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*tamoxifen* 31- in the bus shelter with the cheap booze

(984 Posts)
Gigondas Mon 03-Dec-12 17:13:36

Shiny new thread

oh well spotted gig ! - lugs over the Concorde wine and advocaat...

smee Mon 03-Dec-12 17:35:41

Ooh, do we have sticky carpets? grin

Gigondas Mon 03-Dec-12 17:53:23

Of course and a jukebox that hasn't been changed since 1993.

Oh, new thread. I can offer some Diamond White blush. Tell me I'm not the only one who may have drank a few in the day?

glad you got the aveeno sorted mas and that is lovely about the vouchers.

I received a voucher as well which I am absolutely over the moon about. I am so touched that I was nominated. TBH because I don't really venture into Mumsnet land I knew nothing about it but can I say a huge, huge thank you to whichever one of you nominated me (I know it is one of you because I don't really post on any other threads). Thank you so, so much.

Will have a look later at your photo gigs. At the end of the day it is whatever you feel comfortable with and to pot with anyone else.

topsyturner Mon 03-Dec-12 18:33:22

Ducks in lugging Thunderbird with her .
Gets loud and Bolshy .
Throws up on Gracie

topsyturner Mon 03-Dec-12 18:42:11

And also to add that my lovely next door neighbour is likely to be joining us .
She just had a second mammogram and core biopsies taken today .
Surgeon has told her to be prepared as she is thinking its DCIS hmm

Gigondas Mon 03-Dec-12 19:35:19

Poor neighbour- but will budge up in shelter for her.
Anyone fancy some buck fast wine?

poor neighbour - have you warned her about us topsy ?
gracie you deserve a treat grin

Aw poor neighbour topsy.

mas are you owning up? grin

smee Mon 03-Dec-12 20:13:33

Tutting at Gracie and her Diamond White. <Walks to the other end of the shelter with her Cinzano & Coke> grin

Yes, poor neighbour, Topsy. When does she get the results? Am guessing very soon.

invicta Mon 03-Dec-12 20:23:00

Wow, a new thread, and a new royal baby to celebrate. Hi, all!

topsyturner Mon 03-Dec-12 21:23:57

Results apt is next Wednesday for her . I have helpfully told her she is just jealous of me ...smile

smee I'll swap you a Diamond White for a Cinzano. blush I love Cinzano and lemonade.

KurriKurri Mon 03-Dec-12 22:53:02

<staggers in belching, throws peanuts at mouth misses completely, falls down>

evening all, like the new thread, we can't be 31 already surely?

topsy, your poor neighbour, we'll keep a space warm on the sofa for her if she has to join us.

Hope everyone is Ok today, haven't been in much today and I'm just off for a bath, but wanted to pop in and say hello smile xx

Copthallresident Mon 03-Dec-12 23:28:49

Is there room for me? As I went to uni in a port I had access to wine so cheap and disgusting it wasn't worth putting on a lorry out of the docks so I can offer Sordid Lopez and Choix de Roi, with added anti freeze, in case it is cold in the bus shelter. I can also raid DDs student flat drinks collection, the Scot's Mac, 25% whisky 75% fine English wine, looks particularly vomit inducing ...........

Topsy Sorry about your neighbour. One of my friend's had DCIS and had four lumpectomy's, it would recur every year or so until she finally resigned herself to mastectomy. DCIS isn't always a lesser evil in terms of treatment should you need to offer comfort if it is what the Consultant wants to prepare her for. At Dad's party there were five women who had had BC, including a MIL and DIL. But then there were 50, so 25 ish women, with an oldish skew of ages so thems probably the statistics angry

Gracie You are right, gangnam style is definitely not for those of us not in serious dance training, I seem only to be able to walk gangnam style now.

Ned KKs advice is so wise and accurate. A couple of my friends really struggled in the first months after treatment stopped. I also think that it isn't just the medical support that starts to evaporate after the treatment finishes, all but the most supportive friends tend to think that now the heroics are over everything goes back to normal. Except that is actually when it hits you. I wish I had had the opportunity of Counselling because I am not sure if I have ever dealt with my deepest feelings about it all properly. And who doesn't worry about a new job with new things to learn?

MAS Your Dad's birthday in May? That should give lots of opportunities to do nice things outside? What a lovely bit of serendippitty to find Ravillious from the year of his birth.

Copthallresident Mon 03-Dec-12 23:36:17

gigs I am a great fan of the short do, apart from comfort, you have the fun of compiling lists of the things people say when they have complimented you on your hairdo and you reply "Oh it is great, why don't you try it?" I am afraid this was an evil game devised by my informal support group.... blush

But as everyone says, whatever you are comfortable with.

NedSchneebly Tue 04-Dec-12 07:43:11

<swings in with Jack Daniels and ginger ale> any room for me on the bench?

I feel better for having made the decision to talk to doc about it tomorrow. Everyone keeps saying "oh it's so great you're all clear, now you can move on with your life. . " I would love to, but don't know how. I just have this lurking feeling in the back of my mind, or when I'm sitting down, or when I wake in the night and I hate it. Will stop wallowing soon, I promise. . .

Have got stinky sore throat and cough too - hoping will be better for choir concert on Saturday.

gigs your hair looks very sophisticated and Sinead o'connor ish. If you feel. Comfortable with it, then go for it! Might take a hat too though - it's bloody chilly with not much hair!

topsy we will welcome your neighbour with open arms, although with sadness that she needs to join us.

Must drag DS from the computer and feed him breakfast. Shopping for final wedding outfit bits with DM today, so will swing by later and tell you how skint I am what lovely things I have bought smile

HerNextDoorAt21 Tue 04-Dec-12 09:59:46

OK you lot - budge up ! I am topsy's neighbour and in need of a bit of support. I see she has told you that the surgeon/and radiologist are almost sure I have DCIS in a fairly large area of my fairly large right booby and are recommending mastectomy.

I have to say I am a bit shocked ! I went for a voluntary mammogram at the Action Cancer charity (this is my second 2 yearly mammo) and they saw changes and referred me to Breast Clinic - I had 2 further mammograms and about 8 samples taken with vacuum assisted biopsy (having your boob hanging through a hole in a table whilst trying to lie flat on your front and stay perfectly still for half an hour is tricky isn't it ?) and then back to see the Dr who has said that if she is wrong about the DCIS next Wednesday when the results are back that she will be delighted. So here I am, playing a waiting game but fully expecting a mastectomy - I am sure I will have lots of questions and hope you don't mind me gatecrashing.

topsy and I have been through a lot since her diagnosis (carrying her sick bucket was one of the highlights!!!) and I am glad that I have been through it with her and know more what to expect. Look forward to getting to know you all although I still can't quite believe I am here !

welcome hernextdoor - very sorry that you have to be of course, but we can promise lots of support and encouragement and fbs from the trolley,plus revolting teenage drinks. The vacuum thing sounds a bit eek-I just had a core biopsy,no dangling through a hole.
Well done ned for seeking help from the doc- moving on is so difficult and other don;t understand that you can't just put things behind you so easily after a cancer diagnosis- it's not like a broken leg.
Exciting about wedding preps- I wonder if bride's dress is like I drew it ?
Keep warm and get throat better for singing.
Am off to look for cheese for my bookgroup cheeseboard -very exciting-cheese is one of my favourite things.

Gigondas Tue 04-Dec-12 11:31:05

Hi hernextdoor - did topsy make you carry the bucket for chemo or just from one of her nights out? Horrid time though waiting on tests so lots of sympathy .

mas I got obsessed with cheese on chemo so enjoy your shopping.

Am still in my pyjamas as mini gig was playing about (actually shouting about ) during the night . Being tired and then seeing story about someone with sarcoma set me off on brief depression this morning . Therapy has helped me a lot to understand and process this ned so I do recommend it ( I am going to go out soon to get some coffee from swanky new place in town and will make mince pies later).

Also copthall. (And kurri) I need your help. Am about to sign up for open university module on classics. Am wavering though so need some push to do it. I like it as its flexible and gets me back into studying even if not all of course as I would like (some bits of modules repeat my degree ) - also my therapist thinks I should so it via a " proper uni" (bit mean here) which doesn't suit me as well as open uni course does. Need to register by Thursday.

Make me do it.

Right ought to get on now .

Gigondas Tue 04-Dec-12 11:31:51

And am going to brave the hair but will hunt out a hat tomorrow when am meant to finish my Xmas shopping

do it gig !!!!
I saw the piece I think you meant (in the Times ?) about Cruse.
Am playing one of my Christmas playlists....

HerNextDoorAt21 Tue 04-Dec-12 11:47:21

Thanks for the welcome MAS and also gigondas I sort of feel like I know some of you already as topsy and I have chatted over the odd glass of lemonade ... ahem.

As for carrying the bucket on one of her nights out ..... a lot of them are with me so we have a bucket each !

arf grin !

amberlight Tue 04-Dec-12 12:23:07

<dashes in and shoves people along a bit>

'Afternoon all. Nice shiny new thread - just the thing!

Hi NextDoor! Welcome! You may have heard of some of us from Tipsy Topsy. I can assure you that it's all true.

Ask anything. We might know the odd answer. My answers tend to be very odd indeed, now I think about it hmm

*amber8 is our stats queen hernextdoor

amber tsk

smee Tue 04-Dec-12 13:01:15

Shuffling in to say hi to Hernextdoor. Not good that you're here, but there's strength in numbers. I had loads of DCIS and had a mastectomy (diagnosed March 2010). Ask anything you want and I'll try and remember. grin

Gig did you say 'finish your Christmas shopping'?! <feints> shock
What's the classics course then? Sounds intriguing.

Ned, I still feel like that some days! Don't mean to worry you, and it has got a lot easier, but I don't think you ever really learn how to cope with it all. Onwards is the way, but wobbling most definitely allowed, so stop apologising.

Speaking of wobbles, I just ducked into a Gap on way home from a meeting to try on a stripy top (MAS will understand!) and saw some skin changes on my breast. Eek... have googled and it's post rads damage and v.common apparently, burst blood vessels has a fancy name, but already can't remember it. I have an appt with surgeon next week, so she can reassure me that Dr Google's correct. grin

Gigondas Tue 04-Dec-12 13:26:43

Arf at tipsy - yep nearly finished smee as did loads of it via Internet . Also dsc want vouchers so not hard. Plus I loathe shops (hangover from job just off Oxford street upwards ago). Horrid shock about Skin (but gap do have lovely stripy tops and if wait they are always doing online offers)- the best thing about rads on your arse is you can't see it!

Yep that was the piece mas- cruse are amazing as helped me get over my sons death but the type and place of cancer too close too bone (god knows why I am moaning as it is so unusual to see it). That said it doesn't mean his story is my story iykwim.

And yes course is interesting as covers all aspects of classics (literate history and culture) and is stepping stone for masters or phd.

am sure it'll just be rads damage smee - did you buy stripy top ?
tipsy grin

amberlight Tue 04-Dec-12 14:00:59

Smee, I second the thoughts about the rads damage.
Gigs, classics course sounds v interesting indeed, especially having just been out to various classical places to have a hungover stagger about sensible historical discussion.
Open Uni also has the best teaching and satisfaction mark of any of them, if I recall.

PS yes, I do know useful and surprisingly cheerful statistics for all occasions, especially now we know that even much secondary cancer has an 80% chance of a good outcome with the latest doings.

HerNextDoorAt21 Tue 04-Dec-12 14:27:46

Good afternoon, Can I ask ....Has anyone had reconstruction surgery at the same time as mastectomy ? Just looking for pros and cons ??

HerNextDoorAt21 Tue 04-Dec-12 14:30:08

Amber I am one of your greatest fans and your facebook friend .... Lisa H... topsy united us !

amberlight Tue 04-Dec-12 15:03:27

<peers over her pince nez> So you are! grin
I didn't know I had fans, though. "Horrified onlookers" normally sums it up blush

Well well!

Copthallresident Tue 04-Dec-12 15:39:17

Gigs DO IT NOW! [arm twisting emoticon] I cannot tell you how much this studying has kept me sane the last nine years , it opens up a new world. I actually went back to work part time when my girls were about the same age as yours and though I had loved the five years I had taken off with them and I hadn't missed work in the least, when I did get back I really loved being good and competent at something and being challenged intellectually (not that DD didn't always challenge me intellectually, and in every other way) . Uni is even better for that.

I see what your therapist means about being a part of a mainstream uni, I do love being part of the institution and the face to face interaction and debate. However I think with online forums etc the distance learning options are very good and certainly a really low risk way of getting back into study (On my first MA module there were a lot of 20 year olds who were reluctant to get involved in debate and coming from a work background where I had done a lot of facilitation I felt obliged to pitch in out of sympathy for the poor tutor, so my rustiness was made blindingly obvious and I had to endure lots of withering glances being cast between the alpha girls. However we still meet up, I am much valued now that careers and babies have come along, so that taught them!) Going over old ground may be a big confidence booster. Also can you not at MA level as with U/G level, use your module credits against the various sorts of courses, distance, physical, mix of both, at other continuing education institutions such as Birkbeck and Oxford, where you might be able to fit the physical course around your life? I would not really have liked to do my MA at a mainstream uni when I had younger children because of the lack of flexibility (and my institution at least is back in the dark ages as far as flexibility around childcare is concerned, essays and diss all due at end of holidays etc. )

Birkbeck is across the concrete from the academic world's answer to Kowloon, or possibly at the moment Gaza hmm, and a wonderful place. In my area Julia Lovell is there, and she is lovely, recommend all her books, which make it on to mainsteam shelves in bookshops.

How was the new coffee shop, just had a cheeze souffle from the new Cook place, I knew it would be a disaster when the instructions said that the extent it would rise would be in the hand of the "soufflé gods" and once again they proved absent in my kitchen, still nice enough and better than the usual ready meals.

HerNextDoor Welcome in, we could do with that sick bucket, what with all the throwing up that goes on in here and the smell of stale wee. If you saw my comment below a friend had annual DCIS traumas and lumpectomys for five years and was very relieved to get a mastectomy in the end. We have lots of experience sad

smee Sounds like friend's rads damage. On my good boob I can display age damage, including red blobby things and the beginnings of old lady's freckly cleavage, which had me reaching for Dr Google, so you don't even need to have had radiotherapy .....

Copthallresident Tue 04-Dec-12 15:44:05

HerNextDoor I actually only have one friend who didn't do reconstruction at the same time as Mastectomy, apart from those of us who haven't had reconstruction at all. From my point of view I had a pretty horrible prognosis and I felt I had to take one battle at a time, and have never felt that another big operation was worth it. Friends who did both at once have never regretted it. Just one friend girded her loins to have it done later, a couple of years later in the end. All my friends had the big reconstruction though, the flap from the tummy moved to the breast which is a big operation. Obviously implants would be less of a big thing, but have their own drawbacks.

KurriKurri Tue 04-Dec-12 15:50:46

hello all.

Welcome HerNextDoorAt21 (can I call you HND? grin) sorry you find yourself here with us (even sorrier you find yourself living next door to a reprobate - I imagine you are trying to move?<ducks topsy's flying cake> grin) waiting is very horrid, and seems to take for ever, but it sounds as if you are getting mentally prepared for it being DCIS, and a mastectomy. Like lots of others on here, I had a mastectomy, so if it comes to that ask any questions you like - nothing off limits, we do all kind of booby chat on here! - will try my best to answer. Meanwhile stick around, sit yourself down on the sofa and have a cuppa and a big old wodge of cake smile

Ned - more hugs, we have all had those four o'clock in the morning wobbles, and they are no fun at all. It does get better gradually with time and distance from DX, but paranoia will always rear its ugly head occasionally, I hope Dr Lovely can help you out, talking it all through, even just saying it out loud, can really help. meantime massive smooches and hugs sweetie. I have sent HW on - stupidly I had a mental block and couldn't remember your surname - so have just put your first name on the parcel blush - so when a parcel that looks as if its from a crazy woman arrives, you'll know what it is grin

Gig - OU is really good fun, - I made lots of good friends on it, and everyone is very supportive of each other - there are all sorts of online groups as well as actual groups where you can get together and discuss the work. Its very structured IME, and if you can organize your time round the littlies as best you can, then very doable - a couple of hours studying a day, I would say - maybe a little more (I am quite a slow reader and writer of essays - others seemed much speedier than me), you learn to make the most of odd half hours here and there.

So go on, you'll love it - I felt such a sense of achievement when I did my
courses.

And stay away from stories in papers - they are always depressing, (you can read The People's Friend if you are good, - it is safe reading, although racy in parts)

And apologies - I will sort out the chestnut recipe tonight and Pm you, - I've been v. disorganized this week.

Waving to Smee, topsy, MAS amber, gracie and anyone else I missed, love you all madly.

Had a foul driving lesson today - instructor said 'have you thought about trying an automatic' and 'you don't want to be here still having lessons in a year do you?' hmm I am good at gear changing <stamps up and down>

amberlight Tue 04-Dec-12 16:09:16

The People's Friend is racy?! <rushes off to buy her copy>

PS - I drive an automatic and they are absolutely fantastic. Why I spent all those years with a manual car I have No Idea At All. Just saying...

HerNextDoorAt21 Tue 04-Dec-12 16:35:57

OOOOh I don't mind HND at all KK !!! Makes me sound all intelligent like !

Thankscopthallresident for your welcome and your info on reconstruction etc. I think, if I can, I would like to have it all done at once to get it over and done with. I have two boys, one aged 9 who has an ASD and more needs than your typical child and then a 4 year old boy who is just a four year old - I think one major surgery would suit me better. Like topsy I am English but have lived in Beflast for 12 years and have very little family support here to help with the aftermath of surgery and also have a DH who doesn't drive !!! thankfully I will have topsy to distract me by feeding me coffee and making me watch TV lend a hand.

NedSchneebly Tue 04-Dec-12 16:42:12

OK, final outfit for DBs wedding decided on. . .
this top with some grey trousers and black boots.

Quite pleasingly, I have dropped a dress size too! Well, in Marks and Spencer at least, but its a start smile Got some jeans, some cords and some fleecy Pj bottoms that my mum bought for me.

kurri will look forward to DVD parcel. And I refuse to accept that you are a crazy woman. Sounds like your driving instructor needs linching though. It could be arranged . . .

grin arf @ booby chat!

Welcome hernextdoor but sorry too that you have to be here. Pull up a seat, grab something from the trolley and ask away. I didn't have a mastectomy so can't help on that one, but we can probably answer most questions between us!

smee good you've got an appointment to get Dr Google's diagnosis confirmed. Sure its nothing to worry about.

gig OU course sounds great - go for it!

MAS haven't heard anything about DSIL-to-be's dress - will let you know!

Waves to all I have missed - love you all x x x x x

ooh that's a clever thing ned - you'll look very smart in that I reckon -and well done on dropping a dress size too.
otm has posted on previous thread so have directed her to new one.
Am really tired today and I feel as though I've done very little.

Gigondas Tue 04-Dec-12 19:17:12

Cafe is v nice copthall . Thanks for advice and push everyone-the flexibility (ESP as may well do some part time work if well
Enough) is what I liked. Who knows what can do next (optimistic hat on now smile ).

On subject of seasonal lunacy, is it me or are there a lot of threads about drunken misdemeanours on at the moment? no I don't mean you tipsy or your drinking partner hnd

otm if you are lurking- much love to you and the end is in sight.

Copthallresident Tue 04-Dec-12 19:18:11

HerNextDoor Yes that is the thing with this b****r Cancer, it's such an attention seeker, it doesn't understand that there are more important things in your life that need you or you want to be getting on with angry I think you are right, although it is a big operation and you spend some time in high dependency, so that they can make sure all the micro plumbing is working OK, in terms of actual time and your ability to get on with your life, doing it together is going to take less time, and toll, than two operations. Plus there is the risk you will never get around to the second. I don't regret my decision not to do it at the time because of the circumstances, even recovering from a Mastectomy and the effect on my blood counts delayed my chemo, but I do regret the circumstances weren't such that I did it all at once.

Mind, it may all still be OK? I am a great believer that it is not worth worrying about until it actually happens, a technique I have almost hmm perfected

I know a little of your life in NI. My best and closest and most gorgeous friend in the world is an English woman in NI (see what I did there, English Man in New York? Never mind blush) I love going there to her rural idyll, beautiful beaches, mountains and all the singing and poetry and she loves coming here for the London exhibitions and culture and general buzz, but nothing makes up for her not being next door, we both miss having such like minds close by, as well as the hugs and support (and getting the world sorted over a few bottles glasses of Champagne/ Prosecco/ Cremant d' Alsace/ Cava / Asti / Lambrusco (delete according to venue, guess which we are having in the Bus Shelter grin)

jchocchip Wed 05-Dec-12 06:28:54

Morning all, marks place. Bit early for drinking, will be back later. Hello hnd sorry to hear you had to join us. Must be interesting livimg next to topsy !

Gigondas Wed 05-Dec-12 07:30:31

brew ? Better night with mini gig and it is snowing (a bit) here today.

Copthallresident Wed 05-Dec-12 08:20:55

gigs Really? (Puts glasses on) Oh yes, a bit. If mimigigs gave you a break doubtless you slept through the police helicopter circling Twickenham for half an hour at 1am? It doesn't end though, big DD kept me up with essay crisis, she was really flagging yesterday, but with heroic mother long distance willing and coaching submitted it at 12.00 deadline on the dot, and then needed 1 hour talk down. She never let me stick my nose in when she was at school but she has three essays to write in the last three weeks of term, all counting to her degree, more than her History and English studying flatmates, and she is a Scientist confused so it is not her thing, and it is on top of a 35 hour week of tutorials, labs, lectures etc. plus a couple of practicals. Apart from Dad's birthday she has been in total essay purdah the last month. And I thought I was waving her off to uni, thinking over to her now............. Interesting essay though, would have loved to write it grin

Morning all brew Enjoy the snow!

overthemill Wed 05-Dec-12 09:10:35

hello everybody sorry i have been absent for a long time - been having very rough time with chemo - had 9 now and 3 left - so have had no energy for anything except absolute essentials. barely touched laptop and updated via facebook on phone just for family and friends on chemo day.

but had to come on to say thank you to my secret MN santa so wanted to pass on my good wishes to you all. lots of love and hope all is going at the very least ok. i know it is ending for me - active treatment - but even that seems scary!

(thanks MAS)

ledkr Wed 05-Dec-12 10:31:44

Hi all. I am after some advice and hand holding.
I had breast cancer a long time ago I was 27. I had small limp in rt breast lumpectomy and radio and chemo.
I later went on to have preventative double mastectomy.
I saw the geneticist who offered to test but also said if negative slightly irrelevant cos the young age I had it predispositions me to further cancer anyway.
I have a paternal history which was two of my dads half sisters. They don't share the same dad who's mother had ovarian cancer.
I have 2 dds so would like to know though.
I am now 45 and have annual scan and bloods for ovarian risk.
I am considering an ovranectomy which dr is happy to do but I'm struggling with making that decision.
I'm vain and am worried about weight gain hairy chin and wrinkles (superficial I know)
Had anyone had this who can reassure me?
Also should I get the testing now despite my young onset being a factor anyway?
Just had another slightly raised ca125 and am sick of worrying.

HerNextDoorAt21 Wed 05-Dec-12 10:44:38

Thanks again for your lovely welcome everyone. cop thanks for your long reply about the surgery. I too am a great believer in not worrying about things until they happen so we'll see.

Lambrusco for the bus stop I would think cop I'll bring along some of my DSS (17 yo stepson) "2 leet of Strongbow" ... a flipping "2 leet" , can't the young kids say "bottle" or "two litres" ??

As for living next to topsy we do have some very intersting times .... not sure how much she would like to embarrass herself ??? She is not posting becasue she ooviously can't be arsed to go and get DSS' laptop from upstairs as the MN app is not working on her phone ... either that or she is blinded from the ferocity of luminiscence from her landing strip Christmas lights

welcome ledkr - I have a friend who had an oopherectomy last yr,she's not on mumsnet but on facebook tamoxifen page,if that might be any help. So far she hasn't got a hairy chin or anything untoward. Can link you up with her if you like.
Sorry to be brief- am just dashing by having done some work,dh home and wants to go out to lunch- am not complaining.
Love hearing about tipsy from hernextdoor - saw her Christmas illuminations on fb grin

rocamadour Wed 05-Dec-12 12:43:53

Repeating this ! just saw the new thread. I'd gone to the old one !

Thanks kurri and copthall. I'm getting worried again. I had transvaginal us and my gynae reckons I have a polyp, probably tamoxifen induced. I'm having it removed and they'll also biopsy a sample of uterine lining. She did however think all looked normal apart from the prescence of the polyp. Obviously at the back of my mind is the thought of endometrial cancer; the odds are in my favour but then I thought the same while being tested for bc in the first place. sad

amberlight Wed 05-Dec-12 12:55:35

Ledkr, no wise advice on that, but saying a hello anyway smile

Roca, fingers crossed that it will be nothing rudely behaved.

brew all round, I think. <staggers back from the glow of Christmas lights at Topsy's>

rocamadour Wed 05-Dec-12 13:17:41

Thanks amber smile. I've just cheered myself up by buying some stuff from Space NK. And hello ledkr. I had an ooph at 46 and my chin is fine wink. I recovered very quickly and I've no regrets.

Elibean Wed 05-Dec-12 13:27:02

<waving at old pals>

<well, not old, old would be cheeky coming from me, but ykwim grin>

roca just wanted to say: have had polyp in womb, which bled a bit, and then fell off before they could even remove it - whilst I was under GA, naughty thing. They are very common, even without Tamoxifen - and FWIW even in the unlikely event that you did have uterine cancer, I know a gynae who always says she has NEVER had a patient die of endometrial cancer. Its hugely treatable, unless left for ages and ages, which clearly wouldn't happen with you because you are bound to be careful after BC. I know several women who've had hysterectomies because of UC, and they are all fit and well years later smile

HTH a teeny bit...probably not as much as NK stuff...

Nipping on quickly to say hello to ledkr and hnd.

WAs wondering what the bright light was over Belfast, must be topsy decorations grin.

Nipped out this morning to do a homecheck for a greyhound being rehomed and got back to discover my lovely new rug which I bought yesterday had been chewed by my stupid mutt. He is now in the 'dog house' angry. Black labrador going cheap.

Hopefully nip back later as I really need to catch up on all your posts.

I'll have your dog gracie !
I had a polyp discovered during a smear when I was much younger- I've blanked it out as they were very matter of fact about it and yanked it out there and then-I was left a bit traumatised.
Lovely lunch out at nice local bistro- I had a spicy parsnip soup and homemade bread then salt and pepper calamari -dh had something yummily seasonal for his main course-chicken wrpped in pancetta with a hare stuffing and winter roasted veg and a cranberry reduction (v Mastercheffy) and we had a big bowl of their amazingly lovely frites -yum yum.

Copthallresident Wed 05-Dec-12 15:33:19

ledkr weight gain? hairy chin? and wrinkles? Well I don't think it would be at all superficial if you had to worry that being thrown into menopause would turn you into a huge hairy wrinkled old hag overnight shock I haven't had my ovaries removed but I did experience something they quaintly call "chemical castration" i.e. chemo stopped play 11 years ago when I was 43. Of course all those things can come with age, depending on your genes, and in my case greediness, but I really don't think I'm that far ahead of my peers. Actually quite a few of them had menopause around 45 anyway. And since my periods made my life a misery there were upsides, I actually felt better at first. Of course it has all gone a bit downhill since but it would anyway, wouldn't it? If it helps stop you worrying on the health front that will probably be less wrinkles?

roci Had polyps removed when I was 30, when having surgery for Cervical Cancer in situ, so all the hormones must have been already aligned but it hasn't changed into anything nasty in the decades since....

gigs peeks out from deep cover, at risk of unmasking my guilty Mumsnet habit secret, did we just get sat next to each other in a certain Italian restaurant? If it was you, you look great!

ledkr Wed 05-Dec-12 16:32:44

Hi all thanks for welcome and advice.
Roca I've had polyp too prob from tamoxifen it stopped all my symptoms immediately (bleeding)
I have an appointment Friday to discuss testing so ill decide then?
Was the op painfull and how long were you out of action as I have a 22 month old

rocamadour Wed 05-Dec-12 19:34:17

Thanks Elibean, ledkr and Copthall. More reassurance; how wonderful !
I don't remember any post op pain ledkr. Mine was done by keyhole; at my hospital they had a policy that if you had an am theatre slot you'd go home same day. Mine was 3pm so they kept me overnight, but tbh by 8pm I was fine, walking (ok shuffling) a bit, and eating/drinking normally. Next day I was perfectly ok, a bit tender but no more than that. Gynae warned me I would probably feel very tired for a fortnight, so I took it easy for a few days and probably had a couple of afternoon naps but after that I felt 100% back to normal and don't remember any fatigue. I'd had a 'chemopause' but bloods were showing not fully post menopausal hence the decision. I had a spell of worsening hot flushes etc but that's all settled now. I still get them but they're more infrequent.

Baskets45 Wed 05-Dec-12 19:40:30

Goodness, that bright light in the west must be topsy's lights. Did Gig and Copthall really accidentally meet in a place in sarf London? Amazing! and London's so big innit.

Hello, everyone! I've been silent of late, but lurking around regularly. Really tired, quite flat and defeated by my ongoing problems, bladdy, bladdy bla. And lappy had to go into the laptop hospital - all better now. Steam driven PC in room with no heating - a BIg disincentive in this weather. So not online much really. Good to see you are all still keeping going, and producing laughs too. All that can be expected really.

V excited to read of Gig's study plans - my DH did classics (he reads Latin and Greek mostly on the loo these days). I'd say, if you want to do it, go for it, girl! I can see the attraction in your circs of OU rather than conventional uni - easier to fit round your young family, fatigue, ongoing hospitaly stuff. I've done OU stuff in the past - very good support online.

I hope Ned is okay. ? seeing nice GP today.

I had a CT scan today and thought of you lot! <Potted history: my last scan showed a dodgy node and they wanted a closer look before doing a liver biopsy (supposed to be this month too - but no date as yet - yawn, yawn, I like to know these things so I can write in triplicate on my calendar). Node almost certainly due to all the autoimmune activity. I don't have cancer (as far as I know - will know more shortly, ho hum), but various autoimmune problems - main problem with liver and bile ducts just now>.

Anyway, I giggled and thought of you lot when I had the 'peeing ma breeks' sensation as they injected the dye, as it's been mentioned here on several occasions (yes, those who don't know me, I am scottish and I throw in the odd expression to keep you all on your toes).

So, hugs and best wishes to you all, esp the newcomers to the thread and those having a hard time.

waves to baskets !! oh yes,the weeing sensation grin

Baskets45 Wed 05-Dec-12 20:07:18

Hello. MAS! I've been reading your posts and you are often in my thoughts (not just when i think I'm peeing myself!). I had another MN-induced giggle a few weeks ago when having blood taken - after the thread on Chat about the location of Alaska and Hawaii, I went to the surgery and the HCA had a map of the world on her wall. They must all think i'm nuts .....

jchocchip Wed 05-Dec-12 20:18:54

Hi Baskets, Hello everyone - I'd love to do a bit of Latin again. I did have a look at the online Cambridge Latin course a couple of years ago - thought the technology was great...
Cooking tea so shouldn't be on the pooter ;) Jolly cold here, no snow as yet but very icy roads and it took me an hour and a half to get to work this morning sad Working from home tomorrow smile

Baskets45 Wed 05-Dec-12 20:37:01

Hello, jchoc. V cold here too. More snow tonight, so glad to have nowhere to go out to tomorrow. Was a bit worried about ds2 going out on ice in morning, but he tells me it'sa sponsored silence - I think the not talking will be some challenge for him [smiled]. ds has minor mobility problems and falls easily.

Baskets45 Wed 05-Dec-12 20:38:04

emoticon failure! dear me! smile

NedSchneebly Wed 05-Dec-12 20:40:16

Evening all

saw lovely doc today - have been told I've got reactive depression. oh and a chest infection too, but that's beside the point. have been put in touch with local mental health service about counselling but they can't see me until mid January and then only a telephone assessment. Dr Lovely coming to see me at home on Monday so we can have a bit longer to chat and going to ask nice practice nurse to see me again as well. Would prefer to talk to them rather than some anonymous counsellor anyway. Feeling a bit overwhelmed, but doc has increased my ADs so hoping will help. Am possibly going in to school tomorrow, so hoping being a bit pro active will help me feel better too.

Thanks for all your ongoing love and support everyone - it means such a lot to me x x x

Waves to baskets sorry you are having a rough time. Hopefully CT will be reassuring.

Hugs to ned

It is so very cold here, think I will head to bed with a hot water bottle.

ned how lovely Dr Lovely is- and talking to practice nurse will be good. What about bcn ? I guess I really lucked out with mine - both are exceptionally good and I would be lost without my particular one.
love to gracie baskets and jane

topsyturner Wed 05-Dec-12 22:19:51

Well I am still getting bumped off the mumsnet app , most miffed by this !
So have had to resort to the mobile site .
Sigh !

My illuminations are indeed stunning this year .
HND is just jealous as she can't keep up with me ...

Nothing new with me .
Now have "crochet hand"
My fingers are locked into a permanent claw as I have crocheted 3 hats and 2 willy warmers (don't ask !) since Saturday grin

ledkr Wed 05-Dec-12 22:22:20

Her next door I had recon at same time as mastectomy. All very good ta good for me psychologically as never needed to see a totally flat chest iykwim?
My non cancer one could go topless but the one that had cancer is a bit hard and nipple very flat but they look very good in clothes.
I was a 32a before so a great improvement for me.

Can I ask - am suffering a bit with tummy problems- I think diarrhoea (sorry- am squeamish about mentioning bottomly stuff) Would 4+ bouts of this throughout the day mean i should tell the chemo nurses ?

Copthallresident Wed 05-Dec-12 23:05:13

MAS I would, it means you are not getting full nutrition, and there may be things they can do to help with the rest of the treatment.

baskets I am not sure I was sat next to gigs it's just we are in the same suburb, so small town really and someone was on table next to friend and I who we both have enough insight to know was just post treatment/chemo (though it was by no means obvious unless you have been there, got the badge, IYSWIM). However I do hope gigs isn't a) feeling stalked b) feeling slighted c) thinking OMG I would never want anything to do with women like that d) was actually miles away and thinking I'm bonkers... Who ever it was was with DH (or lover for all I know) and we were there for a bit of bus shelter chat, and friend is private not prone like me to flinging prosthesis across room, so not appropriate for me in tactless prosthesis throwing mode to say Hi, are you gigs, oo look everybody it's Cancer corner hmm disturbing nice private moments and risking possibly looking demented to everyone in the vicinity (and also mixing Mumsnet with real life).

Yes, CT scans, not fun.

Neds I want a Dr Lovely, not Dr there's a lot of it about, hospitals deal with that. I support someone who is bipolar (on a epic scale) and I am afraid that is a quick and positive response from the mental health service. Dr Lovely sounds so lovely though I think you are right about talking to her.

Topsy I think I am about to get "knitting hands" having worn Killing jumper (as we established worn in Scandinavian drama, not for actual killing) at parents and Mum having said " I love your jumper" * 10, then told all her friends at Dad's party about jumper, then asked me how long it took to make jumper. I can take a hint but these things take me months and I have 20 days, I'll probably give her the one I made earlier...... So willy warmers? I am asking?

Gigondas Thu 06-Dec-12 07:29:38

copthall don't think it was me as I Picked yesterday to brave Oxford st amongst other things (visit to dietician and therapist) but interesting to know another chemo type locally so I don't have to feel too conspicuous.

ned am glad dr lovely helped but seems long time to wait so hope practice nurse and dr can help as well as ad.

mas echo what copthall says - but (sorry if tmi) looser movements and bout 3 times per day was normal when I was on chemo (I think more than 3 counts as diarrhoea).

baskets I was just wondering how you were- hope scan Etc shows something practical that helps you (ifykwim).

Back later as have to do kids' breakfast . Oh and signed up for open university course - starts feb!

mm, took my anti-diarrhoeal stuff - hope am ok for tonight's book group party- have also gone off my beloved green tea because it tastes weird..sad

Gigondas Thu 06-Dec-12 07:38:57

Try white tea- I like stuff from rare tea company . It's less strong on caffeine and the antioxidants in it help chemo work better.

jchocchip Thu 06-Dec-12 08:10:11

Morning all! Hope the weather is kind to you. Got to get up now but putting it off.
Ned, a day in School may be just what you need, could be scary going back, I found it daunting, but it was amazing how quickly I got back into the groove.
Woodburner day today smile

Copthallresident Thu 06-Dec-12 08:33:45

gigs So it was d) blush Sorry put two and two together and made five but yes there is someone about who is young and still wearing a wig but perhaps the lesbian look is about to take off in Twickers? smile. It was also that whoever did keep looking sideways, as if wondering what I was wondering, but then we were talking bus shelter things, some of the time.

Oxford Street? Now? That is brave, or mad. Had to go and get passport on Monday and wait four hours for it to be ready, took one look at Knightsbridge and fled to the library ... Getting the passport was a trial. Fierce scary lady in passport office marked my form and photos a FAIL three times, and then made me stand there repeatedly filling in the signature bit until it was INSIDE THE LINES, and even said "Now take a deep breath and write slowly". I would have felt that treating me like I was in Reception was due to my chemo brain, given once upon a time that signature was perfectly acceptable on very important letters and £14m contracts and things, except she was doing it to everybody. Young glam city banker behind me was as much of a fail as I was!! But we needed the passports and couldn't shout, so we formed a support group ...

Do sign. February is so dismal.

MAS I hope things slow down. Have you tried making the tea really weak? Chinese style.

