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(990 Posts)

step this way dear ones...the trolley will be here in a sec...

PenisColada Tue 15-Jan-13 07:29:10

Thanks I don't want to lose the thread again.

Gigondas Tue 15-Jan-13 07:34:28

brew Anyone? Pen - holding your hand as expect you are feeling a bit nervous.

topsyturner Tue 15-Jan-13 07:42:07

Found you !

Much hand holding Pen , hope all goes smoothly for you .
If you are still feeling horrible when you get there , ask for a Pre med .

I'm still in bed . Have decided its too cold to get up ...

jchocchip Tue 15-Jan-13 07:55:23

Just going to work. Icy here. All the best for today, pen
Good call topsy

PenisColada Tue 15-Jan-13 08:43:39

Thanks can't stop crying . Off for a dog walk in a minute that will take my mind off it.

I have not packed yet but assume I don't need much until tonight / tomorrow morning. Dh is going to bring my bag down later.

smee Tue 15-Jan-13 10:15:04

((((pen)))) deep breaths. You'll feel so relieved when you wake. xx

Slumps down on cushions frustrated. DS is ill with mild stomach bug so whole week's upside down now. How's everyone else doing? I have brew on the go for those who want some. smile

KurriKurri Tue 15-Jan-13 10:19:35

Accidentally posted on the last thread so will c and p

Rushing on quickly to wish Pen loads of luck and good vibes for the op today, tell them you are very nervous my love - they will give you something to calm you down. xx

Off to catch up on your posts - have been out scraping away six inches of snow so I can put food down for the birds!

<puts meal worms and suet on the trolley>

KurriKurri Tue 15-Jan-13 10:30:07

Hooray for HND - brilliant news smile Hope she is home and well on the road to recovery v. soon.

Well done invicta smile

Lots of snow here, but for the first time ever they seem to have been ready for it and roads are well gritted, so no real problems.

DD is playing the accompaniment for a professional opera singer at a do on Sat. - and getting v-well paid for it. She went over to his bloody enormous mansion house to rehearse last night, he is v . nice and has 3 mad dogs and she loves dogs - so hopefully she'll get more work if he does other gigs.

She's also playing church organ on Sunday - so I have to walk to the church with her later in the week so she can practice on the organ (she claims it is spooky in there on your own!)

I'm really pleased she's picking up quite a lot of work at the moment (various other choirs etc also on the go and some teaching)

Have just realised I have book club on thursday - so have to read Howard's End by then, - have so far managed about 50 pages and it is D.U.L.L - someone tell me it gets better please.

Hope little Smee is better soon, and you don't catch his bug Smee.

Love and warmth to all xx

well done to dd kk -she is obviously much in demand. I used to collect T from junior choir thing which was held in a school next to old church and used to walk through the graveyard in the dark -the organist used to practice in the dark church so it was always rather spooky hearing these sounds coming out !
Poor ds smee - hope he feels better soon.

smee Tue 15-Jan-13 11:15:03

<takes meal worms off trolley and puts hot buttered crumpets on, whilst looking sternly at Kurri> grin

Kurri, 'Howard's End' kind of seeps into you from memory. All I ever remember from studying it is 'only connect', because that was the key to crit. Good about DD and all that work. Most impressive. smile

Hope Pen's okay. Horrible not to be in first thing. Makes it far worse all that waiting.

smee Tue 15-Jan-13 11:16:32

DS is fine, MAS. I had to fetch him at lunchtime yesterday as he had tummy ache, but no other symptoms, so I don't think it's Noro. He has no temp and is still eating so he's having a fine old time. I would have sent him in if he hadn't been sent home yesterday. Am sure he'll be back tomorrow.

I've only ever seen Howard's End (nearly wrote Howard's way) on film, and then never all the way through, just chunks of it whenever it's repeated (which is/.was often)
Glad ds isn't too bad then grin

Found you all grin

Hope DS is enjoying his day off today smee. Good day for staying at home imo as it is very cold.

kurri well done to DD. It sounds like she is much in demand.

Thinking of you today pen hope you have a speedy recovery.

Just back from walking the dog and really need to do some cleaning but can't be bothered having a coffee first.

Gigondas Tue 15-Jan-13 13:00:10

I like the Howard's end film- one of my faves and best thing Helena Bonham carter in. Not sure my knowledge of film will help.

Smee hope ds feels better soon. Am wondering how long til big gig gets something.

All this talk of crumpets may have to buy some.

KurriKurri Tue 15-Jan-13 13:40:38

Howard's End is improving as i progress - I do like Forster normally - but it's a long time since I read any - maybe I need to get back into his 'voice'. Small piece of trivia - one of my school friends was in Howard's End - one of the smaller parts (she was also in East Enders for a while ages ago).

gracie - you are doing well to get your dog out - mine looks out the door and digs her feet into the doormat grin - I've just carried her into the garden for a wee, and then DD had to dry her with a towel when we came back in, - she's now sitting on the sofa wearing a woolly jumper (the dog not DD, - she's wearing an old dressing gown grin)

Its really started coming down heavily again here all my bird food has been covered over. - I might not be able to get to book club at this rate - although I'd like to as we are all going to the pub for A NY lunch.

There's been quite a few nasty viruses ging round in this region - we've escaped so far, but a few friends have had lurgies. Hope DS feels better soon Smee - hopefully no Noro if he hasn't been sick.

MAS - I keep calling it Howard;s Way too grin - I blame Gig grin

topsyturner Tue 15-Jan-13 14:06:02

Someone say crumpets ???
<emerges from blankie/sofa cocoon briefly , growls at meal worms>

Still no snow here <sad face>
HND had the last of her drains removed this morning . No news on when she's getting out yet .
May have to bake cake with file in grin

Gigondas Tue 15-Jan-13 14:06:15

"Discuss the character of ken. Is his love for jan Howard genuine?"

"Why does jack never get any help for his drinking problem?"

"What attracts women to millionaire Edward frere?"

Gigondas Tue 15-Jan-13 14:08:00

Poor hnd- I well remember the break for the border feeling.

Have just scoffed three crumpets.
And kurri that's great about dd.

smee Tue 15-Jan-13 14:54:19

grin at Howards Way exam. Are there pass notes, Gig?

DS has just trashed me at Monopoly. Definitely sending him to school tomorrow.

topsyturner Tue 15-Jan-13 15:06:41

Really really want crumpets now !

Gigondas Tue 15-Jan-13 15:12:43

It's the cold weather- I am sure it hard wires you to want them.

And yes- prof gig does pass notes- this week - the life and loves of abi urquhart

smee Tue 15-Jan-13 15:27:30

Crumpets are good for you. I know, have just had 2 and feel great. grin

I have a pack of crumpets here but I fear I've gone off them-
I must brush up on Howard's Way for the exam....

KurriKurri Tue 15-Jan-13 16:36:51

Gig - will there be questions on Abi's bizarre and alarming wardrobe contents? - I could ace them grin

Also -Jan's Boutique - who are the people who are willing to pay huge sums for hideous clothing and are happy to have it stuffed in an old carrier bag when they've paid?

I think I may have muffins in the freezer and a couple of bagels for the trolley (also some menthol cough sweets if anyone is desperately hungry - not me obviously, I would never scoff cough sweets when there's no food about)

NedSchneebly Tue 15-Jan-13 16:42:34

<dashes into new thread, looks around, and holds out hands for crumpets>

Afternoon all smile

Tired today - had personal training session and counselling session back to back this morning, and both were hard work. Cold here - DSs school at the top of a hill, so all being told to park at the bottom and walk up the icerink road to school. . . I came an embarrassing cropper on my way out and ended up on my arse, and the lovely headmaster offered to walk me down the hill back to my car blush

All planning done for tomorrow and I have made a phonics game too smile

MAS thanks for the book, arrived safely this morning. Will make a start tonight if I am not too tired after Choir.

smee glad to hear DS feeling a bit better. Definitely sounds like he could go back tomorrow!

kurri what a clever DD! Sounds like she is carving out quite a niche for herself. And great experience to have a range of things to play for - ensembles, soloists, church. OUr church is quite creepy in the dark - I am with her on that one! You must be super proud of her smile

Good news on HND's drains out. Hopefully she'll be breaking for home soon.

Must get to the bottle bank before dark. Have shitloads a few bottles from Christmas to get rid of.

Laters lovelies smile

Gigondas Tue 15-Jan-13 16:49:33

Oh ned lovely- sounds like you are getting used to it. Can I pick your brains (or otm if she is lurking) on something that I need to help big gig with? I know she is only little ( reception) but need to try to encourage her to concentrate for longer spells alone- she is fine doing stuff with someone but need to try to urge her to try things by herself and then ask for help rather than having someone do something with her. I was thinking more games , puzzles she can do and then show me what she has managed. Any thoughts?

Prof kurri asks some excellent questions. Perhaps we can discuss together polly and Gerald's Sham marriage?grin Or why anyone finds Tom Howard irresistible let alone women 20 years younger?

Right back to my reading for open uni.

Gracie when are your scans - tomorrow?

smee Tue 15-Jan-13 17:27:24

<hurls crumpets at Ned> You sound energised. Did you know today's supposed to be the most depressing day of the year? Slump woman, ffs. grin

I am useless at knowing anything, so will need coaching from Profs Gigs and Kurri. Do you provide snacks?

Topsy any more news on when HND's back?

And yes, Gracie when are your scans? I am still on the box for you and Gig. Sitting there playing board games with DS. I have so far lost at Monopoly, Payday and now Ticket to Ride. He is most definitely going back to school tomorrow. grin

smee Tue 15-Jan-13 17:29:23

Just remembered, I was nattering inanely to DS earlier anxting about whether DH had got to work okay because 'there's lots of ice on the roads'. He thought I said 'mice'. Great image. Just think of the weather maps. grin

NedSchneebly Tue 15-Jan-13 17:40:45

Gig with regard to big gig, I guess its finding things that you know she'll quite happily play with/ can access on her own, Sylvanian families, drawing, a simple puzzle etc and "set her off" on it, so to speak - set up the game with her, play along for a few minutes, start the puzzle off with her etc, and then say "that's brilliant, big gig, can you do the next bit, I am just going to make a drink/ empty the dishwasher and I'll be back in a minute" then go away and leave her for a couple of minutes, lavish lots of praise if she's still focussed when you come back and steadily increase the time.

I know not everyone is a fan of Supernanny, but there's one thing she always tells people to do which I think really works, with DS and in the classroom, and that is to comment really specifically about the positive behaviour and reflect back what you see them do. So instead of "well done, you're playing nicely" be more focussed "well done, aren't you putting the squirrel family in their car beautifully, and now you've put all the meerkats in a line" It sounds false, but it really works, at least it always has for me, with DS and kids that I've taught. You can do it from a distance too, as you walk past, iyswim.

With LittleNed I used to set up something for him to do at the breakfast bar while I was washing up/ making tea whatever, so he was independent but with me at the same time. He didn't cope well if I was just sitting on the sofa, but seemed to accept playing independently if I was busy doing something too. Could you get her a Cbeebies comic or similar, "you can have a look at your big girl comic at the table while I make lunch. . . "

Sorry if that's all a bit patronising, its not meant to be at all. Just a train of thought and some things that worked for me! Hope some of it might be useful x x

NedSchneebly Tue 15-Jan-13 17:46:47

X-post smee energised? I don't know about that, but I do feel like I am making baby steps of progress. Only cried once today in my counselling session - surely that's progress?! My counsellor said that I am too self-critical and too hard on myself, and I have to give myself a bit of a break. . . grin at mice on the road! like this perhaps?

love the mice on the roads ! that could inspire an illustration !
Do you think it's bad to keep looking up mets and life expectancy online ? I think it probably is, but am getting a bit obsessed with it, though I feel very disconnected at the same time- I might be trying to scare myself into feeling something properly. Are lung mets really bad,as opposed to other mets ? Sorry to cast a bit of doom into the thread, but I spend a lot of time looking up stuff,like x ray pictures of lung mets trying to see if they look like mine (from what I remember seeing) I know I should speak to onc or bcn. Sorry- indulgent ramblings.
Am off to do a sample illustration for a poss. job for a Japanese newspaper- it's for a novella written by a writer friend of mine.

KurriKurri Tue 15-Jan-13 19:20:06

MAS - I think it's very natural to want to look things up online and find some sort of answers for what has happened to you. Whether it is a good thing to do or not, only you can know - does it frighten or reassure you? - If the former, I would stop, - it's awfully hard for you lovely - wish I was nearer to give you a big hug sad - If I was doing a bit of psychological guessing, I'd say you were looking for some kind of certainties, when your life has been thrown into uncertainty. I don't know if that's true but it's a thought.

yes talk to you onc and bcn, - the thoughts and feelings you are having are I'm sure very natural for someone in your situation.

As for whether lung mets are worse - I don't think so, people are affected differently, and some people live a good amount of time with a good quality of life with mets. I think response to treatment, general health and a bit of luck will all play a part. I know there are people on this forum with various types of metastatic cancer who were given a rather dismal prognosis and are still going strong ten years on. It is a very inexact science as far as I can tell.

But you have every right to feel disconnected, disbelieving, angry and sad - and the professionals will be able to help you. (MacMillan is v. good in my experience, I've talked to a nurse in the past and she was brilliant - she understood exactly where I was coming from. I'm sure you would be able to talk to a Mac Nurse if you wanted too, and thought it would help. XXXX

Ned - well done for getting through your counselling today, it does sound as if you are making good progress, nice of HT to help you down the hill, but not nice to fall shock hope you are OK.

I would like to see mice on the road rather than icegrin we do get toads here (and I mean hundreds covering the road, - DH goes out with buckets and collects them and takes them across the road, but driving is awful - you can't avoid all of them sad)

Special question in the Howard's Way advanced paper, 'Avril Rolfe - does she cut her own hair or share Brian May's hair dresser?' - discuss.

And - which prestigious award did Abi win? (answer the 'Most unemotional reaction to giving up your baby in the history of the world "Oh OK you'd better have him then. I'm off on a protest march.")

Gigondas Tue 15-Jan-13 19:56:22

Ned- that's great advice. She will play well alone at home so I will build on that. I just think the whole school thing is a lot to get used to plus she likes her teacher so responds to the attention.

Mas- I have often gone down the "are my mets worse?" Line of thinking (but never google as ime there is very little on there about my cancer and lets face it nowhere is going to say what I want to hear which is yep you will be ok).

What I do know is kurri is right that there are a lot of people out there with mets who are still going strong years later. You don't tend to hear about them as they are usually too busy living life.
Also like the infertility/mc type stories you tend to see a lot more desperate stories than the good ones as you don't tend to post when things are ok. I know I should go post more on the pregnant loss boards but I don't as am not in that head spAce.

I know my cousin found Specialist therapist helped as I did when she was first dx so maybe Bcn might know someone who could talk you through (or even regular slots with her).

And also it is shit scary and serious so I don't think it is wrong to be upset. Scared and angry about it as well as confused about why.

Kurri- yes abi does win that award. And jan/Tom for quickest recovery from leaving a long marriage in history. Charles frere must have some special designer for his shorts.

Smee- is ds back at school tomorrow?

thanks kk - you are wise as always...am not angry or anything really,that's the problem- I suppose I feel I am not behaving as people normally would. I never cry (the nearest I came to it was when I lost my earring-) I think I displace feelings (when my brother died I didn't allow myself to feel anything- and look where that got me !) The dying thing doesn't frighten me which is odd to me - I think that's why I keep looking, to get a reaction. And people are being so lovely to me and I like the feeling of being looked after which then makes me feel guilty...

Howard's Way End - Leo was such a wet thing- rubbish actor too.

ah,cross posted with you gig - and thanks for your imput too. I do have bcn to talk to I know- I will do that.

PenisColada Tue 15-Jan-13 20:04:37

Was given a big dose if temazepam as I was really nervous, went to sleep then they cancelled the op as previous lady ran into some problems in theatre.
Just slept of the drugs on the sofa. Very dissapointed but reassured by the team and the pre med really helped.

Hope it is not too long to wait for round 2

Gigondas Tue 15-Jan-13 20:14:11

Oh pen angry for you and hardly thing you want to hear when nervous.

Mas- I think all your past experiences(especially your brother) all gets mixed up. You have a real and very big thing to deal with it but it just tends to make your default reaction stronger (for me it's fear of being alone and unsupported and forgotten )
On nice mets story, my lovely cousin got an ok at her latest scan- that will be her 5th year post ovarian dx with a grim prognosis and lots of different stuff. She thinks her art work also helped so I do think being focussed helps so your work is a great thing.

I am offering some very nice wine tonight whilst waitkn

smee Tue 15-Jan-13 20:23:11

Ach Pen, how annoying. Have they given you any idea about when you'll be rescheduled?

Ned, you are doing brilliantly just getting up and functioning, let alone working, getting fit, going to counselling, being a fab mum. Honestly, I know it's hard but it takes time and you'll get there. xx smile

MAS, I think the unknown's the worst part of any cancer, let alone mets. I know I felt much better once I knew full pathology and what the timetable was to being out of treatment, so I'd say the unknown is your worst enemy. Trouble with googling, is if you lined 100 people up with lung mets, they'd all be slightly different. v.hard not to do, but nobody can tell you what's next. Not sure how you get through it, but maybe Kurri or Gig are right and Macmillan or your BCN can help a bit more?

Yes Gig, DS definitely back at school tomorrow. He's totally fine and has eaten the entire contents of the fridge with no mention of tummy ache. smile

smee Tue 15-Jan-13 20:24:42

smile for your cousin, Gig. Nice story and v.timely for you worried about your scan and for MAS too.

yes,that's a great story gig - am v pleased for her. You all speak sense !
Sorry about the cancellation pen- how annoying - hope it doesn't make for more anxiety.
Off to be now - dh says there's heavy snow forecast for Friday,which is my hosp. appointment - the roads from here to there are notoriously awful in bad weather (v twisty and twirly country roads)

smee Tue 15-Jan-13 22:53:39

MAS, like the 'be'. Possibly a warmer place than 'bed'. smile I just watched BBC forecast and it sounds like Friday's the turning point, but weekend's more when the snow might fall, so you might be okay for appt.

KurriKurri Tue 15-Jan-13 23:36:22

Pen - so sorry they cancelled your op - that is very tough, hope they reschedule asap so you are not kept hanging around.

Weather getting steadily worse here - my yoga group lady phoned a while ago to say tomorrows class cancelled. Roads may have cleared a bit through use by Friday though MAS - fingers crossed you'll be able to get to your appointment.

Gig - good to hear about your cousin, - good for her smile

Night night all x

smee grin @ the be- that is Mindfulness- just be,in the present moment.
Am up and it's v chilly...

Gigondas Wed 16-Jan-13 07:35:14

brew? I am lurking in bed for as long as possible. Shoulder aching again (it did get better after massage last week) so hoping painkillers kick in soon. On good news front tho my leg is loads better although more work needed on flexibility - it doesn't ache thoughsmile.

Tis cold here and big gig is desperate for snow .

grr about shoulder gig

KurriKurri Wed 16-Jan-13 09:48:55

Ouch to shoulder Gig - hope it is feeling a bit better after horse pills.

Morning Mas smile

Goodness it is snowy here, have had several 'cancelled' phone calls since about 8 this morning, and DH has decided not to go in to work - he's gone off for a walk in the snow instead grin Even google has a little man in a snow plough!

DD has not emerged form her bed yet - I suspect she has hibernated grin

Right - hot drinks all round(I have tea, green tea, various fruit and herb teas,coffee (caff or decaff)hot chocolate and horlicks), and I will make a vat of porridge and a heap of toast for all <fills trolley>

KurriKurri Wed 16-Jan-13 09:50:50

Oh has anyone been watching winterwatch on BBC2 this week? - some lovely shots of places in Norfolk and some of our wildlife - we have been to that enormous rookery to see the roosting and it is amazing! And the seals of course are gorgeous.

topsyturner Wed 16-Jan-13 09:55:06

No snow here .
Just rain .
<huffs and climbs back into sofa/blanky cocoon>

Pen when I first went in for my mx , I got all the way to being in a hospital gown and then got bumped as my surgeon called in sick !
I feel your pain my love . Here's hoping they get you rescheduled ASAP !

Mas I see secondaries as a long term thing . Something that will need occasional treatment , but not affecting me apart from that .
The best way to see it is as any other life long illness like diabetes etc .
<doesn't stop me googling stats or perching on the paranoia box though>

Any breakfast suggestions ?
I know it's a little late for brekkie , but I don't eat at brekkie time .

topsyturner Wed 16-Jan-13 09:56:25

Hot chocolate please kk
And maybe some porridge , is there any honey to put in it ?

Gigondas Wed 16-Jan-13 10:02:22

I have honey topsy- hot chocolate for me too.

Agree about long term- cousin really had very grim prognosis (wouldn't even say if she would make it to Xmas when dx) but with treatment (ops chemo etc) it has stabilised. My specialist nurse talks in same terms. And you are absolutely right as people forget that if not managed properly you will die from diabetes, asthma , heart conditions etc .

Having said all that I know will need spell on box when it is scan.

Was glued to radio whilst I was being a bed for mini gig (I have my uses- she was curled up with her new toy wol mas) as dh was passing where helicopter crashed on train this Mornjng.

Shoulder easier with drugs- it just needs exercise as it has got out of place after op.

Pen are you ok today?

Kurri- it looks like you have brunt of snow where you are.

KurriKurri Wed 16-Jan-13 10:12:32

hot choc and porridge coming up topsy ( I think there is honey in the cupboard - it may be rather old though). Snow is a nuisance but it is so pretty, and we don't have it very often, so I'm not really complaining.

DH has come back having bought quantities of bird food from the village shop, and has now disappeared to take photos. He'll be looking for a toboggan next grin

Gigondas Wed 16-Jan-13 10:58:11

wont a tea tray do kurri?

there is a fab you know you grew up in the 80s thread in chat that is distracting me from my ou work . In someways its as well I didnt have the net when I was a student first time round.

So jealous of the snow kurri, as topsy says just miserable rain here and mighty cold.

That is annoying pen hopefully they will reschedule soon but rotten to get that far and then sent home.

Hope your shoulder eases gigs. Does a brufen rub so any good? Is your scan this week?

mas my nurse always likes to tell me about her patients who are still going strong 9-10 years after mets dx. They do look at it like a chronic illness.

Surgeon appointment went well last night. I had a mammogram which was all clear grin. Echo this morning was 'hopefully' ok so just MRI to go next week.

Gigondas Wed 16-Jan-13 12:37:00

Painkillers , warmth and massage all help- it was fine for about 4 days after last massage but I slip into bad posture habits so set it off again. Physio again on Friday before my scan so see what that says.

That is great that mammo all clear- and it's good are being so thorough with MRI although they are uncomfy .

well done gracie smile

smee Wed 16-Jan-13 14:13:59

Yay for you, Gracie. I will sit on paranoia box until MRI, but still that must be a huge relief. smile

That notion of mets being chronic makes sense. V.hard to accept that 100% of the time am sure, but maybe as you learn more about your own situation, and see that the treatment's working it gets easier to do?

Gig, where was the crash? Just heard it on the news, but it said 'central London' and nothing else. Did DH see it? shock Glad to hear leg's better, but ouchy arm sounds grim.

Pen, how are you today? Any news on new date for op? Really hope it's soon.

Kurri, if DH goes as far as a toboggan, you should go too. I love sledging.
No snow here. B'ah.. but looking promising for weekend. Little Smee v.excited. smile

PenisColada Wed 16-Jan-13 14:41:36

I am ok today thanks. I was in gown knocked out on the pre med when the sent Dr Twelveyearold to tell me it could not be done today.

Admissions rang this morning and it is now scheduled for thurs next week so not too long to wait. I have years of housework to catch up on so am are I will keep busy.

AtoZandbackagain Wed 16-Jan-13 15:51:31

Aw Pen - that's terrible when you were all prepared for it.

That happened to me years ago - cancelled my gall bladder removal having got me all gowned up for theatre. The rules are that if They cancel for non-clinical reasons they must offer you appointment within 2 weeks or you can chose to have the operation/treatment done at any hospital of your choice (including privately). If you google the key words you can find the NHS document about it.

I was taken to hospital by ambulance on Saturday morning after a night of dry-retching and vomming (TMI). Ambulance crew and admitting nurse told me I looked 'really dreadful '. Had 4 days in there on continuous IV fluid and anti-ems. Now at home. Still not feeling 100% at all - very shaky and gaseous which triggers the vomming. Have different set of anti-ems.

Nice Dr said that my chemo is probably the worst one for nausea side-effects but even so they shouldn't be that bad.

Now very worried about next 3 cycles although they assure me they will review the chemo and maybe adjust. At the moment I just feel chemically plugged at both ends.

poor you AtoZ spounds awful..am sure they will adjust your dose- I have had mine changed twice already because of side effects...hope you feel less plugged soon.
pen that's good that you haven't too long to wait. The pre-med sounds a good idea for next time ?
Am drawing things for Mr gig (men ski ing !) and waiting until it's piano lesson time for the boy. I get to read my book while he plays (first volume of The Cazalets - Elizabeth Jane Howard- all the volumes posted to me by a friend in Birmingham- very kind of her- absolutely love it so far)

Gigondas Wed 16-Jan-13 16:31:05

Atoz that's awful but agree they should tweak dose cos as mas knows. And I know prolonged spell in hospital doesn't help.

Smee- was by vauxhall - dh didn't see it but I have been past on train today and you can see wreckage and also how very near it was too railway/houses etc.

I loved the cazalets when I read it. Strictly there should be a picture of dh falling over and then self medicating with beer as that seems to be what happens when he skis with that lot.

smee Wed 16-Jan-13 16:47:37

Oh my, AtoZ, that does sound grim. I had awful nausea/ vomiting and nothing much worked until they reduced the dose. They guess the amount of whichever drugs they to give you based on a pretty crude height/ weight ratio and a lot of us have had doses of drugs reduced so we can tolerate them, so don't despair. Keep tucked up warm xx

Gig, phew that's good he didn't see it and wasn't there. Sounds v.scarily like a far bigger disaster could have happened. Awful. sad

MAS, are you still doing a lot better this time round? Hope you are. x

Pen, next Thurs isn't so long away, but still must feel like ages. What a pain. I have housework you could do if you need things to fill the time. shock

this last cycle was a breeze ! take heart AtoZ though I do think capecitabine is easier going than most chemo drugs, which is good as some people are on it continuously.
Piano done and so I guess i must return to ski ing men- Mr gig didn't ask for a picture of himself fallingover skiing - it all sounds very jolly and I have learned about tequila infused beer.

KurriKurri Wed 16-Jan-13 18:49:41

gracie - great that mammo was clear smile

pen - next thursday not too long to wait (I know it probably feels like ages to you though), - at least they got back to you quickly.

AtoZ - sorry you had to go in to hospital, hope they manage to tweak your dose so you are not hit so hard the next time, hope you feel a little better soon, that shaky sick feeling is horrid sad

Gig - thank goodness your DH didn't have to see that awful accident, - but as you say Smee, - it could well have been even worse.

MAS - Cazalets is good, you will enjoy it smile

Smee - I'll encourage the snow to go your way for Master Smee to enjoy grin

I've just finished Howard's End, and I enjoyed it despite feeling very annoyed with lots of the characters.

invicta Wed 16-Jan-13 19:28:27

Pen - sorry to hear about your rescheduled appointment.

I loved Howards Way, and got very excited once when I saw Barracuda in a boat yard in Lymington several years ago. I always thought that Charles De Frere was a bit creepy.

Mice on the road - brill!

I've never had honey and hot chocolate but Baileys in hot chocolate is delicious.

amberlight Wed 16-Jan-13 21:36:36

marking my place... smile

topsyturner Wed 16-Jan-13 21:37:26

AtoZ ask them for a syringe driver next time .
It's a small pump that continuously feeds you anti sickness drugs .
I had one for 5 days with every dose of chemo and it was a life saver !

That helicopter crash this morning was awful .
BBC news were interviewing an eye witness on the phone , and the poor guy was almost crying .
And you can tell that all the bastard presenter wanted to know was "did you see any dead bodies" hmm

Just back from visiting HND in hospital .
Am beginning to think she likes it in there grin
She's now having to have her boob aspirated due to it sloshing about like a hot water bottle .
And she's also got to be nil by mouth from midnight as they might have to take her back into surgery to do the same on her back !!!

Gracie yippee for clear mammo , what's next for you ?

Gigs when do you have/get results for your scan ?

Snow forecast for here on Friday .
I'm secretly quite happy that we are getting some , but that's because I don't need to leave the house and can sit infront of a roaring fire watching out of my window ! grin

topsyturner Wed 16-Jan-13 21:39:06

Honey was for the porridge Invictor not the hot choccie , that would be all kinds of wrong grin

<waves like loon at Amber >

Gigondas Wed 16-Jan-13 21:49:46

Poor hnd- it's a bugger when you won't drain. Are they going to insert a Hoover thingy in to help if necessary or just clean her up? I had to have clean up but worked a treat.

Scan is Friday lunchtime and see onc on Tuesday lunch. Am doing ok about it if I don't think about it too much.

smee Wed 16-Jan-13 22:24:45

Oh no, poor HND. Bugger about the not draining. Hope they sort her soon. sad

Gig, am on the box for you. Useless I know, but am thinking of you. xx

I like snow so long as it lasts a day only and I can a) have a snowball fight, b) go sledging, then c) curl up and watch our road as a winter wonderland. After that it's sludgly annoying and I want rid of it. But yes, please send your snow Kurri. Me and DS need it. Will send westwards to Topsy when we're done. smile

grr about non-draining hnd
Bloods today and hoping the snow doesn't prove to be too pesky here- a bit would be nice though.

Copthallresident Thu 17-Jan-13 09:58:35

A to Z Sorry you ended up in hospital. It is miserable and scary, especially when days before you were entirely healthy. I felt quite resentful towards my "poisoner". However as smee says the dosage is very crude, and it is entirely normal for them to reduce it when they realise how it affects your body. My dosage was reduced at every one of the six cycles, and the treatments delayed to let my body recover properly. On the plus side the mega dose will have started the treatment with a good blast and you got a ride in an ambulance...

Poor hnd, I had problems with fluid (Sonoma? Just googled, not Sonoma, that is nice place in California , Seroma is fluid.... ) had to keep having it drained, but not a hoover, a HUGE great syringe, a GA would have been a fine thing, also so I didn't have to put up with the doctor that kept having to do it. (It was my first encounter with that sub group of doctors who react, annoyed and put out, as if you have done it deliberately ......wonky oncy was like that too, would tell you off for low blood counts as if you were a naughty schoolgirl and it had nothing to do with the poison. So probably Topsy you should go in and tell hnd off wink, that will sort her out )

MAS I do know what you mean about not feeling. Ever since Cancer I have reacted to any sort of trauma that way, it is probably your sub conscious protecting you, though I also think there is something of once you have learnt the hard way that life can be shit then it comes as no shock when it is IYSWIM. However I think that going on Dr Google may be a bit like picking a scab, better to talk to BCN who will doubtless tell of all the people who are living with mets for years. There are certainly plenty being treated at The Marsden.

gigs DH must have gone through Vauxhall 20 minutes before the helicopter accident. At least the mobile network didn't go down. On 7/11 I couldn't get through to him until lunchtime.

How is the studying? Are you enjoying it? Just reading can be hard to get down to but once you have a purpose and a deadline then it helps you focus especially if you have procrastinated so long that there are not enough hours in the day to meet it. Procrastination is a recognised condition now, we have very touchy feely hippy commune department that offers lots of support crystals, yoga, woo to procrastinators and the stressed. They even have procrastinators anonymous courses but I have not yet felt able to stand up and say "my name is ---- and I am a procrastinator" I am sure OU will have similar

Better get on blush but thinking of everyone with tests, scans etc. Moves considerable rump on to paranoia box, now NOTHING can escape.

topsyturner Thu 17-Jan-13 14:10:14

Just watched last nights One Born Every Minute <guilty secret>
And they showed a clip of next weeks episode .
Midwife : so where are you from ?
Patient : Peru
Midwife : is that where Paddington Bear is from ?

.................... gringringrin

Gigondas Thu 17-Jan-13 14:33:31

If that's your worst viewing you have some way to go- I am proud to say I loved a series on sky called Britains roughest pubs.

Not that this post falls under procrastination copthall (yes it is slow getting back into the reading and learning how to organise myself but am
Enjoying it).

smee Thu 17-Jan-13 15:00:20

There was a surprisingly fab documentary on last week about parking fines. grin

How are you, Gig? Keeping busy? And you too, Gracie. Scattering the remains of Christmas cake on trolley to distract you both from scans.

AtoZ how are you today? Feeling any better yet? Hope you are.

Topsy, any news on HND? Did she have to have op to clear fluid?

Hope bloods weren't gruesome, MAS. What did they say about potentially missing Onc appt due to weather? Is there a plan B?

Have just had my bone density scan. Was completely fine about it until dimwit clicked that it's imaging, so starting anxting about them spotting something. Bloody hell, it never ends does it? Anyways, still excited by idea of snow, so will concentrate on that. Have you sent it yet, Kurri? <drums fingers impatiently> smile

Copthallresident Thu 17-Jan-13 15:07:45

I am addicted to One born every minute. DD thinks it is very sad, "wasn't it bad enough having to do it twice?" as I weep copiously Was very disappointed my lovely niece refused to be filmed when nursing one of the babies they filmed in the neo natal ward, the nurse they filmed was an imposter!! That particular midwife who they seem to be focusing on this series nothing to do with her being blonde, sweet and pretty I am sure has come out with some corkers but my favourite was the man who couldn't work out that the big red button with emergency written on it was the one to press when they needed the midwife as wife was in distress, and kept pressing the buttons that changed the ambience of the lighting......

Not procrastinating either gigs , oh no.

Copthallresident Thu 17-Jan-13 15:35:49

smee Dr Geek said that all they can read from dexa scans is bone density, so Osteporosis, Vitamin D deficiency in children, so that is all you can get paranoid about really. It measures the rate at which a small amount of radiation, much less than an X ray, less even than you would get on a long haul flight, travels through the bone and you get a measure of bone density in your back and hips in relation to the average .

You need the proper bone scan to investigate for mets, when they inject you with a radioactive material which picks up any bone building hotspots, in response to Cancer, trauma etc. It even picked up that my sacro iliac joint was traumatised by giving birth to DD2 (10.5 pounds shock).

we watched OBEM too- I liked the Latvian girl - that blonde midwife's voice would seriously grate,I must say.
smee no idea about what to do if it's too snowy- dh has written me a stern email saying that there's no way he'll let me go if he thinks it's too dangerous (he wrote it in caps) Kind friend who has a 4x4 has offered to take me, but she lives over beyond B/stoke which would mean her coming and going twice over. Am just hoping that it's ok for me to go and then it can snow as much as it likes when I'm home.

smee Thu 17-Jan-13 17:34:33

Ah, thanks Copthall. I am a ninny. I had a full bone scan last year during another bout of paranoia and it was all clear, so phew for that. smile

MAS, what time's the appointment? If morning you could well be fine as snow's more likely after lunch apparently. Don't risk getting stuck though. DH is right to be so capitally assertive. grin

smee Thu 17-Jan-13 17:35:40

Copthall shock at 10.5 pounds. I'd bet the sacro iliac wasn't the only part of you that traumatised..

NedSchneebly Thu 17-Jan-13 18:02:11

Evening all smile Am knackered after full day at school. Am hoping it will start getting easier at some point. . .

Bloody chilly here - heavy snow forecast for all day tomorrow, so unlikely that I will be venturing out to work. Might get out OK, but sure as hell wouldn't get back! Might possibly be hoping that DSs school shut and we can have a quiet, snuggly one on the sofa. . .

shock at 10.5lb copthall *smee is right about your traumatised bits. . . I managed to press that red emergency button when I was in labour with DS. It wasn't an emergency at all, but no-one had shown me the smaller "call" button next to it blush It was very dramatic, many staff ran in from all directions, and all I wanted was more batteries for my TENS machine. .

smee perching my ample arse on the paranoia box for you, lovely. I remember you had the clear bone scan last year. That's what you need to hang on to, right? Is Dexa scan in preparation for moving you off Tamoxifen? How long must you wait to find out?

MAS don't risk snow, my love, you don't want to come a cropper in the wild Hampshire lanes. . . I see T's school is "partially shut" (on Heart FM website) Is he affected? I have always thought its a bit mean to give some the day off but not all. Picture arrived today - it is awesome and perfect! Seeing the recipient on Tuesday, so safe to post on FB then! Will send cheque post haste. . .

Hope everyone is OK today and staying warm.

