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Dp has a lump (nodule) on thyroid, I'm so worried it could be malignant

(179 Posts)
Twosugarsplease Fri 11-Jan-13 10:12:16

Dp has seen GP said it could be a nodule, ultra sound confirmed this on Monday.
Went back to hospital yesterday, expecting the biopsy to be done, and hoping for a bit of relief from worry, I was sat in waiting room with our little ds, then my dp comes out and said consultant basically asked him to have ultra sound and biopsy and date will follow, dp has had an ultra sound already,so yesterday was so frustrating, only thing positive was he asked if bloods had been done, which they have, and consultant said 'good' when my dp said they were fine.

Nodule is 33 millimetres in size, with a smaller one at the bottom, I'm so terrified that it could be malignant sad

Dp is fine, not really stressing at all, and telling me not to, we've googled, and he has read there is a 5 % chance nodules can be malignant.
I have constantly got this knot in my stomach and can barely think of anything else, I'm just so worried.

Is anyone a GP or in the know of thyroid nodules ? Thankyou.

Twosugarsplease Fri 11-Jan-13 10:16:27

Forgot to add that he has had this for a few yrs, causes no pain, isn't affecting his vocal cord at all, and only ever notices it when he is shaving. Just happened to mention it to GP during a visit.

digerd Fri 11-Jan-13 16:25:01

Thyroid nodules can be benign or malignant, and only a biopsy can determine that, I know nothing about the 33mm - but seems large.
Even if it is malignant, I know of many who have had this and the cancer is a long time contained in the Thyroid and does not spread quickly.
The usual treatment is to have the whole of the Thyroid out, and to take the hormone Thyroxine in tablet form every day.
Good luck with the Biopsy.

Twosugarsplease Fri 11-Jan-13 17:35:24

Thankyou Digerd I was also worrying about if it could spread. He has had it for some time, he's actually beginning to think he has always had it ! Like the dr said benign nodules can be left alone as long as not causing discomfort. Surely if it had been malignant for sometime, his health would be suffering by now, or even here at all shock ?

digerd Fri 11-Jan-13 18:11:18

I only know that Thyroid cancer does not spread to vital organs readily, like so many do. And is one of the most survivable cancers.
The blood test will have been to see if the Thyroid hormone secretion has been affected - overactive or underactive.- which would make your DH feel unwell
.

mrsbacchus Fri 11-Jan-13 18:35:47

I had a nodule on my thyroid 12 years ago. It did turn out to be malignant but was encapsulated so hadn't spread. Only needed 2/3 of thyroid removed. I take thyroxine daily to make up the shortfall. Other than regular blood tests it causes me no further problems. Hopefully your husband is one of the vast majority that are non malignant but even if it is lots can be treated successfully. Good luck to you both.

Twosugarsplease Fri 11-Jan-13 19:36:55

Thankyou for your post mrsbacchus
Like digerd said, cancer can be contained in the thyroid and does not spread quickly, that is good to know, so if this turns out to be nasty, they could remove some or all of thyroid and be done ?

mrsbacchus Fri 11-Jan-13 19:49:05

That's it exactly. Think I remember consultant saying I might need a dose of radiotherapy but apparently mine was so well contained that even that wasn't necessary.

Twosugarsplease Fri 11-Jan-13 20:02:17

It must have been a terrible time for you though sad
It's the waiting and wondering, we have had some good news financially, to get us out of a little hole, but it just doesn't matter, I will never winge or moan about anything again, this is by far the scariest thing I've been through, my dp has said to stop worrying, it's him with the lump, I know, but we're one, I just want this horrible knot in my stomach to bugger off sad

digerd Fri 11-Jan-13 20:36:16

I had 2 cancers diagnosed but all IN Situ, which means caught early and not got to the spreading stage. One aged 37 and the other at 41, which was very dangerous and caught just in time.
My attitude was actually " a miss is as good as a mile". No radium or chemo needed.
However, my DH died of a very nasty, aggressive form of cancer, despite chemo and radium treatment. I am now 10 years older than he was and he was 6 years older than me. So, I try to count my blessings, as the saying goes.
I do understand how you feel with your DH, but his chances are good.
Before his biopsy, DH was told that tumours in his particular place were 90% malignant, and only 10% were benign, and he hadn't felt well for some years.

Rikalaily Fri 11-Jan-13 20:51:02

I have one of a similar size. I had an ultrasound which found it was very vascular so I was sent for a biopsy which is done under ultrasound (might be why his appointment is for an untrasound & biopsy as they are done together). The biopsy was fine, a little uncomfortable as it's done with no anaesthetic and was very quick. Wasn't warned they my thyroid would do into spasm though which lasted until the next day and it felt a little bruised for a couple of days. My results took a long while to come through, a muck up at the hospital so waited 7 weeks. Turned out to be a colloid nodule which is harmless. I have it scanned now and then to make sure it's not grown etc.

I researched alot before my biopsy and was bricking it until I found out that thyroid cancer is extremely treatable and easily treatable compared to most cancers. A friend of mines husband had it and was given the all clear within 12 months after treatment, he had his thyroid removed.

Please don't panic, odds are it's a nodule and he's fine, if it's malignant the odds are he'll be ok after treatment smile

digerd Sat 12-Jan-13 07:55:20

My SILs BILs, all 4 had Thyroid cancer, had the Thyroid removed and are fine , years on.
A biopsy under Ultra Sound is the best method to get an accurate diagnosis of a Thyroid lump.
And if DH does have the whole Thyroid removed, the op is painless afterwards.
I had a sub-total Thyroidectomy for Hyperthyroidism < overactive>in 1974.
Couldn't move the neck much while skin was healing, but otherwise no pain at all.

narmada Sat 12-Jan-13 14:48:38

The vast majority of thyroid nodules are benign. Ultrasound is usual with biopsy, it is to ensure needle goes in right place. Honestky, I really wouldn't worry at this stage and thyroid cancer, as others have said, is v treatable

mrsvandertramp Sat 12-Jan-13 15:02:14

I have one 40 mm nodule and one smaller nodule (which is harmless apparently) on my thyroid. I get the results of the biopsy on the larger nodule this week. I know the chances are that the nodule is benign, but I was wondering if anyone here has had a 'harmless' nodule removed as I'm told this is a possibility if it's uncomfortable or you feel self-conscious about it?

Rikalaily Sat 12-Jan-13 16:43:48

Mine presses against my throat and I've choked 4 times now while eating and drinking, told the GP and they said nothing about removal. I'm going to be going back though because I'm also constantly clearing my throat and mucus builds up in my tube because of it.

Twosugarsplease Sat 12-Jan-13 17:08:10

mrsvandertramp thankyou for posting, haven't got date yet for biopsy, I'm hoping is thread stays active, I would really appreciate to know how it went for you. I think my dp is decided if all well to leave his alone.
rikakaily that must be so uncomfortable for you, I would imagine they will ask if you want it removed.

Ilovefluffysheep Mon 14-Jan-13 08:12:01

Will be watching this thread.

I have a lump on the front of my neck. Moves when swallowing and looks golf ball sized. Have had it a month now.

Had blood tests for thyroid, full blood count and liver. All normal.

Got an ultrasound on Wednesday. Am terrified, have convinced myself it's cancer.

Am a single mum with 2 teenagers, so no one really at home to talk o.

digerd Mon 14-Jan-13 09:10:03

I was only 25 when my Thyroid gland swelled to a big bulge, due to Hyperthyroidism and it was called a Goitre. It never occurred to me at that age it might be cancer, even though my DMs sister had died 4 years before of kidney/bowel cancer.
Even after treatment with tablets and was told I was in remission - knew that word was used in cancer- I knew it wasn,t as they never mentioned that word.
OP - not got your date for the biopsy yet? They can't think it is dangerous.
Smiled at DH wanting to leave it there and not have any op if benign.

digerd Mon 14-Jan-13 09:13:32

RIKA
Choking 4 times - you must be treated. Can't believe your GP didn't do bother about it.

