This is going to be a long thread, I've started to write it a few times but I've not been ready.
Been with DP a few years, living together about 3 & 1/2 years. My kids live with us and stay over with their dad regularly. His kids are older (a'level & uni) and he has contact but it's not great. No contact between me and his kids, other than me being there sometimes when he gives the youngest a lift, and the youngest came out with us to the cinema and then a meal just after Christmas.
His divorce finalised early last year and mine a couple of years ago.
Last year he talked about getting married a couple of times but I wasn't ready (been there, done that, got the fail t-shirt).
Towards the end of the year he stopped mentioning it and I started thinking about it. At Christmas I asked him if he still wanted to, he said yes. Both very happy. Didn't do anything about it then on holiday in Feb decided if we were going to do it we might as well sort it out. Didn't want anything big, just very close family at the ceremony and a meal afterwards. It was the marriage that mattered to both of us, not the day.
Told my parents and kids mid-March and at Easter told his mum and sister & family. He told his kids and we set the date for early June.
At lunch at Easter he was feeling a bit under the weather, dicky tummy and loss of appetite. This carried on for a few days with a bit of the runs but then that passed.
Meanwhile I'd arranged the registry office appointment to give our wedding notices and booked the ceremony. We did that but he wasn't feeling any better so 2 days later he called the doctors and got an emergency appointment. This was the Thursday 10 days after Easter.
It seemed to be just an upset stomach from what he said to me, but he was feeling full when not eating much and had lost his appetite. He'd Google his symptoms and mentioned throat cancer which just seemed ridiculous to me.
GP referred him for an urgent endoscopy and talked about throat cancer, she also gave him some acid reflux tablets but said she didn't think was that. DP told me about referral but maybe downplayed the seriousness or maybe I didn't want to hear it.
The endoscopy 2 weeks later revealed a large growth, almost certainly cancerous, at the entrance to his stomach from the gullet. They took 5 biopsies and referred him for a CT scan.
By this point he couldn't eat any solid food but was having creamy soups etc. Was prescribed fortisip liquid meal replacements and was managing to get these down but not enough. He lost a stone in 3 weeks.
Consultant appointment confirmed growth was cancerous and had spread to his liver.
We were told average life expectancy was about a year, but could be slightly longer or significantly less depending on treatment.
They were waiting for HER-2 results to confirm whether Herceptin would be a possibility. That has now come back and is positive.
Meanwhile his ability to take in food was reducing and he wasn't taking enough fluids. This suddenly reached crisis point 12 days ago and he spent Thursday evening unable to keep anything down.
We came into the cancer assessment unit and they put him on fluids then tried to put a feeding tube in but couldn't. He was admitted and kept on fluids then had a PICC line put in and put on IV TPN (feed). He was on this all last week and then on Friday morning they fitted a stent, no one had been at all certain this would be possible until we were in endoscopy and the doctor said he didn't see why he wouldn't be able to fit it.
Until Friday I've spent most of the time wondering if he'd come home again. The first few days he was very dehydrated and in a seriously bad way. After they got the TPN going through the IV he started to improve but was still a mess.
He has been getting up to go to the toilet and shower but that's worn him out and he has been sleeping a lot.
He has also been having temperature spikes and on Friday evening they started him on antibiotics.
He has spent the weekend building up from clear fluids to soft food and is now eating reasonably well, although just soft foods and is quickly full, so little and often. They left the TPN on at first and took it off on Saturday evening as the eating was going well.
He should have his first chemo today (looking more unlikely as the day goes on) or tomorrow and if everything goes well be home on Wednesday or Thursday, but I'm not counting my chickens yet!
The last 6 weeks have been like running into a brick wall only to have it then topple down into you.
We have both been in shock and then this acute crisis on top has been hell.
The utter relief that the stent worked was then replaced by the shitty facts of the whole situation.
We are meant to be getting married next week.
I honestly don't know if he'll even be home by then, although I'm obviously more hopeful now he is eating.
given the timescales we haven't planned anything. I have a dress and jacket that I found when we went shopping the weekend after the initial doctors appointment and which I then ordered online. He basically has nothing that would fit him now, he's probably lost two stone now in 2 months and had lost a stone between last September & Easter (I've been losing weight and he was vaguely doing the 5:2, or 6:1!)
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Life-limiting illness
DP - advanced stomach cancer - liver mets - diagnosis - crisis - wedding
Chasingsquirrels · 23/05/2016 13:27
Sorry, I don't want to read and run. 
does the hospital have a Chaplin who might be able to help?
Very sorry to hear this
Chemo worked v well for my dad and tumour entirely disappeared which helped a lot with appetite/energy. He had a new lease of life for a while. Chemo was tiring but not too awful.
Chemo can work very quickly in such a situation.....the fact that he is also Her 2 +ve is also a 'bonus' as herceptin works in conjunction with the chemo ( it is not actually chemo) be warned that his blood counts ( platelets, neutrophils and haemoglobin) will be at their lowest in about 7 days, so may be better to plan any ceremony just before start of next cycle of chemo in 3 weeks xx hope you're getting plenty of support, your CNS should be a 'go to ' for any advice....as is Macmillan
Wishing you well at this horrible time xx
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