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Spinal Surgery Tomorrow!

(76 Posts)
PavlovtheCat Tue 18-Jun-13 11:59:11

Yes it's me! Of course it is, who else goes on about their back problems as much as me wink

Just got a call from neurosurgeon's secretary - tomorrow! Pleased, as I didn't take the last offer. Nervous - as it's really really happening. Scared, as the children don't know and not much time to prepare them, and what if it goes wrong. Panicking as the bedroom is a mess, our new bed doesn't arrive til next week, no freshly cooked food in freezer as we planned! But, place isn't looking too horrendous, have offers of help with the children from lost of people, DH is not due to work til the weekend anyway, so possibly he can still do that if we can get someone around to look after them, if not, he is only going to miss a couple of days, then off monday, and kids in school/nursery all day til 5:30pm on tuesday and wednesday.

<panics> I feel all flustered.

What do I need to take with me? I am staying in overnight, but, as long as it all goes well, should be out thursday.

PavlovtheCat Tue 18-Jun-13 12:27:58

I have lost the ability to think about anything until the secretary calls me back!

PavlovtheCat Tue 18-Jun-13 14:17:59

ARGH. Can't get hold of secretary for details. She called me on mobile while I was away from home, and so she said to call her when I got back for her to discuss details of when/where etc. I said I would be 45 mins, she was fine with that, at 11am! I have left voicemail s like a neurotic panicking woman i am. I need to pop out to get some bits and bots (jimjams that are not seethrough grin).

Matildathecat Tue 18-Jun-13 14:43:29

Hi, this is my first post so hope I get the etiquette right. I absolutely understand what you are going through. I had a similar problem and had a micro discectomy last may. I was desperate for relief from my back pain which felt like a gunshot wound. Injections didn't help. I have unfortunately not had a good outcome. If you would like me to explain why I am happy to tell you about it but maybe when you are so close to surgery you don't want to hear,

However, hear are some tips etc that may be of some use.

Pre op discuss your pain management with the anaesthetist so you get what works best for you. First time I had a morphine pump, second oral oromorph. Both good.

Expect drip and wound drain.

Take water bottle, It's hard to drink from a glass lying down and the drugs give you a raging thirst and dry mouth.

Hospitals are noisy and light so eyemask and earplugs are great.

If you need help call on the bell. If you don't ask you don't get!

iPod with talking book or soothing music is nice.

Expect to feel very fragile. You will need a lot of help around the house and with kids. I didn't drive for a few weeks.

Visitors are tiring, keep a few hours free each day for resting.

If you can get post op physio take it. At the very least make sure you see a physio before discharge for advice.

You can't change your own dressing so have someone to do this.

Take as much analgesia as you need. If you are worried there is somethin g wrong there probably is, persist if you don't get any answers.

Treat the first few weeks as a project and make sure everyone knows it. Some will have read some miracle cure story and expect you to be instantly fabulous. Explain you've had major surgery and say docs have ordered rest even if they haven't !

Very best wishes to you. We haven't met but I will be thinking of you. As I said happy to give more details if you like or just offer any support.

Good luck!xx

PavlovtheCat Tue 18-Jun-13 14:50:09

Thank you, that's very helpful! I do need some music actually, my ipod is lost shock. Good tips about eye mask and earplugs, on my list to buy things!

PavlovtheCat Tue 18-Jun-13 14:50:20

and great first post grin

morethanmama Tue 18-Jun-13 15:01:28

I have had 2 microdiscectomys. It took a while but I am great now! Best of luck.

PavlovtheCat Tue 18-Jun-13 15:48:34

Thank you morethanmamma ! I have just spoken to secretary, with details. I am first up! so, this time tomorrow I will be fixed! (well, I am aware that it's not that simple, but you know what I mean!). I wish it was micro discectomy, but alas it's the normal open surgery route sad.

I am now shitting it. I have the shakes and I am worried about my babies! (6 and 3, not quite babies, but to me they are so tiny still, how will they cope?)

delighted to see this Pavlovthanks

Matildathecat Tue 18-Jun-13 18:11:07

Hi, forgot to say that when you sign your consent form you can stipulate that you are only giving permission for the consultant to operate. Otherwise you could get a registrar who will not be as experienced with the consultant merely supervising.