Rikalaily Mon 14-Jan-13 11:04:04

I'm due to have it scanned again soon, I have it done when they scan my liver (have an enlarged blood vessel in my liver that they are keeping an eye on) so will speak to the GP about it again. It's mainly drinks I'm choking on, I swallow normally but then it just goes down the wrong way all of a sudden, food is getting stuck nearly every meal too, so I have to have small bites and drinks to get it down. Last time it was scanned they said it had shrunk slightly, doesn't feel like it has, in fact the nodule feels bigger and is more visible on the outside too.

Twosugarsplease Mon 14-Jan-13 11:32:20

ilovefluffysheep hi, sorry your going through this too.
My dh's moves when swallowing, and according to GP at first check, that's a good thing, it's also about the same size, although he has had it for some time.
Please come back to tell how it went for you. I found the knowledge of the MN'rs and support enormously comforting.
digerd letter from hospital arrived just after dh left for work, so will find out the date when he gets home, then my tummy will start somersaults all over again. Thankyou so much for staying with the thread folks ! smile

digerd Mon 14-Jan-13 11:45:47

Oh, Twosugars, the sooner you know the better, I would have opened it myself as soon as it arrived.
Please let us know what the date of the biopsy is and if he was told anything then
My DH had to wait, but had been warned the chances were 90% malignant, only due to where it was,and we both went to see the specialist for the results when they were through.
Keep busy until DH comes home. The sooner the biopsy the better.

digerd Mon 14-Jan-13 12:00:50

Ilove
Cancer doesn't usually grow that big in a month.
Good luck on Wednesday.

Ilovefluffysheep Mon 14-Jan-13 12:05:30

Thank you. Will definitely update after my scan on Wednesday.

Its the not knowing is the worst, its completely stressing me out. Even if it is the worst, I think I will be a lot better when I know, as whatever it is I can then tackle and deal with it.

Not knowing is making me not sleep, and its just going round and round my head.

Good luck for your DH Twosugars.

Twosugarsplease Mon 14-Jan-13 14:28:43

Dh came home for coffee, he's in and out a lot (driving instructor) and the letter is only to tell him biopsy and ultra sound is being arranged !
The last appointment was to tell us just that, now we have it in a letter.
I just want things moving like ilove said, it's the not knowing.
digerd I should have mentioned before now, that I am so sorry you lost your husband. You have certainly had more than your share of illness/cancer in your family. That is just awful.
I'd just like to say thanks for your contributions to this thread, they are all so much appreciated thanks
Keep with us though...grin
Can we now call you DRdigerd !!!

Twosugarsplease Mon 14-Jan-13 14:35:18

Thanks ilove
Yes keep in touch with us, will be looking out for you, stay positive, so much digerd said, is easing my mind for dh.

digerd Tue 15-Jan-13 16:35:49

OP
Oh no, still no date, how frustrating for you!
When you said the lump moved and the DR said that was a good sign, reminded me of my black melanoma, I had removed over 20 years ago. And when I had a lump in my breast examined. The latter could be moved so was told it was just a fribrous cyst. The former which was malignant was rooted firmly in my arm, and after he removed it, he showed it to me and it had a long tailed root, which had fortunately not invaded the bone < have skinny arms>. Actually, I'm amazed myself how calm I was about it all, as when he saw it he said " That's got to come out right now", which he did 10 mins later after the local .

Just so sad my DH could not be saved.
Wish I didn't know so much, which is only from experience.
I have no knowledge of movable cysts on the Thyroid though, as had no nodules myself - just a massive goitre!!!

Twosugarsplease Tue 15-Jan-13 21:08:21

My gosh digerd you have certainly been through it !
No date yet no, nothing today either.
What is a goitre ? Btw, initially I thought some sort of cyst.
I hope you are happy and well now, you have been through so much shock

Twosugarsplease Tue 15-Jan-13 21:13:51

ilovefluffysheep and mrsvander good luck this week.

Ilovefluffysheep Tue 15-Jan-13 23:17:27

Thank you. Can't sleep, so nervous about tomorrow. Luckily I have a busy morning at work to keep me distracted - got to charge a suspect with 18 offences through an interpreter! By the time I do that and get back to the office will be time for the scan.

Twosugarsplease Wed 16-Jan-13 10:33:42

Oooh ! ilovefluffy you have a super exciting job !
Yes I'm sure that will take your mind off things, and you won't be one to be messed with this morning wink
Hoping you get some relief from worrying. Please let us know how you got on, later if you can.

mrsvandertramp Wed 16-Jan-13 10:42:39

Thank you Twosugars, I got the results yesterday - benign thank goodness and the doctor was lovely and we discussed what might happen in the future (lump will probably stay as it is, or possibly disappear by itself OR could have radioactive iodine to shrink it OR could have it removed) So, am very relieved. Good luck to everyone else.

digerd Wed 16-Jan-13 12:38:46

OP

A Goitre is when the whole of the Thyroid gland swells up. had it "cut down to size" < sub-total removal> to make it stop acting up, so to speak - years ago. It was producing way too much Thyroxine which sent everything into overdrive.< Overactive Thyroid/Hyperthyroidism
Yes I was fine afterwards, thank you .
Hope you get the date for the biopsy soon.

Twosugarsplease Wed 16-Jan-13 12:51:46

mrsvander that is excellent ! smile

Ilovefluffysheep Wed 16-Jan-13 18:34:41

Great news mrsvandertramp.

Well, mine is apparently a thyroglossal cyst (so basically a big lump filled with fluid!). I may need surgery to remove it, but DR wouldn't discuss anything like that as he said that wasn't his job, he was just there to do the scan. He sends a report to my GP and I discuss it with them.

Surgery or not, I am highly relieved to a) actually find out what it is today and b) relieved it isn't something more serious which is what I had worked myself up to.

Will get my bladder surgery done next week, then can sort this out after that!

Twosugarsplease - I am a DC. Sounds more exciting than it is! Was pretty chuffed to get someone charged with 18 offences though, although court will probably still give a really crappy sentence!

Twosugarsplease Wed 16-Jan-13 19:31:28

ilovefluffy firstly, fantastic news ! Yippee smile
I bet you feel amazing, what a huge relief for you.

Secondly...well done on a good days work ! Now that's another topic for me , don't get me started, just been having a discussion with my ds and dh, funnily enough, on our own crazy ways to just rid us of horrible criminals once and for all, hoping your day pays off at a lengthy sentencing. Rant over... Moving on grin

Well hope you have a lovely relaxing evening, with a big weight off your shoulders, so happy for you smile

Ilovefluffysheep Wed 16-Jan-13 20:12:28

Thanks you twosugars. Am pretty chuffed, even the thought of surgery doesn't put a downer on it. However, after 5 bladder ops (and 6th next week!) plus 4 other ops, I'm kind of used to surgery, and probably a bit more laid back about it than I should be!

Twosugarsplease Fri 18-Jan-13 18:19:14

Dh has his biopsy on 30 th jan, so hope it goes quickly and I don't think about it as much as last time !

Turningneedssleep Fri 18-Jan-13 19:33:29

Hello Twosugars I have found your thread! Glad you have got a date, hope you manage with the wait. Keep popping over to the DH with cancer support thread, we all know about waiting - we have a name for it, PAT (pre appointment tension) so it you see us talking about PAT visiting thats what we are on about wink . Will be thinking of you on the 30th and hope all goes well.

Twosugarsplease Fri 18-Jan-13 20:08:57

Hi turning thanks for popping in brew
Oh how I wish we could all be in same room, holding hands.
Like I have said all along, dh is fine with this, I know he knows there is a small chance it could be something, but his attitude is to get it out and get on with it, I'm just scared it is nasty and the weeks, months ahead are going to be a nightmare of worry and what ifs.
We have just been out throwing snowballs, we're really fine, give me another week or so and I'll be back to a nervous wreck.
Thankyou for pointing out pat,I'll remember that. smile

digerd Fri 18-Jan-13 21:13:59

Op
The Drs obviously do not think it is urgent, so keep that in mind - despite me wishing it was sooner for you both, as the wait for the results is the important bit.
Smiled at you and DH playing snow balls today. Love his attitude , <I know you worry enough for both of you as we women do>
When is he having the CT?

digerd Fri 18-Jan-13 21:15:52

OP sorry. Got you mixed up with another OP. Your DH does not need one.

exoticfruits Fri 18-Jan-13 21:25:10

I agree - the doctor can't think it urgent. I had some for years- just had a check up every year- then they started to grow and so it was decided to remove them- it was fine.

