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Sonographer didn't see that the baby had a rare chromosomal disorder which was not compatible with life(31 Posts)
I am new here and I need some advice on how should I proceed or what can I do.
Here is my case, I got pregnant in november with end of august due date. The pregnancy went fine I had three scans on the first scan the sonographer couldn't take baby's measures and I have seen a consultant 2 weeks later and she said that everything is fine. Then I had a scan at 20 weeks the sonographer couldn't take the measurements again she has seen me 2 times that day and took the measurements in the end and she said that everything was fine and the baby is developing normally. The pregnancy went fine afterwords until I started to feel bad on the 7th month I started to have high blood pressure, I went to hospital and was put on medication but my pre-eclamsia got worse and they have done a Doppler and saw that the blood is not going normally to the baby through the placenta. I had a c section and when the baby was born the doctors started to see that something was not right with her. She was transferred to a different hospital because she needed an operation whilst I stayed in the same hospital because I had eclampsia and it was unsafe. I didn't see my baby for two days, when I went to the hospital where my baby was I was told that the ADN results came back and that she had a chromosomal disorder that is not compatible with life. My baby died 4 days later and I was left with emptiness in my life. Friends keep telling me to sue the hospital but I don't know if that is going to help me in any way. Has somebody gone thru something like that, what are the consequences.
There are literally thousands of chromosomal disorders and single gene defects that cannot be detected by ultrasound and in fact are still often not diagnosed during life, despite a person have multiple and complex disabilities. My son is one of them. Science, especially genetics, is young.
Perhaps you could speak to your GP and ask them if they could enquire as to whether chromosomal abnormalities can be seen on a scan, just to put your mind at rest.
It would be fairer to check your facts before you write to complain about the sonographer. It might be that your baby's health problems produced no visible abnormalities.
K - I think Spina bifida & very apparent defects ( dwafism for eg ) can be picked up & sometimes things like claft lips ( though not in the case of my dd)
Did you feel that you got enough support from the hospital when you had your baby?
No I wasn't offered amniocentesis or CVS, they told me that the baby was healthy.
No I wasn't offered amniocentesis or CVS, They told me that everything is fine and the baby is healthy.
Kloeina, I am very sorry to hear about the loss of your daughter. I've also lost a baby and understand some of what you're going through. What I would say is that it is in that situation it is very attractive to have someone to blame, that you can direct all your anger at. Rather than being faced with anger that has nowhere to go that makes you want to scream at the universe for taking your daughter from you.
I'm so sorry you've gone through this.
Scans aren't perfect, and genetic conditions can't always be picked up. The results of scans totally depend on the clarity achieved which is influenced by more factors than just the sonographer's skill. Equally things which wouldn't have been visible on a 20 week scan may have been picked up later but there isn't a routine scan at that point.
There are endless questions you probably need answers to but I don't think legal action will get you those. I do think you need to think carefully about what you would want to achieve via legal action and whether you can get the same result another way.
I'm afraid I don't have any advice but I just wanted to say how sorry I am for your loss x
This Babycenter page gives a pretty good explanation of how ultrasound can sometimes find 'markers' of chromosomal abnormalities, but can't definitely diagnose them: "however many markers or abnormalities are seen on scan, a diagnosis can only be made by CVS or amniocentesis. This is because the only way of knowing if a baby's chromosomes are normal is to examine them: to do this, some of the baby's cells must be obtained."
Were you offered amniocentesis or CVS?
Scans can pick up some things but not others - they can sometimes spot serious heart/kidney defects, they can monitor overall growth etc - but often they can't tell for sure even what gender a baby is (I had multiple scans during my second pregnancy, but DD's gender was still a surprise at her birth - she was always in the wrong position to see).
Sorry, phone posted before I'd finished...
Just wanted to say that I'm hugely sorry to hear about your loss and my heart goes out to you and your family
My understanding is that scans can only pick up certain major problems and that, as others have described above, even then they're not perfect. Scans can't tell you anything about a baby's genetic make up. The only test that can provide information about that is amniocentesis or CVS.
Please don't tell me that the scans can not pick up chromosomal abnormalities, why are we doing this scans anyway. they are done to see if there might be something wrong with the baby, Otherwise why are we doing the scans just to se if it is a boy or a girl ???
sorry for your loss.
ultrasound is not infallible - it both picks up probloems which are not a big deal and can fail to pick up problems which are (my son had dodgy scans in utero but follow ups were oh everything is fine...in fact he has a microdeletion chromosome condition but it would not have been picked up on an amnio anyway as requries more detailed testing) .
it would not have changed the outcome as her genetics were there all along, just not so visble at 20 weeks.
kowing now what her problem was, you will be in a postiion to make informed choices on testing for any future pregnancies. get bereavement and genetic counselling, then later on in a few months if you still want to pursue a claim you could consider it - tho it may not be worth the stress.
I am so sorry for your loss.
It is normal to want to blame someone in such times, but reality is that even if your daughter's condition had been picked up on scans (assuming that would even have been possible at a twenty week scan) it wouldn't have altered the outcome, your daughter would still have had a condition incompatible with life, and sadly she would still have died, albeit you may have had the option to terminate the pregnancy earlier rather than having to carry your baby to term.
Knowing would have meant you being faced with the painful decision as to whether to terminate your pregnancy
and still going through the grief process albeit at an earlier stage.
no-one is to blame.
so sorry for your loss!
you must be devastated, but I don't advise you to sue.