Good luck.

saythatagain Tue 18-Jun-13 18:14:37

I had surgery on my spine 11 years ago; pre dh and dd, so there was on me to think about iyswim!
'twas the best thing ever!
Good luck.....and just think - pain free!

cocolepew Tue 18-Jun-13 18:18:34

I've lurked on your threads, good luck for tomorrow flowers

lightrain Tue 18-Jun-13 18:26:43

Pavlov - can I be nosy and ask what your surgery is for, specifically? Slight hijack - after mild sciatica through third trimester of pg, I had DC and then the sciatica considerably worsened and I am in extreme pain, can't walk or stand for more than 1 minute without needing to lay down again. Can't sit, horrendous pain if buttock area is even touched gently. Have been back and forth to the GP to tackle pain meds and have just been prescribed amitriptyline on top if paracetamol, codeine and ibuprofen. Have only taken one dose of amitriptyline but hope this will help and allow me to get out of bed and move around a little more at least. I've been referred for an MRI to investigate (though GP keeps saying that most problems resolve by themselves and back surgery is a last resort. Of course I know this, but am in extreme pain and practically rattling with the amount if drugs I am taking, which are only moderately dulling the pain right now). At this time, all i can see is pain and immobility stretching out before me. I would be very interested in hearing your story, if you don't mind sharing? Very pleased for you that you have your operation tomorrow! Very good luck!

PavlovtheCat Tue 18-Jun-13 19:06:00

matilda oh thank you for that tip! I shall be sure I do that, as I do only consent for him to do it; no-one else.

PavlovtheCat Tue 18-Jun-13 19:23:45

Lightrain - I mail you, so I don't bore those who know my story as I complain a lot about it on here (they are good listeners and some amazing support, sources of info, some people have been through this process a few times, that's why!).

Kurby Tue 18-Jun-13 19:36:11

Hi Pavlov. All the best, just be positive and look on the bright side. No more pain! (after recovery). I am going for an MRI in three weeks time and I am quite anxious for the outcome. I am on all kinds of meds til then never had so many tabs in my life before and they make you feel kinda yuk! I have had terrible back and neck pain for over a year.Will keep an eye out for any feedback, might be just what I need. Good luck I know you'll be fine.

PavlovtheCat Tue 18-Jun-13 19:45:05

lightrain mailed you, but in short, I am having a discectomy to remove a prolapsed and torn disc that is trapping the sciatic nerve. I have misaligned vertebrae at L5/S1 region, which might have been caused by an injury to my spine. And in turn has most likely pushed out the disc through movement back and forth.

kurby thank you. I am looking forward to a few weeks time.

I am worried this evening, I expect nerves are normal. Talked to 6 almost 7 yr old DD, who is tearful and worried. DS aged 3.5 is like, I won't cry mummy, I won't jump on you. But, DD is upset. And I have promised her it will be fine. Now panicked that it might not be, what if it goes wrong? Am I doing the right thing? Pain is better than it going wrong, right? Just want it over and done with.

PavlovtheCat Tue 18-Jun-13 19:45:23

good luck with your MRI too.

IwishIwasmoreorganised Tue 18-Jun-13 19:51:56

Good luck for tomorrow Pavlov.

I know it's hard not to think the worst, but try to push those thoughts to the back of your mind and focus in the positives (and remember to pack those non see through pj's and decent underwear!). I'm a physio and have seen dozens of patients really benefit from surgery such as this.