MrsShrek3 Fri 18-Jan-13 21:28:02

We've bumped into each other a few time elsewhere wink - I think I might also have mentioned that DH had something sort of similar. His was the "nasty" version. As hideous as this whole journey is, the cure rate is absolutely incredible if it turns out to be something unpleasant. DHs was initially diagnosed (probably correctly at the time) as Hashimotos thyroiditis but after several needle biopsies and a surgical one was found several weeks later to be NHL (an extranodal tumour on his thyroid). With rates nearing 90-100% remission expected, this stuff is very very treatable. Not easy, but fantastic prognosis. Hang in there, and PAT is an utter bitch... we had her round for the last two weeks and I'm thoroughly sick of her grin I really hope you're not joining us for real, but I'll hold a hand too when you need it.

strawberrie Fri 18-Jan-13 21:34:23

Hello, just noticed this thread and thought my experience might be reassuring for you. I had a biopsy last May for a nodule which, rather embarrassingly, was only picked up when my GP noticed the swelling.

the biopsy procedure itself was really straightforward, not painful just very minor discomfort for literally seconds. The consultant who did the scan/ultrasound said he was generally unconcerned by cysts which are 75%fluid or more. Mine he thought was about two thirds fluid, one third solid.

When the results came back, there were some anomalies in the sample and so the thyroid consultant decided to remove one side of the thyroid gland in order to completely rule out malignancy.

The operation was very straightforward, I stayed one night in hospital because the anaesthetic made me pretty groggy, otherwise I would have been allowed home the same day. Recovery was better than I expected, just some discomfort in my neck and tenderness for a week or so. In the end they did a full biopsy of the nodule and decided it was just weird, not cancerous. So no more treatment required, and because I still have half my thyroid gland, I haven't needed thyroxine treatment.

It really helped me knowing what the plan would be in the event of malignancy; standard treatment for thyroid cancer is removal of the gland, followed up by radioactive iodine treatment to blast off any lurking cells. This roughlyspeaking involves a few days in hospital after drinking a radioactive solution. Nothing like as onerous as radiotherapy/chemo. There is some really good info on the charity website Butterfly - I know you are scared of the worst case scenario but I wonder whether reading up on the facts may actually help to reassure you.

best wishes to you both, hope the 30th rolls round quickly for you.

PenisColada Fri 18-Jan-13 21:34:59

Well I am having thyroidectomy on Thursday as my nodule is almost certainly malignant.

It is very treatable and 99.9 % of people get completely cured so even if it is cancer it can be sorted out.

I got a call 4 days after my biopsy to come and discuss results so knew it would not be good news as it was so quick. The hospital have been fab and you get a nurse specialist you can contact directly with any queries.

I am frightened of the surgery though.

strawberrie Fri 18-Jan-13 21:42:06

Sorry to hear that Penis. The surgery is honestly not bad, I am a pretty big wuss but it was ok. My biggest issue was the fact that i had some decent pain relief meds post op on an empty stomach, I felt pretty nauseous; but they have good meds for that too wink

digerd Fri 18-Jan-13 21:44:34

There are Mners who have had a total Thyroidectomty for cancer or Hyperthyroidism. I had a subtotal for the latter, and had no pain at all.

digerd Fri 18-Jan-13 21:46:22

Thyroidectomy - removal of Thyroid

PenisColada Fri 18-Jan-13 21:52:58

Ah thanks for the reassurances. I am not good with pain.

The radioactive iodine treatment does not scare me as much as the op. the emotional impact has been pretty tough though. I feel 100% well and going to have surgery does not seem logical.

It will be nice to know for sure instead of being almost certain if it is malignant or not but they are treating me as if it is so they must be pretty sure sad

Ilovefluffysheep Fri 18-Jan-13 22:54:33

Sorry to hear our news penis.

MrsShrek3 Fri 18-Jan-13 23:18:55

hugs PC. If it is malignant or in anyway best to get rid of the fucker. Being fit and well beforehand is obv in your favour and you are more likely to make a speedy recovery. good luck, will be thinking of you x

digerd Sat 19-Jan-13 07:09:16

Mine wasn't cancer, but the Hyerthyroidism made me very ill, and was almost skelitonised - wasted away- and damaged my cardiovascular system. I was so ill they couldn't do the op for 6 months, so was medicated and then 3 weeks in hospital bedrest with 3xdaily iodine in milk to rest the Thyroid, before the op. Still here though, many years later< grin face>

Twosugarsplease Sat 19-Jan-13 17:39:44

Hi digerd yes my dh is fine, something like this really does make you realise what's important.
I have purposely tried not to think of what the actual day will be, until nearer the time, just enjoying not thinking if it as intensely.
It's all very snowy here so looks like dh won't be working tomorrow, so drinkers tonight too grin

peniscolada rooting for you on Thursday <hugs>

Twosugarsplease Sat 19-Jan-13 17:40:58

Drinkies * blush

MrsShrek3 Sat 19-Jan-13 20:23:26

wine wine
sounds like you've already had a bit wink

Twosugarsplease Sat 19-Jan-13 21:42:39

Holding your hand thursday penis (your hand I say ! )
Please get back to us <hugs>

MrsShrek3 Sat 19-Jan-13 22:05:23

Twosugars, that sounds so, well, wrong grin

Twosugarsplease Sun 20-Jan-13 16:21:25

Yes it does mrsshrek I apologise PM
How are you all today ?

digerd Mon 21-Jan-13 10:02:33

OP
My DD had her first Mammogram screening and got a letter today calling her back. She just phoned me and the appt is tomorrow - so soon! Shocked and worried.

Twosugarsplease Mon 21-Jan-13 15:25:18

Oh digerd when was the mammogram ?
Passing hugs and support to you this time >>>>>
I remember many years ago my mum had a mammogram, then biopsy and I remember it was Xmas eve we went along with her for the results, she was ok.
That is my experience of the worry of breast cancer, and a tiny bit of support.
Will be rooting for you and your daughter.

digerd Mon 21-Jan-13 18:44:27

OP
Thanks.
Her mammogram was a week ago last Monday, and she got the letter Saturday, with the recall appt for Tuesday. She can't feel any lumps, so we are both shocked. They mentioned she may have ultra sound and/or biopsy.
Her appt is at 2pm.
Your DH still waiting for his appt?

Twosugarsplease Mon 21-Jan-13 19:32:05

Dh's app is 30 th jan, he is fine as always, the knot will return in my stomachany day now sad
It sounds like possibly an ultra sound, perhaps as there were no lumps and bumps to feel,just could be making sure, let's hope so.
Was the mammogram just routine digerd ?
Wishing you a good nights rest and sending hugs fir you both tomorrow.

digerd Mon 21-Jan-13 20:08:27

OP
Yes. They have now reduced the lowest age for screening, and DD is in it. It was her first ever screening. My brain has turned fuddled and tummy full of butterflies/hornets. But at least tomorrow we might have some good news , if she doesn't need a biopsy. Just so shocked at the "urgent" appt.

Twosugarsplease Mon 21-Jan-13 20:40:07

Your bound to be dig ! But maybe that's procedure to ultra sound after, I know with my mum they were actually investigating a lump, so was quite a time.
I so hope all is ok, but this waiting can be unbearable.
You have been a tower if strength sending your knowledge and support my way and here you are in the same situation !
I'm sure you will no
More tomorrow, and fingers crossed get some relief, did they not say why they were calling your daughter back?
They certainly know how to scare the crap out of us! Or even just to say this is ''just routine'' would be a comfort.

digerd Mon 21-Jan-13 21:28:01

OP
No, that's the first thing I asked DD, didn't they say why? She said no. But it's obvious something on the mammo needs further investigation.
Just taken my little dog out in the snow - only had her 2 weeks. She's 2 years old, very small and sweet. The fresh air and her enjoyment did me good.
Signing off now and having an early night, I'll be awake early tomorrow.