Well done gigs on enrolling with OU. I would love to have the brains to do something like that alas I feel even more stupid since chemo (that is my excuse and I'm sticking to it).

mas have you tried the green tea with lemon, very refreshing. Btw the greyhound you 'liked' on FB last night was the one I homechecked for. He is off to a fab home with a lurcher and terrier. Hope your bowel problems ease up.

The mutt has gone to the vet for his booster shots and grooming. I have to pick him up soon so he is bound to be huffing so dear knows what he will chew when I go out to do the school run.

he was lovely gracie I can't cope with any tea with lemon since I was given lemon tea once and had to throw it in a flower bed- strange as I like tea and I like lemons grin

topsyturner Thu 06-Dec-12 14:20:50

I live on peppermint tea Mas
Drink gallons of the stuff !

topsyturner Thu 06-Dec-12 14:23:01

One of Santas robins just had the nerve to briefly land in my back garden
Pig/Dog has gone postal at it .
And telling Pig/Dog that Santa won't bring him any presents if he is mean to the robin isn't shutting him up ...
grin

HerNextDoorAt21 Thu 06-Dec-12 15:13:19

Afternoon all smile Found the laptop topsy ? You will all have to forgive me for my sporadic appearances. I work full time and spend most of the rest of my life running around after the kids etc.

Thanks to everyone for their experiences regarding reconstruction etc. I think like you ledkr, I would prefer the non flat chest look if I could possibly get away with it ... will have to see what they say next week.

I had a very wobbly day yesterday, a pity party and a "oh why meeeeeeeeeee" day but feeling a bit more chirpy today and have had to get on with life seeing the clinical psych for my ASD DS and his conitnuing soiling problems and now just about to head off to the dentist with my 4yo DS.

Although I am (and will continue to be) eternally grateful to topsy for being there for my constant ear bending, over wine, gin, bacardi, meths coffee I have requested counselling through my GP which will hopefully be progressed quickly (by my good friend who it the GP's practice nurse who has siad she will try and bump me to the top of the list blush) to help me with the months ahead and just my mad life as a parent to 2 wee children and 3 older (and very bloody challenging) stepkids. I only came off ADs two weeks ago and think I should maybe go back on those too .... see what next week brings.

It is interesting for me to be reading and getting to know you all a bit better.

Baskets45 Thu 06-Dec-12 15:26:41

I was just thinking, Copthall, couldn't you do your friend Just a Scandanavian-style willy warmer instead of a whole sweater? I've heard Topsy has a pattern .... <happy to see topsy is taking the homemade Christmas pressie idea very seriously - isn't kurri doing homemade stuff this year too?!>

Good to hear Gig has signed up for OU. I always wanted to do Latin Higher (Scottish, similar to AS) - did a crash O grade late 1970s, but when i met DH, and realised he was the most pedantic man on earth and a Classisist to boot, I knew I'd never get peace to make my own mistakes. Ho hum. There's always plenty of other stuff to learn.

Sorry MAS having gut problems - hope meds help and you feel much better and enjoy book evening.

Ned, so pleased you are getting help for your depression. It's horrid, but so understandable after the awful year you've just had. Hope the day in school was good, and not too stressful. You know you shouldn't feel bad or guilty if you need a bit longer off till all the emotional stuff sorted some more. Also, you won't get instant results frm your upped ADs - you probably know that already, but lots of ppl don't so I thought I'd mention itsmile.

Anyway, must get out for walk before dark - had a quiet day inside. A few bits to get at shops. DH doing music with ds. it's noisy! Love to all. xx

jchocchip Thu 06-Dec-12 15:51:27

Sometimes I leave the tea out completely and drink hot water. My friend squeezes an orange over hers. Hot ribena was always a treat, too. Not surprising that you had a wobble hnd, I have a history of spectacular wobbles myself. Fresh air and exercise help, usually.
Supposed to be working so back to it. Have new woodburnersmile, but can't light it until tomorrow sad

topsyturner Thu 06-Dec-12 16:15:39

Willy Warmer Crocheting is for my lovely bil .
He has (mercilessly) taken the Mickey out of me since I took up knitting and crocheting . He thinks I am a Very Old Lady !
So I have crocheted him a micro one and a maxi one , and he can take his pick !!!
grin

ledkr Thu 06-Dec-12 16:34:24

I still have wobbles eighteen yrs later . Currently I am freaking about pain in wrist and foot which of course could be nothing else but cancer.
Got go tomorrow to discuss raised ca125 and ask for referral for my oof.
What the hell eh ill just have to embrace the menopause grin

jchocchip Thu 06-Dec-12 16:54:46

grin topsy have you got a pattern?

Copthallresident Thu 06-Dec-12 17:33:13

Baskets I think my 79 year old mother would be a bit taken aback by a willy warmer, Dad might be quite flattered by the maxi though wink They were quite a randy pair when I was younger. I once came back with friends from a night aged 17 and they were at it on the sheepskin rug in the front of the fire, oh the horror and shame.... My friends have been in awe ever since!

Gigondas Thu 06-Dec-12 18:13:25

grin At your parents being goers copt

hernextdoor I think counselling is an excellent idea (see a therapist myself and it does help). Also feel
Your pain about big step kids.

topsy you are not shaming me enough to pick my knittjng back up and I really should.

baskets I fear how rusty I will be on this course and that I will have a picky tutor.

jchoc is your woodburner warm? A friend has one and I am envy

ned hugs and thanks- I still have wobbles so I can only hope you get some help soon. I don't think christmas helps as the air of jollity can make it seem worse if you aren't havjng best time. Also a year on is a massive dip according to my dm.

mas how is the Xmas playlist and how are boys exams?

Waves to amber smee and anyone I have missed- fresh baked mince pies for fbs if anyone keen.

copt I'd have died of embarrassment !!!!
hello gig T seems to be coping ok with the exams- drama and maths today...
Christmas playlist all done and sounding good !

Baskets45 Thu 06-Dec-12 19:10:19

Our sons caught us 'at it' a few years ago, on the hall carpetblush. And, no, nobody was wearing a Santa hat. I still cringe and laugh in equal measure when i think about it. The boys had all gone out to the library, first time EVER they'd all been out without one of us - they came back early cos the boy who falls had fallen. By then we'd retired behind a bedroom door - and I am deaf so didn't hear the boys returning - luckily DH warned me, but they did overhear some 'talk'. DS1 did give his father a bit of a smirk later, but nothing else was said. It's funny what teenagers think about 'the oldies' having a sex life, though TBH i was a bit of an innocent and I never gave my parents' sex life a thought as a teen. However, my dad was very keen to tell me about his vasectomy - in a shopping centre no less - I was in my late 30s by then. He was recommending it for DH after ds4 was born. Since I was born in 1961 and he had it done soon after, it seems he/my dad was in the 'vasectomy vanguard' which i've always thought was quite funny as I didn't think my parents were 'ahead' in much else.

Gig, you will have a lovely supportive OU tutor. Does the course not start with the basics? I did look a few years ago, mainly cos I thought it might be interesting to DH who is nearing retirement. It will come back to you when you get started. I think it's a lovely thing to be doing (I did a degree in modern languages when i left school, before I did nursing - i know, I know - still very much like the process of language learning ....).

I think you are right about all this 'festive jollity', Gig. I am on the point of pulling out of a group meal with friends from uni. I can't face it - the others all have careers and good health - and it's a major schlep to a town south of Glasgow. Maybe a bit silly to withdraw socially but i can't face it really at mo.

Well, I wonder if I should knit willy warmers times 5 for Christmas. i wonder what my menfolk would think .... (I have a DH and 4 sons - aged 22 down to 14. Dh is 66 - I don't think anyone's ever done him a willy warmer before grin - must check). mmm, lots to ponder. Much better than liver disease and cancer .....

Baskets45 Thu 06-Dec-12 19:13:40

The above should read NEARLY on hall carpet. For what it's worth. I don't think nearly being caught has quite the kudos of really being caught ITA. Oh well.

amberlight Thu 06-Dec-12 19:51:02

Hee hee, can we order willy warmers for our other halves then? There could be a decent business opportunity here grin

'evening all! Coughing away thanks to usual winter-ish virus thingies so trying to be sensible (ha ha ha), but nurse happy with my blood pressure today so that's one thing that's still working.

Boob pain. If I do a lot of walking etc my boob hurts. I guess it's the nerve damage from the lumpectomy etc. Do I need a sports bra or something? Any thoughts?? Very annoying.

Baskets45 Thu 06-Dec-12 20:18:07

Hi, amber. Why don't you try a sports bra and see if it helps? I wear a sports bra when out for long walks, as get uncomfortable - no breast surgery for me but I do have large breasts - if I think anything more strenuous than walking will take place I used to run a bit), i wear what i call 'extra scaffolding' which is a sports top from M and S with 'support' built in. With said sports bra.

Good about your BP. Is that still fallout from Herceptin? Hope your winter lurgy clears soon.

amberlight Thu 06-Dec-12 21:05:00

On Herceptin it was totally out of control even on two different maximum bp tablets. It's now back in normal range on just one. Phew. Will try bra.

invicta Thu 06-Dec-12 22:12:59

Hi HerNextDoor (Higher National Diploma) and LedKR

Led - you asked about genetics testing. Its definantly worth it. I'm waiting for results from genetic testing at the moment. However, they can only tell you whether you have one of the two known genetics genes. They can't tell you whether you have a bc gene that has not be identified as yet.

jchocchip Fri 07-Dec-12 06:30:33

Morning all! Time for a brew and porridge.

baskets !!grin that's v funny and love your tale of your dad's vasectomy grin
MIL has described how FIL used to have to wash and reuse olden day condoms blush
Get better soon amber -and sports bra sounds a good idea for walks
Had a very nice time with ex book group- lovely party snacks irresistable so am full of yummy things and some nice wine.
Hair trim and a few foils in my hair for festive sprucing today grin

Copthallresident Fri 07-Dec-12 08:12:33

gigs I was rusty at first but then I was one of only two not straight from a U/G course or, worse, the stint at Beijing Normal. OU will be much more attuned to facilitating people back into study. I was soon holding my own with all the 20 something's and I ended up doing better. It counts for a lot that you are there because you really want to learn as opposed to have something else on your CV.

As to picky tutors Academics don't survive these days without excellent feedback from their students, that student satisfaction score is too important in the league tables. OU wouldn't do so well on that if it had picky tutors. All my tutors were/are really encouraging, even the world renown Professor. In Continuing Ed it is all the more important that they are encouraging so it will be "positive parenting".

I am sure you are really going to enjoy it.

smee Fri 07-Dec-12 09:49:24

Been away for a day or two whizzing round the country for work, and so much to read..!

ledkr, I've had genetic testing. They found a gene anomaly, though it wasn't the recognised two, though on a watch list apparently. Was all v.interesting. Also have had no periods since chemo (June 2010) and am 46 now. Will find out next week whether am through menopause or not, as they took bloods at last appt to check. I tried to think of it all as a positive as my cancer was so hormone positive.

roca, I'd echo what Elibean says (waving to her smile), as when I had a scare recently I was told Endo is usually highly treatable. Still a worry though, I know I was terrified. On the raised ca125, I asked my team why they don't do regular bloods and they said because they're unreliable, so yield a lot of false positives which stress patients out unnecessarily. I know that won't stop you worrying, but maybe it's vaguely reassuring.

Ned, Dr Lovely does sound incredibly lovely. Hope they can get you onto a level soon. Is DS excited about Christmas? I'd bet he's about to go pop. grin

HND, I had implants straight away after mastectomy, but was told they wouldn't do any other form of reconstruction as I was having Rads and it can damage the skin. If you end up having rads, am guessing they might say similar. Sounds like you need black out blinds to soften the glare from Topsy's display. grin

MAS, how's your tummy today? Hope it's calmed. Did you call the team to ask about it?

Gig, mighty impressed by OU course. I yearn to do something similar and nearly got myself to Birkbeck open day in November, but have too much work atm. I'm thinking Autumn 2013 might be the time..

Haven't time to join in the discussion on parental sex or willy warmers, though it's good to see the tone's at it's normal level! Waving to Amber, Baskets, Kurri, Sometimes, Copthall and anyone else out there I've missed. smile

KurriKurri Fri 07-Dec-12 11:56:41

Hello all - quick dash in to say I'm thinking of you and hope all is well - I haven't had time to read through posts properly, so many apologies, but am sending random love and hugs to all. Have been out lot this week - doing the art activities with children thing I'm involved in - great fun, but tiring, the kids seem to be really enjoying it though so all good.

ned - so glad Dr Lovely is coming to see you at home for a proper long chat, depression is so horrible, and the sooner they can help you start feeling yourself again, the better. The emotional stuff is so hard to deal with - i found it so much harder than the physical things - losing my hair, losing my boob - walk in the park compared to the stuff going on in my head. (I know this isn't the same for everyone but it was in my case). I've been on AD's since DX and went through a period of having them increased to a much higher dose,
Bad patches come and go, and you somehow have to try to get through them, and I'm really pleased the medics are being so good and offering you lots of stuff to help. (I'm down to a pretty low dose of AD's now - so there is light at the end of the tunnel, but it does take time) loads of love darling - you know I am thinking of you XX

Roca - just wanted to quickly say I had polyps in my late 30's - eventually had a hysterectomy, but that's not necessary in most cases - don't panic! - they did cause loads of bleeding, I think you need to be reassured that they are common things to get whether or not you've had cancer, and even more common if you are having any kind of hormonal treatment (I think mine were connected with the pill I was on at the time), its good that your gynae thinks everything looks normal otherwise, - she wouldn't say that if she wasn't pretty confident that all is good. try not to worry smile

must sign off - I have to go out again soon - more sticky, glittery kids to herd grin - my God kids love to use a lot of glitter !!

love to all - nice to see you Elibean smile - and ledkr, love to everyone, hugs to OTM (nearly there lovely, you will get there smile)

Will be back to my usual state of indolence next week, so I will post properly then grin xx

KurriKurri Fri 07-Dec-12 12:04:53

Oh yes meant to say I am going down the totally home made route for Christmas this year - knitting and crocheting on an industrial scale going on chez Kurri - its been so nice not to battle my way round the shops, we have also made some sweets (tablet - yum!) to give to everyone, I am making home made crackers (with home made jokes!) as well. Only things I have bought apart from wool, are some charity shop books so everyone has something to read over Christmas. I can definitely recommend the cheapo Christmas - it's very liberating. smile

NedSchneebly Fri 07-Dec-12 14:24:00

Afternoon all smile

Yesterday was a better day - went in to school and spent the day with my class. They are really lovely - some real characters but it was really nice to be able to watch them work and spend some time with them. Now just need to get my head around the planning. . .

Also a better day, as I weighed myself for the first time in ages and I have lost a stone in total since October. Not masses, but definite progress.

Thanks everyone for kind words - have had a little cry reading all your messages, but in a good kind of way.

kurri got the DVDs! Thank you so much (and gig too for loaning them out smile) DH is away two nights next week, so I am having a HW-fest in his absence. Being my toyboy a bit younger than me and knowing his family, I can't see that it was ever something they would have watched!

Am in awe of homemade Christmas - you will be looking like this by Christmas Eve! DS and I managed to make some Christmas decorations from a kit for DBs wedding - he has asked everyone to bring a tree decoration for the tree in the venue, but I think they need more gluing. Santa's trousers are looking decidly loose . . .

smee welcome back, my love. Hope you had a productive time away. DS is very disgruntled that he has to still go to school now that he's started his Advent calendars. Surely it must be Christmas?

ledkr I have had genetic testing for other things, not BC - my DS has a genetic disorder and I am a carrier, and I think knowledge is power.

Must think about assembling some football kit for DS and getting off to school. Can't think he's going to want to play football in this wind. That's what I am hoping anyway.

Lots of love and hugs to all - you are all amazing x x x x x x

well done ned on weight loss and for having a good day with your class grin Am sure you'\ll be feeling tip top once things get underway.
smee didn't ring the chemo nurses as the tummy stuff seemed to work yesterday-hands not so good though and feet are peeling like very peely things. Last tablets this evening,then a week's rest. Will tell onc everything though when I go.
Had a fringe cut today- haven't had one as such for ages- now need to get used to it !!

smee Fri 07-Dec-12 19:10:04

MAS, good that it's the last tablet then. Maybe things will settle soon. Horrid to have the feet peeling like that though. Do you put Aveeno on them too? Is fringe cut bold and daring, or blunt and brutal. Hope the former! smile

Ned, your class sound sweet, though am sure it will be hard work. Yr1 seem so tiny to me now. My DS looks like a teenager next to them. Losing a stone is masses! Don't lose it too quickly, now will you. <stern>

Have just had an almighty pillow fight with DS and ripped a pillowcase. He is still laughing.. blush

just back from Christmas planning with parents (and a gin and tonic)
I put aqueous on my feet -seems quite good but am sure Aveeno will do as well.
Fringe is I hope the former !

Copthallresident Fri 07-Dec-12 20:41:36

smee As my mother says "you are far too giddy with them" (tries stern ex headteacher - yes it was a deputy Head having it off on the rug, it was like Last Tango in Halifax!- look but totally fails) grin

MAS at least that is one more nearly done. This chemo does seem to be having quite a load of side effects. It is an endurance test isn't it? I am sure it will be "chemonurse" to the rescue (to the tune of "Wonder woman") Actually "chemonurse" might respond even quicker to a scary blunt and brutal fringe!! Bet it isn't though, and a great excuse for more indulgent trips to hairdressers.

Ned It's always a bit day at a time, glad today was good. I'm sure once you are with those 6 year olds the world will seem a brighter place.

Well done ned with the weight loss. A stone is really good. Glad you like your new class.

mas hopefully your week off will allow your hands and feet to repair themselves a little before your next one. Sorry I have forgotten how many are you having? Thank you for my Christmas email, Celeste is looking very festive grin

Have just booked tickets to take DD to see santa. blush I am so excited.

jchocchip Fri 07-Dec-12 21:37:26

Yea ned for going into school and losing a stone - well done. smile

kk In awe of home made Christmas. smile I have done bits before, made hats one year and several years made rum truffles and marzipan fruits, but I can't see that I have planned any spare time this year sad

I have an interview for the job I applied for shock Heck, I need to do some cpd before the end of December and do some prep for this <rusty emoticon>

The woodburner is great - allowed to have a tiny fire today but tomorrow we can have a big fire but we have to let it out and leave the door ajar overnight - something to do with curing the paintwork...

Too much junk in the house - Dh accidentally let his Mum's house - so all our stuff that was there and her furniture has to move pronto. Aargh!

Gigondas Sat 08-Dec-12 07:37:16

How did your dh "accidentally" let a house jchoc and I had serious envy of your wood burner.

ned glad you had a good day- and completely agree with kurri that for me the emotional fallout is worse than the physical. All I can say is it isn't just you and you have to take it a day or even in case of bad days a minute or hour at a time.

Hw (and other tv ) was a good form of escape when I felt rubbish.

masanother one down smile. Sorry about feet though- keep slathering the cream on. And hope gin helped.

smee hope you have a restful weekend.

gracie what are you going to ask Fc for?

Got busy day sorting out christening for tomorrow - got to collect cake, girls' dresses then take girls to pottery cafe after it was postponed. Hd lovely afternoon shopping and getting nails done with my dsis yesterday. Also got my pre course reading on kindle - dh keeps saying "shouldn't you be studying" when I am on Mn.

overthemill Sat 08-Dec-12 07:51:02

Can't sleep so making huge effort to catch up with everyone and I'm noticing a trend in here to which we should probably alert the medial researchers: people with cancer have DHs who are classicists!!!! who'd have thought it? My DH is one and it looks like there's some sort of link...

apart from that madness there is also a knitting/crochet link though maybe only people on chemo have the time to knit/crochet.

although it is entirely possible that so much chemo has simply addled my brain grin

Gigondas Sat 08-Dec-12 07:58:29

brew For otm . What about becoming obsessed with odd tv when on chemo- hw, scandy crime (tho I think topsy and others like crime tv and books anyway).

jchocchip Sat 08-Dec-12 08:10:17

Morning! Time for a quick brew before parkrun.
Dh was at mil's house doing some repairs when one of the neighbours grown up children (currently renting elsewhere) asked and he said yes. Had discussed renting it out as dmil can't leave her mum and hasn't been able to use it as she would like.
Hope your busy day goes smoothly, gig.
Aargh must dash!

overthemill Sat 08-Dec-12 08:14:47

HW? am totally tv obssessed and had a stern talking to from BT about the amount of streaming we do (its all me though, i confess). have seen the entirety of greys anatomy, brothers and sisters, flashforward and am now starting House which seemed to have passed me by completely. With DH watching scandi crime which we seem to love even though I hate snow and cold weather in general. Also when awake and not totally doolally I watch foreign films with him which he understand in the VO but I have to be able to read the sub titles.

just switched ISP to talktalk and have got the youview box which is proving fun - i can catch up with all TV I miss! hurray, t has box sets on it which will stop me from being told off by talktalk for streaming too much... brew for gigs and me

is it christening today gig ? hope it is lovely - don't forget to post pictures of you all in your dresses grin
No tablets h today,hooray !! As far as i know this regime is continuous -until it doesn't work really...am sure they can hone the dosage to a tolerable level..

NedSchneebly Sat 08-Dec-12 10:51:13

OTM HW is Howards Way. gig sent DVDs to kurri and she sent them on to me. Could send it on to you once I've watched if you like? PM me your address if you fancy a watch and I'll post them on. (if you're happy for your DVDs to carry on travelling, gig ?!)

gig hope today goes brilliantly for you and your girls. Am sure you'll have a lovely day. Lots of pics please! You're right about taking things one day at a time - that's what I am trying to do. Once I have stopped coughing and I can sleep properly again, I think that will help too.

MAS good news on no tablets today! Hope those pesky feet don't hold you up too much.

jchoc good luck with the park run. Its gorgeous sunshine where we are, so hope you've got some sun too. It makes the whole experience more enjoyable, I imagine? Hope you post a good time today x x

smee hope you can have a peaceful weekend after all your gallivanting this week. Feet up and brew on maybe?

Got my choir concert tonight - aaargh! Hoping coughing has not made my singing too croaky!

Waves to kurri, gracie, copthall, topsy, HND and anyone else lurking.

Have a lovely day all x x x x x x x x x

Gigondas Sat 08-Dec-12 11:40:20

Yes am more than happy for the DVDs to travel and will circulate the next ones kurri when I get them
Back from dm.

Christening is actually tomorrow- just picked up the cake and it looks amazing. Lots of photos to follow.

loads of luck to ned for tonight !! you'll be fab smile xxxx

smee Sat 08-Dec-12 17:49:38

Nipping in to wish Ned's voice a bit of clarity. Am I wrong in thinking a nice glug of wine might help. grin

Gigs, you'll definitely need wine tomorrow. Hope the relatives behave and you have a lovely time. smile

topsyturner Sat 08-Dec-12 19:10:39

Good luck for to ought Ned
You will be fab !

And Gigs , deep breaths and plenty of wine and you will get through tomorrow .
Don't forget plenty of tissues and lots of pics for us please !

I have a living room full of Christmas lights and lit candles (including my lovely morrocan tea light holder from a lovely board member !)
My fire is lit , and I am drinking my fave wine (which just happened to be half price in Tesco today)
Think I might just feel a little Christmassy today .

Went shopping with DD today .
She conned me out of 2 pairs of coloured jeans , 3 long sleeved t shirts ,1 pair of jogging bottoms , and a bizarre jumper !
She's very happy !

DS needed jeans as he keeps growing .
Went round all the shops , and he finally allowed us to buy him 1 pair !
He is sooooo damn fussy !

Take away night tonight .
Chinese or Indian ?

topsyturner Sat 08-Dec-12 19:12:03

Ofcourse that should have said "tonight" Ned
Damn auto correct !

chinese !!
we're having some chicken wrapped in bacon thing- then am off to paaaaarty !! sans dh as he is feeling under the weather - shall have to be brave and go alone. Won't be out late as am too feeble and tired. Decorations all up and looking v festive- just holly from the garden to arrange and my front door thing to do

topsyturner Sat 08-Dec-12 19:44:15

My friend (with the same surname as you and who lives in a neighbouring village to you !) collects Old Mans Beard every Christmas to use as decorations .
I think that's lovely .

I wanted Chinese but DH was craving Indian . And as he is in shock from spending so much money on the DC today , I thought I'd let him have his way ...

Copthallresident Sat 08-Dec-12 20:14:00

Chinese, obviously!!! We are having one of my Ducks which I have spent the last 3 days attacking with the hairdryer, vats of boiling water and marinating in various ointments and spices. It's now roasting. Candles also lit, including now burning all my lovely Shanghai Tang and Chinese dragon candles because two weeks from now I will be replacing them smile

I was resisting the decorating until big DD comes home, just did some tasteful pots for the garden today but then just had a walk through the town centre with goon dog and I am feeling quite festive, so front garden is not going to be tasteful for very long.......

Topsy Empathise with shopping with teenagers confused but actually I mean [frazzled], especially the search for the illusive perfect jeans, at least you do not have Oxford Street Top Shop where you go and sit in EAT with all the other mothers whilst they come back parading a variety of unsuitable items and nothing they actually need, whilst you say No, next, No, next No and then finally trug around all three floors finding suitable compromises.... Occasionally a 8ft supermodel trails past you just to complete the feeling of being dowdy and past it (Rachel whatsit Rod Stewarts ex, once but she did have terrible spots, I may have only one boob but I have no spots!) DD went out earlier in my boots because we still haven't compromised on anything suitable.....

MAS Have a lovely party

Gigs Have a lovely party tooo. Sending positive vibes over the rooftops, and putting Valium in the water supply to calm rellys (it's probably time we tranquilised all the parents whose poor DCs are doing the Jan selective exams anyway wink)

Ned I'm with Smee for clear and gorgeous singing. Do you get to do your sob story A la X Factor? "Ned has spent the week battling illness but pulls off a sensational performance" All members of choir give you a standing ovation???

topsy - which village ?
Ok, best tidy myself- feel a bit nauseous but have dosed myself with dom perignon and loperimide - will get my prosecco from the fridge and go forth...

topsyturner Sat 08-Dec-12 21:07:31

She is just outside Farnham Mas , she is a potter so with a little googling , you will find her !

You have such class , preparing for a night out with Dom !
What a woman !!!

topsyturner Sat 08-Dec-12 21:12:18

Copthall I had to spend 3 hours with 13 year old , heavily sighing DS , going round all the shops that were "just wrong" ...
Even the t shirts he likes have to be ordered from America .
I suppose I should be grateful he doesn't want me to fight my way round Hollister ... grin

jchocchip Sat 08-Dec-12 22:11:01

Guess ned is buzzing after her concert smile
had a nice run this morning then a whiz to the bank to transfer money to dd1 and home via mils house piling a load in the car. Hot bath and sandwich and then party time with Aunty. V civilised singing with music for health man who goes in every other week and is the highlight of the week according to Aunty. Nice food, no wine as driving sad and a jolly time had by all. held in the common room of a converted cinema which is now extra care apartments - v nice. Good to see the snow on the moors as we drove over the tops to get there - and glad the roads were clear. One year I would like a ride on the Santa special steam train - saw them as we drove past.
+ve vibes for the christening tomorrow gig
mas hope you are enjoying your night out smile

I know I'm late to this but hope neds concert went well. I'm sure you were fine.

Good luck tomorrow gigs. Have a fab day. Look forward to seeing some photos.

copthall yum duck sounds lovely. Any for the trolley?? grin

mas hope you are having a fine night out.

DD was one of the leads in the GB nativity this morning which was lovely followed by DS1 school report arriving. Let us just say DH said he will speak to him about it when he calms down!

NedSchneebly Sun 09-Dec-12 08:05:38

Morning all smile

Thanks for good wishes and clear voice vibes - they worked! Solo bits weren't until the start of the second half so had a good warm up in the first half and went for it, and I think I pulled it off! Lots of nice comments anyway and have been asked to sing it again at another local church carol service next weekend. The conductor seemed really pleased. Rest of concert went really well - packed hall, so a really nice atmosphere. Made me feel a little bit Christmassy! grin

And I slept better too smile

Getting christmas tree today and decs up. DS very excited!

Hope everyone has lovely plans for this chilly Sunday x x x.

oh well done ned !! you are a star !
Party was v nice - found my friends so wasn't cast adrift - drank a couple of glassses of prosecco - they had made their kitchen and dining room extension into a dance floor with lights and an ultra violet light and provided those security pens which show up in the ultraviolet -so lots of things written on the downstairs lav door and ourselves - I drew next door neighbour's Movember moustache back on him and various very rude things were written on bare backs and arms....home by 11.30- only 4 doors away...

invicta Sun 09-Dec-12 14:47:37

Hi all,

The teenage shopping trips sound a nightmare! Fortunately, my very-nearly-13 year old isn't into named fashion brands and is fairly easy. However, he has always been tall, but has had a huge growth spurt this year and is well and truly into men's clothing. Expensive!

Can I ask a quick qu re tamoxifen? I feel fat ths morning. Is that due to not watching what I eat ( due to winter, Christmas, lack of exercise etc) or the tablets? I've been taking them for two months now. ( that means its two months since finishing radiotherapy. Wow - time flies quickly). How quickly ES any wight gain occur, and by how much? Thanks.

Copthallresident Sun 09-Dec-12 16:40:01

Hi

Choice of Duck sandwiches or pancakes for the trolley....

Invicta I definitely acquired a spare tyre on Tamoxifen, the weight went on around my middle rather than anywhere else, another friend had exactly the same side effect. The rest of me was still chemo thin, at first anyway. Can't remember how quickly it happened. Geeky consultant just had the helpful advice that I should eat less and exercise.............. Thinking about it, 5 years post Tamoxifen the fat is now more evenly dispersed, as well as more copious.

Topsy Yes, DH meltdown always follows teenage shopping trips, trouble is I put them off so long the cards get indigestibly loaded all at once. I am also thankful my daughters have never been ones for clothes from those dark smelly caves populated by emaciated size zeros and topless boys with six packs, possibly because their size 10s are labelled size HUGE. There's a Gilly Hicks in the local shopping mall now and I feel quite sorry for the poor lads trying to look cool between muni and the Apple shop, they just look cold.

Glad to hear Ned's singing went well. Just been for the open day at the artist's workshops on Eel Pie Island. Feeling quite sad that I don't have a talent for art or singing, it must be such a joy.

Anyway Carols on, 10 foot tree to decorate, I may be some time...

smee Sun 09-Dec-12 19:10:03

Nipping in to see if Gig's killed any of her relatives had fun at the Christening. grin

Ned, hooray for you. Complete triumph by the sounds of it, and seeing as most women would have curled up under the duvet if they were feeling as you've been I think you're hugely impressive. smile

Invicta, I feel fat too! I've put on half a stone since being on Tamoxifen. Gradual creep and I know it's not much. Have never had to diet in my life and don't really now, but it's weird..

Copthall shock at 10 foot tree. That's a lot of baubles..!

Gigondas Sun 09-Dec-12 21:12:19

Very tired but christening was good and relatives intact although my mil was on hmm/sad form (Who are you? To me- also to various grand kids which is sad but her aggressive tone doesn't win people over to help or sympathise).

Photos on fb- back tomorrow

topsyturner Sun 09-Dec-12 22:00:36

Gigs the photos are great . And you looked fab !
I loved your dress .

Any left over food from the buffet ? <hopeful>

Fab photos gig and you look fabulous too - love all the outfits. Where was the christening ?

smee Mon 10-Dec-12 09:54:38

Gig, yes you look amazing. Very glam and the hair works with the dress totally. Love the pics of you all together. <stands in queue for buffet leftovers> smile

Turningupsidedown Mon 10-Dec-12 10:56:49

Hello all, sorry I haven’t been back for a bit. Thank you again for all the hand-holding and good vibes while DH was in hospital. After a few set-backs he came home and things seem to be going in the right direction, the graft on his leg is starting to heal up quite well now. Had a bit of a trauma with DD2, she had routine minor surgery booked on her leg to remove a small growth(while DH was in hospital having his surgery confused ), but it didn’t go as planned and they ended removing a rather larger piece and sending it off for checking. We have just got the results back and they are clear thank god although she might need further surgery to repair the hole in her leg. We are back to DH consultant for his pathology results today. Between them they are keeping me busy.

We have heaps of chocolate cake, and chocolates people have brought for DH birthday which was just after he got home from hospital, adding heap to the trolley, help yourself. Two of DH’s crazy brothers flew over from Australia to surprise DH for his birthday, they were here for 5 days and then flew back again confused which was lovely for DH and an amazing surprise but quite mad and also meant loads of DH’s relatives came to visit. He enjoyed himself no end and it really was fab for him, but did mean an endless load of catering and washing up for me…

I am trying to pull myself together and do something about Christmas, I didn’t start any shopping until yesterday blush Sat and ordered a pile of stuff on-line that will hopefully come in time, but no way am going to find time to get to the shops. My lovely DSis came with her partner at the weekend and did grocery shopping, cooking and put up all of our Christmas decorations smile

Hope you have all had good times with concerts, christenings and parties, but don’t envy anyone the Christmas shopping with teenagers, thankfully DSis did that one for me too smile

gigs you look fab in your photos. Looks like you all had fun.

Glad your concert went well ned

Great news that DH home turning. It has been a very stressful time for you all but really glad you DD op results were good. I'm not organised for Christmas at all and I don't have a poorly DH. I just can't get organised.

Busy weekend followed by busy day and laptop back at laptop hospital after it completely crashed. I think I may just cry as it is another expense which I could do without so close to Christmas. Guy at computer shop thinks it may be the hard drive. Hopefully I will get a chance to catch up with everyone's news soon.

waving to gracie and turning - v pleased to hear that dh is recovering from the op, but what a worry about dd-so pleased the results were clear...hope she's doing ok.
Nothing exciting to report here - went to town,bought cheese footballs,looked in Waterstone's....

smee Mon 10-Dec-12 18:48:13

Turning that all sounds a bit jaw dropping. shock Fantastic that your DD's okay though. Hope your DH continues to mend well. smile

Gracie, grr about the laptop. must be mighty annoying. I'm not at all organised either. DH came back from school today and said everyone else in his class has a tree. Seeing as a high percentage are Muslim, I somehow doubt it, but he did a good guilt trip. grin

HND, how are you?? Did you get through the weekend. Can't remember when your appointment is this week? Hope you haven't got much longer to wait though. Am sure all the uncertainty's driving you mad.

Nowt to tell here. Been sticking bits of decoration up at DS's school for Winter Fair on Friday, so am now covered in glitter. Waving to all. Very quiet on here, but I hope everyone's okay. smile

Gigondas Mon 10-Dec-12 19:58:59

Am here but tired- glad you like the photos. It was on the Wellington mas- ship moored on the Thames.

turningglad dh is home but sorry about dd (and eek about visitors).

First physio appt tomorrow - suspect may be in pain tomorrow night and need wine

And yes there is some cake left topsy.

topsyturner Mon 10-Dec-12 23:05:43

Cake ?
Is that all ?
grin

HND and I just escaped our families and fled to Ikea .
We had meatballs and chips and gravy .
Then had a lovely time mooching around .
I bought kilner jars (80p each !!!) and tea lights and Christmas tree shaped boxes .
Then home via Tesco so I could pick up the ingredients to make truffles with tomorrow .
I am putting them in the kilner jars and giving them out as Christmas presents !

Knackered now .
Going to go and catch up on tonight's Masterchef in bed .
Goodnight all x

Masterchef tonight is the cooking for top chefs round - love it !! I love all 3,so don't mind who wins.
A pottering about day today- bit of drawing I hope, a walk to town,bit of cleaning and ironing.
Hope everyone is doing ok -love to allxxx

HerNextDoorAt21 Tue 11-Dec-12 09:45:01

Morning everyone,

Sorry for my absence and thanks for thinking of me. I did survive the weekend aided by a made splurge of baking to occupy my mind. I made my Christmas cake, a Christmas pie and several proper Cornish Pasties. topsy is my chief taster for most of my creations ... I call it 'meals on legs' because I only have to walk next door with my wares. I guess from reading, I will have to start throwing things on the FBS table.

Feeling a little wobbly, understandably, and my appointment is at 2pm tomorrow. I just want to know now so that I can re-take control of my life and get everything that needs orgnaising organised. My nurse friend at the GP surgery has got me referred to the visitng counsellor and I have an appointment this Thursday ! How great is that ?

Topsy and I had a fun time in Ikea ... I went along for the ride and ended up spending more than her ... I too am now making homemade truffles for my DS's classroom assistant and the school prinicpal who has been really lovely to us.

I will now go and have a good read grin

will be thinking of you tomorrowhnd xxxxxxx

Copthallresident Tue 11-Dec-12 12:28:47

Just putting my head up from the Christmas mess, covered in glue and pine needles, and keeping an eye out for goon dog cocking his leg on the Christmas tree (you can see the thought process), and the cats eating the tinsel (tinsel fur balls shock).

hnd I always thought of it all as something to be endured and got over with so you could get to the good things on the other side, will be thinking of you. It will be a relief to get it over with.

hnd and topsy Did you really go to Ikea and not buy a 3 pack of scissors? confused I have now become another Ikea customer segment, parent of student living in grotty student flat. I put up pictures of her latest flat (it's like living in Shameless) and there was a chorus of comments after from students, and their parents that they had the same living room curtains..... Chinese Ikeas are the best, whole families go for a day out, the grannies lie out on the beds for a rest after lunch, a proper sleep with snoring grin.

