My Mum was diagnosed with Pseudo Bulbar Palsy in November last year.
I am not her carer as she has 3 other people living with her. I have been on the MNDA website and wish I hadn't.
As time has gone on her voice has got harder and harder to understand and now she is slightly unsteady on her feet.
Her and her partner are going to all sorts of different places while she can still do it.
I have 2 boys 14 & 6, the 14 yr old doesn't live with me.
It's been very hard for me as I have to be strong and all that crap, my LO loves his grandma and I have to periodically remind him that she is ill, last week I told him that her illness was life limiting and he has been very clingy ever since.
Has anybody else dealt with this shitty disease?
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Life-limiting illness
Motor Neurone Disease
11 replies
caramel1 · 08/07/2012 16:02
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