Ilovefluffysheep Mon 21-Jan-13 22:06:15

Sorry to hear this digerd. Fingers crossed for tomorrow. X

digerd Tue 22-Jan-13 09:10:10

Sugars
I slept really well last night, but at 6.30 when I got up I was shocked to see the overnight temperature outside had been -7 s o everything well and truly iced up.
DD had to go into work this morning< unkind boss wouldn't let her off> and the hospital is quite near her work, but she wants me to go with her, so is driving back to pick me up, but my cul-de-sac is too dangerous, so I have to walk to the side road to meet her. The end of my road pavement is uncleared so hope I don't slip and fall before I get to her car .
Feeling calmer about the appt, as she can't feel a lump anywhere.

Twosugarsplease Tue 22-Jan-13 15:22:07

Hi dig just popping in on the off chance your around. Hope all went well today, and that you got to hospital safely in this weather. We have snow everywhere here in north east has snowed for days, I have dh at home though as roads too dangerous for his pupils smile Hope to catch you soon.

digerd Tue 22-Jan-13 19:01:22

Not been back long. DD had yet another mammogram, and we were shown the bit that was worrying them and is a cluster of calcified cells. The DR felt her breast for any lumps, but there are none and she could not feel the calcified cluster of cells either, but know they are there.
DD had a terrible ordeal with a 15 minute 5 biopsies in that specific area, all under the mammo again to be sure the biopsies were taken from the correct area as could not be felt.
She could hardly breath in the position she was in and almost passed out/fainted during the last one.

The chances of them being malignant are only 20 %, and even then they would be just taken out - not the whole breast taken off. So not an aggressive malignancy. But 80 % chance it is a benign cluster.
She will be given the results next week by phone on Wednesday.
Never heard of that kind of breast cancer that has no lump in the early stages.

Twosugarsplease Tue 22-Jan-13 19:26:13

Hi dig here you go..brew...this is a bit of relief, and seemed explained to you very well.
I know you still don't know for sure, but it's something positive to hold onto. I have heard of clusters that seem to be 'all it was' when I have heard people talking of this, it seems to be that it is a relief to them.
Sounds like an ordeal though, the biopsies today, crikey !
Well I hope you can rest a little easier tonight, and of corse your daughter too, a nice walk with the dig will do you good, I can't walk ours he is too big, loves the snow though !
What age do they send for routine mammo's ?
I'm 40 this year, and I do not want another thing to worry about anytime soon.

Twosugarsplease Tue 22-Jan-13 19:33:24

Correction to spelling course and *dog hmm

digerd Tue 22-Jan-13 19:51:33

Sugar
They have recently changed it to 47, before that it was 50. They may reduce it even lower if the cases of younger woman with breast cancer increases.
DD's boss had a lump but could not be biopsied because they couldn't get at it and left it. Pity in this day and age, they can't invent a mammogram that can determine if malignant or not.
DD did have a <painful> local injection first to freeze/numb the tissue. It's rather like a wasp sting I remember < after DDs birth and needed a few stitches>
The joys of being a woman.
DD does not want to ever have those biopsies again - poor thing. On the way home her breast became painful from the procedure.

digerd Tue 22-Jan-13 20:01:10

My DH bought his dad a St Bernard puppy when he retired. He got to be enormous but gorgeous and loved the snow in Germany. I never walked him DH did. Remembering the romantic, care-free times in my younger life,<sigh>.

Twosugarsplease Wed 23-Jan-13 19:56:47

ilove how are you ?

Twosugarsplease Wed 23-Jan-13 20:00:39

Hi dig hope your daughter is not so sore today, yes to be young and carefree would be nice, not a worry in the world.
Is it snowing in Germany too ?

digerd Wed 23-Jan-13 21:13:34

I don't live there any more, since DH died. We don't know what real winters are here, you know. Months of -15 -18 during the day. Looked lovely when the sun was shining and snow still didn't melt.
Haven't heard from DD as she is Yoga teaching tonight. She was worried she wouldn't be able to demonstrate as she normally does.
I'll see her tomorrow after work and hope she's OK. I've felt exhausted all day - the effects from yesterday's trauma.
The sooner your DH has his biopsy and results < that it is benign> the better.

digerd Wed 30-Jan-13 16:53:23

How did the biopsy go today?
Good news for DD - all benign. They even apologised for putting her through those awful 5 biopsies procedure.. But is better to err on the side of caution, as the saying goes.
Hope same results for your DH but hope his biopsy was not so traumatising as DD's.

Twosugarsplease Thu 31-Jan-13 10:21:53

Hi dig that is great news for your daughter !
Thanks for the update.
Dh went yesterday, biopsy he said was fine, had to do it a couple if times as didn't get enough to test.
I feel quite relieved at the news that there are no other nodules that have spread, so if it is malignant, which she said is rare, but not always, they will be removed.
I just feel a huge sigh of relief that they are contained in one area, so far so good.
He is feeling bruised a bit uncomfortable last night, but at work today as normal, so just waiting for results now.

digerd Thu 31-Jan-13 11:15:24

Good that is over, now the wait for the results. I think I remember you saying your DH said if it is benign, he would rather leave it there than have an op? <grin- men!> But only 5% chance of being malignant?
Better than DD's - 20%-, and so relieved all 5 biopsies were benign. She didn't want the op either mainy due to her not being able to teach her Yoga for a couple of weeks.
She did feel unwell the next day after, but had 5 in different areas.
Of course your DH said it was "fine" - he's a man. But shame he had to have it done twice.
Was he told like my DD when he would hear the results?
Good Luck

Twosugarsplease Thu 31-Jan-13 12:28:33

They didn't tell him when he would hear anything, I presume during next week, will he get a letter or be called to see the consultant, do you think ?

digerd Thu 31-Jan-13 14:52:00

I was surprised that the consultant saw DD and said she would phone in 8 days with the results. As your DH was not told that, I'd expect a letter will be sent to GP or as in my cases with the mammograms and smear tests I have had, I get a letter, but those are only screening tests.
After my cervical biopsy 30 years ago, I did get a letter myself telling me I had to have another op, as biopsy was malignant, and a bed was reserved for me on the Sunday to have the op on Monday. Those days we stayed in hospital a week, now it's in and out asap.
Are you sure DH wasn't told?

MortifiedAdams Thu 31-Jan-13 14:55:17

Do they always do a biopsy on a lump on the thyroid? Ive had one since dd was born (1.1) and was sent for a scan about 6/7 months ago, Dr said it was a cyst, totally normal, nothing to worry about. Would they do a biopsy in this case or jist leave it?

digerd Thu 31-Jan-13 15:04:38

Not if it is an obvious cyst full of fluid. Some cysts are not that clear and have to be biopsied to make sure.
I had lumps in one breast, but just a feel of them by an expert, concluded they were fibrous tissue lumps and wasn't even sent for a scan.
Another woman had had a bopsy as they were uncertain and although benign, it was one that could turn malignant, so had biopsies, on a regular basis to keep a check on it.
If your cyst has not got any bigger or has disappeared, I wouldn't worry about it. If it causes you any problems, go back to GP.

Twosugarsplease Thu 31-Jan-13 20:00:00

Dh just saying now dig they would send an appointment through the post.

kissmelittleass Fri 01-Feb-13 06:55:35

Hope everything goes well for your dh twosugars, my little dd has a fatty swelling at the front of her neck which was picked up by the health visitor 17 months ago.
She had a thyroid scan last september which was normal and a blood test which was also normal, my doctor called it a goitre and said as everything was normal she wouldn't need any more blood tests which shocked me to think thats it forget it.
She is seen in paediatrics for another minor problem so as we were there shortly after her thyroid scan I mentioned it to a lovely consultant there who checked her results and examined her and said as she is seen with him twice a year if there are any worries he will check and do a blood test if needed. He didn't agree with my doctor calling it a goitre he said it was an enlarged/swollen thyroid he said goitre was not referred to on her scan results.
I must admit it frightens me as she was not much past 2 when HV picked up on it, I cannot really notice it as there is no visable bulge but compared to other little ones at playgroup I can see her neck looks slightly padded with fat.. doubt anyone else would notice though.
It worries me as she is so young and its not common in children..anyone know of any children affected by this? Hope you don't mind me posting this on your thread twosugers.

digerd Fri 01-Feb-13 13:24:36

I don't know any child who had one, but I did in my early 20's. But mine was swollen due to being very overactive for a couple of years - before it was diagnosed. Your DC has had Thyroid tests and they are normal - mine were not. Mine was also called a Goitre by my GP.