I am so impressed by Topsy's homemade Christmas. I have an agreement with friends that we are going to buy presents for disadvantaged children rather than each others (and each other), it had got to being Amazon vouchers anyway so that put two moral clouds over it all. If I were better organised I could have done personal thoughtful touches, but ....

gigs glad you had a lovely Christening. Hope the physio is gentle with you and doesn't give you the elbow like mine does.

smee Yes a 10 foot tree is a lot of baubles, it is a bit bitter sweet because there is nothing tasteful about our tree, it still has the decoration the girls made at nursery as well as us buying something silly where ever we go (we are particularly fond of the legless Elvis, he wasn't always legless, just keeps falling off his perch), lots of memories but it does take a **** long time to put up. Now on the lights in the garden, and it is **** cold, so came in to get some feeling back in my fingers, quite a lot of **** been going on if I am honest.

mas how are you? Have the side effects (being thoughtfully non specific here) got better? and the hands? since you stopped the pills. Have a lovely day. Still missing Shellina from last year's Masterchef, I don't think she was professional though, still cook a lot of her recipes.

ahh,hands still sore,esp at night...it really is pesky.
Have drawn a design for card,so probably ought to get on with it...
Our tree is a twig tree,bought when ds was little- it's slightly skewiff and dusty,but we love it.

smee Tue 11-Dec-12 15:49:26

Oh MAS, those hands sound sore. I'd bet the cold weather isn't helping either. Do they keep you awake at night? sad

Where's Ned today? Should we pursue her? Ned, come tell us you're okay xx

HND, will have everything crossed for you tomorrow at 2pm. Who's going with you? Hope someone. It still might be good news you know. Really hope it is. smile

Topsy, am in awe at the truffle making. Even more in awe at Copthall's ginormous tree. I leave all the bauble hanging to DS and DH. The cat lurrves it. Bauble biffing being a top feline sport. grin

Bouncing around with idiot grin on here, as had appt with Surgeon, who says all's looking fine. Two years post treatment, so not a bad milestone to mark. Am also officially post menopause, which strangely seems a reason to celebrate, but as my tumour was so hormone positive, I'm seeing it as a good sign. grin grin

Gigondas Tue 11-Dec-12 16:32:53

Yay for smeewine - am pleased.

Am impressed with the Kirsty's homemade action with topsy and hnd. But also sending you love for tomorrow hnd and candle will be lit for you. And I am pleased counsellor is standing by for you . If you want I can distract you with my dss issues wink.

copthall am impressed at 10 foot tree (mini gig has her eye on our smaller one - I am worried it won't make Xmas so am frantically watering it). But I suppose there is something festive about tinsel fur balls...

Physio was brutal but effective I think as got more mobility just when there- have exercises to do. It can go with The huge pile of ou stuff to read. And work rang to ask when I was going back politely see how I was doing...

ned hope you are ok lovey.

mas sorry about the hands - is boy done with his mocks? And I blame you for making me want some sherry.

But it has just occurred to me topsy - has pig dog made it onto Santa good list?

NedSchneebly Tue 11-Dec-12 16:49:27

Afternoon all smile

Doing OK here - bit wobbly again yesterday, but plodding on. Slept all the way through for the first time in a couple of weeks last night, so not so tired.

Dr Lovely couldn't make it over yesterday to see me (3 docs off sick!), so I don't know when I'll see her, as am a bit mega busy this week. Going to a spa day tomorrow with good friend, courtesy of my DB/DSis who got me a voucher for my birthday; into school on Thursday morning, then DSs Christmas play pm, and off to London for DBs wedding on Friday. Don't want to bother her and ring when she's busy so will wait to hear back from her, I think. Maybe not til next week. . .

Smee this is grin news! 2 years is a definite milestone and great to have got such good news. wine for you tonight, I think? Thanks for your FB message x x x x x x x

gig glad physio effective, if brutal. Are you planning to go back to work soon? Hope the buggers are not putting pressure on you?

MAS sorry that your hands continue to cause you strife. What are the medics saying? Thinking of you x x

DS demanding food so must go, but will be back, and will catch up properly.

Lomaamina Tue 11-Dec-12 17:14:02

Hi there, I'm going for my Paget's op tomorrow (essentiall a lumpectomy of the areola area). Although the doc has said it's it's superficial - both literally and medically - I'm still quaking at the thought. Any words of wisdom you ladies can offer me in the circs would be gratefully received.

loma will be thinking of you tomorrow and sending soothing vibes your way- will you be allowed home in evening ? I think lots of rest after a GA is good advice as it hangs on a bit.
smee so pleased for you grin I shall toast you with sherry or ginger wine -brilliant news xxxxx
ned sorry you're still a bit wobbly - it's normal am sure. Really hope you have a fab time at the wedding- I'm excited about it !
Hands have woken me up before (though it was cat scrabbling at the door at 2.45 am that woke me last night) And my tummy is really playing up - yuck.

Lomaamina Tue 11-Dec-12 18:16:37

Thanks MaryAnn - yes, I'm meant to be home by the evening. I think I'm on the morning list as I've been told to be there for 07:30. Best that way. I don't want to be hanging around.

All the best wishes to everyone else.

yup, I was in by 7.30 but was last on morning list...hope you are speedily through...beware the paper knickers
Well done on physio gig - I hope work people are considerate and understanding. Sorry about sherry grin
T has finished mocks but geog. exam coming up in new year so Christmas revision required.

Lomaamina Tue 11-Dec-12 20:17:36

Thanks MaryAnne. My mind is duly boggled trying to imagine what I should beware of. I won't ask.

I have another question to any of you who've had lumpectomies. I'm told I won't be able to take the dressing off for a fortnight. How'd you manage washing? I was thinking of showering waist down and using wet wipes elsewhere. Any other tips?

Loma

topsyturner Tue 11-Dec-12 20:19:52

Smee that's a fabulous milestone !
Might have to toast you with my ridiculously alcoholic truffles .
Think I might have been a leeeeeetle heavy handed with the rum ...
grin

Do you know , I have never tried sherry ?
If I were to buy some , which type/make should I buy ?
And should I drink it from a pint glass ???

topsyturner Tue 11-Dec-12 20:21:49

Hi Loma
Re washing post surgery , try a shallow bath .
Make sure you take it easy post surgery , as the others have said GA really can take it out of you .

No laptop stinks. So quick pop on to wish hnd and loma good luck for tomorrow.

mas really hope your hands improve. Wonder if La Roche Posay (I hope that is what it is called) would help it really is the only thing that soothes my DDs sore lips.

That is great news smee. I can see why you are delighted.

Hopefully Dr Lovely will be in touch soon ned. Sounds like you have a busy time ahead.

gigs Hope you aren't too stiff and sore tomorrow after the physio today. Did you give work any idea of when you are going back? I am avoiding work like the plague as I don't want them to ask but my line is up 31 Dec.

Waves to everyone. Thinking of you all.

Lomaamina Tue 11-Dec-12 20:51:15

Thanks topsy I have every intention of putting my feet up and taking it easy. (mind you, those who know me in RL will be falling on the floor laughing at this statement. But I did say "intention" grin.

Lomaamina Tue 11-Dec-12 20:53:28

Oh and thanks gracie! And crossing fingers for HND too.

Gigondas Tue 11-Dec-12 21:11:08

Echo what other say about ga loa -also think of it as positive to remove bad stuff.

topsy fino is nice if you like dry wine. I luff rum.. Can I have a truffle?

smee Tue 11-Dec-12 22:27:59

Loma, take care tomorrow. As MAS says, watch out for the paper pants and the GA. The rest's not so bad and you'll feel so much better once you're through this bit. We'll keep a few fbs for your return. Sounds like we'll need Amber with her duct tape too. grin

HND, I'll been zooming out all positive vibes at 2pm. Deep breaths and onwards. Still hoping for good news here, but whatever it is, you'll get through it am sure. xx

Ned, that's a sod about Dr Lovely not coming round. Have you thought about keeping a diary to look for patterns and triggers. I've found that quite useful in the past.

MAS, do you take something for your tum? Sounds grim feeling so icky. Could you call the unit and ask for something else to try? Good that T's through his exam though. smile

Gigs, physio sounds a bit ouch, but then it's good to get going again I suppose. How are the little Gigs now they're christened? Has it made them angelic?! grin

Bit wiped out here, but I have had a beer to quietly celebrate. DH away, so he's said he'll bring a lovely bottle of something special tomorrow. Will drink to you Loma and HND too, and of course to the rest of you reprobates too. smile

loma it might be different with your op but I had no dressing, just a glued together wound. I showered the day after but very gently - also dried carefully and used v mild shower stuff etc.
grin @ * topsy* with her pint of sherry ! I have some pale cream sherry which Is not too sweet or too dry - the dark stuff is v sickly sweet.
smee loperamide is what I was given - dj says I 'm having too much yogurt which he reckons is the problem, but am sure yogurt is soothing for a troubled gut.

topsyturner Tue 11-Dec-12 23:25:45

Afraid DH might be right this phrase pains me Mas
Dairy isn't good for upset tums .

Oh dear ...

smee Tue 11-Dec-12 23:59:12

Topsy's right, MAS. I got put right by GP, when I was spoon feeding DS yoghurt when he was teeny for an upset tummy. Call the team in the morning if it's still the same and let them tell you what's good.

Topsy, my grandmothers used to drink Sherry when they arrived for Christmas lunch. I remember sneaking some to try when I was about 7. Tasted like cough mixture, so a pint glass not to be advised unless you have a sore throat. grin

jchocchip Wed 12-Dec-12 07:21:04

Just dashing to work but want to wish loma and hnd all the best for today. Thinking of you all hope your day is good. Xx

but I loves yogurt...sad
Good luck to loma and hnd -thinking of you both

Gigondas Wed 12-Dec-12 08:02:51

Another vote for no yoghurt (I am meant to eat it but hate the smell so it is an endurance test for me). It is very good to eat once you are over the upset tummy- so maybe look forward to that mas.

ned another thing I was advised to do was to write out my worst fears/blackest mood. It then helped to talk through and deconstruct them with the therapist. Also when I did what mood was and trigger points , I was told to put a scale next to mood and also a name (eg fear, anxiety, sadness etc) so you could start to separate out all the different issues. I also wouldn't be shy in ringing the dr- your need is as great as anyone else's (probably more so if you listen to my dad griping about half the stuff people go to the Gp about).

topsyturner Wed 12-Dec-12 08:07:42

Happy 12/12/12 people grin

I choose to see this as a good omen .
So HND and Loma , this means good things for both of you for today's appointments x

Blardy freezing today .
Everything is covered in a thick white layer of frost .
Think I shall stay inside all day .
Darn it , have DDs Christmas concert tonight ...

Copthallresident Wed 12-Dec-12 08:15:23

MAS The bit of yoghurt that is good for upset tums is the probiotics that you get in live yoghurt, but agree with others the dairy isn't. When things speed up you lose the good bacteria out of your gut and they may help you with digestion and absorbing nutrients, all of this is perceived by the medical profession as somewhere between mumbo jumbo and not yet proved. I think chemo must be bad for the good bacteria anyway as my nutritionist was very keen on them during chemo, and it stopped things rather than speeding them up. Anyway this is what Dr Wikipedia has to say [http://en.wikipedia.org/wiki/Probiotic]]. You can get probiotics in health food shops but I don't know whether they are any good. DD1 always did everything on speed dial, including that and doctors always advised root vegetable purees, boiled potatoes, rice, toast, apple purees and very diluted fruit juice (most whole fruit is acidic) In China they added bananas, papaya and ginger to that.

Wishing loma and hnd all the best. I was like gigs and was just desperate to get rid of the bad stuff out of my body, I tried to think of it as a slightly overdramatic trip to the dentist, something to be got over with.

smee yippee grin. I too felt great relief when finally the tests showed I was definitely post menopausal (they showed me as peri menopausal 'til after tamoxifen). What with the Cervical Cancer (in situ), horrible periods, infertility, and then a strongly E+ tumour I had come to the conclusion hormones were not my friend, and I had got the two good things I wanted out of them..

Copthallresident Wed 12-Dec-12 08:46:36

Ned The thing that helped me most during the night worries was replacing the bad thoughts with visions. I know you have to confront and deal with the bad thoughts as per gigs excellent advice which I wish I had had but that is for during the day. At 4am I used to replace the bad thoughts with some quite personal visions about what I wanted to be happening / happen. In my case sitting on a terrace with my closest friends grey haired and wrinkled with a glass of champagne and looking at a view as the sun set (they had an issue with the grey hair and wrinkles wink) laughing at all our trials (the subsequent diagnosis of one of my closest friends as bipolar and all that has gone with it makes my trial look quite tame TBH), standing on a mountaintop fit and healthy with my support group, lying on a beach, and admits to inner geek a full blown battle in Middle Earth with Orcs and other ugly misshapen things as my Cancer and Viggo Mortensen, Sean Bean, Orlando Bloom, and David Wenham (aussie actor who was Faramir but also starred in the lovely romantic series friend sent videos of from Australia that I loved watching during my chemo) on my side smile I think Wagner may have been playing .... In all cases I would take time to dwell on all the good feelings associated with my vision, warmth on my skin, sounds, hugs etc.

Gigondas Wed 12-Dec-12 10:16:48

Prebiotic supplements aren't advisable when on chemo mas .

The visualisation idea is good . I used to sing (in my head blush) "hit me with your best shot" or imagine that bit where Death Star blows up in Star Wars to imagine cancer cells going (I hasten to add when I was doing treatment - I don't generally think this like some soft rock sci fi Saddo).

Freezing here but I am waiting at Gp with mini gig as have decided two weeks of broken nights with cough Etc too much.

HerNextDoorAt21 Wed 12-Dec-12 10:32:52

You ladies are so lovely - thank you for all of your good wishes and support.

I am actually feeling very good and empowered today and ready for the almost inevitable news so that I can move on. If they were wrong, despite the economical downturn in my house at the moment, I would maybe share a bottle or bubbles with you all.

gigs I love the "hit me with your best shot" analogy - I will be singing that all day now and if you want to offload your DSS issues, I am sure I can help in some way even if it is just to –growl-- listen

smee my DH is coming with me and topsy is looking after my wee fellas for me (should I tell her I have sherry and a proper sherry glass that my granny gave me ?) Also it is really nice to see you celebrating [happy]

ned I am loving the sound of Dr Lovely !!! We have a GP in our surgery called Dr Devine .... he is a bit too !

loma hope your surgery goes well and recovery is swift and vomit free (I always vomit sad)

gracie I will have to join in on yours and topsy’s wee dates now !

topsy standing on your doorstep gossiping to the neighbours is not good on these cold days – lol – see you later !

HerNextDoorAt21 Wed 12-Dec-12 11:30:03

errrrm realised i am not very ghood with the emoticon things ..... I am usually queen of the iPhone typos but it loloks like my rubbishness is spreading ! blush

thanks for no dairy advice- have taken my loperimide and feeling better- will try to avoid my yogurt for a bit

smee Wed 12-Dec-12 14:13:12

Glad you're feeling a bit better, MAS.

HND must be in her appt right now. Would be so lovely if she came back skipping with the best of news. smile

Hope loma's through and safely tucked up in bed by now too. Horrible to have to sit and wait. One of the few downsides of NHS is the operating list.

Gig's how are you feeling post-physio?? Any aches?

Gracie, how's your skin these days? Am assuming v.much on the mend? smile

Bit wiped out here, due to the joy of all 4 smoke alarms going off at 5.30am. Epics amount of noise, no DH as he's away. Fortunately no fire or even a wisp of smoke, so am a bit baffled. Had to flick the fuse, which worked first time, but not when they went off again half an hour later, as the back up batteries kicked in. Deep joy..! Had to climb up ladders to take batteries out. Bit much in my PJ's on a cold and frosty morn.. kidnapped DS into my bed as a hot water bottle once I'd finished. He is nicely toasty. grin

4 smoke alarms smee ? 'tis a pain when they play up- one of ours (we have 2) is on the landing ceiling and our step ladder too short to get to it...have to borrow dad's - am guessing you are on 3 floors ?
Have avoided yogurt so far but just had a take away cappuccino from Waitrose (free with my W card) oh and bit of milk in my shreddies...

smee Wed 12-Dec-12 14:40:33

We're in one of those thin Victorian houses, so there's one in the basement, one on living floor, one outside our and DS's bedroom, then another up in the attic. Probably over-kill, but DH is v.thorough!

I'd imagine a bit of milk's okay. How are your hands today? Are they still sore?

smee Wed 12-Dec-12 14:42:27

Anybody got any idea what I should do with v.old box of tampons which I've been keeping in case periods ever returned. Clearly chuck them, but it feels symbolic somehow. Tampon Christmas Tree decorations maybe?! grin

dip them in glitter and hang from a tree ! Or keep them as they are,as a momento ! I keep thinking I won't need my stash anymore and then have to go and buy some as my periods seem to have gone back to normal- maybe chemo will see them off. Will kind of miss them I guess.

I religiously check ours every week and my CO2 alarm grin

smee Wed 12-Dec-12 15:45:12

Love the glitter idea! I was thinking festive red hats round the string and some goggly eyes. grin

Copthallresident Wed 12-Dec-12 15:47:53

smee red glitter of course blush I still have mine at the back of my bra drawer, they have become a sort of talisman. Perhaps I should now hang them on the tree outside with my lights. My DDs would NEVER speak to me ever again!

gigs soft rock ballads and scifi / fantasy for dealing with Cancer. New game for the bus shelter? gap in the crowded Cancer book market (especially with illustrations by MAS)?

Glad it's improving MAS but definitely ask for advice on diet to cope. I am sure milk in things isn't going to be a problem, just dollops of it to digest.

Hoping all has gone as well as it could for Loma and hnd

we have been thinking of a cancer book- me and sometimes with assistance from tamoxifen thread ladies grin but we haven't really got started- too much other stuff going on.

smee Wed 12-Dec-12 16:09:11

Copthall, yes red glitter essential! I could twist tinsel type pipe cleaner round to give arms and legs.. grin

When I was pregnant the books I liked best were the anecdotal ones, so real women's experiences, divided into different topics round pregnancy. One like that for cancer would be brilliant. I think the most important thing to know when you hear you have cancer is how very common it is and how much can be done. Also how many of have been through it all and are still upright. A warts and all, honest and funny book would have been amazingly helpful.

amberlight Wed 12-Dec-12 16:21:42

Love the idea of craft-designed tampons grin

'Afternoon all. brew all round

Sort of behaving here, for once.

Copthallresident Wed 12-Dec-12 17:04:59

Just took a second look at DDs snowman christmas tree decorations she made at nursery shock They aren't but as they are just cotton wool and string it would have saved them a lot of hassle ....

smee Wed 12-Dec-12 18:10:38

grin I could donate them to nursery at DS's school. Taking recycling to a whole new level...

jchocchip Wed 12-Dec-12 19:14:18

popping in to say hi - off out for a wine beer smile with husband of dear friend who didn't make it ...

invicta Wed 12-Dec-12 21:59:13

Loma and HND - hope you are well and okay

Loma - I had shallow baths and brought nearly every available product in the Simple range as I was told to use plain products.

topsyturner Thu 13-Dec-12 07:49:27

Morning All

Just thought I'd pop on to let you know that the iPhone app is working again !
I downloaded an update this morning

Bet you are all very relieved to hear this ........ grin

Gigondas Thu 13-Dec-12 07:57:14

Yes- I am as it has Been driving me mad .

brew And more brew for me- mini gig up AGAIN in night (is happy as anything this morning) so back to bed for me. I think she just likes a party now as doesn't actually seem ill. Big gigs concert this afternoon.

But good news is leg seems fine smee which is good news .

hnd and loma thinking of you .

Am still grin at the tampon Xmas decorations .

Lomaamina Thu 13-Dec-12 08:11:36

Bac home now. was first in list but took all day to revive from grogginess. Was less of an ordeal than I'd anticipated (but then I had been dreading it). A bit sore. I'll be trying to avoid too much compensatory choc. N.b. if I didn't want to out myself I'd be singing the praises if the wonderfully caring nursing staff. Com

Lomaamina Thu 13-Dec-12 08:14:37

Sorry.. On mobile... Completely at odds with nasty recent press reports.

I did feel rather old though as the anesthetist seemed about 20! (My equivalent of "policemen are getting younger, I suppose).

topsyturner Thu 13-Dec-12 08:15:35

Glad you are back home loma and all "done" !
Now plenty of chocolate rest .
Dr Topsy orders this grin

Gigs I think mini gigs needs a stern talking to .
Has she been told that Santa doesn't visit babies who wake their mummies in the night ?
grin

topsyturner Thu 13-Dec-12 08:18:17

Lol loma , they do seem really young don't they ?
And I happily sing the praises of all my medical team . I can categorically state that I dont think I could have been treated any better !

Gigondas Thu 13-Dec-12 08:26:59

Chocolate is a good thing loma.

And agree about youth of drs- it was when they discussed their hangovers I realised how young they were (they got quite relaxed when kept seeing me as I had to stay in for chemo).

I tried to reason with mini gig topsy- she just laughed and pulled my glasses off for a chew.

Lomaamina Thu 13-Dec-12 09:03:48

It was almost worth it all to hear DH just report to me that my gorgeous DS14, who had refused cuddles or any soppy stuff for years, legged it up the driveway to school this morning calling "send Mummy my love". Ah, bliss!

aw bless loma smile Hope recovery is swift and not too uncomfortable- agree with Dr topsy's recommendations
hope big gig's concert is fab - naughty little gig !
I too have nothing but praise for my team - everyone seems younger than me (except bcns !) though quite pleased that onc. thought I was about his age (about a decade younger grin )
Blood test today,then a skip into Waitrose to see if there's any nice sushi.

Lomaamina Thu 13-Dec-12 10:22:44

maranne sounds like waitrose is your 'treats' store - it certainly is in my case: I've just put an order in for their mixed marinated olives. Probably as calorific as chocolate but somehow feels more worthy.

All the best to readers if this board

Lomaamina Thu 13-Dec-12 10:22:59

Of

smee Thu 13-Dec-12 10:43:23

Yes, loma, Dr Topsy should be listened to, as her advice is excellent. I have nothing but praise for my team too. I think the NHS is amazing. Watch out for the post GA blues. Normal, but annoying! smile

No news from HND. Hope she's okay.

Gig, that night waking's irksome. Glad leg feels okay though. Do you have to do exercises every day? Have fun at the concert. Is she a sheep or something sweet like that, or just singing?

MAS, how's the tummy and the hands today? Any better?

DH says he's not too keen on tampon decorations. Can't imagine why. grin

have just been to Waitrose and got my free coffee- always feel a little awkward about asking for it grin I cannot resist their rustic bread,so have a lovely baguette which T will no doubt devour.
smee as an artist I'd've thought dh would like the tampon decs !
Tummy much better thanks- at least I hope so- hands still pretty awful- the nurse taking my blood said they looked red and told me her friend on chemo had the same,plus an alarmingly red face- yike. I had my bloods done sitting up this time- progress ! I feel a bit silly lying down- it took two goes to get any blood but she was lovely and very apologetic and kept saying how well I was doing in overcoming wimpishness - awww- another lovely NHS nurse.

HerNextDoorAt21 Thu 13-Dec-12 11:18:45

Morning ladies,

Sorry I have not got back to you before now - I was rhather busy last night 1. helping out at the School's open night and 2. ringing and texting a gazillion people about my appointment. So here goes .....

I have got grade 2 DCIS over a 10 cm length (a string of pre-invasive cancerous calcifications) and will need surgery.

I have opted for a full mastectomy on the right side with immediate reconstruction by LD flap (the back muscle and tissue method) and will also have a silicone implant in there as I am large chested. 6-9 months later when the new bobbage has settled, they will undertake a reduction on the left hand side boobage to even our any wonkiness !

I will be having sentinel node biospy at the same time as surgery and they cannont completely rule out radiotherapy until they have the pathology back from the breast tissue but are hopeful that RT will be unneccessary.

Feeling relieved that they can do the majority of the big surgery in one go and at least I know what I am up against now. So ladies, I will be sticking around to annoy you for a while longer yet !!

Has any one had LD flap surgery ? any tips ? pros ? cons ?

HerNextDoorAt21 Thu 13-Dec-12 11:22:47

smee
Xmas Decs

HerNextDoorAt21 Thu 13-Dec-12 11:24:14

sorry smee

Xmas Decs

HND well done for getting through that - how are you feeling about it all ?

smee Thu 13-Dec-12 11:25:17

HND, you are amazing to be doing the Fair last night. Think I was in a heap at your stage. Is it good to know what's next? Must be a relief. Mastectomy sounds sane under the circa. I had immediate reconstruction, but just an implant, so no skin or tissue from elsewhere. Not sure anyone on here's had that done, but might be wrong. Do you have a date yet?

Glad tummy a bit better and well done on bloods too, Mas. You are v.brave. smile On DH, yes he should be into it shouldn't he. He's quite an alternative sort of artist, possibly he doesn't like me being more alternative than him. grin

arfsome tampon decs !

smee Thu 13-Dec-12 11:26:57

x-posted, fab link, HND! They're not bold enough though for my taste. I want red sparkly glitter! grin

Gigondas Thu 13-Dec-12 11:30:05

Well done you- have you tried deep breathing * mas* as that helped me.

I have found something on fb for you and smee

Gigondas Thu 13-Dec-12 11:31:07

Cross posted with hnd - fingers crossed for no rt.

smee Thu 13-Dec-12 11:50:06

You and HND are of the same mind, Gig. grin

I was breathing in a mindful way - I think I've convinced myself that blood isn't going to make me feel wibbly - though if any words like 'oozing' or 'bleeding' are mentioned I might find it difficult - that's what set me off before (interestingly my brother is exactly the same)

Gigondas Thu 13-Dec-12 12:03:01

Sets me off too but mindfulness and visualisation (my favourite beaches of all time) helps.

Present wrapping (or not) here- it doesn't make me feel festive .

HerNextDoorAt21 Thu 13-Dec-12 12:33:23

gigs i have my first counselling session this afternoon and have no idea what to expect .... help !

Gigondas Thu 13-Dec-12 13:08:56

Counsellor will introduce themselves , explain how long and maybe how many/when Sessions are. They wills probably ask you to talk about what you are there for and what you want out of it . To an extent you set the agenda .

Also depending of type of counselling you may get homework but it will be of the type of thing that mentioned other day - eg what are your feelings, when do you get them, how intense are they etc.

I hope it goes well.

Copthallresident Thu 13-Dec-12 13:57:47

Loma Glad it wasn't too bad and you are recovering

hnd Now at least you know. I have three friends who had the flap but from the stomach rather than the back but can ask any questions you might have, they were not big boobed though so no implants. One like you had DCIS so mastectomy and immediate recon, one had chemo following and that is the only occasion I have heard of problems, the chemo killed off some of the flap, and the third had recon a couple of years after her mastectomy, chemo and Herceptin. My surgeon suggested I might need some evening up because it is harder to match little boobs - I started out with the smallest size of prosthesis (I haven't overcome my wimpyness felt the need to get recon so far - 11 years!!) so I got the impression that big boobs are easier, friends all medium sized. I think the only con is that it is a big operation, you wake up feeling you have been hit by a bus and you have to spend a couple of days in high dependency being kept very warm and sweaty to make sure all the plumbing works. They are all very happy with the result and glad they had it done.

I love the tampon crafts, if only I had seen that page when I was Rusty, the Beaver Scout Leader blush don't ask!! (the things we do for our children)

MAS blood tests - aagh. Chemo left me with the veins of a drug addict, the only ones you can get to show are on the back of my hand and they collapse at the sight of a needle so it always takes extensive mining. I take one of those hand warmers with me when I go, a tip from my friend the nurse, that nurses and labotomists never seem to think of. I'm supposed to get regular blood tests for the chronic low white blood cell counts but I avoid them.

I think your book idea is great. A friend in publishing tried to fly the idea of a book of "emails from the chemo frontline", she collected a few up, but she was a bit disgusted that her company seemed only interested in trauma tales or books of pinkness and make up tips, and said that the Cancer book marketplace was very crowded, I think a couple of the Guardian journalists who have written about their experiences had the same reaction, but did get published eventually on the back of what they had written in the newspaper. I agree with smee that humour is your best friend when it comes to Cancer and it would be good to have a book out there that takes the piss out of it all and shows you can laugh after dx. Perhaps the Mumsnet connection might help?

gigs DD1 liked to disco in the night. She was a cot hurdler too. I'm afraid we became rigid disciplinarians, we couldn't even go into the room when she woke in the night or it would establish a pattern.On one night when she had learnt to talk she woke in the night and I was listening to her gurgling through the monitor (I would have had a webcam in her room if they had had them then) and she suddenly said "Head stuck" so I rushed into her room to see her stood up laughing. Can't get her out of bed now though of course!!

HerNextDoorAt21 Thu 13-Dec-12 19:34:12

Mad I just saw your message there. I am feeling good that I can get the recon don

HerNextDoorAt21 Thu 13-Dec-12 19:40:22

Doh it posted itself on my phone .... Sorry mas .... Yes feel good about recon at same time and scared to death of he after effects from surgery as I am usually pretty pewky and ill hmm I am also very stressed and anxious from a very badly timed slagging off by text from my step daughter who thought i was ringing her last night to try and sort out hers and her dads failing relationship (she didn't answer my call as usual) its hard to go into but I feel like I have had my heart ripped out and stamped on. Thankfully the counselling looks like it is going to be a winner gigs the hour just flew .... I'm off yo luck my wounds and get some dinner now my little DS (4) is sleeping sounDly.

topsyturner Thu 13-Dec-12 22:23:16

Am jealous that you get recon at same time as mx !
Am still waiting for mine .
Think I need your surgeon !

Is everyone fully prepped for Christmas ?
I'm not , but am getting there .
If my DDs main present arrives on Monday I shall be done .

Got our if family Christmas dinner on Sunday .
FIL takes us all (aprox 30) out to a nice hotel for lunch ,
And it's so nice as we we don't get together en masse like this very often .

Anyway , had a busy (for me) couple of days and I'm knackered now . So off to bed I go . Think I shall have a lazy day tomorrow , I forget how worn out I get these days !

jchocchip Fri 14-Dec-12 07:17:38

Lol at the tampon decorations smile

just dropping in quickly to wish hnd well with her counselling session and to ned for a lovely,happy wedding ! (ned's brother's)
Love to all for a good Friday- am off to hospital today then hope to go to shops (Paperchase beckons) and later T's haircut (and ushering him into shops to look for presents for g/parents/his dad) Is it big gig's nativity thing today ?

Gigondas Fri 14-Dec-12 07:40:11

Mornjng all brew for anyone keen. Up early to see physio then off to French France for weekend.
copthall mini gig is definitely of same variety as your dd1 - water only and a quick return to cot meant minimal disruption (then big gig woke but she has a temperature so is allowed).

hnd glad counselling helps but so sorry about dsd. It's hard being in middle of it all- how old are your dsc? Mine are 20 and 22. Dss in bad books at minute with dad cos of not very funny joke he made about his dad. I think normally dh would laugh It off or ignore but he is worried about dss "drifting" along post uni and wasting time. He has form for this as had a year post a level to retake.

topsy rest up- I know what you mean about stamina not being what it was as I was done in after christening.

jchoc waves to you.

have a fab time in French France gig

topsyturner Fri 14-Dec-12 09:29:09

French France ?
Don't forget to bring me us back some cheese and baguettes for the fbs trolley .

KurriKurri Fri 14-Dec-12 11:24:21

Morning all, - sorry I have been awol for a while - RL rather got on top of me, - I am trying to catch up with all your posts, but forgive me if I am behindhand with news and consequently say daft stuff.
Good luck to everyone having treatment, appointments and waiting for results.

Gig have a good time in French France - I'm so sorry I totally forgot about the recipe - do you still want it, or is it too late now sad I am so utterly disorganised at the moment. I will sort it and send it anyway.

It was my birthday yesterday - (53 -aaaaaaaaaaargh) had a lovely day, my art club was having a Christmas party so it doubled as a birthday party for me smile
Got lots of lovely art stuff from DH and DS, a DVD from DD, and some money from my mum. So a good haul!!

love to all, HND - loads of luck with your surgery - do you have a date for it yet?
Like topsy i'm also waiting for recon. so will be very interested to hear how you get on, - anyway massive hugs because it's all a big shock to the system, and it's OK to have a few wobbly moments, - great that you have counselling organised - I found it an enormous help. Sorry about DSD - not what you need at the moment, but while you are going through this, you have to try to put yourself first and let others get on with their own problems - be strict about people dumping stuff on you!

xx

KurriKurri Fri 14-Dec-12 11:25:34

Ooh yes - happy wedding Ned - have a great time, (can't remember if I said, but I loved your top - you will look fab smile)

Copthallresident Fri 14-Dec-12 13:20:26

hnd I hope I didn't add to your fears of the surgery, all of my friends recovered without any setbacks (apart from the side effect of chemo) and none have the slightest regrets. One commented that it is a bit like childbirth, you forget all about it once you have the end result. How awful to have the added stress of Dsd's issues (KK's advice is sound). I am glad the Counselling helped. It does take a while to get everything straight in your head and accept what has happened and move on. I spent quite a while thinking I would never be happy again but it was on a walk one day that suddenly it all seemed doable and there was light at the end of the tunnel, however it was September and sunny, not sure there is much light around at the moment, perhaps you could make use of the landing strip festive lights next door?

Copthallresident Fri 14-Dec-12 13:35:35

KK HAPPY BIRTHDAY for yesterday.

gigs Enjoy French France! But you will miss Rob Brydon switching on the lights sad Or are you rushing back to get to the green for 5.30 on Sunday, he tweeted it was a task he had not taken on lightly apparently.

DD homeward bound, and the welcoming lights are on (including another tacky festive creature in the front garden that she deems indispensable to the Twickenham illuminations, I am not however giving in on the giant Santa climbing up the roof hmm). I am having twinges of my eco conscience, I am sure our house is now visible from space.

HAPPY***BIRTHDAY** KK !! you are young and sprightly smile - glad you had a lovely day and nice presents.
My chemo is being delayed by a week as my hands aren't good- my finger tips hurt like mad- nice lady onc also said calcium levels are low- what does that mean ? (apart from eating lots of cheese etc) So back again next Friday... she also wants to commission some pictures or cards grin
Hope loma and hnd are doing ok
Got to dash to take ds to hair cut...

Copthallresident Fri 14-Dec-12 15:45:30

MAS I'm glad you are getting a break, sorry about the hurting finger tips. I hope they will lower the dose to lessen side effects next time.

Chemo can lower Calcium levels and lead to loss of bone density, my Consultant considers that is partly why I have problems now, since my menopause at 43 wasn't that early, and the Tamoxifen should have protected me, and I am a cheese fiend grin. I am recommended to take a Calcium supplement. I could get it on prescription but I buy a brand called Osteocare which you get at Holland and Barratt, I take two a day, ask your medical team about it.

KurriKurri Fri 14-Dec-12 15:59:01

thank you for b'day wishes Copt and MAS smile - I don't know about young and sprightly, unless that's code for old and creaky grin

MAS - bugger about hands sad is it making work very hard for you? - I don't know anything about low calcium, but I agree with Copt - sounds like you need a supplement - have they suggested anything like that? (I have a feeling that people on one of the other anti cancer drugs - maybe arimidex - take calcium supplements, because it effects levels - but I could well be wrong).

Copt - it will be lovely to see your DD, - am impressed you have decorations up, we are doing ours this weekend, although we have done some paper chains and draped them around the place.

My DD is doing another carol service tonight, - she's had four concerts in the last week, - one was at an old peoples home, and she said the residents loved it, they brought bells in for them all to shake and DD said there was an old man in the front row who was singing away at the top of his voice, having a great time, bless him smile

It is very wet here, old lady dog is taking some persuading to go outside to the loo, - she pokes her head out the door then turns round and comes straight back in - I have to bundle her out, - she is giving me The Look grin

I think onc said she could give me a supplement- will see what's what next week- haven't been sdrawing much this week as finished until next year,though did design my new business postcard- holding the pen is fine but typing etc really hurts - it's all very odd. Am no longer on tamox. as it wasn't working they said,so maybe that accounts for lower calcium- am very happy to eat cheese,mind you ! it's weird as I think I'm eating more dairy stuff- loads of yogurt.
Poor old lady dog- Celeste not keen on weeing outside so sometimes uses her tray.
Successful hair cut and present buying - I was wise to do a recce beforehand as it made it much easier and the boy didn't get too restless.

Elibean Fri 14-Dec-12 18:48:46

Popping in to sing Happy Birthday to Kurri smile

Poor Kurri grin

And you are definitely young!!

Lomaamina Fri 14-Dec-12 18:54:21

MaryAnn and everyone you're very sweet to think of me when you have your own worries. I've had my first day on my own (DH back at work and best friend who was going to pop round had to rush across town to deal with fallen ma). I'm not surprisingly a bit low and feeling sorry for myself, a bit breathless despite doing next to nothing, then feeling guilty because my op was supposedly superficial. It doesn't help that I've had to explain to a couple of colleagues why I'm off as they were getting the wrong end of the stick as to why I couldn't do my bit with a big panic we've got on at work - I felt it better to tell them than them to think I'm swinging the lead. But now there's an added dose of guilt because it always sounds so dramatic, doesn't it? The big C? As if I'm exploiting my situation.

On I ramble. On the good side I stopped mucking about on Mumsnet and knuckled down to some work-related-reading this afternoon. Despite DH telling me I should have rested, it made me feel better. As my GP said, less "medicalised" and more like someone allegedly intelligent with a career.

