Mumsnet has not checked the qualifications of anyone posting here. If you have any medical concerns do consult your GP.

COPD

(14 Posts)
SummerRain Tue 17-May-16 12:03:13

Could do with some advise, or reasssurance. I've been away from MN for a very long time (ex was stalking me on here when we split so had to step away) but I really need the infamous MN straight talking and wisdom right now.

I've had a cough on and off for a year and a half... It's a dry cough, no phlegm but it leaves me gasping for breath... I'll cough so hard I feel like I'm going to throw up and can't draw breathe... when the spasming stops for a second I'm so out of breathe I gasp in air like a drowning person.

Want to the doc a few weeks back with a sinus infection and mentioned the cough as it was flaring up at the time. He put me on ABs, steroids and said it was bronchitis but he was concerned that I'd been getting it on and off for so long.
Was back last week and no improvement. New ABs, more steroids and a powder inhaler. He says it appears to be COPD and I'm due back tomorrow for blood results and to be referred on to hospital.

I'm 32, a single mother to 3 kids, my dad died last month so it's just me and my mom and the kids left... I have no siblings, no boyfriend, ex is a waste of oxygen who barely even sees his children. I work and do my best to provide the kids with a decent life.

I don't know how to deal with this... I've had so much crap thrown at me the last few years and tbh the thought of a life limiting, incurable disease is just more than I can cope with atm.

I do smoke btw... not much and I'm quitting now, tried cold turkey but that didn't go well but down to 3 a day since last week (was 10) and will stop completely

SummerRain Tue 17-May-16 21:37:44

Bumping for the evening crowd.

Can't go to docs tomorrow now as I've been called into work to cover for somebody so I'll have to wait til Thursday.

Cunties Thu 19-May-16 08:05:03

Good luck today summer.

Itscliffmas Fri 20-May-16 20:59:12

How did you get in summer?

I have just been diagnosed with this.

SummerRain Fri 20-May-16 21:03:00

Thanks ☺

Doc says lungs still don't sound good. I'm on combination of inhalers for a month and he's getting x-rays done.

SummerRain Fri 20-May-16 21:04:59

Hi itscliff... cross posted with you there.

How long did it take you to get a dianoses. Seems to be a case of waiting it out before I'll get referred for further tests. Doc has put me on COPD inhalers but I still don't know for sure if I have it

daisydalrymple Fri 20-May-16 21:07:28

Sorry to hear you've had this worrying time, I'm hoping the news was better than you were expecting, but do update if you need support. I just wanted to say congratulations for cutting down the cigarettes so quickly too. Hope you're ok.

Itscliffmas Fri 20-May-16 22:54:03

I had a spirometry test last week as my asthma was getting worse and the GP was concerned, after that I was sent for a chest X-ray (that was walk in at my local hospital) the results came in a few days later.
It's a complete shock as I thought we were looking for a lingering chest infection.
I've been given a new inhaler too and referred to a specialist.

I haven't told any of my friends or family yet. I can't face it yet. I'm a smoker too... Well was!

GraysAnalogy Fri 20-May-16 23:01:36

If you do have COPD, there's support out there for you and of course people on here who you can speak to. Nebuliser therapy provides quite some relief for people with COPD - but you have itscliffmas here who can help you with that side of things. I'm a HCP who sees people with COPD and whilst some are very limited it what they can do, many are able to manage their illness very well and it doesn't have to be as life limiting as it once was.

One thing I will say is that it's a condition that seems to goes hand in hand with anxiety for many people, both which can exacerbate the others symptoms. so getting help for this if you have anxiety early on may prove helpful.

flowers

SummerRain Fri 20-May-16 23:47:06

Grays... that's interesting, I do suffer from anxiety and depression. Both of which have been quite bad lately due to everything thats happened. My physical symptoms have been the worst they've ever been... I had put it down to being run down due to stress.

I have two kids with asthma so unfortunately nebulisers and steroids are part of our daily life already.

Itscliff... I've told nobody apart from my best friend either. My mom knows a bit but I've minimised it so as not to worry her too much. My dad went into hospital in February with chest problems and died 5 weeks later so it's really not a good time to be telling her the doctor thinks I have COPD sad

CalleighDoodle Fri 20-May-16 23:52:32

My dad has copd. But he seems to be managing ok. he was diagnosed after giving up smoking. .he'd had a smokers cough for years but nothing was done / investigated.

You need to stop smoking. Theres absolutely no benefit from it. Get the help you need.

GraysAnalogy Sat 21-May-16 00:05:27

There's study into the relationship between COPD and anxiety, basically managing one can help to manage the other. The main thing being that untreated and undetected anxiety and depressive symptoms may increase physical disability, morbidity, and health-care utilization Many of the people I've worked with had anxiety before diagnosis or developed it after so I thought it might be helpful to give you a heads up if you already have it so you can discuss it with your HCP, or better yet the COPD specialist you'll get to speak to if you do, unfortunately, get diagnosed.

Good on you for stopping smoking. This is so so important now. xx

AddToBasket Sat 21-May-16 00:09:36

Please ask your dr to refer you for a CT scan so you can find out what is actually going on.

WhetherOrNot Mon 23-May-16 11:22:58

Congratulations on cutting down on the fags - it will make one hell of a difference. If you get really desperate get a ECig - I have COPD and as soon as I went onto the ECig within a couple of weeks the cough started clearing up. I smoked roll-ups for 40 years up to 20 a day and I feel better than ever I did.

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now