If DC is otherwise her usual self, it will not be affecting her. But it should be regularly checked.

Twosugarsplease Sun 03-Feb-13 13:02:41

Hello kiss I haven't heard of anything like this in children either, but I would be rest assured if your DD's consultant is happy with it.
I mentioned in one post that my dh seems to think he has had this for sometime, he even questions himself he might have had it growing up !
It's just never bothered him, but when mentioned to our GP during a visit, he was sent for tests, and here we are. But this is a nodule, a tiny one attached growing alongside it, his thyroid isn't swollen.
I did work with a girl years ago who had either an under or over active thyroid, which ever one it was made her always on the move, she was excellent to work with on shift grin
She took thyroxine tablets daily and that was all, [digerd] would that perhaps cause a swelling ?

digerd Sun 03-Feb-13 17:43:27

That just shows how different it can be for each person.
"On the go all the time" is the initial stages of an overactive Thyroid, but you don't take Thyroxine for it, that is for an underactive one, when the Thyroid is not producing enough of it.
If she had been underactive, signs are sluggish and slow, but with too much Thyroxine given it could make her "Hyperactive", but would eventually become ill. Or she was back to her normal energetic self. A swollen Thyroid , in my case, was caused by my Thyroid producing too much Thyroxine, which is usual.
Don't know if an underactive one can sometimes cause a goitre.
That case is a bit puzzling.
Main symptom of overactive Thyroid is losing weight, underactive gaining weight. But there are always exception to the rule.
I suspect she was taking too much Thyroxine- but she would have become thin and ill - normally.
Not got your appt letter yet.? Your DH is a typical man- you had to drag the info out of him<grin> Bless 'em.
.

Hi, twosugars, hope all is well, any updates since his biopsy? x

Twosugarsplease Mon 11-Feb-13 17:45:53

Hi everyone <waving hi crushed
We got a phone all today, dh to see consultant tomorrow for results,would they still have to actually see you if all is ok ?

For any results, I'd say so yes, as they're not allowed to give results over the phone smile
Good luck to you both xx

digerd Mon 11-Feb-13 21:56:59

Twosugars
Just seen that your DH has his appt at last tomorrow. Good Luck.

Twosugarsplease Tue 12-Feb-13 10:09:22

Thankyou dig will get back here tonight.

Twosugarsplease Tue 12-Feb-13 18:34:43

Dh saw consultant today, he said he will need half of his thyroid removed,( thyroidectomy) under general anaesthetic.
Apparently there are 5 stages...1=biopsy was inconclusive 2= benign 3=85% chance of being benign 4= suspicious of being malignant 5= malignant.
Dh is stage 4.
dig was this the case with you ?

digerd Tue 12-Feb-13 20:38:22

Hi two sugars
No, I didn't have malignant cells, Thyroid went into overdrive and produced too much Thyroxine = Overactive or Hyper thyroidism.
Your DH has been diagnosed with Stage 4 - suspicion it could be malignant?
But the best course of action is, if in doubt where cancer is concerned be overcautious.
People I know who had cancer of the Thyroid diagnosed, it was always contained in the Thyroid and had not spread, and they had the whole Thyroid out.

PenisColada Tue 12-Feb-13 20:40:33

Mine was a 4. Had my thyroid removed just over 2 weeks ago. Ask me any questions you like.

PenisColada Tue 12-Feb-13 20:41:19

Are they going to do a frozen section during the op to get a definite answer ?

Twosugarsplease Tue 12-Feb-13 22:26:21

Hi dig yes that's right stage 4, I so hope it is all contained. What will happen after the op ?
peniscolada hello, how are you ??? I could chat all night, can you come for coffee. grin please go into detail, at what stage are you right now ?
dig please come along too, (you are my very own medical encyclopaedia ) thanks x and x

Twosugarsplease Tue 12-Feb-13 22:32:12

penis consultant did tell my dh that he will find out what it is during the op, so sounds like a frozen section yes.

PenisColada Tue 12-Feb-13 22:32:48

I am very tired now will be back tomorrow.
I am waiting for radioactive iodine treatment in a few weeks. Where abouts are you ?

Twosugarsplease Tue 12-Feb-13 23:04:10

Thankyou peniscolada will put kettle on tomorrow smile night all x

Twosugarsplease Wed 13-Feb-13 10:10:57

peniscolada did they say what your lump was ?

PenisColada Wed 13-Feb-13 10:40:06

Hi, had a bad night with both children poorly so not feeling too bright this morning.

I was told my biopsy came back as a 4 which means highly suspicious. I was offered another biopsy or surgery to remove half the thyroid and have it analysed during surgery. If it was malignant the whole thyroid would be removed. There was a 20% chance the analysis would not be conclusive in time for the surgery so a 2 nd op may be required to remove the whole thyroid if it was malignant.
I refused a 2nd biopsy as the consultant said that found come back as a 4 again and I did not want to delay the whole process.
Mine came back as a papillary cancer during the surgery so my whole thyroid and central lymph nodes were removed. Think the lump was 1.8cm and contained with good margins. Some of the nodes looked suspect but that has not been confirmed yert. The treatment is the same if nodes involved or not.
After the surgery things like coughing and swallowing are difficult and you have a reduced range of movement in your neck. I had a single suture with knots at either end with a clear plastic dressing on. It looks pretty gruesome but the wound needs to be seen to be monitored.
The stitch was taken out on day 3 and the dressing after 2 weeks. Now I have minimal pain but still a feeling of something in my throat. The only complication I have is that I can't shout or sing high notes and am seeing the ENT consultant shortly about that.
I am sure they have been through all the risks with your dh. We're you at the appointment with him ? Did they tell you of it was papillary cancer they were suspicious of ? If so it is entirely curable with radioactive iodine treatment even if there is spread. Sometimes some radiotherapy is required.

If you have any other questions fire away.

Twosugarsplease Wed 13-Feb-13 11:21:36

Thankyou for that penis I am going to collect ds from nursery and will be back soon smile

Twosugarsplease Wed 13-Feb-13 12:30:12

Hi penis
No I didn't go in room with dh as I thought best to entertain little one in the play area, wish I had now.
Consultant did point out voice might be a lot quieter after the op, to take 2 weeks off work, as has to chat all the time.
Dh didn't mention papillary cancer no, what does that mean ?
Ultra sound said lump is 33 mm in size, and hadn't spread, I felt very relieved for dh at that point, that even if it is malignant it could simply be removed, I'm just feeling worried again.
So if it is malignant, we could expect him to have his whole thyroid removed ?
You said you were waiting for radio active iodine treatment..what does that involve? Sorry for the questions, you have been really kind and helpful to offer.
Hope your little ones get better soon too smile

PenisColada Wed 13-Feb-13 12:51:53

The whole thyroid would be removed as the cancer is likely to be multi nodular and multi focal.

Papillary is one type of thyroid cancer and I was told that my stage 4 was indicating it is likely to be this type.

The radioactive iodine treatment is fairly trauma free but involves a few days in isolation in hospital then staying away from children / partner for a few days.
Did your dh not get any information sheets ? I was given one on the op and one on the iodine treatment which explain it all really well. I also have a spicialist nurse to contact with any questions.

digerd Wed 13-Feb-13 18:36:23

Twosugars
It is so frustrating for you and worrying, that they still do not know for sure, which type of suspicious THyroid cancer it is, but as it is not definitely malignant they cannot tell from the biopsy.
Penis had this too and they wanted to take part of the Thyroid away first but she insisted on having it all removed to be on the safe side and to save 2 ops.
I think that was a sensible choice, as the Thyroid is not an essential vital organ and Thyroxine tablets replace its Hormone.
The Radioactive iodine afterwards is to make sure any Thyroid cells remaining will be destroyed.
Penis had the most common form of Thyroid cancer which is slow growing and had not reached the spreading stage.
Other types of Thyroid cancer can spread quicker, so it is essential they find out which type it is suspicious of becoming.
Just wish the op was to be sooner than a month.

