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Vit D results back

(91 Posts)
knackeredoutmum Mon 24-Dec-12 09:44:12

I you read my other thread I'm the knackered out Mum with disturbed sleep but more tired than I think I should be.

Have ordered all the blood tests but now wish I hadn't ordered the annoying and expensive microtube tests yet as my vit d has come back low.

Reading is 36nmols. Am I right, for good general health it is supposed to be a bit higher (ie 70+) than the range given in the test result sheet?

Can anyone point me to a website telling me how much I need to supplement by and how quickly I will see a result?

knackeredoutmum Mon 24-Dec-12 09:47:25

Also where is that guy's website, the doc who refers people onto the assay website for the test? He is very keen on vitamin D and believes the scales are set too low? He has a big forum on his page

didldidi Mon 24-Dec-12 09:49:29


tabbycat15 Mon 24-Dec-12 10:04:15

Have you done all these tests yourself from over the Internet? I don't think that you should be self diagnosing if you are not a medical professional. Have you seen a Dr at all?

knackeredoutmum Mon 24-Dec-12 10:06:25

tabby it is an nhs mail order test with an nhs interpretation sheet, so no need for docs, esp as nhs recommended solution for my result is over the counter supplements

knackeredoutmum Mon 24-Dec-12 10:07:30

errm, also the microtube tests are ordered and analysed via a "mail order" registered gp (as you cant have the tests done without a gp) and processed in a lab used by the nhs

lljkk Mon 24-Dec-12 10:35:18

I can't figure half of that out, but I would have thought you'd be okay to start taking a basic OTC supplement. And try to get more sun in the spring-summer.

TeamBacon Mon 24-Dec-12 10:37:33

You need vitamin D3, rather than a bog standard supplement, but I don't know about dosage.

OhyouMerryLittleKitten Mon 24-Dec-12 10:38:15

Mine was done through the gp and came back low. She recommended one 25thingy tablet twice a day ( which was equivalent to 2000mg a day)

TeamBacon Mon 24-Dec-12 10:39:52

How did you order the blood tests btw, as I'm interested in doing the same

knackeredoutmum Mon 24-Dec-12 10:44:59

cityassays costs £25, a finger prick test, takes under 2 weeks fr the results

they are a hospital blood department

knackeredoutmum Mon 24-Dec-12 10:47:28

ok, nhs dosages easy to find on the internet as they are published by many nhs trusts - for results of 25-50 they suggest 2500 a day or 17500 a week to be bought from health food store and for under 25 they prescribe 60000 a week. Both for 12 weeks initially.

ShotgunNotDoingThePans Mon 24-Dec-12 10:50:15

What do the tests check? I've started taking calcium, magnesium and Vit D because of my age but don't want to be taking it if I don't need to.

knackeredoutmum Mon 24-Dec-12 10:52:10

the one on this thread is vit d only. so if you do the test you may be able to dispense with the vit d, and the cost of the test could quickly pay for itself by eliminating one of your supplements

RockinD Mon 24-Dec-12 12:41:12

Search on line for the protocol for your area and then go and show it to your GP who should then follow it. They can prescribe the once weekly mega amounts to get your levels to where they should be.

Alternatively, if there is some reason why you don't want to do that, buy some gelcaps (has to be gelcaps because vitamin D is fat soluble) on-line.

5,000iu a day brought my levels up remarkably quickly.

ggirl Mon 24-Dec-12 13:07:36

I am def gonna get myself tested
is this where you got yours done?

knackeredoutmum Mon 24-Dec-12 13:34:30

Yes its a proper hospital lab. No hassle and confidential.

I have just got some very small d3 tabletsfrom holland n barrett. Any reason why these wouldnt work?

MoreBeta Mon 24-Dec-12 14:45:08

Vitamin D deficiency is very common in the population because modern life is largely spent indoors. Some vitamin D is absorbed form food and some generated in skin exposed to sunlight.

I am vitamin D deficiant and have early stage osteperosis because I have gluten intolerance and hence absorb very little from my food because of years of gut damage. I went to my GP and asked for a vitamin D test assay and I went to the blood nurse and she took some blood and then it was sent away and the results came back in a week form an NHS lab.

I asked to have the vitamin D test done as I was not sleeping at all well but mainly as the hospital had measured me and height had reduced by 1.5 inches in a few years and I knew I had an at risk ongoing condition. Bone scans showed I had brittle bones in my hips.