One of you warned me I'd be feeling low today. grin

KurriKurri Fri 14-Dec-12 20:27:35

Thanks Elibean -your singing has to be better than mine grin I don't feel too old actually (but that's because most of my friends are older so make me feel young grin)

Loma - so glad you have got your op over with, I hope you are recovering well. Feeling low is very normal I'd say - emotions go all over the place, and things like having to tell other people about it all can be very hard, - so take things gently, and give yourself time to take it all in and get your head round it all - it's a big thing to have happened to you within a very short time, but you will get there smile

amberlight Fri 14-Dec-12 20:37:31

oooo, happy Birthday, KK!!!!

wine for those feeling urk

KurriKurri Fri 14-Dec-12 20:43:59

Thanks amber x

Am having cake tomorrow, will save some for the trolley.

topsyturner Fri 14-Dec-12 21:11:16

Happy Birthday To You
Happy Birthday To You
Happy Birthday Dear KK
Happy Birthday To You for yesterday
grin

Gigondas Fri 14-Dec-12 21:17:58

Pink wine and French France treats for birthday girl kurri

KurriKurri Fri 14-Dec-12 21:47:40

I thank yew, -

topsy you have the voice of a chicken nightingale grin

Pink wine Gig lovely ,<holds out glass for a refill>

I think the cake will be a lemon cake - DD is making it and has dropped some cryptic hints (such as 'you like lemon don't you?' grin)

yum,lemon cake sounds ace !
loma hugs for you xxx

Waves to all and big happy birthday to kurri.

Apologies not around much, very busy and no laptop is a pain but thinking of you all wine.

topsyturner Fri 14-Dec-12 23:27:25

I likes lemon cake .
And I luffs pink wine .
<wanders off pecking at things and randomly clucking>
grin

PenisColada Sat 15-Dec-12 09:11:27

Can I join ?

I had a thyroid biopsy 8 days ago and got a call from the hospital yesterday as consultant wants to see me on Thursday to discuss the results.

I am absolutely terrified as before the biopsy she said if all was ok she would not need to see me again.

How do I get through the next few days ? Seems much worse with Christmas going on all around me.

ah,glad you've joined us penis though not because you are so anxious.
The consultant may very well have found something that's not cancer and would obv. need to discuss it with you - but am sure your mind will be going crazy thinking the worst. And googling is a bad idea (though I google everything) I think by trying to occupy yourself with Christmassy things is probably helpful, but we do understand that the waiting is the very worst part. Stick around here for distractions, talk of all manner of trivia and some comforting hand holds.

Gigondas Sat 15-Dec-12 09:31:55

Of course you can join us penis. This waiting is absolutely the worst time as your head fills with all kinds of nightmares. But you will feel better once you know what is going on and the plan for any treatment is.

In terms of filling your days, come on here to vent or chat as much as you need. We have all been there so can hold your hand.

In terms of practically filling your days, what helps you most? Being busy or being able to retreat under the duvet ? If former, try and make a to do list of stuff to do to fill your days. If latter, can you ask friends and families to help with kids so you can retreat to sleep read Mn or watch tv.

And yes it is a shit time of year to get news but there is no good time - hugs and love for you.

Ps woman at work had thyroid cancer and made complete recovery.

PenisColada Sat 15-Dec-12 09:35:34

I work with a lot of palliative people. Not sure if going to work will be good or bad for me. I am off Monday to do all the Xmas shopping / wrapping etc then only have 2 days of work to get through.

I am scared of telling people at work in case I cry sad

topsyturner Sat 15-Dec-12 10:17:35

Morning All
And a special morning and welcome to Penis sniggers like a teenage boy at the name
Sorry you find yourself here , but it probably is the best place you could have come to !
We talk sense , we don't subscribe to Dr Google , and we have the best snack trolley on the Internet . grin

I'm not going to tell you not to worry , because that ain't gonna happen !
We shall just hold your hand till your appointment , hopefully you won't need us after Thursday and we can send you on your way .
But if you get bad news , we are here for that too . It's not just breast cancer here .

Off horse riding soon .
Then I think an afternoon on the sofa is called for . Still feeling unreasonably tired and head achey .
Have our big family lunch tomorrow , so need to perk up for that .

How are the hands today Mas ?

Lomaamina Sat 15-Dec-12 10:32:06

Welcome to the board pen (said she shyly). I have recently been through a few weeks of hell going from a routine mammo to diagnosis and surgery and although I feel like a wrung out rag I can safely say the waiting was the worst of it and I too was terrified of bursting into tears at work in the waiting period. For me it helped telling my best mate there - a bloke, but one I knew wouldn't turn a hair or go all overly sympathetic (which I couldn't handle). At least then I had someone to moan to when the normal annoyance was getting to me without having to make some grand declaration. Also remember that a. You don't know if anything serious has been found and b. medical care nowadays is amazing. You'll get through this and out the other side.

KurriKurri Sat 15-Dec-12 11:22:32

Hi there penis, and welcome to the thread, but very sorry of course that you are going through this worry.

I know it's awful having to wait for appointments to get results, stick around and let us hold your hand. Can you take someone to your appointment with you for a bit of support? - it can be helpful, especially if there is a lot of info to take in.

I know you will worry and obviously I don't have any medical knowledge, but I have had thyroid problems for the last 3 years, and a range of treatments, thyroid is very complex and all sorts of things can go wrong with it, and they do tend to want to treat some things (that aren't cancer) pretty quickly because it can make you feel very ill if left.

I hope we can support you for the next few days while you wait to find out what's whatsmile
And I wouldn't be too bothered about bursting into tears on others - it happens, and in fact I think make it easier in some ways for people to offer you support. (And it sounds as if you are in one of the caring professions, so your colleagues may well be a great support to you) Go with what you feel comfortable with whether it is telling people or not, but don't be scared of crying, it is perfectly normal and people will not think it is odd or embarrassing.

Morning all to everyone else, how are the hands today MAS?
Don't fall off your horse topsy, (or is it your DD who is riding today?)
Waving to Loma, Gracie and Gig.

Some sun here today at last <over excited>, I am going to marzipan the Christmas cake in a minute, when I've had a coffee and a wodge of toast, - anyone else want some?

Lomaamina Sat 15-Dec-12 11:59:02

Waving back kurri and envious that you're baking. That's my fave sort if therapy when I'm low. Mind you, never worked with marzipan. I find tray bakes and biscuits suit my lack of finess better.

Lomaamina Sat 15-Dec-12 11:59:46

Oh and yes please to a tiny slice with some lemon tea, if I may?

KurriKurri Sat 15-Dec-12 12:55:35

<presents Loma with lemon tea and toast> - it's not a very tiny slice because its the kind of bread that's hard to slice thinner than a doorstop grin

DD is making my b'day cake and some mince pies this afternoon, - she loves baking, I have to be v. strict with myself when she makes stuff as I'm trying to lose weight, - she of course is thin as a pin despite scoffing large chunks of cake envy

Copthallresident Sat 15-Dec-12 13:16:24

naughtynameperson I'm sorry to hear you are in that horrible land of the unknown. I entirely sympathise with your worries about crying. I felt the need to be a virtual recluse when I was in the early stages of dx. I ventured out one day, encountered a good friend and just dissolved, something I found quite difficult. We all cope in different ways. It is important that you feel free to cope in the way that works best for you. However we all know here that the waiting and worrying about the unknown is the worst time.

My neighbour was treated for Thyroid Cancer a year or so after I was diagnosed. We are both in rude health 10 years later, something I am sure will come naturally to you in every sense of the word wink

DD is home grin and still in bed after girly late night champagne swilling, chocolate eating, Bridget Jones watching session grin I am loafing around in my dressing gown. It is slattern central here at the moment, no worthy horse riding or baking activities, nothing to offer the trolley obviously, though possibly may have some leftover diet coke later if I get around to getting dressed and seeking cure for slight hangover ......

Mind you I will have Christmas cake when it has finished feeding on the bottle of Cuban rum I have poured over it for the last few weeks.......80% proof Christmas cake anyone?

HerNextDoorAt21 Sat 15-Dec-12 13:22:44

Good afternoon all and welcome to Ms colada ...... I just has a horrible waiting period too and now I know the way forward I feel a whole lot better .... I have burst into tears several times this week but am having a good day today... These ladies are wonderful for hand holding.

As for me I had a hard day yesterday with chest tightening and a banging heart .... All to do with the DSD situation. gigs my DSD is 23 and the DSSs are 19 and 17 ... The 19 yo one is lovely btw. I know I shouldn't worry about it all but I am terribly hurt and I have gone do much for them all over the last 12 years. Anyway enough of that.

I went to see the GP yesterday as my blood pressure was high and I was obviously stressed by this and DSD. He prescribed beta blockers and put me back on my small dose of anti d and signed me off. My GP always makes me cry, he is just a nice bloke. I will catch up properly tomorrow ... I was out overnight at a friends last night it did me good to be away from home I think and today I am going on my works Christmas lunch and drunken gathering drinks poos !!! Later ladies

Lomaamina Sat 15-Dec-12 13:55:54

I've just discovered some maple syrup butter biscuits in the freezer! They go well with strong coffee. And so thin the calories go right through you without touching the sides (in a nice way). Anyone care to join me? It's tea time somewhere, I'm sure.

hands v sore- it's very boring- but my fingers really hurt- the tips- woke up in the night with them hurting. Feet are peeling like mad,but they don't hurt-and it's a nice exfoliation treatment-if a bit of a drastic one.
Hugs for hnd and enjoy your bday cake kk. We are off to do some Christmassy food shopping.

KurriKurri Sat 15-Dec-12 14:27:31

maple syrup cookies are lovely - Dh bought us a load in Canada last year - they didn't last long! - it's nice to know they are virtually calorie free grin - I wonder what other thin foodstuffs I can eat working on the same principal? - crisps almost certainly, and maybe After Eights too grin

HND - <hugs> - get that topsy to give you a big hug when she's finished bouncing about on a horse. I hope the beta blockers help - I had them when my thyroid was v-overactive and I had banging heart, - they settled things down very quickly. I don't know if its of any help or interest to you, but there is a step parents board on this forum, (search under the parenting talk topic) - it may not be what you want, but thought I'd mention it just in case smile

Have a lovely Christmas lunch.
MAS enjoy your food shopping, - hope it's not to manic in the shops. What sort of pain relief have they given you for your hands?, - maybe they need to up it a bit if its waking you sad <gentle hugs being careful not to squash hands>

a waffer thin mint is aan ideal thin food-have just bought some...and ferrrero rochers-yum. We looked at cheeses and crackers (as in Christmas crackers) -M&S seem good,though haven't looked at Waitrose ones- bought a Christmas pudding and dh bought me Nesquik to encourage more milk drinking -it's very very sweeet,so won't have it too often.
I have no pain relief for the hands-not sure what would work on them.
I hope ned is enjoying the wedding smile

Gigondas Sat 15-Dec-12 17:52:38

Are they swollen? If not co codamol is good and might help with other issues.

I spent about 2 hours doing a Xmas list then deciding what went on the sainsburys order and what went on the ocado order. Perhaps over thinking it .

Christmas beer cheese and marron glacé from French France .

PenisColada Sat 15-Dec-12 18:00:16

Is it usual to argue with your dh whilst waiting ?

I am so stressed and upset all I want to do is lie in bed and cry. I have done Xmas shopping cooked a full roast dinner done the washing etcetera today.

I really don't know if I can face work Monday but don't want to go sick in case I need sick time for treatment

sandripples Sat 15-Dec-12 18:22:45

Hello Ms Colada, I was at your stage in 2009 - just before christmas and I do sympathise during the awful waiting. Yes I do think its normal to argue and feel dreadful - of course it is.

I decided to tell people at my own pace - once I had firm results. I felt better after I told my self this was my decision- so if I didn't want to tell people I didn't until the time was right for me. Telling friends and colleagues and family is really hard because i think you're having to face up to what's happening each time you say it, and you're also worrying aboutm how the person will react (and they do vary!)

So I suggest just treat yourself very kindly over the next few days - conserve a bit of energy - have some walks if they help. There's no 'right' way to be for the time being.

In my experience (and mst on this thread) you do feel better when you know what you're dealing with and what the treatment plan is. So try to take one step at a time and don't let your mind whirl round all the worst possible scenarios all the time. Try to deal with what you actually know. (Hard I know).

Good luck and a big hug. (And we've all wept/howled at times I can tell you - no point trying not to really..)

topsyturner Sat 15-Dec-12 19:18:33

Did you also know that if you eat ANY food standing up , then it's calorie free ?

Penis arguing , crying , hiding in bed . All perfectly normal .
I even planned the music for my funeral at one point grin
You do what you need to do to get through this !

KK it was dd horse riding !
I've yet to find a horse brave enough to take me on ... grin

Having a lazy evening on the sofa this evening .
Fire is lit , coffee is beside me , and crochet on the go .

Oh and DH smashed my bottle of Baileys <very very very sad face>

Gigondas Sat 15-Dec-12 19:31:02

How did he do that ? I would offer you some of my red wine and the huge basket of chocolate/sweeties that am eating .

penis arguing , crying and a whole slew of emotions normal. I could even "see"(as in hallucinate) funeral cars outside my house.

Gigondas Sat 15-Dec-12 19:31:52

Other people's food also non calorific topsy- professor gigondas fact that. It's like a policeman can't arrest you if they aren't wearing their hat.

sandripples Sat 15-Dec-12 20:46:46

DD's invited a friend to our's for Christmas, which is fine as we'll have our family plus 2-3 other single friends in any case. But this will be the first time I've done a vegan Christmas!

I've been googling and already have a list of lovely recipes. DD says he's a good cook so should be fine. Its also his 21st birthday on Christmas Eve!! (he's Australian so a long way from home)

DH and DCs are veggie so I guess it' s just that extra step...

BTW sorry I've not been here much - work's pretty full on at present - I'm looking forward to having 10 days off. Our week-end in Stuttgart was fab though - sparkling snow and fairy tale castles and Christmas markets everywhere - its poss I've already posted this but can't recall! Anyway its was lovely! So now we'll have tiwn themes for Christmas - German (due to goodies brought back) and vegan.
x

sandripples Sat 15-Dec-12 20:48:10

Does anyone else try to avoid soya? Due to its oestrogen-like properties I avoid it, as I'm on drugs to bash all oestrogen so it'd be a bit silly to eat it. But hm, lots of vegan recipes use it...

Copthallresident Sat 15-Dec-12 21:26:24

pen Agree with everyone else being horrible to those around you is entirely normal. My parents came to stay when I was going through diagnosis and I reverted to obnoxious teenager. Whenever they tried to comfort me I would throw some new horror I was facing back at them. "You don't understand. I'm going to be a bald, one boobed and brain damaged, no one will want to go out with me--" They said after they didn't mind at all, it was just like old times.... In contrast I found my husband's --emotionally crippled reticence strangely comforting and I was actually nice to him for a change whereas at other times of stress it normally infuriates me, as you would know if you were in the vicinity of either of my labours.

sandripples the jury is still out on soya . It's plant Estrogen is not proven to act like Estrogen on Estrogen positive tumours, unlike the bad estrogens generated by environmental pollution, alcohol consumption etc. In fact there are Asian studies that show that Asian women diagnosed with Breast Cancer actually do better if they stick to a diet rich in Soya. The traditional Asian diet, high in soya, low in dairy is associated with very low rates of Breast Cancer in Asian women, whilst when they switch to a western diet the rates become the same as for western women. My Consultant and Wonky Oncy in Hong Kong were very pro Soya, and the wonky oncy was anti practically everything else, you might as well book the hearse when eating a cheese sandwich . There is a theory that like Tamoxifen the type of Oestrogen found in Soya fixes to the Estrogen receptors on the tumour and prevents the other estrogens getting to them. So it might be actually good to eat Soya. However it is just a theory, no one knows, but then they don't really understand how Tamoxifen works either.

Personally after reading all the literature, I do eat edamame (soya beans) and considerable amounts of soy sauce (only Kikkoman brand though, most of the rest are mainly caramel juice and who knows what else if they are actually Made in China). I always think when the medics opinions are so different, anything in moderation.

Copthallresident Sat 15-Dec-12 21:28:27

Sorry I seems to have messed up my strike outs but you see what I mean...

Copthallresident Sat 15-Dec-12 21:38:57

MAS The hands sound horrible. Have you tried the pain relieving gels on your finger tips? Also does ice help relieve the pain? A packet of frozen peas wrapped in a soft cloth would mould around your finger tips.

jchocchip Sat 15-Dec-12 21:39:29

I've been avoiding soya - but not to the extent of checking labels - just wouldn't use soya milk on my cornflakes anymore.
pen Hi sorry you are waiting for results - normal to be stressed and argue and shout ime. Try and take it easy - I find chocolate is essential for stress.

Very busy day today, parkrun, ice sculptures, The Hobbit, Curry at Omars. Tomorrow we are going to have to make room for dmil's furniture which we are going to "look after" while she rents out her house.
dGmil is in hospital still and they have phoned to say she is on the way out sad She is 99 though and not been so well for 18 months so it is hardly a surprise...

Waves to gig in french france and belated happy birthday to kk
mas sad about ses, nesquick sounds nice...

Copthallresident Sat 15-Dec-12 21:54:32

sandripples This is what the Polly, the Chinese Dr Lovely (the breast surgeon with the gentlest hands in the world) is currently advising, so perhaps we should be avoiding Soy. [[ http://bhc.hkbcf.org/habits.php]] She founded this charity, you can see how lovely she is in the founders message on the same website. However I'm going to decide that Soy sauce is OK. Friends and I decided a life without champagne and chocolates wasn't worth living and I would definitely add soy sauce to that list.

Copthallresident Sat 15-Dec-12 21:56:00

I am not doing well with the Mumsnet devices bhc.hkbcf.org/habits.php

Copthallresident Sat 15-Dec-12 21:58:20

Why did the website turn Chinese whilst I was linking? blush In the top right hand corner you can change it to English but this is what the relevant bit says &#9702;Studies have shown that soy beans can reduce the risk of breast cancer. Yet, there has not yet been conclusive evidence on whether or not plant estrogens in food such as soy beans and flaxseeds are connected with breast cancer. Women with high risk of breast cancer or receiving hormonal supplement therapy should control their intake of food that contains plant estrogens.

Hands, ESP fingers are v v sore and swollen- and still so dry- they look terrible- I shall wear my mittens constantly. Painkilling gels might be an idea - chilling them prob not as I have lousy circulation in hands - the chilled bits of supermarkets set them off and my fingers go numb and white.
Feeling very plain and fat too which makes me feel unacceptable - I am getting into horrid self critical mode.
Marrons glacé are sooo delicious.

Lomaamina Sun 16-Dec-12 10:31:05

maryanne your poor hands! I hope the mittens help. I've got rotten circulation and I've got several pairs of the fingerless sort so I don't have to walk around our heated house with purple hands.

Ma-in-law just popped round to wash my hair so I'm feeling knackered, but less ashamed of my wan face with greasy locks as I was before sad.

Lomaamina Sun 16-Dec-12 10:32:42

Sorry for misspelling your name...

PenisColada Sun 16-Dec-12 10:42:10

MaryAnn - my gran had terrible hands and feet on chemo and she found Aveeno very helpful. She got it in prescription.

I had a terrible night and was awake googling thyroid cancer till about 4 am. I know all about it now.

Do any of you follow a special diet ? I am blaming myself for being unhealthy and will never eat junk again.

Lomaamina Sun 16-Dec-12 10:56:24

Stay away from the dreaded google pen unless its one of the uk cancer charities you'll get tons if misinformation! (And I speak from experience). And to blame diet or lifestyle is the road to madness. I lead a perfectly ok lifestyle, other than too little exercise. And too much stress. As far as I'm concerned its just one of those things.

sandripples Sun 16-Dec-12 12:10:24

Hi, Thank-you for all the comments re soya! I found the sight of all that Chinese quite reassuring in a way!

MAS - so sorry about your hands - now a bit of mindfullness might be needed for you today? Focussing on some beautiful things and all your lovely good points/talenst?

Ms Colada (sorry I just can't call you Penis!) - very important not to google - it will drive you insane and you don't have a diagnosis yet. I agree that getting cancer is just one of those things - I have reduced my alcohol intake to about one glass a week but I didn't drink heavily before and I find I don't like it much now anyway - it just makes me hot and stops me sleeping! I don't eat much processed meat although I do like ham. I think moderation is the thing - but alcohol and processed meat seem worth limiting IMO. And of course , when I remember, I eat lots of vegetables! I have always tended to eat loads of fruit and know I should try to boost the veggies esp the green elafy ones I'm not that keen on.

I found that cooking was a good distraction/therapy though, so its nice to experiment with healthy food if you also enjoy cooking it.

I've just amended my Christmas order to be more vegan now! (because of our guest).

Copthallresident Sun 16-Dec-12 12:26:53

Pen Whys and what ifs are as much of an enemy as Dr Google. Certainly in the case of Breast Cancer they really don't understand 90% of the risk anyway. Isn't environment heavily implicated in thyroid Cancer as well? As my wonky oncy said as she wrote down that I had breastfed two children to 18 months, never smoked, eaten healthily, exercised, drank the odd bottle glass of wine (some of it very odd, and in bus shelters), "well you did everything right but then so did most of the women who I treat". Anyway there is no point worrying about what you cannot change, or indeed what hasn't happened yet, though I know that is easier said than done.

MAS I also have zombie fingers at the very suggestion of minus temperatures. Your hands sound terrible, and constant chronic pain like that can bring you very low. I bet you are not at all plain and fat.

By the way wine was not implicated in my terrible handling of t'internet last night, chance would have been a fine thing, I was in fact on chauffeur duty and spent an hour on the motorway at midnight collecting DD from a party somewhere near France.

you are sweet copt and sr -yes,mindfulness would be good- am just feeling sorry for myself a bit.
pen have Aveeno on precription but they are still dry old husks ! actually Neutrogena is good as it's glycerine-y I think and that seals in moisture.
Do avoid google,it can really scare the crap out of you if you're not careful...

amberlight Sun 16-Dec-12 15:20:41

Pen, if it is thyroid cancer, 9 out of 10 are cured. It's good odds, if that cheers you up at all.
MAS, large hug for you/bracing tea/either/both. And for anyone else in need.

smee Sun 16-Dec-12 16:02:23

Nipping in to say hi. Am hiding out, as DS,DH and the cat are 'creating' our tree. Sounds quite epic from here! grin

Hi to PenisC. Great name! Sorry you're here, but stick around and let us distract you. We all get how horribly scary it is. It's why we're all still here really.

Kurri, I missed your birthday!! Hope the lemon cake was fab. Re present haul sounds rather good. You are most definitely not old. Repeat 3 times while dancing round your tree and you'll start to believe it. grin

MAS, your hands sound so sore. I think Co-codamol's a good idea too. You need sleep and it does help; I took it lots when I had my back problems. On calcium, I think chemo saps everything, so it's not that surprising. Sending you a huge hug. xx sad

SR, I avoid soy, as all my Oncs have told me to (I seem to have 3!).

Looma, hair washing sounds good. Strange how the smallest things make you feel a bit better. smile

Hope Gig's having a great time in French France, and Ned at her bro's wedding.

Waving to all who I've missed. Better go, as have told myself I am going to clean the bedrooms while the tree's being done downstairs. Strangely I keep managing to find other things to do.. smile

Lomaamina Sun 16-Dec-12 16:15:16

smee don't clean the bathroom. Snuggle down on the sofa with a cup of coffee and half a bun as I am. Cleaning's much better left to the experts.

grin

I snuggled on the sofa with a mince pie....
V sad news from a friend (went to art school together ) both her parents died (of strokes) within days of each other- so awful...and her dh has been dealing with cancer too- how crap is that.I wrote her a card when her mum died but she emailed to say that her dad had also died. Have emailed back but seems inadequate. She's up in N Yorkshire so difficult to do anything useful.

sandripples Sun 16-Dec-12 18:57:13

That's sad MAS. My mother had a whole series of strokes so I always thought that would be my fate too- as I've probably said before, Cancer just wasn't in my plan!
I hope you have a better day tomorrow.

I've worn myself out a bit today, but feel I've made Xmas-progress. I always feel stressed until I get all the cards finished, and have done so - walked round with the local ones. (well apart from 2-3 for people who live a bit out of the way - they may or may not receiver their cards...)

This year we're taking a Xmas lunch to DH's aged and rather infirm aunts on 23rd, then we've got 4 guests on 25th, including our vegan guest - have rejigged the plans and all will be fine.

Also stocked up on sticks and logs, and di some wrapping.

DS did arrive home late Friday but we've hardly seen him. Perhaps he'll drop in tomorrow when we're at work...

Anyone else watching Sports personality? Another nice chance to watch those glorious moments!

hooray for Wiggo !
Have just seen my cousin's post on fb revealing that she collects those scary Baby Reborn dolls- irksome !
Am off to town shortly to go to bank etc and later am heading out to coffee with 2 friends- carol concert this evening.
Waves to sr and love top all

smee Mon 17-Dec-12 11:39:53

MAS, that is sad. Your poor friend, she must feel so lost. How are feet and hands today? Hope not too bad. Good to hear you're getting out with friends. smile

SR, hope DS manages to stay in long enough for you to catch up. You'd be ever so stressed by my Christmas planning, I haven't even bought any Christmas cards yet. shock grin

Am feeling quite festive. Really must get organised. I have a list an arm long and still adding to it. Has anyone got any appointments this week?? I've just got a letter through to book a Dexa scan for bone density. Has anyone had one of those? I think they're quite easy/ stress-free?

NedSchneebly Mon 17-Dec-12 12:11:34

Festive good mornings to you all smile

Wedding was excellent - had big family get together on Friday night, with lots of cousins I hadn't seen in ages, then coffee on Saturday morning with old friends I hadn't seen in ages and then lovely wedding. DS lasted until about 9pm then DH took him back to the hotel and I continued on the extremely fine dessert wine. . .

Managed to paint on a smile all weekend - no-one apart from my DSis knows that I am a bit under par at the moment, but I think I managed to play the convincing part of the "all better, moving on, here's to 2013, blah blah blah" person everyone was expecting me to be. Quite exhausting. . .

Have put one pic of gorgeous DS in his page's outfit on FB, will try to put it on here too, if I can figure out how to. . .

Out to lunch soon with friend, will have a proper read back of all posts this afternoon.

lots of love to everyone x x x x

yay ned -glad it was lovely, but sorry that you had to cover up real feelings- must be very draining. I want to see bridal pictures and ned in her finery ! Saw ds on fb,bless him
smee grin @ the no cards yet ! Today I bought Babycham and cheese footballs as a kind of retro urge-plus I have a proper Babycham glass and wanted to use it !
Hands still sore,feet are ok. Am going to paint my nails so that my hands lookl less gnarled.(though that might draw attention to them)

smee Mon 17-Dec-12 14:06:33

Ned, DS looks so very sweet. Was he proud to be all dressed up? Glad you had a lovely day, though the smiling through must have been tricky. You did amazingly to manage it all day! smile

MAS am not quite as useless as I seem, as have sent to people abroad. Felt v.smug as did that a couple of weeks ago, but it must have lulled me into a false sense of security. grin

When are you seeing your team next?? Is there really nothing more they can do for your hands and feet?

Gigondas Mon 17-Dec-12 15:33:15

Painting nails is good - can you also slather hands in Aveno put on rubber gloves and put in warm water or keep warm? I ask as might help circulation and to soak the cream in (its what they do for manicures) . Does tesco not do babycham mas?

ned yay for wedding and llovely photo but am sorry you are still finding it tough. Did you ring dr lovely?

Had lovely lunch with work friends and finished my Xmas shopping - so can be smug now.

Adding French chock to trolley- had lovely wweekend In Paris.

Gigondas Mon 17-Dec-12 15:35:03

Ooh when is scan smee? And you less mad busy with work?

copthall I need your help please- can you suggest ways to decipher Chinese characters. Bought some new cufflinks for dh from antique store but have no idea what they mean (probably something really dull or inappropriate grin).

Lomaamina Mon 17-Dec-12 16:08:38

Not sure what can be done,maybe reducing dosage further ? Ity's a bit tricky as hands should be kept cool but then my fingers go numb- can't win !
Never mind though, found Babycham in Iceland,as well as cheeese footballs - yay !
I need to buy proper wine for dh from T - he loves Gewurtztraminer (not T) -then that should be it (though no doubt will still panic)
Had nice coffee with friends and am seeing a friend from London who is coming out to lunch tomorrow.
T still at carol concert rehearsal -he's certainly not at home anyway.

Copthallresident Mon 17-Dec-12 17:10:44

gigs It can be hard even with a dictionary to match up characters, especially if they are not simplified, as there are 10,000 of them and some are difficult to distinguish and a single stroke can make it into something else entirely. You can get apps but I would worry about Google translate syndrome (Friends and I were once having a conversation about Mad Men in google translate Italian - when Betty went to Rome- and we got suspended because we had said something really rude shock ) My Chinese lecturer enjoyed reading what people had had tattooed on themselves, clearly no one intends to be tattooed with "brush". Also if the word has no character, like Christmas, it will be assembled with a bunch of homophones. I'd always check with a Chinese friend, no substitute for years of learning . I would pop down to the Jun Ming, they are Hong Kong Cantonese but the characters are the same, and the owner lives in Copthall, daughter at you know where. I keep meaning to check up what it says on my Christmas tree decorations, there is definitely a man character on there, so not Happy Christmas hmm.

smee Worst thing about the bone density scan is getting from the changing room to the machine in the horrid gown, otherwise it's just a narrow circular band that whizzes around your hips and spine, doesn't take long. You get a score that compares you to the average for your age.

I am now half way through Christmas cards wink I'd let myself get intimidated by all the custom made family portraits and round robin letters, one American friend had posted all her daughters' accomplishments entirely in Greek "inducted into Phi Beta Kappa. What an accomplishment! That's our girl!" "By the end of the Quarter we had a Kappa Alpha Theta in our family..Who would have guessed???" Seems a bit sad to send back a picture of a Polar Bear and "Lovely to hear your news, We are all fine" ...

Must go, to finish cards before we go to Theatre tonight. Alan Bennetts people at the National. We saw the Hobbit last night, we all loved it so must be a family of sad geeks if the reviews are to be believed. Also for the purposes of visualisation humongous numbers of orcs/ goblins / Cancer cells were slain whilst Richard Armitage can now be added to the band of handsome immune system defenders grin I therefore felt it safe to eat Agadashe tofu at the Japanese restaurant after wink

smile to everyone MAS Babycham in proper glasses? in the bus shelter?

copt am terribly excited about the usual round robin from my dad's cousin- it's always a cracker...

KurriKurri Mon 17-Dec-12 23:10:13

Gig I've messaged you the recipe at last! blush - It looks like a huge essay, buut it's simple really.

MAS -sorry to hear about your friend - how awful for her sad

Ned - glad the wedding went well, I'd love to see DS in his pageboy outfit if you can get a picture on your profile smile
Doing the happy public face is exhausting when you are down, but it sounds as if you coped well smile

Don't overdo the cleaning Smee.

waving to Copt, Lola, Amber and SR and everyone - sorry my posting is sporadic - I'm very disorganized atm, and have had a dodgy tummy over the weekend - involving dashes to the loo - TMI.

Cheese footballs in Iceland - I must go there tomorrow and get some.

DD has made some amazing marzipan shortbread biscuits, they are delicious.
She has been offered position of church organist for local church, and local primary school has asked her to be the accompanist for their choir after starting next term, - so she is much in demand.

Copthallresident Mon 17-Dec-12 23:19:41

MAS grin To be honest that is one we look forward to every year. It gives DD1 a chance to point out that she beat both girls in the swimming gala when she was 10 and they accused her of cheating, and then went off in strop accusing the gala organisers of being amateurs compared to American galas.....

Anyway just popped on to say I found our Bus Shelter! It was in an exhibition of photos in the National Theatre and I like the idea we are all staring out to sea, always good for the spirits (not just alcoholic) and MASs babycham glasses won't look out of place www.flickr.com/photos/ianbramham/6596909039/

Impressive bus shelter copt !
Dd v clever and obviously talented grin kk - well done to her.
T's carol concert v lovely - great singing- he seemed to be the only pupil in the senior choir - all the rest staff - there is a yr 10 person too but wasn't there . He isn't singing in the school concert on Thurs though - was given the option but chose to give it a miss smile

Copthallresident Mon 17-Dec-12 23:59:41

MAS It wasn't that great an accomplishment. She didn't swim after we left Hong Kong, many even more scary athletes in her UK school, and too cold!

Copthallresident Tue 18-Dec-12 00:01:44

Oh! misread that blush

grin and sure your dd is hugely talented too !
uh- the round robin I mentioned on facebook- just realised that others rellies connected to dad's cousin are on facebook...I got an email round robin from their father (my dad's cousin) today too- they are hugely impressively athletic playing hockey ,doing dressage etc at high levels out in NZ (really,not an exaggeration -they take after their grandparent's family who were all very sportily gifted - what hap[pened to me ?)

Gigondas Tue 18-Dec-12 07:35:13

You are very talented but modest mas- we no longer get round robin fom dh cousin as dh took the piss one year and sent a spoof one back grin.

Thanks for recipe kurri - it looks fab (and not too late).

copthall grin at wrong Xmas decoration- I may take your advice and ask at jun Ming. Or just risk that cuff links say something like dumb gweilo.... Love the bus shelter- however surely you could lend some of your spare Xmas decorations to festive it up.

Need to get up as taking the mini gigs in to visit Xmas London and see dad in the office but need brew as mini gig paid us a nocturnal visit (and dh too soft to put her back in her cot).

PenisColada Tue 18-Dec-12 07:59:11

I have decided not to got to work this week. Is it normal to cry every time you talk about it ?

I don't want people to know about it as I don't want to talk about it. Is that normal ?

I am enjoying being at home for a change as I usually work full time. It has made me realise how hectic my life is usually and how much I would love to work part time.

Only 2 days to go now.

Tis thread is really helping me thanks.

Gigondas Tue 18-Dec-12 08:15:34

Yes absolutely normal on both counts- I am 10 months on and even now am still a bit reluctant to talk about it. What are you up to today to help pass the time penis?

Also talking of rants, have had a 1 year development check letter about mini gig. Given I had less than fuck all contact with hv for big gig, I am sure this is cos of my dx. I had hv visit and ring me and she gave me such rage (mainly cos couldn't hide her look of astonishment that I could walk and talk even though I had cancer angry) that I can't trust myself not to be rude.

I know you can tell hv to butt out but I am cconcerned that I am some sort of "watch list" thanks to my idiotic helpful Gp who was one who set up extra hv call.

I may of course be paranoid wink.

NedSchneebly Tue 18-Dec-12 08:16:09

Just for you kurri - have put a picture of DS being a pageboy on my profile. . . At least, I hope I have! Let me know if its not there smile

PenisColada Tue 18-Dec-12 08:35:42

I am actually working at home today and after I am up to date with paperwork I will go sick tomorrow.

I work with people with long term disabilities and illnesses a lot of them terminal and I think it makes it all much worse to cope with. I may have a change of career direction after this.

Gigo would the hv just be offering support ? Try not to be paranoid. Some people in your situation would need extra help but you obviously do not ! Think of her as a safety net.

topsyturner Tue 18-Dec-12 09:06:27

Gigs if HV does the "head tilt , how are you" thing , then you have our permission to beat her to death with a Christmas ornament !

Love the bus shelter Cop .
Looks too classy for us though ... grin

Morning Penis
Perfectly normal .
Just do what you need to do to get through the next couple of days !

It's cold here this morning .
So I am staying wrapped up in my sofa blanky .
Who's in charge of breakfast today ?

Lomaamina Tue 18-Dec-12 09:31:48

Morning Pen. Sounds like you're still working, just from home, so don't add guilt to your burdens. Only two days to go, so fill them with things that you enjoy and try not to think about it too much. I can well imagine your work setting might make matters worse. In my case one of my junior colleagues was DX a few months ago and I had to be the strong one for her (she's all recovered as far as I know, post Mx). Now I fear every time I'll see her it will remind me of my own situation. confused.

I'm sitting here looking at two gorgeous bouquets that arrived yesterday: one from my work colleagues and one from DH's. I don't know which is the more touching. Actually, in a way I do: DH's haven't even met me - how's that for sweet sympathy?

Yet isn't it weird that I totally understand Gigs' annoyance at HV being overly sympathetic. I don't want to be defined by my illness and despite the wonder of the flowers from my colleagues, I'm hoping to goodness that whilst they ask me how I am when I return next month/year, that they then carry on as normal.

confused confused.

JingleUpTheHighway Tue 18-Dec-12 10:02:45

Hello ... I'm not sure if I'm on the correct thread so apologies if not blush

I'm looking for some advice / first hand experience of preventative mastectomy . I'm faced with the decision and to be totally honest , I am petrified ! sad . I'm still young so this is hard .

Can someone point me in the right direction ? TIA

JingleUpTheHighway Tue 18-Dec-12 10:06:11

"I'm still young so this is quite hard ...."

Sorry that sounds ridiculous ! It's hard no matter what age , I didn't mean it in that sense ...

I mean I'm still young so the thought of living without my own breasts is worrying me . Iykwim ?! blush

Lomaamina Tue 18-Dec-12 10:18:44

Oh crumbs Jingle I have no experience in this area, but I'm sure someone will come along soon enough to give you some sound advice.

smee will be able to help jingle -she has had a mastectomyu for cancer plus a preventative mastectomy.
pen lots of hugs- be gentle and kind to yourself -I can see that your work situation would be difficult when you are in this waiting position.Waves to gig -and loma and topsy
gig think pen is right about hv just checking in in case you aren't coping- she'll see how well you are getting on with stuff and hopefully back off grin
Have a fab day in that London- how lovely- I remember taking T up for the day and dropping in on dh's office

smee Tue 18-Dec-12 11:01:05

I've had one Jingle. What do you want to know?? Am guessing you have a family history? With me, I had a mastectomy due to BC in 2010. It was pretty aggressive, so though they told me I didn't need to, I talked them into removing the other breast last year. I now have silicon implants and no need of a bra. Sorry to trivialise as it is such a huge thing to do, but it's not all doom and gloom. Ask me anything you want. smile

Looma, flowers sound lovely, but I do so get what you mean.Has reminded me of some of the cards I received on diagnosis. A lot were like ones you send for funerals, so lilies and similar. I threw them straight in the bin. hmm

Gig, the head tilt thing is most definitely justifiable grounds for bauble bashing someone over the head. You'd have thought a HV would know better, but sometimes they're the worst I think.