Your DH, wish we women could be so cool and not worry like we do!!

PenisColada Wed 13-Feb-13 20:33:28

I am only speaking from my experience your dh may have a completely different outcome.

I would go in with him tough as 2 people are more likely to remember all that was discussed. I wrote down questione to ask too so I did not forget during the appointments.

kissmelittleass Thu 14-Feb-13 08:27:08

Twosugars and Digard Thanks for your input its much appreciated, I just can't help but worry! and twosugars I wish your dh all the best, you are a tower of strength to him x

Twosugarsplease Thu 14-Feb-13 13:30:07

Hi kiss and thankyou.
I have a 3 and 1/2 year old ds, and I can totally understand you worrying, it seems your little one is in good hands, but if you feel that you are worried, could you ask him to do some tests perhaps? To ease your mind.

Twosugarsplease Thu 21-Feb-13 18:24:42

Just updating : dh has his operation on 18th march to remove his right lobe if thyroid.
Once tested if show malignant, the rest if his thyroid will be taken out, and radioactive treatment given ? ( is dig here...would that be right ? )
Just hope if it's nasty it can be out and zapped around rest of the area.
But for now, more waiting ......

Twosugarsplease Thu 21-Feb-13 18:27:00

peniscolada how are you ?

digerd Thu 21-Feb-13 19:21:37

Twosugars
Good to hear you now have a date for the op. Did they mean the lump would be tested immediately
and if malignant they would immediately take out the whole Thyroid in the same op?
Or would that be 2 separate ops at different times?
The radioactive iodine I never had, but googled it and it is used to kill off any cancer cells which may have remained.
Penis is going through that now. I also wonder how she is doing.
Is your DH still just as laid back about it all. ?

Twosugarsplease Thu 21-Feb-13 20:15:02

Hi dig thanks for posting, I'm not sure if what they remove will be tested then, the info sheets we do have say the consultant will inform dh during his stay in hospital, I do hope so, and yes it would make more sense to test during surgery, can they get results that quickly ?
penis said she had whole thyroid removed as 2nd biopsy for other lobe, consultant said could have also came back a 4 (highly suspicious) so to get done in one go.
My dh wasn't given that choice.
Yes dh is still going with the flow, as I am I suppose, as he seems ok.
I'm just worried now that as he knows how worried I've been he doesn't want to tell me if he is. How are you ?

PenisColada Thu 21-Feb-13 20:38:05

Yes my nodule was tested during the surgery. I was told the testing is 80% of the time quick enough to do during the op. I went for this option as I did not want a second op to remove the other half if I could avoid it.
When I spoke to my GP she said if your nodule is a 4 it would be as well to have the whole thyroid removed as it is likely to happen again anyway if only half is removed. Apparently with half a thyroid you are likely to need thyroxine so you may as well have all of it out !

Do you know how big the nodule is ?

I am doing ok . Feel recovered mostly from the op. Have the radioactive iodine on 19th March. I would not feel up to work yet though so am signed off until the treatment is over. Before the treatment I need to stop taking thyroid meds so may feel rubbish for a couple of weeks.

How does your dh feel about it ?

digerd Thu 21-Feb-13 21:06:14

So it didn't say how long he would be in hospital after the first op?
I had the whole of my Thyroid reduced in size, so had the one op with an incision above the collar bone about 2/3" from each side of neck, but mine had swollen to mega size. In those days the skin was stapled together metal staples - there were a few of us having it done- and we joked that we looked like Frankenstein's monster, as we couldn't move our heads much either. Don't think they do that now. One older woman had cancer, but the other younger ones had an overactive Thyroid gland like me.

Twosugarsplease Thu 21-Feb-13 21:21:38

Hi penis dh' nodule is 33 mm with a tiny 2nd one growing underneath but attached.
He seems fine, just not looking forward to staying in hospital, he just has a 'get on with it attitude'
I feel lucky to be able to be here for him when he gets home, in what way did you find best to recover ? I don't want to be a pain grin
dig they said 1 night as long as wound is draining well.

PenisColada Thu 21-Feb-13 21:22:53

I was in for 4 days but that was due to my calcium levels dropping. I would have gone home after 2.
No staples ! I had one of those stitches with the knots at either end and it came out on day 3. Had a clear sticky dressing over the wound that came off after 2,weeks. The scar will look like a neck crease when the redness has gone. Not bad at all.

PenisColada Thu 21-Feb-13 21:25:51

I found moving painful for a few days but it does go pretty quickly.
I had lymph nodes removed as well and felt all bruised inside so coughing, swallowing etc were difficult.
Get him some nice soft food and plenty of paracetamol.
I still find looking round when driving difficult so am only driving a ,title bit. Yawning is not a good experience !

digerd Thu 21-Feb-13 21:46:48

I had a reaction to the metal staples and sterile puss collected and burst my scar right in the middle of my neck ,2 weeks after being home. Had to go back to hospital several times to be treated which included slitting the scar open with a scalpal both ends with no local.
Was 39 years ago, though.

PenisColada Thu 21-Feb-13 21:48:36

Omg that sounds horrific. Do you have a scar ?

The stitch is far far less traumatic.

Twosugarsplease Thu 21-Feb-13 22:01:04

Omg dig
I will stick up on painkillers, incase he doesn't come home with any.
We have 4 children, and I don't drive , although dh is a driving instructor !
I am going to miss him so much, my sil has offered to ferry me around for hospital visits once youngest dsaged 3 is in bed, eldest ds who is 17 is very capable if minding him once he is asleep for an hour.
Hopefully it won't come to that as day of surgery I expect dh will be asleep or happy to recover peacefully.
We have set up an app so we can chat to each other.

digerd Thu 21-Feb-13 22:04:29

It was a very faint line and healed fine in the circumstances. The slitting I did not feel, but was in agony when they stuffed bandage in through the one cut with plastic tweezers that had ridges on the outside that scraped my raw open wound . Every time when I got home I slept for 2 hours from shock!!
Was a long time ago but remember it well. I was going to work every day too , and had to be at the hospital for 2pm alternate days. The agonizing treatment lasted for 20 minutes.
I don't know how I survived, but i did.

PenisColada Thu 21-Feb-13 22:04:32

My dc found the clear dressing quite distressing as it was a bit bloody and gruesome so you may want to get him a silky scarf to cover it up. My wooly scarfs are too scratchy.
Once the dressing is off it looks fine and the dc are not bothered at all.m

digerd Fri 22-Feb-13 09:18:03

Sugars
I did not have any real pain, just a bit sore if turning my head at first, but we were in hospital for 8 days after op just lying in bed most of the time < smile> And unlike Penis, did not have it totally removed.
Which your DP may also not need., but is having the one lobe totally removed, so may be in more discomfort than I was. Although with cancer of the Thyroid it usually is totally removed.

PenisColada Fri 22-Feb-13 10:10:02

I was 'encouraged' to get up and about straight away. I know this prevents DVT and is good for you but I did not feel like it fir a few days !

Twosugarsplease Fri 22-Feb-13 15:57:04

Just had a letter this morning, his op is now on the 11th.
That is 1 week earlier! But then if they were very concerned it would have been done by now, do you think ?

PenisColada Fri 22-Feb-13 17:26:14

My op date was moved about twice due to scheduling. They are obviously not doing it in a hurry so I would not worry.

Twosugarsplease Fri 22-Feb-13 18:29:22

Yes my sensible head tells me that too, I just worry over the slightest thing.
Thankyou for the advice on helping mu dh feel comfortable afterwards too smile
Going to make some nice soft tasty meals, and make sure he gets some peace and quiet, sure he will be happy as larry with his phone and lap-top !

digerd Fri 22-Feb-13 19:39:16

Sugars
I was a bit worried the op was so far away. I am so pleased it has been brought forward a week. Probably due to a cancellation. But in anycase the sooner the better where suspicion of malignancy is concerned. Not that you will stop worrying, I know.
This has been going on since 7th January, hasn't it? When DH first went to GP about his lump. By the 11th March that will be 2 months waiting for an exact diagnosis and prognosis. Poor you and DH even if he's not bothered and 'happy as Larry on his phone and lap top' , bless him.