Love you all lots x x x x

appointment at 11, so that might be ok- snowing here now, but not very heavily...T over joyed...
He has to go in for a GCSE History exam,no matter what, but I guess can come home afterwards.
Waves to ned - glad picture is safely with you ! Hope you can relax this evening after a full day smile

Copthallresident Thu 17-Jan-13 19:04:17

Actually smee Ned No I can't say I even noticed the trauma to my sacro illiac joint , it was very quick and would have made a good One Born Every Minute. I ended up being wheeled to the delivery room kneeling up in the chair, because I refused to sit down, understandably I think what with what was going on down below, slumped over the back screaming, with the midwife running along with her head between me and the porter maintaining eye contact and shouting "DON'T PUSH" at me, and another running along in front (to catch if I did?). I screamed, swore and made lots of terrible noises and when I apologised after the midwife said "Don't worry quick births are always like that. I had a nice lawyer the other week that bit me, she was very apologetic after" shock

smee Hopefully you will pass the dexa with flying colours and get letrazole and not be a failure and a sad disappointment to the doctors like me, yet again!!

MAS I managed not to cry during last nights OBEM, until the Latvian girls' lovely Mum arrived on the megabus....

Ned Teaching is so very tiring, it is very physical, take care of yourself.

DDs school psyching themselves up for a snowday I reckon, lots of "In the event" "for health and safety reasons" emails and texts. I come over all northern at these snowdays, having grown up in a village only exited via a 1 in 4 hill, and we NEVER had snow days. Dad would rally and slip, slide and skid up and down those hills no matter what. MAS DON'T TRY IT (uses DH's shouty capitals) Hopefully it won't start until you are back and tucked up and can look out on it as romantic scene , rather than a health and safety hazard.

Copthallresident Thu 17-Jan-13 19:09:51

ps Obviously by come over all northern I mean <turns into Monty Python "You were Lucky" northerner> Off to warm up with some Chateau de Chasillez.

Gigondas Thu 17-Jan-13 19:28:02

Did you get one of those emails too!? I am just hoping that doesn't bugger my hospital trip either mas - not that I expect a lot of snow early but sw trains have got their excuses in already smilehmm

Ouch at the birth stories - I was profoundly uncomfortable with mini gig this time last year.

I remember asking the midwife to make my bed into a chair (apparently it could be adjusted to this effect) but she was hopeless at it, plus she wanted my fan turned off as she had a cold (and I was boiling hot as it was midsummer and baking) The best bit about the birth was having the company of a fabulous medical student who held my hand and was wonderful- we are still in touch -she's now a GP in Leeds.

I'll be sensible copt Dh will hide my car keys....

smee Thu 17-Jan-13 20:24:01

Gig, what time do you have to be there tomorrow? I think snow's due to hit London mid morning, so you might be okay if it's an early scan? Will be thinking of you xx

MAS, definitely don't risk the roads if there's any doubt. Am sure it's annoying, but we can't have you stuck in a car. We'll have to come out with tartan rugs and fbs to find you.

Ned, hugely well done to manage a day's teaching. Am wishing you snow tomorrow so you can curl up and rest. I am not really all that worried about bone density scan. I think it was more that I was in the same place that I had to go to for first bone scan nearly 3 years ago now. Brought it all back to me.

On birth, have to say biting lawyers sounds about right. Love the Porter shouting 'Don't Push' at you, Copthall and MAS how lovely that you're still in touch with that doctor. Denzil Washington forceped mini Smee out. Genuinely he was a serious look-alike, utterly gorgeous and there was me with my legs in stirrups after 48 hours in labour. shock

thinking of gig - sending lots of love. Am having porrige for breakfast.

NedSchneebly Fri 18-Jan-13 07:38:05

Happy Snow Morning smile

Mine and DSs school shut today, so don't have to feel guilty about not struggling in to work. DS got a bit of a cough anyway, so quiet TV day planned, with possibly a short-lived foray into the back garden at some point, just so we can say that we have built a snowman!

MAS PLEASE GO CAREFULLY (DHs capitals) if you venture out today. Will worry about you til we know you're safely home x x

That goes for anyone else venturing out this morning - hope lots of DCs schools shut so we don't have to risk ourselves out in the snow

Stay warm lovelies x x x x

Gigondas Fri 18-Jan-13 07:38:14

It's at lunchtime but got physio and therapy first so going in early. So far no snow here.
Keep candles lit, fingers crossed for me

NedSchneebly Fri 18-Jan-13 07:39:13

Posted without wishing gorgeous gig all the very best for this morning - got everything crossed for you x x x

Gigondas Fri 18-Jan-13 07:47:26

Thanks ned-you got a snow day? And how you feeling?

Got the lance Armstrong interview to distract me- am big cycling fan so iinterested (and not that surprised about all this).

topsyturner Fri 18-Jan-13 07:49:30

Best positive thoughts to you today Gigs

Mas you be very careful if you are out on those roads .
And tell T I am sending him good luck vibes for his exam today .

No snow here yet , but it's on it's way apparently . Amber weather warning .

I am planning to stop my sofa from flying away today , but planting my substantial rear on it grin

Those crumpets still haven't arrived ...

I never cared for Lance Armstrong- read one of his books and thought how up his own arse he was. And not very nice.
T's school is still open so he is disappointed about not coming home after exam..he is willing it to blizzard. So far a sprinkling so roads should be fine going-will keep an eye out for return journey.
Happy cosy snow days for those without school grin

NedSchneebly Fri 18-Jan-13 08:01:15

Thanks gig yes, snow day here for me and DS smile I think I am OK, tired, but pleased to be back at work. My therapist says that I am too self critical and that I need to challenge that part of my personality. He said what did I see when I looked in the mirror and I said "fat" (which is the truth) so we are talking a bit about self image etc. I said to him that I didn't want to be the person I was last year, with the whole cancer "identity", but he said I couldn't get rid of that person entirely, that I had to use the experience of 2012 to shape the new person that I want to be now. Makes sense in theory, but its a bit harder to do in practice! He's a very lovely man (if ever so slightly camp!) and I know that it is helping talking to him, even if the sessions are hard work and draining. I am less weepy from day to day, so I guess that's progress. . . Sorry, that was a bit of a waffle!

Got bagels here topsy if that would do as a substitute?

topsyturner Fri 18-Jan-13 08:13:05

Depends Ned , what flavour ?
<fussy> grin

Copthallresident Fri 18-Jan-13 08:14:09

DDs school open and her train running and there isn't even a frost confused. Everything crossed for gigs, doesn't look as if even South West Trains can plead adverse weather, though of course they may get out and dust off their "wallaby on the line at Chessington" excuse.

Lances book was given to me by about 5 people when I was diagnosed, all very inspirational it seemed hmm

Hope it is all clear for Mas too.

I am seriously looking forward to walking goon dog in a blizzard, it will make a change, and scare off the nasty posh couple with the evil fat black lab of the Baskervilles that roam Hampton Court Park and bully goon dog and I ....Wonder if I can get goon dog to carry a flask of brandy.

NedSchneebly Fri 18-Jan-13 08:52:45

Topsy I can do raisin and cinnamon or plain with sesame seeds on . Can do with real butter too?

topsyturner Fri 18-Jan-13 09:12:28

Hmm , sesame I think .
Lashings of real butter please .
<greedy>

Copthall snow is pig/dogs very favourite weather .
He has a harness that he wears on walkies , and I think a flask could be clipped to it ... grin

topsyturner Fri 18-Jan-13 09:12:47

Still raining ... hmm

quick pop on as after changing internet to by in November and not going unlimited we have gone WELL over our allowance and can't get changed to unlimited until next week, grr.

Just want to wish gigs and mas good luck today and anybody else who needs it.

sigh - am not going as it's really snowing here and dh went ballistic because I was attempting to go. Made appointment for next week - they said several people had cancelled anyway.
T will be cheered by school closing @ 12

smee Fri 18-Jan-13 11:34:01

Sesame, butter and honey for me please, Ned. smile

Glad to hear your stern DH made you not risk it, MAS. Snow here, but it's really only just getting started. DS at school, he'll be so excited. Will have to go dust the cobwebs off the sledge. Will definitely need brandy for when we venture out. grin

Candles lit for Gig. Thinking of you xx

Hope it was all ok gig xxx

topsyturner Fri 18-Jan-13 15:14:01

I think the end if the world is coming
My sky signal has failed
Aaaaaaaaaaaaargh !!!!!!
<runs around panicking>

Gigondas Fri 18-Jan-13 15:56:11

Scan ok- my lovely dad came and kept me company so we had a late lunch afterwards. Physio brutal tho smile

No sky!! sadshock

Just got to keep fingers crossed now for results .

Now the small matter of mini gigs birthday tomorrow ..

Well done gig smile and grrrr about sky topsy sad

KurriKurri Fri 18-Jan-13 16:21:37

Afternoon all smile

Just reading all your posts. We have had more snow here = DH couldn't get into work today, the roads are really icy - no gritters out here in the sticks it seemshmm We had a power cut last night, or rather a semi power cut - massive drop in voltage and lights, kettle etc all went off, but we had TV initially, then that went too - just as they were doing an item on the New forest on Winterwatch - grr. My computer was not amused at the power messing around and is now very hard to start up and making a noise like a dolphin (clack clack clack!)

Glad the scan went OK Gig and nice that your Dad could come with you.

Hope everyone is well and keeping warm, love Kate x

KurriKurri Fri 18-Jan-13 16:22:36

Oh FFS - thought I was sending an e-mail there - ignore my complete senility!

aww grin !

topsyturner Fri 18-Jan-13 20:27:18

Hahahahahaha kk
<losing it>
gringringrin

Sky back .
Phew .
We won't have to sit around talking to each other all evening ...

Snowing lots here .
Took poor DH almost 3 hours to get home from work this evening . Normally takes 1/2 hour !

Power keeps flickering too .
<looks around nervously for candles>

Copthallresident Fri 18-Jan-13 21:37:57

KK grin

Topsy (on proper computer that isn't convinced you are a dipsomaniac) did pig dog get his snowday? Goondog also really loves snow, it was like Narnia this aft, very uplifting, even if no brandy as Goondog refused to do a St Bernard impersonation sad (I wasn't going to push it, am a bit phobic about St Bernards after looked after one that was a baby substitute for friends on their honeymoon and it died of a heart attack on Day 2, couldn't wreck honeymoon but then couldn't leave 13 stone of dead dog til their return, ended up throwing a "dig a hole for the huge dog" party in their back garden. I know blush It was good black humour training though...

DD out for the evening so a while before all safe home <worried>

love, ha! not telling wink

topsyturner Fri 18-Jan-13 22:14:09

Topsy is stone cold sober tonight unfortunately

Pig/dog did enjoy his snow day thank you . He had a good snuffle about on his walk this evening .
He then sulked for over an hour as he was shut in the kitchen (where he has a bed , 2 mats , and a chair of his own) to dry off grin

topsyturner Fri 18-Jan-13 22:14:44

Lolling about the St Bernard though gringringrin

KurriKurri Fri 18-Jan-13 22:43:35

Shouldn't laugh at dead St Bernard, - but I am grin

I posted just after answering some e-mails - seriously I am losing it grin - <no room in brain for more than one task emoticon>

Old lady dog isn't keen on snow - she did a wee on the doorstep - that was as far outside as she was prepared to go, so now I am carrying her out into the garden!

DD is supposed to go about 40 miles tomorrow night to play for her opera singer, - but I think there's a good chance of cancellation, which will be a shame because it was a well paid gig. She's also had to cancel her teaching tomorrow as roads too bad - so she's not best pleased.

Hope your Dd is home soon Copt.

Copthallresident Fri 18-Jan-13 23:42:24

DD home smile Hope everyone else all home and snug .
Love......still not telling wink

smee Sat 19-Jan-13 00:12:24

grin at St Bernard. You know you're amongst friends when we all laugh at such things.

Kurri, if you've lost it well I speak your language. I am peculiar atm. Put the kettle on the top of the hob to make rice earlier. Just realised as I lit the gas. shock

Glad you're home safe, Gig. Hope mini-Gig's birthday is wondrous tomorrow, though I know it's fraught with memories of last year, so take care of yourself and heft yourself over here if you need hugs of understanding. x

Glad DD home safe, Copt. Mighty glad Topsy's got her Sky back too as couldn't bear the strop if she didn't.

Night all. zzz <with a bit of luck> hmm

jchocchip Sat 19-Jan-13 07:36:57

Morning all - tried to post last night and ended up not being able to see the thread! Found you again now, so I'll put a brew on and wish minigig the best birthday.
Off for a run in the snow, think I'll take a sledge too...

happy first birthday to mini gig !!
The St Bernard burial v funny (poor dog)
Glad dd is safely home copt
Message from senior bcn asking if Icould do a picture of all 3 of them to hang in the breast unit !!! (I did her birthday card) awww.
Dh and T (mostly dh) built a snowman in the garden in the twilight -the snow so bright they could see everything as it got darker- we didn't need torches to guide us over the garden to mum and dad's for our traditional Friday drinks grin

topsyturner Sat 19-Jan-13 10:40:45

Happy 1st Birthday Mini Gig
Have a fabulous day !

Copthallresident Sat 19-Jan-13 11:47:12

Happy birthday to mini gig!

Hope hnd and atoz are on the mend

NedSchneebly Sat 19-Jan-13 13:12:56

Happy Birthday to minigig Can't believe its a whole year! Sending you lots of love x x x x

amberlight Sat 19-Jan-13 17:34:47

Ooo happy birthday, miniGig!

topsyturner Sat 19-Jan-13 18:35:40

Glass of wine anyone ?
Fires lit .
Dinners cooked .
Just waiting for DH and the DC to get back from mass .

Might be tmi , but I've got a dodgy dodgy tum .
Nearly got caught short in Tesco this afternoon .
Now that's a thread I wouldn't want to write ........ gringringrin

invicta Sat 19-Jan-13 18:36:44

Happy birthday mini gig.

KurriKurri Sat 19-Jan-13 18:49:21

Happy Birthday minigig smile xx

I'll have a wine please topsy (hope the runs are better, - pity you didn't have a mishap in Tesco, you could have blamed it on the horse burgers and claimed compensation grin)

BCN picture is a lovely idea MAS, how nice smile

DD has gone off to her opera singer thing tonight - roads are a bit better, - there wasn't any more snow overnight - but I'll be glad when she's back home. She has to get up to play church organ for 9 a.m tomorrow, - so hope she's not too late home.

love to all x

Copt - since you won't tell I am guessing your name is Lavender or possibly Gladys. <massive apologies if it actually is either of those - they are lovely names grin)>

KurriKurri Sat 19-Jan-13 18:54:00

Smee - glad I am not the only one losing the plot. grin

There is a very sad pheasant in our garden - he has a huge clump of compacted snow attached to his undercarriage - like a big snowball, - he keeps kicking at it, but it's stuck fast - I tried to catch him so I could break it off, but didn't manage it (I am not as fast as a snow encrusted pheasant apparently), so I've just put loads of food out, in the hope that at least he'll be able to eat, until it melts off him.

Gigondas Sat 19-Jan-13 19:22:59

Thanks all-
Mini gig had a lovely day (tho still doesn't like cake). Enjoyed a trip in the snow too. I felt ok after having a real wobble last night. But think I may be coming down with something as came over very sick and feverish at dinner time. Now lieing in bed with an assortment of cold drinks to sip-
Chemo does have some benefits about knowing helpful nausea tricks.

topsyturner Sat 19-Jan-13 20:10:34

Uh oh Gigs , you joining me on the poorly couch ?
I actually feel fine , just my bottom disagrees with me ... grin

topsyturner Sat 19-Jan-13 20:12:35

Poor pheasant kk
But finding very amusing , the thought of you chasing him around the garden grin

Are we guessing Cops real name ? I missed that . What are our clues ?
I think Lavinia Trumpington-Smythe
grin

poor gig and topsy - feel better soon both of you.
Aww,poor pheasant grin
Really exhausted today which is weird as no drugs-we trudged to town and that seemed a bit of an effort. Am wrestling with a wedding picture for someone in Arizona - am trying to simplify all the ideas into something that works !
Hope dd is home safely kk

Copthallresident Sat 19-Jan-13 22:29:00

Good grief Topsy I am NORTHERN!! but not Lavendar or Gladys, or Doris . Though I did have an Auntie Doris, she was lovely. This could be a good game, as a clue mother thought she had christened me something unique and chic and then a few years later every girl on the Council estate had the same name (not Chardonnay, this was the 60s...), we all bonded at Guides. She made a similar
mistake with Andrew for my bother, just ahead of the Queen! Then I picked a name for DD1 that was nowhere on the lists and rose to No 1 in a year, after my childhood choices of Emily (Heathcliff!) and Eleanor (Lion in Winter) had met a similar fate.

However I always think pheasants have names like Lavinia or Jemima, they have that air of the thick rich. Strutting around with that air of complete bafflement, yah, rah, ah! Can just imagine Jeeves with snow on his undercarriage......

Hope all bottoms and undercarriages good by morning

topsyturner Sat 19-Jan-13 23:01:24

Hmmm , northern and named in the 60s ???
Sharon ???

I named DS after his grandfather , and it seems to be ridiculously popular now .
And DDs name , at the time , seemed lovely and individual . Without being weird . And seems now to be one of the major chav (ducks and hides) names of choice hmm

My name ? I have no idea why my parents decided on it .
And unfortunately they are no longer around for me to ask them why ???

topsyturner Sat 19-Jan-13 23:03:03

Copt I imagine sharon yelled with a thick brummy accent !
<disclaimer- have drunk a whole bottle if wine and may no longer be considered to have a valid opinion on anything>

topsyturner Sat 19-Jan-13 23:04:05

Also giggling at naming pheasants
Maybe Rupert or Xavier ???

jchocchip Sun 20-Jan-13 06:01:47

Aw poor pheasant. I work with a northern Sharon who has a tendency to shortern names. think shaz, kaz (for karen) I'm midlands and named in the 60s - at school we had lots of variations of Susan..

NedSchneebly Sun 20-Jan-13 07:32:27

Morning all smile

Happy birthday to my gorgeous DH smile Went out last night to new Carluccio's Italian restaurant opened locally. 'Twas lovely.

I named DS after his two paternal grandfathers (first name and middle name) good "solid" traditional names. . . but also two of the engines from "Thomas the Tank Engine". . . Unfortunately he never got that excited about the characters at all!

topsy hope the bottom is better this morning. Just a bug do you think, or something you drank ate? Take it easy and eat fbs to replenish yourself.

gig you feeling any better today? Sorry you had a wobble. Thinking of you x x x

MAS I find walking in the snow hard work, so maybe you just wore yourself out. Take it easy today and don't work too hard x x x

kurri hope DD had a lovely time and got home safely. Such a great experience for her! What news on Rupert the pheasant?

jchoc park run in the snow? Really?? You is hard as nails, woman grin

waves to smee, copthall, gracie, invicta, pen, AtoZ, greylady and anyone else around this morning.

Loads of love to sometimes and sparkle if you're lurking. Hope all is well.

Better go and encourage DS to write in DH's card before DH gets up.

love you all - stay warm x x x

happy birthday to Mr ned ! have a lovely day !
I was called my name because it wouldn't matter if I was plain- they were thinking of a Persian name as I was born in Tehran (Shirin -meaning sweet)
I called T his name because I just liked it- there were hardly any Theo's around then and it was a good combination of slightly edgy and cool and unusual. The northern rellies said you could tell we lived in the fancy south.
My middle name is a variation on Mary as most Catholic girls have that somewhere and it's my mum's middle name. T's second name is my brother's.
Am going to ponder on copt's name....

topsyturner Sun 20-Jan-13 10:30:32

Morningconfused
Never , ever , let me drink again !

Happy happy birthday Mr Ned
Carluccios ?
Not jealous , no not me , not in the slightest .....

In the cold harsh sober light of day , I think Copt is called Sarah Louise

Right , need to drink another vat of coffee and get ready to go to Granny's .
Later Gators x

smee Sun 20-Jan-13 11:53:12

Carluccios and we weren't invited?! shock Though I know it's because Topsy would have disgraced us all... Happy Birthday to Mr Ned. Hope you have a lovely time.smile

Copt are you a Tracey? There were a few when I was little. I don't mind my name. It's not v.exciting, but it's universally dull, so that's okay by me. hates to stand out Lots of faffing when we named DS, but we went for traditional name which could be shortened if he wanted it to be. All v.sensible.

Hope Rupert's undercarriage is thawed. grin

Off out in the snow now. We have enough to sledge now too. Yay!! smile

Copthallresident Sun 20-Jan-13 12:05:19

Wrong again! Though close in that DD2 is Sarah, named after my best friend and an Auntie, (after DH and I argued over names for two weeks since breakneck birth left me with no negotiating power, rather sweetly DD1 still thinks she named her after we sort of manipulated it so she thought she had , as in "if it wasn't for me those two would never have got their act together to give you a name" blush) so basically everyone in family is Sarah but me!

Puts fat coke on trolley for Topsy again wink

Sharon not bad, everyone on Council estate in village who did not have my name was our Sharon, or our Denise. But brummie , north? Deep South more like!

Perhaps another clue, it became popular after two films came out , and no I am not Pussy or Ursula...

Happy Birthday Mr Ned wasn't that a horse? (Just googled, it was Mr Ed I was thinking of but there is indeed a racehorse named after Mr Ned!) Carluccios ? envy

How is hnd has the floating boob stuck down yet?

Snowing hard here, looking forward to blizzard walk, though not talking to goon dog as he has dug up my flower beds tunnelling under the fence, next we will catch him revving his motorbike as he rides up and down looking for best place to jump (my name isn't Steve either) He seems to be having a mid life crisis, tunnelling, stealing food off table , growling at evil fat black lab of the baskervilles , gelling his hair.....

Copthallresident Sun 20-Jan-13 12:06:39

Not Tracey either! smee

invicta Sun 20-Jan-13 12:28:39

Hayley - after Hayley Mills?

Honey ?

sandripples Sun 20-Jan-13 13:19:59

Linda? I admit I'm a bit older but I'm Northern and had 3 Linda's in my primary school class.

Hmm, Kathleen, Jane, Marion, Joyce, Elaine, Judith, Shirley (going through my primary school register now! Quite good as brain gym perhaps?)

sandripples Sun 20-Jan-13 13:22:09

Julie? (sound of music)

Copthallresident Sun 20-Jan-13 13:40:44

Ha! The umbrella with a parrot on the end goes to sandripples . It is of course pronounced Jooleh where I come from. thanks

Copthallresident Sun 20-Jan-13 13:41:29

Dusts off her wimple and heads for the hills...

smee Sun 20-Jan-13 13:41:36

Deborah? Helen? I'm Julie, after Julie Christie. Who obviously I'm a dead ringer for. wink

v.excited as just found forgotten remains of DS's selection box from Christmas, so have just scoffed a Freddo Frog. mmm...

Had huge snowball fight in our road with neighbours, off sledging in a bit. I will want it all to melt by tomorrow, but for now it's perfect.smile

smee Sun 20-Jan-13 13:42:29

Boo! I missed that SR won the prize.

Copthallresident Sun 20-Jan-13 13:43:17

smee snap, especially the dead ringer for Julie Christie bit!

smee Sun 20-Jan-13 13:46:09

Waving to twin. grin

Copthallresident Sun 20-Jan-13 14:17:03

Triplets, with Julie C!

sandripples Sun 20-Jan-13 16:16:48

I'm delighted with my new umbrella - thank-you very much! have always wanted one with a parrot on the end.

The hills are alive........dadadadadadaaada

KurriKurri Sun 20-Jan-13 17:18:41

I See we are over run with Julies grin who'd have thought? - Copt I was convinced you were an Ermintrude grin <ducks>

No sign of Rupert today - I hope he's OK and thawed out.

Hope everyone is having a good sunday - more snow forecast here - and its just starting to fall now.

DD had a good time last night - it was very successful, - was an uber posh do full of local dignitaries, and they were plied with food and drink, Mr Opera singer went around saying what a fab accompanist DD is and a brilliant sight reader (also he had a bit of a moment where he forgot some of his words and DD covered for him in her playing). So hopefully she'll get some more gigs with him.

Many Happy Returns Mr Ned, - hope there is plenty of cake for the trolley

I'm using DH's notebook as my laptop is making the most hideous noise, its very dinky but seems to have a lot of extra keys which I don't have on mine, which has confused my poor old brain, I keep typing \\\\\\\\\\\\\\\\\\\\\\\\\\\\\ when I want to press shift!

Waving to SR -<admires umbrella> grin

love to all

topsyturner Sun 20-Jan-13 18:11:05

grin At you all being overcome with the Holy Spirit !

Julie is obv as common as muck if you are all named it .....
<ducks , runs , giggles>

If you could choose your own name today , what would you pick ?

Just back from visiting HND
She is looking so much better , although she has developed a rather alarming hump on her back grin
She is bored and wants to come home , which I take as a very good sign .
Hopefully discharged on Tuesday .

Copthallresident Sun 20-Jan-13 19:18:17

KK We do indeed run everywhere, always late for everything but our penitence is real, and underneath our wimples we have curlers in our hair, it's a problem ......... wink

I have a feeling these Julies wouldn't last a minute in the abbey, but we are also good at looking gorgeous whilst sledging, with Omar Sharif............ Somewhere my love, dah da da dah dah dah....

Sounds like DD had an amazing experience and that Mr Opera was lucky to have her.

Topsy Glad to hear hnd on the mend.

Copthallresident Sun 20-Jan-13 19:19:46

Why does everyone keep mentioning ducks hmm

smee Sun 20-Jan-13 19:50:51

Ooh yes, Dr Zhivago. Love that film. Must dig it out and bore DH with it. We were gorgeous in that, Copt. grin

Julie is dead common, or used to be though no-one seems to name girls it anymore. Not sure what I'd be called if I had a choice. Will ponder..

Hooray for HND being bored. Tell her we'll make extra room for her hump on the sofa. smile

Kurri, your DD's v.clever. Will she get more work from it? Did she bring any crumbs back from the posh people's table for you?? <holds out plate, hopeful>

Wonder how AtoZ is now? Are you okay out there??

Final snowball fight in the dark just finished, so DS in bed and I'm knackered. I shrieked like a glrl when DH got one down my neck. Whole street must have heard. blush

dd is a star kk ! smile
Not sure what I'd like to be called really - Thea is nice (prob. because it's like Theo)

Gigondas Sun 20-Jan-13 21:45:15

My name was unusual til it was used a couple of years later for a kid in one of the 70s sitcoms. To make up she gave my sis a name that is both unspellable and unpronounceable.

I could barely think of a name for mini gig let alone another for me .

Feeling bit better tonight but not looking forward to Tuesday. Good luck tomorrow tipsy wink

Kurri that's ace about dd concert.

What are bets school is off tomorrow copthall?

PenisColada Sun 20-Jan-13 21:57:48

Just checking in . Not dealing with this wait well and the paranoia is fighting its way out.

I just want my surgery done. Soon. I want my treatment to be done soon and I want to get rid of the cancer and get on with my life with my family.

PenisColada Sun 20-Jan-13 21:58:12

Sorry bit ranty there.

Gigondas Sun 20-Jan-13 21:59:35

No point in not being ranty- I would have been the same if it had hhappened to me.
Am not going to say a week will make no odds really to cancer (it won't) as I know it's the operation an just getting on that is bothering you.

PenisColada Sun 20-Jan-13 22:07:10

I think cabin fever is setting in. Friends all seem to have colds / bugs so not seen anyone much all week. The weather is not good for walks.

I was all prepared for last week and the impact of the cancellation is sinking in. It had better not happen again.

Apologies, will resume trying to be cheerful and coping soon.

Gigondas Mon 21-Jan-13 10:04:45

Don't beat yourself up pen - I have no doubt that you will feel cheerful and cope again but ATM things are shitty so its ok to feel like that.

Am having a wobbly day myself- doesn't help that have got a mindset of if I am really worried It must mean bad news as I remember how worried I was before scan where it had spread.

Topsy - candle lit here x

smee Mon 21-Jan-13 10:17:50

Is it Topsy's results day?? Candle lit here too then. xx

Gig, how long before you have your results? Am here to distract as much as you need. I don't know how it works with you, but imagine no change is a good outcome and any change bad? Hope you don't mind me asking, but I seem to remember when it was me finding people not asking weird. Tell me to shut up though obviously. smile

Pen, moan, rant as much as you want. Must be horrid waiting. Are you keeping busy? Expect you're finding it v.hard to concentrate.

MAS when's your appt? Is it tomorrow? How much snow have you got? Lots here now, but I think you have even more.

Not much going on here apart from work. brew for anyone who wants one.

Gigondas Mon 21-Jan-13 10:28:48

Thanks smee- appt tomorrow at 2. Yes no change (or even, too much to hope for shrinking ) is good - movement or change not good. And I don't mind talking about it here or indeed in rl as helps to acknowledge that am nervous.

Part of paranoia is shoulder pain -I know cause and have it for ages but when the pain refers (ESP down front of my chest) I get nervous. Doesn't happen if I sit up straight etc but am prone to slumping.

Mas are you able to drive easily now?

Gigondas Mon 21-Jan-13 10:30:08

Thanks smee- appt tomorrow at 2. Yes no change (or even, too much to hope for shrinking ) is good - movement or change not good. And I don't mind talking about it here or indeed in rl as helps to acknowledge that am nervous.

Part of paranoia is shoulder pain -I know cause and have it for ages but when the pain refers (ESP down front of my chest) I get nervous. Doesn't happen if I sit up straight etc but am prone to slumping.

Mas are you able to drive easily now?

smee Mon 21-Jan-13 10:37:24

Shoulder's due to mini-gig, am sure. I'd bet 9 out of 10 mothers get it. I know I did. Though obviously paranoia's where your mind goes. Be so brilliant if shrinking's the outcome. I will vibe for that and keep doing so until you're back tomorrow.

Even without mets I anxt. Currently have a sharp on/off pain in my breast. I think it's due to the capsular contraction round my implant, but still makes my mind race. Had it before Christmas and it went so I doubt it's anything sinister, but still. Bloody cancer. grr...

Gigondas Mon 21-Jan-13 10:40:05

It just completely changes your mind set. Even with mets not all of it is cancer but I find myself angsting about everything.

Going to try to crack on with some ou stuff .

Gigondas Mon 21-Jan-13 10:41:26

And yes shoulder is due to slumping posture as lost muscle on that side and lie/roll/hold mini gig on this side. Fact mini gig could play prop for England babies doesn't help smile.

smee Mon 21-Jan-13 10:43:59

grin at mini Gig as Prop. Keep busy then. Not easy, but at least it passes the time.

topsyturner Mon 21-Jan-13 11:00:25

Morning All

Hugs to Pen and Gigs
And thanks for all the candles .
Apt at 2.30 (I think , must dig out my letter ...)

Snowing away here .
Hoping roads will be ok this afternoon

Who's manning the breakfast trolley ?
I feel the need for crumpets and butter .

thinking of both topsy and gig xxxx
Have support group on Wednesday which I hope won't be cancelled and then appointment on Friday...am walking to town shortly so will assess roads etc, and later am collecting Sophie so will see how it is further beyond town centre. Am sure,if it doesn't snow agin here,it will be ok to drive.
Am sitting on the box for everyone in need.

smee Mon 21-Jan-13 11:26:53

Crumpets being buttered for you, Topsy. I am addicted to them with marmite sloshed into the butter. mmm... Will have everything crossed at 2.30 xx

Have a nice walk, MAS. Was lovely taking DS to school today. Not too slippy, and nice crunchy snow for him to hurl at me. grin

T afraid of slipping on the ice- he is a very cautious boy ! I will put my wellies on I think.

KurriKurri Mon 21-Jan-13 12:42:19

Also sitting on the box, and sending hugs to Pen and Gig - waiting and worrying is so horrible. Candles and massively good vibes for topsy - we will all be thinking of you sweetie.

DD did not bring back any crumbs for us - most disappointing. She was greeted at the door of the do with champagne, and then given a meal - but unfortuntley she couldn't drink much as she thought it might affect her palying later! (and apparently Mr Opera was v.nervous and downing a bit of dutch courage, so she felt one of them should be sober grin), and she'd eaten before she left 9not knowing food was on offer) but she did eat the meal (which was butternut squash tart for veggies, and some sort of gateaux envy). She had to sit next t her old headmaster from school (apparently something big in Rotary or one of those things) he kept putting his arms round her hmm and basically taking credit for her talent - even though she says he clearly didn't have a clue who she was grin

I'm enjoying the vision of England Babies, with MiniGig launching herself into a scrum grin

My yoga was cancelled due to weather, - supposed to be having my hair cut tomorrow and going to a committee meeting in the evening - not sure if either will be doable.
MAS - hope your support group goes ahead, and chemo on Friday. This weather is a pain now!

Have done something to my back so I'm hobbling around in the gnome position. Old age strikes again.

love to all x

KurriKurri Mon 21-Jan-13 12:44:56

For some reason I confuse Julie Christie with Marianne Faithful - although they are not at all alike. Julie was in Far from The Madding Crowd IIRC, - with the lovely Alan Bates (who made another Hardy series near where we live, and my dad, who was a magistrate at the time, had to fine him for speeding!)

Copthallresident Mon 21-Jan-13 13:19:56

A difficult few days, thinking of you all, Topsy today, gigs tomorrow, gigs it is normal to worry, not a portent. Even with all the reassurance and clear check ups I have had I am currently having neck paranoia, which makes normal nodes into lumps, it is totally ridiculous but it is where friend had her recurrence and so I can't stop myself reaching up for another probe. They should list paranoia as a side effect of Cancer, the one that keeps on and on. Hips very creaky too but I am sure that is using normally unused muscles to stay upright in the snow! Aw bless mini gig, when does she make her first appearance up the road, England under 21s months. Now that would be cute , baby Rugby! Poor DD2 still a bit of a prop forward, all her life she has been a head taller and bigger built than her peers, plus with the most stunning eye catching hair, not what a teen wants at all so she doesn't notice that actually she is gorgeous, though "you would say that Mum, it's your job" School did open today, just had call to say she is too "frail" to walk home grin

pen I'd be bloody ranting, although Dr Geek suggested a fortnight away before surgery to relax hmm You went through all the nerves and had nearly got it over with and the you find you have to do it all again and as you say you just want this thing out of your body, and out of your life. There was a book doing the rounds when I was diagnosed titled I haven't space in my diary for cancer or something similar. Plus ranting is good if that is how you feel.

Also thinking of atoz and hnd

MAS Hope support group meets, glad it is something you look forward to. My lot were like lovers, when we couldn't meet we emailed and phoned!

Waves to everyone else, smee work? would a spoonful of sugar help?! wink

sandripples Mon 21-Jan-13 13:35:43

Sending good vibes to Topsy, Pen and Gigs. I'm working at home so have caught up with a few posts.

Pen - my friend who's an onc nurse told me that my (snow) delay of 2 weeks wouldn't make any difference to my BC so I decided to believe her. Have to say I was with a bunch of motley assorted patients once I did get onto the ward as lots of folk had been snow-delayed and I was in funny old crowd - when I retire I intend to write a play based on my experiences! Hang on in there and keep distracting yourself if possible.

I have a dear friend who is very ill now. She had BC, got over that and then only a couple of years later developed a NEW primary in the pancreas- rotten luck. Even with a porr prognosis she still gets out and about doing lots of things - I take my hat off really. We rely on e-mail a lot but I'm going to London next week for work so am pleased I'll be able to visit.

I know that having mets would make me very anxious - I can only I do think of you all on here, even if I don't post very much now just due to being at work.

I am finding that full time work tires me out these days although remain very proud that I haven't had a day off sick since returning after BC over 2 years ago. Mind you this awful flu bug is flooring a lot of stalwart colleagues so I'd better not speak too soon.

Ah the beautiful Julie Christie.Lovely to look at - whatever one's feminist credentials. Did anyone see the interview when she described how difficult it is to be beautiful as people just can't see past your face to talk to the peron underneath and take them seriously? Not many could have done that interview w/o seeming extremely vain but she managed and it was a new take on the matter for plain old me!!

Just flying off with my umbrella now- back to work. The Mary Poppins songs haven't stuck in my head like the Sound of Music tho.

topsyturner Mon 21-Jan-13 14:15:28

Am in waiting room
To coin a phrase that I stole off a thread I was reading last night ... <frightwee>
grin

Gigondas Mon 21-Jan-13 14:20:01

grin Eek topsy. Go and have a good look in aibu

Copthallresident Mon 21-Jan-13 14:25:28

Oh Topsy but grin the last few minutes are the worst , try a Doris Day impersonation "What will be will be" Cliches come in very useful at these times.

Gigondas Mon 21-Jan-13 14:28:46

Or a bit of soft rock or even rap- I ain't going out like that by cypress hill to fortify yourself.if you are wearing your pc plum hat you could turn it round to get the rap look (as well as odd looks from others around you).

Hth smile

sending vibes right now topsy I like frightwee

topsyturner Mon 21-Jan-13 14:44:08

Cypress Hill gringringringrin
Am in consulting room
No doc yet ...