Can't wait to see an update in a couple of days time

Xx

All the best, good luck! flowers

Good luck tomorrow, will have fingers crossed for you.Don't panic.It is the right thing.The kids will be fine.This time next year it will be a distant memory.brew

PavlovtheCat Tue 18-Jun-13 22:46:02

Had a little cuddle and chat with DD. She was in tears 'what if you sleep too long mummy?' I said 'is that what is worrying you? I will be awake before you finish school tomorrow!' and gave her promises and reassurances. Poor lovely thing. I told her some wonderful things about her that I love, and she is now asleep. My DS is much younger so less upset, he doesn't get the tomorrow I wont be here thing, he says 'i wont cry mummy', but tomorrow evening he will be upset, as I won't be here, rather than understanding I am in hospital, much prefer it that way so I don't have him upset too!

magso Wed 19-Jun-13 09:14:43

Good luck Pavlov.

good luck Pavlov. The pain is worth it.

thinking of you this evening Pavlov,I hope it's all gone to planwine

Missed this yesterday Pavlov. Hope all went well!

Light train - have you tried a chiropractor? I know some cases don't respond but I have had great success with a chiropractor for upper spine issues.

crashdoll Wed 19-Jun-13 18:37:14

Hope it went well! thanks

chocolatelime Wed 19-Jun-13 18:42:18

Hope it all went well today, so pleased you've had the surgery & fingers crossed that you will soon be pain-free.

PavlovtheCat Wed 19-Jun-13 19:34:36

Just a quick update as on phone and. I keep making mistakes!

All gone great, remarkably pain free in legs his expected pressure pain on back but really bearable. I do know this largely due to my pca (morphine clicky thing). Went in first at 8:30am. Literally no messing. Got out of bex to use commode at about 3pm. Apparantly that is good progress so quickly.

I have a great view of countryside (window seat) and a water bed!!

Off for some sleep.

Thank you my lovely mumsnetter friends thanks

Wishing you a speedy recovery from surgery Pavlov thanks

ChippingInWiredOnCoffee Wed 19-Jun-13 19:44:26

Pav - that's great news!! Sorry I missed your thread yesterday sad

Big hugs - sleep well!
x

TheBirdsFellDownToDingADong Wed 19-Jun-13 19:45:35

I also missed this yesterday, pleased everything going well xx

Madsometimes Wed 19-Jun-13 19:45:42

Only just seen this. So pleased you have finally had your operation, and fingers crossed for a great result. I'm very impressed that you were up and about so quickly.

QueenOfCats Wed 19-Jun-13 20:02:39

So glad all went well thanks

Enjoy the water bed!

cocolepew Wed 19-Jun-13 21:02:27

Glad it went well, flowers

IwishIwasmoreorganised Wed 19-Jun-13 21:17:48

That sounds fab.

Hope you get some sleep tonight and feel even better tomorrow.

Xx

that's greatthanks smile grin

Great news! flowers

Alibabaandthe40nappies Wed 19-Jun-13 21:47:11

Pavlov I'm so pleased to read this - you may remember me being worried on your last thread that your DH would keep on persuading you to postpone!

Have a good night's sleep smile

OddBoots Wed 19-Jun-13 21:56:17

Great news.

Please, please, please make sure you listen to the restrictions you are given by the doctors, I did too much after mine and ended up back in for 7 weeks!

Yay!

And what OddBoots said ^^ smile

Ohwooisme Wed 19-Jun-13 22:01:43

Just seen this - fantastic fantastic news! Take it easy, make sure you see a physio and keep on top of your painkillers. How long are you staying in for? After my open discectomy my con recommended I stayed for an extra day/night and it made all the difference - I felt that little bit better before I went home and faced the familysmile. PM me if you want/need any other details or how I feel 6 months on smile

DowntonTrout Wed 19-Jun-13 22:05:01

Wow. Just seen this. Fantastic news.

Hope your progress continues!

Please keep posting- am very nervous about my own (same) surgery so watching with interest.

PavlovtheCat Thu 20-Jun-13 00:31:51

I can't sleep. Grr. Not in pain. Well manageable just can't get comfy, noisy etc. I have eye mask but ear plugs won't stay in!

I had microdiscectomy! Yey. I didn't realise. But they confirmed this aftenoon and I guess that's why I feel good? Little bit of leg pain but nothing like before. Neuro said it may be up and down and I night think its ereturning but that's normal and doesn't mean orchard. Will just a bit of time to settle.

downton I will keep you posted. Pm me if you to ask anything as I go through recovery.