If you are worried I really would not do a home test. Just get to your GP and ask to have a test done properly.

I now take two Adcal-D3 tablets per day on a GP prescription. It contains vitamin D3 and calcium and the prescription charge makes them more or less the same price as taking over the counter vitamins you buy yourself.

MoreBeta Mon 24-Dec-12 14:47:22

Two Adcal tablets are 400 I.U of D3 equivalent.

Taking 5000 IU is a huge dose and some care needs to be taken not to overdose with vitamin D.

knackeredoutmum Mon 24-Dec-12 15:51:51

The nhs guidelines vary from trust to trust, but generally speaking they suggest 2000-2500 per day for an insufficiency and 8500 a day for deficiency. So 5000 is actually middle fo the road for someone with low vitamin D.

I think more care is required in cases of osteoporosis due to the interrelationship between Vit D and calcium, which requires a different treatment regime (less Vit D but including calcium) and regular monitoring

digerd Mon 24-Dec-12 16:06:28

I take 500mg of calcium and 10mcg of D3 daily on prescription since last blood test calcium was a little low.
My dd with early perimenopause was on same dosage X 2 daily, but had digestion problems.

lougle Mon 24-Dec-12 17:17:17

Be careful, my DD is deficient and needs D3 supplementation plus regular blood tests to ensure her calcium levels aren't too high (2-3 blood tests per week is optimal, but because she is only 5 they will accept weekly).

increased vit d can lead to high calcium, which is bed in a different way to low calcium.

awaywego1 Mon 24-Dec-12 17:30:35

I had a vitd level of 7. My doctor started me on liquid vit d before adcal-you can get the same thing from amazon. Adcal won't be enough to I initially get your levels up.

ShotgunNotDoingThePans Mon 24-Dec-12 17:32:34

These are all things I'm feeling wary about - have started to take calcium with magnesium as I realised my dietary intake is far lower than the recommended amount - plus I'm 49. Then I read (as you do) that the vit D is needed alongside the calcium. Fair enough, but I do feel uneasy chucking back vitamins minerals that may cause harm if I take too much.

Would I be wasting the doctor's time to ask for a blood test? I've no particular reason to think the vitD is low, apart from the general below-parness I've had since having children, tbh.
Won't I just be told, 'what do you expect, it's the menopause?'

knackeredoutmum Mon 24-Dec-12 19:02:57

shotgun,your doctor wont do the test, nhs is under pressure and so they cant/wont do these tests without a reason

so pay £25, get the test done, and if it shows low and you are wary of supplementing, take the very legitimate results into your gp and ask for their advice

ShotgunNotDoingThePans Mon 24-Dec-12 19:28:29

Fair enough - thanks.

mercibucket Mon 24-Dec-12 21:27:07

It is always worth asking the GP first. Our area do the test easily, others don't

Right then, that's a fairly low level and usually counts as insufficiency. 5000 iu of d3 sounds a good amount, we take that anyway in my family over winter regardless of our vit d status, it's not an amount that's going to make levels zoom out of control, but should make a difference. Get a good supplement. I use solgar. You can take it weekly instead if you prefer.

You haven't wasted your money doing the other tests as it is quite possible to have for example a thyroid problem at the same time - quite common in fact.

I would have a phone consultation with the GP to tell them this result and ask if they will monitor your calcium levels. Not absolutely necessary but see what they say.

Hope you feel better soon. It helped me a lot. I can tell when my vit d levels drop now when my feet start hurting. Keep it up from now on - once vit d deficiency is diagnosed it is best to supplement for life.

mercibucket Mon 24-Dec-12 21:37:25

Sorry forgot the protocols

Try the one on gpnotebook, that's used by some health authorities, or google for example 'sheffield vitamin d protocol' I know there's an easy to understand one on there

mercibucket Mon 24-Dec-12 23:22:07

I just re-read the gpnotebook one. My latest results came back 90 and that was still counted as needing supplements by my health authority so they must have changed the ranges.

Note it is not advised to take calcium supplements (adcal) unless you have a calcium/bone problem already. Excess calcium/supplements can be quite bad for your health. Steer well clear imo.

knackeredoutmum Wed 02-Jan-13 22:42:35

shotgun, the result comes back on nhs headed paper so all good for taking to a doctor

ozymandiusking Wed 02-Jan-13 22:47:52

Mushrooms provide an excellent high source of vitamin D the highest for vegans in particular.

