(1000 Posts)
AngryBeaver Sat 11-Aug-12 00:58:37

Arrgh,had to start a new thread!

Yes,you can get more land in Tauranga. Well,somewhere like Omokoroa or somewhere.Wouldn't want to live much closer than that. And I woulkdn't want to live at he Mount. Lovely as it is. Too touristy,imo.
We would like enough land for a pool (eventually) maybe a sleepout and still enough for a veggie patch and garden for kids. Don't neeed acres +. Wouldn't say no though,if we could afford it! Be nice to have a few sheep or something/

I think Mum would have to fly to Tauranga. So that would be
Manchester-London,London-Singapore, Singapore-Aukland,Aukland- Tauranga

justa howws the back? Hope physio was a help,we may have driven past you!
Your house sounds great.
My mums friend lives in Silverdale.She has about an acre with some sheep etc
Wasn't overly impressed at but didn't give it a proper look I suppose,just stopped to buy flowers for Mums friend! Always worth another look

meerkate Mon 12-Nov-12 14:34:32

lots of love justa, just been catching up - really, really hope you get home tomorrow or very soon after that. what a sitch - on top of everything else that's been going on, too. man oh man. lovely to hear about your little one's abrupt exit from chair, entry onto cricket field (hospital version thereof)...hope it's a sign of definite sustained improvement. keep us posted xxx

justaboutchilledout Mon 12-Nov-12 18:26:11

Hiya. Well today not good, he has woken up in bad pain again - I am making him walk, and yes he can do it but he is shouting in pain all the way. Rheumatology physio coming to see us today.

WhatSheSaid Tue 13-Nov-12 01:12:18

Do you know how long you'll be in justabout?

thelittlestkiwi Tue 13-Nov-12 01:29:04

Private room is good. We were sharing a room designed for one with another family. Which mean't me sleeping on a mattress by the door that the nurses kicked every time they came in to do hourly obs. It was so grim.

I found the nurses very mixed and quickly became quite demanding. Don't let them fob you off! Particularly when it comes to pain relief which I found them very reluctant to give. Although you sound much more clued up about hospitals than I was!

justaboutchilledout Tue 13-Nov-12 07:39:50

Oh goodness. Yes that must have been horrid kiwi. That sounds like the hideous night I spent on the orthopedic ward earlier this year - never, ever, ever again...
We're home now. And back to school tomorrow.

On paper, we have something to describe DS1's symptoms - not the cause, but the symptoms. This should help us get support for him in school. That's idiopathic recurrent arthralgia and myalgia: which translates as unknown-cause recurring joint and muscle pain. There is no definite, but a couple of ideas as to what could be going on.

As far as we know, there are now two theories as to what could be causing this: one is hypermobility, BUT the pattern of pain is not quite what they are expecting with that. It's not ruled out, but it's not ruled in (and if you get that diagnosis it causes trouble for claiming from ACC, so it is an absolute last resort for now).
More likely they think is a form of functional pain disorder. The theory is that what may have happened is that he had an episode of transient synovitis (irritable hip) in which some inflammation set off some kind of nervous system reaction. He is thus getting pain, severe pain, from joints all over his body: but this is a result of the nervous system sending faulty signals rather than damage or inflammation to the joints. The good thing is that, if that is true, he isn't going to degenerate and die horribly at a young age whilst I write about it in gory detail on MN :-) The bad thing is that there is no cure, and it doesn't necessarily get better with time.

For the time being they have ruled out all the big nasties, which is a relief at least.

thelittlestkiwi Tue 13-Nov-12 07:52:23

So pleased you are home!

What is the treatment plan? Is there anything they can try for option 1?

justaboutchilledout Tue 13-Nov-12 07:55:55

Not really. Treatment is identical for both- pain relief when he needs it. Wheelchair when he can't manage without it, but for short bursts, and then we are to encourage him out of it. Since exercising and moving around seems to decrease the pain, we work on that. No time off school unless absolutely essential, BUT efforts made to put support in place at school so he can attend comfortably. We can apply for stuff like ramps, adaptations etc as he grows bigger and harder to manage.

thelittlestkiwi Tue 13-Nov-12 08:24:00

Is that similar to what you were doing - but hopefully with more support?

justaboutchilledout Tue 13-Nov-12 08:27:24

The big change is trying to get rid of the pain through exercise - but to be honest I am going to let him rest too, because it's responded well to rest in the past, it just didn't this time.

vvviola Tue 13-Nov-12 08:43:01

Oh justabout what a few days you've had! Glad you're home and so glad the big nasties have been ruled out.

If it is the "faulty signal" reason, is that something that can be treated by blocking the signals?