I will respond more fully tomorrow but I will take all advice seriously Nd follow.
Ali Dh has been fab. He spent ages sorting bedroom yesterday as it was still messy, right down to clearing a draw next to bed for snacks and meds. Didn't try to persuade me against this time!

DowntonTrout Thu 20-Jun-13 07:00:51

Will they let you home today Pavlov ? It's so hard sleeping in noisy hospitals isn't it.

How are you feeling this morning? Are you able to lie on your back or are you on your side? It's been nearly 12 months since I could lie flat on my back.

PavlovtheCat Thu 20-Jun-13 07:47:47

Hi downton I feel good! Sore back and hurts to move but its bearable 'getting well' pain if that makes sense. Leg pain better but not gone but lower level. Think i will feel it later though when my flicker is taken taken away!

Been on my back! And able to sit up too. Not on my own but with the button raising the headrest thing.

I am coming home today but they said a minute ago as they did handover 'you're hoping to go home lateru today?' (Day nurse) and I was like 'I am going home!' She raised her eyes and said 'well we will monitor your mobility for a while first and see ho2 you are without<nodded to pca> they best not change their mind!
Seeing physio team this morning and think they make decision though.

But all good. I am

PavlovtheCat Thu 20-Jun-13 07:52:06

stupid phone. Was going to say I am starving. still no breakfast. but I can smell toast a way off which is a good sign...

SoupDragon Thu 20-Jun-13 07:52:10

Fabulous smile

No breakfast yet? Hope it comes soon for you and that you get to escape later smile

lightrain Thu 20-Jun-13 08:02:44

Pavlov, that's great! So pleased for you!

Cider - saw osteopath and physio. Osteopath was helpful and knowledgable but has told me that there's not much he can do at this acute stage. Need just a little improvement, then he should be able to speed my recovery a great deal. Chose osteopath over chiro after friend's advice.

DowntonTrout Thu 20-Jun-13 08:53:50

That all sounds really promising for you.

I know what you mean about the "getting better" pain, it has to be preferable to the chronic pain of the "don't know when this is ever going to get better" type!

Sounds good Pavlov!

Make sure you don't try to do too much when you go home.

You have made me want toast now! Which isn't allowed on low carb bootcamp.

Light train - fair enough. I hope it gets sorted for you. Back pain is so debilitating.

mouldyironingboard Thu 20-Jun-13 11:59:27

Hope you are taking things easy, Pavlov and I'm glad to hear that your surgery has finally gone ahead.

I want toast for lunch after reading this thread!

PavlovtheCat Thu 20-Jun-13 12:36:55

I was !dvised osteopath over chiropractor too.

I walked twice. But apparantly walking to the loo fling my business and back again was too much as I promptly threw up! All that lovely breakfast I finally got! Now. Waiting for meds (tta see know the lingo now!) And physio to walk me up and down stairs then home. I hope soon as want to get back before dd gets home from school.

Feeling tearful. Partly some 'stag bedside manner' issues and partly I guess the drugs and post op relief. Had no chance to think about it all and what had just been done to me! Oh and v tired!

Matildathecat Thu 20-Jun-13 12:48:22

Hi, glad it's all gone well. That's quick to be going home so straight to bed and do base yourself there for a few days. Too much up and down stairs is a killer. Do you sleep with a pillow under your knees? For me that's great.

Btw the anaesthetic drugs make you weepy and also disrupt your sleep pattern so just go easy and rest, potter and rest.

Best of luck and hope you can start reducing the painkillers in a week or two.

PavlovtheCat Thu 20-Jun-13 13:04:05

Thanks matilda really good t know. Esp about weeping feelibg. It did remind me of those 3 day blues after babies! Crying for no reason those times. Very odd feeling!

I do have pillows under knees too as my back feels better with knees up a little. Glad I can still do that!

grimbletart Thu 20-Jun-13 13:26:19

Glad you're OK Pavlov. Don't know if this helps, but 20 years ago I had open back surgery for low back disc prolapses. Best thing ever after wasting oodles of cash on physic and osteo. But I digress.