Gigondas Mon 21-Jan-13 14:54:47

2013 is the year for retro music like 2012 was for orange rappers delight

smee Mon 21-Jan-13 15:09:12

Vibe-ing from here too. I like frightwee. Definitely sums it up. xx

topsyturner Mon 21-Jan-13 15:18:14

The scans , they are clear !!!
No change from last time gringringrin

(Rappers Delight is DDs fave song !!!)

smee Mon 21-Jan-13 15:22:34

Oh wow. THAT IS FANTASTIC!! You are so very clever, Topsy. Unique as ever. smile smile smile

topsyturner Mon 21-Jan-13 15:29:56

Fankyou Smee
<blushes , twirls hair round finger>

Onc brought student in with her to "share my uniqueness"
grin

smee Mon 21-Jan-13 15:39:19

So what next? Are you signed off until next CT? What's the timescale?

Copthallresident Mon 21-Jan-13 15:54:15

grin grin grin grin grin grin grin grin grin grin grin grin grin

I bet you are high as a kite now Topsy the worse the <frightwee> the better the high!

Now the wind is in the right direction for gigs , we Mary Poppins's, we knows these things (though why we are suddenly talking like Dick Van Dyke I don't know)

KurriKurri Mon 21-Jan-13 16:00:40

hooray for clear scans topsy, and your uniqueness, that's brilliant - unique is hospital talk for weird grin

I like frightwee grin -talking of which, and lowering the tone, I seem to be weeing about ten times more than normal atm - no pain or anything, just quantities of wee, maybe its the cold weather <pulls on knitted pants>

SR - Like the lovely Julie C, being too beautiful has been a problem for me all my life also gringrin

Gigondas Mon 21-Jan-13 16:15:50

Yay for topsy smilesmilesmile some celabratory not quite rap

That is brilliant .

Arf at kurri lowering the tone.

topsyturner Mon 21-Jan-13 16:20:03

Yes , tomorrow is Gigs day !
I decree it must be good grin

Would anyone care to join me in a celebration of my weirdness uniqueness with a small libation ?
<note to self - no hunting for drunk food at 1 am again >

Copthallresident Mon 21-Jan-13 16:31:35

Ha! Have mental image of gigs dragging herself to Consultants reeking of alcohol and throwing up after trying the delights of the kebab shop at the end of Clifden Road at 3am (often identified by DDs as the cause of being sick the next day hmm) after being led astray celebrating with Topsy grin

Topsy wine will have fat coke ready tomorrow.

KK smee and I share your pain, Such beauty is indeed a burden and that Omar Sharif and Terrence Stamp were real pests, don't even get me started on Warren Beatty (not that I would anyway)

jchocchip Mon 21-Jan-13 16:59:06

Hurray for topsy grin that's brilliant!
I went sledging in my lunch hour and didn't break anything smile. Been snowing all day so stayed at home and have done some work.

jchocchip Mon 21-Jan-13 17:01:35

Hurray for topsy grin that's brilliant!
I went sledging in my lunch hour and didn't break anything smile. Been snowing all day so stayed at home and have done some work.
Heard that coke full fat and sugar free is prescribed for digestive blockages - apparently a mix of the acid and bubbles is good for the guts!

Gigondas Mon 21-Jan-13 17:18:55

Oh sledging sounds fun jchoc.

Hopefully we can do a wine tomorrow. Personally I prefer a nice curry in one of the more flea ridden artisan local places- there is one on Twickenham green that often has rats running round the door.

smile At daughters excuses- I had a uni mate who once swore it was the opal fruits he had eaten before bed not the 8 pints he had.

Topsy- forgot to ask if hnd has a parole release date?

And thanks for mas for reminding me about gbbo tonight. That should help pre appt nerves.

KurriKurri Mon 21-Jan-13 17:28:55

Oh bake off - well done for reminders, - I had forgotten.

I will partake of a little wine <posh> to toast young topsy.

Sledging sounds fun jchoc, - have you got hills near you? - Norfolk is flat as a pancake and the men all marry their sisters grin

smee Mon 21-Jan-13 17:38:33

Kurri's married to her brother?! shock Will definitely need a drink now. grin

KurriKurri Mon 21-Jan-13 17:42:14

No on else would marry me Smee grin

fabbest news topsy - medics will be writing papers on you I'll be bound. Will definitelt be having a small sherry to celebrate and to wish gig well tomorrow grin
Walked Sophie home with her holding my arm so I didn't slip on the ice..we went to the toy shop and admired the Sylvanians as usual.

NedSchneebly Mon 21-Jan-13 17:51:41

WOO HOO! for great news topsy well done, you marvellous woman grin

I had my first proper haircut of post-chemo fluff today. Very satisfying smile

Spoke to Dr Lovely on the phone today and she said how proud she was of me getting back to work and coping OK. May possibly have made me a little tearful blush Have been brave and not made another appointment to see/ speak to her - hopefully now I have counselling in place (seeing him tomorrow) I won't have to rely on her so much. She said I could ring/ email any time though, so I don't feel like I've been abandoned at all.

arf grin at Kurri married to her brother! Of course being as beautiful as you are is a burden, I can see that. . . what a cross you have to bear. . .

gig loving the image of minigig in an England babygro scrumming down (DS had one when he was a few months old with his name on the back - he looked completely edible in it!) Got everything crossed for tomorrow for you love x x

MAS sorry about lack of cheque - am crap. Have written and will put in post tomorrow, I promise. blush Am going to see baby F tomorrow, so will let you know (MAS did beautiful baby name card for my friend's new baby)

Waves to everyone - please, all, take care if you are in snowy parts x x x

oh ned don't fret- am so hopeless I'd forgotten about cheque !!

sandripples Mon 21-Jan-13 18:17:54

HUGE HOORAY for Topsy! And again for Ned's fluff-styling - that's quite a milestone!

topsyturner Mon 21-Jan-13 18:30:30

Ooh Ned I need to go for defluffing
My noggin makes me look like a slightly deranged person !

jchocchip Mon 21-Jan-13 18:56:13

Have we got hills near us? Well, if I say the local canal is famous for the 5 rise and 3 rise locks which are within sight of each other, that gives you an idea. Although we say we are in the valley, actually we are some distance above the river and there are some good slopes down to the river in the park ;)

Yay for de-fluffing Ned and being brave coping without Dr Lovely for the mo.

Has everyone invested in overshoe spikes or yaktrack thingys? If it gets icy I'll be wearing mine all the time... Our road has about an inch of compacted snow so we won't be moving the car for a month for a while...

sandripples Mon 21-Jan-13 19:15:12

JChoc - I haven't invested in those ice shoes - but do wonder if I should. Are they good - do they stay on OK?

Copthallresident Mon 21-Jan-13 19:21:29

jchoccchip I think the village I grew up in may be somewhere up in the hills above you, unless there is another 5 rise locks somewhere. No shortage of hills for father to hare up and down in manner of crazed Stirling Moss- to drive over wherever you wanted to go. Excellent sledging I must say --A&E always busy when it snowed

feels the net is closing in and may be outed as not looking a bit like Julie Christie

Copthallresident Mon 21-Jan-13 19:34:17

Agh! the strike through went on the rampage.

Getting lots of facebook pics of everyone cut off up there, looks very pretty.

Ned For my first defluffing I booked into very expensive French hairdresser, since I had saved so much money in the previous months wink, not counting the ludicrous ly expensive wig, and also I was absolutely livid it had not come back my usual shade of dirty Julie Christie blonde. He could of course done what he wished with me providing it was in a French accent but he sort of shaved it very short up the sides, cut the top so it stood on end and bleached the ends. It was the sort of thing muppet.wikia.com/wiki/Beaker but bleach blonde. I don't think Julie C ever went for that look but I loved it. It was like "When I am old I will wear purple" but more "When I have got rid of Cancer I'll look completely mad" It is satisfying though, a landmark.

KurriKurri Mon 21-Jan-13 19:40:05

Yes - I am beginning to suspect I am the only one who genuinely looks like Julie Christie - here is a recent photo of me - I think I was just off to get my shopping at Lidl when that was taken.

ned - the first defluffing is a cause for celebration smile - I'm getting my spiky mess chopped tomorrow - my hair is two inches long on top and sticks straight up, -v.attractive.

jchoc - I think those ice shoes look good - I saw a few people wearing them when I was out the other day.

KurriKurri Mon 21-Jan-13 19:41:48

x-posted copt - Beaker from the Muppets - that is my exact hairstyle atm. grin

smee Mon 21-Jan-13 19:47:35

Kurri, you look mighty glam when you go shopping. shock

Yay for hair, Ned. And hooray for Dr Lovely too. He does always sound rather wonderful. smile

Gig, am still on the box for you. Hope you're okay xx

Pen, are you okay-ish? Feel free to rant all the way to Thursday if it helps.

Wonder if Topsy's drunk yet? Bet she is. Good job HND's still in hospital or it would be riotous. grin

smee Mon 21-Jan-13 19:50:53
Copthallresident Mon 21-Jan-13 19:57:43

KK You are trying to pass yourself off as me angry That is actually my current hairstyle nothing sticks up these days, too lank

though rest of me more muppet.wikia.com/wiki/Miss_Piggy

Gigondas Mon 21-Jan-13 20:05:09

Am doing ok smee but have dodgy tummy so trying to work out what I can eat that wont make it worse.

topsyturner Mon 21-Jan-13 20:06:15

<wonders how kk got that pic of me ?>

smee Mon 21-Jan-13 20:06:27

hmm at tummy, Gigs. Do you think it's nerves?

PenisColada Mon 21-Jan-13 20:07:35

Wow great news topsy ! Really pleased to hear that.

I am just feeling sorry for myself today. Freezing cold . Broke. Have cancer. Great start to the year.

topsyturner Mon 21-Jan-13 20:07:45

Smee .... Snigger !
shit your photo looks scarily like me

topsyturner Mon 21-Jan-13 20:08:49

Copt - wish I looked half as good as Miss Piggy grin

Gigondas Mon 21-Jan-13 20:09:47

You looked lovely in that police hat wink

topsyturner Mon 21-Jan-13 20:10:02

Gigs <rubs poorly tummy>
<proffers wine> <takes wine back and proffers diarolyte>

Gigondas Mon 21-Jan-13 20:10:44

Think it could well be part of it plus tail end of whatever made me feel poorly at the weekend. I don't even feel like wine shock

topsyturner Mon 21-Jan-13 20:10:44

Pen shitty start to the year indeed .
But it can only go up from here xxx

Gigondas Mon 21-Jan-13 20:11:32

Yep- if you bleached your hair topsy, you could be yazz and sing that to her.

topsyturner Mon 21-Jan-13 20:11:48

Had to give police hat back Gigs
Some guff like "regulations miss" ...
grin

topsyturner Mon 21-Jan-13 20:13:50

I DO want to go blonde this time .
Went purple after hair grew back last time .
Never been a proper blonde before .
Trouble is , I keep taking pics of blonde hair that I like on randomers and I think the police might contact me soon ....

<yes , am fast approaching drunk>

topsyturner Mon 21-Jan-13 20:15:19

Nooooooooooo !
Fecking sky gone down again .
Damn you snow !!!

Gigondas Mon 21-Jan-13 20:25:49

You will be damning it even more if there is a snow day tomorrow when there is no sky, 2 kids and a hangover.

topsyturner Mon 21-Jan-13 20:40:22

Noooooooooooo !
Gigs you are a little ray of sunshine !

Gigondas Mon 21-Jan-13 20:42:10

grin Promise I will try and be nicer tomorrow post appt.
am just grumpy as dont fancy a drink or food.

jchocchip Mon 21-Jan-13 20:42:17

Think I have to go in to work tomorrow, dd has exam in the morning so she has to go in, too. Hope it is not too snowy and the trains run on time... May go and look for some wine
And I made a cake yesterday with parsnip in, and it is surprisingly scrummy smile
Topsy our telly has lost its colour balance, and everything looks green.

topsyturner Mon 21-Jan-13 21:49:28

Am lusting after Laurence Fox in Lewis , upstairs in bed
Pig/dog is snoring on the bed beside me . I keep having to turn the volume up as he's getting louder !

You can be as grumpy as you like Gigs , I shall just carb load tomorrow when I am hungover and the kids are stuck at home with me .
<sob>

topsyturner Mon 21-Jan-13 21:50:21

Cake with parsnip ???
Is it covered in choklit ?

topsyturner Mon 21-Jan-13 22:12:21

Who fancies making me a fried egg sandwich ?

topsyturner Mon 21-Jan-13 22:20:45

No one ?
Humphs
Goes to bed

jchocchip Mon 21-Jan-13 22:24:54

Aw Topsy I'd have made you a fried egg sandwich grin

The cake also has two overripe bananas and some dates and sultanas and no chocolate. The one my friend made last week following a recipe (!) had a cream cheese based topping so same idea as carrot cake...

Copthallresident Mon 21-Jan-13 22:40:35

gigs I had a friend who had to give up a career as a barrister because everytime she had to speak up in court she shat herself got a dodgy tummy with the nerves.

Annoying not to be able to comfort eat and drink, do you have any other comforts? Baths? Things are actually a bit volcanic here this evening so maybe something is going around, all I eat earlier today was Mushrooms on toast (Reubens smile or maybe it is Reuben's fault sad) .

jchocchip beetroot also makes a surprisingly nice cake, and courgettes, and of course they are 1 of your 5 a day grin So is it the same hills as I used to roam as a girl in my wimple?

Topsy Sadly no one can take the place of John Thaw, he lulled you into a state of contentment, in spite of the bodies all around......

Gigondas Mon 21-Jan-13 22:46:24

It could well be nerves but do think something ia going around as have felt dodgy on and off since Saturday.
Lewis is recorded for tomorrow but midsomer is also on which is something to look forward to post appt.

jchocchip Tue 22-Jan-13 06:31:48

copt If it is the same hills you would have been able to see the chimney of the famous thermal underwear factory. Is that a clue?

Gigondas Tue 22-Jan-13 07:04:17

Is snow going to make your trip to school/work tricky today jchoc or is it easing?

Somewhat disturbed night due to tummy- how long does loperamide take to work? brew For those that want it.

topsyturner Tue 22-Jan-13 07:25:19

Morning Gigs
What time is your apt ?
Handholding from me .

Snow Day here .
DDs school definitely closed .
No word yet on DS , but I'm keeping him off as snow really bad here .
DH presently outside attempting to dig his car out of the driveway .
Because Ofcourse his company , and very likely the global economy , will grind to a halt if he doesn't make it in.

Gigondas Tue 22-Jan-13 07:32:05

2pm- just taken drugs so can get in without loo stops I hope.

Dh would probably have felt less responsible for the economic upturn if Sky was working.

hand holding here from me too gig

NedSchneebly Tue 22-Jan-13 09:04:16

Got a spare hand here too gig Thinking of you lots today x x x x x x x x x

Copthallresident Tue 22-Jan-13 09:28:18

gigs I was thinking of you last night as I tossed and turned with explosive tummy on top of usual sweatiness. Hope your tummy is now dormant. Everything crossed for later.

DH similarly entirely responsible for continuing functioning of the global economy, apart from when the Rugby is on, funny that. (Actually not funny, I worry the stress and long hours will kill him and he doesn't have a reliable spare as a parent to his children to allow him to risk that)

jchocchip Couldn't actually see the chimney from our village, we were further up on t'moors, that was the bright lights, with a Library! and a Swimming Pool! I spent my teenage years roaming the moors looking for Heathcliff, so much more interesting than the local boys wink and there wasn't much else to do It is beautiful up there, I miss it, though I hated it, and that wretched last bus at 10.30, as a teenager. The snow is bad, never known so many people snowed in!

Hooray my internet is back. Just need to get Sky sorted as at the moment we only have 1 working TV as apparently the connection that sends the signal around the house is broken. My goodness my weekend has been long without any distractions.

Huge good luck vibes for you today gigs also hope your dodgy tummy is a bit better.

Have missed so much and trying to catch up but know that I have been thinking of you all. I did spot on Facebook wonderful news from topsy - excess amounts of wine must be the way to go grin.

Hope everyone stays warm today. I have to brave the elements and go for my MRI. Just hope I don't make a fool of myself and fall on the way to the bus. Feeling very nervous as this will hopefully give the answer to the query about the liver and bone mets.

It is good to be back.

topsyturner Tue 22-Jan-13 10:41:22

<waves like loon at Gracie >
Good to see you back .
Good luck with the MRI , when do you get the results ?

Think I need choklit now ...

<waves back at topsy> Not sure when the results will be back. Hopefully onc will contact me next week as I need my echo results before they will give my my next Herceptin which is due next Friday. Hope you are having a good day with your kiddies. Mine are all at school thankfully

Gigondas Tue 22-Jan-13 11:08:21

Tons of luck gracie - it will be noisy so ask them to put music on.

Feeling very washed out and nervous

waving to gracie !

Thank you smile.

Just had a call that DS rugby cancelled grin. He played yesterday and was like a drowned rat.

Is your appointment today as well mas?

smee Tue 22-Jan-13 12:34:11

Lots going on today then, if it's you too MAS. Thinking of you and Gracie and of course you Gig. Candle burning bright for you. x

Pen, not long to go now. How are you today??

Haven't heard from AtoZ for a few days now. Hope she's okay. Are you out there AtoZ? Let us know how you are if you're up to it.

Topsy, when's HND out? Surely soon? She's been in for ever. shock

Snow's half ice, half slush here. Bit bored of it now so don't mind if it goes. Not much going on. Less paranoid though, as connected chest/ breast aching with sledging. D'oh..! grin

nope - not me today...
Am going out soon in car,should be ok as main road and A3 -got to buy new pens and things for my mum's birthday...

KurriKurri Tue 22-Jan-13 14:04:42

Rushing in to say Good luck Gigs - will be thinking of you gorgeous girl xx

Good luck to gracie for MRI, and massive hugs for nerves xx

handholding for you both.

lots of love to everyone who is waiting for appointments, tests, ops, etc.

MAS - DD says thanks for the e-mail - she liked it grin

My art club committee meeting has been cancelled tonight - thank goodness because the country roads are awful still.

Have had my hair snipped short - I am no longer Beaker, - more of a nailbrush grin

Old lady dog found a bag of dog biscuits in my bag while I wasn't looking and has helped herself to quite a few! Now she's fallen asleep by the radiator to take the weight off her stomach.

Have to say one very unwelcome result of kids being off school here and out on the street, - one of our friends has been abused by a group of kids on her way home from work each night - racist abuse, - little shits! Can you report that to the police?

KurriKurri Tue 22-Jan-13 14:06:51

Oh and love to HND - where is she? - surely not still incarcerated? - hope you are recovering well if you are reading this HND if you are still in hospital is it so you don't have to see so much of topsy?

topsyturner Tue 22-Jan-13 14:46:18

KK racist language and verbal abuse is indeed taken very seriously by the police , and bloody rightly so !
Tell your friend to give her local station a ring or give me directions and let me at them

babababababa baaaaaah
<drumroll>
HND is being picked up from the hospital right now !!!!
I have her DC here whilst DH goes and gets her . And her eldest has just said to me that the first thing he wants to do with her when she gets home is have a snowball fight with her !!! gringringrin

topsyturner Tue 22-Jan-13 14:48:29

Pig/dogs treats are kept in the same cupboard as the coffee . So the other day I took the coffee out , took it over to the work top , made coffee , turned around to put coffee back .
Found pig/dog shoulder deep in the cupboard , munching !!!
He got sent straight to the naughty step grin

KurriKurri Tue 22-Jan-13 15:05:12

Yay for HND getting out at last smile

I will tell my friend to tell the police, I definitely think she should, - I think she tends towards 'I'll just ignore it. it happens' but obviously it is upsetting and utterly shitty even if they are kids - maybe they should get a fright from the police to stop them doing it again. (It is mindless 'why don't you go back to China/Japan' etc. - wherever they try to guess she is from, - She's tried telling them she's British actually, but they are pig ignorant, and not open to discussion or factual information!

Poor pig-dog - he must have been staaaaaaaaarving like old lady dog<sad look>

Gigondas Tue 22-Jan-13 15:31:04

winethanksFor hnd and for me as all clear so off the hook for 3 months. Specialist nurse was there who said I was tough as old boots.

Have macaroons for trolley as not sure i dare risk them yet.

Thanks tons for handholding and support.

Also saw another nurse who was very positive about mets treatment.

NedSchneebly Tue 22-Jan-13 15:44:07

WOO HOO and thanks gig I am LURVING all the good news this week! Sounds like you've had a positive experience today then? Well done love smile

Also WOO HOO for HND breaking out. Am sure you'll feel good to be in your own bed. Sending you lots of love. Will be great to see you back!

Sort of snow falling here, but not settling. Been raining most of the day so hopefully the blasted white stuff will soon be gone. Fingers crossed!

Sending love to all x x x x x Anyone for a brew ? Have malt loaf too if anyone wants a quick snack

smee Tue 22-Jan-13 16:15:48

wine wine smile smile for Gig!! That must be a mahoosive relief. Does that mean no change then? Am guessing so. Brilliant to go to hospital and have a positive experience for once. I think the scales have tilted your way. smile

(((((gentle hugs for HND)))))))) Crawl back on the sofa with us and tell us all. Hope the DC aren't too brutal with the snowballs. grin

Pigdog and Little Old Lady Dog are joined on naughty step by dopey cat here. Came in yesterday to find mushrooms all over the floor. Some half eaten, others used for footballs. grin

Gigondas Tue 22-Jan-13 16:41:26

Means mets got smaller (dh told
Me this as i sat with my hands over my ears grin). And yes it was positive- even got onc to refer me for genetic screen as almost sure it's not genetic but want to make sure for the little gigs. My real father died young of cancer so is a big what if in my mind.

grin At naughty animal stories. I miss my pets- my cat once ate through my birthday cake then spat it out as didn't like it which made it seem worse.

topsyturner Tue 22-Jan-13 17:14:25

Aaw Gigs that's fantastic news !
<ponders opening another bottle>

KurriKurri Tue 22-Jan-13 17:28:47

Brilliant news Gig - wine for you tonight my lovely.

grin at cat playing mushroom football - what with miniGig and her baby rugby we've had all the extreme sports on here this week grin

OL dog always begs for pieces of satsuma, on and on whining until you give in, then she instantly spits it on the floor and you get the 'what the hell have you given me this for?' look !

Are you working tomorrow ned? is your school open?

amberlight Tue 22-Jan-13 17:32:34

Gig, wheee!!!!!!!!!!!! grin

smee Tue 22-Jan-13 17:42:18

Gig, shrunk?! shock Wow that's even more amazing. Topsy's uniqueness must be rubbing off. You haven't secretly been snorted over by Pigdog have you? We all know about his healing paws. grin

NedSchneebly Tue 22-Jan-13 17:43:36

kurri god, I hope my school will be shut but I can't see it happening. I have just texted my head teacher to say the weather is foul and to be prepared for me not coming in tomorrow, but I'll decide in the morning. I am feeling really anxious about having to make a decision in the morning if school is open sad I just feel that school will not compensate me or pay my increased insurance premiums if I crash my car, but if it's fine round school, people might think I am a fraud. I live about 35 minutes drive from school btw.

Don't know what to do for the best sad

Gigondas Tue 22-Jan-13 17:47:16

Don't feel anxious - I wouldn't risk it and don't think it's reasonable to expect it.

Anyone seen this q and a.

gringringringringrin hooray for great and really fab news gig !!!!!
And yay for hnd coming home - wine all round !
sad about racist little gits angry

KurriKurri Tue 22-Jan-13 18:10:06

Oh Ned - I hope it's closed, - but don't take any risks - tell them you haven't been though cancer treatment only to have a car accident <this is officially known as 'playing the cancer card' and is to be used freely grin)>

grin at pig-dog's mystical healing paws.

agree with kk there ned

smee Tue 22-Jan-13 19:14:57

Yes, KK's wise, Ned. You've done so, so well to go back. They should be amazed by you, and am sure they are.

Kurri, best thing my mate told me about racist abuse was she turned round and smiled and said 'it's okay to be jealous'. Shut them up if only momentarily. Little gits don't deserve wry humour though. I think she should call the police too. angry

am desperately hoping the secondary support group is still on tomorrow...

PenisColada Tue 22-Jan-13 19:32:22

Fantastic news gigs xx

Gigondas Tue 22-Jan-13 19:40:40

Is snow bad round your way still mas?

Can someone drink my. wine For me

Pen how you doing?

KurriKurri Tue 22-Jan-13 19:52:14

Just tip your glass into my pelican-beak-like mouth Gig grin

topsyturner Tue 22-Jan-13 20:32:03

Pig/dog is very pleased at all this praise .
And he says he will run one to one healing paw sessions for very reasonable dog biscuits rates ...

He also does the satsuma thing grin

Gigondas Tue 22-Jan-13 20:37:27

Perhaps we could go on pilgrimage to see him?

Watching gbbo- the biscuits were minging.

smee Tue 22-Jan-13 20:41:45

You still got your dodgy stomach, Gig? <holds out glass in case Kurri drops some> grin

Pigdog deserves more than dog biscuits, surely. shock

MAS, is it still snowing there? You must be sick of it. hmm

Gigondas Tue 22-Jan-13 20:42:27

Yes- think its a bug. I will spare you tmi. Not to want food or wine is most unlike me.

topsyturner Tue 22-Jan-13 20:52:57

Pig/dog days he is setting up his own religion and we must all call him Sauron from now on .

I told him to be quiet as I'm watching Holby ...

jchocchip Tue 22-Jan-13 21:36:05

Yay for gig wine and well done to hnd being sprung.

Heck that was a long day.
copt I do indeed live in the bright lights with the library and Swimming pool my second home I live about 4 mins walk across the park from the pool so you could prob find my house on google (outs self) I work all over the villages and the rather posh town with the lido and the moors are indeed beautiful at the mo. Hope I don't regret changing jobs and going desk bound from mid Feb...
Watching death in paradise...

Copthallresident Tue 22-Jan-13 21:36:38

grin grin grin grin grin grin grin grin

gigs gets good news too! Shrinkage! Sorry you can't celebrate, my tummy is still revolting as well, very noisy about it too..... and the biscuits were minging, in fact everything the celebs attempt is, and they are not even funny. Being grumpy though as have secret crush on Sue Perkins <Am I gay?>

Gracie it's definitely going the right way ....

Topsy Just tell Pig dog / Sauron that if he won't shut up and stop disturbing your TV viewing with his plans for world domination then we'll send in the eagles.

Definitely terrible forces at work in Middle Earth though with all these misbehaving animals grin Goon dog's slide into middle aged delinquency started before Christmas when he stole the carving dish off the kitchen table. My fault really because I usually give him the dish to lick after we have finished with it, but I left it on the table, and strangely he did not follow me to the living room. Two hours later there was a huge crash, clearly he had been staring at the dish for two hours before finally the temptation was too much. It's all gone downhill from there, chops nicked off plates if you pop out of the room, boxes of Rowntrees (including box and wrappers), sitting and watching you fixedly as you eat just in case you let down your guard....

KK Does your friend know what school they go to, might be an idea to tell school as well as police. Police will warn them, could prosecute them but school can hopefully educate them. Otherwise we should send in Sauron and the eagles.....

Copthallresident Tue 22-Jan-13 21:55:51

jchocchip rather posh town with the lido and the moors and Betty's! grin grin Betty's cakes and hot chocolate for the trolley please next visit! My village was t'other direction, on't way to Lancashire but now I rarely get to visit as my parents are properly posh now and live north of the even posher town than the rather posh one, the one with TWO Betty's.

sandripples Tue 22-Jan-13 22:09:02

Gig- am very happy bout your news!

i have a smelly cat here biting my arm so have to go,

topsyturner Tue 22-Jan-13 22:10:15

<gets confused with all the posh towns>
<very easily confused these days>
<dons new robes as am now Saurons Minion>

Copthallresident Tue 22-Jan-13 22:15:38

<hides all maps of really posh and rather posh towns oop north from Sauron's minions to protect parents and jchocchip>

<sends in eagles>

jchocchip Tue 22-Jan-13 22:22:09

My cat just seems to sleep all the time at the mo when not eating TWO Bettys is greedy, tho now you mention it I haven't had a fat rascal for a while! Is the 2 Bettys Town the one with the Turkish baths? I was thinking of that the other day.

We did live in a village up the hill for a while before we moved here - think 2 pubs 1 school, Give me another clue to your old village copt

wish we had a Betty's
All hail to his eminence Sauron - perhaps you could send out snippets of his fur ?
Snow still on the ground - but no apparent fall overnight. Think ds is hoping for a day off as he was very excited by huge snowflakes blizzarding about yesterday evening - I told him not to be so joyful as I might not get to my support group, so he kindly said he'd support me if I couldn't go.

Gigondas Wed 23-Jan-13 07:39:51

As that is nice mas- hope you can make it.

Tummy a bit easier but think I may stay here rather than go to my therapy appt as dont want to stray too far from home . Dh reckons I got it from line in hospital again as felt ill day after.

Mini gig is kindly offering up to suarion bits of toast and porridge she doesn't fancy.

jchocchip Wed 23-Jan-13 07:46:08

Morning all. All our local schools say they are open. And I'm on the bus so the roads aren't that bad. Hope your group is on mas but smile at T.
No milk in the shop so hope the little I have left at work is ok!

poor gig - stay in the warm and hope tummy feels better soon.

topsyturner Wed 23-Jan-13 08:18:45

Sauron graciously accepts all offerings from the mini gigs , and would like you all to know he is open to bribery ...

Mas I hope your group is on today .

Gigs <passes cork for poorly botty>

Sigh
Blardy heating has refused to come on today .
We have a foot and a half of fecking snow out there , and the bastard heating chooses today to stop working .
Aaaaaaaaaaaaargh !!!

Gigondas Wed 23-Jan-13 09:19:42

It seems to happen on days like that.. We had new boiler about a year ago as old one packed up at first sign of sub zero temperature. Is sky still off?

Gigondas Wed 23-Jan-13 09:35:25

kurri I have taken your example and had a rant about ridiculous posts where people don't follow advice.

smee Wed 23-Jan-13 09:48:54

Sauron will always be pig dog to me. Brrr on heating. Ours did that yesterday, but for some reason it re-booted. Have you got a plumber on way??

MAS, how sweet of DS to say that. What's happening? Is school on? Is Group on?

There's a stomach bug going round, Gig. DS had a day off last week with it. Not nice and lingers, so take care. Hope you're feeling a bit more spring-like today though after scan news. smile

Jane, hope the bus got you to work. Bit treacherous on the streets here. Ice everywhere, though snow mostly gone.

What's happening with you, Ned? I have a feeling she's gone to work as no postings.. Hope you made it okay xx

brew on here for anyone who wants one. Pen are you ready for tomorrow? Can't believe you'll be bumped again, as they do seem to do their utmost not to. What time do you have to be in?

topsyturner Wed 23-Jan-13 09:55:58

Sky working , thank goodness .
I can cope with no heating , but not no tv gringringrin

DH has a plumber he knows (through work) and he (DH) dropped the gem as he swanned out to his nice warm work this morning that plumber man was boasting yesterday that he's fully booked for the next 3 weeks !!!!!

And the snow has started again here !!!

On other news , I am next door in HNDs house keeping warm her company .
Fairly good nights sleep was had .
District nurse here now .

Have I told you all ?
I HATE SNOW !!!!!!

Gigondas Wed 23-Jan-13 10:45:28

Give hnd a hug from me(gently tho so as not to upset her wounds).
I can offer sauron some old rice cake and the remains of a packet of Pom bear.
Yes it is a relief smee- just feels like a small victory esp when this time lady year was such bad news. Sounds like my bug similar- I don't feel I'll, just grumbly upset tummy so very odd. Also so far seems to have escaped rest of family (although hard to tell with mini gig as she is fond of filling her nappy).

Going to try to ou work today- copthall the massive shoulder busting ref book I have is your fault.

is pen's op tomorrow ? loads of good thoughts to you,if it is x
Looks as though meeting is on,dh gone off to work and ds to school - no new snow.
topsy grr about heating - hope you can get it sorted pronto, or that it decides to behave.
Gentle welcome home hugs for hnd

spoke too soon, meeting cancelled due to snow sad - so am going to do some work and I can take T to his piano lesson.

Gigondas Wed 23-Jan-13 11:57:52

Oh mas that is a shame.

Super news gigs so pleased for you re. your results.

aw mas that is a shame about your meeting.

pen good luck for tomorrow we shall be thinking of you.

No heating is dire topsy. I hope you get it sorted soon. Do we need to send you some emergency blankets? The snow has pretty much turned into thick ice here so not looking forward to the school/dancing run.

My mutt keeps pawing at my arm as he wants a walk. He has no chance.

MRI was ok. I may have taken a Diazapam before hand blush. 50 minutes is a long time to be strapped down. I just hope the results come through quickly as I feel very stressed about them.

Hope everyone is keeping warm and safe and hope you got to work safely ned. Waves to smee, kurri and anyone else lurking. Did we ever hear any word from pink? I often wonder how she was getting on.

topsyturner Wed 23-Jan-13 12:55:54

Plumber here .
Thinks we might need a new pump .
Anyone know how much that might cost me ?
<wonders if he will give me discount for the molestation pig/dog/sauron subjected him to>

smee Wed 23-Jan-13 13:19:44

sad mas. Have they rescheduled it for soon? Hope so.

Haven't a clue on how much, Topsy but surely the healing paws of Sauron will win you a discount? grin

Hope HND's okay. Come natter with us soon xx. smile

Diazepam sounds like the way to go, Gracie. Have they not said when you'll get the results. That seems a bit cruel. Waiting must be crippling. hmm

I think of Pink often too. I did pm her (a long while back now), but she never replied, so I guess we have to respect that. Pink if you are out there, come say hi if you're up to it. xx

Gigondas Wed 23-Jan-13 13:28:51

Depend on boiler but think pumps are usually about £100 plus vat but need to add on fitting/call out.

MRI is the worst sort of scan but when you add in stress of what looking for and a wait its horrid. Gracie can you phone your nurse/dr and ask.

Smee that was kind- guess the offer is still there if she wants it. Personally I luff this thread but I know not everyone copes that way.

50 mins gracie ? yikes-and well done...
I guess the next meeting will be as scheduled on 20th Feb.

topsyturner Wed 23-Jan-13 13:49:10

I would want a GA for 50 mins in an MRI machine Gracie !!!

Plumber done
New pump fitted
Boiler serviced
Still don't know how much as in the quaint way they do it in this country , when I asked he just said "oh I'll see you right"
He will give DH the bill when he sees him in work ...

Gigondas Wed 23-Jan-13 13:50:33

2 1/2 hours was my longest MRI. My tip is if you are going to get cancer, don't get one where MRI are part of the test.

Great news about boiler

hooray about boiler !!
Can I ask you lovely ones to take a look at this ? www.justgiving.com/kinddog

"Oh I'll see you right" sounds ominous. What on earth have you offered him? grin but glad your boiler is fixed.

Waves to hnd hope you are recovering well and Topsy isn't bothering you is looking after you.

smee that was lovely of you. Hopefully one day she will come back to tell us how well she is doing.

They have a large sign in the MRI department stating 'please do not phone for your results' so I best wait until my onc calls. He has a habit of phoning on a Sunday. He phoned me the Sunday night before Christmas at 9.30 pm to wish me a happy Christmas smile.

Will check out your page this evening mas off to the school run/dance run now.

KurriKurri Wed 23-Jan-13 15:10:21

Afternoon all, sorry for poorly tummy Gig - hope you feel better soon.

MAS - shame your meeting was cancelled - will they reschedule it soon?

gracie -hope you don't have to wait long for results, but well done for getting through the MRI - they don't sound much fun at all.

Pen loads of love and luck for tomorrow xx

Adding my voice to good wishes and love to Pink - if you ever read this Pink, I think of you often xx

topsy - hooray for new boiler , hmm to 'I'll see you right' - that could mean anything.

Our friend (who was abused by little shits) is reluctant to tell police, - although DH has been urging her too, she might tell the school though if she can find out which one it is. She and her Dh have sent us a bottle of their home brew - which looks dangerously strong grin - I may put some on the trolley (or I may just drink it all and fall over)

I braved yoga this morning. The room was freezing cold - air con on full for some reason hmm.
Also met a woman there who lives in the next village to me, so I suggest she drops in for coffee. As we were leaving I give her my number and say 'hope you don't mind untidyness and dogs', she said 'I'm fine with untidyness, but not very keen on dogs' confusedconfused - so if she turns up, I'll have to either shove OL dog in another room where she will howl, or let her in and she will try to kiss the woman and sit on her lap and no doubt terrify her. Hmm - what to do? - Dress OL dog in a baby grow and say she is my grand daughter????

KurriKurri Wed 23-Jan-13 15:12:10

Oh - welcome home HND, home you are not feeling too delicate, and are not being disturbed by drunken choruses of 'Nelly Dean' from the house next door grin

Gigondas Wed 23-Jan-13 15:34:13

I think she may have 'nelly deAn' in person as wasn't she visited by topsy until hearing fixed. She will have been happy to have a healing lick from sauron.