Sending you lots of hugs... and a promise to sympathise over coffee the next time you have a free minute to relax.

justaboutchilledout Wed 14-Nov-12 02:43:32


If it is the faulty signal, no, there is not much they can do.

AngryBeaver Wed 14-Nov-12 06:30:18

So sorry you are having to deal with all this justa, how incredibly stressful. Spells with dc in hospital are always very draining and worrysome. I hope you are remembering to look after yourself as well as ds.
We are moving tomorrow, so I will be without internet for 5 days or so.
I know you will all miss me terribly, try to stay strong for each other grin

xMinerva Wed 14-Nov-12 08:47:08

So glad to hear that you're home justa. What a tough time you're having lately, have been thinking of you though and hope things start moving in the right direction for you all now.

I'll be happy to be an ear over coffee too.

Hope the move goes well AB.

meerkate Wed 14-Nov-12 13:53:56

grin at AB good luck pal, and hurry back after the five days are up (that's all you're allowed off here, mind! five and not a minute more)

justa - lovely to have you back home 'with us', so to speak smile man oh MAN those differential diagnoses sound full-on...hope you soon find that everything subsides and that you get the help you need.

DH will be interviewed by Skype towards the end of the month for the Auckland job, so we'll see what happens. The Tauranga one isn't advertised until March. We'll see smile

frikonastick Wed 14-Nov-12 14:59:18

Good luck on the move AB, and meerkate, good vibes for your DH!

Hope you are having a better dy today justa :-)

vvviola Wed 14-Nov-12 22:49:20

There's a brass band playing Christmas carols in the mall. Christmas carols hmm in November! angry. Thankfully DD1 isn't with me or she'd implode with excitement.

I have (yet another) confession. I wimped out on the $10 hair cut. I just couldn't do it. I went to just cuts today instead. I'm honestly not hugely impressed - but then my hair is a pain to cut at the best of times, and they've neatened it up a bit, for not a huge amount of cash.

xMinerva Wed 14-Nov-12 23:48:18

Dp paid $55 for a bloody trim the other day in glenfield mall.

She didn't do a very good job. Think we'll stick to me doing it with clippers from now on.

justaboutchilledout Thu 15-Nov-12 03:35:52

shock at haircut talk.

I am obviously going to have the longest hair in Auckland at this rate!

Meerkate - you think so, as a GP? Oh dear. I was hoping you would say "ooh yes, happens all the time, no worse than a headcold" smile

BUT I have some good news. DS1 fell and hurt his back yesterday, and this morning was complaining of a sore back and stiff neck. So I took him to ACC physio (free at Te Puna Haora, if anyone ever needs to know) - partly to rule out any easy-to-miss injury but partly to see what she made of him.
Anyway, it was fascinating. He had a definitely sore stiff neck, consistent with the injury: but the back pain was more of the odd-stuff-that-we-can't-explain properly. And after examining him, she said it was strange, it was very similar to a sensory type of pain. Which if it is true is great news in a sense, because a lot of kids with ASD have sensory issues and there is stuff that can be done about that. I've got a sensory-specialist OT ringing tonight to talk further.

meerkate Thu 15-Nov-12 11:09:42

justa I just mean there is always a bit of a heart-sink aspect to diagnoses where there is masses of uncertainty, isn't there - for you as a parent especially - and clearly your doctors don't know how this is all going to pan out. [As you so rightly said above 'idiopathic' (a word that always makes me smile) just means 'we haven't a clue why this has happened!'] Which means, on the plus side, that there is CERTAINLY room for optimism! There is just SO much that isn't known about the mind-body-spirit interactions, isn't there. Most GPs, myself included, will only have perhaps one experience of a child with this sort of problem in years and years of practice, so no GP could ever claim expertise in this area. But one thing is for sure, no-one knows what the course of a problem like this will be. Perhaps it will all settle down mysteriously again - fingers tightly crossed!

justaboutchilledout Thu 15-Nov-12 23:19:34

OK, got you.

WhatSheSaid Fri 16-Nov-12 01:05:13

Tesco have extended the free international shipping till 7th December...I think Im going to have to cut up my credit card...it's just too tempting.

justaboutchilledout Fri 16-Nov-12 01:45:05

Oh no!!! How can they!

vvviola Fri 16-Nov-12 15:00:58

~tongue firmly in cheek~ can anyone tell me if moreporks are protected, and if not can I shoot the one outside my window.

I've been up for an hour & a half with DD2, and now the infernal thing is hooting outside my window again so I can't sleep angry

lollystix Fri 16-Nov-12 18:20:27

Checkout the new John Lewis ad on you tube - I actually cried .

Would copy and paste the link but I can't figure that one out

WhatSheSaid Sat 17-Nov-12 19:44:04

I just read in the Herald, apparently that ad was filmed in Queenstown


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