One thing to really avoid I've found is sitting with your bum lower than your knees iyswim. i.e. avoid those squashing sofas where you sink in and your thighs make an upwards angle. flowers

PavlovtheCat Thu 20-Jun-13 13:40:38

Thank you grimblechart that's good advice as I have one of those sofas! I. Also have a poang chair which does the same but its fine as I have another sofa that doesn't eat me and the poang footstall which I can perch on.

Ohwooisme Thu 20-Jun-13 14:50:15

Agree with grimble - knees higher than hips is a disaster for me too - I'm always the one sitting on a hard straight chair now! Take it easy Pavlov and do your exercises! Have you got a sheet of them from the physio?

PavlovtheCat Thu 20-Jun-13 18:00:58

Hi all, quick message as just had dinner and going to have a sleep. I am home! Feel good! But tired.

Yep have booklet with exercises in, practiced with physio this morning, done them once, she said 5 reps of each exercise 3 times throughout the day is good today, try to do 5 reps 3-5 times tomorrow depending on how I feel, with view to doing 5 reps if each exercise 5 times a day. if I can from then on. So, 3 different exercises x 5 x 3! I know what I mean...grin

I also have a medical loo seat! How cool and trendy am I? No having to bend down too far as its bum height pretty much grin.

Scar is tiny ! As the did microdiscteomy after all!

In my bedroom with beautifully smelling flowers ! Lovely change from clinical hospital! And just had sausage casserole with home made buttery mash, proper vegetables on the side! Being looked after well by DH and one of my bestest ever friends, who brought me home and is helping with dinner, kids and me! I am going to buy her something special for being so fab.

PavlovtheCat Thu 20-Jun-13 18:02:37

Wow I used a lot of '!' there didn't I? Can you tell I glad to be home and relatively pain free compared to normal?

grimbletart Thu 20-Jun-13 18:14:09

You are doing really well Pavlov. Just a thought...don't be alarmed if you get muscle spasms in your back (like labour pains but at the back). I had these for about three weeks afterwards and it's just a case of breathing through the contraction.

But I think my op was somewhat more complicated than yours so it may well not happen to you. I hope not anyway.

PavlovtheCat Thu 20-Jun-13 20:19:49

thank you grumble. I feel a little low at the moment. Not sure why, is that normal after GA? I don't remember feeling this way last GA I had? Or is it morphine comedown as I had a lot from yesterday to lunch time today, then replaced with codeine?

I also had a rather inconsistent experience of NHS care, some of which left me in tears, and some of which made me want to hug the nurse for actually giving a toss and being nice. The level of aftercare was shocking and inconsistent enough to make me feel that, should I find myself in need of fusion in the future, I will prefer to pay for private care. I could not fault the care of the pre and recovery team and the anaesthetists, even the registrar before was kind and gentle in his manner. But, the aftercare, well, the nurse and HCAs that were lovely seemed to be the few not the most. I felt at times (much of the time) that I was in the way - I was not on neuro ward as no space, was on ortho ward so lots of people sicker than me there, as it was pointed it out as I had sick dripping from my nose down my chin, crying as no-one answered my call bell - I just wanted a tissue and to check my anti-sickness drugs had been asked for. I actually got told off when the nurse eventually stomped in asking who was buzzing and what did I want? for being upset that I had been left puking after being left to walk back from toilet on my own, the first time I walked properly and I needed to realise they have other things to do, not waiting around for me to buzz them. Or earlier being asked told to wait 5 mins or so to have the commode as she was doing the medicine round and was not meant to stop doing it, I had to wait for the HCA to finish doing someone's dressing 'well? can you wait or not?'.

I feel a little like a drama queen that didn't really have anything major done, like I have made too much of a fuss asking for help. Maybe I am over-reacting. It's not a big deal puking is it? I actually sat there chucking up with tears running down my face as if I were at home, DH would be able to take the almost full bowl away and give me some tissues. I felt that I was expecting too much - they are busy, they said, got other patients, they said, not just me. It's not just me that needs care and so I just have to wait sometimes.

I wonder how much of this leaving me feeling down, or, once I am over the next day or so, I will put it all into perspective and realise that they were just doing there job and I was wrong to expect a higher level of care. I mean, they are not my mum or my husband are they?