Ned, that pic's adorable. Was he the only Page boy, or were there more? How are you? Hopefully not too overwhelmed by Christmas. I seem to remember looking forward to it mightily when I finished treatment, but feeling exhausted by the thought of it too.

penis, took me an age before I could say cancer without crying, so I'd say it's normal too.

MAS, how are the hands and feet today? Any improvement? We have a round robin from DH's uncle. It rhymes (v.badly) and is always a high spot.

Waving to all others. How are you all?? I'm still feeling festive though have done bugger all about getting organised. grin

Lomaamina Tue 18-Dec-12 11:19:38

smee did you hear the round robin spoof reply by Lynne Truss on Today (BBC Radio 4) today? It was hilarious. You can listen again to it (and yesterday's) at news.bbc.co.uk/today/hi/today/newsid_9779000/9779537.stm

smee Tue 18-Dec-12 11:35:36

Thanks Looma, will go and have a listen. I love her. grin

JingleUpTheHighway Tue 18-Dec-12 12:36:13

Thanks smee! smile

I'm going for the implants too . I think I'm more worried about how it will look afterwards... As there's obviously no going back !

I kind of got my head around it , by thinking yay a boob job , but my nurse explained how its different and now I'm a bit wobbly again confused

Do they look ok?
Do they feel uncomfortable ?
Is it really different to having natural breasts ?

Also, because there is no breast tissue like with a cosmetic boob job, do they look / feel ok or look really different ?

I don't want to wake up from the op and freak out !

Really appreciate you helping .

JingleUpTheHighway Tue 18-Dec-12 12:36:48

Oh and yes it's a strong family history and I'm a gene carrier.

smee Tue 18-Dec-12 13:11:43

Jingle, they take a bit of getting used to. I think you get a far more natural feel from the other reconstruction options, but implants are a far easier op. Few answers for you:

Do they look okay? Well yes, mine are absurdly perky for a 46 year old. I have no nipples (yet!), as those went with mastectomy, so I have a Frankenstein type scar all the way across. My choice as I opted to remove as much tissue as was humanely possible, but I'd imagine you'll keep yours which means you won't have such visible scars. If so that'll help with the look a lot.

Uncomfortable? Hmm... feels a bit like wearing on overly supportive bra all the time, but that is getting a bit easier and to be honest I've got used to it. I get quite a lot of nerve pain (tingling and some shooting pains), as they have to cut some nerves to remove the tissue. I don't think that's to do with the implants, but is mastectomy related.

With that in mind, it's worth knowing about something called Post Mastectomy Pain Syndrome (PMPS), so chronic pain which can follow mastectomy. Not all women get it, but it's increasingly well documented. I'm not talking about immediate post op pain, but long term pain. I'm 2 years on from first mastectomy and have quite a lot of low level pain/ discomfort. For me it's fine as I can cope so long as it's not cancer, but can imagine it might be harder to square if you're doing it purely preventatively. Definitely worth asking your surgeon about though.

Also ask your surgeon if she's using the new mesh implant option? I'm not sure what it's called, but it's relatively new and involved using some animal skin (I think) as a support hammock type thing. Apparently that gives a far more natural support and feel and is more comfortable than the cruder version I had.

So yes, it is very different to having natural breasts. No denying it isn't. But I still have skin sensation, so that still feels nice and let's face it it's a heck of a lot better than having cancer.

Hth. Ask anything you want. I really don't mind. smile

JingleUpTheHighway Tue 18-Dec-12 13:22:20

Thank you so much for taking the time to reply flowers

I've decided to keep my nipple as I just can't get my head around losing those yet .

I have talked through the other ops with the nurse & have decided to go for the implants . I've got young children, one being a baby and the other ops are just not an option for me right now .

Hmmm I've never heard of the post op pain you mentioned . Is it constant ?

I'll definitely ask about the new mesh support - this has never been mentioned.

Can I ask , if you don't mind , how did you feel emotionally when you woke up?

Did you want to look at them straight away? I really can't see me wanting to look?

Also, how did your DP / DH react to your new boobs ? (You don't have to answer that !)

In a way I'm a bit more positive because after years of breast feeding , my boobs are saggy and empty ! Or "droopy " and with "no volume" as my consultant kindly put it . So on the plus side they'll be put back to where they should be !

smee Tue 18-Dec-12 13:30:40

I hadn't heard of the post op pain either. It's the sort of thing they don't tell you! I'd say with mine it's not constant, but I am in pain every day, usually when I'm tired. It's totally bearable in my case and just annoying, but there have been women who find it overwhelming. You have to remember that for many it's totally fine though. Trouble is you never know if you'll fall into that bracket or not. Odds are you will.

When I woke the first time, I was just hugely relieved as the cancer was gone, the surgeon said she'd got clear margins and that was all that mattered. The second time was also a relief as the op was over, but I've found it hard to look in the mirror. Am getting there with that now, but remember I have Frankenstein's scars, so that doesn't help!

My DH is kind of like me, so we were both freaked by the cancer diagnosis, so losing the breasts were just necessity at first. He's been lovely about them though and seems to approve!

Basically I think it's a really tough call, but let's face it you've got it in your head now. I know with my preventative side, I told myself I had to do all I could to avoid recurrence. That way if cancer ever did come back I could look at my son and know I'd done all I could. Just my way of getting through, but it felt hugely positive in a scary sort of way. Sort of like taking back control of my body.

+ yes none-saggy breasts are funny and fab after breast feeding. I was hoping mine would double as a buoyancy aid when I swim, but sadly they don't. grin

JingleUpTheHighway Tue 18-Dec-12 14:11:12

That's the way I'm looking at it too - the whole "I know I did what I could".

I lost my mum to cancer fairly recently and she was in get 40s ; as was her mum, so I'm pretty scared about the whole thing.

If / when my dd is in this position when she is older , she can (hopefully) look at me and see that I've done everything I could to be here for her .

I cry about it most days because op day is looming ! It must have been very scary for you to have to go through that as well as the cancer .

My consultant has said that if I don't get it done , then I'm playing Russian roulette with my life . So feel I have no choice .

Thank you so much for taking the time to reply .

And everyone else , I'm sorry for hijacking your thread ! grin

Lomaamina Tue 18-Dec-12 14:37:51

Jingle it's not for me to say, as I'm new to the thread myself, but it's certainly not hijacking as far as I'm concerned. Sadly, very much on-topic.

All the best from me with my mere one-sided Franckensteinness (I had the areola complex removed from one breast under surgery last week due to Paget's disease). sad

My DH said something lovely to me yesterday when I was quietly moaning about being 'deformed'. He said he views it as being a bit like that female war journalist (Colvin) who lost an eye. It's a war wound to be worn bravely. I rather like that.

Apologies for being a wimp, and having said that, but I'm dreading how I'll respond to how it looks when the bandages come off. A dear friend of mine said if I'm worried, I shouldn't look confused.

KurriKurri Tue 18-Dec-12 15:35:36

Hi all, - I braved the shops this morning and that's it - not going into town again before Christmas - it's a nightmare, but I had to get a b'day pressie for DD (inconveniently born on Dec 29th the troublemaker) and I wanted to avoid having to go out after Christmas.

Ned - thanks for photo, - little Ned looks absolutely adorable as usual in his pageboy outfit. He is getting tall isn't he? he is one gorgeous boy smile

Penis - crying absolutely normal - it is very very early days for you, - you are still in shock and having to deal with waiting and anxiety - you are bound to be emotionally on edge. You are very wise to take some time off if you are finding it hard to cope with talking to colleagues - do whatever you need to, to get through this hard part, and hang out here for hand holding and cake smile

Jingle - I don't know anything about preventive mastectomy, but I have had a mastectomy after cancer DX, - in some ways it is probably a little to easier to handle if you actually have cancer because you just want it gone, and the op is part of that. But you have a big decision to make and you are bound to be apprehensive especially if you are young.

All I can say is, in hindsight from the viewpoint of going through cancer, if I had had the opportunity to prevent my cancer by having a mastectomy I would have done no question. I know its not the same situation as you are in, but hope different views are helpful and what you are after smile

As for pain etc. - I did have some pain afterwards in my chest - and some itching, but this has all calmed down a lot now. - Also I had radiotherapy which may have caused some of the effects. I don't know if there are any young women's groups in your area, - you might find them helpful, there are definitely different issues for younger women and talking to others in a similar situation can often help. I wish you loads of luck anyway, and happy to answer any questions about the surgery that I can help with.

Oh and you aren't hijacking, you are very welcome smile

Loma - that's a lovely thing your DH said - he sounds a good chap. And I think he is right. smile xx

Love to all - MAS I have my Iceland cheese footballs and twiglets - thanks for the tip (also some poundland walnut whips) grin

JingleUpTheHighway Tue 18-Dec-12 15:50:54

Thank you Kurri - you've made a very good point about having the chance to prevent cancer rather than having the cancer .

I know in that sense I am "lucky" to have the chance before I get cancer .

Due to my risk for ovarian cancer being high too, I'm also having my ovaries removed.

I'm still not sure when yet though as I'm in limbo as to whether my family is complete . DH on the other hand is certain there won't be any more baby jingles ! grin

stick around jingles - you are certainly not hijacking the thread and are most welcome.
Hands much the same dear smee - think this is how they'll be really- not intolerable,more pesky than anything else.
I heard the Lynn Truss this morning - v funny - will forward the link to dad who will appreciate it. The round robin turned out to be quite dull- fascinating facts revealed-that they enjoyed watching tv together,particularly cooking programmes and that their son had a new cat (a Maine Coon which actually was interesting to me)
They got another from a Swedish friend who lives on the Cote d'Azur but I didnn't bother reading it.

meant to say- had nice lunch out with old school pal - was lovely- took her to have coffee with my olds who were delighted to see her.

Copthallresident Tue 18-Dec-12 17:26:21

jingleupthehighway I am 11 years post mastectomy and in the last 11 years I have met a lot of women who have had various sorts of breast surgery and I think smee may be very unlucky, or my friends lucky? I haven't heard of anyone having the post op pain smee mentions but I had read about it and that you can get the same sensations as amputees, of the boob still being there. (smee that is annoying and unlucky, will it fade as the nerves grow back? I would say most of my sensation had returned to entirely normal by 3 years post op) The only problem I had post mastectomy was the numbness which if someone touched the numb area felt a bit like the throb you get with an electric shock. However that was only if someone touched it firmly, bras, prosthesis etc weren't a problem. It improved in the first months, very quickly at first but then more slowly and now I have all normal sensation back apart from a very small numb patch at the back of my armpit.

My friend who has a strong family history, not one of the known genes but the researchers are sure she has one they have yet to identify. She caught a lump very early 10 years ago but has just had a recurrence in a lymph node, she has been treated successfully and has just had her ovaries removed but that feeling it is lying in wait is always there, just hoping medical science is going to have moved on enough to treat it if it happens again. As indeed it has, since she has been treated entirely by a hormone specialist whereas with a lymph node involved 10 years ago I had chemo even though my tumour was also very Estrogen positive. However I am sure she would say the peace of mind will be worth it.

I obviously woke to a flat chest, I was sad but also relieved to have got rid of the Cancer. I couldn't look at first but after my hair went as well I stood in front of the mirror and realised the dread was the worst thing, once it had happened I realised it was still me and I hadn't lost anything that really mattered. DH said the same.

pen It is entirely normal, and certainly how I felt. Apart from the shock and coming to terms with what is actually happening we all have lots of preconceptions and emotional issues with the word Cancer to deal with, in ourselves and others, even though they don't apply to our illness because Cancer isn't one illness, as we all know it is many. It helped me to do the telling to people by email, I know it sounds emotionally crippled but I just found it easier to get it over with and deal with people's reaction from behind a barrier. I'm afraid I even did that to my parents and closest friends but they understood.

gigs It might be worse than dumb gweilo though!!! You know the Chinese characters used colloquially for the round windowed Jardine Building in Hong Kong spell out House of a Thousand Arseholes .

I think the HVs have a brief to act if there is the slightest additional load to a family. I inadvertently mentioned at a pre natal class that my Mum had post natal depression. I didn't, in fact with a healthy baby after all the miscarriages and infertility I was on Cloud 9, but the HV who took the class wouldn't stop hovering for the first few months with questionnaires to find out if you were depressed which asked things like Do you feel sad? Then of course once disco queen cot hurdling DD could run she did, everywhere very fast, and was a specialist at nutting the skirting boards and door frames, and escaping Houdini style from harnesses in prams and shopping trolleys. Every trip to Casualty was followed by the HV visiting with deep suspicion etched all over her face. I only lost it once when DD2 was 3weeks old, our car was stolen, and DD had vaulted out of the pram (in spite of 3 harnesses) on the 3 mile walk to nursery and she looked at me as if I was pathetic and said "Some women have to cope with that all the time" when I finally conceded I was finding it a bit stressful with the added burden of spending 2/3 hours walking DD to nursery and back twice a day!!....... I am sure she was evil and I was not being paranoid!! I think you have every right to say I am coping fine, no problems, goodbye and thanks.

Copthallresident Tue 18-Dec-12 17:48:29

MAS Perhaps our next thread should be in the bus shelter with the babycham glasses giggling over the round robins, the one that was all greek to me was from Hawaii envy " the family had a fabulous summer enjoying their own backyard and one of the world's largest and most spectacular swimming pools where people venture on their lifetime holidays on a regular basis" Just like Twickenham really......

Will listen to Lynne Truss. Does she start, as Hawaii friend does " Each year it seems to get profoundly sweeter to go through the exercise of summing up the current year" ??? I must stop, she is actually a very nice person and I do think there is something to be said for American enthusiasm.

Cards sent off, and now off to shops for late night smash and grab raid. Topsy smee etc. You need not panic, you have loads of time [panics]

grin copt !!

smee Tue 18-Dec-12 20:21:26

trying not to panic, though have just bought my mum a lovely scarf type thing, which I'm sure she'll love. smile

Copt, yes I am just unlucky. I hadn't heard of it at all, but my surgeon (now!) tells me it's estimated 20% of us have chronic pain. Good chance it will fade and it's really not too bad, so Jingle, don't let it put you off. I only mentioned it because I wish I'd known about it. Very unlikely to happen to you though, as you're not having node removal, which reduces the risk.

Lynne Truss made me giggle. DH's uncle is death and health obsessed, so he has created an astonishingly medicalised verse. Favourite has to be 'dry macular degeneration' with 'medication'. Surely a world first. grin

HND, how are you? Are you keeping busy?

So much to do here... Not sure where to start, so might just make a list. Will that make me feel better or worse?! confused

smee Tue 18-Dec-12 20:24:08

MAS, when do you see the team again? Is it before Christmas? Seems unlikely now, as it's so close. [eek!]

Kurri, what did you buy for DD? Are you less busy now?

topsyturner Tue 18-Dec-12 21:30:10

I also have post op pain Smee
And bizarrely I get such an itch in my missing boob !
It's the weirdest feeling grin

KurriKurri Tue 18-Dec-12 22:54:26

JIngle - I second (third? fourth?) the idea that pain is connected with node removal, they do a lot of rummaging around and damage nerves etc. when they remove them - so hopefully you may manage to avoid that kind of nerve pain.

topsy - I get the itching in a non existant boob - it is such an odd feeling, and scratching doesn't deal with it. I also get a kind of acute pain round my chest - feels almost like cramp and lasts maybe 30 secs then goes - I'm guessing that is a nerve thing too, - anyone else get that? or am I a total weirdo?

Been out to a Christmas party at my art club tonight, which was fun. Very foggy driving home and we nearly hit a deer - it was a young one and was just standing in the middle of the road, - have to say that seeing it close up in the mist, it looked really beautiful and mysterious.

Smee, I have got DD some stuff so she can do felting, a book with instructions and projects, some wool and a sort of mat thing that you rub the wool on to make the felt, - I think she'll enjoy doing it she likes doing crafts. I also got her the DVD of the Woman in Black, so that is her sorted, - I won't have to brave the shops just after Christmas and fight my way through the professional sale goers!

Tonight was the last time I'll see one of my dearest friends for a while, - she is off to America for 3 months to visit her DD, - I have been given strict instructions to e-mail her all the gossip while she's away grin I'll really miss her - we do loads of stuff together.

Presents for dd sound great kk - sorry that you'll miss your friend though -
* smee* am seeing Onc on Friday so I expect I 'll be given next round of chemo. It's secondary bc group festive lunch tomorrow.

Copthallresident Tue 18-Dec-12 23:51:09

MAS Enjoy your lunch. I hope it works as a spport group, it really is brilliant when it works. I hope next dose gets reduced again.

Presumably everyone has had sentinel node removal? It was just coming in when I had my surgery so some of us had it and some of us had the whole, another quaint saying, mat, out. I must be very very lucky because they removed all my Lymph nodes, and yet I have got away with no lymphodemia or pain / phantom pain etc. so far. I do worry though that it is waiting down the line. I had lymphatic massage in Hong Kong, part of the Breast Cancer Centre Dr Polly set up but not found anyone here to trust with my lymphatic system. Has anyone?

smee Tue 18-Dec-12 23:58:32

I don't get the itch thing - lots of sun burn type feelings, but if you're a weirdo then I'm one too, Kurri. Sounds v.familiar - completely freaked me at first as was convinced it must be recurrence. Though actually my preventative mastectomy did me a massive favour with our old friend Miss Paranoia, as I get similar pains on both sides. Most unlikely that it's cancer in the preventative side, so it means I relax more about the cancer side iyswim. smile

Shame about your friend going, Kurri, but she'll be back before you know it.
Presents for your DD sound lovely. Can just see you both curled up terrified in front of 'Woman in Black' creating weird things out of felt grin

MAS, am glad you're seeing Onc. Even if they say there's nothing much they can do about your hands and feet, it will maybe help to hear their take on them. Lunch sounds like a treat. Is it? Can imagine it's a bit of an odd one, but hope it's fun along the way.

Right, am off to bed. Hopefully to sleep. Last night was a bit useless.. zzzz (hopefully!) smile

PenisColada Wed 19-Dec-12 00:48:41

Looks like no sleep again for me tonight. This waiting is complete torture.

jchocchip Wed 19-Dec-12 06:07:36

Hope you did manage a few hours pen Waiting for results is torture. Hi to jingle I'm a lumpectomy girl myself wonky boobs being well worth it if the cancer has gone.
Had interview yesterday, did ok but thought of lots of things should have said afterwards. Will hear after Christmas. Having furniture delivered today, can then start thinking of Christmas.
Waves to mas, kk, smee, copthal, ned, topsy, amber, gigs and loma - who've I missed out? Luffs you all. I'll put a brew on. Christmas buffet at work today grin wonder if we will have a prawn ring?

Gigondas Wed 19-Dec-12 07:18:07

Morning all copthall- I would trust my massage lady (she is local) with lymph massage. She is only person I have felt happy to manipulate my scar - can pm you details if you want.

brew For penis - and lots of love as it is really the worst stage. I remember not believing people saying this to me but it is better when you know and have a plan.

kurri lunch sounds ace.

Day out was lovely - big gig loved it and mini gig seemed to. Off for last therapy and lunch with my cousin who has been a fantastic support (has ovarian cancer). We are off for dim sumgrin.

But before that big gig has a play date- a bunch of over excited four year olds, what could go wrong?

good luck with the big gig friends and have a lovely dim sum.
Am looking forward to seeing the group today,though a bit nervous as don't know them really-=apart from the nurses...
sending pen lots of good vibes and fingers crossed for jane's job xxx

topsyturner Wed 19-Dec-12 07:50:19

When is your apt Penis ?
Is it today ?

Mas enjoy the lunch .

Gigs think you should have wine with your dim sum , after the play date you are gonna need it ... grin

It is howling with wind and rain here this morning .
I have to wait in for a parcel today .
It's DDs main Christmas pressie .
And Argos have been repeatedly lying to me about it being delivered , so we shall see if it arrives !

topsyturner Wed 19-Dec-12 07:51:26

Will keep everything crossed for the job Jane , and enjoy your prawn ring grin

prawn ring ! am marvelling at the horrors which are Iceland lasagne bites -eww

Gigondas Wed 19-Dec-12 07:59:41

Oh it wouldn't be a party without a prawn ring (and in case of our recent Xmas dos, half defrosted Iceland type nibbles- I bet they got lasagne bites this year). Think that always happens with interviews (and exams) that you replay what you could have done jchoc. What is being delivered today?

Am sure lunch will be lovely mas

Have you got lots to watch while
You wait topsy? I have one more package to come .

smee Wed 19-Dec-12 09:35:07

Pen, (((hugs)))). We might sound mad saying waiting's the worst part, but it really is. Can we distract you with brew and inane natter?

Well done on the interview, Jane. Report back on the prawn ring. My Grandma once won a £2 voucher for Iceland in a raffle. She didn't pick up the prize as she didn't want to go to Iceland. She hadn't realised it was a shop. grin

Topsy, what's the pressie for DD?? Hope it arrives safely. When do your two break up? If they're anything like mine, they're already beyond excited. Really don't envy the teachers at this time of year. smile

Dim Sum sounds mmm, Gig. Remember to bring some back for the trolley. smile

Work's finally winding down for me. Have one last thing to do this morning and send off, then I think I'm free. Just have Christmas to organise then. grin

topsyturner Wed 19-Dec-12 09:37:15

Am watching 2 episodes of Elementary whilst I wait .
Did all my housework yesterday (ignores the fact that pig/dog has performed German Shepherd Muddy Paw Art all over the kitchen floor)

Apparently (according to the Greatest Liars In The World - Argos) the iPad is on the Yodel van for delivery today
Will believe that when its actually in my hand !

topsyturner Wed 19-Dec-12 09:39:39

The DC and DH all finish work and school at lunch time on Friday .
Bang goes my peaceful house grin

smee Wed 19-Dec-12 09:42:59

Ooh, an iPad. that'll keep her quiet bet she'll be over the moon. grin

I've only got until 2pm tomorrow and the school concert's in the morning, so that's just today really. eek..

Gigondas Wed 19-Dec-12 09:48:21

envyenvy About cleaning- cleaner called in sick so I will be doing it (unless can get nanny2 to do some. Nanny1 would have it all done by lunchtime usually but she is off on holiday after today so is busy getting a fix of mini gig). Am not going to attempt any cleaning til post play date tho .

I expect in certain Mn areas the suggestion would be for big gig to help. I suspect that would be about as much help as roping pig dog in.

Good luck with yodel- I am never filled with confidence when I see their name as delivery outfit.

T wouldn't be much good at helping with cleaning- too distracted plus it wouldn't get done to my satisfaction (uptight obsessive emoticon)
I shall clean tomorrow...
He breaks up at lunchtime on Friday - I probably won't be back from hospital to make sure PE kit and raincoat are brought home and not left mouldering in his locker.
Righto, off to tidy myself in readiness for outing.

Copthallresident Wed 19-Dec-12 10:22:03

gigs Can you not ring one of the agencies to get a cleaner. I have used Molly Maid and they were fine.

I would love name of massage lady. She will cope with the mutilation tactfully? I have been sensitive since being completely humiliated by reflexology woman who refused to treat me, angry didn't do Cancer apparently....

Imperial China? Yum.

MAS grin DDs student flat decided to indulge themselves in a night in with Iceland party food since their Mums do NOT go to Iceland. They said it was disgusting, and they do not have high standards....

Now in full panic mode, haven't slept, have to be on plane tomorrow and now feeling very evil as I have to take goon dog to prison for Christmas sad and he knows because his food has been put in car. He keeps hopefully giving me his best Collie stare....

smee Wed 19-Dec-12 10:22:16

Gig, have put some pics on my profile to show you how to harness mini-Gig. grin

Have a nice outing, MAS. smile

Lomaamina Wed 19-Dec-12 12:14:05

smee today's Today Lynne Truss spoof is halfway down on this page (saving you the five minute hunt I just had): news.bbc.co.uk/today/hi/today/newsid_9779000/9779836.stm

I'm currently lying half collapsed on my sofa having been to the local hairdresser's (good) on foot (probably overambitious). I was feeling better yesterday so I hitched a ride to the local library, but along with doing a tiny bit of washing up and probably walking around the house resulted in a night of discomfort. Crazy isn't it? I keep on hearing in my head the surgeon telling me that the breast is a superficial organ and I should be right as rain in a couple of days. Either I'm a fuss-pot, or he's talking nonsense.

Hope everyone's enjoying the grey chilly weather. A good excuse for a chocolate madelaine (just retrieved the last one to have with my coffee). Bliss.

Gigondas Wed 19-Dec-12 12:26:47

Yes doesn't flinch (massaged me when had a line too) as has worked with lots of cancer patients. She is also qualified in reflexology . Will pm you details.
And will definitely bring some dim sum back (am off to one on baker st copthall) .

Luckily super nanny nanny 1 and 2 are helping out so need of help. Am very lucky now after my woes with the previous nanny.

loma surgeon is a dick idiot- see how well he would be doing a few days later if we lopped a bit of him off and filled him full of opiates.

smee can't see profile pics - am I being daft?

And mas enjoy your lunch.

Lomaamina Wed 19-Dec-12 12:54:54

Thanks Gigondas you make me laugh out loud! I was thinking the same, particularly if it was a similarly - um - sensitive part of his anatomy.

smee Wed 19-Dec-12 13:13:05

grin at Gigs, though she's right Lomaamina, he is an arse. Anaesthetic alone knocks you for ages. Thanks for link. smile

Gigs, not sure why you can't see pics. They're only open to mums net mates, but I have clicked your name and it's there. Try again? If anyone wants to see them and can't I can add you.

Smug alert (or should that read skin of teeth alert), as have just posted Christmas cards and final parcels. Still lots of shopping to do though.. smile

am back- it was very nice- the gathering though food not brilliant,but never mind -wsas nice to see the others and bcns were very jolly.
The Lynne Truss was very good this morning !
I missed the bit about loma's surgeon- bah !

Gigondas Wed 19-Dec-12 17:02:48

This ought to distract you penis
com/Talk/_chat/1640263-funny-secret-santa-backfire-horrible-tense-xmas-party bad work party

Lunch was lovely- honey pork puffs and char siu buns especially (sorry mas).

And smee still can't see profile confused.

Did everyone's deliveries turn up?

And loma hope you are resting up.

Gigondas Wed 19-Dec-12 17:03:41

kurri aren't you due to get involved in a bunfight - it has been a while wink?

Copthallresident Wed 19-Dec-12 17:04:06

Loma It is your Consultant who is the superficial organ......

smee Wed 19-Dec-12 17:10:10

Er...not sure why you can't see profile, Gig. Can anyone else see it? Maybe I don't exist. Does that mean I don't have to buy Christmas presents? grin

Lomaamina Wed 19-Dec-12 17:19:06

Tee hee at Copthall and yes, thanks Gigondas resting with my feet up and doing some 'superficial' work: reviewing research proposals, assessing coursework, y'know... My brain works reasonably well in a prone position, thankfully grin.

n.b. looking forward to doing battle with our jobsworth admin who will be demanding a 'fit to return to work' letter when I go back in the new year (not wanting to out myself, but we're closed over the xmas period), even though I only took four actual days of sick leave - i.e. only four days that didn't involve working from home. Not sure whether I have the energy to do battle with the battle-axe or if I'll roll over and get her wretched piece of paper from the doc. Can anyone explain the logic of these notes to me? Apparently the doctor doesn't need to examine me in order to certify I'm fit to work confused. Where's the logic to that?

PenisColada Wed 19-Dec-12 17:36:24

Appt tomorrow lunchtime.

I have kept busy today done Xmas shopping. I have some codeine I will take tonight as my mind just races and goes round and round and round every night.

If the diagnosis is one of the bad thyroid cancers I don't know how I will cope.

Lomaamina Wed 19-Dec-12 17:49:12

Pen I will be thinking of you tomorrow. Be strong. There's every chance this is something manageable and treatable.

Come back and tell us your news if you feel up to it.

pen - if it is bad news I'm sure you will cope- I bet everyone on here though they wouldn't but you do,as you've no choice really - am keeping everything crossed for good news though.
char sui buns- yum yum- wish we'd had them for lunch !

smee Wed 19-Dec-12 18:44:39

Can't tell you not to worry, Pen but whatever they say it'll be a relief just to know. And whatever you face, MAS is right. If we can do it, so can you. smile

topsyturner Wed 19-Dec-12 19:36:54

Penis will be thinking of you tomorrow lunchtime .
Whatever it is , once you've had some time to get your head around it , you WILL cope .
I know it doesn't feel like it now , but you will .

<Sniffs char Sui rolls suspiciously , decides not poisonous , snarfs 1/2 dozen in one mouthful>

iPad mini arrived !!!
I did not spend the afternoon playing with it .
I merely turned it on to check it didn't need charging ...
grin

Glass of wine for anyone ?

JingleUpTheHighway Wed 19-Dec-12 19:53:43

I don't know all of your back story peniscolada , and I'm a very newbie here , but I'll also be thinking of you tomorrow .

KurriKurri Wed 19-Dec-12 19:58:08

Pen - keeping everything crossed for you for tomorrow, - we will all be thinking of you. Smee is right, knowing is better than anxiously waiting, and you will cope and deal with it in your own way, the professionals are there to help you with that side of things just as much as the physical stuff, and will support you too.

Gig - I do need to get into a bunfight, but I've been so busy I haven't had time grin - just need someone to post 'AIBU to have given all my money to a psychic' and I'll be on the case grin

Glad you enjoyed your lunch MAS smile

loma - your surgeon is mad as fifty badgers mistaken over the operation recovery time grin

topsyturner Wed 19-Dec-12 20:14:01

Smee I can't access your profile either .
You hate me don't you ... ?

Gigondas Wed 19-Dec-12 20:22:42

Ohh I just got a semi nasty personal message from someone I reported for spamming saying jealous so I am officially stepping into kurris shoes grin.

Yes to wine - for some reason( probably not unrelated to small people waking at night and others being on holiday ) I am done in.

Penis will be thinking of you tomorrow and you will cope - there is a Whole spectrum of dx types here but as you can see we are still living life despite the ups and downs of this bastard disease.

PenisColada Wed 19-Dec-12 20:27:14

What is odd as well is that I feel absolutely fine, apart from the anxiety and panic, and have no symptoms apart from a very slight slight swelling that my GP could not see so feel it is all a bad dream and not real at all.

Thanks for the support this thread is wonderful.

KurriKurri Wed 19-Dec-12 20:30:41

shock at nasty PM Gig - some people are crazed loons strange.

<Whispers> Smee I can't see your profile either, are you sure you have made it public?

Lomaamina Wed 19-Dec-12 20:39:36

Oh gigs I hope you re-report them. Shall we put together a possey to defend you against the nasty beast?

Gigondas Wed 19-Dec-12 20:40:10

If it makes you feel better penis, I should have known that its not normal to have a swelling that ended up the size of a small football on your backside (in my defence I was pregnant so was told not much could be done til I popped). So I how daft did I feel smile.

And if it is small then chances are will be early- woman at work was treated and has been clear 5 years.

Gigondas Wed 19-Dec-12 20:42:07

Oh I agree kurri there are some right loons about. But I do enjoy the pre Xmas lunacy (not the sad ones about relationship) - the ones about Xmas parties (there seems to be a spate of dps confusing bedrooms and toilets) or the plethora of mil ones.

Lomaamina Wed 19-Dec-12 20:42:10

P.s. I know that's not spelled right, but I have in my mind us all in cowboy gear saddling up to ride into the desert.

Hallucinating on paracetamol? Moi?

Gigondas Wed 19-Dec-12 20:42:43

Can we dress up with sparkly cowgirl hats?

Lomaamina Wed 19-Dec-12 20:43:48

What about the madly long SIL saga (ill behaved kids in restaurant)? Enthralling!

Gigondas Wed 19-Dec-12 20:45:24

Oh I loved that - I also got quite into some of the longer term relationship posts which I am sure is not what they are there for.

Lomaamina Wed 19-Dec-12 20:45:37

gigandis Defoe.

Giving up Cross-posting with myself will be my New Years resolution by the way.

KurriKurri Wed 19-Dec-12 20:45:38

Joins posse [loves a punch up emoticon] puts on cowboy hat and chaps (is that what they are called those sort of backless frontless trousers thingies?) anyway whatever they are called, I'm going for the cowboy in Village People look. grin

Lomaamina Wed 19-Dec-12 20:46:46

Along with learning how to cancel iPhone auto spelling option...

Gigondas Wed 19-Dec-12 20:47:46

Maybe I should have a hard hat so I could be the builder (and yes it was reported).

Lomaamina Wed 19-Dec-12 20:51:43

I always wondered what chaps are. Confused them in my mind with spurs. Could be painful

Right. I must stop and pay attention to poor DH who's only just finished the double load of chores.

Sleep well everyone!

Loma

smee Wed 19-Dec-12 22:49:49

Can I be the Policeman?? I rock the moustache look. grin

Have fixed profile. Not at all sure what I did. Pics were to inspire Gig to harness DC for housework. My poor DS..

KurriKurri Wed 19-Dec-12 23:06:15

Love the fact that you started him early on the wine Smee grin

Yes you should be the policeman [or was it the biker who had a huge porn star moustache, - or maybe they both did. Not that I'm suggesting you have one (I do obviously, and a beard as well)]

Hope everyone knows all the words to Macho Man.

I really must go to bed.

jchocchip Thu 20-Dec-12 06:13:13

Morning all! My house is stuffed full of furniture from mils house. Dh did sell giveaway pine table and 4 chairs and wicker and two lloyd loom type chairs. Pity we didn't have space /time to advertise them... now have white comfy sofas in living room which is good, but dining room/hall full of other stuff beds white goods... aaargh. Good we are away for Christmas!
There was a prawn ring yesterday, but people weren't that keen. Mostly it was pizza and pakoras. And improperly defrosted puddings impossible to get out of plastic packaging without squashing...
Love the pictures smee have one of ds somewhere with broom at end of my grans 90th birthday 19 years ago. Ds is 20 wink
Went to musicians centre last night to see massed ukeles had to sit through lots of singers of varying quality - you could have performed as village people there grin

jchocchip Thu 20-Dec-12 06:21:54
Gigondas Thu 20-Dec-12 07:19:46

In the navy is my personal fave

Lomaamina Thu 20-Dec-12 07:54:50

Agh what have I started! Thanks to you I now have the top hit of my childhood (gawd help me)* playing through my head!

* The 70s was definitely the decade that good taste forgot.

Just returning to reality: I woke up to an email from my HoD asking me how I'm recuperating. Nice? No. It was a message at the top of an email forwarded on about something completely trivial and non- urgent that she wanted to bring to my attention. Grr and gah.

topsyturner Thu 20-Dec-12 08:07:24

<reaches for Brain Bleach as Macho Macho Man plays on a loop in my head>

I do have a rather lovely photo of me wearing a (real) policemans hat .
My friends refer to me as PC Plum in it !
I shall put it up on our Facebook group , and then we'll see who gets to play the Cop in The Village People !
grin

Gigondas Thu 20-Dec-12 08:28:35

It's quite special that photo. Personally I enjoy a bit of 70s totp or smooth 70s as there was so much shite.

topsyturner Thu 20-Dec-12 09:41:50

Why thank you Gigs
It's one of my personal faves grin

topsyturner Thu 20-Dec-12 09:43:05

Thinking of you today Penis
Hope all goes well x

Mas are you back with the Onc tomorrow ?

Anyone else with apts ?

Copthallresident Thu 20-Dec-12 10:40:16

Hi

Just popping by to say Happy Christmas to all, in spite of whatever aches and pains people may be going through. off in a very few hours.

Obviously we are now doing YMCA in the Bus Shelter........ DD went to Bestival last year and was most excited to be seeing not her usual indie bands but... Village People grin. She said the tent was packed to overflowing! I still have a knitting pattern book that my partner of the 70s had added speech bubbles to as an expression of his dim view of living with a 20 something that knitted. All the jolly cheezy models are singing "In the Navy" and other Village People lyrics or saying "shaushages" (remember the dog that said shaushages?)

smile smile smile smile smile smile

pcplum**topsy yes,oncs tomorrow !
Am, doing a bit of dustoing around the christmas cards and decs and then venturing out to get something for T's lunch tomorrow (finish at lunchtime) and some festive treats as friend is calling round tomorrow afternoon- also cheeses,as that's my buying job...

KurriKurri Thu 20-Dec-12 11:28:32

Morning all, popping in to wish Pen loads of luck today - we'll be thinking of you lovely xx

Happy Christmas to Copt - have a good journey and wonderful time smile

jchoc - I quite fancy seeing a massed ukelele band - they always look good fun. Saw one on the telly once playing 'Smells Like Teen Spirit' - it was surprisingly not naff grin.

topsy I think we need to see the PC Plum photo on your profile before we can award you the cop role. I have a picture of DH in a cowboy suit, which I think qualifies me for cowboy. Go Weeeeeeeeeeeeest!

Loma - hmm to the e-mail, - ignore or send rude reply 'I would be recuperation better if i wasn't plagued with work requests' grin

My new years resolution is to organize myself onto FB, so I can see all these photos grin

DH's work has done a cringingly awful gangnam style video - changing the lyrics to stuff about scientists (it includes the words 'sexy scientists' - deluded or what?) it is on Youtube and is very bad. DH thinks its good (he is 'dancing' about in the background) hmm DD says it is the saddest thing she has ever seen grin

KurriKurri Thu 20-Dec-12 11:30:42

Oops pressed post by mistake - I have to do cheese buying too MAS, - sainsbury's have doubled the price of some of their usual cheeses (cheeky buggers) Waitrose is probably cheaper now!