Gigondas Wed 23-Jan-13 15:36:04

I may have to name change. Any thoughts or suggestions?

Copthallresident Wed 23-Jan-13 15:42:42

Gigs 2.5 hours? sad I would need serious drugs for 50 mins let alone 2.5 hours. My Hong Kong scans were the worst as they talked in Cantonese throughout and Cantonese is peppered with exclamations Aiyah! and intimations of doom, sentences that go really deep at the end finished by lah.. So it always sounded as if they were saying Oh No! This is bad..... when in fact they were probably talking about the weather.

Lots of turbulent tummy here today, DD2 also off with it now. Just had two slices of dry bread because I couldn't face putting anything on it, and yet it is as if I have been on a diet of beans, fried onions and artichokes for the last three days. Hope you feel better soon because then there is hope for us too

Gracie Everything recrossed for you.

Topsy Where are my eagles? You do realise that Sauron is the epitome of evil (though played by Benedict Cumbernatch in the nuddy in the Hobbit so he can't be all bad) and his minions end up looking like this lotr.wikia.com/wiki/Orcs?file=Orcs_-_Two_Towers.png. Goon dog looked just like this to me after he dug up my flower beds......Those of us who are the epitome of goodness and get to call in the eagles look like this [[http://images6.fanpop.com/image/photos/33000000/The-Hobbit-Movie-Poster-Galadriel-the-hobbit-33043600-649-960.jpg] Just saying. <tucks long flaxen locks behind pointy ears>

"I'll see you right" north of the Watford Gap is a good thing. If a southern plumber says "I'll see you right" be afraid , be very afraid ................

jchocchip I'll see your two pubs and I school and add in three large churches (CofE, Methodist and Baptist, for 3000 people! No wonder I can't shake this boring northern protestant ethic ), two mills and.....dah dah a viaduct. www.bradfordfacts.com/wp-content/uploads/2011/09/hewenden-viaduct-77887.jpg and a quarry ... That should narrow it down!

Mas Sorry about your support group, I hope it will be rearranged for soon. A good choice of charity, will give even if you sneak a few choccie bars

KurriKurri Wed 23-Jan-13 15:42:49

Oh yes HND - let Sauron at those stitches with his spiritual saliva grin

Why namechange GIg?

Copthallresident Wed 23-Jan-13 15:47:34

Tsk! Sauron messed up the link to my luminescent beauty images6.fanpop.com/image/photos/33000000/The-Hobbit-Movie-Poster-Galadriel-the-hobbit-33043600-649-960.jpg

And yeah to hnd for escaping and hope new boob all settled in.

Gigondas Wed 23-Jan-13 15:53:50

Dss is applying for internship here. Not that I am particularly bothered about being traced but did wonder if should name change.

Copthall symptoms sound very similar- cant face banana in front of me for that reason. Hope it goes soon as its very dull .

will think of new name for gig
copt I promise I won't sneak any choc during Lent. Have just thought though- does sugar-free chewing gum count as sweeties ? I am fond of it as I think it keeps my teeth in order.

I think plumber means he won't take advantage of you topsy

Copthallresident Wed 23-Jan-13 16:07:20
topsyturner Wed 23-Jan-13 18:22:37

Is it just me ?
Or dies Galadriel look like she's giving the finger in that pic ?
grin

Gigondas Wed 23-Jan-13 18:31:11

I thought that was point of photo- but know nothing of lord of rings (but am clearly an expert in flicking the bird).

jchocchip Wed 23-Jan-13 18:38:07

I'm on the bus home - catch up properly later
copt you mean 2 schools now! - I was one village closer to where I am now. My dd2 did ballet in the village hall in the viaduct village and we went there to the shops (spar, chinesy) and to cycle along the viaduct now a sustrans route. Nice view from the top! My uncle by marriage came from that area too.

jchocchip Wed 23-Jan-13 18:42:37

Phew just managed to recover from settng phone to chinese!

topsyturner Wed 23-Jan-13 20:53:41

Hand holding to Pen for tomorrow
Hope it all goes smoothly for you this time x

Gigondas Wed 23-Jan-13 20:54:59

Good thoughts for you tomorrow pen x

NedSchneebly Wed 23-Jan-13 21:06:45

Bleurgh. . . Managed to get in to work OK, though it did take an hour and a quarter. Road closed due to flooding. Class were a bit manic today and new
planning format that we are now supposed to be using is slightly unwieldy to teach from and very complicated to manage, with different groups of kids rotating through different activities, so lots of movement. It takes such a lot of setting up and preparation, much more than old format. Feel like I've gone back a step or two today sad

Just wanted to pop in and wish pen all the best for tomorrow in case I don't make it on in the morning. Will have everything crossed for you lovely, and hope to goodness they don't bump you again. Be gentle to yourself and hurry back to us x x x

Heading for a bath and my bed. Lots of love t all x x

topsyturner Wed 23-Jan-13 21:09:38

Have a good nights sleep Ned
Sounds like it was a loooong day !

Watching Africa
Wonder what will die this week and make me cry ?
Gotta stop doing this to myself grin

Coffee anyone ?
(I know , weird to see me without a wine glass in my hand eh ?)

smee Wed 23-Jan-13 21:21:56

Ned, I'd bet you haven't gone backwards at all. If you hadn't had cancer, but had a new age group/ class you'd be having these problems am sure. Bound to be tricky for you. Sleep well xx

Nipping in to say huge hugs for Pen. Will be thinking of you tomorrow. Hope they put you first on the list so you don't have to wait. x

Topsy without wine? confused

Two and a half hours gigs <wishes there was a faint smiley>. I would have needed gas and air.

Good luck pen for tomorrow.

mas I wouldn't class sugar free gum as a sweet, sure it's calorie free. We will scoff look after your sweets for you grin.

Hugs to you ned hope tomorrow is a better day.

PenisColada Wed 23-Jan-13 21:33:57

Thanks tomorrow is the big day. At least I am going in at 7am so not as much time to fret. Just popped some codeine to make me sleep.

Ths thread has been a lifeline thanks so much for putting up with me.

I hope my next post will be after op is over not to tell you it is cancelled again. Do you think I need to cry to get temazepam again or will they just give it to me ?

jchocchip Wed 23-Jan-13 22:03:12

Thinking of you Pen hope it all goes smoothly tomorrow.

just tell them how it helped last time pen - sleep well and will be thinking of you tomorrow.
ned you are doing brilliantly,don't feel you've gone back a step xxx

KurriKurri Wed 23-Jan-13 23:21:40

Loads of good thoughts for tomorrow Pen, hope everything goes really well for you, and you are home and recovering asap (and yes tell them you had temaz. last time and you need it again) xx

Gigondas Thu 24-Jan-13 07:54:00

Tentative offering of brew here as tummy seems to be getting better.

Hope you are temazepam'ed up and on way to theatre pen- thinking of you x

jchocchip Thu 24-Jan-13 09:31:16

Hope tummy is behaving with the brew gig

Copthallresident Thu 24-Jan-13 09:32:21

gigs brew (Flowering Jasmine tea) All seems calm here at the moment too, and DD has gone off to school. Last night DH decided I should try wine as a kill or cure, and I did feel much better grin

BTW don't blame me for the doorstop reference book, it is the weight of all that study over the centuries! You should have chosen a subject like mine, usually just a footnote in western history!!

Thinking of Pen, hope she got her drugs.

smee Thu 24-Jan-13 20:04:54

Very quiet on here today. Been on one of my epic train journeys for work, so to Cardiff and back. Was lovely to see all the snow from the window.

Just nipped on to see if there's any word from Pen. Am thinking no news is good news, as it must mean she's had her op. Fingers crossed she has and is propped up and comfy now. x

HerNextDoorAt21 Thu 24-Jan-13 20:08:28

Good evening everyone and profuse apologies for my absence, the Internet signal and small type on phone was not conducive to joining in very much. I feel now I a home I am going to have more time to join in.

I got sprung on Tuesday which was day 15 in hospital. I am still leaking very badly from the large swelling under my arm frommthe front and back scars but it has to get out somehow and aspiration wasn't possible as it was described as a sponge effectbwherebthe fluid is all in the tissue and not a pool so to speak.

I have to see my lovely surgeon tomorrow and will be oweekly check ups from now on. The 11 days of leech therapy has paid excellent dividends.

I have had a ad at recent posts and is great to see gigs and of course topsy having such excellent news !!!!

Did pen go in for her surgery ? Has anyone got any news ?

Hi to everyone else and hope to get a little bit mor involved now I have more time and my iPad !!!

HelenMumsnet (MNHQ) Thu 24-Jan-13 21:23:26

Evening everyone. Apols for highjacking your thread but we just wanted to draw your attention (if it hasn't been drawn already) to our Macmillan support Q&A thread.

We're looking for MNers who'd be willing to share their experiences and advice (i.e. act as the MN "experts") on this Q&A in tandem with a Macmillan spokesperson.

If that sounds like something you might consider, please do have a look and read more about it.

smee Thu 24-Jan-13 21:39:15

Helen not hijacking at all. Will go have a look.

Waving to HND. Lovely to see you back. <mwaah> smile smile Fluid sounds annoying. How's the new breast? Have you seen it yet? Are you in pain or okay-ish? Hope the later. x

No news from Pen is I think good news, as must mean she's had her surgery.

HerNextDoorAt21 Thu 24-Jan-13 22:00:20

smee my new breast is a lovely size but the swelling to the side makes it look,like a bit of a car crash at the moment ! I have managed with no painkillers today, there is little pain (underarm is a wee bit sore after lymph node removal) it's just a little uncomfortable whee the swelling is.

Went to topsys for my first glass of post op wine tonight ...... Mmmmmmm

smee Thu 24-Jan-13 22:53:38

Yay for new breast!! Take pain killers tonight maybe? Might help you sleep. Good that you don't need them during the day though. Wine is of course medicinal. Did you let Sauron lay his healing paws on you? grin

KurriKurri Thu 24-Jan-13 23:07:53

Hi HND - yay for new booby - am sure it will look great once the swelling has gone down, - well done for managing without painkillers, but have a few handy for night times - things always seem more sore at night for some reason.

Hope Pen has had her op and is tucked up asleep in hospital (and has no snorers on her ward!)

Hi Smee, was Cardiff journey OK - no delays due to the wrong kind of snow on the line? Hope you had a big fat book to read.

Helen - thanks for dropping in smile will have a look at that link.

HerNextDoorAt21 Thu 24-Jan-13 23:24:27

I didn't let pig/dog Sauron anywhere near me today, I'm sure he would be sniffing all over my new booby ....... I'm not too confident around dogs and although he is a big soppy pup, he knows it !

Hey welcome back hnd ! Hope the wine @ tipsy's has been medicinal grin
I'm sure that pen must be tucked up safely in bed.

KurriKurri Thu 24-Jan-13 23:37:41

Waving to MAS smile

HND - but Sauron has magical healing paws, and dribble grin

jchocchip Fri 25-Jan-13 09:02:40

Yay for hnd and medicinal wine at topsy's
'Sposed to be going out tonight but forecast heavy snow and blizzard not too good sad will see what happens later!

Gigondas Fri 25-Jan-13 09:08:47

That's irritating about your night out jchoc.

Yay for healing wine and fact snow hasn't impacted on topsy/hnd supply.

Snowy journey sounds quite nice smee.

Am feeling very bleurgh after few days of not much food so wonder if sauron could be trained to fetch snacks. Probably not...

Need to wake up a bit as got friends coming for lunch and need to cook

HerNextDoorAt21 Fri 25-Jan-13 09:45:46

Thanks ladies ...... Sauron fetch snacks ? He'd have them all eaten in a second ! Just had coffee with tipsy, she's crocheting hats (again). It's so nice to be home.

Just getting ready to go and see surgeon, I have about 6 foam islands stuck on my back and front trying to prevent leaks .....it's so horrible and I feel mucky. Can't wait for a clean uP and redressing.

For anyone thinking of the LD flap,surgery, please don't be put off by my experience ..... I have had very bad luck so I am told and the surgeon took a risk making me such a big boob from my own tissue, another girl in my ward who had the same done recovered so much quicker than me .... She had her mastectomy done two years ago..gringrin

smee Fri 25-Jan-13 09:57:59

Snowy journey was lovely. Not least because for once the train was warm and nicely quiet. Somehow I usually manage to sit near someone who's running their office from the train. I had Flat White from Costa, pain au raisin and a book have been meaning to read for an age. Was almost like going on holiday. Shame about the work meet at the other end though. grin

Hope you slept well and are okay HND. How's wound today??

Jane, will send no-snow vibes your way for tonight. I thought snow was stopping, not starting all over again.

Gig, I have a feeling Sauron would snaffle snacks or you'd get them half chewed. Must be annoying to feel so icky. Cooking seems a bit above and beyond.

Is your appt today, MAS? I think you said you'd rearranged for this week, so must be. Hope it's all positive. x

Ned, hope you've survived the week. You deserve a large glass of wine later.

Better get on. brew on for all. smile

smee Fri 25-Jan-13 10:24:38

x-posted HND. Hope it goes well today and the wounds stop oozing soon. I remember that feeling of sogginess. Not nice. hmm

topsyturner Fri 25-Jan-13 12:55:02

Just back from chaperoning a school trip of DDs .
It was a trip to a local Presbytarian church for a bible camp (or Pedestrian Church as DD called it ...)
I had to sit on my hands to stop myself having a full on row discussion on creationism ...

smee Fri 25-Jan-13 13:10:47

Blimey, I'd have found that tough too, Topsy. I'm not allowed to go on DS's trips as I am now officially embarrassing. grin

Gigondas Fri 25-Jan-13 13:46:12

I don't get invited as am unsuitable parent grin. I had a mate at school was strict baptist and didn't believe in it. She used to get excused from lessons . She was intelligent and very argumentative in all sorts of ways so I never saw why she would just blindly follow what bible said.

Mini gig proving herself a worthy priestess of sauron as is stealing my lunch.

Hope you are all cleaned up hnd.

PenisColada Fri 25-Jan-13 13:49:49

Yes surgery done. Cancer confirmed and I am minus a thyroid now.

Radioactive iodine treatment booked for 8 weeks. Very sore tired but feeling better than yesterday.

Gigondas Fri 25-Jan-13 13:52:12

thanks -glad you are done. Standing by with wine and handholding for your radioactive iodine.

You home now?

smee Fri 25-Jan-13 14:51:00

Well that's good you're through the op, Pen, though sorry it was confirmed. You must be feeling quite shaky. Talk as much as you want on here. Rest up xx

KurriKurri Fri 25-Jan-13 15:13:34

Pen - glad op is done, are you home? good luck for RI treatment, - I had that just over a year ago, so if you have any questions feel free to ask, and I will do my best to remember! - it wasn't as bad as I expected, just a bit of a nuisance being isolated.
Hope you start to feel better very soon xx

HND - hope you get rid of the soggy spongy stuff, or at least get clean spongy stuff supplied - its horrid when you feel yukky and can't do anything about it. Did you have the tummy flap thing or the one from your back ? (I'm hopefully having the tummy one this year, so very interested in your experience - don't worry about sparing the details, - I know there's always a chance of complications, but hopefully worth it in the end) Anyway feet up and wine for you I'd say - get that topsy to entertain you with her exotic dancing and bawdy songs. grin

I went to keep fit class today - and a photographer from the local paper came along and took photos, - so my giant arse will feature in the paper soon - hooray!

Waving to all xx

topsyturner Fri 25-Jan-13 15:27:16

Hooray for kks giant arse !
<wonders will it get an agent , entourage etc>
grin

Welcome home Pen
Gentle hugs and plenty of fbs

Gigs - Sauron is proud of his acolyte , but wants to know where his cut is ???

PenisColada Fri 25-Jan-13 15:30:54

No still in hospital until calcium levels normal. Guess I will be here till tomorrow now. They came and did an ECG at midnight frightened me to death.
Have a clear dressing on my neck which is very gruesome.

Thanks kurri will be asking you about the radioactive treatment soon. Will be great to get the lowdown from someone who has been through it.

Just face timed the dc's as set up wifi hotspot through my phone . Lifesaver and I will be able to use it when I am in isolation.

HerNextDoorAt21 Fri 25-Jan-13 15:58:29

Nice to hear from you Pen and glad that the surgery is all over for you now. You can start recovery.

I saw the surgeon and she is impressed with the improvement in the capillary return of the flap and got the reg in to have a good look too. She got a lovely nurse who loves dressings to come and give me a good wash and redress. They decided to put wound bags over the leaks to catch the drips and I feel SO MUCH cleaner though I rustle when I move lol.

Kk I had the LD flap (from back) surgery .... Apparently I was the wrong shape for tram flap and they we more confident of the back flap as they do not have to reconnect the blood supplies, they just send your back under a channel under your arm to the front ! Surgeon admitted today that she sat for a week with her fingers crossed whilst the leeches sorted out the blood supply as they though the flap was dying..

i had a tough time because of my overweighted ness and there was HIGH RISK slapped all over my file sad The leech therapy was because of the flap failing and the transfusion was because of blood loss during what was described as "very difficult surgery"and the leeches taking all my blood. I was unfortunate to get cellulitis around one of the drain sites and to get the infection and fever. I am still glad I had it all done and like I said earlier, don't let my bad luck out you off.

Imam being very well looked after by my DH and tipsy

Well done pen and hope you get out soon- take care smile
hnd am pleased that tipsy is looking after you - hope everything recovers v soon - it all sounds very dramatic.
Have an appalling headache as trying to sort out tax thing for doing work for Japanese newspaper- seem to have been on the phone for ages- I hate money stuff, my mind just shuts off.
Back from onc. via the Costa and the Gap (where I may have made some purchases) and Paperchase to buy lovely cards - always a great pleasure that shop.
Onc is booking a scan shock which I was expecting but still...
He says if the pulmonary nodules have shrunk or disappeared Topsy stylee then they will prob. keep me on my current meds as they can't rule out tiny metastases which are smaller than 1 cm and can't be seen on CT..so I could be doing this cycle continuously (some people have it for years until it doesn't work any more) I always feel am hopeless as describing how I feel and was trying to articulate about a discomfort in my chest which I think might be psychological possibly. I am sure he thinks I'm a little deranged and I get flustered and drop my scarf/gloves/coat. He did listen to my chest but breathing ok.
Drinkies time soon, after I've written to the Inland Revenue.

smee Fri 25-Jan-13 18:56:57

MAS, not surprised you have a headache! Scan's bound to be scary, but I'd guess will be good, as they've always said they'll do one and you'll anxt until you have one anyway. How do you feel about the idea of being on long term meds like that? I know this round's been a teeny bit easier due to reduced dose, but you must still be having side effects and feel wiped out.

HND, blimey that's a lot that didn't go to plan. Must have freaked you out a bit to hear Surgeon say that. though clearly just shows you're as tough as old boots grin

Waving to Pen in hospital. Are you in a lot of pain? Hope not. Hope too that you escape tomorrow. xx

Just back from after school pizza treat with a mum mate and our boys. Involved beer for us and pizza for them, which went down a treat. Will drink a toast to Kurri's forthcoming fame in a bit. grin

ongoing meds seems a bit irksome, but the last cycle was miles easier so I shouldn't really complain..could be worse !

amberlight Fri 25-Jan-13 20:28:29

Hello to all who are eek about scans, phew about being home, recovering from surgery, disowned by their offspring or otherwise.

I'm alright. Those who keep an eye out for info on longer term stuff after treatment, just over a year after rads were finished, and 18 mths after chemo stopped, I've still got sensory loss in my fingers but don't notice any more. Sense of balance is now well dodgy, but I've learned to compensate. Still have post-op pain in boob if I wear something uncomfy etc. Hair now shoulder length and wildly curly. But I'm starting to feel human again after a couple of eeek months of post-cancer stress thingy. and of course am still quite mad grin but I was to start with.

I shall leave out wine for all.

mad is good amber

HerNextDoorAt21 Fri 25-Jan-13 21:00:59

Mas I just requested to join the Facebook group please .... Lisa Hutchings

will whizz over and admit you grin

Welcome home hnd <wonders if I am repeating myself as I can't keep up>

grin at kurri and her photogenic posterior.

Waves at amber.

Lots of positive thoughts and good luck for your forthcoming scan mas. Hopefully this week of treatment will go as well as the last.

Still no results here. I am becoming more and more stressed as I feel if the results were ok the onc would have let me know and I fear he maybe didn't want to ruin my weekend. I have decided to phone next week if still no word.

PenisColada Fri 25-Jan-13 22:17:24

Ooh FB group can I join ?

thanks gracie - sorry you are waiting and fretting, hope you can get some comforting news.
pen of course you may- look for Tamoxifen Ten on fb and we'll invite you in grin

topsyturner Fri 25-Jan-13 23:30:54

Gracie I'm sure it's not bad news .
But me being sure isn't going to stop you worrying .
I think a phone call to your Onc is what's needed !

Mas they were going to keep me on chemo and herceptin indefinitely too .
Was told that as long as the drug combo was working , they would keep me on it .
Try to think of it as diabetic needing insulin .
Cos I know the thought of such harsh medicine long term is a little soul destroying .
Gracie told me that her chemo nurses had a patient that had been on herceptin for the past 8 years as it was still working for her !

DD is having her first friend for a sleep over in our house .
She's slept over at this friends house a number of times . But I've always resisted having them here .
I bit the bullet .
Took them to <whispers> MacDonalds , youth club . Then set up the air bed in her room , threw a bucket load of Haribo in there , and promptly buggered off to HNDs grin

I'm a good mum , I am ...

PenisColada Sat 26-Jan-13 02:50:32

Hope the sleepover is going well topsy

I have just been woken for my 2 am blood pressure check and can't get comfortable. I don't want to be knocked out as deep breathing and coughing are not good and don't want to wake up more stiff. Just hope when I get home I can find somewhere comfy to doze.

It is sinking in a bit that I have cancer. Cancer. Me . I have it. It had not really felt like it before. How am I supposed to feel ? I have no idea.

Sent request to FB group btw.

Gigondas Sat 26-Jan-13 07:49:12

It takes a while- I still struggle with it at times pen. If it helps you to rest do take a tablet as I find hospital a nightmare to sleep in. Would if help to get one of these pillow as can mould it to fit round your dressing? Amazon sell them too. Will ask my mum what she did to get comfy post op.

You are mother of the year topsy- sent you a friend request too hnd.

Gracie - I echo what others said to ring onc. I wouldn't read too much into not calling pre weekend as don't think they think about sparing bad news (in fact I think they are not allowed to).

Right ought to think about getting up as have fairy godmother (as she is known) coming for lunch with her two lovely boys. Leaving lemon tart and brew for those that need it.

Gigondas Sat 26-Jan-13 07:50:01

Also looks lack of sleep isn't going to help your mood pen- truism I know but it really makes a difference .

HerNextDoorAt21 Sat 26-Jan-13 09:39:53

I have accepted friend requests ladies smile

Gig, our fairy godmother left homemade tomato and basil soup and home made wheaten bread in a box on our doorstep early yesterday morning smile

Pen, I think taking one day at a time and going with your feelings of laughing or crying may be a temporary way forward.

As for sleeping, I am currently sleeping on my reclining sofa as I can only sleep on my back and find the bed too flat .... You will find a way.

Tipsy and I were quite restrained last night and managed to have a fairly early finish to our Friday Pub Night.

I have a friend visiting today who I visited in Spain when she was having chemo for breast cancer .... Really looking forward to it smile

topsyturner Sat 26-Jan-13 10:24:55

I may have finished pub night at HNDs early , but I may have had another glass when I got home !

Feeling pretty good about myself today .
Managed to semi straighten my Afro , I look verging on human !
I'm wearing a dress and I may even put mascara on !!!

Horse riding for DD soon .
Then some shopping for bits and pieces .

Anyone else doing anything exciting today ???

Pen I don't think I ever truly accepted the cancer diagnosis .
Mainly I think as I never really felt unwell with any of it .
I never had any of the side effects from chemo that some of the ladies here have had (well I was violently sick with the first one , but they gave me a syringe driver after that and I was fine)

Just be kind to yourself and allow your mind and body to adjust to your new normal , however long it takes .

smee Sat 26-Jan-13 11:03:54

Pen, I've never got my head round it either, but time does help. Hope you're not feeling too ropey today. Any news on when you can come home?

HND sounds like Dr Tipsy's leading you astray providing dedicated care. Have a great time with your friend. I will nip over to FB and wave at you. smile

Topsy, sleep-overs avoided here too so far. Hope DD not too grumpy through exhaustion. Well done on new human look, though mascara?! A step too far, surely? shock

Gracie, Onc calling isn't a bad thing. It could easily be that they haven't looked at your MRI results at all yet. Must be tough waiting though. Could you call on Monday if you haven't heard?

MAS, what Topsy says about wise. Must be quite something to get your head round though. Hope you're doing something nice this weekend. smile

Not much going on here. Sun's shining though, so that's mighty cheering. smile

PenisColada Sat 26-Jan-13 11:09:13

Sent request to join the Facebook group

NedSchneebly Sat 26-Jan-13 11:54:06

Morning all!

Hope everyone is OK this morning? Very cold here. but all of our snow has melted overnight - yay! I hate the bloody stuff, so am hoping that's the end of it for another year. . .

School pretty good this week - getting a bit easier and not so completely shattered. Did painting with my class on Thursday afternoon - aren't you proud of me?! Paper, paint, water and 17 excited 5-6 year olds! It was not complete carnage, so feeling a bit more confident that I can do stuff with them. Have worked out a management plan for the how to cope with the movement between group activities without everything descending in to chaos. Feeling a bit better about it all, I think smile Going on a course next Thursday, about teaching phonics. Not terribly thrilling, but venue does a good lunch apparently!

HND have sent you friend request. Hope you're doing OK today x x

pen give yourself time and be gentle to yourself. I am a year post-diagnosis, and am only now, with help from a counsellor, coming to terms with the new normal. There is no right or wrong answer about how to feel - whatever you feel is natural and fine. Take it one very small step at a time, and scream, shout, cry, go for a walk, whatever you feel like doing is what you should do. The emotional scars need as much care and attention as the physical ones - I am certainly finding the emotional fallout much harder to cope with than the physical effects. With the sleeping, work out a way of getting comfy, maybe with lots of cushions/ pillows to support your back. Maybe think about talking to your GP about having something to help you sleep? Just be kind to yourself and give it all time. I know that sounds really trite, but its true. stick with us too - we all know what its like. Sending you thanks and hugs x x xx

topsy I have no doubt that you are the picture of sartorial elegance. Hair pics on FB look great smile

gracie definitely phone onc next week if you haven't heard. I am sure they'll be used to people chasing their results. It's only natural to want to know what's going on. Got everything crossed that you can get through on Monday, and then you'll know what's what.

smee your train journey certainly sounds very relaxing. I love travelling by train, especially on my own! Hope meeting at the other end was productive and useful. I was at uni in Cardiff - have very fond memories of it as a city.

kurri Am sure your arse is not as ample as mine. Luckily no-one has ever attempted to take a picture of mine grin

MAS Have finally sent your cheque off - sorry blush blush blush blush blush Hope you are OK. When do you have to wait until for the scan? Thinking of you lots and lots x x

Epic post - will sign off now smile

PenisColada Sat 26-Jan-13 13:23:23

Staying in another night as my calcium levels not doing what they should.

pen - can't find your request -can you tell me which person with your real name is on fb so I can find you ? Sorry you're having to stay in another night sad
ned thanks in advance for cheque smile - am guessing the scan will be in a week or so-,def. before my next onc appointment.
A friend from way back is coming to tea today- have got crumpets,coffee swiss roll and other bits..known each other since A levels but haven't seen him for about 9 years or so -possibly longer. Taking him over to the old people as they were very fond of him.I daresay mum will remind him of the time he was staying the night and had to wear her nightdress.....

jchocchip Sat 26-Jan-13 15:20:44

Lol mas I love it when the old stories trot out.
Pain to have to stay in, pen hope u are sprung soon!
Our "Christmas do" was a bit smaller than expected, due to it being a "white Christmas" do! Three of us stayed out for a v nice meal in a Russian Restaurant, while several inches of snow fell! Cars were all over the road when we left. We naively thought that the trains would be running and luckily they did! We could have walked I suppose, about 3 miles to one friends house but glad we could get back to mine easily.

Copthallresident Sat 26-Jan-13 15:28:25

Pen I know what you mean, me? Cancer? It's something that happens to other people, not me. I felt part of the problem was that you had to deal with getting two Cancers. The first, the actual cancer, is the actual illness you have, probably virtually unique, and the treatments you have to endure to get rid of it. In fact everyone has that cancer since we all have cells going rogue all the time but usually your immune system mops them up, but for some reason, genetic? pollution? drugs? whatever? (but also probably unique to us) for some of us they get out of control somewhere in our body. The treatments are pretty shit, you get mutilated, poisoned and /or burnt but there are ways of coping and getting on with real life.

The other Cancer, the big C, is a whole parcel of people's perceptions about what Cancer is, what causes it, what a Cancer patient looks like, how they should behave, the dread, the stigma etc. and that is the Cancer that happens to other people. I found that the hardest thing to deal with because I had shared some of those perceptions, the dread and the stigma, but mostly they are a load of bunkum, totally at odds with the reality of your illness. Its annoying to encounter them in others but once you have come to terms with the reality it can be quite amusing too. I still get people telling me how strong I am, something that happened to me 11 years ago still defining their perceptions of me, in spite of all current appearances to the contrary, especially during 4am lying awake wibbly wobblys about nothing!!

Waves to everyone, must go, DH demanding I come look at some new things he can do with his remote......

pen I'm not sure I will ever get my head around my cancer diagnosis. It was the one thing I have dreaded since I was in my 20s. Hope your calcium levels settle and you get home soon.

Hope the sleepover wasn't too noisy topsy. Hair looks great by the way.

Glad your return to work is going well ned. I'm still off but my line runs out next month so can't put it off for ever.

Thank you all for putting up with my moaning about results. Onc phoned at lunchtime to say he was sorry he hadn't phoned earlier but he had been away and had just called into the office. MRI showed no change so he is happy that the bone thing is benign and nothing showed up on my liver so according to him 'we can put this to bed now'. Echo also showed no change so all set for herceptin next week. I am so very relieved.

jchocchip Sat 26-Jan-13 16:08:50

Brilliant news gracie wine

smee Sat 26-Jan-13 16:28:00

YAY FOR GRACIE!! wine wine That is totally brilliant. You must be on cloud nine. smile

Pen, that's a sod that they're keeping you in. Can they do anything to help with calcium levels? confused

Great to hear you're okay, Ned. Does sound like you're on the up now. <cautious I know>. smile

MAS grin at story about nightie, but coffee swiss roll?! shock That's just wrong. Has to be chocolate.

What are DH's new tricks with the remote, Copt? Can he balance it on his nose? I can do that with ours <shameless boast> grin

Just had v.sad call from close friend. Her SIL has 'probable' breast cancer. 38 with two children under 5. She's had core biopsy and gets results next week. Good timing to hear your news then, Gracie. That really has cheered me up. smile

Thanks smee and jchoc.

That is sad smee. My heart goes out to her and her little kiddies. Heart breaking. It really seems to be all you hear about.

I quite like coffee swiss roll although much prefer chocolate but must be coated with chocolate as well [fat pig smiley]

smee Sat 26-Jan-13 16:43:02

Are you going to celebrate, Gracie? Full fat swiss choc roll at the very least? smile

HerNextDoorAt21 Sat 26-Jan-13 17:42:14

Gracie so pleased to hear your news what a relief !

Mas I loved the nightie story too and I LOVE coffee Swiss roll !

Pen sorry you are having up stay in hospital.

HerNextDoorAt21 Sat 26-Jan-13 17:43:56

Smee so sorry to hear about your friend .... I saw so many young cancer patients in hospital .... It's scary sad

Yes celebrations in the gracie household. Champagne anyone???

fabulous news gracie -yay !!!!!!!!!
sad though for your friend smee - bugger.
Had the nicest time with my friend - nightie not mentioned - lots of cake and coffee swiss roll is yum. He bought me and mum huge bunches of flowers though dh has removed the lilies from my bunch as he's allergic to the pollen - bah !

Glad you had a nice time mas. I love flowers although have ruined so many clothes by forgetting to trim the lillies.

KurriKurri Sat 26-Jan-13 18:45:49

yay for gracie!! gringrin and phew - celebrations tonight I'm guessing smile

Smee - so sorry about your friend, - so many young people seem to get this illness - I hope everything goes well for her and she makes a good recovery.

MAS - glad you had a nice day with your friend, -love the nightie story grin - and I love coffee swiss roll - I haven't had any for years <goes all misty eyed and nostalgic>

Pen - I am four and half years from DX and I still haven't got my head round the fact that I've had cancer, - every so often it creeps up and hits me like a ton of bricks, and its scary. It will take time, - you get so caught up in the treatment, tests, surgery and you kind of hold yourself together to get through it, but afterwards when you get a moment to reflect is when it can be hard. And being in hospital in that clinical environment brings it home a bit. xx

HND - hope you had a fun day with your friend, and that you are feeling less squelchy today.

Ned - well done for getting another week at work under your belt - you are doing well my lovely. My arse will be doing a sell out tour this summer, and signing autographs on this thread. - I did notice the photographer had to keep changing the lens in his camera - I am suspecting wide angle was needed.

A friend of mine who was due to have her reconstruction last week (after her first date was cancelled) got a call to say her plastic surgeon fell in the snow and broke her elbow - so can't do any ops for a few months - the weather has a lot to answer for!

I did an hour of power yoga this morning (from a DVD featuring Rodney Yee - yes that's right, the famous Rodney Yee who? who?) it was pretty energetic but quite good fun. Old lady dog kept trying to lie down and go to sleep on my yoga mat - she is not a fan of old Rodney it seems.

Love to all xx

gracie am drinking your health tonight with a delicious margarita (hic!)

Gigondas Sun 27-Jan-13 10:23:49

That's brilliant gracie smilesmilesmilegrin hope you have a sore head.

brew Anyone? Dh taken big gig swimming while I wait on a teething mini gig.

Copthallresident Sun 27-Jan-13 12:23:56

smee <very impressed at remote juggling skills> I have absolutely no idea what DH can do with remote, whenever he talks to me about computer or remote, actually remotes, there are 4 of them confused all I can hear is blah blah blah. So I just muddle through randomly pressing buttons and hope for the best..... I think he could probably achieve world domination with them, which possibly explains need for remote domination......

It is horrible to hear of yet another young woman with Cancer, I was the oldest in my little support group, at 43 , and we all had young children. Grr. Hope it is a easily treatable one.

gracie more good news! smile

pen hope they let you out today, hospitals are very depressing places

hnd hope boob has stopped dribbling, and is settling down to it's undoubted ultimate awesomeness. Friend had problem with bit of flap dying , actually killed off by chemo , but it is lovely now. They did not bring in the leeches though, they would have sorted it!! Did you see my post that my lovely horse played role in early use of leeches to control infection, back in 70s, vet wrote papers on him and everything. He went on to gallop the moors for decades, are you feeling frisky???

Happy Sunday morning, oops afternoon to everyone

PenisColada Sun 27-Jan-13 19:22:51

I am home. Have enough pills to sink a ship as my ca levels still low. Have not slept properly at all in hospital. Very tired.

It is hitting me now that I have something wrong with me so emotionally pretty wobbly too.

Copthallresident Sun 27-Jan-13 19:53:35

Pen I hope you get a good night's sleep, it's a really tough time, operations leave you depressed anyway, as well as putting your illness centre stage and in your face. However, honestly you will get through this, and you will smile again. There really is life after Cancer, lots of it! Including champagne and smoked salmon for Sunday tea (hic!) on the trolley....

jchocchip Sun 27-Jan-13 20:34:09

Lost my post sad
Really glad you are home, pen you will be able to rest now you are in your own bed.
I've just about recovered from my Friday night out in time for work tomorrow...

amberlight Mon 28-Jan-13 06:26:03

Yes please for that brew. Morning all.
Still being zero use on mn at the mo but waving at people as I'm reading through.

welcome home pen !

jchocchip Mon 28-Jan-13 08:21:54

Morning all. Must go and get my computer from work in one direction then go and work in a different office this pm. And pick up a repeat prescription on the way past the doctors. TOM arrived and blood everywhere again, hence need for script! Sorry if tmi. I could always cope before tamox, now it feels like I can't be more than an hour away from a loo.
Did you manage to sleep, pen ?

Welcome home pen hope you had a good night's sleep.

Hope everyone ok today. Very chilly out and rain again.