But, there was one nurse who said that for example stomping to the edge of the ward when the curtains were drawn around some beds and barking 'who's buzzing? what do you want?' was not ok. And she looked after me last evening, and another nice nurse through the night. And same nice nurse for the last of my stay. She was lovely, and I felt so grateful for her kindness, that she actually gave a toss.

But, as I said, it's just blues right? like baby blues maybe? anticlimax after such a long long long wait. Just another person in the system, in, out, done and be grateful. And, also i guess the most important people to be doing their job perfectly is the ones with the knife/laser right?

PavlovtheCat Thu 20-Jun-13 20:21:18

grimble funny you say about muscle spasms, had a couple of them today, quite mild, but just like mild labour pain, made me stop in my tracks and say to my friend who brought me home 'my muscles appear to be working when I am still!' that's what it felt like anyway, maybe it's them knitting together after being cut? like a caesarean I guess.

DowntonTrout Thu 20-Jun-13 20:28:03

Glad you are home Pavlov. I think it's usual to feel a bit low after a GA. all those nice drugs are leaving your system and making you feel a bit flat.

Your experience at the hospital with the nurse was awful- no wonder youre down. Hope you get a good nights sleep and start to pick up a bit tomorrow. Things can only get better for you now <hopeful>!

PavlovtheCat Thu 20-Jun-13 20:37:47

yes you are right downton I did have a lot of morphine, not had that before (other than normal opiate conversions) so is going to be that. I shall put my experience with the nurse as just bad luck. My good friend is a district nurse and she said that unfortunately there are some nurses around who meet her description exactly, who are just waiting to retire/been there too long and are jaded. She said straight away when she met the nice nurse that 'she can't be more than 3-4 years qualified'! And she was right! 3 yrs! That's why she was nice, still loved her job!

DowntonTrout Thu 20-Jun-13 20:58:46

My dear dad, before he died, was on morphine. I used to administer it every night. He loved it, said it made him feel all nice!

grimbletart Thu 20-Jun-13 21:29:30

Sorry about the puking episode Pavlov and the lousy nurse. You wonder why some people choose nursing...

Morphine is a bugger for making you puke. About 10 per cent are intolerant of it. I am. My op meant I had to spend the first three days lying on my back without moving and there is nothing worse than trying not to throw up when you physically cannot move off your back. In the end I told the nurses to turn off the morphine pump as I would rather have the pain than horizontal puking. After three days the physios came along and lifted me from lying to standing (was not allowed to sit for 10 days) so had to eat standing up as trying to scoff cauliflower cheese when you are horizontal means most of it goes in your ear.

Anyway, it was the best thing I ever did after 17 years of crippling back pain and sciatica, so I hope it works well for you too. It makes me wonder why anyone would go to such lengths to avoid surgery for these particular conditions when physic, osteo, chiro at best give only temporary relief, or not all in my case - though my purse was considerably lighter......

lightrain Fri 21-Jun-13 12:28:39

Hope you're feeling a bit more chipper since your last post and now you're home and settled Pavlov. Try to put the horrible nurses behind you - it sounds awful and they should be thoroughly ashamed of themselves. BUT - you're home, surgery done, recovering with your DH and DCs and its going to be okay. You've been through a lot these last few days so no wonder you're all over the place with emotions!

I have my MRI appointment date through, for a weeks time. I'm still in a lot of pain but have been back to the GP twice this week and have now been given gabapentin to try (amitriptyline doesn't seem to be doing anything). Fingers firmly crossed - this is hideous.

PavlovtheCat Fri 21-Jun-13 14:13:15

Afternoon all. Just slept for almost 12 hours ! Went to sleep at midnight woke to do dds hair and give the kids cuddles before school and nursery then back to sleep till midday! Dh said I was almost passing out as I said goodbye to kids so obviously needed that! Mood yesterday was def anesthetic / morphine related as feel fine now.

Walked to bathroom and back several times which is downstairs still slow but not pigeon steps which feels like progress. Just also gone down to day hello to friend who popped in. That's me done for a while now as feeling a little sore and tired again.

