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My cousin's in resus :-(

(72 Posts)
Coffee1Sugar Tue 09-Apr-13 10:00:16

She's 30. She had a diseased kidney removed at birth and a kidney transplant of the remaining one at 8yo. She's now in resus fighting for her life with hyperkalaemia. This is the local A&E without a specific renal unit so the docs are liaising with her consultant's team at a London hospital by phone and Skype - she is too ill to be transferred. Does anyone have any experience of this? My auntie and mum are with you, she has no partner or kids, I've got a toddler at home so can't go. Keeping all phones free for news but worried sick.

Coffee1Sugar Tue 09-Apr-13 10:01:04

* with her

Forgot to say her potassium level is 8.2. Normal is 3.5-5.

hellhasnofurylikeahungrywoman Tue 09-Apr-13 10:01:37

No experience but wishing her well.

digerd Tue 09-Apr-13 16:36:05

Just googled it as my DH's potassium level was abnormal when he was admitted to hospital for terminal cancer. They informed me his kidneys were failing. Did not ask for the number.

8.2 on this website is diagnosed as crytical. I do hope they can save her.

Coffee1Sugar Tue 09-Apr-13 17:44:06

She went into cardiac arrest at 2pm, she's been resuscitated and is now in ICU on a million drips. Been told next 12hours are critical. 2 members of her renal team have been sent from her usual hospital. Not looking hopeful

Coffee, wish I could say the right things to help but I can only offer my hand to you over the next few hours. x

Has her transplanted kidney failed now then? It sounds like it may have done. In her favour is her young age and the fact that she's evidently got to medical help quickly. I hope she improves very soon.

HighJinx Tue 09-Apr-13 18:03:57

Sorry, I have no relevant experience but am thinking of you and wishing her well.

TheAccidentalExhibitionist Tue 09-Apr-13 18:47:48

I'm keeping my fingers crossed for her OP.

foofooyeah Tue 09-Apr-13 18:54:07

Sending prayers for her - glad she is getting help. Have my hand too.

ParsingFancy Tue 09-Apr-13 18:55:55

Thinking of you all.

Delayingtactic Tue 09-Apr-13 19:16:52

Oh OP I'm sorry. At least she's got the right people coming to her and the local doctors are obviously wised up and taking all the specialist help on board.

Unmumsnetty hugs

Thewhingingdefective Tue 09-Apr-13 19:23:00

Really sorry to hear of this. I hope she pulls through.

xigris Tue 09-Apr-13 19:26:07

Oh how awful for you all. Thinking of you flowers

QueenOfCats Tue 09-Apr-13 19:27:44

Nothing useful to add, but another hand if you need it, and prayers that your cousin makes it through thanks

OpheliasWeepingWillow Tue 09-Apr-13 19:27:53

No experience of this but sending a prayer

trickycat Tue 09-Apr-13 19:32:17

Thinking of your cousin and all your family. Waiting for news is horrible, be kind to yourself.

HighJinx Wed 10-Apr-13 08:48:42

Still thinking of you and your cousin coffee. I hope she is improving.

xigris Wed 10-Apr-13 08:49:46

Morning coffee - how is your cousin doing and how are you coping?

Coffee1Sugar Wed 10-Apr-13 09:55:11

Thanks for all your kind words. She's been sedated in ICU to let her heart recover, her potassium level has lowered but not nearly as much or as quickly as they'd like. She's had a Doppler scan of her transplanted kidney which has 16% function so she is on dialysis. I'm off to visit this afternoon. Scared of seeing her so unwell. sad

hellhasnofurylikeahungrywoman Wed 10-Apr-13 10:01:59

Oh bless you, I hope she responds to treatment and your visit isn't too scary. Hand holding from afar.

Still hand holding Coffee, ICU is scary, but being there with her and talking will be such a help to her and your Aunt. Is she waiting for a transplant?

Coffee1Sugar Wed 10-Apr-13 10:18:36

No she's not on the list at the mo, she was doing well with this kidney - she's had it 22 years, it was transplanted when she was 8. Its the only one she has and the significant kidney failure is very sudden tbh.

foofooyeah Wed 10-Apr-13 10:22:12

I hope she continues to recover (even if it is slowly it is in the right direction).

Its such a worrying time for you and your family Coffee, ICUs are amazing places and the staff are so dedicated to their patients so you know they will be doing everything that they can for her. Take it minute by minute, and hopefully she will `turn a corner`.

I hope you get some reassurance from your visit. Transplant patients are very complex and there will likely be some ups and downs over the next few days so just keep your eyes on the longer term situation.

sashh Thu 11-Apr-13 06:26:21

Hope she recovers soon.

Coffee1Sugar Thu 11-Apr-13 08:12:00

She fought as hard as she could and the staff were wonderful but my beautiful cousin passed away yesterday afternoon following a second cardiac arrest and kidney failure. My aunt and uncle were with her. She was like my sister. There's only 5 years between us, we grew up together. I've been in floods for about 17 hours straight, made myself sick. It's so unjust, she's just 30. I saw her at about 2 yesterday and she looked like a tiny baby asleep swamped in machinery, so helpless. It's ripped the family apart. Thank you for the mn support

tribpot Thu 11-Apr-13 08:14:46

So very, very sorry for your loss, Coffee1Sugar.