VestaCurry Wed 02-Jan-13 23:00:20

As others have said, take test results to GP. They should prescribe what you need to get your levels up. I had extreme low vit D levels (were actually tested by GP as part of a range of tests). I was given a boosting dose for a few weeks by her, then re-tested, which showed I was in the upper part of the range needed. It is something to be reasonably sensible about ie not overdosing.

Deux Wed 02-Jan-13 23:26:06

My GP tested mine as part of a range of tests. My result was 25nmols.

My GP prescribed 6000 iu a day for 8 weeks, followed by 2000 iu a day for a further 4 months.

I was prescribed 1000 iu Vitamin D3 by Lamberts. You can easily buy them online and they are quite cheap. Only reason mine were prescribed is because the dose and duration was so long that it was cheaper.

They made the most enormous difference.

Have you checked out the Vitamin D council website? I found it very useful.

sipper Thu 03-Jan-13 10:52:51

I agree that Vit D Council website is very useful.

My levels were low even though I was taking supplements. Only found out when I was pregnant with DD3 and I requested a blood test. Really glad I did as result came back as deficient and I was able to increase the dosage. If I hadn't been tested I would have merrily carried on supplementing as I was (which was already above the 'NHS' guidelines level) and would have been deficient for me and my developing baby.

There's a 10 downing Street petition to call for Vit D testing as routine during pregnancy. Sadly it doesn't seem to have many signatures yet, which is a great shame. Perhaps we can add to it? Here's the link.

Information I have is that drops or gel on tongue is best way for body to absorb Vit D. Also needs to be a good make (not ones found in supermarkets or the own brand type). Nutri is very good. As is Biocare. Better You also OK. Vitamin D3 is the type required. Info from my DH who is a healthcare professional and this kind of stuff is part of his daily work so he's always very well read on such matters and it was him who urged me to insist on being tested.

knackeredoutmum how is your magnesium level? Another commonly deficient essential - if you buy some Better You magnesium spray and use a few squirts on your leg before going to bed you can gradually start to increase your levels. Better You says if you get a tingling where you've applied it that is a sign that you are deficient, so dilute the application and start more gradually. Magnesium levels important for sleep. Lots of info here:

and B12 ('boost') for sleep and generally feeling good:
(spray the B12 under tongue - 1 squirt for kids, 2 for adults; use in the morning or daytime - do not use in afternoon or evening/night)

Info from BY website:
My skin tingles when I apply Magnesium, is there something wrong?
If you are Magnesium deficient you may feel a tingle or slight itch upon application of Magnesium. This is normal and is actually a sign of Magnesium deficiency. The tingling will reduce as you continue to use Magnesium. If you experience any pain then you should rinse the area where you have applied magnesium. It is possible to dilute the magnesium with mineral water to create a weaker solution.

sipper Thu 03-Jan-13 11:13:33

Forgot to say that magnesium is crucial co-factor for body's utilisation of Vit D:

DoubleLifeIsALifeHalved Thu 03-Jan-13 11:23:44

Vit d deficiency, as others have said, can be really harmful. Mine was so low I developed hyperparathyroidism & my body ended up taking calcium from my bones & excreting it - so brittle bones that may never regain their calcium. I was on 20,000 ui / week of vitamin d for a year & now thyroid is better but bones still rubbish. My gp totally ignored the whole thing though, it seems a bit of a blind spot, perhaps due to cost. I had the tests done by a rheumatologist. She said I was very lucky to be diagnosed in time, & also lucky that the 20,000 capsules had been approved the fortnight before so I could get them in this country.

Point being, take results to your gp, as if you are very low the vit d you can buy won't help at all.

Thanks btw, this thread has made me remember to keep taking it seriously & get some supplements down me!

knackeredoutmum Thu 03-Jan-13 19:26:11

mine was 36, which i think is low but not dangerously low? am i right there?

Rikalaily Thu 03-Jan-13 19:36:20

Mine usually comes back below 20 but I've only been given short term vit D/calcium lozenges up to now. This time I'm on 20,000 a day for 14 days then one 20,000 dose a month. I have a thyroid problem and a sunlight allergy which is why it gets so low.

