Is recurrant miscarriage classed as infertility?

(16 Posts)
smiles01 Sun 09-Oct-16 22:24:38

I've had 5 miscarriages with no living children. Am I in the right place?

Perpetualstateofchaos Sun 09-Oct-16 22:30:03

I'm not sure if it's the right board hopefully someone will come along and tell you. I just wanted to make sure that you had contacted your GPS and been referred to a recurrent miscarriage clinic. After 3 consecutive mcs GPS will refer you.

smiles01 Sun 09-Oct-16 22:31:31

I've got my first consultant appointment regarding the miscarriages in November.

Thanks for replying!

mnpeasantry Sun 09-Oct-16 22:31:42

There is a recurrent miscarriage board. I will see if I can find it.

So so sorry for your losses. How heartbreaking. How are you OP?

mnpeasantry Sun 09-Oct-16 22:32:39

The board is called miscarriage / pregnancy loss

flumpybear Sun 09-Oct-16 22:37:19

Sorry ... I had lots too. I found a good miscarriage expert... lost weight (bit fat!!) had high folic acid abs aspirin .... also had HCG injections when pregnant ... look for a good doctor xxxx

smiles01 Sun 09-Oct-16 22:39:34

Thank you everyone.

I'm doing okay, I'm one of these people who don't dwell and just do what I have to do.

I'm looking forward to my appointment to get the ball rolling on finding out the cause and what we can do next ect.

smiles01 Sun 09-Oct-16 22:40:13

I'm only 22, in good general health and at a healthy BMI. It seems so unfair.

Perpetualstateofchaos Mon 10-Oct-16 07:54:57

Smiles I've just had my 1st appointment they sent me for blood tests to check my FSH and LH levels amount other bits and also my partner and I have to have chromosome analysis blood tests. I've got 2 dc but dp is there step dad.

RockinHippy Mon 10-Oct-16 08:15:31

This popped up in my feed, so as much as I have no personal experience of MC & at the risk of sounding like the local MN B12 bore, I will add a reply.

Have you had your vitamin B12 levels checked by your GP ? If so do you know your levels?

I see MC discussed often on a Pernicious Anaemia/B12 deficiency group that I am a member of as multiple MC can be a symptom of that. PA/B12d is frequently over looked by doctors as its not a standard test & too many doctors don't understand it or the blood test results when they do test it. We do have experience of medical ignorance of the condition & believe me, it is gobsmacking. There was a lovely Indian lady posting photos of her newborn only a few weeks ago, she had suffered 12 x MC sad but treatment for undiagnosed PA with B12 injections had meant she went full term & had a health baby girl, so it might be worth you looking into

Scarydinosaurs Mon 10-Oct-16 08:21:11

I don't have any experience to share, but just wanted to express my sadness that you've suffered such loss at such a young age. I hope your appointment is productive (in both meanings of the word!) and they're able to put together a plan and investigate why this has happened to you.

Positive outlook is the best way to go- strong mental health is the best way to equip yourself through any difficulty. flowers

Milzilla Thu 13-Oct-16 23:02:50

OP, look up Coventry implantation clinic - it would be worth a self referral to have your uterine killer cells assessed. There's been lots of success for recurrent miscarriers once they've had a diagnosis...

FleurThomas Sun 16-Oct-16 08:03:09

According to my gaeno it is a form of infertility. She considers it in a more 'positivitively' than not being able to conceive at all (like me), because she says in a lot of cases it can he fixed by progesterone/IVF/other medical treatments. Do you have an underlying (perhaps untreated) condition?

I hope you get the treatments you need. Good luck!

loveyogalovelife Fri 11-Nov-16 06:01:20

OP, do you have regular periods? Are they particularly heavy or light, how about pain? I would insist on a referral to Dr Quenby at Coventry who runs a repeat MC research centre.

Insist also on a hysteroscopy with a camera to check your womb is okay.
A scan won't show everything so this is important...

I have finally had it done on Monday and they found scars on my womb lining which explains everything. They don't know what it is but I've done my own research and found other women online who have helped...

It's called Asherman's Syndrome and it's rare, the Gynae's at my hospital don't even know about it and there are only a few specialists in the country who can treat it.

I can't carry a baby as the womb won't implant egg on the RH side where the scars are, or if I get further along i miscarry as womb won't stretch.

Good news is I'm seeing the only private specialist who may be able to treat it and that may solve the miscarriages and mean we can have a baby. You can google and find the 2 NHS consultants too.

But it's been a painful traumatic road to here. Dont rely on the NHS doctors - they only know the obvious causes and I've been appalled at their inability to piece things together.

You have to do as much research as you can yourselves, push hard for referrals to experts, take your own notes...and stay positive.

Don't give up, I know this is hard. There is so much they can do these day xxx

Xxx

Loopyaboutmy2boys Sun 13-Nov-16 08:09:02

I've have 2 boys followed by 12 early losses since 2013

After 3 mc's you will get offered standard tests by the NHS. If you have a good consultant they will do a hysteroscopy to check for any obvious issues in your uterus.

A referral to Coventry on the NHS is definitely worth doing. It cost me and many others £360 before to have their tests but it is now free. I went back to see them on the NHS for the extra tests. They will do a biopsy to check the level of uterine NK cells, and they have a new test CD138 which checks for an infection. They also do a uterine scratch and ran more extensive blood tests on me than the standard NHS ones.

Another option is to ask your GP for an NHS referral to Mr Shehata at Epsom Hospital. I have also been there on the NHS and they test the level of NK cells in your blood (Coventry only test the cells in your uterine lining). Epsom also run their own other blood tests.

I tested for normal uterine NK cells at Coventry a year ago and the scratch made no difference and I carried on having MC's. I've just had my results from Epsom and have been diagnosed with high blood NK's and a couple of other things were flagged up and so I'm now going to be trying a new treatment protocol that includes prednisolone from ovulation. I know a lot of women from an old RMC thread on here that moved to Facebook. From that group there are quite a lot that have successfully had babies or are expecting babies now thanks to taking prednisolone. You get prescribed this drug from Coventry if you have high uterine NK cells and also from Epsom if you have high blood NK's. They argue the toss over whose theory is correct but they are both using the same treatment and it seems to have worked for a lot of people so I urge you to get referred and not waste time like I did.

There are also tests referred to as Chicago tests, and the Athens Serum tests, it just depends on how much money you can throw at it, those were out of reach for us but I know people who have been successfully treated following those tests too.

flumpybear Sun 13-Nov-16 08:11:16

Have you had your appointment yet? Wondering how you got on ?

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