Hope you get your prescription sorted jchoc. That sounds pretty miserable.

smee Mon 28-Jan-13 09:27:24

Freezing here too, but that's because the boiler's broken. hmm

Waving to Pen. Hope you're tucked up and being waited on. You're bound to feel a bit weepy. GA does that to you, but also the reality starts to kick in a bit more post op I think. Natter on here if it helps. If anybody's going to understand a teeny bit of how you're feeling, it's probably us. smile

Jane, that sounds grim. I don't miss all that at all, though shock as found a hair growing out of my neck yesterday. Is that the first old lady whisker?! I have plucked, but am pondering the need for sucky sweets and cardies.. grin

Amber, you're always so busy. Hope you're okay amidst it all. Lovely to see you even if only fleeting. smile

We haven't heard from AtoZ for a while. Do hope she's alright. If you're out there, AtoZ we haven't forgotten you xx

Waving to all others. brew on here too for all who need one.

PenisColada Mon 28-Jan-13 09:27:49

What a lovely night in my own bed. I slept well but woke up pretty stiff. Easing now though.

I had a chance to read through the thread properly and really appreciate your experiences of dealing with this. It really helps that what I am feeling is normal. Today I hope to make some flapjacks and cakes for lunch boxes to return to some sort of normal.

Fantastic news gracie

HerNextDoorAt21 Mon 28-Jan-13 09:55:14

Morning all. Another cold and grey day here. Topsy has just been round for coffee and has now gone home to laze about and watch tv do some housework. I am sitting flat on my bum doing nothing. Still have a lot of fluid escaping but feel so much cleaner with the drain bags instead of yucky dressings ..... Can't wait for it all to go though and start feeling properly clean again.

Pen, glad you are home and had a lovely sleep in your bed. I managed to sleep on my side last night which was lovely after sleeping flat on my back for three weeks. Take each day as it comes ..... It is tough having surgery, I cried a few times too as I felt very hard done to with the surgery and complications and pain ... It is very natural to get upset and say "why me?"

Amber, your lightning speed life of razzing around makes me dizzy,,be kind to yourself and park the tea trolley up and have a breather my dear.

Hope everyone else is having a pleasant morning.

KurriKurri Mon 28-Jan-13 10:03:53

Welcome home Pen - so nice to wake up in your own bed smile - how are your feeling? - I don't know anything about calcium levels, I imagine being low would make you very tired? - anyway you have the op out of the way now, which is great - onwards and upwards my lovely xx

Smee- bugger about the boiler - hope it gets fixed soon, why does heating always break when its freezing?
Hair growing from neck is the thin end of the wedge grin I am long past that stage and now sport a Brian Blessed beard (note to self -must practice loud booming voice)

jchoc - sorry you are having problems, - is the script something to staunch the flow? Mind you don't get low on iron (I only mention because I used to have horrendous periods before I had all my girl gubbins removed, and I used to get very anaemic and run down) hope you feel better soon.

waving madly to amber - always lovely to see you, - we know you are a busy woman, so don't worry about long posts - hello is fine smile - and yes I'd love a cuppa please.

morning MAS and gracie - crumpet anyone? - I can't eat them as I'm frantically dieting, so will give them to the trolley (and force any extras down skinny old DD's throat envy)

I should have been at yoga, but our car has decided to give up the ghost - huge puddle of brake fluid under it this morning, DH is cycling to town to get more brake fluid and is going to try to fix problem himself - we can't really afford a car problems atm - why do these things always come when you least want them.

I'm supposed to be going to an art club meeting half an hours drive away tomorrow and I was supposed to introduce the speaker and do all the notices etc. - but may have to cancel - I feel bad because everyone else hates doing the intro stuff, and I don't mind, so I might be landing someone with a job they hate.

KurriKurri Mon 28-Jan-13 10:05:12

OOps xposted - morning HND - lying around is exactly what you should be doing at the moment, - can you fix up a bell to ring in topsy's house when you need something? grin

smee Mon 28-Jan-13 10:08:23

Arf at Kurri, with her Brian Blessed voice. Don't feel bad about talk. Why d'you have to cancel? Too busy booming? grin

MAS, how are you today? Keeping busy?? I have lost track of where you are in your cycle, but think you must be starting another round again soon?

guaranteed to make you all smile It's a shop near us, but I thought it was cheery on a Monday. smile

smee Mon 28-Jan-13 10:12:30

Ooh, I missed you too HND. Have you got new drains in then? I hate those things. Always manage to rip them out somehow <ouch>.

Pen, I think Flapjacks are a bit above and beyond. Surely you should be reclining looking pale and mainlining chocolate? grin

KurriKurri Mon 28-Jan-13 10:22:27

No not too busy booming Smee, (although obviously that takes up a lot of my time grin) - because I don't think we'll have the car fixed by tomorrow night - DH has his 'grim' face on!

Love that clip - must show DD (when she gets up hmm)

smee Mon 28-Jan-13 10:34:42

How annoying on the car. Must be the time of year for things to break. hmm

I like that shop smee ! Bah about boiler - hope you have some heaters to keep warm.
Poor jane - sounds rotten for you.
Waves to pen and hnd - am off to do some work in a sec, just dropping by to say hello. smee have started this cycle -so far so good- am busy working too,so that'll keep me occupied grin

and grrrr about car kk -very annoying and pesky.

HerNextDoorAt21 Mon 28-Jan-13 11:06:31

Kk sorry to hear about our car ..... They are such money pits !

Topsy is being a very good friend and is on hand or anything I need mostly a wine partner !!!!. My DH is thankfully off work for a couple/few weeks as long as I need help as we have no family support in Northern Ireland.
Smee I don't have drains in thankfully but have external wound bags stuck over the leaky bits which have a tap to enable emptying (yuk). Thankfully my DH is a nursing auxiliary so very handy and used to such yukiness !!!

HerNextDoorAt21 Mon 28-Jan-13 11:08:22

Sorry x posted mas hope you a coping well with your current cycle and recent news. Topsy has wise words about mets !

thanks hnd grin

amberlight Mon 28-Jan-13 11:42:07

Nope, not busy (well, no more than usual) - just 'out of fuel' emotionally - just life -nothing anyone else needs to fix - I need to get my head straight.

brew all round it is.

AtoZandbackagain Mon 28-Jan-13 13:15:05

I am so angry

Was due to start 2nd cycle of chemo today but can't as there are no beds availabe!

"Hopefully" there will be one tomorrow.

WTF!!! When I need a 21 day cycle that's exactly what it should be 21 days not 22 or 23 or anything other number they may have dreamt up.

Offered to be a day patient - not possible (although it was offered to me as an option last time)

Offered to go to a different hopsital - not possible.

They even have my chemo meds on the ward ready - just totally unable to physically pump them into me.

Just have to sit by the phone wating for the hospital to sort out their 'bed blockers' - as that's what has caused the shortage of beds.

I AM SO angry

Press? MP? (PALS is just an ansa phone message saying they'll get back to me in 48 hours - whoopee-whoo!)

smee Mon 28-Jan-13 13:18:46

angry AtoZ. Phone GP and ask if they can call on your behalf?? Mental anguish/ distress is a huge trigger I was told. Or could you call your consultant - they must have a secretary. That might be worth a go.

Gigondas Mon 28-Jan-13 13:24:41

That is unbelievable - angryangry what about Macmillan? They may have some advice on what to say.

Back later- trying to do some work.

AtoZandbackagain Mon 28-Jan-13 13:27:10

Macmillans say it doesn't matter assome people have their treatment delayed due to low bloods - but my bloods are fine!!

Macmillans say it could be done as a day apteint - hospital says No

Have rung specialist nurse - ansaphone

Have rung PALS - ansaphone

Feeling like pressing the nuclear option and going to the Press.

Gigondas Mon 28-Jan-13 13:35:23

Well in treatment terms a days delay doesn't matter (mas had to wait and I think someone else ended up delayed due to weather). That's not the point tho - point is delay is due to admin or system failure.

Going to press might make you feel better but not sure will get you that bed. Annoying about day patient thing tho.

AtoZandbackagain Mon 28-Jan-13 13:42:02

Rang specialist nurse and said I wasn't happy.

Was told I might be "lucky" tomorrow.

Am contacting my MP who is very hot on this sort of thing.

I'ts fucking outrageous!

grrr- but don't fret too much about delay treatment wise as I have missed treatments due to side effects/weather...

poor T sent home from school as poorly- should have not been harsh mother and sent him in this morning

Hope T feels better soon mas although note you have stocked up on Waitrose supplies to perk him up grin. So jealous as we don't have a Waitrose here.

atoz grr about delay, frustrating especially as it is not your fault. Hopefully a bed will become available soon.

Hope you are ok amber you sound a bit fed up.

Off to school run and dancing run. Absolutely soaked after walking the dog who is now stretched out on the bed snoring.

Copthallresident Mon 28-Jan-13 16:53:38

Well my 'orrible 'ormones / melatonin black hole scored a blinder last night, laid awake all night until 6.25 when DH came up from snorarium, and had to get up at 7am to breakfast DD. Managed to get to sleep for a couple of hours before phone and everything else made more sleep impossible. So am now officially a zombie, gives everyone zombie wave...

AtoZ last of my treatments delayed two weeks by blood counts so it doesn't actually matter BUT agree totally unacceptable when you are all psyched up and ready to go. From the sound of it it may be something they have started to take for granted that they can get away with, so I would make a stink if only for your own satisfaction and the possibility it will help others and in the future.

Anyone recommend a suitable zombie film / support group............

smee Mon 28-Jan-13 17:12:08

AtoZ, I had delays, but down to bloods and then once down to screw up at the hospital. All you can do is to hold on to is that it won't affect how effective your treatment is. Still bloody annoying though. hmm

Amber, sounds like you need to be with us on the sofa more often. <<aims trolley to block Amber's exit>> smile

MAS my T's on the sofa too. Sent home again. Never happened to us before, but he has some sort of bug which is going round. He has a duvet over him as still no heating. Do you have any side effects now they've got the dose right for hands and feet? Hope you're feeling okay xx.

Waving to Zombie Copt. That sounds like torture. Have you tried sleeping tablets? Imagine you have.

oh poor copt sad
Hope your T feels better soon smee - mine is in his room and seems ok but is coughing and sneezing.
So far no side effects- hands tingly but I think they've been like that since the start of this treatment !

smee Mon 28-Jan-13 17:59:24

Glad you're not too laid low by it all then, MAS. Have you heard yet when your scan might be. Should think that's on your mind more than a bit. By the sounds of things, your T is more ill than mine, who I can hear raiding the fridge, cheeky monkey.

Lovely plumber's just come and put a new ignition in, so Smee has heat. Feel quite cat like next to the radiator. Am almost purring.. smile

amberlight Mon 28-Jan-13 18:44:20

Might be fed up. Can't tell yet.
Ooo look. wine
Good.
Hugely relieved today as a good friend has just had her tests back and she's not got cancer. Phew.
Copthall, argh re insomnia situation. I'm such a rubbish sleeper - can empathise a bit. There must be an answer but I don't know what.

topsyturner Mon 28-Jan-13 19:08:25

Evening All

<flexes duct tape at Amber and says "sit" in firmest voice>

AtoZ that sucks big time .
No suggestions I'm afraid , other than letting them know that you won't keep quiet when bbumped !

Seems to be boiler busting season !
Mine went too , and 2 of my brother in laws .

Was at HNDs earlier , then came home , watched a bit of tv , slept for a couple of hours ...
Although did jump up and Hoover and wash floors , put the laundry on , and make dinner this afternoon .

I have one of those new mint kit kats in the fridge ...

amberlight Mon 28-Jan-13 20:38:00

<sits>

DizzyDalek Mon 28-Jan-13 20:42:16

Hello, I went to the GPs today about some anxiety issues and I mentioned that I thought I felt a small lump in right breast, but wasn't sure because they generally felt lumpy. So I'm now sitting here with an appointment at breast clinic on Friday. Just wondering if anyone could tell mewhat are they likely to do at the clinic?

jchocchip Mon 28-Jan-13 21:42:26

Hi Dizzy, odds ate it is nothing sinister but you are doing the right thing getting it checked. When I went, it was an exam then mammogram then ultrasound then biopsy and a weeks wait for the biopsy result. It may be that they see a cyst though in which case I think it is fine needle aspiration which clears the cyst.

Dh's nan died this morning. She was 99 and had not been well with late stage dementia sad

Got script from gp and staunched the flow, thank goodness. Ate lots of chocolate this eve...medicinal purposes!

smee Mon 28-Jan-13 21:46:05

Hello Dizzy. Sorry you've been referred. Breast Clinics tend to follow same pattern, so you'll fill in a questionnaire, have a consult and a physical examination, then go to mammogram and/ or ultrasound dependent on your age. If they find anything which they think they need to know more about, they'll most likely do a fine needle biopsy, which is basically putting a needle into the problem area to take some sample cells. Then you'll go back to the Doctor with a report and they'll tell you what if anything they think might be wrong. Take heart though, as 9 out of 10 referrals end up as nothing to worry about. Stick around and ask anything you want. Doesn't matter how daft it sounds. smile

Amber are you still sitting?? Great news about friend's results. That must have put a smile on your face. smile

mini-Kit Kat's still in fridge doesn't compute, Topsy. How did it even get as far as the fridge?! shock

Been out on a search for Halloumi. Have had it in my head all day, but our usual Turkish store was out. Had to troll round three more shops before I found some. <unheard of round here> shock

smee Mon 28-Jan-13 21:47:11

x-posted. Sorry about your DH's nan. sad Hope chocolate helps..

sorry too about dh's nan jane - am glad you have chocolate and prescription though
smee ds is having an early (for him ) bath and going to bed- think he'll be ok for school tomorrow. Message from his singing teacher hoping he's better soon (because he missed his lesson) Apparently he is doing his ensemble piece with a girl in his year next week (Panis Angelicus ) I would love to hear it- I wonder if they record it ?
Glad junior smee has an appetite !
Dizzy can't add anything to what the others have said but sorry you're having to go through this. In my experience the breast unit staff are lovely and [it is most likely to be something innocent -but do stick around for hand holding.

KurriKurri Mon 28-Jan-13 22:52:12

Hello Dizzy - welcome to the thread, - Smee has described exactly what will happen at the clinic - there's nothing I can add to that, except that in some hospitals you may have to wait for another appointment to get your results, - some are same day results - it's just luck of the draw.

There can often be quite a lot of waiting around at the breast clinic, so arm yourself with a good book or your ipod, and change for the coffee machine.
If possible I would recommend taking someone with you for moral support - I always found that helped.

As jchoc says - there's a very good chance it is nothing sinister, - they always tend to err on the side of caution with breast lumps, but it is much more likely not to be cancer. Good luck with your appointment - and stick around if you want a bit of hand holding while you wait smile

jchoc - really sorry about your Dh's nan, - how sad sad Bless her - 99 is a great age, I bet she had some interesting stories to tell before she became ill.

amber - yay for your friend, great news, sorry you are having a rather hectic time atm though, sit down at once, and have a brew smile

AtoZ - as the others have said a few days won't make any difference in your treatment, but obviously that's not the point and I can totally understand why you are so angry and upset. It is shit when they mess you about - as if cancer treatment wasn't stressful enough, especially when you have to be an inpatient and have got yourself all psyched up and ready. I really hope they sort it out asap.

Smee - I have had trouble getting halloumi, - can't remember where I last bought it, I think it was sainsbo's, - I know Lidl don't ever have it. I have got a nice recipe somewhere for grilled marinated Halloumi, which I can let you have if you want it.

Just to completely lower the culinary tone, - it is 'end of the month desperately search in the freezer' time chez Kurri, - so we had Toad in the Hole made with Linda MacCartney cocktail sausages (which I don't actually like very much, but DH had a phase of buying sausages every time he went to the supermarket, - we also have about six hundred Quorn frankfurters which are akin to toxic waste IMO) grin

KurriKurri Mon 28-Jan-13 22:53:30

Hope T is feeling better tomorrow MAS smile - Panis Angelicus will be lovely - I hope they can record it for you.

smee Mon 28-Jan-13 23:48:12

Hope it's easy for them to record it for you, MAS. How lovely. smile

Kurri, we are in the heart of a very Turkish part of London, so Halloumi should be an easy find. I wanted it for a thing I make with sun blush tomatoes. We should do a recipe swap. smile

KurriKurri Mon 28-Jan-13 23:52:56

ooh yes - sun blush tomatoes recipe sounds nice - I'll look out my recipe and Pm you tomorrow. smile

I do love halloumi - so squeaky and yum !
Hoping T is up to going to school today -very unlike him to ever be off.
Am posting the wedding invitation I designed today and then tackling this Japanese newspaper job- the tax paperwork for it has been a headache and am not even sure if I've got it right !
How are you doing today pen ? and hnd?

topsyturner Tue 29-Jan-13 08:05:42

Morning All

Welcome to Dizzy
Nothing to add bar , any questions you have , please do ask x

Jane please send my sympathies to DH . No matter the age , it's always sad when you lose someone .

Hope Ts feeling better today Mas

Dull , dark day here .
Hmmm , toasted cinnamon raisin bagels and coffee on tap , whilst wrapped up in my sofa blanky .
I also have aprox 476 <not prone to exaggeration at all> hours of tv program's to catch up with on the sky box .
Bliss !

KurriKurri Tue 29-Jan-13 09:09:12

Morning all smile

Hope T is feeling better this morning MAS. - Japanese tax paperwork sounds mindblowing - rather you than me - I struggle with UK tax paperwork!

topsy I'll have a toasted bagel please and a coffee (just made myself a tea but forgot about it and left the tea bag in - now you could stand a spoon up in it!)

Enjoy your televisual feast grin - did you see Lewis last night/ - I started a thread in telly addicts about it - not enough Hathaway angry - and I won't spoil it if you haven't watched yet, but it's very sweet at the end smile

DH has gone off to work on his bike, - car out of action until at least Thursday, so I've had to cancel my meeting tonight.

Am having a slight panic - remember I said I'd asked a woman round for coffee this week? - I've forgotten her name, - or rather even worse, I think I've been calling her by the wrong name - for some reason I thought she was called Linda, now I've had a sort of moment when I've thought 'Oh God she's not called Linda, what the hell is her name' - can I have a whole conversation with her without using her name/calling her Linda? <panics> I'm getting so senile FFS.

smee Tue 29-Jan-13 09:38:38

grin at Kurri. I do that all the time. Fear not, as you can get through coffee without mentioning her name. When you get invited back, you can snoop round her house for envelopes or bills with her name on.

Boy at school. Yay! Though have my mobile next to me just in case. Hope your T got there too, MAS.

We haven't heard from Gig for a day or so. You okay, Gig?? Hope just busy. xx

brew on for all who would like. DH off on a trip for a week with students today, so I'll be home alone (well with DS) and deserve treats. Suggestions welcome. smile

Gigondas Tue 29-Jan-13 09:50:53

I am fine-just trying to do ou stuff, getting ready for phased return to work (will be part time and a lot at home - meant to start next week ) and most seriously of all... There has been an outbreak of man flu here.

Sorry to hear your news jchoc, amber hugs if finding it tough and grin at name remembering.

Really ought to get up as got Pilates -need it as shoulder playing up (my paranoia now put to bed as it is clearly post op/lifting chubby mini gig who is also prone to throw herself onto it which doesn't help).

Mas just ask if want help on tax issue.

Gigondas Tue 29-Jan-13 09:51:28

Plain chocolate digestives are my fave at moment smee if want some.

topsyturner Tue 29-Jan-13 10:02:40

I once arranged to meet a young man for a date (many many moons ago) and couldn't remember his name .
So I got a friend to "bump" into us . She said "oh Topsy is so rude , my name is Rebecca , and you are ?"
Worked a treat grin

Did watch Lewis .
Totally agree not enough Hathaway .
And Robbie/Pathologist is soooooo sweet smile

KurriKurri Tue 29-Jan-13 10:03:36

Have sent recipe Smee.

glad DS is better today. I think plenty of chocolate is in order, and a nice bottle of something and a cake.

Morning Gig - oh dear, man flu! - (as Bruce Willis would say call the waah-waah-waambulance) grin

DD just had a phone call from the tax office - when she filled in her forms she accidentally put her date of birth in the bit for 'how long have you been working' - grin - the woman was concerned we had sent a baby out to work!

My Kindle arrives today <barely contained excitement>

topsyturner Tue 29-Jan-13 10:03:43

Morning Gigs smile

topsyturner Tue 29-Jan-13 10:04:59

Oooh kk , I luffs my kindle .
Amazon do a top 100 free books to download .
Just sayin ...

topsyturner Tue 29-Jan-13 10:05:31

Loving the wah wah wambulance grin

KurriKurri Tue 29-Jan-13 10:07:19

Morning topsy smile

My plans so far for the name problems are to mutter incomprehensibly if I need to say her name at any point, or to ring mutual acquaintance and say 'you know that woman I always call Linda?- what's her real name?' grin

KurriKurri Tue 29-Jan-13 10:08:03

Ooh top hundred free books <wets self>

topsyturner Tue 29-Jan-13 10:13:13

<passes kk kitchen roll>

KurriKurri Tue 29-Jan-13 10:39:09

It's OK topsy - I am all tenaladied up grin

HerNextDoorAt21 Tue 29-Jan-13 11:45:59

Morning ladies from a very wet and miserable Belfast.

Very sorry to hear about your DH nan Jchoc condolences from me.

Ladies with sick children, I hope they are both well and fighting fit soon.

atoz that is so frustrating, I am sure you are just wanting to get it all out of the way, did you get a bed today ?

gigs sounds like you are very bust with your studies and preparing to go back to work

Halloumi cheese ..... mmmmmmmmmm - I do greek cooking sometimes and I get mine from Tesco.

Getting fed up of waiting around for the District Nurse sad There are so manyof them and all coming at different times. A fiend was collecting me for an early lunch today and it looks like she will run out of time sad

I still have a lot of fluid escaping from my font and my back and its a little depressing - I can't wait to feel CLEAN ! I am seeing the surgeon again tomorrow so hope all is going to plan.

topsy was here for coffee earlier ... do you know she couldn't get up off the recliner - too funny !

smee Tue 29-Jan-13 13:31:07

Far too much bodily fluid slopping round on here today. grin

HND, that leaking wound stuff's horrid isn't it. Hope Nurse has arrived. Could you talk to them and ask if you can call each day to get a rough ETA? They must know their schedule when they set off.

grin at Topsy stranded on a recliner. Now why does that not surprise me?!

Gigs, glad you're okay. Hope Pilates sorts the shoulder. smile

Kurri, have sent you a recipe back. Has Kindle arrived? Haven't got one, but they do sound good.

Nowt to tell here. Working and getting nowhere. Not sure what to have for lunch even, such is the apathy. No call from the school though, so that's good as DS must be okay. smile

am delaying getting down to actually doing the Japanese job (it's not my usual type of thing to illustrate )as it makes me nervous - I always fret about each new job - think I've managed the tax thing but will consult gig if not.
T still not right so decided he'd stay home until it was time for Drama as he felt he neeeded to be there as they're rehearsing a GCSE thing - dropped him off on my way to post office,poor love. Have bought nice treats for him including Wagon Wheels - am trying to eat lots of chocolatey things before Lent.
Enjoy new kindle kk !
hnd I'd fret dreadfully about not feeling clean sad but am sure you are clean enough !
Glad junior smee is better.

KurriKurri Tue 29-Jan-13 13:59:49

Thank you Smee - recipe received, it looks yummy - I love chick peas.

Kindle should be coming home with DH - the company he won it from are sending a rep to present it t him today grin

Hi HND - hope the district nurse has been, and you were able to go out for lunch, and hope the fluid dries up asap - it's so horrid when you feel yucky all the time, - but the first bath or shower you can have when it is healing more will feel like the best ever smile

Am weeping at vision of topsy rocking backwards and forwards in the recliner and squeaking 'I'm stuck' grin

AtoZ - hope you have a bed today and are having your chemo x

MAS - poor T, hope he feels better soon.

smee Tue 29-Jan-13 14:38:56

What is the Japanese job, MAS? Sounds intriguing. I get what you mean over starting it though. New projects are always hard, even more so when out of the norm.

Kurri, will DH have to have cheesy pic taken of him plus Kindle? grin

topsyturner Tue 29-Jan-13 15:14:15

It was EXACTLY like that kk !!!
gringringrin

Japanese job is illustrating a novella in weekly parts shock - am still putting off starting it...

Gigondas Tue 29-Jan-13 15:43:00

Wasn't there an episode of terry and June where he got stuck in a chair?

smee Tue 29-Jan-13 16:11:38

shock mas, that sounds mighty interesting but hard. Did you have to pitch for it? By which I suppose I mean, have you already showed them some ideas, or are you doing it cold? Must be tough if you don't have something approved as a starting point.

topsyturner Tue 29-Jan-13 17:21:35

Sigh
DH just phoned me to tell me that his work place have just put him down to a 4 day week .
I hate this bloody recession hmm

smee Tue 29-Jan-13 17:55:05

sad Topsy. Though I suppose good that he's not being laid off altogether. We'll have to find cheap but delicious sources of fbs to fuel you through it all. x

amberlight Tue 29-Jan-13 19:06:22

Oh knickers, Topsy :-(

Dizzy, welcome from me too. Sad that you're here but glad that we can keep you company.
As other wise people have said, 9 out of 10 lumps aren't cancer.
Even if it is cancer, these days 9 out of 10 of those can be wrestled into submission with the modern treatments (which aren't fun, but they're doable for most people).
And even if it's the 1 in 100 really really rudely behaved lumps, they can often turn it into a long-term manageable situation now.
So, it's better news than it was.
Stay away from Google because the info on there is mostly stuff from Ancient Times and is total rubbish.

jchocchip Tue 29-Jan-13 21:27:47

Oh bum topsy 3 day weekends will be ok for a while, I guess. Maybe you can line all those little jobs around the house up for him...

My Mum and Dads best man has died this week too. Feeling quite sad.

Bern down to the river which is v full. Watching death in paradise now. Cat sitting on my feet making them toasty smile

Oh topsy this recession is hitting everyone.

jchoc condolences. Sad no matter how old.

hnd hope your surgeon appointment goes ok and you feel squeaky clean soon.

Hugs to all those who need it.

that's a bugger topsy sad I am sorry.
smee the novella has been written by a writer friend -she lived in Japan for a while so has contacts -she suggested me and I sent samples which they liked but am finding it very hard -I think the only way is to be experimental; and just go at it, but I feel quite anxious. Pesky period too-thought chemo is meant to stop this-that or menopause anyway, but since no tamoxifen am very regular- weird.
T still very coldy/coughy -and he has a 6th form college interview tomorrow.

Gigondas Wed 30-Jan-13 07:37:01

brew For all who want it.

Topsy - sorry about dh. Yes it's better than no job but still a bummer .

Jchoc- am sorry that you are feeling low- not surprised with more sad news.

Dizzy- welcome and feel free to wobble here.

Hnd - the yuck of dressings and drains lives with me still.

Pen and atoz how you doing?

Mas- hope get some inspiration today.

My shoulder sore again so have heat pack on it. It's very annoying but went out with friend for wine which helped yesterday.
Waves to amber, kurri, smee ,copthall and anyone else about.

jchocchip Wed 30-Jan-13 11:28:27

Hi everyone. Was going to knitting today so morning off work but have spent time trying to find out what mum has done to her internet. Aargh think she had cancelled so dd stuck trying to arrange travel to degree interview manchester tomorrow. Need to know if internet will be there Monday as I was going to work there but can't w/o internet. Dd is off to Berlin and would like to see her go. Need a brew anyone?

yikes jane - hope internet gets sorted quick smart.
Scan is booked for 9th,which is a Saturday - it's abdomen/pelvis and chest.
Ds has a place at the 6th form college for A levels - yay ! Got his progress report too which is good on the whole but he certainly needs to revise a lot..will speak to him about it on the way to piano lesson.
Japanese work is falling into place slowly.

smee Wed 30-Jan-13 16:57:44

Yay for T, MAS. That is good news. Is he pleased about the offer? Am assuming it's somewhere he wants to go? The book sounds intriguing. Does it need a lot of illustration? I'd imagine not. Pesky about period. Hope you're feeling okay x

Pen, how are you now? Still exhausted am sure, but hope not in too much pain.

HND, how's the wounds today? Any more sloshing, or is it slowing down?

Haven't heard from AtoZ, so am guessing she got a bed. Hope I'm right. Miserable to have to wait.

Jane how annoying on internet. Why would she have cancelled it? Am guessing just senility? Why's DD off to Berlin? Is it an Art trip? My DH there atm with his students. Must be the place the lecturers want to go. grin

Does acupuncture help your shoulder, Gig? You haven't mentioned it lately. wine is clearly the best option though. smile

Weirdness going on here. Both DS and I have sore legs. Feel sort of stiff and achey. No other symptoms. We have bought a tube of medicinal pringles, thinking they might help. confused

odd about legs smee - hope Pringles do the trick !
T pleased about college place as it's where he wants to be - but he must get the right grades first ! Japanese thing is 14 illustrations,so not too bad.

jchocchip Wed 30-Jan-13 18:32:27

Yea for T mas maybe now he can concentrate on revision as he has something to aim for. Pringles sound just the thing for achy legs!
Mum was just not thinking as her sil said they had a good bt deal for calls and mum thought it would be easier, not thinking that the orange deal did internet too ... Of course dd not interested in calls, just needs t'internet. Today dd has spent an hour in acocks green library and another one in mcdonalds grin
Train all sorted for manchester tomorrow. Art degree interview.
Did manage to do some work this pm, and dh did nice stew and dumplings for tea smile

Copthallresident Wed 30-Jan-13 18:41:32

<still in need of those zombie emoticons>

smee legs sound like they need wine too (not DS's obviously) but I find it makes legs get very loose and immune to feeling which in this case may be handy as opposed to leading to bouncing off the walls

gigs wine for you too! It is difficult to avoid the one sided weight lifting that a toddler though, it wouldn't be recommended at the gym! You must also have had the advanced balancing 3 year old toddler on top of baby bump option too which can't help when all the ligaments are loose. At least now you don't have paranoia as well.

hnd the fluid is depressing and gunky, it always amuses me to think that those glamour models had to have the horrible little plastic bags of goo hanging from their fake tits too, not so glamourous then were they? grin Hope it dries up soon

Topsy Sorry about your DH. Have they given timescales, could it be seasonal? There is so much of it about, though, has affected a lot of family and friends oop north angry

Mas Yeah for T, a relief to get that sorted. Like the sound of Japanese work, they have good sense of humour, if a bit Benny Hill so I am sure they will love what you do. Fingers crossed for scan.

KK a couple of DD2s friend's mums have been calling me Julia for over a decade now, it just got past the stage when any of us could have mentioned it. Strangely I don't mind it, yet if anyone shortens it to Jules a mist descends....

jchoc a lot on your plate sad Although your Mum and t'internet sounds a bit Peter Kay. I am sure watching Aire in full spate must help.

Goon dog and I nearly drowned / got hypothermia in River Thames yesterday, well goon dog didn't as he loves swimming and is well hard plenty of practise swimming in circles because has forgotten where ball was I have never seen the Thames so high. Riverside walk and most of riverside park turned into river as I walked along and ended up wading through thigh deep water to get out. At least now the parks aren't full of murderous stags high on sex.... Very dangerous place Twickers, at the mercy of nature....

Waves to everyone, sorry if I have missed anything or anyone, now I am a dyslexic zombie I have no hope of keeping up...

jchocchip Wed 30-Jan-13 19:02:06

Hi everyone. Was going to knitting today so morning off work but have spent time trying to find out what mum has done to her internet. Aargh think she had cancelled so dd stuck trying to arrange travel to degree interview manchester tomorrow. Need to know if internet will be there Monday as I was going to work there but can't w/o internet. Dd is off to Berlin and would like to see her go. Need a brew anyone?

jchocchip Wed 30-Jan-13 19:04:34

Ignore that post somehow my phone lost my post and I backtracked and managed to duplicate this morning's. I give in time for wine

digerd Wed 30-Jan-13 19:47:41

Just wanted to share my new experience about suspected Breast Cancer.
My DD had her first screening Mammogram and a week later had a recall letter. She couldn't feel any lumps at all, so was mystifying and worrying.
Date for next appt was the day after she got the letter - even more worrying.
Specialist showed us a cluster of calcified cells on the scan that was causing concern. There was no lump. These cells have the odds of being 80% behign and 20 malignant, but only in Situ stage, which means in the early precancerous stage/non- dangerous. Something I'd not heard of.
5 biopsies were taken last week Tuesday and today the results were all benign.
Treatment for malignant cells is removal of them - not the breast-.

jchocchip Wed 30-Jan-13 20:57:57

Hi digerd so pleased to hear that your dd's biopsies came back benign. Must have been a worrying time for you all.

topsyturner Wed 30-Jan-13 22:24:03

Hi Digerd
Great news that your DDs biopsies came back benign .
Is she going to have a lumpectomy for the DCIS ?
HND had DCIS , so she's a good one to ask if you have any questions .

DH (and I) have had a bit of time to get our heads round his reduction in hours .
It is (according to his bosses) only going to be for 3 months to get them over the hump .
They've been hhonest with him up till now . And they have been fantastic when he has needed any time off to be with me over the last couple of years
So we can only take their word for it and go with the flow for now .
Should be a nice change for DH as he normally works 6 days a week .
Will be a break for him I may bury him in the back garden though grin

How is everyone feeling today ?
Any tests or results coming up this week ?

Well done to T for his 6th form place .

PenisColada Wed 30-Jan-13 22:53:08

All ok with me and am feeling a bit better every day. Hoping my calcium levels are ok and I feel less shaky.
Neck still sore but it feels worse kind of inside. I can't shout and eating is still not easy. Some weight loss would be good.

Still struggling with diagnosis and now paranoid that at my post op appt next week they will have bad news that things were worse than I thought. I hope lymph node tests will be done by then.

Would they have told me if there were bad signs straight away ? I am worrying and feeling like I will never get over this.

topsyturner Wed 30-Jan-13 23:15:09

Hi Pen
Honestly ? No the Pre result jitters never really go away .
I have 3 monthly CTs , and run the whole gamut of not sleeping , not eating , general grumpiness before every single one !
I think you just learn to recognise that what you are feeling is perfectly valid . It's a bloody frightening time .

Copthallresident Wed 30-Jan-13 23:57:28

pen know a few people with thyroid / neck surgery and the soreness inside sounds normal. They tell you what they can, I have never heard of a doctor not telling you if it doesn't look good. Certainly my Consultant was very clear it didn't look good from seeing what came out in my first biopsy, and he was right. They may be not be perfect but do have lots of experience.

digerd Although you will not have heard of it, Cancer in situ is very common. It isn't just in the breast, where it is usually, but not always, in the ducts (DCIS) . I had it in my cervix 20 years ago. Cancer cells only threaten if they go out of control, break out of the part of the body they first develop in and become invasive, that is when you need more aggressive treatment such as radiotherapy, if they are still local, or chemo if they think they have spread beyond the local area. As hnd can advise the problem is that they don't yet understand what causes some cells to become invasive and some to stay put, in situ, so they treat them by removing them regardless. Not all breast cancer, even the nasty kinds, manifest themselves in a lump, some even don't show in a mammogram. It is really good news they have found this early, have identified it as in situ from the biopsy and are going to remove it.

DH took me out and plied me with wine tonight smile <off for a good night's sleep> <though know it is not the answer>.

Copthallresident Thu 31-Jan-13 00:00:16

pen but yes Topsy totally right you will wrestle with your brain conjuring up all sorts of awful scenarios until you actually get the result.

Copthallresident Thu 31-Jan-13 00:01:15

Awful scenarios, with accompanying symptoms.............

digerd - copt is right with her info..am glad your dd's was found early.
She;s also right,as is topsy dear pen
Japanese things going fairly well - I always panic with something new- this can be applied to most things in life.

digerd Thu 31-Jan-13 08:55:04

COP
Yes, I too had the Cervical Insitu - but now called CIN111, I have been told, by MN members, and mine was 30 years ago.
DDs calcified cells in one breast were not malignant, thank goodness, and all is benign, so needs no op. Now I have learned of this, it does seem appropriate to reduce the minimum age for mammograms even further, as can only be detected on one as there is no lump to feel.

PenisColada Thu 31-Jan-13 09:41:05

Good news for your daughter digred

I am feeling all a bit sorry for myself today. I want to post on those threads where people are moaning about having a cold but it is not fair on them so I have managed not to. Good job I am off alcohol at the moment.

Physically I am ok just a horrible tight feeling in my throat.

Gigondas Thu 31-Jan-13 09:52:49

Oh pen I know that temptation -equally with some of dopier relationship threads. I was so happy when I read a "what don't you like on mumsnet" thread and someone said they would leave half the posters in relationships too. Made me feel less mean .

Can't better what has been said by topsy- I think you have to go with feeling shit and do whatever makes it easier to cope- moan here, eat,drink, watch tv, take ads etc . Eventually you do adapt to the new normal- although I will admit the book on good things about having cancer is bloody slim (smee posted an excellent article on being balanced about the positive thinking shit people talk about).