Have to say that 11 days into this higher dosage and I'm feeling ALOT better, nowhere near as tired and the constant ache in my joints and bones is easing off, also headaches almost completely gone.

sipper Thu 03-Jan-13 21:40:53

Vit D levels

Vit D council website says the following:
Studies indicate that for proper health, serum vitamin D levels should be a minimum of 50 ng/mL (125 nmol/L), with optimal levels falling between 50-80 ng/mL (125-200 nmol/L). These values apply to both children and adults.

knackeredoutmum Fri 04-Jan-13 09:17:22

does anyone think a result of 75nmol (30ng/ml) would result in significant fatigue or is this above that level for causing fatigue

sipper Fri 04-Jan-13 10:45:32

Doesn't sound exceptionally low when you look at NHS but all ther reports I've read would suggest that 30 is pretty low and therefore fatigue could quite credibily be a symptom. However could also be a combination of factors. Low vitamin d, low magnesium, low b12. I'd get them all supplemented.

Also, if you drink alcohol how do you feel it affects you? Sorry if sounds random but having another thought!

SofiaAmes Fri 04-Jan-13 10:54:51

My father is a well known scientist who works on aging and causes of cancer. He recommends (and takes himself) 3000iu per day. In addition, you may want to consider CoQ10 (400mg per day, split 1/2 am and pm) for the fatigue. Magnesium and Riboflavin and a multi-vitamin also all a good idea. I give all of the above (and L-carnitine) to my ds who has a mitochondria dna mutation which can cause fatigue as one of the symptoms.

myfavoritedayismonday Sat 05-Jan-13 13:43:42

My vitamin D level was 50, is that low enough to be goving me any symtoms? My GP seemed to think it wasn't that low. I've ordered some D3 online. I noticed that my multivitamin has D2 in it. Anyone know anything about the difference between these two and what you need?

mercibucket Sat 05-Jan-13 14:05:01

you still need supplements at 50. i feel symptoms at that level. d2 is a waste of time really, it won't do much at all, hence why your levels are still low.

ShotgunNotDoingThePans Sat 05-Jan-13 15:06:36

sipper, might I suggest starting a thread to draw attention to the petition? Not sure rhis will be getting much traffic.
Helpful info on this thread, btw smile.

myfavoritedayismonday Sat 05-Jan-13 20:22:52

Mercibucket what symptoms do you feel at 50?

mercibucket Sat 05-Jan-13 22:05:18

I get sore feet, on the tops, and knees. That's when I know my levels have slipped. Before I was treated I had a lot more, with bone pain in lots of places and also tiredness, but now I take supplements and I don't get all those symptoms any more, just the pain on top of my feet when levels start to slip.

knackeredoutmum Sun 06-Jan-13 19:19:00

The magnesium spray bottle says 10 sprays = 60% rda, but I think this thread is suggesting just a couple of sprays? How much would you need and is there a safe maximum?

sipper Sun 06-Jan-13 21:34:24

Did it say anything else on the cardboard packaging? (Are you talking about one of the Better You magnesium sprays?)

It was prob me who mentioned starting with two sprays and I was prob being over cautious.

Just asked my DH who suggests starting with 3 sprays per leg and seeing if any tingling (or the sensations BY explain as potential reaction when deficient). Build up gradually night by night until total sprays get you at your RDA (unless you're having green leafy veg in good quantities every day and don't have any stresses in daily life - adrenal glands use up a lot of the body's magnesium). If you are taking vit d then it is important to have your RDA of mag every day. Also Check if magnesium is in any other supplements you are taking and revise the number of mag sprays needed accordingly.

Eurostar Sun 06-Jan-13 21:58:11

sorry to add to the worry and cost that is supplementing, research is now suggesting that vitamin k2 (not k1 which is mostly the K used in vitamins, especially cheaper ones) is important alongside D3 otherwise the extra calcium that D3 encourages to be taken up might calcify in the arteries rather than in the bones.

Eurostar Sun 06-Jan-13 21:58:52
mercibucket Sun 06-Jan-13 22:39:54

really interesting eurostar, thanks

we eat tons of cheese - would that give us enough do you think?

Eurostar Sun 06-Jan-13 22:48:15

I'm no expert I'm afraid, it's just what I read. I understand that certain cheese producing bacteria have k2 and others don't but whether or not our mass produced food has those bacteria, who knows...