Doyouthinktheysaurus Thu 11-Apr-13 08:16:56

Oh, I'm so, so sorrysad

Life can be so cruel sometimes.

Take care x

aftermay Thu 11-Apr-13 08:18:40

So sorry to hear this. Your poor family.

MrsWolowitz Thu 11-Apr-13 08:20:38

So so sorry sad

There are no words xxxx

JambalayaCodfishPie Thu 11-Apr-13 08:25:59

I saw this was an update and hoped for good news, I'm so sorry for your loss.

Be kind to yourself. X

Oh Coffee I`m so sorry, much love to you and your family, be very kind to yourself now x

HDEE Thu 11-Apr-13 08:35:04

Really sorry to read this. My thoughts are with you.

pussinwellyboots Thu 11-Apr-13 08:45:19

Really sorry for you. Thinking of you and your family at this time.

BreastmilkCrucifiesAFabLatte Thu 11-Apr-13 09:04:29

I'm so so sorry.

whattodoo Thu 11-Apr-13 09:06:02

What a tragedy, so young. Sorry for your loss x

Yama Thu 11-Apr-13 09:10:39

Oh Coffee, I'm so sorry. My wee brother died at a similar age. It really is heartbreaking.

ajandjjmum Thu 11-Apr-13 09:13:46

So sorry.

HighJinx Thu 11-Apr-13 09:13:48

So very sorry read this Coffee. Thinking of you and your family.

Look after yourself.

bumpybecky Thu 11-Apr-13 09:17:03

I'm so very sorry for your loss x

NorkyButNice Thu 11-Apr-13 09:18:09

Sorry for your loss, take care of yourself x

So very sorry for your loss coffee sad

LottieJenkins Thu 11-Apr-13 09:21:43

So sorry............sad

PoppadomPreach Thu 11-Apr-13 09:22:27

My condolences. Take care of yourself, and your family. X

weegiemum Thu 11-Apr-13 09:23:38

So sorry to hear of your sad loss xx

hellhasnofurylikeahungrywoman Thu 11-Apr-13 09:23:39

My condolences to you and your family.

Bakingnovice Thu 11-Apr-13 09:23:42

Oh darling, so sorry for your loss. I was rooting hard for you all and was hoping the update today would bring good news. Please use the support here. It's amazing. Thinking of you and your cousin/sister.

So sorry to hear this, you must be devastated. Take one day at a time, cry all you need to flowers

Coconutty Thu 11-Apr-13 09:25:53

Oh coffee I am so sorry to hear this xx

cogitosum Thu 11-Apr-13 09:31:18

really sorry sad thinking of you and your family

XBenedict Thu 11-Apr-13 09:32:08

I'm very sorry to hear this Coffee, very sorry sad

Ginformation Thu 11-Apr-13 09:34:28

So sorry to hear the news, massive unMNy hugs for you. X

Madsometimes Thu 11-Apr-13 09:36:40

I'm very sorry. She was far too young.

ParsingFancy Thu 11-Apr-13 10:34:47

Oh Coffee. I'm so very sorry.

HairyPotter Thu 11-Apr-13 10:36:35

I am so very sorry. sad

QueenOfCats Thu 11-Apr-13 10:40:39

I too was hoping that there would be a positive update sad

I'm so sorry for your loss x

magso Thu 11-Apr-13 12:06:40

So sorry Coffee.

trickycat Thu 11-Apr-13 12:20:22

So sorry she lost her fight. Thinking of you and all your family.

Coffee1Sugar Thu 11-Apr-13 16:44:45

Thank you for all your lovely words. So nice to know that there are people out there who care who don't even know me! I've spent the day at my aunts house, took round a cottage pie and a lasagne for the freezer and my mum has done some cleaning for her. Just in shock almost denial to be honest. My oh has taken today off to be with dd so I can collect my thoughts and spend time with the family.

drummerswife Thu 11-Apr-13 16:49:31

thinking of you and your family
treasure the happy memories you have of her they can never be taken away x

ovenchips Thu 11-Apr-13 16:49:33

I am so sorry to hear about your lovely cousin, Coffee. What a shock and what a loss.

Sending you strength.

picnicbasketcase Thu 11-Apr-13 16:50:37

I'm so sorry for your loss. Peace, strength and best wishes to you and your family.

foofooyeah Thu 11-Apr-13 19:24:59

oh I am so sorry. So young. It must be devastating for you all.

So sorry for your loss. Our thoughts are with you tonight.

digerd Fri 12-Apr-13 08:00:22

It is so tragic. Her kidney tranplant she had at 8 years-old, did give her 22 years of life that she wouldn't have had without it. Try to concentrate on the joy you both had together during her too short life.

It is the worst thing we experience in our lives to lose a loved one.

HollyGoHeavily Fri 12-Apr-13 08:07:54

I'm so very sorry for your loss coffee x

BasicallySFB Fri 12-Apr-13 08:13:07

I'm so so sorry for your sudden loss. No words but take best care of you, and thoughts with your family thanks

Portofino Fri 12-Apr-13 08:29:31

So sorry to hear about your cousin. Thinking of you and the rest of the family xxx

xigris Fri 12-Apr-13 08:33:29

So sorry coffee sad

D0GWithAYoni Fri 12-Apr-13 08:36:26

Oh coffee I've only just seen this. So sorry to hear it my thoughts are with you and your family.

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