I am officially back to work as of next week but on light duties and alternating days in office/at home. I start at 2 hours a day and build up from there . And If it doesn't work I review it. It will get me focused again so will use working hours mainly to do more ou then work around that. Will see how it goes.

Massage shortly then off out later to work retirement do. Will help me hone the "oh you have cancer " responses . I think it may become "yes and fuck off if you can't talk to me about something else ". grin

Need massage as shoulder killing me- looks at mini gig meaningfully and wants to remind her that mama is not for scrum practice.

HerNextDoorAt21 Thu 31-Jan-13 09:52:52

digerd I have just had a mastectomy and reconstruction following discovery of a 10cm length of malignant DCIS. Mine was only discovered as there is a charity in Northern Ireland that dies early mammograms or people aged 40-49 and I chose to attend as three of my under 50 friends had all had breast cancer. So glad your DD had a better outcome than me.

MAS great that your DS has a college place

My surgeon was happy with progress of the wounds but still very leaky and have three drainage bags again .... Can't WAIT for the end of this !!!!!

Thanks MAS fr your donation ...... I am having a bit of fun and raising money for the local Action Cancer charity by getting people to guess the weight of my boob that was removed. Anyone who wants to donate, I have a just giving page ..... http://www.justgiving.com/Lisa-Hutchings1/?utm_source=Sharethis
Otherwise have a guess for a laugh anyway !!

Hi to everyone else, I will answer properly when I get my laptop out.

smee Thu 31-Jan-13 10:40:57

digerd, it's such good news that your daughter's DCIS was found early. I had 'extensive' low and intermediate grade DCIS, but unfortunately mine had started to mutate, so they found a 1.7cm highly aggressive lump in the middle of it all. I wish I'd found mine earlier!

Pen, impossible to tell you not to anxt, but I think cancer docs are honest and usually right too, so the odds are that what you've been told is right. Go post on those threads. Cancer allows you to behave badly! grin

HND, 3 drainage bags? shock Blimey that must be so annoying. Good surgeon thinks it's looking okay though. I will head over to your page and have a guess. I did similar with mine, as had a wake for my breast, replete with breast themed party games, once of which was 'Guess the weight'. Friend made a breast shaped blancmange the same weight for people to hold and guess from. grin

Did you sleep well, Copt?? Hope you did. smile

Topsy, does that mean your DH will be at home one day a week, or just both days at the weekend from now. Sounds hopeful if his boss has been so straight in the past. Bugger though, as you might have to cut back on essentials like fbs. sad

Didn't realise you were heading back to work, Gig. shock Can imagine that's a bit daunting to say the least. Hope you get a massage for the shoulder. I'd bet thought of going back to work's not helping.

Hope the Japanese work's flowing now, MAS. Will you post some pics once you're happy with them? smile

Does anyone know anything about Invasive Lobular Cancer. Friend's just been diagnosed. sad

Lonecatwithkitten Thu 31-Jan-13 11:21:15

Please ladies could I ask for your experiences.
I found a lump in my right breast 8 weeks ago went to the GP who referred me to the breast clinic I had a fine needle aspirate, mammogram and ultrasound all in one evening at the hospital. Ultrasound and Mammogram suggested normal breast tissue, consultant said if aspirate is clear he would do another one in 6 weeks if that was clear no need to worry.
Got a phone call next week aspirate appears to be bengin mammary hypertrophy come back in 6 weeks. That was last week, consultant said yes lump still there yes a bit bigger aspirate again may need to do core biopsy, but if second aspirate clear he would do a third aspirate in 6 weeks time before he was happy.
I have had a call today from a secretary calling me for a core biopsy ASAP.
First I will fess up to being a vet so I have a lot of medical knowledge 9more than is probably good). Comparing my consultant to myself this check, double check, triple check makes me there is something about aspirate clear leave it that he doesn't feel comfortable with (some sort of gut feeling).
Did all of you get a straight diagnosis at the first aspirate? Has anyone been through these multiple aspirates biopsies? I know the core biopsy needs local anaesthetic, but exactly how much do they take?
I am also a single parent with a total Shit of an ExH who left last July took straight up with OW in very complicated scenario involving her still being with her husband some of the time (he knows and accepts all of this) OW having a DD in my DD's class who bullies her. DD finding all of this very upsetting. So I have very few people to talk to, have horrible nasty divorce (not on my part he seems to be determined to drag it out as much as possible), probably going to need to have it out over DD's contact with him reducing it so it is less, but better quality (solicitor's advice). Oh and I run my own business employing 17 people and as I am a vet that includes 24/7 cover.
Sorry that last bit just poured out with no real sentences.
Thank you for taking the time to read my post.

smee Thu 31-Jan-13 12:02:31

God Lone you have got a heck of a lot to contend with. Do you have a date for core biopsy yet? Sounds like you need an honest chat with your Consultant to find out what's made him push for one.

Personally mine was blindingly obvious from mammo/ ultrasound. I had a fine needle biopsy straight away, was told cancer same day too. Went back 2 days later for core biopsy - not sure how much they take, but clearly enough for a more detailed analysis - then went back a week later for full results. All of which makes me logically think if you have something going on, then it's very small, which is good.

Let's face it, you won't rest until you know, so push for appointments. Stick around and ask us anything you want. We know how terrifying it is. We have had several people come on here and it all turns out to be benign. No reason you won't be one of them. Really hope you are. smile

Lonecatwithkitten Thu 31-Jan-13 12:12:14

Thank you Smee. It will be next week, but its is complicated by the fact that the consultant works at several hospitals the secretary who phoned me is no the one I usually deal with as I can never make appointments at that hospital. So she now needs to pass it to the the secretary at the hospital I normally go to.
It is a reasonable size 3cm by 5cm and occupies around 1/5th of that breast.

HerNextDoorAt21 Thu 31-Jan-13 12:19:43

copt the goon dog scene sounds pretty serious with all that water Glad you were both OK.
lone it does sound like you have a lot to contend with at the moment. I had 8 small core biopsies taken and the whole wound was covered with a plaster, it wasn't painful for me at least. Also sorry about your home situation, my current husband and I had a nightmare with his ex and the kids etc
pen hang in there and take each day as it comes
gig without me scrolling back, what do you do for a living .... good that you are going back graduaklly, thuis was something that was mentioned to me for when i go back and i think i will take them up on it when the time comes
jchoc Pringles cure everything
topsy I have my lovely boots on !

smee Thu 31-Jan-13 12:27:08

Mine was about that size, but as I said in post above to digerd, it was largely low grade/ benign, but annoyingly there was a highly malignant bit in the midst of it all. Looking back now (nearly 3 years) I almost (!) feel lucky, as at least I found it in time to treat. Stick around. If it's bad news (which it really could v.well not be), there's a lot to be said for talking to others who've been through it. Has definitely kept me sane.

Lonecat agree with what smee has said. I didn't have any aspirtations just the core biopsy (about 3 bits taken - small cut made under local and device goes in and nips the bits of tissue-it does make a sudden jolt,which I wasn't warned about -tsk) It was completely painless btw. I suspect consultant is just being very careful about checking it out absolutely - and the chances are that it'll be nothing bad, but I know you'll worry until you get some answers. Horrid for you,especially as you have so much to deal with.
Do stick around as we are good hand holders.
If I like the Japanese thing I might post some pictures on fb grin
Bagel with marmite anyone ?

Gigondas Thu 31-Jan-13 13:38:32

Lonecat sorry to Hear how much you have on your plate. I had a galactaceole which didn't go for 2 years post dd (not same i know). But every time it was aspirated (about once a month til I was operated on to get rid of it), they tested fluid. They were sure it was milk etc but still did test every time.

I agree about pushing for something more conclusive as even if is ok, it is clearly stressful.

smee Thu 31-Jan-13 13:40:32

MAS, I will demand pictures. Always love seeing what you're up to. Bagel with marmite has to have hard boiled egg too. mmm.. smile

Copthallresident Thu 31-Jan-13 14:00:20

Lone My lump was very thin, 1.7cm by 0.5 cm and had only just become palpable, but my Consultant also strongly suspected from the mammogram / ultrasound it was nasty, even more so after the aspiration. There was a lot of blood. Nevertheless he did tell me that even with bloody aspirations only 4 out of 20 will turn out to be Cancer nothing like lying awake all night telling myself to stop thinking the worst for remembering statistics So as smee says chances are it will be something that is easy to deal with, if anything at all. It sounds like your Consultant is making sure. I am assuming you are premenopausal? I think that the dense breast tissue can make it difficult to distinguish different sorts of tissue and to be sure. It did turn out I had patches of DCIS across my breast but they were not apparent until surgery. However I have a friend who kept finding lumps and kept having clear aspirations right from when we first met when she was 30, once she went through menopause it stopped happening. What they take in the core biopsy is about the size of a grain of rice.

You and your poor DD though. OW and DD sound like despicable witches.

hnd My tit really was a pound of flesh!! I found it all a bit tmi but then in Hong Kong you wake up to a picture of it shock and if you want you can have it back in a jar after they have finished the histology of the tumour [even more shocked and a little bit sick] for a decent burial Apparently it is expected that the doctors will proudly provide this evidence of what a good job they have done, all part of making sure you got value for money!

So give us a clue? what bra and cup size? Could I extrapolate? Is there a formula?

gigs and pen Yup behave badly, go for it. How is the hair gigs? Are you ready for the endless entertainment teasing the well meaning when they are telling you how gorgeous it is? "Why don't you have it cut this way?"

smee sleep patterns still all over the place. Went straight to sleep last night but still woke several times and took an hour or more to get to sleep plus very weird dreams (one where DH had bought house with one bedroom and garage for 5 cars grin). I do have some sleeping pills but by the time I am desperate enough to take them I worry I am not going to not be able to get up. So annoying. It is weird because I have always been a lazy layabout loved my sleep.

OOO summons from DD to meet for lunch (on student time, this happens in the afternoon) grin grin must dash

smee Thu 31-Jan-13 14:04:19

Copt, I reckon it's the hormones, as my sleep patterns sound v.similar atm. I wake up 5 or 6 times a night. Mostly due to hot flushes. Have weird dreams too. Last night dreamt the cat brought a fully grown goat in through the cat flap. confused

Gigondas Thu 31-Jan-13 14:16:29

Yep I also have similar sleep issues- go to sleep ok then wake up boiling hot and can't get to sleep properly after-it isn't just the shoulder either.

Will use that response about the hair grin

PenisColada Thu 31-Jan-13 14:36:20

Well my anger has been directed today - I have emailed the council about parking and phoned Tesco to complain.

Cancer is turning me into Victor Meldrew.

Gigondas Thu 31-Jan-13 15:29:01

grin It does that!

KurriKurri Thu 31-Jan-13 15:53:27

Hi all, - just dashing in really to say hello - haven't quite read through all your posts yet, so bear with me!

Lone - hi there and welcome to the thread - it does sound as if you have an awful lot on your plate at the moment, - and this health worry can't be helping. I think being in the medical profession (whether a people or animal doctor) probably does make things a bit more difficult - sometimes ignorance is bliss! - But I wouldn't necessarily panic, - try to see it as a positive that they are seeing you quickly, IME they tend to be uber cautious with all thing breast related, and we have had ladies on here who have had to go back several times for checks on something which turned out to be benign.

Regarding the biopsy (again I didn't have aspirates) My tumour was large and my nipple very distorted so pretty obvious that something was amiss - my consultant said it was almost certainly cancer after examination and he arranged mammo, ultra sound and core biopsy on that day. The core biopsy was under local, and they took three samples - each one a punch and a tug, but not terribly painful, - you'll feel a bit bruised afterwards though.

Smee - sorry about your friend sad - I don't know anything about that kind of BC unfortunately, - I'm sure someone on here had invasive lobular though - I can't remember who it was.

MAS - would love to see Japanese pics when they are done - you know I am big fan smile And well done T on his college place - good for him smile

Gig - good luck with return to work, phased return sounds excellent idea to get you back in the swing of things.

love to pen and HND - hope you are both feeling a bit better today. Pen - the urge to shout 'get a grip' to people with minor worries can get overwhelming at times - much better to shout at the council and Tesco grin

My-Name-Is-Not-Linda didn't come for coffee in the end (am sure I invited her today confused - maybe she doesn't like me grin) anyway I don't have her phone number to find out what happened, -(and even if I did I'd have to ring and say 'is that 'not-Linda'?) Am thinking now she may be called Janet (but I have 2 other friends called Janet so may be getting confused) oh well!

Our car is still not mended sad - which means I have missed all my activities this week - not helpful when I'm desperately trying to shed pounds.

jchocchip Thu 31-Jan-13 19:28:57

Hi to lone it is so stressful waiting for tests/ results so hang around for hand holding.
grin at not-Linda surely someone must know her name! sad about car.
Bit stressed about changing jobs, I think I will enjoy it once I settle in but until then it is scarey. Finishing all my old files over the next few days. Will be sad to leave.

KurriKurri Thu 31-Jan-13 19:35:16

It is a big step jchoc - you are bound to feel a bit wobbly, but once you get started and settled you'll be fine smile - are you having a leaving do at your old work place?

amberlight Thu 31-Jan-13 19:45:41

Agree re the change in jobs - bound to feel eek to start with.
Hi Lone - welcome from me too smile Have a brew or wine
And plenty for everyone else too.

NedSchneebly Thu 31-Jan-13 21:01:47

Evening all smile

Sorry not been around much this week - manic few days, been on hard course today, all about teaching phonics. I didn't realise there is so much I have to learn. . .

Tough counselling session on Tuesday - therapist says I cannot completely write off the person that I was last year, with all the baggage of 2012, even though that is what it feels like I want to do. He says I have to engage with my 2012 self and use "her" to build the person that I want to be. Not sure I know how, really sad

Sorry, not up to date at all. Promise to do better tomorrow. Will have a proper read back and catch up on everyone's news.

Love to you all x x x x x x

jchocchip Thu 31-Jan-13 21:18:59

Will go for a few drinks next Friday- I'm not really leaving just changing departments!
Hi ned sounds like you have been busy.
Just went for a quick swim (you know where, copt) now watching silent witness...

jchocchip Thu 31-Jan-13 21:20:41

Will go for a few drinks next Friday- I'm not really leaving just changing departments!
Hi ned sounds like you have been busy.
Just went for a quick swim (you know where, copt) now watching silent witness...

Lonecatwithkitten Thu 31-Jan-13 21:39:36

Thank you very much for all your kind words. Yes being in a medical professional does make it much worse particularly when you are given one plan and then it changes you think about why you would change the plan.
I have a complex range of autoimmune diseases that I suspect complicates the issue. It feels like one thing after the other I have had two new autoimmune diagnosed since ExH left.
Someone sorry can't remember who and I'm on a phone so can't look back. Mentioned about nipple changes due to one of my autoimmune conditions it is impossible to tell as my nipples are colourless and misshapen anyway. As I say these complicate the issue.

Copthallresident Thu 31-Jan-13 22:30:04

gigs most common reply was "oh my heads the wrong shape, it would look terrible, but you have a lovely shaped head" or variations but our favourite was "Oh it would be a disaster, I have such big hair" as she waved her luscious blonde locks around in the manner of Miss Piggy of course it was her moment of triumph having been insanely jealous of my obvious resemblance to the young Julie Christie pre Cancer Looking forward to some more to add to our collection, this is your mission should you choose to accept it.............

pen not entirely sure you can blame Victor Meldrew syndrome on Cancer. It seems to come to us superior beings all. I think Mumsnet is just inviting temptation sometimes.

jchoc it's a bit of a cycle isn't it? You get a new job and are scared, then you master it and enjoy it, and then you start to get fed up. The bit when you are still a bit scared, and have almost mastered it is best. smile I would say I know the pool well except when I swam in it it was the old and mouldy one they demolished, though possibly now would be seen as a 30s? architectural gem.

Had lovely time with DD, whilst we were looking at a video of David Beckham sleeping ( in National Potrait Gallery so artistic rather than voyeuristic ;-), not usually much of a fan, but this, except more endearing . www.youtube.com/watch?v=EgplHs4WynA ) a very posh man came up behind us and brayed "what a load of old tat". I think he may have missed the point

jchocchip Fri 01-Feb-13 04:55:25

It is still the old and mouldy one, they never got around to demolishing it... Thing is it was not built to be used in the winter, it had a removable floor which they put in and danced the winter away which explains the doors halfway up the wall!!
hmm at posh young man.
lone it does get better once you find out. Either it is benign and you celebrate or not but even if you have to have treatment, knowing is better than not knowing iyswim. You need distractions while you are waiting and plenty of fbs.
I fell asleep with the cat on the sofa again so have only just come to bed, arrgh. nighty night.

jane am sure you'll soon settle in new job - as copt says,there's a point where you've almost mastered it think I'm about there with this new job grin

HerNextDoorAt21 Fri 01-Feb-13 08:20:35

Mooooooorning !

Glad to report I had an excellent nights sleep. I have been sleeping on the sofa as it is softer and more supportive and I managed to sleep on my side with the back of the of the sofa supporting my front. No leaks and feel refreshed for the first time in 3.5 weeks !! Who ever thought I old get so excited about sleeping !!!!

Being taken out or lunch today by a work colleague. I invited topsy but he has another mad friend coming round to her house so we will go out next week.

gigs you have to report on hair comments and I will report on any "wonky knocker" moments like some people have said " oh you can hardly tell" .... Haha one boob points north and one points south .... It s Sooooooo obvious !

lone you will feel I much better once you know ... Stick sound here, it's a very friendly and safe place to be.

Hi to everyone else this morning

jchocchip Fri 01-Feb-13 10:29:47

Hi hnd another one who slept on the sofa last night smile glad you are feeling refreshed. I'm working from home today so mustn't spend too long on here... but time for a brew anyone?

Lonecatwithkitten Fri 01-Feb-13 11:05:51

I am sure I will feel much better once I know and if it needs treatment have a plan.
The one good thing is it has galvanised me about ExH, well this an OW saying to DD on the phone that she need to find OW'sDD's coat at school today - I told DD it was not her responsibility.
So I have e-mailed my solicitor and will be pushing that through.
I also have two lovely cats who sleep with me, there hot water bottle facility is very comforting.

Copthallresident Fri 01-Feb-13 11:56:44

jchoc Glad to hear the pool survived! I remember them laying the floor after we had been swimming with the Guides on Friday nights!

Finishing off the week nicely laid up in bed with the trots, well more the gallops. (Sorry if that is tmi) Really frustrated as lovely old friend from Hong Kong, now living elsewhere in the world is over tomorrow and we had walk and Asian meal planned, I was sooooo looking forward to it.

HerNextDoorAt21 Fri 01-Feb-13 12:10:39

Copt hope you recover quickly to go out with your friend

KurriKurri Fri 01-Feb-13 15:27:23

Hi all, hope you feel better soon Copt, can you get some of that instant immodium stuff?

HND - sleep and no leaks is definite progress smile

I decided to go to my keep fit class today - which meant getting a bus at 7.30 a.m. (next bus is at 10 a.m. and class starts at 10 a.m. - ludicrous rural bus service!) so I did that, then did a load of grocery shopping, - I had a wheelbasket full and a rucksack full of groceries, God it was heavy - I bowled around town in the gnome position bashing people's ankles as I went. grin

Dh and i have been invited to 1920's gangsters and molls night in April, which involves dressing up (which I like doing, but DH will need some convincing). What do molls wear - flapper type dress? (probably because that's the least flattering style in the world for a hip-heavy middle aged woman hmm)

Love to all x

long cigarette holder, nice shingled hair - ooh,exciting !!
Hope you feel better v soon copt
Japanese drawings done and I hope they'll be acceptable.

hooray for no leaks hnd !

HerNextDoorAt21 Fri 01-Feb-13 19:47:26

That was just no (usual) overnight leaks ... I still have the very attractive 3 drainage bags filling up regularly each day .... Was so nice to wake up in dry pj top though gringringrin

jchocchip Fri 01-Feb-13 20:47:46

Made it to Mum's. No internet here sad have phone but won't be on much. Brother should be here soon will be nice to catch up. Have a lovely Friday night, lovelies xxx

topsyturner Fri 01-Feb-13 23:04:46

Shoot
HND got me drunk again ...

It's ok though , her luffly DH gave me a copy of Freefall/downfall/sky fall whatever the frick it's called with the fantabulous Daniel Craig to watch in bed tonight !

Medical question time .
I appear to have developed some lymphodema under my mastectomy arm .
I was mastectomied in June 2011 .
(And full node clearance)
Can lymphodema set in that long post op ?

topsyturner Fri 01-Feb-13 23:06:55

KK
Fab Flapper Party !
Think Bugsy Malone and channel your inner Tallulah !
If flapper girl doesn't suit you , then I reckon sexy gangster will !
(Wide shoulder men's suit , big tie , violin case)

topsyturner Fri 01-Feb-13 23:07:41

Jane
Aaaaaargh
No tinternet ?
Surely against all human rights ???

topsyturner Fri 01-Feb-13 23:14:52

I know I'm paying lots , but iPhone doesn't allow for my creaky memory
It won't allow me to scroll back !

How is everyone ?
Gigs I can't believe you are going back to work . You are super woman !
(Although am sure DH will test your patience with the rugger starting back tomorrow . My DH has the tv commandeered from 1pm tomorrow when the Ireland coverage starts)

Gracie did I hear you talking about a return to work too ?
Bet you are suffering just as much with the rugby !

Big snogs to Smee , Amber , Ned , et al .
Please forgive me for not naming everyone .
A) I have a crap memory
B) I am awful at remembering names (ask HND , she always has to tell me what people are called !)
C) I am hammered (again , do I have a drink problem ?)

Anyhow , goodnight , god bless .
Luffs you all xxx

topsyturner Fri 01-Feb-13 23:15:30

Posting not paying ... grin

HerNextDoorAt21 Sat 02-Feb-13 08:58:17

I did not get topsy drunk .... I merely invited her round for Friday Night bar snacks and she arrived with a bottle of wine ??

oh dear tipsy again...hope you have restorative things in the house.
Am sure lymphoedema can happen at any time though - best see your bcn for advice- think a friend of mine got it in her breast after WLE.

Gigondas Sat 02-Feb-13 10:43:33

I believe you hnd- you are in no state to hold tipsy down and pour wine into her. How are wounds today?

I may well be mad about work but let's see how it goes- it is mainly a help as gives me some routine to do my ou stuff and work rather than faff.

So far on comments had the hair looks nice, shape of your head and you look well. Also the you look so thin- to which obvious rep,y is I can't really recommend this diet.

Shoulder been strapped now and got stronger painkillers (I do get GPS attention as there was no appointment then miraculously was one when I said my name hmm).

Cooking now and rugby later - yes our house too is given over to it

Gigondas Sat 02-Feb-13 10:44:09

And lymph oedema wasn't someone who didn't regularly post saying hers appeared some Years later topsy?

HerNextDoorAt21 Sat 02-Feb-13 11:31:10

gig the actual wounds, an eye shaped graft on the front and the 'seam' from where they took the graft from the back have healed really well .... there are just the three little sites where the seroma is escaping that are a little bit soggy shock the front drain bag failed last night and I woke up in a pool - yuk .... thankfully i have been sleeping on the enco pads that the hospital gave me (waterproof but soft) so the sofa was saved.

I am finding that the immobility has given me a dead patch on the outside of my left leg which can be painful if i lay on my back - am iI the only freak that has had this ever ?? I had it when I was pregnant too so imagine it must be a nerve thing ??

I saw tipsy going off with her DS to go to her friends to eat really yummy homemade cakes and drink coffee horse riding this morning ... still cna't believe she blames her drinking on me !

KurriKurri Sat 02-Feb-13 11:52:02

Morning all, - how's the head topsy? grin I thought you were going to suggest I channel my inner Fat Sam for the flapper party grin

As far as I know, lymphoedema can crop up at any time after surgery, - defintely have a word with BCN - there is probably a lymphoedema clinic at the hospital where they can drain it if it gets troublesome.

Gig - glad you've got stronger pain killers for the shoulder, hope they help. WE too have to watch the rugby this afternoon, - unfortunately DH is Scottish so there are always going to be tears after the match grin

HND - hope the sogginess eases soon, drains are vile things, so I hope they take them out for you soon and you can start to feel normal again (well as normal as anyone who lives next to topsy can be grin)
I don't know about the dead patch on your leg - is it a pressure sore? - I had one of them on m elbow when I had to keep my arm in one position in hospital for a week - but it was very red and sore rather than numb. I'd ask the district nurse about it when she comes out.

Morning MAS smile - how are you today?- how has this cycle been for you?
Well done on getting the Japanese job done - that was quick work!

It's been snowing here again - not lying though as its too wet. The car has returned -£90, - less than we thought, but still too much!

DD is off to see the new tarantino film this afternoon, she's gone to her friend's house bearing a four layer lemon cake she made last night as it is friends birthday - it looked very yummy.

Gigondas Sat 02-Feb-13 12:13:04

That cakes sound yum kurri - I am a bit meh about Tarantino as like some stuff (jackie brown) but some just too violent for me.

Yes I got dead leg and shoulder (prob what is making it worse now). Also sympathy about seroma - mine burst in the bed (and was rather large. I had to stand in shower while it leaked out for half an hour). That was definitely mine and dh cancer low point smile.

Dh has his shirt on already-think he is hoping he might get a gamewink

KurriKurri Sat 02-Feb-13 12:19:14

I'm not a Tarantino fan either Gig, - way to violent for me, - not my kind of thing at all (I don't generally watch anything racier than a PG grin) but DD and her friend seem keen - they go to a lot of movies together as friend gets free tickets from something she belongs to.

Dh has a sweater from when Scotland last won the Grand Slam (about 1982 I think or possible 1882) so he may wear that (then take it off and throw it on the floor after 80 mins grin)

HerNextDoorAt21 Sat 02-Feb-13 12:49:55

yes gigs it is a low point .... my DH is routinely emptying the seroma from the bags with the little taps at the bottom sad Good job he's a nursing auxillary and not easily freaked out .... don't know HOW he'll ever find me attractive again after this. I can't believe your seroma actually burst. Mine felt like it would in hospital before i got aspirated front and back (one with and one without local anaesthetic (ouch).

kk I don't think it is a pressure sore as I have had it on and off for a while but it is further troubled by only being able to sleep on that side because of the swelling under my 'bad' arm. Thnakfully these are external drain bags on not the drains from hospital - they were so flipping annoying and I got cellulitis around one of the sites sad !

I haven't seen topsy return yet, she may have gone into a diabetic coma with all the goodies her friend makes .... must get my DS into horse riding !

topsyturner Sat 02-Feb-13 13:22:38

Am home !
Not hungover (bit worrying as must mean my body is getting used to vast amounts of alcohol !)
Horse riding was early today .
But still had lots of coffee and freshly made choc chip cookies .

Off to do a bit of food shopping soon .
Then back for DH to shout at the tv watch the rugby ...

dh watching rugby - he and ds going over to parents later to watch Scotland (complete with his family tartan scarf and Scottish beer)
Hope work is good for you gig - it does help to have one's mind occupied -and all your studying too.
Am going to email the Japanese drawings to editor - my writer friend loved them,which is encouraging - I must say it was a challenge but am glad I did it- I do panic.
Also got paid at last by Macmillan for my joke book - hooray !!

seromas sound irksome hnd - I am horribly squeamish about these things though am cured I think of my ability to faint with blood tests !

Gigondas Sat 02-Feb-13 15:00:21

So was I - but there was such relief when my seroma burst as it was infected and I was feeling rubbish.

Off to rugby soon- am debating whether beer and painkillers mix ...

Gigondas Sat 02-Feb-13 15:01:36

And agree about work focussing mind- it is my studies that will really do that but work helps discipline me to get to it.

Made some lemon tart earlier if anyone is keen.

Copthallresident Sat 02-Feb-13 16:34:27

DH and DD2 just went off to Rugby too. DH has never taken DD before, a bit disconcerted by how excited she was, and worried about having two of them back snoring on the sofa by 7.30..... DH has his lucky shirt on as well, and his lucky boxers, which are quite old and very holey, not a good look.

Topsy You can definitely get lymphodemia at any point after they have removed your lymph nodes. That leaflet they give you about not lifting more than 10lbs etc. is for life though how you are supposed to do the weekly shop especially with all the bottles of wine I don't know, and neither, as a gardener do I know how you direct a wasp to sting the good arm or stop yourself knocking against rose thorns etc. It is also a big annoyance when they spend ages mining for veins in my good arm where they were all burnt out by the chemo when there is a big juicy one on my bad arm. I have never had an infection after a blood test?

However geek doctor says there are now studies that show that weight lifting can actually be beneficial in avoiding / treating it, providing you build up gradually, so you could start with cans, then half bottles and then work up to full bottles and even, v.advanced option, litres of spirits wink

KK DD2 desperate to see Django but DD1 who is usually blasé about these things said that some parts were too shocking and disturbing even for her, not so much the blood as the context. Since DD2 is a past master of the post film nightmare (used to be an annual week of night terrors after each Harry Potter film got released, dogs, spiders snakes... ) I am hoping it doesn't happen.

hnd At least you have had some dry nights so hopefully it is drying up. They probably should have put my bags back in but kept aspirating it again and again with a horrid big needle (done by a horrid big doctor). I think of him every time I see the scar he left me with angry

gigs so in spite of large reference books you are really enjoying the course?



I made it to lunch with friend though at 3am still thought I wouldn't. It was a really nasty bout and immodium no good, as it was at warning tmi both ends, mostly at the same time . Was relieved that DD didn't have it since we had met up on Thursday and shared lunch except today she has, so horrible bug rather than food, and I feel very guilty. sad

HerNextDoorAt21 Sat 02-Feb-13 22:30:33

mas thankfully I am not squeamish especially as I had 54 leeches to contend with as well as seroma and 150 million needles (maybe a slight exaggeration)
copt I did not realise the 10lb limit .... That will be a problem !
Sadly, my seroma is all in the tissue like a big soggy sponge and not in a pool that can be aspirated.... I had two aspirations in hospital sad yes at least when the bags work I feel so much cleaner and they are fine during the day.

It ha been such a long and boring day today I have not left the house ... Can't wait til I can drive again and I am missing a leaving party tonight froma good friend at work who has changed jobs .... Oh listen to
Me mrs Moany !!!!

having a bit of a bad time in my head having convinced myself that the doctors are wrong and I have something else not mets- (I have been very bad and googled lots of stuff to make my diagnosis ) It has quite disturbed me, so I have written an email to my bcn to tell her exactly what I've been thinking. Managed to do some work too to block it out.
Hope the rugby outing wasn't too chilly gig and not to painful for shoulder.
Glad you made it through lunch copt but sad about dd and bug.
sad that you missed party hnd

Copthallresident Sun 03-Feb-13 00:19:05

MAS ignore bloody Dr Google , even DD2 can go on there indulging her inner hypochondriac and convince herself she is on the way out, not to mention what my sleeplessness and sweatiness portend not that I have gone on there at all And paranoia is clearly part of the new normal. At least the other part of the new normal is that you have bcns who will swing into action and get everything investigated and sorted out. It's good you have let them know, so now you can put it back in the paranoia box, overwhelming chances are it is nothing to worry about.

DD has admitted that night before last was a student night out and also flatmates birthday too much booze so I don't feel guilty any more.

hnd The big horrid doctor told me that I was disturbing his day because I had driven (school run) too soon. He was an a***hole but don't rush to drive etc. I got a frozen shoulder as well. It will get better, it's just really really boring [bored emoticon] but you do not want it to go on even longer...............

re 10lb limit, do Dr Geek's workout bless, clearly doesn't practise what he preaches, 5ft tall wimp only half joking about cans / bottles, I think the point is to build up, not carry sumo wrestler toddler around straight away gigs

Gigondas Sun 03-Feb-13 09:09:35

Mas stay off google but contacting Bcn is absolutely the right thing to do

Had good time at rugby despite some drunken twits falling on my bad shoulder (who leans forward and leans on people in row in front!).

Not so good was 3.45 wake up from mini gig so brew all round.

And yes am enjoying studying but finding it hard to get back into old habits. First tutorial in 2 weeks.

Ned- therapy is hard but stick with it. The hard bits do help give you better ways of coping containing and knowing yourself. And Ikwym about your old self as I think cancer can bring out old hurts/stress points.

Hnd- how is the leaking ?

topsyturner Sun 03-Feb-13 10:29:45

Morning All

Mas what do you/Dr Google think it might be ?
I find giving name to my fears helps me . I found saying the word cancer over and over again , and using it in every day chat , lessened its impact .

And also , in a way , your worries that its something different are very valid . As my Onc told me that the only way to know for sure that lung mets are lung mets is to biopsy .
And they don't normally biopsy them .

I learnt that I had to trust when they said that's what it was .
They are the experts .
I am not .
They have managed every other aspect of my treatment so far without killing me

I hope some of this makes sense ?

yes, I read that too topsy I guess I have to trust the experts who see these things every day but my OCD nature makes me need to check on everything - I hope they don't think I'm being arrogant. When I was pregnant i was convinced that i wasn't and had to check everything,kept pestering my gp -even with my scans I thought maybe they'd mixed them up...I looked up every possibility of things it could be instead. I don't even know if my rash on my leg was an insect bite(s) inflamed by the capecitabine or any of the other granuloma type rashes (which are sometimes a sign of sarcoidosis -although seen in malignancies and mets too) BCN pointed out last time that my scan had been seen by lung cancer/sarcoid consultant as well as my onc and his registrar and onc. had said to me that he wouldn't be giving me capecitabine if it wasn't. I feel better having written my anxiety down and sent it to bcn though- it's worse when I can't express my anxieties.
Sorry to be a bore and go on about this- am scared of being thought crazy but I really can't help it.
Dh baking bread and I'm making pudding in a sac for my mum's birthday.

Gigondas Sun 03-Feb-13 13:03:49

I think you have to let it out and go through this mas as it is your way of dealing with it. I am of the topsy school but there isn't a right or wrong way to deal with this- just what works best for you.

What kind of pudding in a bag?

I have found spotify and am making all sorts of playlists which is most satisfying although no one else in house appreciated it . wink

arf ! pudding in a sec !! in a sac sounds rather disgusting...

Gigondas Sun 03-Feb-13 13:08:11

Lol- mini gig is walking (only a few steps but still walking). smilesmilesmile

saw picture on fb - cute !

HerNextDoorAt21 Sun 03-Feb-13 13:45:13

MAS sorry you are anxious but like others have said, there is no right or wrong way of dealing with cancer..... I do agree though abut asking questions and allaying your fears .... I asked my surgeon a few questions and had diagnosed myself with cellulitis in hospital (which was confirmed) .... It is almost impossible to stay away from google when it is at your fingertips.

gigs inevitable getting bumped at rugby match I am terrified of kids charging round tesco ..... School would be torture at the moment ! Sill loads of fluid and I just got DH to change all the bags as I am convinced I can smell yucky stuff even though he tells me I do not smell ...... They'll be some party here at 21 when the last bag is removed ..... Watch out topsy and everyone else welcome !!!

copt. I have a 17 year old stepson who desperately tries to hide his hangovers from partying ..... I see myself in him too much. I will to be driving just yet .... I have good range of movement in my arm and shoulder it's just the scaring in the back ..... Dead tissue makes ou feel like you are leaning on a block of wood.

Desperately trying o get my hairdresser to visit as I needa cut and odour, think that would raise my spirits even more

Was treated to topsy trying o straighten her hair again yesterday .... It's such a laugh and she would not let me take control of the straighteners !!! Grrrrrrr ...... Back o lovely quiet coffee mornings when the kids go back to school smile

topsyturner Sun 03-Feb-13 14:39:37

Hahahahaha !!!
"cut and odour"
HNDs typos are legendary grin

Gigondas Sun 03-Feb-13 14:53:47

I did smell when I had a seroma - nothing like your dd saying "mum you stink"

Copthallresident Sun 03-Feb-13 15:23:00

gigs DD reported from Rugby that DH gets very carried away and sweary, and is sat next to similar drunkenly passionate types much to the obvious discomfort of some nice uptight middle class couples with mouths like cat's bottoms who have the debentures in front (not sure why you would go to a Rugby match if you don't like swearing though!) In fact she gave a full account of all sat in their vicinity, I think she enjoyed the sociology as much as the Rugby!!

Cut and odour? raising some interesting mental images grin

Gigondas Sun 03-Feb-13 15:25:31

Bad language , drink and being jostled on way in/in bar are part of it. Someone in the row behind leaning on you as was so drunk was falling over not so normal. Glad dd enjoyed it tho.

Copthallresident Sun 03-Feb-13 16:48:57

gigs No entirely agree, wasn't implying you were being unreasonable as they say on here!!