Interesting interview here:

sipper Sun 06-Jan-13 23:08:07

Just asked my DH and he says we should all be making sure we are taking/getting enough d3, mag and vitk. I think I need to get him to start reading these threads so he can add all the latest info - I can't keep up!

sipper Mon 07-Jan-13 20:30:02

Just been talking vit k with my DH (ooooo we have such romantic conversations!) and he tells me he's currently looking into food sources and whether we get enough/how much vit k in our diet.

Will update when I have his full report!

knackeredoutmum Mon 07-Jan-13 20:33:24

ooooh do send him our way sipper, he could revel in the total geekiness of our thread!!! gringrin

ggirl Mon 07-Jan-13 21:15:04

ordered my vitd testing kit today

god it's a bloody minefield , all these supplements to worry about

SofiaAmes Tue 08-Jan-13 03:35:22

I hope you get more coherent information out of your dh than I got out of my father. He started explaining all about the mechanism of how vit k works and how important it is and all about his scientific papers on the subject and I am still none the wiser as to whether the obscene amounts of green vegetables I eat are enough. That's the problem with scientists (even if they are your father)...they can't communicate with the laywoman.

Eurostar Tue 08-Jan-13 21:44:40

From what I read Sofia, it was suggesting that the green veg would have K1 but not K2 - hence why butter on veg was a good idea as K2 in butter (although I think only from grassfed cattle - hence a yellow colour butter?).

SofiaAmes Tue 08-Jan-13 21:59:36

oh being healthy by dressing my veg with olive oil instead of butter is now out the

mercibucket Tue 08-Jan-13 22:06:20

rock and hard place
was just about to ditch the butter for olive oil after horrendous cholesterol test

ShotgunNotDoingThePans Tue 08-Jan-13 22:23:14

Well I'm feeling vindicated for refusing to ditch butter since leaving the Margarine Years behind at 19 (30 yrs ago!).
I do cook with olive oil and use it for dressings on the rare occasions I eat salad - but I still have butter on bread, baked potatoes etc so I'm glad it's adding good vits as well as fats.

sipper Tue 08-Jan-13 23:12:37

Hiya Sofia Thankfully my DH is fairly patient even when I don't understand. He can practice his explanations on me!! When I am driving him mad by not understanding I like to think that I am simply being helpful and am his 'plain-English guinea pig'. (!) Your decscription of your father reminds me of when my dad attempted to teach me to drive. Who in their right mind says to a 17 year old "The car's labouring!" ???

As the thread has taken a little spin in the direction of fats. Here's a mini public health announcement on the subject of cholesterol:

<throws in food info stink bomb then dashes back to safety.....>

- To reduce inflammation in the arteries and keep inflammation from occurring it is important to address what inflammation triggers there are in the diet.

- Cooking oils/fats and gluten are two v big factors.

Olive oil is still a good oil but should only be used cold - for example on salads. Olive oil, sunflower oil, and other vegetable oils, turn to transfats when heated. Transfats = bad news :-(

For cooking the 'safe' fats to use are rice bran oil or coconut oil. Or animal fats (inc. butter) (minor complication on the animal fats front though, as, to be truly OK, the animals need to have been grazing on their natural foodstuffs rather than been fed a diet of soy/corn/other veg as tends to happen in mass production).

2) Also important to reduce gluten intake as alongside olive oil/sunflower oil/margarines etc, gluten is another major cause of bodily inflammation in most people's diets. That doesn't just mean inflammation you can see, but inflammation you can't see (that is what causes cholesterol build up). So, using gluten free pasta as the norm is a good step to take. And not having bread very often (especially not every day).

This is a v simplified account of what and why. Not simplified because I don't think anyone on here would otherwise understand, but because it's the only way I can understand it!!

SofiaAmes Wed 09-Jan-13 04:25:33

Sipper, are you sure that's correct. I think it's when they are heated up to very high temperatures that they become problematic. But I don't think they turn to transfats....will research further. Is your dh a scientist or dr?
Anyway, I was being a little facetious. I cook with olive oil (not at super high temps....I do my deep frying with veg oil), but always put butter on my bread and baked potatoes. My father wrote a big paper on vit k, but didn't discuss difference between k1 and k2. I will have to ask him and then get my mother (also a prof of biochem) to translate.
There is a lot of evidence about hydrogenated vegetable oils and high fructose corn syrup inflaming the gut and causing all sorts of issues, obesity only being one of them.
If we comparing things our dads did to us as teenagers, I think I win the prize. My father asked my boyfriend for a urine sample one day when we came back from the beach and he was sunburnt and my father was measuring dna damage excreted in the urine.