Twosugarsplease Fri 22-Feb-13 20:50:35

Yes dig I think he is on the look out for a little bell too grin
It has seemed like an age since the initial routine visit to drs back in November, when dh just happened to mention his lump while there for his back.
Going in a week earlier means we are closer to finding out too. He has to be there for 8 am.
Do you think they will tell him whilst he is in hospital what the results are ?

digerd Fri 22-Feb-13 21:19:22

Sugars
I do not know, but hope so. 4 months waiting is awful.
When my cervical malignant cells were diagnosed, I was having the op to take them all away 2 weeks after the biopsy. So, they can't think his is serious.

I was having a medical today which included an ultra sound on my carotid arteries in the sides of the neck that take the blood to the brain. Had one 3 years ago and was told they were both mild to moderately narrowed. so might be due for a descaling if now seriously narrowed. My 83 year-old neighbour had that done after she suffered a very mild stroke, and they threw in a By-Pass of one of her heart arteries as well - despite her not having any symptoms- So she said she was now well MOTed to last another 10 years !!

PenisColada Fri 22-Feb-13 21:27:25

I had my nodule discovered in September then my biopsy was delayed as the biopsy man was on holiday so my op was a long time after first discovering it.

I was told in recovery that they confirmed the diagnosis during the op. they came and spoke to me about the treatment the next day so I am sure he will find out quickly.

digerd Fri 22-Feb-13 21:38:13

Penis
Now you have no Thyroid Gland what dosage of Thyroxine are you on?

Twosugarsplease Fri 22-Feb-13 21:41:17

Ooh dig keep me informed, will they let you know soon. If you have to have an op I will visit you in mumsnet fashion smile to keep you company. Hope it's not necessary but an 'MOT' if needed will benefit you.

PenisColada Fri 22-Feb-13 21:44:23

I am on a short acting one which will be changed after my treatment so I have no idea what dose I will be on long term.
The purpose of the short acting one is that I need less time without it before the treatment.
You take thyroxine dig ?

PenisColada Fri 22-Feb-13 21:44:42

I take it 3 x per day at the moment.

PenisColada Fri 22-Feb-13 21:45:56

Meant to say when will they let you know if you need surgery dig ?

digerd Fri 22-Feb-13 21:46:50

sugars
I actually need a FULL MOT, including a whole replacement body and brain - something like from the "Stepford Wives" will do !! .

Twosugarsplease Fri 22-Feb-13 21:49:09

Thanks pc I would assume he will be too drowsy and won't be twiddling his thumbs if that's what they say to him, do if he is so sleepy next day will soon come around, yet my nails will be bitten off and maybe a few pounds shed !
I'm having a glass of wine.
Here you go dig and pm wine wine

digerd Fri 22-Feb-13 22:03:59

Penis.
Yes, after my op, I didn't need any as was a sub-total Thyroidectomy, and not overacting anymore. It had been very naughty indeed and was very enlarged. I always thought of it 'got too big for it's boots and was cut down to size' to make it behave properly.
20 years later when my DH was battling in vain against a very aggressive cancer, my blood test showed a slight underactiveness, and was put on 50mcg in 1996, and am still on it.
Just wondered what the normal amount of Thyroxine is that the Thyroid gland produces, which you would be on. Suppose it varies on the individual.

PenisColada Fri 22-Feb-13 22:12:43

I have been told it may take awhile to get the dosage right. I will let you know what they put me on after the treatment. I am hoping for a big dose so I lose some weight smile

digerd Sat 23-Feb-13 09:53:55

Good luck with the weight loss.
But do not have too much Thyroxine as when I was very overactive, I wasted away and was constantly eating high calorie foods as was so ravenous every 30 minutes. Tachycardic pulse rate and palpitations and constant sweating. Not nice and dangerous too. I was also bursting into rages over nothing.
I did not know how much Thyroxine I was producing only that it was far too much
How long must you be off it for the RAI treatment?
Am now off to walk my little dog in the slight snow fall < grimace face>

Twosugarsplease Sun 10-Mar-13 19:28:09

It is the eve dp's operation.
Going in for 8 am in the morning. I'm so hoping they tell him something while he is in, so no more waiting.
dig and penis how are you both ?

digerd Mon 11-Mar-13 09:03:53

2sugars
Just remembered the day has come you have been waiting for so long.
Good luck for good news from the results, and for DH's op.
9am now so perhaps he has had it done already?

Thinking of you.

gingeroots Mon 11-Mar-13 09:10:49

twosugars - another one thinking of you .

Twosugarsplease Mon 11-Mar-13 13:26:07

Thankyou dig and ginger
He was taken to theatre at 10.30, I rang at 12.50 but he was still not back, I'm assuming he will have spent some time in recovery too.
I said I would ring again in an hour, and it's going soooo slow.

digerd Mon 11-Mar-13 13:45:22

2sugars
Now 1.45pm so only 5 minutes to go before you phone again.
Hope you get some more news this time.

Twosugarsplease Mon 11-Mar-13 13:50:07

Just rang and still not back, just want to relax that he was ok through surgery, suppose they can't tell me much else though can they ?
I'm really hoping he gets a visit on the ward later from the consultant to give him some news.

digerd Mon 11-Mar-13 14:03:40

I'm sure he will be fine from the op, but very drowsy for a few hours while he sleeps the GA off. You want to know if they have tested the tumour and got the results and if he's had his whole Thyroid out or was not necessary. Or if he has to wait < not again!> for the result, to see if he must have another op to take out the rest of his Thyroid.

Doubt if they will tell you these details over the phone, though.
Horrible for you this endless waiting.

I'm off-line now until 3.30pm. Will pop in afterwards.

Twosugarsplease Mon 11-Mar-13 14:11:48

My mil just rang, she too is say by the phone, they told her they would ring her back as he is till in recovery, they rang her back and said he is still there but fine.
Just read back on some posts from penis they told her during recovery the results. Can't bear not being with him if it's not good.
I'm going to wait until 6 ish, if I can and call back, hopefully he has skeptic it off by then.
We have been messaging on touch this morning, so I'm hoping I get a ding dong on my phone soon from him beforehand.

Twosugarsplease Mon 11-Mar-13 14:12:55

slept it off by then. confused

Twosugarsplease Mon 11-Mar-13 14:25:57

Thankyou dig yes that's exactly what I want to know.
I will remember those for the next call, although I have a feeling dp will be untouched before then, I'll get back later, thanks again dig in my hour if need, literally smile

digerd Mon 11-Mar-13 17:29:26

2sugars
Just checked your other update and he was taken down to theatre at 10.30.
I was given a large dose of Valium at 8am. and I think I was taken down 30 mins later.
All I remember is that I was back in my ward by 1pm, but mine was just reducing the size of the whole Thyroid. But did sleep for hours afterwards from the GA and the long procedure.
I know how you must be worrying, but even if they did decided to take the whole Thyroid out, that is actually the best thing, and what Penis insisted on.
Get rid of the wretched thing once and for all, so no more worrying about it.

Hope you have managed to eat something, today.. That'll be both you and MIL worrying yourselves sick.

It's horrible waiting for the phone to ring, Hope you get some assurance soon.

Twosugarsplease Mon 11-Mar-13 20:55:08

Just got back from visiting, he was back on the ward about 2.30,
He was told during recovery that the op went well, consultant has been round and according to dh their attitude was very laid back, told him he has to go back in 5 days for his stitches out, and 10 days to discuss results ! 10 DAYS !! But all very relaxed about it. Only had half the thyroid removed.
So we feel there is no alarm bells ringing, but still don't bloody know sad
He has a drain in his neck and as long as the blood draining doesn't go over 80 mls he can come home tomorrow, it is sat at about 20mks now and has done since he got back on the ward he said. So that's good.

gingeroots Mon 11-Mar-13 21:19:52

I feel your pain twosugars .

10 days ...

Still ,sounds like op went well .