I've lost 7lbs with bug!! should I try marketing it?? (probably all gone from good boob which now weighs minus 6lbs)

smee Sun 03-Feb-13 20:16:25

<<stands well clear of Copt>>, but waving to all. Been away for weekend to lovely friends in Derbyshire. DS wants to move in with them, as they have a gorgeously daft dog, who he adores. v.sweet to see them together. smile

Mini-gig's walking, that bodes well for your shoulder, Gig. Cute too. smile

Topsy, you can definitely get lymphoedema way after surgery. I get it a fair amount, but only in a minor way, so never bother to do anything about it. hope yours isn't too bad.

MAS, BCN sounds like a good way to talk it through. Do you think imminent scan's heightening it all. Not that it ever leaves you am sure, but still, scan can't be helping. xx

Glad to hear wounds are less soggy, HND. Cut and odour?! confused

Sorry not to post to all, but hope everyone's warm and happy. Esp. Pen and AtoZ. Hope neither of you are feeling too ropey. Better go and try and clean two ton of mud from DS's boots. Think he's brought half of Derbyshire back with us. grin

how lovely your weekend sounds smee
Just back from mum's birthday supper- she was very perky and loved her presents and the food,pudding and cake.
Think you're right smee -the scan has made me think about everything .

smee Sun 03-Feb-13 22:39:53

I know it's easier said than done, MAS, but would your mindfulness help if you can get yourself to that space? I think obsessing and questioning ever so sane in lots of ways. Very tough not to, that's for sure. Happy Birthday to your mum. Glad she liked her cake. How is she atm? Hope well. x

Am trying to do mindful exercising each morning - am sure it'd help. Mum was very perky and jolly today - seems pretty well smile.

PenisColada Sun 03-Feb-13 23:03:54

I am feeling much physically better apart from a cold. Seeing the team at hospital Thursday to find out my treatment plan so now worrying about that. My thyroxine will be stopped for 6 weeks before the radioactive iodine treatment and I am hoping I don't feel too bad without it.

I havpve stopped googling and am burying my head in the sand,

Copthallresident Mon 04-Feb-13 00:15:42

pen When they have done studies on whether your attitude to your illness / treatment makes a difference to the outcome, burying your head in the sand was one of the coping strategies they included and it was just as effective as denial, getting angry, sad or worrying, even being "positive" is not going to make the outcome actually worse wink Go for it! Anything that gets you through it.

MAS Glad your mum had a lovely birthday supper, I am sure the BCN will help with worries and pre-scan anxiety, it's totally understandable.

Very upset at missing my opportunity of 5 mins of fame as local paper features big article on glamour model who got caught in the same high tide as goon dog and I last week. www.richmondandtwickenhamtimes.co.uk/news/10198941.VIDEO__Playboy_model_survives_being_stranded_in_flood_water_up_to_her_chest_while_jogging_along_Richmond_towpath/ OMG why didn't I think of videoing it, going off to A&E after and then going to the papers!! My story would have been sooooooo much more dramatic. I can see the headlines " Beautiful blonde Julie Christie lookalike Cancer survivor (39) and her brave dog are nearly swept away by Thames"

I do hope that we encounter her out jogging, I may just have to forget to say "leave it" when goon dog makes his move to jump up at her crotch, and trip her up ......................

Gigondas Mon 04-Feb-13 06:36:20

I hardly ever google pen as 1. I don't need a study to tell me it makes me loads worse 2. Stuff you find isn't helpful and usually old. But hope you can ask if anything else that can give you to manage side effects when you are off thyroxine.

grin At that story copthall- the local paper is always a gem for stories like that . If I am mean (wink), we have a bit of a body from bay watch face from crimewatch. I also love how she splits her time between la, Norwich and Richmond- nothing wrong with any of those places just odd mix .

Smee- mini gig walking will help but still a bit fitful. Am home alone while dh is skiing for a few days (he has taken fancy dress with him- a darth vader outfit. Part of which includes a lurex onesie - quite why I don't know confused).

ah, Mr*gig*'s ski trip - I know about that grin !
pen I agree with gig about not goog;ing,though I am as guilty as hell -I know I shouldn't but do.
Dh poorly with a cold so I think he'll be at home today.

AtoZandbackagain Mon 04-Feb-13 14:00:24

Hi all

Me with a rant ... again angry

Is your oncology dept as useless as mine? Rang in severe discomfort and distress this morning - got told to go and see my GP. His next appointment is 21st Feb! so had to explain everything to a locum. Why? - when surely the oncology dept are the experts?

Next - following on from last week when they didn't have an available bed for chemo - I am still waiting for an appointment for my chemo tomoorow. I have been ringing them for the last week asking for the appoitment and 'someone will get back to you' - but noone ever does. Can't they understand that when you're unwell you don't have the energy to chase up incompetent fuckwits and that you might - just might - need to make some arrangments at virtually nil notice to get someone to take you to hospital for the appointment? Or are they going to tell me again that they cannot fit me in (for a 10 min appoitment). In whcih case I promise I will just fucking explode!

I am just so utterly, utterfly fed up with it all angry

smee Mon 04-Feb-13 14:52:31

sad angry AtoZ, that's dreadful. I honestly have never heard of such a lousy service for a cancer patient. Mine would always see me same day/ call me back, etc. Can't believe you're still waiting.

grin at Mr*Gig*. Have you treats lined up while he's away? Hope you have.

Pen, what are you expecting on Thursday? Presumably pathology from the op? Would it help to talk on here? If so do. I always found it easier to say things out-loud. Not at all sure why.

grin at Copt. v.funny!

That's good that your mum's so well, MAS. Is the scan soon? I think it's end of this week, but might have got that wrong? Be good to get through that and maybe learn more, as it must be horrid not knowing everything or feeling that you don't. Are we allowed to see the Japanese work??

HND, how's the oozing today? Hope less yuk.

Nowt to tell here. Birds singing outside though. I think Spring might be on the way <here's hoping> smile

Sometimesiwonder Mon 04-Feb-13 15:12:09

Hello all

Just wanted to take a minute to share the excitement. They're filming a comedy drama right by my house! Celia Imrie's in it! And our postie (who is also the father of a kid in dd's class) got paid £75 to do a bit part as a postie delivering An Important Letter! And our friends got paid to have arc lights beaming out of their bedroom window! As per usual, we have been passed over for greatness. I know I don't get out enough, but this passes for seriously interesting round our way.

As you were.

Apologies for being awol for so long, it's been hectic. I'll be back later in the week, I hope - but the pooter is going to hospital tomorrow and I can't stand MNing on the phone. Much love to all, especially those feeling a bit crap. xx

we have snowdrops, so spring must be nearby...
grrr AtoZ angry they sound hopeless,so sorry you are going through this.
Scan is on Saturday - and my next onc. appointment is the following Friday.
I might put a Japanese picture up on my profile- they probably won't make much sense as they are illustrating the episodes of the novella (which is about a ruthless radio presenter who betrays her friends and gets her just desserts only to do the same again by the end)

waving frantically at sometimes !! how exciting - I like celia Imrie grin

Sometimesiwonder Mon 04-Feb-13 15:19:46

Oh me too. And there's someone from Corrie but I haven't a clue who.

Appointments always make you feel a bit more anxious - horrid. Keep remembering to breathe. x

grin
Put 2 of the pics on my profile...

AtoZandbackagain Mon 04-Feb-13 15:40:32

Hi - and thank you everyone. I have lightened up a bit.

I now have an appointment for tomorrow after chasing a very roundabout route. But their admin is really hopeless!

Very conscious that all I seem to do is moan and I hope to be able to contribute more positvely to this thread soon but at the moment I'm really in the depths of 'I'm not even half way through my cycles and I don't know how I'm going to cope'.

But I will grin I knew it would be hard - just not quite how hard.

smee Mon 04-Feb-13 15:41:13

OOOh, Sometimes how nearly glam you are. grin I love Celia Imrie too. Go hug her from us and tell her how fab she is. Been wondering how you are. Come back soon. xx smile

MAS I like. The hurt hand one's v. clever and the kitten one cute. Scan on Sat's not too long, but a week to wait for results is a bit of a haul. We'll have to distract you with our ramblings. xx

smee Mon 04-Feb-13 15:42:10

x-posted, AtoZ, you're allowed to moan. One of the reasons we're here is you can moan here and we'll understand because we've all been there. Never not moan. Great you've got your appt though. What time?? Are you staying in again?

HerNextDoorAt21 Mon 04-Feb-13 16:00:31

Happy Monday everyone

atoz that is terrible service and just rubs salt in the wounds of an already naff situation

mas I hope your week flies in and you are not toomdistressed quaint for these appointments

gig the mind boggles with the lurex suit !

copt a missed opportunity for the papers for you, we will have to think of something more dramatic !

sometimes I am useless at actors and actresses but very exciting having filming going on nearby

My lovely retired boss (lucky to retire at 52) came at lunchtime with a bouquet and took DH and I out for an Indian lunch
..... It was delicious

Poor topsy and DD not well today with a bug so have not risked going round for usual coffee and banter. Get well soon pukey !

AtoZandbackagain Mon 04-Feb-13 16:17:40

No - just day patient tomorrow Smee.

I think it has been the fact that my hair is now falling out in handfuls that's now pushed me so far down sad. I was told this side effect would be very rare so didn't expect it.

So, any tips for 'chemo headwear' folks? Seeing me like this is scaring poor DS.

smee Mon 04-Feb-13 16:30:31

Good that you're a day patient, but g'ah for hair, AtoZ. How annoying and upsetting. Depends on what you want, but I found Buff's great - just google if you don't know, but wide variety and adaptable. As it's winter, beany hats are great for covering bald clumps, but letting small bits of fringe/ back peak out. How much have you lost? Do you think it'll all go or is it too soon to say? sad

Waving to sick Topsy. Is it that Noro thing? Hope not.

HND, Indian lunch sounds delish. smile

AtoZandbackagain Mon 04-Feb-13 16:39:42

Good idea to use beany hat Smee. I really don't want a wig. I've lost about half the volume. They're telling me it might stop but it's been coming out thickly for days now.

Just when you think it can't get worse....

Anyway - tomorrow is another step in the right direction. I will sit in the sun soon and watch my pets in the garden.

Gigondas Mon 04-Feb-13 17:10:57

I had two wigs but tbh it was too hot to wear them a lot of the time. I am a
Big scarf fan - would tie them pirate or turban style .

Glad you got appt tomorrow.

Hnd - good things drying up but poor topsy as hasn't her dd only just had a bug.

smee Mon 04-Feb-13 17:28:28

Sun will be yours soon, AtoZ. Really good luck tomorrow. Hope they make up for their mistakes by speeding you through. smile

lots of luck tomorrow AtoZ - hope you find some nice headgear - hair loss must be very disheartening- am lucky that my chemo doesn't do that.
Poor topsy and her dd

Copthallresident Mon 04-Feb-13 18:14:02

gigs grin at baywatch / crimewatch, next week she'll probably be on the page with the grimy CCTV pictures of local crims. Also grin at lurex onesie, can we borrow it for next high tide??? DH has also departed for a couple of days, I actually rather enjoy the chance to achieve world domination control the remote and eat Brussell Sprouts. However different with little ones I know.

Topsy I didn't leave my bug on the trolley? sad Get better soon.

AtoZ Sorry about hair falling out. It actually wasn't as bad as I anticipated but if I hadn't anticipated it it might have been IYSWIM. Unattractive beanie hat was my solution of comfort, a nice fleecy one, even in bed blush. I don't know if I did hang on to a few wisps as it got to the point where I just shaved it all off. I had a very expensive full and luxurious wig which was a complete mistake as I do not have full and luxurious hair and it looked like a drag queen didn't look right. So most of the time I went for scarves, I liked tying it round and then twirling up the ends and winding them round the front again, sort of a turban. I did get some double looks going into hotels a couple of times, this was the months after 9/11!

Re. the appointment thing. Can you not get your GP to complain on your behalf, he is commissioning their services these days. They shouldn't be adding to the stress of treatment. Your GP should surely be giving you a hotline to see /speak to them anyway, if the hospital are going to refer it all back. I would go see the GP and discuss it all, and the fact that it is bringing you low. They should see doing what they can to relieve stress as part of the job, if not perhaps change GP? I did everything at the hospital but my GP still came to see me to check how it was going.

Waves to smee ned hnd kk mas pensometimes (love Celia too, can't decide between Celia, Victoria or Julie W for role model / fantasy best friend) and everyone else, madly trying to catch up but still off food, even chocolate, very worrying.....

And yes we will soon all be sitting in the sun looking at the bulbs, my irises and snowdrops are out grin

amberlight Mon 04-Feb-13 22:12:52

I was the queen of wigs and absolutely loved them. Beanies worked well though.

AtoZandbackagain Mon 04-Feb-13 23:17:00

Thank you for all the headwear tips. I prefer scarves to wigs and as I am already half way through the chemo regime my hair should start to grow back in early April anyway. I just don’t want a scarf that will make me look like I’m wearing it for religious reasons IYSWIM.

Yes, I ought to complain to my GP. It just makes me so mad that they have all the infrastructure, all the skills etc at the Centre but a total inability to bring together patients and practitioners effectively. They seem to have no understanding that people need to plan for appointments etc. The nurse in the Day Unit last time was positively hostile – I was quite shocked. She went all tutt-tutty when I told her the cannula hurt and she was forced to redo it. Hope it’s a different one tomorrow! It’s very disheartening.

I've just changed GPs and the new one is always fully booked - mainly because the crap one I recently ditched has gone sick. My new GP is good and knows his stuff but most of the time I have to deal with locums which is a pain but....

The brilliant GP I saw for the first time today has prescribed miracle-meds that have finally taken away all the gas I have been suffering from for 4 weeks now – enabling me to scoff profiteroles!! Why couldn’t the specialist oncology doctors have suggested that? DS is so much happier now too that he can see an improvement in me – even though he had to share the profiteroles! I really must keep remembering the effect that all this has on those closest to us – which is not always easy when you’re feeling so shite. But DS is being an absolute trooper – he’s amazing! But I tell him that everyday.

I love Celia Imrie – great actress. We had Jamie Oliver filming in our street a few years ago and it’s always quite a shock to see the ‘telly-folk’ in the flesh.

Sending everyone very best wishes – we’ll all get there!

NedSchneebly Tue 05-Feb-13 13:02:06

<creeps back on to the thread, casting chocolates, kettle chips and brew onto the trolley to make up for absence>

Morning all smile

Sorry for prolonged absence - have had a rather miserable week. Had a brain-explosion-too-much-to-take-in day on phonics course on Thursday and the cow county expert leading it was rude to me about how little I know angry Then had a bit of a meltdown on Friday - deputy head popped into my class mid-morning unannounced and stayed for about 10 minutes. By lunchtime I had convinced myself she was so horrified with what she had seen that I would be sacked by the end of the day. Anyway, I sobbed wildly at spoke to her and it was all fine, she was happy with what she'd seen, how could she help me, what support did I need etc, which obviously made me cry even more because she was being nice to me. . . Felt completely drained by Friday night.

Then had mad in-laws for the weekend. They frustrate me because they don't seem to want to engage with DS at all, even though he is bright and chatty and good company. MIL sits around with a cats bum face all the time, and then complains that she is bored. This is despite the fact that DS was playing on the computer, painting, building Lego planes, reading with me, going out on his scooter, any or all of which she could have taken part in. OK, maybe not the scooter bit She is an alcoholic, although we never talk about it, and but seems to be cutting down after a disastrous liver function test results - some GT something level is supposed to be about 50 - hers is nearly 900 shock SIL, who is a GP has told her in no uncertain terms that she is killing herself, so maybe something has sunk in, as she was much more restrained than normal over the weekend. Poor DH finds it really hard to cope with sad

They did take us here for sunday lunch, which was delicious. I had the smoked salmon starter then the aubergine and halloumi burger. Mmmmmmmmmmmmmm. . . . (kurri might be a good one to try when you're next down this way? smile)

Had counselling today - hard again, but he did say that he thought we were making progress. . .

Anyway, think I have caught up a bit. . .

MAS Sorry to read that you are struggling with diagnosis at the moment. Have you heard back from BCN? I am sure she will have some wisdom to share. Got everything crossed for your scan on Saturday. How's the meds going this week?

AtoZ another vote for Buffs here. try here Hope you are bearing up OK love xx

smee how's things with you? Bet you're busy as always. Take it easy, though, won't you? DS recovered from his bug? Hope so. We <touching wood desperately> have been bug-free this winter - I am convinced that the flu jab has something to do with it. . .

amber you always seem to be so busy doing clever and brilliant things. Hope you are still getting some time for yourself too <stern>

Pen thinking of you. Hope you're doing OK?

Sometimes ! great to see you, lovely. Sorry I missed you. Hope you are not too busy?

topsy a lady I know swore by Manual Lymphatic Drainage for lymphoedema - its a sort of massage, I think. here's some info about it Might be worth asking BCN if there is clinic you can go to. Hope all well in the topsy house x x

HND How's the dribbling? Hope you are making progress with your drains. Have they told you when they might think about taking them out? Hope you are managing to get some rest.

gig how's work going, lovely? I know how scary it is going back after so long - thinking of you lots. Hope your colleagues are being supportive.

kurri how's the Kindle? Hope you are loving it! I completely love mine - it means I can read complete trash without admitting it grin I got a waterproof pouch for mine recently, which is a revelation - now I can read it in the bath!

gracie did I already say YAY for your clear MRI? Not sure. . . anyway, better to do a second YAY than not put one on at all!

Lots of love to everyone. I promise I will try to be more efficient and keep up x x x x x x

PenisColada Tue 05-Feb-13 13:07:25

I am doing ok thanks. Feel much physically better but have a cold now and vp very croaky voice. People think my voice is due tot he surgery I think as I keep getting very pitying looks.
Will be glad when Thursday is over and I know what the 'treatment plan' they speak of entails.
My GP has signed me off until April and it is all over so at least I don't have to worry about work.
ned we are not a million miles from there !

NedSchneebly Tue 05-Feb-13 13:10:21

pen we're only about 10 minutes drive away! Have you ever been? It't lovely and food is always amazing smile Glad that you've got signed off. I felt such a relief when the doctor signed me off completely. Its so important not to have to worry about trivial things like work!

yum,that menu looks fab...MIL sounds a tricky one, hope she is heeding SIL's warning.
Meds going ok this week- the lower dose is a breeze !
No word from BCN yet, suspect she might be off for a few days but am sure she'll ring when she can.

KurriKurri Tue 05-Feb-13 14:09:11

Hi all, hope a good day is being had by all,

AtoZ hair falling out is a bit of a downer - makes it all seem 'real' somehow. - i quite like this site - I never wore a wig, but went for little soft cotton and jersey caps and scarves, - if you click on the list down the side of the page, they have quite a good selection of scarves, bandanas and hats, and they are fairly cheap compared to other sites. Hope your appointment today goes well.

Ned - MIL sounds like hard work, - mine could be a bit of a pain too, although her heart was in the right place, - she never really got over the fact that her DS had married a 'foreigner' grin

I'm glad the counselling is going well, - my DS had counselling and CBT a few years ago, and he said it was one of the hardest things he's done, but definitely worth it, - it takes courage to face your fears and problems smile xx

I love my Kindle - I've downloaded a whole lot of the free classics from amazon and am really enjoying them - Wilkie Collins, Jane Austen, etc. - and its really easy to read in bed too.

That menu looks fab - love the sound of the Halloumi and aubergine burger, - and the goats cheese starter, - but how will we decide which pudding to have - there are too many nice things? - unless we had two puddings each if course grin
Pen - my Mum lives in Dorset, so Ned and I met up for lunch when I was last down for a visit, - Ned is a lovely lovely woman, - but she will insist on forcing calorific puddings down my throat - obviously I try to choose a healthy salad, but she won't have it grin -- If you are nearby, it would be great if we could all three meet up - if you feel well enough of course smile

MAS - I love your pictures, and I have now worked out how to sponsor you, so am just going to do that in a minute.

Sometimes - lovely to see you <humps Sometimes' leg> - are you signing autographs now that you are mixing with the famous? - is there anyway you could wander up and down the street and 'accidently' intrude into the filming? grin Hope you are doing OK and not working too hard, - how is DD getting on?

Waving to everyone (does anyone hear from Sparkle? - if you are reading Sparkle sweetie, pop in and say hello - we miss you, but I know you are working now so time probably limited smile hope all is well with you and all the little sparkles)

PenisColada Tue 05-Feb-13 14:44:20

We are down in Poole so not far and we spend lots of time in our camper at various sites around Dorset. Definatly up for lunch when you are about !

NedSchneebly Tue 05-Feb-13 14:48:21

Yay! lunch with kurri *and pen! When you're feeling bit better *pen give me a shout if you fancy meeting up - I'm happy to drive to Poole if that's easier for you x x

NedSchneebly Tue 05-Feb-13 14:49:58

Oops, got a bit excited with my bolding there!

KurriKurri Tue 05-Feb-13 15:08:14

yay - meet up would be great - Pen I grew up just outside Wareham, and my Mum still lives there, I'll probably be down in a couple of months or so smile

Calm down Ned grin

PenisColada Tue 05-Feb-13 15:26:46

Excellent ! I take every opportunity to get out of town so am happy to drive. We live near the beach so it is nice here but I love the countryside.

I am now off work for at least 8 weeks and have a little bit of time on my hands so just let me know when is good for you. My thyroxine is stopping soon so sooner rather than later may be good before my metabolism grinds to a complete halt.

NedSchneebly Tue 05-Feb-13 15:55:10

pen have PMed you smile

back from haircut for T
BCN rang,or at least I rang her back- she was rational and sensible and listened to me wittering on...anyway,she said she'd speak to onc. etc

HerNextDoorAt21 Tue 05-Feb-13 17:59:37

Hi ned nice to her from you .... I don't have the suction drains in that I did after the op.... It's wound pouches that stick over the leaky bits of the wounds and catch the fluid and you can empty them .... They are a lot cleaner than soggy dressings and you can measure the fluid loss .... I had the massive swelling under my arm from the trauma of the LD flap surgery and its taking time to escape .... It has slowed down so fingers crossed !

Seeing the surgeon again tomorrow to make sure everything is going well.

Your MIL sounds like a barrel of laughs (not) !!! It must be so tiring to be grumpy don't you think ?

pen I agree it is a big relief to get signed off ..... I am signed off til end of march and to be reviewed then .... I think I will need a bit more time after that

Hope everyone else is ok today

jchocchip Wed 06-Feb-13 06:31:31

Morning all! Back in the land of the internet but soooo tired and I need to get up and go sad
Will put a brew on. What are you all doing today?

good morning jane Am drawing/trip to Waitrose/piano lesson for the boy.
Good news from Japan - they liked the drawings !

Gigondas Wed 06-Feb-13 10:13:18

Mornjng all - brew please.

Also one nocturnal baby for loan. Wakes at 2, shouts, plays , wakes her sister, throws up her milk, fills her nappy, tries to throw herself off bed while laughing then refuses to go back to sleep.

She is quite cheery this morning, mummy less so.

HerNextDoorAt21 Wed 06-Feb-13 10:24:17

Morning all. I am having a lazy morning then off to the hospital to deliver home made cupcakes to the ward I was imprisoned in staying in and then off to see the surgeon. topsy already sampled cupcake for breakfast !

mas glad they liked your artwork, I love your drawings myself

gigs I have done my time with mini kids ... Thank goodness my youngest is now 4 !!!

AtoZandbackagain Wed 06-Feb-13 12:47:43

Hi

They excelled themselves yesterday sad

Expected problems so got there very early. Just as well as my chemo hadn't been ordered. Luckily by getting there so early they could get (just) it delivered before the pharm closed.

Have now escalated it to formal complaint sad - but really don't want to or have the energy for it.

Vomitted bile all the way home, spent 2 hours on the loo with acute stomach cramps (constipation followed by diar) and spent the rest of the evening in bed. sad

I am going to have a very strong discussion with oncologist next week - this is not good enough.

Sorry about the moan.

that's terrible AtoZ shock

Gigondas Wed 06-Feb-13 13:07:18

Moan away- am shockangry for you.

Can I suggest aloe Vera juice for the confused stomach as seems to ease constipation and settle the runs. Chemo did this to me too. Get a flavoured one as tastes like the devils jockstrap (or put it in juice). It also helps protect mouth and stomach lining from the harshness of chemo.

Hnd- cakes sound lovely , hope appt goes well. I also have a 4 year old- she is a challenge of her own. Teacher been complaining she won't work alone (knows what to do, demonstrates it perfectly but just won't sit and do examples alone ). I keep reminding myself she is a young reception kid.

Sometimesiwonder Wed 06-Feb-13 15:05:19

Hi all

Have just had a madly embarrassing session with our IT chap - I ordered an iPad which his team got for me, and gave me. He's been on the phone saying he's annoyed with them, he told them that from past experience I won't have a clue what to do and so he's coming round personally to make sure it syncs with my other stuff because I'll never manage it. blush I truly am a technical no-hoper. Nice of him tho' grin Until he gets here (prob next week) I'm just using it to play Fruit Ninja hmm

Oh AtoZ that's appalling. So very angry on your behalf.

grin @ sometimes !

topsyturner Wed 06-Feb-13 20:45:57

Evening All

Wednesday Wine anyone ?
V decadent , but I just fancied a glass

AtoZ I am gobsmacked !
Does your hospital have a PALS association ?
I think it's time to make your complaint official .

Going out tomorrow with HND
We shall be Ladies What Lunch
And we are also squeezing in a visit to the wool shop . I am running out , and I am making scarves to go with my crochet hat collection .

Glad to hear this round of chemo is going better for you Mas

Anyone heard from Gracie ?

How are you Amber ?
Slowed down any yet ?

Any other apts this week ?

AtoZandbackagain Wed 06-Feb-13 23:11:34

Hi

Bit too queasy to post much at the mo <sorry>

Good luck for tomorrow Pen. Surgeon came to the ward to give me my results - I didn't even know that they performed these sorts of tests so was quite surprised to be told the detail blush <very green beginner at all this with a lot to learn>

You'll be fine.

Take care everyone.

pen results today ? lots of good luck...
Sorry about queasiness AtoZ hope it eases soon
Yes, this chemo round has been so much better - apart from the faff of remembering to take the things twice a day it's been a breeze- am very lucky I know.
Think that amber's ds is having an eye op today - so lots of good vibes to him

topsyturner Thu 07-Feb-13 08:33:24

Lots of luck to Mr Amber for today

topsyturner Thu 07-Feb-13 08:37:06

And lots of luck and hand holding to Pen for your results .

Hope you are feeling a little better today AtoZ .
I would say that my Oncs always said if I was feeling sick on chemo , then they weren't doing their job properly .
You should phone and ask them to either change your anti sickness meds or increase them .

I have a surplus of cinnamon raisin bagels on offer this morning .
Who wants coffee ?

amberlight Thu 07-Feb-13 08:52:20

Aye, FineLad is having his second eye operation today (crosslinking for keratoconus). I'm not sure how I am. Two days off work so not much rushing about, but I'm not my cheery self at the moment. Dreading having to spend hours inside the local hospital again - just brings back too many memories. Hey ho.
brew all round I think.

amberlight Thu 07-Feb-13 08:52:37

and yes please to a cinnamon bagel

AshokanFarewell Thu 07-Feb-13 11:02:10

Hello, I did a search to see if there was a support thread for people having chemo and saw other posts pointing to this thread, is it just for breast cancer? I'm having chemo for bowel cancer smile

KurriKurri Thu 07-Feb-13 11:12:41

Hi there Ashokan - No we are not just for breast cancer - you are very welcome, - lots of us on here have had or are currently having chemo - so ask anything you like and someone will probably be able to help.

Sorry you find yourself here though - it's the club no one wants to join! How are you getting on with your treatment? - have you had surgery too?

Anyway - jump in, park yourself on the sofa and ask anything you like, we always have virtual tea and cake on the go smile Oh and cinnamon bagels today I see - yes please topsy.

amber - loads of luck to FineLad for his op - you are bound to feel worried, hospitals do that to a person! - how long does he have to stay in hospital?

Loads of luck to Pen - will be thinking of you XX

AtoZ - hope you feel less queasy soon, - it's horrible I know <hugs>

topsy and HND -enjoy your lunch, eat a large pudding on behalf of those of us who have to diet grin

smee Thu 07-Feb-13 11:22:53

shock AtoZ. Definitely make a complaint. So many of us on here have had only good experiences of cancer care on NHS, that it just shows how awful yours has been all the more. Hope you're feeling less sick now. I got taken back in to have anti-sickness drugs pumped into me- worked, so worth pushing for xx

Pen, am thinking of you too. Hope no surprises. I know I felt far, far more able to cope with it all once I felt I knew it all, so hope you will too xx

Waving hello to Ashokan. Of course you're welcome. Where are you in your chemo? Hope not too far to go.

Amber hope Op goes okay. Totally get what you mean about going back to hospital. You take care now. Come back to let us distract you. smile

Will try and catch up, but brew on for all those who want one. smile

AshokanFarewell Thu 07-Feb-13 11:41:08

Hello KurriKurri and smee, thank you for the warm welcome.

I had my colon removed a couple of month ago and they got all the cancer out with the surgery so the chemo is just to be on the safe side. I'm having the XELOX regime which is also used for breast cancer apparently. I had my first infusion last week and then started capecitabine tablets. The tablets are meant to be for two weeks but I was told to stop yesterday as the side effects were too severe. This was my first cycle of eight. I am a bit frustrated to have had to stop so early on, but it does mean I should be feeling well for my birthday at the weekend smile hopefully the next cycle will be more successful!

I haven't managed to read the whole thread but I hope everyone is doing well today smile it's lovely to have found somewhere where people can understand the treatment. I don't have any children, I'm only 21, but I came on Mumsnet a couple months ago when I was having my eggs harvested and frozen before the chemo. None of my friends have been through anything similar and they are all off at uni or busy in their first jobs etc. so I don't really have anyone to talk to about it all!

smee Thu 07-Feb-13 11:56:09

Ashokan you're so young! Seems bloody unfair to have cancer at any age, but at 21. shock still, you've done brilliantly to get diagnosed and to find it operable. I know a lot of us have has to have chemo dosage reduced due to sever side effects - horrid and frustrating but v common. Take heart though, as my Onc said the extreme reaction showed the drugs were having an effect, which let's face it is the whole point! Natter on here as much as you want to. We all get how scary cancer is. How boring it is too. smile

amberlight Thu 07-Feb-13 11:57:03

At the hospital with dd now. Hi Ashok! Had loads of chemo. Not fun but it works well. Cuppa?

AshokanFarewell Thu 07-Feb-13 12:14:32

Yes it is rather boring isn't it! And scary too. I've been quite head-in-the-sand about it all. I don't know much about the cancer and the doctors have been quite good at not telling me anything about it. I feel like I need to stay positive and knowing more won't help me at the moment. There are a lot of unknowns too, so I'd rather wait until all my questions can be answered rather than having half the information. As well as the tumour I had a lot of polyps in my colon so they think I have a genetic condition. I'm seeing a genetic specialist about that soon.

What I really fancy is some cold milk straight from the fridge smile I'm not allowed cold drinks and I'm struggling as I hate hot drinks and don't find them refreshing. It's hard to stay hydrated!

That's a very positive way of looking at the side effects and has really cheered me up, thank you smee.

amberlight I hope your dd is okay.

Hello Ashokan - welcome- am also shocked at one so young is having to go through this (horrid for anyone but so unfair particularly for a young woman) I am on capecitabine for metastatic bc - think this is cycle 6 - I had my doseage stopped and reduced due to horrid side effects (swollen red hands/peeling feet) - now on 25% less (18 tablets a day of the small ones) Am sure they'll get the balance right for you - it's trial and error really.
Lots of good vibes to ds amber - sending you some virtual chocolate cookies

Copthallresident Thu 07-Feb-13 12:28:23

Hi all smile

Ashokan Have experience of Bowel Cancer in someone close. Glad they have got it all in time, the surgery is the most effective part of the treatment. Don't worry about the change to the treatment, the doseages are very crude, based on a rough calculation of your mass, but every body is different, and bad side effects mean the dose was too much. My first dose of chemo (for breast cancer) wiped out my white blood cells completely and my doseage was reduced at every treatment, and treatments delayed but I am still here 11 years later so it doesn't mean it didn't work. It does mean any Cancer cells got blasted too! Sorry you have it so young, I can well understand how difficult it is when everyone is getting on with the possibilities in life and you have to get this horrible thing behind you first. Do they not have a young people's support group at the hospital? I understood Bowel Cancer in very young people is often genetic? My friend had the genetic type and was advised that 40 was very old to have developed it, it usually hits much younger.

pen Hope it was as good a session with the surgeon as it could be, and you are reassured about things.

AtoZ It is truly terrible, from the crap administration to the lack of care for you physically and mentally, certainly at odds with my experience as well. You should complain formally and have a very strong discussions with whoever's ear you can get. I hope the sickness improves. So was this 3 of 4?

Hope it is going well for everyone else today? Lovely sunny morning here

Copthallresident Thu 07-Feb-13 12:36:49

MAS Glad the new dose is proving kind.

and Ashokan I posted before I saw your post. Yes, friend hadn't realised that there was actually a strong genetic history as her mother had died at 40 of Cancer but it was the 1970s and the emphasis had been on the Cancer that had killed her which must have been a secondary Cancer in her stomach. No one had discussed the other symptoms. She knew her Grandmother had died of it but she had been in her 80s. I hope you get some answers soon. Her son has already had a couple of polyps removed, one when he was 10 and he is just 18 now. However you know that they have removed it and the chemo is just insurance and that is good. Catching it in time is the important thing.

KurriKurri Thu 07-Feb-13 12:40:06

Bless you Ashokan - you are so young, darling, to go through this - cancer is a total indiscriminate bastard. It must be hard to deal with something that your friends will obviously have very little experience of. I wonder if there are any young women's groups around you - there often are for breast cancer, perhaps there are wider reaching groups too, - it can really help to talk with other people going through it, and young women will be dealing with all the considerations you have regarding fertility etc.

I think you are wise to just know what you want to atm, - I felt like that too (I had breast cancer) it all gets a bit information overload otherwise. Its annoying when they have to cut down or limit a treatment - but very very common I think - I know loads of us on this thread have had our doses halved, or stopped etc. but Smee is absolutely right - if you are feeling lousy - it's working grin

Good luck with your treatment, and stick around - you can explain technology and 'young people speak' to some of us old fogies grin

PenisColada Thu 07-Feb-13 12:45:16

Welcome ashoken I have thyroid cancer and the ladies here have been so great and welcoming. Even though the types of cancer are different a lot of what we experience is the same.

I am just off to the hospital. Will report back later .

Gigondas Thu 07-Feb-13 13:01:47

Good luck pen. Amber hope that ds ok with op and you are getting plenty of tea.

Ashko welcome but sorry you are here. I am a non bc person but have done chemo (have soft tissue sarcoma).

And agree with smee that chemo side effect are a good sign.

Have you asked your hospital if there is a specialist youth team? I say that as I know there is one at my hospital as they specialise in certain cancer that are all too common in people your age so know how tough it is and alienating.

But stick around as you can educate us and eat lots of virtual cake.

I am also of the need to know base of cancer smile.

AshokanFarewell Thu 07-Feb-13 13:41:43

I have a social worker from CLIC Sargent and she mentioned meet ups for young people locally but they don't happen very often I don't think. They are also for teenagers and up to 25 year olds, but I don't think many over 18 go so I feel like I'd probably be a bit too old. If they ever get round to arranging one I will try and go along though. Apart from that I don't think there is much locally. I'm too tired to do anything at the moment anyway. I'm just lying in bed!

Sorry to hear so many have this horrible disease sad

Good luck at the hospital PenisColada.

Gigondas Thu 07-Feb-13 15:00:56

I am lieing in bed meant to be working. Have you got a chemo obsession yet? I think smee learned to play the piano, I was obsessed with cooking and watching montalbano.

Sometimesiwonder Thu 07-Feb-13 15:02:47

Just wanted to say good luck to Pen, and hello to Ashokan. smile

You are very, very young Ashokan, it must be tough. Chemo is a hard ride, but do-able, so stay with us for a moan and a laugh. And cake. And wine (you can have mine, I'm off it for now)

Gigondas Thu 07-Feb-13 15:04:38

Off wine - why ?

AtoZandbackagain Thu 07-Feb-13 15:50:46

Hi

Was very ill overnight - couldn't sleep due to stomach cramps. Saw a GP today and said I can't go on like this blush. Asked for change of meds, asked for syringe driver etc but GP says hospital needs to review the meds and GP rang the consultant.

Next thing the hospital ask me to come in immediately for a blood test. I have no-one to take me into the city centre to the hospital, cannot drive and don't feel like vomming ~(and other end stuff) in a taxi (scared of being kicked out of the cab). Try to explain this to hospital and end up have tests at the GPs. I can barely climb ,y stairs let alone get into a city centre hosp.

