! Need to try drinking loads and try to flush it out. I seem to get thrush every month as well since starting Prostap. Nice

bumhead Sun 03-Feb-13 12:27:20

Hi Chihuahuas!
It's always good to hear from other PMDDers (although not good that you suffered with this too, it's a living hell!)
Thank you for your posts, I feel like I am struggling to find other ladies in the same boat as me. It's lonely sometimes!
I had my 3 month jab last week and this time the Doc said I should only have 7 months of jabs then surgery and not 9. Not having any add back HRT at the moment. She said there was no point stopping my hormones then adding them back at this stage.
Am having hot flushes by the bucket load and waking up bathed in sweat on a night. sad Also fluey feelings whenever my hormones would be rising and falling normally (ovulation, pre period etc) This is only month 2 though so hopefully it will get better!
I just want to feel 'normal' if that makes sense.
Can I ask where the post surgery PMDD forum is please?
Like I said I feel alone in this a lot and am fed up when going to my normal GPs them googling PMDD because they don't know what it is. sad It just seems to be a battle all the time to get help!

Chihuahuas Sun 03-Feb-13 09:30:16

Oh and I had keyhole and I would def say 12 weeks recovery time is needed then your body will adjust to its new surgical menopause state over the next year. Recovery is a subtle process. I wouldn't change a thing though. Never felt happier. Around 5 percent of women have pre menstrual dysphoric disorder. I had it for 7 days pre period and would fade on day 5 of period. I had a really short cycle so was a constant roller coaster of suidical thoughts and rage and self harming sad

Chihuahuas Sun 03-Feb-13 09:24:44

Hiya

I'm two years post hyst and removal of ovaries for Pmdd. I had mine at 39. At my worst i was on 60mg of citalopmam them 40 mg of proxac then 49mg duloxatine. I tried every combination of things going but at the end of the day pmdd is caused by intolerance of progesterone so the womb and ovaries had to go! No ovaries means no progesterone is produced and no womb means i don't have to take replacement progesterone to protect the womb from cancer. Transdermal Oestrogen only hrt is far safer option too than oral or combined hrt.

Took me a loooong time to balance my hrt and remove nearly all menopause symptoms but finally managed it. I take sandrena gel 2mg and testim gel daily. I feel good although I still get more tired out than everyone else.

I didn't have suppression like you. I was too far gone mentally and couldn't face taking any more progesterone. Too suidical on it. Was getting harder and harder to fight the overwhelming suicidal urges.

Have you been offered any add back hrt to go with your suppression. Sure your aware that you will now enter chemical menopause ? (Or hopefully if the jag does its job).

I'm always around if you need assistance. I'm a member of a post op for Pmdd group and moderate an early meno group.

Hope your feeling that the end of Pmdd is in sight.

X

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