I don't know what your baby had or what the hospital could have done.
many problems are not possible to pick up on a scan.
had you discovered a serious problem and decided to terminate you'd still be in agony over loosing your child - only in a different set up.
sadly nothing will your precious child back but I think you need to mourn and look after yourself instead of entering a long legal battle that would achieve .... what exactly?
there are some organisations that can help you with dealing with your loss. I wish you strength.
I'm very sorry for this.
As a lawyer I would say that legal proceedings are often long and traumatic. You would need to relive what you went through many times, probably over several years. The hospital trust might settle with you, but if they don't, you would have to sit in court and hear everything raked over. At the end of it, settlement or a judgment can only give you money. Which is a suspect not what you really need. You need to grieve and deal with the loss. Some people use legal proceedings to get closure on an issue. I would really recommend finding another, less traumatic way, of achieving that.
I hope that SANDS is helpful.
Scans don't pick up everything unfortunately . I am sorry for your loss & hope you find support through SANDS.
I am so sorry and wish you healing and better times.
please don't sue. There is nothing anyone could have done and the loss of your daughter is no-one's fault. Legal action for this just takes cash from the hospital which is better used for treatment.
Thank you very much for your replies, I really needed some neutral opinions. When my DD was born they have done scans on her they have noticed that she had 2 holes in her heart she had many cyst on her kidneys, her lungs were not developed.
I have contacted Sands.
I'm so sorry you've been through this . Absolutely heartbreaking for you and your family.
When your DD was born, and the doctors suspected problems, was she given heart or kidney scans? Or an MRI? If she was, and they clearly showed structural problems with her organs or brain that could have been or should have been detected during pregnancy then you may have grounds for legal action. But it would be an extremely distressing and harrowing path to go down and you would need to be sure that the outcome would be worth the stress, upset and cost.
Your grief is so recent, take some time to heal and think x
My sympathies with you.
I had the reverse problem through my 3rd pregnancy of being assured that there was something wrong with my child (namely IUGR) which began a cascade of underestimated weight assessments and had the obstetricians pushing very hard for very early induction (at 32/33 weeks ). My daughter was born perfectly healthy at 42 weeks weighing 7.5 lbs. I'd had to have 2-weekly scans and a trip to the Harris Birthright unit at Kings in London for half my pregnancy. I was always convinced she was fine. The HBT sonographer was very surprised I was even there as she thought the weight looked fine.
My conclusion was that sonography is a very complex and fuzzy science with many areas of uncertainty, best left in the hands of very competent people. I think you probably ought to make a complaint if only so the hospital has a flag against this woman's name in case of future problems.
I am terribly sorry for the loss of your daughter. May you heal quickly.
I'm so sorry that you've had such a traumatic experience.
The ultrasound scans are intended to screen for abnormalities and highlight potential issues. I would expect the ultrasound to pick up major structural abnormalities in the bones, heart, bowel, bladder, kidneys, liver, etc.
Whether the scan could pick up a chromosomal disorder would depend on how it affected your baby physically. For example, my DD has a (probable) genetic disorder, although it hasn't been identified yet. She does have a brain malformation as a result. I had many many ultrasounds for various reasons and the only thing that was identified prior to birth was that she was 'small for dates'. She was induced as a result of that (and was normal weight!). Her actual SN were only properly identified at 2 years 9 months.
Sadly I have been in a very similar position to you. I am so sorry that you are now walking this path too
My daughter was born 6 years ago. I had a feeling throughout my pregnancy that something wasn't right, I told the sonographer at every scan (I had them monthly) and she told me I was being paranoid. She checked my daughters organs and that she was growing and dismissed what I said because, on the face of it everything was growing normally.
When my daughter was born she was taken away before I even saw her, I had no clue what was going on. I won't go into details as it's very distressing, but she was on life support for 2 weeks and there was no hope at all she would get better so we had to let her go.
I blamed the sonographer entirely. I needed someone to be angry at, and she was that person. I wrote to the hospital detailing my concerns and how the sonographer had spoken to me. They replied more or less asking what I wanted to do, did I want to take legal action.
When I thought about it, after the initial intense anger subsided, I realised it wouldn't have changed anything really. By the time my daughters condition was picked up, tests done etc I would then have either had to decide have a late termination or have given birth to her as I did, although I would have been more prepared the outcome would have been the same.
My personal choice was not to take legal action, in reality she didn't do much wrong, and there are hundreds, maybe thousands, of conditions that would be nearly impossible to spot on a scan, but I did complain about the way she talked to me and she was given 'extra training' whatever that means.
Obviously its your choice what to do, but I would say before you make a choice, to speak to someone at SANDS (as a pp has said and linked to) they can really help you work through your feelings and their only agenda is to help do what is right for you if that is legal action they can support you, if not then they will help you however they can.
Whatever you decide to do please be gentle on yourself, there is no right or wrong way to deal with losing your child, you just have to do what gets you through each day
Sorry for your loss. Your friends are not being helpful. In a bereavement situation it is human nature to seek to blame someone or something, but more often than not it is nobody's fault. You need help to work through that, not encouragement to bring legal action. However if you are feeling unable to shake the idea, have a free session with a solicitor. They will explain why you would mot have a case against the hospital and then you can put the idea away amd start to heal.
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