sipper Thu 10-Jan-13 23:07:56

Hi SofiaAmes yes, am sure that's right. Yes, as you say, it is when at high temp. I have no idea what temp my food gets to sometimes (for example when using a frying pan) so I use the fats that are currently shown to be the stable ones. My DH is not a scientist or a doc, although is a sort of mixture of both. Don't want to fully describe him as don't want to out him! But he is very knowledgeable and anything he doesn't yet know, he generally makes it his business to find out one way or another!!

Would love to know more on your dad's Vit K info. And info from your mum too. How wonderful!

Don't get me started on high fructose corn syrup. That is a major bug bear! Should be outlawed!!

You definitely win on the teenage tales front! The thought of your boyfriend being asked for a urine sample by your father keeps making me giggle. Brilliant!

sipper Thu 10-Jan-13 23:44:22

Hi ShotgunNotDoingThePans thanks for your lovely message.

Here's that petition link again

It doesn't seem to have many signatures and it closes in about three weeks. Any thoughts on how to help it get moving?

It sounds like a great idea and it would be a shame if it just feel off the Downing Street system due to lack of support. I wonder if it has already been mumsnetted...?? (Are petitions allowed on here and can MN rally thousands of sigs in a few weeks???!!)

P.S. Anyone who has a mo - please sign it!

(It's to call for Vit D testing as routine during pregnancy. I am v keen on the idea - I was deficient in preg even though I was supplementing. If I hadn't pushed for a test I wouldn't have known to up my intake).

ShotgunNotDoingThePans Fri 11-Jan-13 07:38:54

(Are petitions allowed on here and can MN rally thousands of sigs in a few weeks???!!)

Lookee here *Sipper* [smile]

One signature added!

NannyPlumIsMyMum Fri 11-Jan-13 07:51:52

The GP will prescribe you the supplement at the correct dosage so it's not something you need to worry about.

Iv had low levels on and off for years ... Some people do in the winter. As we enter spring and summer you shouldn't a supplement .

Don't go to crazy on the suncream either - that's one of the reasons we as a country have rising levels of low vit d .

Suncream inhibits its absorption so use sun cream sensibly but remember you need some rays too your skin too :-)

mercibucket Fri 11-Jan-13 17:17:31

That's not always true nanny
Firstly - many GPs don't know much about it
Secondly - some don't want to prescribe it anyway
Thirdly - some health authority protocols won't treat low level deficiency
Fourthly - if you are vit d deficient, it is usually recommended to stay on maintenance therapy once levels are restored
Fifthly - our summers are crap which is why a lot of people need supplements in the first place

Op, what did you do in the end and do you feel any better yet?

knackeredoutmum Fri 11-Jan-13 18:07:15

Am taking 5000iu vitd3 to retest in 10 to 12 weeks.

Have been taking just over two weeks but no change yet. If i started at uk 36 and take 5000iu, when do you guess i would feel better if this is the only problem?

Sent off blue horizon home blood tests on monday but havent had a result or acknowledgement. Anyone know when to expect something?

knackeredoutmum Fri 11-Jan-13 18:21:38

Oops blush thanks for asking

mercibucket Fri 11-Jan-13 19:27:56

Did you give them your email? Mine were emailed straight to me a few hours after they must have arrived at the lab! Pretty quick! So maybe chase them up in case they got lost or something.
I'd guestimate about 6-8 weeks before you get levels up to something decent, but that's a stab in the dark really. My sisters went from that to mid 50s in a month on the same dose, so that's what I'm basing it on (not much!)

knackeredoutmum Fri 11-Jan-13 20:12:03

arrggh, shame I didnt realise until now, I have emailed them anyway but I dont expect they will receive my message til Monday now

knackeredoutmum Sat 12-Jan-13 09:19:22

Well, they have been utterly useless. They have a received a report saying that the sample size was insufficient when it was the volume that they requested - but they haven't bothered to tell me this.