Go easy on the dusting, and good luck with appointment tomorrow. (Are you starting another cycle of chemo tomorrow?)

funny you mention ukeleles - am thinking of trying one ! Saw that Teen Spirit version on youtube only yesterday ! Am off to investigate scientists now....
Looks as though I'll have a new round of chemo prescribed,though bcn yesterday thought my hands still looked bad..will see grin Have only dusted a bit.

KurriKurri Thu 20-Dec-12 13:06:30

MAS - you can get electric ukeleles now - I saw one in a shop the other day, and coveted it.

I will link to the scientists here - I warn you its awful. Dh appears at about 3.19 in room with two women - he's at the back. And at the end he is dancing out of time with everyone else grin

electric - ooh !
bah- the link says the video is private sad

KurriKurri Thu 20-Dec-12 13:38:05

Oh - I didn't realise that, how odd - presumably it's too embarrassing for public viewing grin

grin

Lomaamina Thu 20-Dec-12 14:48:16

For your listening pleasure: Lynne Truss on Radio 4 spoof response to round-robins: news.bbc.co.uk/today/hi/today/newsid_9780000/9780176.stm. Tis rather short today!

topsyturner Thu 20-Dec-12 15:55:30

Fairy cakes made and cooling .
Will need to be iced in whatever garish colour DD decides on shortly !

Any news from Pen ?

PenisColada Thu 20-Dec-12 16:01:52

They are almost sure I have papillary thyroid cancer. Op booked for mid January.

I guess as far as cancer goes it is one of the better ones to get.

I am pretty shocked and numb. All the talk of major surgery scares me stupid.

Gigondas Thu 20-Dec-12 16:03:17

Was just popping in to see. I was meant to be doing stuff with big gig but after the hell on earth that was the playgroup party this morning, I persuaded big gig to have a rest with me. Now am acting as a bed for mini gig so its all go herE.

I can imagine the icing wont be subtle topsy but would imagine she is beyond putting her finger onto each cake to taste.

Ocado was doing 4 for price of 4 on cheese and they normally follow waitrose on offers kuri. I would have liked to see that video.

Have a good trip copthall

loma how are you doing?

Gigondas Thu 20-Dec-12 16:04:02

That's 5 for 4 and it was nice stinky French stuff too .

NedSchneebly Thu 20-Dec-12 16:36:16

Hi everyone

Sorry been a bit absent - still very wobbly and sad and finding it hard to keep up with everything. Fed up of feeling like this. . . Tried to rearrange appointment for home visit with Dr Lovely, but she is off until 3rd January. Freaked out a bit at not being able to see anyone til then. Managed to speak to lovely receptionist who sent an emergency message to the other docs and spoke to Dr Just as Lovely. Had almost an hour with him yesterday morning. Was completely worn out for the rest of the day. Its such hard work being this miserable. . .

Also have torn some fat boy ligament in my ankle, falling down the stairs. And yes, I was stone cold sober at the time. My foot is an impressive shade of purple. . .

Just pissed off with it all.

Sorry - self indulgent post again. Will go away for a bit and try to get myself sorted out.

Sending loads of love to you all - sorry for being so crap and not keeping up. Must try harder. . .

KurriKurri Thu 20-Dec-12 16:43:25

Pen - massive hugs, of course you are shocked and numb sweetheart, - it is a scary thing, - we've all been there and truly we understand the emotions bombarding you at the moment.

Its good news that it's one of the less nasty types - hang on to that thought.

Yes, you have a long haul to go through, there's no denying that, but it is the start of the road to recovery. Surgery and whatever treatment you have afterwards are your weapons against the bastard, and scary and horrible as it is, it is doable. You will get through it a step at a time, deal with each new treatment as it comes up, and do whatever you have to to cope through it.

And remember your hospital team and GP are there to help you cope, whether through counselling, relaxation, anti- depressants or whatever you and they think might help you, - take whatever help is available to you. Local cancer support groups and centres can be very good for talking to people who 'get' what you are dealing with.

You are shocked and shattered, you've been through a tough couple of weeks with bad news at the end, so you will need a little time to get your head round it all.

But you will surprise yourself with your own strength and coping ability my dear, you really will.

Two things - which you can take or leave, but they helped me. The day I was DX my GP gave me valium and sleeping pills to help me through the first few days, they will prescribe it over the phone if you think you are going to have trouble sleeping.
secondly - I know the weather is lousy, but I found fresh air and a walk each day really did help, - I don't know why, it just did.

Much love, stick around and let us support you. xx

KurriKurri Thu 20-Dec-12 16:47:08

x-posted Ned <hugs> for you too lovely. Sorry you are having a wobble, - I know that sick of it all feeling, - the shitty weather and not being able to do much doesn't help. Glad you managed to chat to Dr Just as Lovely though.

Have you got any arnica ointment? - DD had a big bruise on her foot a couple of weeks ago, and the arnica really took the swelling down, there's also stuff you can get called 'bruiseze' which is pretty good too.

Gigondas Thu 20-Dec-12 17:05:09

Pen hugs darling - and you will get through this. I can't better kurris advice on coping. Also try to eat (whatever you can) and be aware that drinking may depress you further .

ned hugs for you-it is unbelievably hard at time. Is there any chance of regular counselling slot?

Gigondas Thu 20-Dec-12 17:09:41

And I am pretty sure this is type lady at work had- as I said she is clear and neck scarring is minimal.

My mother also had surgery on her throat for cancer - it was hard but she did cope and as with lady at work scarring did disappear after a while.

Lomaamina Thu 20-Dec-12 17:12:24

Gigondas thanks for asking! I'm okayyyyyyyyyy, but feeling a bit breathless. I'm not sleeping because of the discomfort and soreness. I thought I'd feel better by now, but ho hum.

It's been a very quiet day. Two girlfriends separately had to cancel visits because of family commitments so I felt sorry for myself for a while then decided to not be a wimp and managed to do some work (fuelled by cake, I have to admit).

One suggested popping round early evening - 8ish - and I felt bad having to say that I'll be too weary by then (truth be told I'll be in my pyjamas and not wanting to chat). She's coming round tomorrow with her two rumbunctious littleuns. I hope I don't seem too anti-social to be half looking forward to seeing my lovely friend and half wishing I didn't have to entertain her gorgeous DC at the same time. confused.

PenisColada Thu 20-Dec-12 17:16:08

Thanks. I am not worried about scars. I have the mn scarf !

I just want it gone and the treatment over and my life to be back to normal.

My normal will never be the same though.

PenisColada Thu 20-Dec-12 17:17:42

Do you think my GP would sign me off for a couple of weeks or so to get my head together ? I really could not face work and am due back in 27th. I will go in before the op but just need a bit of time to get to grips with this first.

Lomaamina Thu 20-Dec-12 17:22:06

Apologies. I was composing the above and only just saw pen's news - and I was thinking about you today, checking in intermittently. I'm dreadfully sorry to hear this.

Have you got people around who can support you in RL? Take whatever you can from friends and family. I know they'll want to do their bit to take you through the process. For me it helped after DX to focus on understanding the treatment plan and what's in store. The www.cancerresearchuk.org/cancer-help/ site has useful info, in my experience.

All my best wishes, loma

Gigondas Thu 20-Dec-12 17:23:40

Yes I do and I think it is a good idea (especially since I think you said your work involves some aspects that might be particularly hard at this time).

Lomas advice about Macmillan is good too.

I think that getting op out the way will really help you so focus on that.

NedSchneebly Thu 20-Dec-12 17:24:18

Thanks kurri and gig smile

I am seeing Doctor Just as Lovely again on Monday - he asked me if it was helpful to see someone regularly and I said it was, and he said that medicine was losing sight of this sort of need, with targets and boxes to tick, and that if this was what I needed, it was their duty to provide it. He's such a nice doc, he made me cry even more by being so nice. blush He also put a note on my records to say I should be booked in that day if I ring up. He's going to ring the counselling service too that I self-referred to, to keep them in the picture. He said I should be offered CBT. IS that what you had gig?

Part of me feels so self indulgent and needy and attention seeking. . .

penis sorry, I missed your news. You're over the first hurdle now, with a diagnosis. Now you need to ready yourself for the next step on the journey. We've all been down this path before, so we can hold your hand, mop up your tears and support you every step of the way. Hand on to the positive prognosis and the fact that the docs are acting quickly to give you the best chances. Stick with us, lovely, and we can get you through it x x

Gigondas Thu 20-Dec-12 17:25:06

And loma that sounds normal- I assume you are dosed up on painkillers too so that makes you feel groggy. Get in your pjs and rest (I lived in my onesie post op).

Gigondas Thu 20-Dec-12 17:28:27

I have had Cbt (but my ongoing therapy is psychodynamic so much more about deep rooted issues and how they affect you- can be difficult at time). Good Cbt helps you "cope"- identify flash points and ways to deal with them. It is useful I think for a worry or anxiety. I think it falls down if your issue is more deep seated or depression related . For example I started seeing my therapist after losing a baby- that kind of thing doesn't really work so well with Cbt.

NedSchneebly Thu 20-Dec-12 17:32:19

Maybe not right for me then gig d'you think? Should I be asking for something else instead? Is it possible to have a combination of different sorts of counselling in parallel?

Gigondas Thu 20-Dec-12 17:39:03

It is possible but they tend to like you to do one sort at a time. Tbh given what you have said I would agree that Cbt probably not appropriate.

Lomaamina Thu 20-Dec-12 17:51:37

pen everything's been shifted around and won't feel normal for a while, but it will be; just a reshaped normal!

Gigondas I've just texted friend with kiddies back to cancel. I'm a bit miffed, TBH. She could have come today, but was busy shopping for extra presents (all day hmm??).

Ned your doctor sounds lovely. How is it self-indulgent to be cared for by someone in the caring profession (I ask rhetorically).

Lomaamina Thu 20-Dec-12 17:56:17

Now I sound self-indulgent and grabbie, but I've helped said friend with loads of stuff in recent months (e.g. professional advice - given freely and happily, with no expectation for anything in return) and she hasn't found the time to visit for the past week, despite being off work with kiddies at school. What can you do? You find out who your real friends are at times like this.

smee Thu 20-Dec-12 18:22:56

Oh Pen. sad. It is good that it's one of the better types, but still, bloody cancer. Grr for you. Stay here with us. We really can help you through. xx smile

Ned, Dr JustasLovely sounds well... lovely!! You're doing everything right you know. Might not feel like it, but you really are. And stop apologising. Might sound weird, but it kind of helps me knowing others find it tough after treatment's finished. It normalises how I felt. Not that I'd wish it on any of us, but there's a lot to be said for normal. xx

You definitely find out who your true friends are Loma. Mostly mine were amazing, but one just disappeared. Have never fathomed out why and still feel sad about it.

MAS, hope tomorrow's okay. Am assuming it's just a general catch up appt, so not too stressful?

Topsy, that police look suits you. grin

And Kurri, I want to see DH dancing. DS is obsessed with Gangham Style and gallops round the house singing it.

Been out for lovely lunch with old friend, and had DS's carol concert this morning too, so a festive day in Smeeland. Haven't quite finished work though, so had better get on. Waving to all I've missed. smile

PenisColada Thu 20-Dec-12 18:37:13

Thanks everyone. Looks like I will be a resident of this thread from now on.

Sorry I can't offer much support at the moment but when I am back on my feet I will do my best .

pen hugs and offerings of rum truffle cakes- well done for getting through the results bit- and ys,I think you should ask to be signed off as work will no doubt churn up all ki9nds of stuff and you need to get your head around your own diagnosis and impending op. Am glad it;'s a 'better' kind of cancer to have,if that makes sense.
Enormous hugs for my lovely ned - you are having a tough time of this - agree that CBT might not be the thing for you- 'tis more useful for folk like me with ocd ness. How lovely your docs are though- I think regular visits will be very helpful (I did this with my bcn- as and when neeeded I'd ring and see her)

I have cheeses ! I got : emmenthal; camembert;Blacksticks BlueStilton,Wensleydale with apricots,English goat , smoked chjeese and some interesting French thing in a little box

amberlight Thu 20-Dec-12 19:33:45

Pen, large unmumsnetty hug for you. Shock is v normal. so are all other emotions, in any order at all.

Ned, equally large unmumsnetty hug for you too. Surround yourself with anyone and anything you can hug and feel safe with. And don't apologise for how you feel - and you're absolutely not being selfish etc. There are no prizes for being Stiff Upper Lip, nor for not being. It's all fine.

After a week where I've spent half of it in tears, struggling through norovirus hitting whole household inc me, and sh**ty argument with an old friend, I'm in need of wine so shall leave some out. I think I'm over the worst of it now, which is good.

smee Thu 20-Dec-12 19:42:49

Amber, poor you! I had no idea you'd got norovirus. Grim indeed. And a row too? wine sounds essential. Is your son home from Uni yet? Hope he hasn't got the bug too. sad

amberlight Thu 20-Dec-12 20:30:22

Yup, FineLad got it too, as did dh and dsis hmm
Ooo look, more wine !!!
'evening all.

smee Thu 20-Dec-12 22:04:00

shock blimey, am glad this is just a virtual chat! <pours wine for Amber> smile

topsyturner Thu 20-Dec-12 22:32:45

<picks Amber off the floor and places her gently back on the sofa , tucks blankie round her , leaves 2 annadin and a large glass of water , tiptoes quietly back out of the room>
grin

topsyturner Thu 20-Dec-12 22:38:28

Pen sorry you got shitty news today , glad it's one of the more controllable ones though .
Definitely give the GP a ring tomorrow , work will still be there when you are ready to go back .
You need a few days for the news to sink in .
Be kind to yourself , and hang out here as much as you want to .

Ned big gentle squeezes to you .
You are not being self indulgent , you need to be kind to yourself too .

Mas good luck with your Onc tomorrow .

Night night everyone .
<wanders off to bed humming Macho Macho Man ...>

KurriKurri Thu 20-Dec-12 23:05:46

Pen - I'm sure the GP will sign you off, they are usually very good about such things, and the emotional impact of cancer is taken a seriously as the physical side.
You need some time to gather your thoughts, time off is a good idea.

Amber - sad about norovirus - poor you, it sounds horrible. And about row with your friend - hope you can get that sorted out soon.

Smee - I might be able to put the dancing up tomorrow or next day, - apparently the powers that be at DH's work, deemed it 'offensive' after a complaint was made by someone, so some judicious editing has been taking place. grin

Good luck at the onc. tomorrow MAS - hope all goes well.

night night topsykins grin

jchocchip Thu 20-Dec-12 23:20:10

pen really sorry to hear your news, do ask for a sicknote of you need one as kk said.
Funny day here. Got phone call saying I was to be offered that job I went for! But need to negotiate as want to appoint at bottom of scale which is pay cut... but better prospects. Awards evening for dd1 so late home. Nnight, yawn...

jchocchip Fri 21-Dec-12 06:32:31

I'll put a brew on…

Gigondas Fri 21-Dec-12 06:38:45

Please - been up since 4 so need brew...

That's good about job jchoc although how much of an issue is the pay scale.

well the apocalypse hasn't happened yet !
Hope you can get your time off booked pen - am sure they will agree it's a good plan.

PenisColada Fri 21-Dec-12 08:26:18

Thanks for the messages. Now I am thinking about going into work for the 3 weeks before surgery as it will make the time to quicker and I don't feel unwell just upset and worried.

I am due to work 27 th and 28 th and it will be quiet at work so I will go in and see how I get on.

Would it be unreasonable of me to ask my managers for no sympathy or discussion about it ? I am ok until someone is sympathetic.

Can I ask how to deal with the nights ? I lay awake last night worrying and the realisation that I will have to live without my thyroid for life is sinking in. What can I do to stop the thoughts that are unbearable at night ! I don't really want medication to sleep as I hate taking meds (ironic)

topsyturner Fri 21-Dec-12 10:30:52

Mas will be able to give you tips on visualisation techniques . They should help you clear your mind and help you with getting some sleep Pen

Although realistically , you aren't going to relax till you have fully taken in what is happening to you .
We were/are all the same .
You almost have to go through a grieving process for the life you thought you were going to have , before you can accept your new life .

As the ever wise Amber once put it "welcome to the new normal"

topsyturner Fri 21-Dec-12 10:33:12

Jane congrats on the job . Is there any hope of bumping up the pay scale ?

World hasn't ended here yet either .
Although the DC break up for Christmas at 11.45 , so there's time yet grin

DD made fairy cakes yesterday , anyone care to risk one ?
We have custard yellow or blood red icing ???

KurriKurri Fri 21-Dec-12 10:55:21

Congrats on the job Jane - well done you smile and whatever you decide because of the pay issue, its always nice to be offered the position.

Pen - perfectly reasonable to ask for there to be no talk about your illness at work, you call the shots with this thing - if you don't want to talk about it then people will have to respect that. I totally agree with you - sympathy can be very hard to deal with, so play it by ear, see how you get on at work, you can always change your plans if you find it too stressful.

Sleeping - if you don't want to go down the sleeping tabs route (and that's perfectly understandable) then relaxation might be the way to go. Perhaps a relaxation CD to listen to in bed, warm bath before you go to bed. And my GP's tip was don't lie tossing and turning for more than 10 - 15 mins, if you haven't gone to sleep by then, get up and watch TV, or read or something, then try again a little later. You have to try not to get into the cycle of lying there thinking and over thinking, so do something to distract yourself.

Thyroid - I've had mine zapped with RA iodine, because it was over active, - so it no longer functions and I have to take thyroxine. Presumably you will be on thyroxine too. It's OK, - not as good as having a thyroid which works obviously, but it's a medication with no side effects, and is definitely livable with.

But again - as topsy says it is grief for the life you had imagined, and that takes time to get used to, and it has all happened in a very short space of time, so a massive shock tot he system.

We call it the new normal on this thread (thank you Amber grin), - it's not the same, and it has it's ups and downs, but you will get past this feeling of panic and fear, and you will start to enjoy life again and be able to look forward, and although I hate all the positive thinking bollocks people shout at you if have you have cancer, in some ways your attitude to life will change for the better, - you tend not to sweat the small stuff after cancer smile xx

brew for sleepy Gig - was mini Gig up at the crack of dawn again?

Good luck for oncy appointment MAS xx

Gigondas Fri 21-Dec-12 11:13:16

Supplements can help sleep - magnesium and zinc plus all the normal stuff about no caffeine. Personally I always found sleeping tabs counter productive as you feel groggy next day. Get yourself a good book (something engrossing), audio book, podcasts , boxsets and try to use that to distract yourself .

jchocchip Fri 21-Dec-12 13:14:29

Pen My friend was ill over the summer and made it very clear she did not want it discussed in work. She did take two days off mid week for a few weeks before she started treatment and found it took her mind off being ill.

I think that I will take the new job, though it a big change and probably more stress than I am used to at the moment - My current job involves regularly driving across the Moor and site visits to a beautiful part of the country.
BUT the S188 notice means heads will roll and I think this new job will be more secure as it is a new post in an expanding area. It is qualifying employment for my professional qualification I would like to finish and it does sound really interesting and an opportunity to learn new things. Downside is being desk bound again and no working from home sad I'm not sure I need to ask them to bump me up the scale as currently I need to gain a masters to pass the bar on my pay scale and the new job doesn't have one there...
Bit of a scary grown up job though confused

Lomaamina Fri 21-Dec-12 13:27:51

Congratulations jchoccochip on the new job! Obviously only you can judge if it can fly, but could you point out that this constitutes a pay cut for you and frame your need to work from home periodically in the context of them giving you a benefit that means a lot to you (assuming it does) and shouldn't cost them anything? As I'm sure you know, it's becoming increasingly common for people to work one day a week at home.

jane I seemed to have missed the thing about your new job ! congratulations grin xxxxx
pen I think topsy was referring to Mindfulness which is something you can very easily practise to keep your mind in the present moment - I could always send you a cd which goes through the exercises and there's much stuff online available. It involves meditation which is very simply following your breathing,in and out and noticing everything around you as you do this,but not involving yourself in and sounds,thoughts,impulses -I have no blank cds at the moment,but pm me if interested and I could do you one as soon as I can.

Back from onc - she has decided to delay my chemo for another week on account of hands- bcn had told her they were still red - so I go and have a blood test next Thurs and nip in to see bcn and if all better then get my next chemo meds. Am feeling a bit hmm as I think that this is my hands new default state - unless the dose is reduced even more. I feel I should have manned up and said let's go ahead as my hands aren't as bad as before...or would that be foolish ?

pen www.bemindful.co.uk/ Mindfulness courses (I did an 8 week course- very,very good and helpful)

amberlight Fri 21-Dec-12 13:37:39

Pen, new research shows that women who are under 55 have better outcomes than the 90% success rate that is 'standard'. From what I'm reading, it's likely to be a 1 in 20 chance of it being really rudely behaved. Those are cracking good odds if you're one of the 19 lucky ones. Of course it doesn't do a lot to cheer up the person who's the 1 in 20. But it's a good starting point.
Things we know are true for cancer but scientists haven't figured out why yet - really good social networking. The more social support you have, the better your chances. It halves the remaining risk. so if you surround yourself with lovely people at every chance, you could put your odds up to 97.5%.
Phew.
That calls for tea. And more paracetamol...ow...and remind me not to eat eggs after norovirus please....

PS who was it who asked about boob pain? I still get it 15 months after tricky back-of-boob lumpectomy too, some days worse than others. In case people are reading and wondering whether the sort of surgery counts for that.

and this is an example of a mindfulness exercise..
www.youtube.com/watch?v=iH3_64mLCU8

Gigondas Fri 21-Dec-12 13:39:04

Yes you are being silly- a week won't hurt (onc wouldn't suggest it) and symptoms can come and go on chemo so I don't think it is necessarily the default state.

thanks gig - I am happy in a way that it's been delayed.

Gigondas Fri 21-Dec-12 15:39:05

I bet - how was the babycham?

it was quite nice, like a not very potent cider

smee Fri 21-Dec-12 18:12:25

MAS, I think it's up to them to tell you really, as they're the experts after all. If it means your poor hands have a restful Christmas, then that's all to the good and as Gig said, a week's rest won't make a difference. Be good am sure. smile

Pen, I think keeping working's not a bad idea, as you're right it will make the time pass quicker. Could you compose an e-mail to relevant work colleagues to explain the facts as you know them, and how you want people to be with you? I did that a lot when I was first diagnosed and I think it helped me and the person I was telling. Meant I could be rational in writing and reassuring too for them. Tough and exhausting to have to tell everyone individually.

Loma how are you today?? Are you feeling more your old self, or still a bit low?

Jane, that's great about the job. Congratulations!! I can see it's a hard choice, but it's so lovely to be wanted in this day and age. Are you celebrating? smile

Gig, why 4am? Which mini-Gig did that to you? And how's the leg? Been meaning to ask. Is physio helping?

Amber, I think it might have been me talking about breast pain. Interesting how many of us have it. Reassuring in a way. Are you back to normal yet, or still lurgy-filled?

Off to the pub in a bit with a gaggle of friends in a bit, so that should be fun. DH is staying in with DS, but he went out last night, so I don't feel too guilty. DS and I just back from Panto. Oh-yes-I-did enjoy it. DS wouldn't let me dance though. grin

Waving to all. Wishing you all a Festive Friday. smile

amberlight Fri 21-Dec-12 18:15:14

Smee, if I don't eat anything, I'm fine. If I do, I get two hours of gut ache and feeling queasy. So aftereffects really. It'll go. Enjoy that pub grin

Still at office. Should go home and cook something for those that can eat.

Gigondas Fri 21-Dec-12 18:20:23

Aloe Vera and probiotics might help amber.

Yes physio is helping but painful - have exercises but I can already feel a difference . And it was mini gig- the Bigger one is generally ok at sleeping.

Enjoy your pub trip.

JustFabulous Fri 21-Dec-12 18:32:15

Hi everyone

Just in case anyone was wondering, and it would have been rude not to come back after all the support you gave me when I started worrying about the big C, I got my results today. I phoned as 4 weeks was Christmas Day and I wasn't going to wait longer than I had too.

I'm okay grin. I have a benign nodule in the opposite breast to the one I had the pain in and the woman on the phone said it was the same as 12 months ago. I don't really understand what a nodule is, or if benign means it won't eve be bad, but she said I am fine so grin.

Thank you everyone for being so welcoming.

excellent news !! benign is good grin - very pleased for you fab a nodule just means a growth really.

BCN has emailed to say it was the right decision (the delay) as I was wibbling to her about it- it doesn't help that I'm going through a self critical phase of finding fault in myself- mostly appearance,which is superficial of course- but seriously,I do equate looking nice with being acceptable and likeable to others (I mean myself here,not how others look) Today I am in a nice stripy matelot but feel my shoulders are to wide-that I look fat and my hair is awful- so therefore I am unloveable. Arghh- it sounds horribly self indulgent-forgive me.

poor amber's tummy xxxx

Gigondas Fri 21-Dec-12 19:02:18

Just fab- benign is good smilesmilesmile

Mas there is nothing like chemo for eating away at your mental and physical well being . If you have weak spot it will make it feel worse so no wonder you are sensitive if you have the issue of looks= acceptable.

JustFabulous Fri 21-Dec-12 19:03:16

Thank you MAS.

You are totally lovable smile.

amberlight Fri 21-Dec-12 19:09:27

Probiotics - tick. Aloe vera - shall get some. Lactoferrin thingies - must start re-taking those too as they might help. and manuka honey if I can get some tomorrow.

Justfab, Fab!!!!

MAS, personally I can't see people (faulty brain design) so have no idea whether someone is the right shape, size, hue, design or otherwise, but as far as I'm concerned I am blessed beyond words to have you and everyone else in my life. Never forget it.

smee Fri 21-Dec-12 19:22:59

MAS, (((hug))) from me. Not self-indulgent at all and if you can't have a moment of moan on here, then we're doing something wrong. I'm sure you look better than you feel, but I do get that you don't feel it! xx

Amber, should you even be working?! Yes go home. <stern>

Gig, mini-Gig must be a bit of a shock if midi-Gig's always been not so bad at sleeping. Glad physio's working though. smile

+ JustFab. YEAY!!! That's brilliant and just before Christmas too. Go celebrate, as benign is the best world in the world. smile

jchocchip Fri 21-Dec-12 19:51:49

Gosh lots happening on here! Thanks for all the congratulations grin Had a nice day at work - most of the office now knows that I have been offered a job in City Hall another department. I am going to accept it (assuming crb and references are ok) I just haven't thrashed out the terms yet. One thing I worry about is office wear as the dress code in there is more formal and I don't think the jeans I wore today would do... I know what you mean about appearance mas I spent a lot of time not feeling confident because I thought I looked "wrong". I think I am going to be really nervous in the new job because of everything that has changed and I will doubt myself. Dressing for the office will help, I know it is all superficial but I bought a pair of heels recently after years in flats and I swear they make me more confident!

brilliant news justfab love the word benign.
Enjoy the pub smee wish I could celebrate but need to pack to go away tomorrow. Manic week so still washing clothes...
Amber go easy on the eggs!
Sorry for the ramble, not going to splash fb until formal offer letter as still negotiating and never know. so is nice to share 'nonymously on here. grin

Am sure you 'll be just fine in new job * jane* - heels will help you feel officey and smart. Thanks all for wise and kind words - I hate feeling like this - such a waste of energy.
Parents seem to have everything in order - tomorrow we buy the rest of the foodsmile

KurriKurri Sat 22-Dec-12 09:47:51

MAS - glad the onc. appointment went OK, - and delay probably very good idea, - gives you another weeks break and a hands to improve.

Chemo does mess with your physical and emotional feelings as Gig says, but I have seen photos of you and you are a very lovely woman, with an enviable figure - no need to fret on that score at all. more importantly you are a wonderful person, -we all love you very very much smile xx

jane - new job - very exciting, it's bound to feel a bit different at first, but security is a very big consideration and professional advancement, god for you smile - when do you start?

Fab - great news, benign is a very good word grin - have a wonderful Christmas smile

Glad you enjoyed the panto Smee - which one was it? (we have Aladdin here again - I swear they do that every year). My DD won't let me dance either - children can be very cruel can't they? grin

Coffee and toast on for anyone who needs it (that's probably you Gig- you poor sleep deprived thing) no marmalade unfortunately, - I have strawberry jam, cherry jam, or marmite.

DD is teaching this morning - the little girl she gives lessons to has been going on for weeks about the amazing Christmas present she has bought for DD (she has struggled terribly to keep it a secret grin), so today is the day we find out what it is <excited>

DS and DDIL coming over tomorrow, so will have to tidy the house a bit I suppose, but it will be lovely to see them.

aw, you are very kind kk - I blush - not sure about enviable figure mind, but lovely of you to say. Am longing to hear what dd's present is !! grin
and how lovely to have ds and ddil too - sounds very cosy and festive.

KurriKurri Sat 22-Dec-12 12:10:29

You deserve it MAS smile - DD's present turned out to be a pink sequined make up bag full of very pink make up grin - little girl is 8yrs and into pink!

how sweet ! blesssmile

jchocchip Sat 22-Dec-12 22:44:54

Aw kk how lovely! Been travelling today. Staying with Mum tonight. Been shopping and filled freezer with Waitrose mini meals. Made sausage rolls and mince pies this evening, yum.

smile waves and hugs to all. Been missing as no laptop and my phone is fine was reading but not so fine for posting.

Have so much to catch up on and don't want to leave anybody out so welcome to new folk (sorry you had to join here), hugs to all those who need it, well done on new jobs, good results and apologies that I am a rubbish support to you all but I haven't forgotten about you all.

Chesty coughs/colds abound here and I am trying not to stress too much about a persistent pain in my collarbone but will think about it after Christmas. Third herceptin done and dusted and I felt fine. They infused me over 1.5 hours which seems to have done the job.

Really hope to catch up with all but Merry Christmas to you all.

thegreylady Sun 23-Dec-12 14:02:34

Merry Christmas to all of you. Never lose sight of what really matters and always tell those you love how much you care xx

Merry Christmas greylady and gracie xxxx

Lomaamina Sun 23-Dec-12 17:22:15

Just adding my own best wishes and a big thanks to everyone who's welcomed me on board since I joined this thread a few weeks ago.

I'll be back on Friday, after my fortnight-post-op appointment with the surgeon (actually his unfriendly number 2 sad as he'll be on holiday), to have dressings removed and get results from biopsy.

Have a great celebration on Tuesday, whether turkey and trimmings or nut roast smile.

smee Sun 23-Dec-12 21:08:38

Merry Christmas from me too. Hope it's utterly lovely for all of you. Been wrapping presents. Feel almost ready... grin

Gigondas Mon 24-Dec-12 08:26:37

Merry christmas to you all- hope you all have wonderful Christmases.

NedSchneebly Mon 24-Dec-12 11:45:38

Hi all smile

Have just got back from seeing Dr JustAsLovely, who was lovely again. Had long chat with my DSIL (who is also a doctor) over the weekend, and feel a little bit better that I have made decisions about some stuff. I have come to see that I can't do this on my own, and I need some help. Doc said he was worried about me going back to work in 10 days time and would quite happily have signed me off for longer, but I have decided that I am going back, even just to see how I cope. Otherwise I think it will be too easy to put off. I have also decided to go for private counselling, with a local man who specialises in psychodynamic therapy - what you have gig? Have just emailed him. Doc also gave me different creams for itchiness.

Anyway, sorry for self indulgent post. . .

Are we all feeling festive? smile We went for a very soggy walk with dogs this morning, so have lit a fire and put on new festive red checked fleecy trousers, DS watching trashy TV, visiting Great Granny (DHs granny) is happily reading newspaper, DH pottering in kitchen, and I am checking emails/ MNing. All presents wrapped and under tree. I just have some carols to practice for Midnight Mass/ Christmas morning family service. . .

As greylady said, tell those around you how much you love them, and for me, that includes you lovely lot. This year would have been bleak and lonely without you all, and I don't think I would have made it through in one piece. Lots of festive hugs and much love to you all x x x x x x x x x x x x x x x x x x x x x x x

well done ned and am glad DrJustaslovely was lovely- I think you are right to be going back to work as I think it'll help -give you a focus beyond cancer and a purpose - I have found my work has made things much easier for me and am lost without it- obv. I don't have the stresses of going out to work, so take it easy when you return. Meanwhile have a fab and lovely Christmas- let me know when I can put Db & dsil's wedding pic up ! do hope they like it.
Thanks for being such a lovely pal this year- that goes for all of you- love you all - enough schmaltz though.... have been to Waitrose and stocked up on my essentials -nice orange juice,chocolate soya milk and plain yogurt...got my free coffee too- my bro. is on his way up from Bath with dsil and dn -stopping at Waitrose to pick up the turkey.
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Figgyroll Mon 24-Dec-12 19:33:40

<<<sneaks in under the radar and scatters Yuletidey treats at the trolley>>>

I just want to wish you lovely ladies a wonderful, peaceful Christmas with your nearest and dearest and very best wishes for 2013. I haven't been keeping up with everyones news but I can see there are some new names - hello to you.

Chez Figgy is recovering from the dratted norovirus (have lost 10 lbs in a week but don't recommend my method smile) and I am managing, 99.999% of the time, to stay positive and forward looking. I have two weeks off school and intend to spoil myself with books, chocolate, wine and telly.

Love to you all xxxxx

Lomaamina Mon 24-Dec-12 19:57:31

Hello figgyroll thanks for the welcome. All sympathies for your illness. I had food poisoning for two days a fortnight ago, so a week's worth beggars belief.

And I love your name (I've been known to make my own from a Peyton and Byrne recipe).

topsyturner Mon 24-Dec-12 20:46:49

Wishing all my Lovely Ladies and their families a fabulous Christmas .

I have DD with an awful cold/virus thingy . Just managed to load her sobbing into bed , she needs to sleep

DS , believe it or not , has spent the entire day sewing himself a hat !

Santa and Rudolphs plates are on the fireplace fully loaded .
And I am just about to nip next door to HNDs so I can get pissed wrap the last of the presents that DH drove off with in the boot of the car when I was staying home to wrap everything else !!!

Here's hoping all your Christmases are fabulous .
Love to you all xxx

jchocchip Mon 24-Dec-12 21:15:50

Happy Christmas Lovelies. Tree went up yesterday, shopping done today, wrapped up by dds(!) just now and being put under tree. Sally Army were playing Christmas Carols as we did our shopping. Watched the snowman/dog and all is right with the world...
Well done to topsys ds.
Hope you all have a lovely Christmas grin

PenisColada Mon 24-Dec-12 22:00:58

Happy Christmas all.

Being diagnosed just before Christmas is pretty shit. I feel terrible.

amberlight Mon 24-Dec-12 22:23:32

Happy Christmas all.
Pen, large hug/ wine for you I think. Can't disagree with you there.

topsyturner Mon 24-Dec-12 22:50:25

Pen special hugs to you .
Shitty timing I know .
You WILL get through this though x

pen yes, you WILL find a way through it- it's shit of course,but we'll be here for you.
Waves to dear figgy - how is ds ? I know he was poorly-did he pass it on to you all ?
Should have gone to bed ages ago, but distracted by telly... got to do T's stocking....
love to all xxxxxxxxxxx

Merry Christmas all my lovely friends old and new.

Pen, I was diagnosed just before Christmas too - 16th December 2010 (breast cancer). Yes it is pretty shit. I remember how emotional and surreal it all was. But here I am still smile, and as wise Topsy says, you WILL get through this x

topsyturner Tue 25-Dec-12 00:11:50

Was just filling the DC stockings prior to bed .
DS triple knotted his to the bed frame , the llittle shit grin
So I thought I had done a great job , silently dropping his pressies in one by one .
Till as leaving his room I fell over a bag of coat hangers ...gringringrin

Goodnight All xxx

grin @ santa topsy Lovely to see you lime - merry Christmas to you...xx

smee Tue 25-Dec-12 19:53:28

grin at Topsy.

Ooh and Figgy and Lime back. Hellooo...! How lovely to see you here, though Figgy, sorry to hear you've been on the Noro-diet. How are you Lime??

Here, I am stuffed, but hough I do say it myself, I pulled off a rather stunning Mushroom Wellington and apparently the Turkey was pretty good too. Am about to sink into a vat of wine and cheese, but wanted to nip in.

Just quickly Ned, I think work might help too and it's got to be worth a go. Indulge yourself over the next day or so, you've been through one hell of a year.

And Pen, lousy timing's an understatement. Let us help. I honestly think this place helps massively. smile

Got to run back to the dart board. Literally, as that's what DS had for Christmas. My mum's hitting the carpet more than the board. Haven't heard that much laughter in a long time. Off to my brother's tomorrow, so won't be back for a day or so. Take care all. Enjoy it all and a huge thanks from me for all the love and support you all give. Can't beat what Ned said, but a huge hooray for all of us. smile

KurriKurri Tue 25-Dec-12 22:51:06

Merry Christmas to all my lovelies on this thread. Hope you are all having a good one.

Special hugs for those having a difficult time, - you are very much in my thoughts.
Pen my love - it's shit thing to happen especially just before Christmas but you will get through, honestly you will.
Ned - loads of love xx

Lime great to see you as always, hope all is well with you xx

Massive hugs and Christmas smooches to all my girls xx

jchocchip Tue 25-Dec-12 23:54:47

Nighty night. Visited Nan in hospital again this afternoon and played pass the pigs. She seemed glad to have visitors and even ate some chocolate. She is soft food now which is an advance. NBM when admitted 2 weeks ago because of swallowing reflex. They didn't think she would make it to Christmas so doing well. Not walking much now, seems to have forgotten how sad
Hope you all got through the day ok. Emo time of year and horrible time for dx pen (hugs)

Gigondas Wed 26-Dec-12 07:45:56

brew Anyone? Hope you all had lovely days . I even have had two days of Xmas lie in as mini gig being loads Better about early waking grin.