Both children having a sleepover tonight with good friend (the one who brought me home!) which was already planned before surgery offered, timing eh ? I almost don't want them to go though as they are out all day. Missing them!

Good news about MRI date lightrain small step closer to finding out what's going on.

TheBirdsFellDownToDingADong Fri 21-Jun-13 16:18:29

Glad you are feeling happier than last posts Pav.

More flowers x

magso Fri 21-Jun-13 19:46:59

You seem to be doing well for someone only just home. Good you have been sleeping. Its takes a couple of days to get the GA drugs etc out of your system. I usually feel quite teary too. Ds (autistic) reacted by being completely spitting mad and came out with some language I didn't know he knew!
I and my fellow inmates had some quite variable care whilst in hospital. It made me feel quite unsafe!! It was more than just being short staffed. One nurse was just plain nasty and spoke to an elderly lady who was very ill and a bit confused like she was a naughty child. We ( the rest of the ward - all on O2 and just out of ICU/HCU) did our best to help one another. Some of the visitors were brilliant.
Post discharge care is thin on the ground, so I hope you have good people and GP looking after you.
Hope your recovery continues smoothly.

PavlovtheCat Sat 22-Jun-13 09:22:48

magso I did/do feel left with a feeling of unease at the inconsistencies of care. There were some amazing staff, and some really dodgy staff (like they were on a power trip). But, as downton said, that's all passed now and hopefully won't need to return again.
Post discharge - there is no more hospital involvement now until I return to see neuro in 6wks. Don't need stitches out, so no district nurse to visit, if I have any problems with wound I need to see the nurse at GP clinic. No physio which really surprises me, and when I asked about this the doc looked at me like this hmm and said 'if you need physio, you can ask your gp to refer you back to them'. I might just pay for some sessions through my local gym (Nuffield hospitals linked).

But, enough moaning! I am less stiff, walking more freely. A few painful twinges through my entire back which have caught my breath, and gone down into my buttocks, but, I had expected them before now so guess they are normal. My bladder is not so strong at the moment. As soon as I need to go, I need to go immediately and can't hold it, which is not great as toilet is downstairs! But, again, guessing in time that will return to normal?

Had a lovely evening last night, friends came to visit with dinner all prepared, I manage to sit perched on a hard chair for something to eat before returning to bed and my female friend who is pregnant came and lay with me and we googled baby things from Ikea and other places while watching the last of the Solstice sun through the skylights. Both my children had a sleepover so no bedtime routine, no being disturbed this morning and a relatively good nights sleep (woke for the toilet several times). I have spent more time away from them this week than I ever have and I am missing them now though, it feels odd not hearing their chatter. Or even DHs chatter if I'm in bed and he is talking to them!

Hope everyone is doing ok, especially those who have pain, hope today is a reduced pain day for you all.

Matildathecat Thu 27-Jun-13 18:19:45

Hey, Pavlov was thinking of you and wondering how you're doing? Do hope you're making steady progress.

Have to say my second op was NHS and the post op care left me really traumatised. Very similar to yourself. I am a trained nurse and midwife of 25 years and if I had been running that ward I can tell you some heads would have rolled. Really upsetting but a few months on I am annoyed rather than distressed if that makes sense. Unfortunately my experience really validated the media concerns about poor standards of care. Full bedpans placed on patients table, then leaving said patient lying in soaked bedding because bedpan overflowed? Constant chewing of gum on duty? Very professional...

Anyhow, cathartic rant over!!

Hope you're taking it easy and doing well.

Kurby Sun 30-Jun-13 18:50:08

Hi Pavlo. I am so happy your surgery is finally over. Take it easy for as long as you can!! I been following this conversation as I am booked for my MRI on the 03/07. Something about end plate sclerosis C5/6 and discogenic spondylosis sounds scary to me. This is all new to me so I hope to get some tips or advice from anyone. You take care and be pain free 'cause I know all about this pain. It's been 18mths already.

lightrain Wed 03-Jul-13 07:55:42

Hi Pavlov, resurrecting this thread to see how you're doing. How are you feeling?

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