They have received nothing for the simple reports and havent bothered to chase it up or inform me of that either.


mercibucket Sat 12-Jan-13 13:38:49


Oh no, so are they re-sending the vials to re-do the test?

nomadwantshome Sat 12-Jan-13 13:45:00

Fascinating thread, nothing to add, just marking my place.

knackeredoutmum Sat 12-Jan-13 13:56:51

I have to wait for someone to contact me next week. But I cant do anything different, I sent what they asked for last time so I need a personal response from them really

knackeredoutmum Sat 12-Jan-13 13:57:44

I was given one 0.5ml vial for one sample which was supposed to be used for all 3 tests, does that sound right?

knackeredoutmum Tue 15-Jan-13 09:49:29

partial results back, here I am.

ggirl Wed 16-Jan-13 19:47:30

well I;m pleased vit d results came back as adequate at 74.3 !!

mercibucket Wed 16-Jan-13 21:46:14

that's good ggirl but still needs supplements right through winter! should really be over 120 heading into the dark depths of winter as you won't get any from the sun til april

sipper Thu 17-Jan-13 10:31:18

Hi Shotgun Thanks for petition threads link. I'll have a search to see if the petition is already on there. And then might add it anyway! smile

fivecupsoftea Thu 17-Jan-13 14:43:21

After reading this thread I ordered some Vitamin K2 to go with my vit D, does anyone know which one is most easily absorbed, or what not to eat to aid absoption, I don't want to spend all this money and then just pee it all out...

TigerFeet Thu 17-Jan-13 14:50:24

Marking place to read later, off to do school thing. I have low VitD and am taking 4xAdcal daily, on prescription. My level was about 35 iirc. Permanently knackered.

knackeredoutmum Thu 17-Jan-13 15:18:30

tigerfeet, this is a great thread, Ive received lots of support and useful info here.

Your Vit D level is same as mine and it seems I might have other contributory factors as well.

Anyway, I have started taking 5000iu D3 only per day for 3 weeks and I dont know i it's the placebo effect or not (!!!) but I think I am feeling better than I was 3 weeks ago. Still very tired and fatigued, but not chronically sofa bound and needing to sleep every day.

knackeredoutmum Thu 17-Jan-13 15:20:40

also tiger, tell us what dose your adcal tablets are, when are you due for blood review?

TigerFeet Sat 19-Jan-13 13:48:47

Hello, sorry not made it back onto MN for a couple of days.

I'm on 4 x 200iu daily, two in the morning and two in the evening.

I have to wear sunblock due to having a precancerous skin lesion removed from my arm a few years ago so I think it's stemmed from that. I'm at the GP every couple of months anyway as I'm being treated for depression, I'm currently well but I was still feeling exhausted so the GP did every test imaginable to see if there was an underlying cause - this was it. I've been taking the Adcal for a couple of months now and I think it's starting to make a difference now.

My bloods will be done again mid Feb ready for results to be back at the GP for my next review at the end of Feb. THis will be my first retest since I was diagnosed a couple of months or so ago so it'll be interesting to see what's going on.

I understand you also have to have Ca levels checked, in case the Vit D deficiency has affected your calcium metabolism or the Adcal has sent your levels skyrocketing.

I'm going to go and have a read of some of the links upthread, thanks everyone it's always good to be armed with info.

mercibucket Sat 19-Jan-13 15:55:52

tigerfeet, if you have a vit d problem not a calcium problem, you should really just be on vit d. excess calcium is not good for you. you can buy d3 cheaply eg solgar and take a higher dose than the one you are currently on as well

knackeredoutmum Sun 27-Jan-13 07:58:14

If you know anything about thyroid levels please could you look here for me?

Also I have got results of

ferritin - 84 (27-150) so sounds good?
active b12 - 66 (25-165) (apparently a new test, not just straight b12)

So I think these sound okay, right? But I have no idea about the thyroid function tests

RockinD Sun 27-Jan-13 11:34:54

Ferritin looks pretty much OK. Over 90 would be better, but probably close enough for rock 'n' roll.

I don't know about the active B12 test, but would observe that your result is in the bottom half of the range, which may be an issue. That's applying logic to it. Hopefully someone will come along who knows a bit more.

You asked about thryoid. Do you have any thyroid results to pick at?

digerd Sun 27-Jan-13 12:54:04

On a routine full Blood test < including Thyroid> my Calcium was a bit low, so Gp out me on the Adcal-D3. Nothing to do with my Thyroid, but my thin bones diagnosis I had a few years before the Calcium was found too low < if it had ever been tested before?>

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