I also have playmobil fingers/wrist as big gig got a fair few bits.

jchocglad your gran seems bit better.

ned I think therapy is way forward- it may not be a quick fix (I well remember thinking would need x number of sessions) and at times can make you feel bad/worse but ultimately it has helped me immensely and I am so much happier. And I agree with others that working may help .

pen how are you?

topsy grin at ds and his stocking. How did the long awaited Xmas present go down?

Hugs and love to you all.

PenisColada Wed 26-Dec-12 08:27:10

Glad you all had a good day yesterday.

My dc woke at 3 am with excitement and then I had I cook for 14 lunch and buffet tea. It went well and let night I slept for 9 hours solid.

I feel a lot better today and we are going to family later so I won't have to cook today. We have enough left overs to feed us for a week too !

I did not tell my family and will tell them flyer Xmas and it was nice kind of forgetting about it . I am looking forward to the op now to get started on dealing with it.

My brother did ask if I was pregnant as I was not drinking though !

Gigondas Wed 26-Dec-12 08:59:44

Glad you had a good day and started to forget about it- that is positive as it is a step forward to the new normal. It's something you have or had(like a cold) not who you are.

And sleep is massively good as everything seems worse when you are tired.

well done pen you are doing well -things will soon seem better and more manageable.
Glad that your nan is doing ok too ned
Slept until 9 - weird dreams - but that's probably because of excess food and watching 'Enders on iPad in bed.
Had enough festiving at about 7 yesterday so came home to unwind and relax a bit.
Dn got a Sylvanian treehouse among her treasures ! T got his proper camera and was thrilled. It was lovely and lunch was divine. Drank a little- some prosecco and wine with lunch, but far less than would normally- really losing the taste for it. (which is good possibly ?)
Lunch with db,SIL and dn at mum's before the return home.

jchocchip Thu 27-Dec-12 23:37:17

Nighty night - everyone too busy, vegged out to mn today? grin sweet dreams.

waves to jane
Not much going on yesterday- went to have blood test then a walk into town to bank and to buy some supplies for next few days...off to MIL tomorrow - hospital today. Had friends over for tea and cake yesterday which was nice.
Hope everyone is fine and dandy...how's it going ned -have been thinking of you xxx

new prescription - 25% reduction in dose - start tomorrow. Dh came with me today as he's not back at work until next week -was nice as there's always lots of waiting around.

Gigondas Fri 28-Dec-12 13:19:18

Scattering goodies from French France. Hope new dosage helps your hands mas.

How is everyone else?

topsyturner Fri 28-Dec-12 13:59:00

Morning All

Did we all have a good Christmas ?
DD loved her iPad so much that she sat there hugging the box for at least 10 minutes before she even opened it grin

DS got a flat screen tv for his room , we will never see him again ...

DH and I decided not to buy each other pressies , we shall treat ourselves in the sales instead .

On a boob related front , bought my first proper bras since the surgery !
Can't believe how uncomfortable real underwired bras feel , haven't worn one for 18 months !

Glad they have reduced your dose Mas , hopefully you will feel a lot better on this regime .

Suppose I should do a little housework .
<looks around , shrugs , wraps back up in blankie and picks up crochet>
grin

smee Fri 28-Dec-12 14:23:43

Housework, Topsy shock. Though I have to do some, as SIL's coming later and her house is always incredibly clean and neat. Glad DD loved her iPad. Buying the DC presents so you never see them is inspired. grin

We had fun, so hope all of you did too. MAS, that's good about reduced dose. Nice to have DH with you. What did they say about the hands and feet then? Is that why they're reducing

Ned I've been thinking of you too. How are you? Christmas is exhausting at the best of times, so I hope you're muddling through and finding some cheer amidst it all.

Better start making the house look acceptable. Acceptable's a long way from clean, but it'll still take an age...

ooh,French France goodies- have just eaten a load of wafer thin mints
Reduced dose to help hands and feet- bcn and onc thought they still looked red but hope the new dosage will be easier on them.
So glad the dcs loved their presents topsy - bless dd.
Haven't worn a wired bra for ages.

Hope everyone had a fab Christmas. Hope the lower dose helps the hands mas and hope you have a fab time in France gigs.

I was very pampered over Christmas and got lots of goodies. DH and I said we were only going to buy small gifts this year as we spent a lot on the children. I kept to the arrangement blush DH didn't so I got lots of goodies and a Kindle Fire which I am so in love with. blush I may have cried when I opened it.

Must go as have left DH cooking dinner (again!). Just in case I don't get on again Happy New Year to all.

Lomaamina Fri 28-Dec-12 17:07:58

Hi all, I just returned from a two hour wait for my post-op clinic appointment to get the results of the biopsy (I had a lumpectomy of arolea complex two weeks ago following a diagnosis of Paget's).

A thoroughly frustrating experience: the doctor had an incomplete verbal report from the lab to say they've started the tests and not found anything so far (good) but they haven't finished. He didn't have a written report to refer to. All the way home I was fretting as to what they were hiding from me: why did they lead me to expect clear results today, but none were forthcoming? The doc said he'd expect in "most" cases to find an underlying malignancy. This contradicts what my regular surgeon (who's on holiday) said when I saw him last - that they hadn't found anything in all the scans etc and he was confident they'd find nothing in the biopsy. His number 2, the man I saw, was so bloody negative. It was as if he expected to find something.

It was only when I got home and discussed this with a friend that I realised that the real story was probably that the lab was delayed finishing the tests because of the xmas break. If that's the case, I'm so annoyed. If the doctor had been honest and straightforwad with me he'd spared me unnecessary speculation and worry. I'm stuck now waiting another week for the results and I can only hope and pray that a) they do indeed continue to find nothing and b) that I see my normal chap next time, who I can trust to give me the honest truth!

Sorry for the self-indulgent rant.

loma

gah loma that's so annoying- am so sorry you are still waiting in limbo sad - hang in there and keep posting xxx

Lomaamina Fri 28-Dec-12 17:17:20

Thanks MaryAnn. It's kind of you to say so. I do hope you had a good Christmas and that your hands and feet are improving.

Topsy what sort of crochet do you do? I used to make my own cardigans and have been known to make the odd (in both senses of the word grin) blanket, but haven't made anything for a few years now.

loma

Piemistress Fri 28-Dec-12 20:08:25

Hi Peeps,

I hope you don't mind me crashing your thread like this but am after some advice?

An old friend's breast cancer has returned and she is having another op in the new year followed by chemo and radiotherapy. She lives a few hours away and I would like to send her some kind of care package for post op recovery and when she is having chemo. Any suggestions what I could put in it?

Many Thanks xx

KurriKurri Fri 28-Dec-12 21:10:49

Loma - how frustrating for you sad - you do come across some consultants with a not very good manner, - I hope you get your usual chap back next time and he can reassure you xx

Hi Piemistress - welcome to the thread - not gatecrashing at all, - everyone welcome. What a nice friend you are smile

When I had my op. + chemo I found the following things useful and nice,

Hand cream (skin gets v.dry)
warm soft socks to wear in bed or round the house (skin v-sensitive so soft or natural cotton fabrics in anything are good)
Audiobooks and novels (audios good for when you are to tired to read, but want distraction, - novels - light easy reads, or mags)
Puzzle books (for when you are waiting for chemo appointments and having chemo)
wrist warmers - to keep your hands warm for chemo.
boiled sweets to suck in hospital - as the air is very drying on the throat.
i-tunes voucher if she has an i-pod.
I drank a lot of peppermint tea, ginger tea and lemon tea - helped with the nausea.
Anything she can do while she's resting and not feeling very energetic - depends on her hobbies, - I enjoyed knitting and embroidery, but whatever floats her boat smile

I'm sure others will be along soon with more suggestions soon - good luck to your friend for her treatment.

MAS - hope the lower dose helps your hands, - nice that DH could come with you, good luck with the next cycle xx

waving to all, - hope everyone had a good Christmas, - I have eaten far too much and need to urgently diet for my plastics appointment in Feb blush

DD's 23rd birthday tomorrow, so I will make a cake and try not to eat too much of it! (will put loads on the trolley).

topsy - what are you making? - I crocheted a poncho/wrap thing for my DDIL for Christmas, - hadn't done any crochet for years, but the result wasn't too bad (if a little uneven at the edges but I covered that with fringing and she didn't mind grin).

Piemistress Fri 28-Dec-12 21:21:04

Thank you kurri that's very kind, I will note down your suggestions and get busy! smile My friend told barely anyone when it happened for the first time as was assured that it would be gone post op, but sadly it wasn't the case. They have told her that as she's pretty young (38) this next op and treatment should blitz it for good. I am praying that they are right x

topsyturner Fri 28-Dec-12 22:35:17

I am making about 5 million hats at the moments .
They are the only things I know how to crochet , taught myself with YouTube videos .
Really should watch another video ...

Pie nice pjs are always welcome .
The lounging sort , so that if visitors turn up you look half decent !
If she's still in hospital when you are giving her gifts , wet wipes , a nice refreshing facial spray (I had a Clinique moisturising one)

Lo bastarding hospitals eh ?
How hard is it to say "sorry we don't have your results yet" ???

Horse riding tomorrow .
DD got new body armour and a riding crop for Christmas , so she can't wait to get back out there !

Wind is howling up a storm here , hope everyone else has it a little nicer smile

Welcome pie - sorry to hear about your friend - how unfair. I would think that things to read or listen to would be good and nice things like hand or body lotions, stuff to make her feel good.
Am off tomorrow to mil's so no broadband, just my phone which is tricky to MN on.
Happy bday to dd kk smile
xxxxxx

NedSchneebly Sat 29-Dec-12 09:31:42

Morning all smile

pie I would second everything already suggested, plus some nice things to nibble. You don't always want sweet stuff, so nice nuts, crisps, crackers etc. did someone say magazines? Better than having to concentrate n a whole book sometimes.

Happy birthday to MissKurri smile

Doing OK here, Christmas went pretty well, was quite chilled as only DH,DS and DHs excellent granny staying. Mostly chilled out, watched TV, chatted etc. Played organ for 3 services over festive season, which all went pretty well, I think. At least you can rely on congregation to keep going with carols that they know, if the organist suddenly realises she's in the wrong key altogether. . . blush

Am feeling a bit better, I think. Had a good session with my trainer yesterday, who did some physio on my busted ankle, which has really helped. Told him about my counselling, maybe cried a bit, but he was lovely and completely unfazed by it all! Doc suggested upping my ADs again when I last saw him, but have decided not to at the moment, thought I would wait and see how stressful start of term gets, then I have option to increase then. Sensible or not?

Anyway, off to parents today til tomorrow evening. I promise to have a proper catch up on everyone's news. My posts recently have been so self-centred and self-indulgent. Sorry lovelies. X x x x x x x

KurriKurri Sat 29-Dec-12 12:10:15

Hello ned smile - glad you had a good Christmas, - I think your AD plan sounds sensible - I adjust mine up a little down a little depending on circs., main thing is that you do everything gradually so don't suddenly stop, and if you increase do it by increasing every other day and build up (but your GP will organize all that for you). You may well find that once you start back to work, you may feel a bit better. Cancer plays havoc with your self confidence - and it takes a bit of time to get it back, as you gradually return to 'normal' things you start to feel more like yourself. You will get there my lovely. xx

have fun at your parents.

MAS have a good time at MIL's.

DD liked her presents, and I am about to start baking her a chocolate cake. DS may come over later he said (for cake obv. grin)

Hope the weather has calmed down a bit for DD's horse riding topsy. Well done on the hats - DD wants me to knit her a big long cardi, so may look for wool in the sales next week.

love to all.

jchocchip Sat 29-Dec-12 12:48:47

Hello again! We're back home. Lovely db cooked roast beef and apple crumble for our journey break at Mums. Well done ned playing the organ - I was told by a wise old minister that congregational singing is about making a joyful noise - the loud old lady who was tone deaf didn't faze at all and you shouldn't worry about the odd b*m note, just pull out all the stops and enjoy grin
loma I'm sure it is the holiday that has delayed the result - so frustrating.
mas hope you get on well with the lower dose.
Have set my deal mil a project knitting me a random coloured cardi out of left over scraps of wool... She is at the hosp most days visiting her mum and needs distraction... The hosp phoned twice while we were there saying nan unresponsive but managed to bring her round - think of she gets well enough for discharge it will be to a nursing home.
Waves and puts a brew on...

Lomaamina Sat 29-Dec-12 15:07:36

Waving back to everyone and thanks for the brew and sympathy.

TMI information alert Does anyone have any advice about soothing creams or oils post-op? The nurse I saw yesterday (fortnight post op) said the wound was healing very well and I could start using aqueous cream to wash in a couple of days and ---- oil (didn't catch the name!) to soften the scar once it's healed. In the meantime the area around it has become very dry where the adhesive of the dressing was in place. It's madly itchy and sore to boot. I have bad bruising. I don't want to risk infection but if anyone has any advice if be really grateful.

KurriKurri Sat 29-Dec-12 15:28:52

LOma - I think it will be bio oil she means - its for scars and if you massage it in, in a kind of circular motion it can help prevent the build up of tight hard scar tissue - so worth doing. You can get bio oil in any chemist - it's quite expensive, (about £8 -£9 for a small bottle IIRC) but a little goes a long way, superdrug do it a bit cheaper. You can also put a few drops of it into your bath.

As far as the dressing soreness is concerned (I had that too - it's horrid isn't it, - think I was a bit allergic to the adhesive), I think i would go for something gentle like savlon cream, or sudocreme, - but keep an eye on it, if its very sore, they can give you special dressings at the GP's - nurse will do it - I think I had one with silver in it to help healing.

bruising - arnica ointment is the best thing I've found. You will find probably that the bruising takes a little while to come out - you'll be discovering new ones for a few days ! - they aren't terribly gentle in operating theatres and you get yanked about quite a lot, so you might have a few aches and pains unfortunately.

Someone on here recommended a square of pure silk (like a hanky or scarf) inside your bra or under the front band for softness and to stop rubbing, - but quite possibly you aren't up to bra wearing yet!

Good luck with the healing - it takes a little while, but once it starts getting better then it speeds up a bit (if that makes sense confused) smile

Hello Jane - knitting will be nice for your MIL to occupy her if she's at the hospital a lot. Hope Nan improves over the next few days - it's sad seeing old people so frail. sad

I have made the cake (nearly - just need to ice it) DS coming over for cake and to give DD his present. I am making quantities of egg sandwiches Mrs Doyle stylee grin

Lomaamina Sat 29-Dec-12 15:38:04

Oh thanks kurrikurri it was indeed bio oil now you reminded me. I'll note all your great tips, thanks. As for wearing a bra - it's the other way around. Because of the wound site I have to wear one continuously, otherwise there's too much weight taken by the wound. I think that's one of the sources of my discomfort, even though I'm wearing a 'post- op' one which is meant to be more comfortable...

amberlight Sun 30-Dec-12 16:34:06

Hello all! I have been absent with brain frying failure due to silly situation nothing to do with cancer treatment at all. So catching up and leaving out a wine for those in need and some thanks to cheer people up.

KurriKurri Sun 30-Dec-12 16:42:20

<clinks glasses with amber> hope you are OK sweetie x

smee Sun 30-Dec-12 18:44:12

Waving to Amber. I'll clink some wine with you. Are you through your brain frying or still amidst it?

Loma, a dressing's a good idea as it stops clothes rubbing. Silk vest top or similar's best too. Weirdly burns dressings might be your best bet but GP/ practice nurse might be your best bet. Hope it stops being so irksome soon.

Ned, good to hear you're feeling a bit lighter. One day at a time I reckon, as you're bound to have good and bad days. (((hugs))) from me.

How's the lower dose going, MAS? Are you feeling okay?

Jane, that's sad about your Nan and MIL too. Blimey it never stops for you.

Would hold my paws out for DD's birthday cake, Kurri but we still have half a Christmas Cake to eat. Delicious though I do say so myself. Did she have a fun day? smile

What's everyone doing for NY tomorrow? We're staying local, so walking a few streets to v.old friends. Totally stress-free, as we don't even have to dress up. smile

amberlight Sun 30-Dec-12 19:06:09

Smee, today's the first day since before Christmas that I've felt unfried, so getting there thanks smile

We're having a quiet family thing for NY

smee Sun 30-Dec-12 20:53:22

Glad you're a bit less frazzled, Amber. A quiet family thing sounds just the ticket for NY. smile

Lomaamina Sun 30-Dec-12 20:55:57

Hi smee it's starting to improve withe aqueous cram washed over the dryest areas (avoiding) the wound, but I'll look out a piece of silk because tomorrow's my first proper outing into London with the family and I'll be doing a bit more walking than normal. Great excitement to be getting back to a normal routine although im a tad nervous of the crowds. A good dry run for my first day back at work though...

For me NY eve is a non- event and always has been since the halcyon days at university when we'd dance the night away with a backdrop of a silent movie that woul be traditionally created by the film department each year... Nothing to better that and anyway, I have to admit to preferring an early night nowadays.

Whether you're staying up or not everyone, may I raise a virtual wine to you all for a wonderful, healthy 2013 and thanks for your amazing support.

jchocchip Sun 30-Dec-12 21:04:56

wine cheers. Good to see you amber
went for a walk earlier and the weir on the river is only just visible - any more rain and it will disappear!

PenisColada Sun 30-Dec-12 21:07:24

Just checking in.

My op is in just under 3 weeks. I am paranoid about getting ill and the cancer spreading whilst waiting for the op.

I can now talk about it without crying and am sick of dealing with people's reactions as I want to shout it is me not you so shut up.

This is all a nightmare and I still can't believe it is happening to me.

topsyturner Sun 30-Dec-12 22:47:53

I'm not fond of New Years Eve either
And that's not Cancer talking , I've always been a miserable old bag grin

DH and the DC stay up and watch Jools Holland , but me ? I'd rather go to bed with a good book !

Speaking of which , does anyone have any good reads to add to my serial killer collection ?
(Gracie I'm looking at you !)
I love a good thriller .

I have also discovered this weekend that I have an extraordinarily huge head !
Wore one of my crocheted hats out yesterday , and a friend of mine tried it on .
It didn't stretch half as much on her head as it did on mine ...
So I have started a new hat today , and increased the sizing to binliner proportions grin

Hope everyone is well .
Pen good luck staying occupied till your op date .
Amber I hope all your troubling times are behind you , and that 2013 is the fantastic year that you deserve !

I have my first post remission CT on Friday .
Hence all the crazy "it's come back" dreams . And I'm symptom spotting like crazy ...

Oh and as if I didn't have enough to cope with , DH has decided he wants to get a companion for pig/dog !
faints clean away gringringrin

Gigondas Mon 31-Dec-12 14:55:26

Checking in from French France with champagne for the fbs trolley as had a night away in champagne. And another vote for not liking New Year's Eve- it is the enforced jollity nature of it so always felt it was an anticlimax.

Topsy I will join you with the symptom spotting as my next scan in a couple of weeks. And what can you get to keep pig dog company? And how will you keep another pet like that in snacks grin?

Arf at the hat .

Thrillers (cant vouch for them all as beyond montalbano books am not the biggest thriller person):
Anne holt - Norwegian thriller writer
Leif persson- between summers longing and winters end. (Stockholm based corruption thing )
Mari jungstadt meant to be good (Swedish again)

Oh and gracie I got a kindle too and am surprised at now much I like it (was always a bit meh as used iPad for it ).

KurriKurri Mon 31-Dec-12 15:46:11

Pen - it is very scary waiting for you op. - you just want it all over with, I felt exactly the same, but was told that in the big scheme of things, three weeks is a very short time and there is no cause for concern about the cancer spreading in that time. I know you just want it taken away, - it's a very stressful time.
Other people getting over emotional doesn't really help, you are right - it is you, and no one knows exactly how you feel or what you are going through - even those of us who have had our own cancer experiences.

Would it help to occupy you if you got very organised for when you come out of hospital? - stock of meals in the freezer, doing any jobs that you might not be able to do for a while, that sort of thing. Or maybe arrange some sort of outing every day - even if it's just a walk, to give your day a bit of structure and get through the waiting time. Are you signed off work until after op? - I think you said you were.

And if you don't want to talk about it with others then say so - you don't have to do anything you don't want to, you have to be 'selfish' and do what you need to protect yourself emotionally. xx

topsy - have you read The Black House by Peter May - it's good, set on Lewis/Harris, there's a sequel too.
DH got me one by Alison Bruce for Christmas which is good so far.
And I recently read some by Elly Griffiths - heroine is a forensic archeologist - I like them because they are set in my part of the country, but good stories.

Are you thinking another dog? - how exciting, what kind another GS?

Good luck with the scan - scary I know, and good luck to you too Gig for yours.
Am envy of French France, is weather nice?- it's completely foul here, raining and blowing a gale.

Also not keen on New Years Eve - I always feel very melancholy, start thinking about loved ones no longer here etc., I'm not keen on Significant Dates generally.

My diet started again today, am already feeling a bit peckish sad

smee Mon 31-Dec-12 17:15:35

Waving to Gig in French France and to Topsy too. Scans on the horizon are never good. Even if you don't like NY, wine in abundance might help distract?

Topsy, what's DH got his heart set on then? Is it another PigDog, or a new sort of hound? Can imagine PigDog'll take some persuading it's a good idea..

Pen, totally get why you're worried. I'd bet we all recognise it. When I was diagnosed, we had an EasyJet long weekend away booked. My Surgeon said go as she couldn't operate until we were back anyway, then the Volcano Ash Cloud hit and we were stranded in Spain. I was so paranoid about spread that we got 6 trains, (two overnight with no sleeper) and spent epic amounts of time in railway stations, all with our then five year old. When I told the Surgeon she said it really wouldn't have mattered if we'd been delayed, but I'd still have hated it. Kurri's idea's good about cooking, etc. Keeping busy's definitely a help. Let us distract you too. xx

Hope Loma survived her day out in London and isn't too wiped out. How's the skin Loma?? Still improving?

I didn't used to like NY either, but now it's so laid back and local I love it. We don't even have to stay until midnight, as lots will be there and DS is an excellent excuse. Once he's wolfed down all the crisps, he'll start to get bored so we'll slink back to watch Jools on the sofa. Perfect. Will raise a toast to all of you at midnight. Happy 2013 to us all. smile

NedSchneebly Mon 31-Dec-12 17:19:04

another anti-NYE household here too. We are having Waitrose crispy duck, a nice bottle of wine and a trashy film, and going to bed at normal time. What party animals we are. . .

pen I am completely with you with the waiting thing - I felt exactly the same, about it spreading while I was waiting for surgery etc, and I only had to wait 2 weeks to wait for my op. It is such a sense of relief when its gone. kurri is right - you need to give your time some structure. PLan some nice days out/ shopping expeditions/ trips/ catch up with friends/ gym sessions whatever you enjoy doing, as it helps move the days forward. You'll have pre-op appointments at some point before your surgery, and that helps to make it seem as if you are getting closer to the day. Just tell people to bugger off if you don't want to talk about it. Its your business not theirs. Stick with us, love, and we can help you pass the time.

Loma how did your trip into London go? hope you had a lovely time and you didn't get too tired.

smee sounds like a nice chilled NYE for you. Have a wine for me.

kurri sending you lots of NYE hugs, most excellent lady. One of my resolutions for 2013 is for us to meet up again, but only if you would like to. . .

amber hugs for you too. Hope brain is slowly unscrambling. Take it easy on yourself won't you?

topsy another pig/dog? How exciting! DH wants to get another dog, but I have told him that two is plenty. . . Everything crossed for CT on Friday x x x

MAS how's the reduced dose? Hope you're bearing up OK. Thinking of you, lovely lady xx x

gig very jealous of french Franceland. Hope wine is flowing for you x x

jchoc hope Nan continues to improve and can be discharged soon x x

Waves to others: copthall, sometimes, lime, figgy, greylady and anyone else I might have forgotten. Lots of love to you all x x x x

KurriKurri Mon 31-Dec-12 17:26:52

Ned - I would love to meet up with you again, - I know there are some puddings down there with our names on them grin I shall certainly be down at some point - hopefully in the not too distant future.

Smee- enjoy your NYE celebrations - they sound nice and relaxed. We will just be vegging in front of the sofa, I think DS and DDIL are partying, but we are stay at homes [dullard emoticon] Most exciting thing for me will be putting up my new wildlife calendar tomorrow grin

PenisColada Mon 31-Dec-12 17:53:06

Thanks for the support it really helps that you have all been through it too.

I went on a lovely lunch with friends and now have been to Waitrose and treated myself to some lovely cordial ! Odd as I was always life and soul of any event and the first to down a drink or 10 .

Lomaamina Mon 31-Dec-12 17:54:58

Hello everyone. Back from my big adventure, showered, feet up and feeling surprisingly well, considering. We walked lots round the museum but I paced myself well. Skin's improving daily, but wound unsurprisingly still sore after all the movement. Happily yesterday we made a double batch of cottage pie to eat, so I've announced to DH &DS that they're on kitchen duty and I await yummie supper from my cosy couch.

Pen I'm sorry to see your latest post - I really feel for you. I agree with the others about cooking for the freezer. It's very cheering to have your favourite dishes for when you're up and about (and a good distraction). And of course bear in mind that if the docs thought you needed a more urgent op, I'm sure they would have made sure to get you in sooner. The waiting is agony, but it'll soon be over.

I'm glad I'm not the only one who find NYE a bore. I'm somewhat disgruntled at the poor offerings on TV, but I'll crack open my PD James Pride and Prejudice murder mystery sequel (not making this up), which should work well as a nice winter evening's read.

Gigondas Mon 31-Dec-12 18:27:16

That's a good book loma - I enjoyed it.

pen the plan about things to do is a good one. I was most nervous of all I think about my op as imagined I wouldn't wake up.

sandripples Mon 31-Dec-12 18:34:10

I'd just like to wish everyone on here all the very best for the new Year, especially those having treatment at present or waiting for an op - hang in there.

With thanks for the support from all of you at times in the past three years. Can't believe it is nearly 3 years since my op!

Love Sandripples. xx

Happy new year to you all and thanks to you all for getting me through the last year which was certainly not my finest.

Glad you had a good day loma and hope your wound continues to improve.

pen waiting is the pits but it will soon be over. Thinking of you.

ned hope you are continuing to feel a bit brighter. When are you back to work? Next week? Hope it goes well. Will be thinking of you.

Waving to gigs in France. Hope you are having a restful time. I am more than slightly in love with my Kindle although I do spend a stupid amount of time playing bubble games and surfing Amazon on it.

Feeling slightly envy at the thought of a new puppy pig/dog topsy. I have been angling for a new addition but DH is taking a bit of coaxing. My book shelf is severely depleted as I took the head staggers and sent most of mine to the charity shop in the summer. I could offer you some Jo Nesbo or a few detective stories but I am looking for some recommendations myself. The sequel to the Peter May book recommended by kurri is 20p on Amazon at the moment. Hope hnd is ok and not permanently blinded by your landing strip.

smeehave a nice night out tonight.

Don't want to miss anyone out so waving to you all. Anyone heard anything from 1in8 have been wondering how she is getting on?

Not a huge fan of New Year, we usually go to bed early.

jchocchip Mon 31-Dec-12 19:06:52

Happy New Year everyone wine smile

waves to everyone.

Have to stay up as dd is going out and wants a lift later. and I need to finish my CPD log blush

Gigondas Mon 31-Dec-12 19:59:01

Ooh and on dog front we have found a sitter so may well be getting one too.

envy

Ilovegeorgeclooney Mon 31-Dec-12 22:21:47

Hello to all who remember me, just wanted to wish all you lovely people a Happy New Year.

amberlight Mon 31-Dec-12 22:42:12

Helloooooo ILGC!!
And hello everyone else.
And Happy New Year!!!
smile
wine

Happy Nooooo Year! smile

<clinks wine with the bevy of lovelies>

Well, I seem to be in a minority of one....have always loved New Year parties, something to do with all that hugging and kissing at midnight maybe grin

Have fond memories of New Years past......friendly happy crowd like a mini Trafalgar Square in Covent Garden one year. Kissing policemen. My lovely old friend Sally and I entertaining a whole tube carriage with our all-singing, all-dancing, vodka-fuelled rendition of New York, New York....

Nothing doing tonight sad. Was invited to a mad friend's party with a Carry On fancy dress theme, but it was called off.

So I shall scatter my Lidl party snacks on the FBS trolley and share my prosecco with you all smile

invicta Mon 31-Dec-12 23:47:28

Hi all,

Sorry I haven't been around for a while. I've been wrapped up with preparing for Christmas, and eldest son's birthday. He's just become a teenager - I can 't believe I've got a teenage son!

Hi to Pen - sorry to hear your news. Hope it didn't ruin your Christmas. Not sure now whether you have a date for your op, but hope its not too far away.

It's funny, even though I finished my treatment a couple of months ago, I've been dwelling on bc recently. I think it's because my period is overdue, which I think is due to the tamoxifen. It's strange not having them. I've been working myself up over bc recurrence rates.

However, I have been told that I'm no longer eligible for the drug trail which I was considering, because I'm too low risk. Part of me is slightly disappointed as I would have liked to be part of the battle to fight the disease.

I wrote in one of my first posts that I didn't feel like I had cancer as I never felt ill, had a small lump and found all the treatment relatively easy. Part of me feels that it will come back twice as hard, or why have I ad it easy whilst others have had it worst.

Sorry, don't mean to be so self indulgent. Thank you if you have taken the time to read this. I didn't mean to when I started this post. It was want to be a ' hi ya' post.

Happy new year!

KurriKurri Mon 31-Dec-12 23:48:21

Happy New Year all.

Lovely to see old friends back on the thread, hope all is well with you ILGC and the DC are all doing well too. Waving madly to Lime, HNY lovely.

wine and cheers to everyone - the best and most brilliant bunch of women on t'internet or in fact anywhere else xx

KurriKurri Mon 31-Dec-12 23:55:42

x-posted invicta happy new year sweetheart, - your fears regarding recurrence are totally, totally normal - I'm sure we've all felt like that at times (I still do and it's over four years for me).

And don't feel guilty or bad that you have had less treatment than some people have to have - it's great that you got through your treatment well, but like everyone you've had to deal with 'having cancer' - and that's the biggest trial IMO - so be kind to yourself, it takes times to come to terms with all the changing emotions.
You know you can always drop in here for a bit of TLC xx

topsyturner Tue 01-Jan-13 00:10:19

Happy new year everybody's!
<snogs everyone , swigs from bottle of Avocaat , passes out in heap in the corner>

<snogs everyone back, grabs Advocaat from Topsy's comatose hand>

Happy New Year all x x x x x

Kurri you are so right (as usual). Couldn't wish for lovelier friends anywhere xx

jchocchip Tue 01-Jan-13 00:23:11

Happy New Year old friends and new - off to get dd then can have a wine ! cheers lovelies

PenisColada Tue 01-Jan-13 08:44:02

Happy new year to you all !

The advantage of not drinking is that I was at the beach by 7:30 this morning and watched the beautiful sunrise.

This time next year cancer will be just a memory for me I hope.

jchocchip Tue 01-Jan-13 09:20:58

Well done pen I love the sunrise at the beach. I'll drink a brew to that.

NedSchneebly Tue 01-Jan-13 11:24:39

Morning all and Happy New Year to us all - may this year bring us health and heppiness - God knows, we deserve it!

Waves to old friends - ILGC - great to see you! Hows the DCs doing?

lime ! good to see you! How have you been? Good Christmas with DCs?

invicta the fear of recurrence is very natural - I am a complete master of being terrified by the thought of it at the moment. My doc says that it is like a grieving process and that for me (diagnosed Jan 2012) it is all too raw to be able to put the fears to one side yet, but that it does get easier with time. Just be good to yourself and give yourself the time you need to heal. My doc is ace at listening to my fears - I had a recurrence fear in November, which turned out to be an infection - and checking whatever it is that I am worried about, so hope your GP is good too. Take it easy, lovely.

Sun shining here, so taking DS for a romp in the woods - he needs some de-bouncing!

Lots of love to you all x x x x x

smee Tue 01-Jan-13 14:40:02

Happy New Year from me too!! Had a great time last night and am feeling slightly shoddy, so will leave Topsy's Advocaat for now. grin

Waving excitedly to SR, ILGC and Lime. How are you both?? Hope full of festive cheer and not in the doldrums in any way. SR, did you have a lovely time with your DC back home again? Lime did you sort the divorce? Hope that's done and dusted now. smile

Sunrise sounds lovely, Pen. Staring at the sun rising on the first day of the year sounds defiantly life affirming. smile

Invicta, the recurrence worry's totally irksome and every ache from now on will doubtless lurch you to paranoia. I've had more scares than I can remember and my only solace is that it's normal and all part of it. That's why we're all still here in lots of ways, as we all know that fear and how constant it is in our thoughts. Does get easier though, I promise. smile

smee Tue 01-Jan-13 14:40:59

Ned, I have sent DH out to 'de-bounce' my DS. I told them I was going to clean up the house, but so far I've got as far as here. grin

smee Tue 01-Jan-13 17:11:45

Must be more addled than I thought. I said 'How are you both?' to 3 people.. confused

topsyturner Tue 01-Jan-13 17:21:34

Sitting infront of a roaring fire , watching Wizard of Oz , debating whether to open up a bottle of summat fizzy to wash down the pâté on toast I am about to make (Tesco Finest Brussels pâté was on casualty corner for 5p a packet !!!!!)

Hope the start to every bodies New Year has been good . May the rest of the year follow suit .

KurriKurri Tue 01-Jan-13 18:05:09

Happy New Year everyone, hope no one by which I mean Smee obviously is feeling too delicate after last night, and hope that DC are all de bounced and everyone is settling down to a nice evening.
We are going to watch Up, having just watched the Frog Princess smile

I think I may go and search out something fizzy too topsy.

Lomaamina Tue 01-Jan-13 18:06:30

KurriKurri I highly recommend 'Up'. I hope you have a lovely time watching it!

KurriKurri Tue 01-Jan-13 18:08:26

Loma - I suspect it will make me cry - I am a wuss for sad films.

PenisColada Tue 01-Jan-13 18:17:04

I am really struggling today. I think it is the whole new year thing and now it is all over the reality of cancer and surgery and treatment and the rest of my life terrified it will come back is sinking in.

I had a big meltdown earlier. I don't know how I am going to cope with this. I have long pre op assessment tomorrow and then I am supposed to be working Thursday and Friday but I really don't think I will cope at work.

Do you think my GP will sign me off until after the op ? I h
Just don't see how I can go into work and not cry all day.

NedSchneebly Tue 01-Jan-13 18:30:53

Arf grin @ smee how's the head this evening?! Did you get any further with the house cleaning?

pen you poor love. Get thee to your doctor and get signed off. I was signed off for the 13 days between diagnosis and my surgery, as I was worried about being an emotional wreck - not a good look for a teacher. . . There is no need for you to be at work if it is going to be hard work and stressful, particularly if you are not in a fit state to function. You need to protect yourself and allow yourself time to come to terms with everything. You are better off being signed off and taking some time for yourself. Meltdowns are healthy when they allow you to let off steam and articulate to those who love you exactly how you are feeling. Sometimes its good to let rip - I know I have done, and still do occasionally.

The pre-op assessment will make it feel like things are moving in the right direction - I know I felt like things were actually getting moving and I was one step closer to the bloody thing being gone.

Stick with us, lovely - we all know what it feels like and can completely sympathise. Feel free to rant and rave as much as you like on here.

I got an email from the private counsellor I was recommended by Dr JustAsLovely and I am seeing him on Friday afternoon. Little bit scared. . .

Gigondas Tue 01-Jan-13 18:34:51

It is daunting ned so hugs and wine but stick with it as it does help.

Loma yes get signed off if you need it- have you been in touch with Macmillan or specialist nurse about someone to talk to.

Happy new year all- was champagne and early night here.

PenisColada Tue 01-Jan-13 18:38:22

I have some paperwork from the hospital but I can't bear to look at it. The specialist nurse details are in there. What can she do now though ? I need to get my head together and she can't help with that.

I am a health professional so I find it very hard to deal with other HP's as a patient. The nurse asked me 'how do you feel' about 30 mins after my diagnosis. Not a good time to say that.

Gigondas Tue 01-Jan-13 19:01:30

She will probably help more than most as will have seen it more than most. I too am cynical about hcp but wouldn't have coped Without my specialist nurse.

It is a first port of call as the other alternatives are your Gp (who may be brilliant but it is varied - mine looks at me with the head on one side patronising crap), Macmillan (ring the helpline) or to find some support group. Of course you can go it alone (people do) but having been through this and other shit times, I don't think it is the easiest or wisest thing to do.

PenisColada Tue 01-Jan-13 19:08:08

I have looked online and can't find a decent website / forum for they type of cancer I have,

I am going to look at the Macmillan site now.

Thanks for the support.

Gigondas Tue 01-Jan-13 19:10:36

I would be wary of site support (sorry but my brief dalliance was jf it is full of the most desperate) but the support people are great. Is there a centre at your local hospital?

PenisColada Tue 01-Jan-13 19:20:41

I wil ask the nurse. It seems there is local support group for other types of cancer not the type I have though.
The online ones I have found look to be no good.

smee Tue 01-Jan-13 20:25:49

Gig's right, Pen. There will be something that might help. Trouble is when you're in this pre-op place it's hard to be rationale and able to sort all that. Always struck me as annoying. When I was at your stage, I did nothing sensible. Honestly though it does get easier once you're through the op and have all results. smile

Ned, glad appt has come through. Definitely daunting, but best to go and get started. Really hope they're good.