The hospital really doesn't understand at all. There attitude is if you're ill ring the triage and the triage tell you to go to your GP to get some additional/changed meds. However my GP says they are not an oncologist and can't prescribe specialist ant-ems - so we go around in circles.

So waiting for the blood test results and that will probab;y be the end of it until I am well enough to struggle in to see them next week and the whole sorry saga can start again in the next cycle. They just treat the here and now they don't seem to care at all.

This is destroying me.

smee Thu 07-Feb-13 16:03:10

AtoZ can you call the Unit and speak to one of the Oncology doctors? By which I mean insist. I know I had a v different experience to you, but am guessing you still got the 24 hour hotline number, which seems to be given to all on chemo? Your Gp's right as they haven't much clue on meds, but you clearly need urgent care. Not sure of your situation, but have you someone who could phone and be assertive for you? Sounds like you need an advocate.

Gig, is this you back at work proper? How is it? I did learn to play piano but cooked lots too. Weird as I had horrible mouth problems and a lot of nausea. confused

Ashoken, worth giving the group a go. I tried my local Bc group, but so much depends on who's there. I wasn't lucky with mine, but it's worth a go.

Hope Pen's okay and back soon safe.

Just bought a pound of cherries from the market. mmm smile

Gigondas Thu 07-Feb-13 16:40:08

Atoz

Yes partly work and partly ou smee. Am hmm about one of my bosses as has

Gigondas Thu 07-Feb-13 16:43:37

Hit send too soon

Atoz- pull the cancer card with cabbies . I found that they were lovely to me and carried stuff etc so don't let that put you off. You do need that 24 hour number as its not a Gp job. Wishing you better .

Smee as I was saying have made appt to call one of bosses 3 times (she is meant to be my line manager and response for my welfare). 3 times has not made it - only left 1 voice mail so I am a bit eye roll about it all .

Yum cherries smile

Talking of support groups, I am meant to be doing a 6 week life after treatment thing covering food, fitness etc as of next week so will see how it goes .

AtoZ this all sounds hellish = really hope you get some help soon
Am totally streaming with cold (thanks dh and T) - extreme nose running-yuck.

topsyturner Thu 07-Feb-13 17:54:42

Hi Ashokan and welcome
I too am a fellow young poster <out right lie , I'm 43>

My chemo obsession was teaching myself to knit and crochet .
If anyone wants any hats btw , I have made millions !
Place an order with me in whatever colour you want .
It will stop me eating my own considerable body weight in crisps grin

Back from a trip out with HND
We went to tkmaxx and I bought a lovely cardy (am convincing no one that I'm a youngster am I ? What with the knitting and the cardigan buying)
Nearly bought a purse too , but talked myself out of it .

Then we went for Thai lunch , then the wool shop .

Think HND might be lying down now ...

Gigs you have to play some kind of cancer wind up with your line manager !
That'll teach her to dodge your calls .

<waves at Sometimes>

Glad the finelad did well in surgery Amber .

It's dark outside , I think it may be wine o clock ...

topsyturner Thu 07-Feb-13 17:57:22

AtoZ it's complete bollocks that your hospital are feeding you about going to your GP for anti sickness meds .
That is all dealt with by your oncology team . The GP will have very little to do with you from now on .

Do you have a Bolshy friend or family member that could go to bat for you ?
It's a sad but true fact that sometimes the one who yells the loudest , gets the best treatment !

topsyturner Thu 07-Feb-13 17:58:22

Cherries Smee ?
Are they glacé ones to go in cocktails ???
grin

KurriKurri Thu 07-Feb-13 18:16:51

topsy - stop trying to pretend you are young - it won't wash, - we all know that 'lovely cardi' is code for surgical stockings and double gusseted big pants.

I am knitting a tunic top - its in double knitting an dis taking ages - I wish I'd never started it - but it's to late to stop now grin

Ashokan - definitely worth trying the group - you never know, you might meet someone you really get along with. Lying in bed is exactly what you should be doing atm - I found chemo fatigue quite overwhelming at times, but as Sometimes says, it is doable you just really have to do what your body tells you, - and if it is saying 'lie down and sleep' then go with that, and plan to do something you enjoy on your better days during your cycle.

AtoZ - angry on your behalf, it sounds as if you are being really messed around sad

Course sounds interesting Gig - I hope its helpful for you.

Hope Pen is doing OK.

PenisColada Thu 07-Feb-13 18:17:23

Good news so far. The cancer was 1.8mm and contained with a good clear margin.
No results yet for the lymph nodes but she did say a couple looked suspicious. The treatment plan would not change if lymph nodes affected or not though.

Radioactive iodine treatment booked for 19th march. I went into the isolation room to looks and it will be quite strange. There is a barrier across the entrance and staff have to stay behin it when you are in it. They also said to bring clothes that can be thrown away. I don't have any clothes I want to throw away !

I now have an oncologist as well as a surgeon. Lucky me.
I will see the oncologist in a couple of weeks.
The thyroxine I am on is short acting so only need 2 weeks without it before the treatment. I was expecting 6 weeks so I am relieved about that.

KurriKurri Thu 07-Feb-13 18:18:09

Ooh cherries 'tinker, tailor, soldier, sailor, ....... microbiologist' - bugger why do I always get five stones?

AshokanFarewell Thu 07-Feb-13 18:28:46

AtoZ that sounds awful! I've had similar problems but I have called the oncology ward at the local hospital (that's the number I was given on a card) and they've been really helpful.

Could you phone your oncologist's clinic directly? The ward weren't quite sure how to deal with me so they said I'd need to see my oncologist and then the nurse from his clinic phoned me and talked me through everything.

I hope you feel better soon and get some decent medical help soon, this is hard enough without being treated badly sad

Gig I had high hopes of learning Spanish, knitting lots of things, making wonderful healthy meals, taking up yogalates, reading all the books I have... At the moment I am mostly watching episodes of Grey's Anatomy on my iPad and sleeping. The only exercise I get is running to the loo all hours of the day and night.

Hi topsy I love knitting and I wear a lot of cardigans blush

Ooh glacé cherries, I loooove them! No wine for me as no alcohol allowed for a year after my surgery. I shall have a hot choccie though brew

Gigondas Thu 07-Feb-13 18:29:34

That's good about the 1 week period and that you got margins.

How long are you in isolation? You can Mn can't you so we can keep you virtually company.

KurriKurri Thu 07-Feb-13 18:36:38

x-posted Pen - that sounds like good news, clear margins is excellent.
I think I posted before about having had RI treatment and offering tips! grin - Have just realised that what I had is obviously not the extensive inpatient treatment you will be having (mine was just a one off dose, and then stay in isolation at home for two weeks) so I probably will be no help whatsoever blush

ashokan - If you like knitting and cardis you will fit right in here grin

AshokanFarewell Thu 07-Feb-13 18:38:32

I'm glad it's good news PenisColada smile sorry, we cross posted.

AshokanFarewell Thu 07-Feb-13 18:47:44

I'm going to post this here because I can't bring myself to talk to anyone about it in real life. I think my boyfriend of nearly seven years is about to break up with me sad things haven't been exactly easy since my diagnosis and he's struggled with it all but I really thought we could work things out. I'm staying with my parents so he could have a break but he's invited me over to talk and is being quite weird about it. I cannot believe how much this stupid bastard illness is taking over my life.

KurriKurri Thu 07-Feb-13 19:14:37

Oh sweetheart sad that is so hard for you. - I think some people really struggle to cope when their partner has cancer, - it somehow scares and panics them. It is so weird but some people just seem to want to keep their distance from you, and I think it must be based in fear and not knowing how to behave in an alien situation.

Feeling angry is a totally normal and reasonable reaction to this illness, it is a bastard and it does affect you in such a big way not just physically. I hope you manage to sort things out with your boyfriend, imo he is being pretty inconsiderate worrying you with this when you are having to cope with treatment (but I have DD about the same age as you, so I do tend to get protective smile)

I know it seems like a long way ahead, and it feels as if you have a lot of treatment to go through, but you will get there and get your life back - we call it the 'new normal' on this thread - it's not the same as it was before, but it can be just as good. xx

Gigondas Thu 07-Feb-13 19:58:14

That is rotten ashokan- I can't top what wise kurri says but am here to offer hand holding wine and support.

And kurri is right- there will be more life after this and if your fears are justified, there are decent men out there.

This is a bastard disease.

AshokanFarewell Thu 07-Feb-13 19:59:31

Thank you KurriKurri. Sorry to turn up on the thread and start filling it up with my drama! I'm having a bit of a bad day, I'm afraid.

New normal sounds good. I feel like I just need a big pause button so I can have a few moments to catch my breath. I seem to be lurching from disaster to disaster at the moment.

A lot of my friends have just stopped talking to me. I sent a couple of them an email when I got diagnosed as they are far away at uni but they just never replied. You're right I think it's fear and not knowing what to say.

It is lovely to talk to people who get what it's like smile I'm going to try and catch up with the whole thread so I have a better idea of what's going on with everyone!

KurriKurri Thu 07-Feb-13 20:05:00

You can say whatever you like on here Ashokan - it's a safe place to say stuff you can't always talk about in real life, - and we've all had our bad days, so don't worry - we've been there and know what it's like smile

You tend to find out who your real friends are - I think a lot of us on here have lost friends since diagnosis - some people just can't handle it, but real good friends will stick by you and be there for you.

Gigondas Thu 07-Feb-13 20:10:16

That is what we are here for so don't feel bad about needing to rant.

Hmm I think we all can relate to the people who drop you (I think boss at work is partly reluctant to speak as doesn't know what to say).

The most amusing example is someone who isn't a close friend (I met via here) who is always banging On about charity (incl Macmillan) on fb but didn't respond and ignored me for months after I said I had cancer. I always have a wry smile now about how she can't actually behave charitably despite her much vaunted fundraising. Then again this is a woman who takes pictures of her kids homework to post on fb!

I was dx a year ago (in fact it's a year this weekend since my op to remove my tumour ) about 3 weeks after my dd2 was born. I have 2 dd, am 40 and am meant to be starting back at work part time this week . Had surgery, radio and chemo last year and as I have mets , am on 3 month scan as will likely need more treatment.

Lonecatwithkitten Thu 07-Feb-13 20:20:15

Good evening Ladies and sorry to hear that some of you are having a pretty tough time I hope things get a bit better soon.
I had my core biopsy today after all the messing about over which hospital I was going to. Pretty sorry tonight. Even with all my medical knowledge I wasn't expecting such a big hole and definately not one that needed to be sutured closed. Looking forward to feeling like I have been kicked by a horse tomorrow as the consultant described it.
He is away for three weeks now his secretary will e-mail him the results he will then ask her to phone if it's okay. If not he explain when he sees me in clinic in three weeks. I have to admit to wishing that he had just said you will get the results in three weeks time as whilst I know that if I get a call I will be delighted. I also know that if I don't get a call not only will I know, but I will have no plan. At least if everything was waiting for clinic I would get the news and the plan together.

topsyturner Thu 07-Feb-13 20:22:17

That's good news Pen
Hopefully you'll get the all clear for your nodes too !

topsyturner Thu 07-Feb-13 20:28:19

I think a little catch up post is in order for our newbies .

I'm Topsy
I'm 43
Diagnosed with primary breast cancer in may 2011 , later diagnosed with secondary lung mets .
Had mastectomy and node clearance , followed by chemo and radiotherapy

Had breast reduction on other side last summer and developed awful post op infection which morphed into pneumonia and 2 weeks in hospital .

But the great thing was the infection kicked started my immune system and put my lung mets into remission !

So I am semi cancer clear at the moment . I have CTs every 3 months to check , but other than that I am treatment free .

amberlight Thu 07-Feb-13 20:28:51

Lonecat, aye. The waiting for results is arrgh. Do join us on the Paranoia Box. We can budge up a bit.

Ashokan, I'm nearly 50, and was diagnosed with breast cancer two years ago. Had chemotherapy (8 lots, of mixed sorts), lumpectomy, radiotherapy, then herceptin wonderdrug for four months until my onc took me off it before it killed me (it likes most people; it hated me). On six monthly checkups now for five years to see if it's stayed gone. So I potter about on here conveying what microscopic wisdom I can offer/drinking the brew/enjoying the company and comfort of others who know what it's like to be in the 'life sort of on hold somehow for five years' bit.

topsyturner Thu 07-Feb-13 20:30:34

Shit Lone
That's a bugger of a way to get results !!!
He could have thought that one through a bit better hmm

Keep up on the painkillers for the next couple of days and be kind to yourself .

smee Thu 07-Feb-13 20:31:10

Yay for you Pen! Clear margins v good. How are you feeling? Am guessing wiped out. Rest up and allow yourself to feel you're on the homeward straight, as you most definitely are. smile

Ashokan, sorry about your boyfriend. Does sound like he can't cope but still not an excuse. I lost a couple of v good friends. Still find it weird, but have stopped minding now. Grey's Anatomy's v good idea - I did back to back West Wing. You'll have more energy for other things down the line. As we're updating I was diagnosed nearly 3 years ago now, had mastectomy, chemo, rads and am on Tamoxifen. Have had preventative mastectomy too.

Good to hear fine boy's okay Amber. Hope you're not too wiped out by it all.

Sounds like young thing Topsy's wiped HND out. Am thinking TKMax a step too far for a woman not too long out of surgery <tuts at Topsy>grin

Gig that woman sounds useless. Just ignore her when she finally calls you and see how she likes it.

Cherries were proper fruit ones. £1 for a pound and we got 4 punnets of raspberries for £1 too. Amazingly they're delicious. smile

topsyturner Thu 07-Feb-13 20:32:49

Ashokan I can't believe boyf would be such an Atrocious Cunt (to coin one of my fave mn phrases) as to break up with you whilst you have cancer !!!

have fainted clean away at the thought of no wine for a year though

smee Thu 07-Feb-13 20:34:36

x-posted Lone. Oouch - sod and a half to have that all hanging over you, but let us distract you smile

Gigondas Thu 07-Feb-13 20:35:22

Lone that is just awful!! Hang around here if you need and hope bruising is bearable.

AshokanFarewell Thu 07-Feb-13 20:36:01

Thank you KurriKurri

Oh Gigondas how awful to have been diagnosed when your daughter was such a tiny baby! It must have been so hard to go through all the treatment with two little ones.

I often find the people who make the most fuss about being nice or good or whatever are actually the ones who are least nice! It is such a shame that so many people let their friends down so badly though. I have to say I don't think I'd know what to say really if someone else was diagnosed with cancer but surely anything is better than ignoring them confused amused by the photos of the homework, is that to show off?!

Lonecatwithkitten that sounds painful, I hope it heals up quickly and that you have some good painkillers! Hopefully you'll get a phonecall but totally get what you mean. It would be so much better to have the same plan either way, I think sometimes the doctors forget how scary all of this is because they deal with it every day.

Gigondas Thu 07-Feb-13 20:54:32

Don't think there is ever a good time to be dx . Also I think any age with kids can be tricky. Not much can do about it as I am sure we would all rather not be in this club.

Whilst I am thinking about chemo obsession, I got into Howard's way (maybe before your time)- kurri I have some more DVDs .

AshokanFarewell Thu 07-Feb-13 20:56:24

I'm such a slow typer, cross-posted with lots of people! smile he isn't usually an atrocious cunt, it is completely out of character. Who knows, maybe he will sort it out.

I'm not a fan of wine but I will miss my gin and lemonade!

Thank you all for the catch up posts.

PenisColada Thu 07-Feb-13 21:02:32

I am quite new here and was dx with papillary thyroid cancer just before Christmas. Surgery 2 weeks ago. Radioactive iodine treatment in a few weeks then a lifetime of scans to check for any return.

I have not had a drink since I got 'the call' from the hospital as I have just not felt like it. I did feel a pang when I drove past our local pub earlier though.

topsyturner Thu 07-Feb-13 21:17:54

I think all the menfolk go through an Atrocious Cunt stage !
It's all part of the dealing with this lovely disease wink
My local Macmillan centre offers counselling for partners of people with cancer , so it can't just be our menfolk !

Gracie
Are you out there ?
It's been a while petal , did you not get your tinternet sorted ?

KurriKurri Thu 07-Feb-13 22:04:15

Ooh more Howard's way Gig - lovely - I was getting withdrawal symptoms from lack of Ken grin

Catch up info from me - I am 53 (but about 3o in my head grin), I was dx in 20O8 with breast cancer, - had a mastectomy, followed by node removal op, six months of chemo, radiotherapy, herceptin for a year and am now on tamoxifen. I'm hoping for a breast reconstruction in the near future - apparently they can cut off my massive belly and fashion it into a new booby - who knew?

LoneCat - that sounds very painful sad - and the means of getting you your results seems a bit of a shambles - they don't make life easy do they?

Anyone else watching Silent Witness? - I can't get into this series - it's not the same without Harry.

topsyturner Thu 07-Feb-13 22:15:57

I miss Harry kk
I do like a Young Man to perv over ..
hence my current obsession with Lewis and the Lucious Laurence Fox

Can't quite come to terms with Leo having a love life shock

AtoZandbackagain Thu 07-Feb-13 22:30:36

Pen Brilliant news!- I am so glad. I had clear margins too.

Hi Ash - pleased to meet you.

Thank you everyone for your advice and concern - finally starting to feel a bit better this evening.

argh- can't keep up ! am very cold ridden so not up to much typing..
hooray for pen though -clear margins is great and let's hope for clear nodes too.
Ashokan rotten about boyfriend sad - am sorry you have so much to deal with.
Lone hope biopsy wound not too ouchy tomorrow- quite understand how you feel about how you'll get the results
To catch up - I'm horribly old and was diagnosed in 2009 with invasive bc,lumpectomy and radiotherapy. Was diagnosed with lung mets in September last year and am on continuous chemotherapy - first scan since diagnosis on Saturday. Righto,bed time...xxx

topsyturner Thu 07-Feb-13 23:00:32

Am watching a program on E4
I tuned in as it was named for our catch phrase - The New Normal

It's not about cancer , it's about a gay couple having a baby with a surrogate .
Was funny ...

topsyturner Thu 07-Feb-13 23:01:38

Mas
Think you may need a hot toddy .
Rum , honey , lemon , sugar , splash of hot water !

KurriKurri Thu 07-Feb-13 23:11:49

MAS - keep an eye on your temp. just in case smile - hope you feel better tomorrow.

topsy - I don't know how I will manage in a couple of weeks when Lewis , and Silent Witness, and Death in Paradise all finish - DD said to me 'You'll never be able to cope without your daily fix of people being murdered' grin

topsyturner Thu 07-Feb-13 23:20:46

They are finishing ?
All at the same time ???
Whhhhhhhyyyyyyyy ?????????
<wonders what they will be replaced with ?>

KurriKurri Thu 07-Feb-13 23:25:33

More or less topsy, maybe a few more Death in Paradise's to go. Did you know they aren't making any more Lewis (Laurence Fox and kevin Whately want to go off and do other things apparently - selfish gits).

I think there are going to be some more of Endeavour (the one about young Morse that they did a pilot of last year). Laurence Fox had better be in something else soon preferably without his clothes on <drools slightly in a pervy old lady way> grin

Copthallresident Thu 07-Feb-13 23:39:59

Ashokan Most men are cunts obviously especially for those of us who have been around / are mutton dressed as lamb, in cosy woolly crocheted cardigans, naming no names wink , <de bobbles armpits>

However Cancer is hard to deal with for those who love and care for us. It is really difficult to watch someone you know go through these treatments. It would be silly to say it is worse, but at least we can focus on what we have to do and get on with it whereas when it is someone you love you have to look on helpless, and desperate to make it better / go away. Maybe your boyfriend is struggling a bit with that. I had a support group of similar women in our late thirties / early forties with young children who had Breast Cancer and our husbands were mostly basket cases. It was them on the anti depressants. It must be so much harder when you are younger.

On the other hand 20/21 is always a crucial time for long term relationships, I broke up with my long term boyfriend (who stubbornly refuses to appear on Facebook or Friends Reunited and admit he loved me all along confused), and lovely son I never had who had been going out with DD, and eating my dinners, for 5 years broke up with DD the day before her first year exams started, completely breaking her and my heart (I mean I had been feeding him for five years, no one thinks about the mother's feelings wink). He really was nice until then but I could happily throttle him for that, since he has turned into a player who apparently thinks he is like the one in "One Day" A great disappointment to me, if you are reading this, son...............

I am really sorry you have all these friends who don't offer you support but I do remember that when my next boyfriend's father died (don't worry you are not going to hear about ALL of them) when we were in our early 20s no one knew how to respond, no Facebook/ email then but we actually saw people cross the road to avoid the moment they didn't know how to handle.

However the real friends don't let that stop them. I felt like a bull in a china shop when my friend was diagnosed, if only I had known then what I know now, but I think between all my "you are so strong" blush I know OK and pea and lettuce soup we did laugh a lot, but I know that there is no substitute for speaking to people who are there / have been there . So feel free to share all.

Warning: Some wine may have been involved in this post..................

topsyturner Thu 07-Feb-13 23:47:04

Yes kk seen the ad for Endeavour , looking forward to that .
If you google image Laurence Fox , the sexiest images are of him smoking !
Shocking but he looks hot

topsyturner Thu 07-Feb-13 23:48:36

Not that I spend all evening googling images of Laurence Fox .
yes I do

topsyturner Thu 07-Feb-13 23:54:27

Copthall my sister called me the other day to inform me that her son / my nephew , had just got "married" in a school RE lesson (Ealing CofE school)
It was a full on ceremony (as part of curriculum) with vows and bridesmaids etc .
He's 13 !
First thing I said was "is she good enough ?" ...

So I feel your hatred for exes !

topsyturner Thu 07-Feb-13 23:55:59

And wine may have been involved in all this evenings posts ...

Copthallresident Fri 08-Feb-13 00:05:54

Not missing Harry too much because I want to be Emila Fox, and solve crimes and bring Taliban and evil mercenaries to knees in Afghanistan, though still sad cannot be Eve in Waking the Dead with whole virtual room in which to solve crimes. Really looking forward to Endeavour coming back, we could have saved Morse eh?

topsyturner Fri 08-Feb-13 00:12:58

I too would love to be Emilia
She has a great wardrobe dept too !

Copthallresident Fri 08-Feb-13 00:20:00

Bed I think for tipsy and Copthall grin

topsyturner Fri 08-Feb-13 00:22:50

Wise as ever Copthall

Night night x

Copthallresident Fri 08-Feb-13 00:43:52

Night Night xxxxx

jchocchip Fri 08-Feb-13 06:26:39

Morning all just read through but IT will be late to work if I reply to all so I'm just going to say hello and welcome to ashocan sorry to hear of your dx and bf trouble but hang around here for handholding and cake.
Since there has been a catchup: I'm 46, 18 months from my dx with breast cancer had lumpectomy, radiotheraphy and I'm back at work. Last day at work in my old job today. New job Monday. I hang around here for the fbs and because I still sometimes get a cancer wobble. 18 month check up appt came through yesterday...
Lone forget about the phonecall (which they may forget to do anyway) and gear up for clinic in 3 weeks. Waiting for results is horrible, why would they think that would help?
Waves to everyone else. Have a lovely day. I'll try not to cry today but had a wobble yesterday when took lable off locker. Chose that locker with two dear friends, one who is no longer with us - bastard disease dx was too late for her. She was never well enough to start chemo sad
Arrgh must get up still got reports to write...

jchocchip Fri 08-Feb-13 06:29:41

I don't just hang around for the fbs, you are all lovely and I'd miss you all if I didn't pop in .

oh jane -ends of things are always hard,but you have new job ahead which will be fab I'm sure.
Took my temp last night as I was so hot but all ok -just appallingly sniffly - rubbed Vick all over and put Karvol on my hanky but slept pretty well so can't be that bad.
T has pupil review day today,so in for a short appointment with tutor then a day to himself- which I hope means revision. Am having hair cut.
Have a good day jane and love to all,especially those having a rotten time

KurriKurri Fri 08-Feb-13 10:11:54

<hugs> for jane - leavings and goodbyes are the hardest things, you are entitled to a wobble. - But once you get started in your new job you will settle in and be happy there too - you'll make more good memories and good friends smile

MAS - take things easy, sounds as if your cold is a nasty one, -Dr Kurri prescribes a dressing gown day, with DVDs and chocolate (quick before lent grin)
I will start you of with a brew

Copt - you speak sense as always, - I could cheerfully have throttled my DS's ex too - she dumped him when she went to university (after receiving and keeping various gifts he sent her to help her settle in angry) - she was a stunningly beautiful girl, - half Singaporean, -and he was besotted by her, and was very depressed for a long time afterwards (he has bi polar, and was really struggling with it at that time) I felt very cross with her for ages, but on reflection he might well have been high maintenance in those days, she was spreading her wings, - these things happen. And now he is engaged to a fabulous girl who I love as if she is my own. I'm not woo, but I do believe what will be will be <channels inner Doris Day>

There are a lot of Foxes on Tv atm aren't there - I saw an adaptation of Edwin Drood at Christmas which had another young Fox in it (Laurence's cousin I think - can't remember his name - possibly Freddie??) Emilia is lovely, and I really like her in SW - good strong female character for a change.

Topsy I know you google pictures on Laurence Fox because when I tried to it said 'sorry site is busy, topsy is online' grin and yes he does look sexy when he is smoking, although I also want to tell him to stop, it's a filthy habit (and he would listen to me because I look exactly like Billie Piper and Julie Christie

I mostly get my murder fix from watching ITV3 grin

i was supposed to go to keep fit this morning, but Dh had to leave early and I didn't get up in time blush so I'm pootling about on here and drinking coffee instead, which is exercise for my fingers and mouth so all good!

waving to everyone xx

your prospective DIL sounds lovely and much nicer than previous one- I do believe in things that are meant to be - dh was meant for me I'm sure -we are so alike in lots of ways and 'get' each others peculiarities grin
Alas no snuggling indoors for me as must go to hairdressers and later to post office to send work but some fresh air and exercise will do me good.
I like Laurence Fox's drawly voice.
Righto, must crack on - ds is up but in his room,probably not revising.

Copthallresident Fri 08-Feb-13 13:37:34

KK Nice to hear your son is on the happy ever after smile with lovely DIL to be. "What will be, will be" is probably my favourite of my "Oh God I'm sounding like my mother" sayings to DDs grin. DD hasn't had a serious relationship since and I do worry she is putting up a barrier to protect herself (he compounded his sins by then going out with one of her closest friends so for a while there she lost both of them) but in the meantime she leads her poor flatmates around like lovesick puppies.... When she rings and says "We had a great day looking around Highgate Cemetery, you just know that four boys would be staying in playing X box not be visiting Highgate Cemetery if they had not been told to --by bossyboots--grin

Ashokan Hope you don't mind drunken rantings? blush and hope you are going to have better day today.

My favourite story of charitable person is of trophy wife with "perfect" house and "perfect" family who was "class mum" and held class coffee morning to discuss fund raising for school on day my hair chose to fall out, in great clumps, fortunately I had tied it back, slide was only thing that kept it all from falling on her perfectly plumped cushions and sofa. She could not but betray that she felt my hair was behaving in a deeply inappropriate way, messing up her living room (bet she was at it with the pet hair attachment for her Dyson the minute I left), in fact having pale ill looking person looking nauseous at the sight of her croissants and making everyone feel uncomfortable was messing up her perfect coffee morning. So I just love that it was her that ran off with another woman a couple of years later grin Yes the whole "perfect" life was a complete sham, and underneath was a real unhappy person just waiting for a chance to escape and have a real life........

Pen Glad your session with surgeon was a relief. My lump, I hate the t word, was 1.7cms, so are we in exclusive club? One f***ing lymph node completely involved though, without which I might have escaped chemo and just had Tamoxifen but no point crying over spilt milk <sounds like mother again>

Lone Sounds like they skewered you rather than took a biopsy! Hope it isn't too sore. We all know about the wait for results, feel free to chuck whatever is going on in your worry box into the paranoia box.

Actually we have been doing our statistics.... Diagnosed with Breast Cancer August 2001, six months chemo and five years Tamoxifen. I'm 55 23, like Topsy and look like Julie Christie (surprisingly common for those with Breast Cancer), honest.

No sign of topsy Are you there? You can get out of bed now. I am actually nursing a headache, must be something I eat or too much googling of Foxes smoking

Copthallresident Fri 08-Feb-13 13:40:11

Mas Hope you are home and tucked up warmly, and cold gets better.

topsyturner Fri 08-Feb-13 13:40:35

That's who I look like !
Billie Piper ....
<goes back to sleep>

topsyturner Fri 08-Feb-13 13:43:27

X posted Copthall
I actually vomited this morning !
Think I must have a virus ...

topsyturner Fri 08-Feb-13 13:46:27

And some git hacked my eBay account last night and bought me the aqua mumsnet scarf I've been lusting after ... grin

oh topsy you do cheer us up grin
Am back from hair cut (oh and highlights-except they are dark lights) - lots of nice layers,yet keeping the length (sorry if that seems insensitive to those with hairloss)

Lonecatwithkitten Fri 08-Feb-13 13:53:46

Well today I do look and feel like I have been kicked by a horse (yes I have been in the past). I was sooooo tired last night I went to bed before Silent Witness so will watch them back to back tonight.
Copt you said dump my worries in the box. Well my biggest fear is that DD is left with only her fuckwit father to not look after her. She is a 9 year who feels she needs to be in charge there as no one else seems to be.

KurriKurri Fri 08-Feb-13 14:01:50

topsy that's shameful - report to the police a once and link to scarf grin

Ha at messing up woman's sofa with your hair going south Copt grin - serves her right.

I once made a total idiot of myself - I was very weak during chemo, lost a lot of muscle power in my legs, but I was going to the library one day and a toddler was kicking a ball around, he kicked it towards me so I kicked it back to him. Unfortunately the effort made my legs totally collapse under me and I sank to the ground. Toddler's mother comes over very concerned, by this time Dh has caught up with me and starts trying to haul me up, but I can't push with my legs at all so am just a dead weight, also I am laughing hysterically by this time. Eventually another chap comes up and he and Dh manage to winch me to my feet. DH says 'why do you always do these ridiculous things K?' grin

KurriKurri Fri 08-Feb-13 14:09:32

Hair sounds lovely MAS smile layers will suit you.

Lone - I think fears for our children are probably one of the scariest aspects of this business. But a nurse when I was in hospital once, told me to try to deal with what you know, don't get ahead of yourself and worry about the don't knows. You are very far from being down and out - if you have cancer, it is treatable, hang on to that thought, and try not to think about the 'what ifs' which will probably never happen. But you are bruised and battered, and it's hard not to get down about things, so massive hugs and sympathy xx

amberlight Fri 08-Feb-13 14:18:51

grin re scarfs, football and sofa-hair incidents.

Lonecat, from the prognostic charts, you've only slightly more chance of being hit by David Beckham being fired out of a cannon in the High Street tomorrow than dying of breast cancer, from where you are at the moment. If it's an 'oo not sure' sort of lump, assuming it's the 1 in 10 that is indeed cancer, only 1 in 10 of those puts up a fight against the modern treatments. And, of those, 80% are now manageable as a long-term condition instead of a 'oo eck, I'm a gonner' scenario. In fact, even metastatic cancer can be completely cured in a reasonable percentage of cases, which has amazed the profession (who were all politely ignoring the long term survivors and not noticing it had indeed b*ggred off). Not any consolation for those who really do get the snorky sort, of course. But the odds are very good.
Interesting newer research shows very clearly that the odds of it going away are vastly improved if people have a good social network, take vitamin D supplements and various others that have shown very strong anti-proliferation effects in the labs...and treat cancer as a minor nuisance. That attitude, rather than the 'stiff upper lip - it's awful but bear it!' attitude seems to convince the body to do just that - and it does. Very odd. Naturally, scientists, being a skeptical bunch, didn't believe it was true. So they did a to of meta-analyses. It is.
Thus...if it is indeed News ahead of you, socialise for all your worth, take the extra stuff, and treat it like it's of no great importance. You will thus survive very nicely.
Meantime, have a brew
I run a Professional Practice with nine of us, so had to do the whole employer-on-chemotherapy thing, by the way. It was doable.

smee Fri 08-Feb-13 14:20:34

Lone, how's your daughter with it all atm? I was quite lucky in a way, as my son was just 5 when I was diagnosed. Far easier to keep the worry from them when they're so tiny. I'd bet we've all had those fears. Know I have and still do on bad days of paranoia, but odds are still good, so I'd bet your DD will be bossing you around in your dotage. smile

Topsy, g'ah at sickness. Hacked E-bay, but they still bought you something you want? confused

grin at Kurri and her wonky legs.

MAS, hair sounds lovely. smile

Copt, good story! I like your drunken ramblings, so don't stop. smile

Am hoping Ned's survived another week of work. Is it half term for you next week, Ned, or week after? Keep staggering on. x smile

Nowt to tell here. Failing to do work as ever. Hope AtoZ's okay. You too, Pen and Ashokan and Amber, hope the patient's recovering well. Not sure if HND has recovered from her day out with Topsy either. brew anyone? I think AC (atrocious cunt) should be a new thread acronym. grin

amberlight Fri 08-Feb-13 14:29:20

Doing alright here thanks. FineLad's eye pain is fairly ok and I'm making him rest. Well, as much as any small mum can make a national level rugby prop rest...; grin

AshokanFarewell Fri 08-Feb-13 14:40:48

Well, I'm feeling a little foolish now as it seems he isn't planning to break up with me at all. I completely misread the situation. Things are still rather dire but not quite at breaking point yet I don't think. We are going to talk over the weekend! smile

Thank you all for your wise words last night, drunken or otherwise. I found them all very helpful.

jane I hope your last day is going well.

I am feeling a million times more positive today. I was in a lot of pain and was told it was just my body adjusting after the surgery but I went to the GP and it turns out I have an infection so when that's cleared up I will feel much better! smile

amberlight have you read Anticancer by David Servan-Schreiber? That had lots about how important support networks are. Also various diet things and meditation that can help. I read it after my surgery and it helped me feel like I was back in control.

copt that lady sounds horrible, hardly your fault about your hair! I suppose she must have been incredibly miserable living a lie though.

I don't like the new Silent Witness so much, Jack is quite annoying and also they seem to be cramming so much into each plot now, just for the sake of it.

Ashokan definitely meditation - I can recommend that,as can gig I think.
I love amber's stats - they are always so sensible - be comforted by her words.

horrid news- my friend's husband died this week from cancer -she is devastated as her parents both died late last year within days of one another - how can this happen ? I am so sad for her -he was a very lovely man and they have 3 daughters,the oldest is just 18 - poor,poor family sad

digerd Fri 08-Feb-13 18:34:47

How old were her parents? When very old sometimes this happens. So sorry about your friend's husband. Had he been through chemo?

parents both elderly- 80 s I think and yes,husband had been having chemo on and off -trying all kinds of treatment. Awful for them.

Copthallresident Fri 08-Feb-13 19:02:47

MAS That is so sad especially for your friend and her daughters having to cope with all that loss sad

lone my first thought was that you have a valid worry but only in the context of the possibility you will be hit by a bus tomorrow but Amberlight beat me to it. It may be a good thing though that your mind gets focused in that way. After losing two friends from our friendship group and two more of us getting this bugger we all sat down and made sure our wishes for our children were set down and safeguarded legally. Should I get hit by a bus tomorrow DH will have two of my more Valkyrie like friends breathing down his neck supporting him. He is not a fuckwit but he does tend to leave the discipline and emotional side of things to me. Sadly the arrangements were invoked as well, when the stress of losing her husband threw my friend into an epic Brittney Spears- a -like cycle of bipolar mania and depression and we ended up having to get her sectioned. You never know what lies around the corner. And actually one of my closest friends did lose her Mum when she was 10 and had a father who was not a fuckwit but damaged by his wartime experiences so that she had to become the parent, and it did make her very strong. One of the consolations when we were fighting to safeguard my mad friend's sons (she got up to some very colourful shenanigans, moved the sky TV Repairman in and lets just say the chandeliers were creaking) was that my Mum, a retired teacher, pointed us to research that shows that children who experience that sort of trauma go on to achieve great things, really great things, like becoming Prime Ministers and things.

KK Yes chemo does make you into an embarassment grin

Ash I think SW jumped the shark quite a long time ago but now I have suspended disbelief I still enjoy seeing a strong female character. Also they film it around here, often in Richmond Park. Goon dog once nearly brought their lights down!

smee Do hope you don't think I was drunk when writing down story about the uptight lesbian at lunchtime Not yet hitting the bottle that early!! <looks at clock> wine

Cheers everyone!

topsyturner Fri 08-Feb-13 21:02:11

Mas that is so sad for your friend .
Shite things happen to good people sometimes !

topsyturner Fri 08-Feb-13 21:03:49

On a semi lighter note ...
Closer inspection of my eBay account reveals I have also placed a bid on a faux fur leopard print coat .
Sauvignon is the devils work !!!