Keep on keeping on .
x

digerd Mon 11-Mar-13 21:49:40

2 sugars

Thank goodness. I thought you were visiting DH. So he was back in the ward at 2pm. About the same time as I was under my op, about 4 hours.
But still no diagnosis or prognosis, so another 10 days waiting for you all.

Hoping for good results. You all deserve it after waiting all these months.
I stayed in hospital for 8 days in 1974, and went home with a gauze bandage round my neck. They must have taken the staples out before going home, but so long ago, I don't remember that specifically or having a drain.
But didn't have half of my Thyroid removed just reduced in size.

At least the first hurdle< and hopefully the last> is over now.
Good luck for his healing.

.

kissmelittleass Mon 11-Mar-13 22:37:18

Just want to wish you all the luck in the world,I know you don't know me from adam but I am thinking of you and your dh x

Twosugarsplease Tue 12-Mar-13 11:25:31

Thankyou kiss , ginger and dig
The drain was taken out this morning, so just waiting on my SIL bringing him home, around 12.30, bed is all ready with some strawberries and ribena and clean pj's out.
Got all my jobs done this morning, just little man to collect from nursery. Will just be glad to have him home smile
Wished I could have been there yesterday when consultant spoke to him, to ask more questions, dp was at that time quite spaced out, as still was last night, maybe today he can recall more of what was said to him when he gets home.

digerd Tue 12-Mar-13 18:29:20

2sugars
Saw your post on MrsShrek's, that he was home.
Just remembering my last GA for a cartilage op on my knee, 6 years ago.
I was crying out in pain afterwards, but hazy and thought I might have dreamt it, but nurse said I was crying out and they gave me a morphine shot. So embarrassing.

Hope DH is doing OK, but it will take a while. I had far more pain with the knee op than my Thyroid as don't remember being in pain at all from that op. Bit sore and can't move your head. As we all had staples instead of stitches, we joked we looked like Frankenstein's Monster.
But I had to walk on knee not my neck.

Hope he soon gets back to his old self, playing with his favourite 'toys'.
Remember he shouldn't turn his head sideways or upwards until skin has healed.

Twosugarsplease Tue 19-Mar-13 17:58:35

Hi everyone, but of a pointless update, but wanted to sound off.
Today is results day, as consultant thought 7 days after op would be fine, instead of 10, and that way dp gets his stitches out.
Stitches out, no results !!
Apparently they are not back, consultant asked nurse to ring them, and they said results are done and were there, just not processed ??
Aaarrrgh! I felt like running to wherever and getting them my bloody self !
So more waiting....sad

MrsShrek3 Tue 19-Mar-13 18:00:50

noooo sad not more waiting. <offers hand>

Twosugarsplease Tue 19-Mar-13 18:31:41

Yes mrsS so bloody frustrating.
I'll pop over your thread and see how you are all getting on, you have all been going through this so long, I truly admire your strength.

gingeroots Tue 19-Mar-13 18:51:10

twosugars - unbelievable the waiting for results you've had !

I honestly don't know what to say .

I'm 100% certain that when I was told last Thursday about my CT scan being brought forward that they had the biopsy results ,even tho they said they hadn't .

I was told that there were technical problems at lab and then ,when they could no longer deny that they were available because also saying that consultant would discuss the results with me ,that they were on the system but like a cake not available for viewing .

So that's my trust in them shot .

I feel so much for you - I would so ,so much rather be the patient than the relative .

Believe me I know how hard your waiting must be .

Twosugarsplease Tue 19-Mar-13 19:25:09

Thanks ginger it hasn't gone well for you either...technical problems !? I mean this is people's lives on hold not a bloody sound check !
I sat in the same chair in the waiting room, (because it beside the play area for ds) and I thought maybe I shouldn't as last time I did, dh came out with no news too, but I thought not to be so silly and sat talking in my head to my late dad, to please let us have some good news.
Within a few minutes dh was back with no result.
He is as usual fine, and looking on the bright side, and I feel I should too, this is hard enough for him without me going off on one, so chilled tonight and we are going to have a wine
What is next for you ginger ?

gingeroots Tue 19-Mar-13 19:47:17

Another endoscopy tomorrow ( fingers crossed a larger dose of sedative ) ,multidisciplinary mtg ,and I suspect agreement on more tests to determine more about nodules extent .

So hard for you being on sidelines and simultaneously being so involved ,
And looking after family ,cooking ,running house....

Twosugarsplease Tue 19-Mar-13 20:29:34

I will be thinking of you tomorrow ginger*
Everything is normal inbetween, although always at the back of our minds, then as appointments get close, it's at the front.
Tea was made twice for dc's during his op, it was all I was thinking about, and as it was a naff lazy 'out the freezer tea' I burned it shock
Please let us know how you get on. Will you be going to sleep or getting a relaxing sedative ?

MrsShrek3 Wed 20-Mar-13 23:58:44

how is it going? Still here and thinking of you.

digerd Thu 21-Mar-13 07:59:36

2sugars
Just read this, and have been wondering about DH having his stitches out.
They did originally say his results would be at a later date. But to change their mind and then results still not available, is just not good enough!

You have been waiting far too long.
Is Dh still so laid back about everything?

Twosugarsplease Thu 21-Mar-13 13:57:55

Hi all, and thankyou, yes he is very laid back dig
But very positive about treatment should it be cancer.
He is happy that during the biopsy they said there was no spread, all in one area, I'm just hoping that is still the case.
Hospital rang yesterday, to tell him Tuesday 26 th is his new appointment.
He seemed very quiet before the operation, and first few days after, I thought it had finally got to him, but he insisted he was just sore.
Sure enough back to his usual chirpy self.
I just can't rest until we know.

digerd Thu 21-Mar-13 15:34:20

So glad he's back to his normal 'chirpy self' - you've got a diamond of a man there.
So the results are next Tuesday, now.
Keeping fingers crossed for a long awaited good result.

Twosugarsplease Thu 21-Mar-13 17:29:33

Thankyou smile

Twosugarsplease Tue 26-Mar-13 12:11:57

Hi all, just updating, dh has thyroid cancer got results today.
God this is shit, will need another op and radio active treatment.

digerd Tue 26-Mar-13 15:48:31

I as wondering about your results today, and saw your post on Mrs Shrek's.
After all this time of them faffing around, I also had a feeling they'd made a mistake. But NO, not this time.

Penis, I think will be undergoing the radioactive treatment now/soon.
But 1st DH has got to have the rest of his Thyroid out. 2 ops, poor love, and be given replacement Thyroxine tablets.

But take consolation in that it has not spread and is an easy cancer to cure needing no chemo. But a few more weeks/months to go yet before everything is back to normal, which it will be.
Chin up 2 sugars.

digerd Tue 26-Mar-13 19:17:35

When DH had his biopsy, the specialist told me they could tell if it had got to the spreading stage, which it had. He then had a CT to see where else it had spread to.

Normally, if it has spread they do not operate as would make it spread even faster, and that Chemo was his only chance.

I was not given a staging number. DH was with me but I did all the talking as he was traumatised.

MrsShrek3 Fri 29-Mar-13 08:40:24

are you ok sugars?
hugs for you too dig. crap innit.

twosugars (waves). How are you both? Hope you are feeling better, remember the prognosis is very good. It's just one step backwards, then giant leap forwardssmile thanks x

Twosugarsplease Fri 29-Mar-13 11:19:53

Hi everyone... Were ok I suppose, I can't explain it really.
Yesterday he was quiet, but insisting he is fine, and that he was just tired, as didn't sleep very well ( never has)
I don't want to ask if he's ok all the time.
He is out on his day off playing his Friday golf today.
I got upset once dc's were in bed on tues night, the day of result, he said there is nothing to worry about, it's getting sorted, that the worst is over and we know now, so let's get on with it. I'm just scared of that very small chance it won't.
He says it could be much much worse, I know and I keep telling myself that, his attitude amazes me, just hope he will tell me when he's feeling down.
Haven't had a date for 2nd op to remove the rest of the thyroid, but will have his RAI treatment 2 weeks after that.
He says the worst bit will be when they take the sticky plaster off the back of his hand when he gets his needle out after the drip ! smile
How are you all ? X

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