Kurri, did you sob? I saw it at cinema with DH. Seem to remember shedding a tear or two. smile

My head's not too bad now. DH thinks hair of the dog. Am not so sure..

Gigondas Tue 01-Jan-13 20:29:46

I can't get past first ten minutes of up.

Smee hair of dog is usually good if you can bear it.grin

And this is the worst time pen- the only support group I use is here. But do recommend a therapist if needed.

I'm back !!!!! happy new year lovelies- I tried to get to you all on my phone but it was being difficult and hopeless internet connection on it so feel I've missed a whole chunk of stuff.
Had a nice time - kept reasonably calm... saw various ILs - ate nice lunches out-etc etc. Am so glad to be home though. Went to bed at 10.30 as am def. not a NY eve fan- dh,ds and MIL stayed up though.
We did drink champagne with our tea though.
Hands seem ok - not particulr SEs yet. Interesting;ly no one mentioned cancer or asked how I was doing treatment wise- not sure if that's good or bad ?
Am noticing slight aches in my chest,which of course might be psychological.
Anyway, will try to catch up with you all grin xxxxxxxxxxxxxx

smee Tue 01-Jan-13 23:55:46

Waving to MAS - glad you're back and hooray for SE being kept at bay. Sounds like they were trying to give you a break from it all, though I'd bet it was a bit elephant-in-the-room. Always annoyed me when people didn't mention cancer, as I'd rather they said something then moved on. Must be tricky for them though. The aches could easily be psychological, but if not could still be good. Chemo gave me all manner of pains and I anxted to Oncs, but they said it's normal as it's the drugs blitzing everything, which obviously includes the cancer, so take heart. smile

Pen, Gig's maybe hinting that there are some nutty threads out there which can be far from helpful. Obviously we're nuts too, but are relatively rationale about cancer. grin

Didn't do hair of the dog, though DH did. Night all. Wishing you all much sleep. smile

think you're right smee smile
It's so nice to be relatively back to normal here- am really quite longing to get back to work and routine - several jobs lined up- hooray !
How are you all doing ? hugs to pen as i see you're having a rough time.
ned do you start back next week ?

invicta Wed 02-Jan-13 20:34:54

Thanks for all the nice comments earlier. My New Year Blues have subsided now.

Hope the new year is going well for everyone. I had to write 2013 on something earlier which seemed a little strange.

PenisColada Wed 02-Jan-13 23:01:11

Well the new year just got worse. I had lengthy pre op assessment involving lots of waiting about. Mostly ok but I saw a horrible dr who tried to look at my vocal chords but could not get the thing up my nose.
It hurt and made me gag and my eyes were streaming. I have a cold so sure it did not help. It was quite traumatic. The dr attitude was the worst thing he just shrugged. My voice has not changed so they only wanted to look in case there is a problem after the op.
On the bright side I will get acupuncture before the op as GA usually makes me very nauseous .
It all seems more real now. I want it over but am dreading it too.
Had anyone been offered counselling on NHS ?

KurriKurri Thu 03-Jan-13 00:42:02

Hi Pen - yes I had NHS counselling, it was arranged by my specialist nurse, and I found it very helpful, ask your spec. nurse, your onc. or your GP, and be pushy if you have to - have you got anyone who can go with you and give you moral support?

The camera up the nose thing is horrible - poor you sad (I have a friend who had throat cancer and she has to have it and hates it too) if you need it again could you ask for sedation? - I'd check with your spec. nurse about that too, - it a barrage of tests and poking and prodding at the start, and you start to feel as if you've lost control of your life. But you shouldn't have to put up with any discomfort that can be avoided (I'm sure you know all this being a HCP - but sometimes you can lose sight of things from the other side and cancer knocks your confidence).

There are some horrible doctors - there's no denying it, and it makes you feel lousy when you come across one. (Others on here have heard stories of Dr. AbsoluteCock who tried to force me to look at my survival chance stats, and when I got upset said 'what's the matter aren't you interested in your cancer?' - Coccccckkkk).
Fortunately I've come across far more nice ones, and you will too - and they can make everything a bit easier to bear.

Hang on in there pet, you will get through it - take it in small steps, deal with what you know, and don't think about the don't knows. xx

Hi MAS lovely to see you back smile

agree with kk.. hang in there pen
Am off to that London today-well W London- back to my old home to have lunch with friends,taking T with me-we might meet up with some of his friends -the girl he grew up with -though her mum isn't feeling well and is missing lunch.

PenisColada Thu 03-Jan-13 08:20:02

Enjoy that fancy London mas !

I love Dr Absolutecock. I will rename the horrible doctors as an essential coping strategy. I saw Dr Twelveyearold yesterday which made me feel so old although she did say she liked my boots. She also said she won't be doing my surgery as I must have looked worried.

Email sent to work to tell them I won't be back until my treatment is over. I feel relieved that pressure is off and appt with GP Monday to get signed off and can't see she will refuse.

Now I can get on with some long beach walks and housework until the op.

Copthallresident Thu 03-Jan-13 09:02:27

MAS I will make sure West London puts out our best red carpet for you, just the right shade to go with the deep grey sky , I'm afraid there is nothing I can do about that sad. Have a lovely day. The old friends are the best ones... My girls met up with lots of their childhood friends this holiday, it was great to see how they took up where they left off (but now with vodka shock)

A Happy and Healthy New Year everyone ( carries big sack of loot to trolley, cakes, chocolate, half drunk bottles of booze and walks self righteously away, having managed a whole 48 hours of righteous living, though mainly because I was asleep most of it).

Pen It is grim, this induction into the world of Cancer, and there are too many HCP's who make it worse than it need be. A few think of you as a Cancer with a person attached, rather than the other way around which is the last thing you need when you are struggling to assert your confidence and self image in your new normal anyway. We definitely found labelling them helped! We had a Wonky Oncy, and a Dr Golf and Claret (as we felt sure that going on medical jamborees to the US laid on by drug companies pushing their poisons mattered a great deal more to him than his patients), thankfully I had Dr Geek, who knew everything there was to know, including the statistical benefit of treating your patients with humility, as people with choices. Hopefully you will also encounter the HCPs who treat you as a person, and understand we patients come in an infinite variety . Just remember it is you that is important and the Cancer that is on the way out, this is something you have to endure to get rid of it. It is daunting and scary but I just kept telling myself "this too shall pass". And it did.... Walks on the beach are just the thing to get it all straight in your head.

Do they do Counselling for spoilt people who have had way too nice a time this Christmas and New Year with lots of lovely old friends that they have missed for too long. We had a such a great time in our old home and I am really struggling with being back in grey England. It is partly that Hong Kong always felt like the chance to really live the life I felt I should live after nearly losing it, and just going out of the front door was always an adventure. It feels so much harder to do that in the UK, I do find winter very grim (I am sure people were not meant to live with this little light and sun) and people seem very grumpy in comparison. It feels like coming back down to earth with a big bump, still just have to make the best of it, I started well, 13 hours sleep last night hmm

NedSchneebly Thu 03-Jan-13 17:05:16

evening all <bends knees and hooks fingers in imaginary braces in Dixon of Dock Green style-y> smile

Had manic day in school today - am starting back next Wednesday - with my jobshare partner, trying to get our classroom sorted out. Its a bit unloved, at the very end of the long KS1 corridor, and was just abandoned at the end of last summer and hasn't been used since. People have borrowed stuff and just dumped things everywhere, so we had to take virtually everything out and start again. I had a great chat with A, my jobshare, and told her about everything that I was worrying about, with the planning and not wanting to be a burden to everyone in the team etc. She said she wanted to do everything she could to help, went through all the planning with me - she's planned Maths and Literacy for the first week for me already - and made sure that I know what I am doing. It was great smile Because we are both in school on a Wednesday I don't think I'll get in as much of a panic. That's the hope anyway. . .

copthall sounds like you had a lovely festive season! Its always a bit of a shock to the system to get back to reality isn't it? Hope you are OK.

pen good idea to get signed off work. It definitely takes the pressure off, and is one very big thing you don't have to think about. I am very lucky with my docs - I have Dr Lovely my GP, and Dr JustAsLovely, one of the other partners. My surgeon could be Mr Polish (the nationality, rather than the Mr Sheen variety. . . ) and my oncologist could be Mr VoiceLikeNigelHavers. I have also seen various Dr TwelveYearOlds this year. . . Sorry the pre-op was hard, but its done now, you can tick it off and look towards the next thing on the horizon. . . Sending you mega MN hugs x x x

Must go and feed DS - will swing by later and catch up properly x x x x

smee Thu 03-Jan-13 17:54:00

Pen, owwww.. that sounds mighty ouch. What a complete arse that Doc was. Have you a new name for him yet? hmm Great you've decided on work. Am sure that will help and it's more than fair enough. GP can't refuse, so don't stress about that.

Back at work already, Ned? shock though it sounds like a good day. I don't remember how it's all working. I know you've got year one, but what's happened to their teacher from last term? confused

MAS, are hands/ feet still okay-ish? Hope they are. When does DS start back? Is he having a nice holiday?

Will be thinking of you tomorrow, Topsy. Sending oodles of remission vibes. No point telling you not to worry, but I reckon your uniqueness will prevail. grin

Mr Smee's birthday today, so we've been having a fine old time, though he did have to work this afternoon, so I swept DS off for a swim. I couldn't be faffed to bake thought he'd like some french pastries, so DS and I chose a lemon taste, a raspberry and white chocolate cheesecake and a passion fruit mousse. Better go light the candles. smile

NedSchneebly Thu 03-Jan-13 18:26:17

smee its complicated! There were 2 classes in reception last year, then September 2012 the powers that be decided to put them together as a single Y1 class.. . then decided in November that it was too big and teacher struggling. . . So they split them back into two classes. Original Y1 teacher has one group, other group taught by KS1 leader. A started back after mat leave in mid December, and they had a supply/ KS1 leader for the days when A not in, until the end of term. A teaching Monday, Tuesday and Wednesday afternoon, I'm doing Wednesday morning, Thursday and Friday. It should all work OK, I think. Kids start back on Monday, so I can go in first thing tomorrow and look at reading schemes and finishing tidying before counselling session at 12.30.

Happy birthday MrSmee !!

smee Thu 03-Jan-13 19:07:40

Oh my, that is complicated. I hope the parents are on-side, though I'd bet they will be if it means the class sizes are smaller.

Cakes were mmmm... smile

Is it tomorrow topsy ?? will be sending lots of good vibes your way.
Happy birthday to Mr smee ! pastries sound yum.
copthall W London welcomed us- we drove by yours & gig's neck of the woods and back to our old road- lovely lunch (fish pie and crumble- yummo) and lovely chats...went over the road to see ill friend and her girls and had a lovely catch up. Ds seemed to enjoy the trip - he's had a v nice holiday I think,bit of revision done before plunging back into the world of school.
ned hope all goes brilliantly on Wednesday smile

KurriKurri Thu 03-Jan-13 19:59:53

Happy birthday Mr Smee, french pastries ,<dribbles> I have to get my cake fixes virtually now - I'm a race to lose weight before I see the plastic surgeon.

Ned - I'm glad your job share partner is nice and helpful, - it's good that you were able to go in today and sort things out. Will be thinking of you next Wed smile

topsy - good vibes for tomorrow, will be virtually hand holding.

MAS - hope a good day was had in London.

Copt - sounds like you had a fab time over Christmas - it must feel pretty dreary back here, but I think this winter is especially bad even for UK, - I am sick of bloody rain, can't wait for spring when I can get out in the garden and grub about all day grin

Pen - so pleased you've stopped work until after treatment, one less thing to worry about eh? And yes definitely definitely helps to name the Doctors grin Copt is right - some of them see you as defined by your cancer, the really good ones treat you as an individual and take the time to get to know you. I saw one lovely woman - not my usual onc. and she asked me all about my family etc. Didn't see her again for a couple of months but when did she asked 'how's your DD getting on at University' - and those are the little things that make you feel cared for and cared about.

I went shopping today for present for DS birthday on Saturday - DDIL is doing a buffet tea for us all and her parents to celebrate. DD is making a cake.

I'm going to a 'lunch party' tomorrow lunch at a friends house, other guests are all friends of hers from various art and craft groups, so it will be nice to meet them. What should I wear?, - she said it's a buffet lunch - I don't have to wear a skirt do I? and shave my hobbity legs

KurriKurri Thu 03-Jan-13 20:00:45

x-posted MAS - I see a good day was had smile

Quick pop on to wish topsy good vibes for scan. Be thinking of you.

Good luck to ned on your return to work. I'm glad you like your jobshare partner that makes all the difference. I have another line until end February as although physically I'm not too bad, emotionally I'm a bit all over the place at the moment.

Glad your London trip was enjoyable mas and that your SE are manageable.

Great to hear your holiday was fun copt sounds lovely.

Aw pen dr sounds a bit of an a*se to be honest. He must have missed the bedside manner seminars.

Happy birthday to mr smee cakes sound fab.

kurri I will join you on your diet as I really need to lose a stone before I go back to work to fit into my uniform.

Waves and hugs to all.

Baskets45 Thu 03-Jan-13 21:10:42

Just dropping by to wish Topsy good luck vibes for tomorrow. Everything crossed for you! Very best wishes to the rest of you too. I read your news but don't often contribute.

Lots of birthdays this week, I see - we also have one on saturday - ds2 will be 20. I find this astounding but it is fact, and his cousin whose 21st he was born on will be 41! This isn't as shocking for me as he is dh's nephew and I didn't meet him till he was mid teens, but all the same .... I've been out today buying pressies for ds - or 'parthels' as we call them here (ds2 had a dreadful lisp as a youngster).

Waves to all. Sorry some of you are having such a tough time at the moment. Does anyone have a mince pie I could have? please. I have a craving and reckon we've finished the ones we got in. Oh dear.

xxx

invicta Thu 03-Jan-13 21:22:17

I've not named any bc drs, but years ago named a children's dr "dr stringfellow" as he had longish hair.

Happy birthday everyone.

You can have one of my mince pies as its time for my annual diet.

Tipsy - hope scan goes well.

Gigondas Thu 03-Jan-13 21:25:07

Candle lit and love from French France for topsy tomorrow

topsyturner Thu 03-Jan-13 21:25:34

<sniggers at kks "hobbitty" legs . Looks down at own legs . Sighs>

topsyturner Thu 03-Jan-13 21:28:11

So far my Pre scan canceritis symptoms are - breathlessness , stabby boob pain (in remaining boob and phantom boob) , stabby armpit pain , and stabby pain under my ribs .

<looks suspiciously at you all to see who has the extra long pins and the voodoo doll>
grin

Gigondas Thu 03-Jan-13 21:29:50

Those may be RSI from
Being sat on a sofa crocheting and drinking...

Baskets45 Thu 03-Jan-13 21:33:26

I will always think 'hobbity legs' now when in my bath. Pure vanity but I was in bath last night (that bit's not vanity, but essential life skill really!), and thought - another job to do before next week's hosp visit is to shave my legs - and, as i find it hard to paint my own nails (bad joints, shaky hand etc) I've lined up DH to touch up the nail varnish. This weekend probably! He thinks I am mad grin.

Gigondas Thu 03-Jan-13 21:35:49

grin At dh doing it- I have to make dh do mine as can only reach one toe until my physio works. I also quite like my hobbity legs as have a grim post chemo fascination about how hair has grown back (I am delighted at how slowly it is returning under my arms).

PenisColada Thu 03-Jan-13 22:03:57

I have booked a leg wax for the day before my surgery. At least they will think I have smooth legs and unfairly toes ! Vanity.

PenisColada Thu 03-Jan-13 22:04:44

Unhairy not fairly

Baskets Thu 03-Jan-13 22:15:14

grin at hobbity legs and unfairly toes. A new trend perhaps. I've just whipped off socks to check for 'fairly' toes, but expect everyone will be soo busy admiring my classy varnish job, or rather dh's, nobody will notice my toe fluff! Maybe. I have problems with rashes, well enormous weals really, when i shave legs so need to do them soon so they have time to settle down before anyone sees them.

Enough, well past my bedtime. Good night all (and thanks to Invicta for yummy mince pie). I need to get back on wagon re moving more and eating less too.

BasketsofFluff Thu 03-Jan-13 22:34:15

What do you think? I needed to get rid of the numerals - they aren't 'cool' apparently, and of course I care about things like that wink. It needs to be Basketsof 'something' but not sure what ....

nice baskets !!
pen are you not meant to have unvarnished nails for surgery ? I spent ages buffing my toenails to look presentable for my op.

jchocchip Fri 04-Jan-13 07:59:46

+ve vibes for topsy today. Hope the voodoo-canceritis-rsi has gone away!

Work then drive to Mums with all my batik kit - dd wants to experiment...

Waves and love to all xxx

NedSchneebly Fri 04-Jan-13 08:39:58

Just swinging in to wish topsy anti - canceritis vibes and everything crossed for positive scan today. Thinking of you x x

PenisColada Fri 04-Jan-13 08:42:08

In my letter it says you are not allowed nail polish at all for surgery. I remember the midwife having to remove my toenail polish as I was wheeled down for a section !

Good luck topsy

topsyturner Fri 04-Jan-13 09:38:54

Scan done .
Am on bus on way home with a DD who Won't Stop Talking !!!

Crochet Claw RSI still here grin

Gigondas Fri 04-Jan-13 09:42:06

Glad scan done- I have sleeping baby shoulder so sympathies. Also I fear big gig is going same way as your dd topsy.

yay for topsy
now some advice dear ones- As usual I'm giving up chocolate for Lent,which is scarily from 13th February - I thought I'd add on sweeties and cake and biscuits - possibly pudding ? and I thought I'd do a Just Giving page to raise some sponsorship money. Which charity do you think ? obviously a cancer one is a good idea,as I think people might well sponsor me for something connected to me,iyswim - though I was toying with Parkinson's (for my mum) or one of the greyhound rescue or Battersea dog & cats (very close to my heart) What do you think ?

or Cruse ?
or an OCD or mental health charity ?

Copthallresident Fri 04-Jan-13 14:10:07

MAS Lovely idea. I do agree a bit with the disquiet over the dominance of the Breast Cancer charities in the fund raising world. Part of it is irrational, my pink allergy, but also partly knowing that other equally worthwhile charities struggle in comparison, less "sexy" charities like MIND, Manic Depression Fellowship, Help the Aged, those that help raise awareness and support those with Bowel Cancer (to name three I have particular personal reason to know are deserving ). I also supported an Asian charity that helps women with Breast Cancer in Hong Kong and China who do not have access to the knowledge, diagnosis, treatments and support that I was lucky enough to be able to access to save my life. There is no shortage of worthy causes. I would choose what moves you most, I am sure your sponsors will be equally supportive of whatever charity you feel most personally moved to support.

KK You are right, I have actually braved the cold and grey to get out, walk goon dog, and into the garden and remind myself of some positives about UK, the crocus's and daffs are poking up so Spring isn't too far away. Also I got a little bit of Tulip mania going around the shows last year and though I have planted millions of the things I still seem to have millions left. I think they are secretly replicating in the plastic bag..... hmm I could leave them on the trolley, they could keep us all busy!!!

Topsy Glad it's over. I wonder if you're voodoo person has been at work with their pins on me too, since I have this bizarre memory that will not shift that remembers the lump being in the good breast rather than the deviant breast, in spite of the very clear physical evidence to the contrary. Of course I can't shake the suspicion that my subconscious knows something I don't ... perhaps the NHS should invest in Voodoo exorcisms as alternative therapy!

Ned I want to send my DDs to your class, it sounds like it will a lovely caring stimulating environment. They're a bit big though.....

Glad scan done topsy how long until results?

mas What a good idea. Those are all worthwhile charities. Can you split the money between 2 of the chosen charities?

I sympathise gigs with your shoulder. I have had an achy shoulder/collarbone for some time now and it is no fun.

Nearly school run time, my how the holidays have flown by.

copt agree with you-am not keen on the pink thing either- and gracie -yes,could share it between 2 charities- perhaps Cancer Research or Macmillan and the greyhound one as both mean a lot- am obsessed with pointy dogs and long for a whippety/lurcher/greyhound.
Just realised tht Valentine's Day falls after the beginning of Lent so no Valentine's chocs sad

BasketzatDawn Fri 04-Jan-13 14:29:24

The no nail varnish thing at surgery is true of course. I am going in for another liver biopsy, so not the same issue for me. I will have my toes painted 'salsa' red, as stated on bottle.

MAS, I think something like Parkinson's is good idea - it's a much misunderstood condition, also quite low profile as often thought of as older person's disease (though younger people do get PD too, just rarer). My mum had it, was 50ish when it developed first, so not young and not old smile. Also, mental health charities - eg MIND. Just my thoughts, as you have to go with what you feel most happy/comfortable with.

I have ongoing tendonitis in shoulder - even light Mumsnetting hurts sad. I just needed to give my latest (and final) namechange a twirl. Lunch and then some light present wrapping for DS. Glad to see topsy 'done' - do you have long to wait for results? See you all about later. xx

Lomaamina Fri 04-Jan-13 15:48:25

All fingers and toes crossed for topsy and best wishes to everyone on the board.

I've just returned from Dr 'Wolf' (the clinic chief, whose judgement I trust, so named for the wolfish look in his eye) who has given me the all clear post op. My Paget's hasn't penetrated at all (nor is it, as is frequently the case, a sign of something nasty lurking underneath).

Everyone I've told so far tells me I should be elated. All I can say is that I'm quietly relieved. I reckon you're all nodding in agreement with me, right? It's so easy for people to tell you how you should feel. I'm still reeling from the speed I've gone from one mode of normality before the diagnosis and the new normality I'm in now.

One thing's for sure, I'm going to take a bit more time to treat myself from now on and not work the pre-diagnosis 50+ hours a week. On the agenda already is a very welcome invitation to lunch and a walk with a girlfriend next week. Guess who's going to be 'working from home' that day wink.

Loma

KurriKurri Fri 04-Jan-13 16:29:07

Hello all (a couple of glasses of wine and it ahs taken me four attempts tot ype hello all - had aproblem with random capitals grin)

hello baskets(z) - you are confusing me with your name changes - I liked the fluffy one, but current one good also. Lovley to see you, hope biopsy goes well.

MAS - all your charity suggestions sound good, - i went through a phase f franitcally giving to BC charities, - I still do give, but have widened my scope again t give to other groups just as worthwhile. I saw a thing on another thread about a charoty for educating women in restrictive countries - making libraries etc i think - I've forgotten the details it sounded good though.

gracie - seems no time since the children broke up, is it first day back today 9seems a bit daft not to wait until Mondau if so) topsy well done on getting scan done, when do your DC go back to school? I have knitters hump (similar to crocheter's claw and Gig's sleeping baby shoulder grin)

Loma - good news from your Doc. - but yes I knwo exactly what you mean - people assume you are instantly bckk to normal, and should be jumping about for joy, - doesn't quite work that way though smile it takes time - you've beent hrough a lot physical and emotional. A bit of R and R sounds just the thing.

We have some sun here today - hooray - Copt I like tulips too, but I forget where I've planted things - so its always a bit of surprise when things appear out of the ground grin

I had lovely lunch (wore trousers, blouse and jumper int he end, as I remembered the hosts house is rather cold! so no leg trimming necessary) it was lovely met some really interesting women, one of them's husband is working on a David Attenborough film - he's an animal expert (the husband that is, though obviously David is too!). Another one was some sort of travelling vicar - she was really nice. Lovely food and good conversation, - and as I say a glass or two - hence the millions of typos that I can't be arsed to correct grin

grin at kurris typos.. Looks like you had fun. Yes today first day back, some schools here went back on Wednesday.

baskets nice to see you again. Hope your biopsy goes well.

Great results loma. I think people just assume you just go back to normal, I'm finding people assume I should be all fine and dandy even though I am still having treatments.

I am at the stage where I just might blow up the xbox and if I hear another 'lol' I may just scream angry

that dores sound like v good news loma but quite understand the feeling that you can't immediately bounce back to 'normal' - take it easy and be kind to yourself.
kk's typos made me laugh - glad you had a jolly lunch !

smee Fri 04-Jan-13 18:16:57

Kurri, are you on the sofa now? That hump needs resting. grin

Loma, am sure it will take a long while before you can trust, but HOORAY for results. Sound good to me. smile smile

Topsy, well done on getting through scan. Dare I ask when you get the results? Does seem a bit extreme to have to have a scan to get away from your chatty DD though. grin

Nowt happening here. Just dragged DS to Sainsburys and back, via a friend's, so he entertained her toddler while we caught up. Not going out, though DH has already fled to the pub with a friend from Oz. Hope you're all having a more exciting Friday than me. Not that it's bad, just I'm a bit bored..

smee Fri 04-Jan-13 18:17:14

Meant to wave to Baskets. Hellooo... smile

topsyturner Fri 04-Jan-13 18:29:02

Evening All (obv not drunk like kk as I managed to type that first time !)

No apt yet for results . Tried phoning Oncs secretary earlier , but no answer . So will try again on Monday
Results will be ready by Tuesday/Wednesday , but there prob won't be a clinic apt for 2/3 weeks knowing my luck !

DD is now having a sleep over at her friends house . It's so quiet in my house , it feels like I have gone deaf grin
Although she has facetimed me a number of times already .
Whose bright idea was it to get her an iPad ???

NedSchneebly Fri 04-Jan-13 19:48:50

Evening lovelies - I am also not drunk, just sh#t at typing. . . wink

Had productive morning in school - finished getting everything ready in new classroom, and looks pretty good! Got cool role play area set up as a doctors surgery/ hospital (doing health topic), tables grouped with new pencils out, display boards backed with colourful paper and nice big carpet area cleared. Want to get some jolly posters etc to put up, but ready for action next week, anyway! Got one or two bits of planning to do before Wednesday, but think am ready as I will ever be.

Had my first counselling session. Was quite hard work, and slightly weird talking and possibly weeping uncontrollably to complete stranger, but he's lovely and very insightful - worked out exactly what sort of person I am within about 20 minutes. shock Said I basically have Post-Traumatic Stress Disorder type thing. He totally understood about being in the "cancer bubble" and that I needed help to get out of it. He said he wanted to see me again before I go back to school, so seeing him on Monday. He said I could ask him any questions I like, but couldn't think of any. Is there anything I ought to know?!

Exhausted and felt slightly light headed afterwards. It gets easier though, right?

topsy definitely keep badgering them to get an appointment. Rubbish if you have to waits weeks to get the results. Hope DD having fun!

smee I took DS round the supermarket and he has selected all sorts of crap that I will have to help him eat. . .

kurri love hobbity legs. I will definitely use that one, although mine are distinctly unhairy after chemo. One blessing I suppose. . .

gig how's French France? Having fun, I hope. Hope shoulder easing.

gracie sending you lots of hugs. Sounds like you're sort of where I am at the moment, in the post treatment slump. Thinking of you lots, lovely x x

Basketz love the new name! I fancy a name change but can never think of a witty and clever one.

loma those results sound good, love. Well done you! x x x

Knackered. Retreating to sofa until DHs beautiful smelling cottage pie comes out of the oven.

Love you all lots x x x x x x x x x x

smee Fri 04-Jan-13 20:06:53

Ned can I be in your class? Sounds fun. Glad to hear first session went so well. He does sound good. Post traumatic stress sounds right, you've had such a lot to get through and no time to think until now. Brilliant that you're being so proactive to sort it. You're doing far better than I did at all of that.

Topsy how's Hnd? Hope ok. Have a quiet-ish night without Dd grin

AtoZandbackagain Fri 04-Jan-13 22:01:19

Hi Can I join please?

I was dx'd with lung cancer in Oct 12. Have had surgery to remove a lung already.

Still feeling wiped out from that operation but due to start chemo next week - and am terrified.

I've read a lot of this previous thread and can readily identify with all the shock, fear, uncertainty etc that people have written about. I still feel traumatised from the diagnosis.

Am seeing NHS psychologist as I'm finding it very difficult to deal with everything now my entire world has been turned upside down.

PenisColada Fri 04-Jan-13 22:11:25

Welcome and of course you can join.

I am new here and can't give much help yet as I am starting my journey but this thread has been a lifeline. I am sure someone will be along shortly with more experience.

When did you have the surgery ?

AtoZandbackagain Fri 04-Jan-13 22:32:51

Hi - thanks

At the end of Nov 12. Big operation and long recovery time - they say 2-3 months is normal.

I just don't feel fir enough for chemo yet but now is the optimum time to have it so I'll have to do what it takes to get through it.

I read that you're waiting for your surgery PenisColada. I found that period before my op was one of the worst times. The trauma of the diagnosis was still very raw. I had absolutely no indication that I had cancer - I was as fit as a fiddle! (or so I thought). They only discovered it while doing tests for a completely different problem. It didn't make sense to me to have to submit to an operation that was going to make me ill for while, when I didn't feel ill in the first place IYSWIM.

I deliberately refused to read anything about cancer of google it or talk about it to non-medics until the last few days. But I felt I wanted to be as prepared as possible for the impending chemo so stupidly consulted Dr Google today and what I've read has terrified me.

It seems to be one step forward (recovering well from the op) and another step back (chemo).

I'm trying to stay very positive here grin

KurriKurri Fri 04-Jan-13 22:34:56

Hi there AtoZ - you are very welcome to join the tread, although of course I'm sorry that you find yourself here. Your DX is very recent so you must still be feeling pretty shell shocked, and I imagine your surgery was a very big thing to go through, - are you recovering well from that?

We've all had various types of cancer, - but I'm sure every one of us (certainly me) would confirm that the first chemo is scary - lots of apprehension because its a step into the unknown - and chemo is a frightening word in itself with all of its conotations.

But once you have had your first cycle, you will have some idea of how it is going to affect you, which days are going to be your bad days, which side effects are going to affect you. Not everyone has every side effect, but remember that there are loads of things to help with the side effects, so always tell them straight away (ring your unit don't wait for next appointment) if you are feeling rough, and they can prescribe you something to help. smile

Take something to read or listen to - it can be a bit time consuming, take in your own favourite drinks or snacks if you don't want hospital food. Also a warm cardi - you can get cold sitting still (I also wore leg and wrist warmers - but I hate being cold!)

Your hospital will give you all the info you need about chemo, and they talk your through it all as they give it. I know it feels very scary now, but honestly you will get quite used to the routine of going in, and be able to take in all the stuff you need to make you as comfy as possible.

I'm sure the psychologist s a good idea, - it is such a shock and as you say turns your life upsidown, treatment is a long haul, but it is doable, honestly it is, and you will be able to mark off each cycle as you have it and begin to see the light at the end of the tunnel smile

Stick around for wine cake inane chatter (me) and handholding smile xx

Ned your therapist sounds really nice and helpful, and your classroom sounds brilliant fun - and you sound as if you are looking forward to getting started smile

Pen - how are things with you today?

Waving to Smee - I have accidentally eaten a lot of crisps, while resting my hump - I blame you! grin

smee Fri 04-Jan-13 22:38:39

Swooping in to plump up the cushions for you AtoZ. Glad you've come to join us. Have they said when you might start chemo? Sounds like it's soon. I'd bet there are others on here who've had similar drugs, so between us we might be able to reassure you. Step away from Dr Google. He should be struck off.

How are you Pen? Keeping busy?

PenisColada Fri 04-Jan-13 22:52:02

I am trying to keep busy. I swing from thinking it will all go swimmingly to convincing myself of the worst.

I am still traumatised after the nose incident.

Less than 2 weeks now to op day. Appt with dr on wed and I have a long list of questions......

AtoZandbackagain Fri 04-Jan-13 23:01:11

Hi
Thank you all very much for your really warm welcome.

Am in tears already but I've been hugely emotional since the dx - which is not like me at all. I too have blubbed over strange psychologists [shame].

I know I should stay away from Dr Google but I'm so anxious as I feel I could be denying myself some vital information that would help my recovery if I didn't look. Daft I know.

Thank you for the chemo tips. I start it on Monday and will be in hospital overnight. It's supposed to be very difficult to tolerate it and about 1/3 of patients drop out through side effects (Dr Google again). The worst thing is that it's actually optional - I was given the choice. The op totally removed the tumour but there may/may not be stray cells left - that's what the chemo would mop up. It's just like having to submit to an operation when I didn't feel ill - now I'm having to submit to heavy duty chemo that may actually be unnecesary.

Hard choices.

One thing I don't understand is that all the chemo blurb says that if you need additional meds for side effects the doctor will prescribe them for you. How? It takes at least a week to get a GP appointment where I live and I can't see the hospital delivering them to me at home if I'm not in a fit state to pick them up, and noone else is available to do it for me. So how exactly am I supposed to receive these additional meds?

People keep telling me that one day the shock will wear off and I will be able to accept what feels like a very alien life to me. But that feels impossible to me right now.

topsyturner Fri 04-Jan-13 23:34:46

Hi AtoZ and welcome .
Re the side effects and drugs to treat them , always go through your oncology department .
GPs aren't any use whilst you are having cancer treatment .
You should be given a phone number for a 24 oncology phone line that you can call with any concerns .

I had horrible sickness with my first round of chemo . I phoned my helpline and they brought me straight in . Hooked me up to a syringe driver , and within an hour I was eating soup !

I have BC with lung secondaries (am in remission at mo , but waiting for latest ct results)

Ask anything , really anything !

topsyturner Fri 04-Jan-13 23:36:56

Just to update you all a little on HND
She does indeed have DCIS , and she is going into hospital on Tuesday for mastectomy and trans flap recon .

I am sure she'll be on after to chat , she's just been running round like a mad woman getting organised !

AtoZandbackagain Fri 04-Jan-13 23:42:14

Thank you Topsy - I'll remember that.

KurriKurri Fri 04-Jan-13 23:48:41

AtoZ - I think if you need something for S/E's your unit will usually prescribe - but if you can't get in ring them, then either they or you can phone your GP and get them to give you a prescript. - you don't need to go in and see the doctor, - most surgeries have a phone system where the GP will phone you back that day, and you just say what the unit have advised you to have.

If you can't get to the surgery to pick up a script, often chemist will deliver to your house, - if you phone up beforehand just so that you know in your mind what you will do should the situation arise, then you'll feel a bit less worried hopefully.

Also because you are in overnight, - there will be a chance for them to sort some things out before you go home - sickness for instance. And tell them that it may be hard for you to pick meds. up - they will help you sort it all out.
If you need meds, something will be worked out so that you get them - you won't be left without.

It is a shock, and its not one that you get over quickly (sorry that's not reassuring, but maybe it is reassuring to know that you are totally normal in finding it a struggle, I spent about 3 months bursting into tears smile), and there's all sorts of stages of emotion you go through, cancer is a bastard, there's no denying it, it messes with your body and your mind.

But there are people out there to help you, MacMillan have good helplines and the nurses are brilliant at talking stuff through, do you have specialist nurse who you can talk to? Or is there a cancer support centre anywhere near you? - they are often very good.

Essentially they take the emotional effects of cancer as seriously as the physical and will try to help you through it all.

Don't be afraid to ask for help, - often people want to help but don't know how to, so if you have any neighbours who might be willing to pick up your script for you, or get a bit of shopping or anything that would help, they would probably be glad to do it.

How are you finding the psychologist - is that helping you get your head around it all?

And stay away from Dr Googlesmile xx

Pen it's good you are keeping busy - that's the only way to make the time go faster IME, and good that you have a list of questions for the docs. How long do you have to stay in hospital after your op?

overthemill Fri 04-Jan-13 23:55:40

ho all, waves. not really up to much still, just recovering from 11th chemo and struggling. I more to go this wednesday. amazing

AtoZ - if you will need any meds the hospital give them to you to take home with you (they will have a good idea what you might need). They call them TTAs - you just need to make sure that each time you go that you tell them what your side effects are and they can adjust meds. They have lots to choose from and it is not being a trouble to them. My advice is make sure you call them in between sessions if you need help with nausea. good luck, it is tough but the people on here saved my life

KurriKurri Fri 04-Jan-13 23:55:47

Loads of luck HND for your op. - hope it all goes well for you.

AtoZ - topsy is right GPs tend not to know a great deal about cancer treatments (Partly because it changes all the time) your unit is the place to call, but they will send a script via your surgery if you can't get in and it's something you don't need to actually go in for.

If you were feeling very ill and needed to go in, transport of some description will be arranged for you. Ask them all these things when you are in next week, so you are easy in your mind about it, - and get all the phone numbers written down together (they probably will be there for you in your chem bumf) If its after unit hours and you need advice ring the cancer ward and you'll be able to speak to an onc.

KurriKurri Fri 04-Jan-13 23:56:57

hey OTM smile - how are you doing? was thinking about you just the other day. Are things any easier now?

overthemill Fri 04-Jan-13 23:57:00

ooh, hi kurri, x posted!

KurriKurri Fri 04-Jan-13 23:59:15

One more left - well done you, nearly there now smile sorry you are still feeling rough though sad

smee Sat 05-Jan-13 00:17:58

Ooh yes, OTM, how wonderful to be so close to the end. You are doing amazingly. I only had 6 sessions! You must be so, so tired. 2013 will see you back to full health and happiness am sure. Definitely your turn. smile

AtoZ, the others have already said lots, but they're right, as the unit will more than look after you and should hurl anything needed to deter side effects at you too. GP will just be informed what you have, but go straight to unit. Chemo's a massive lottery, so you can't know until you start which (if any!) side effects will hit you and you might be okay in lots of ways. Most of us have found we are able to carry on, with blips admittedly, but still life still honestly does goes on during chemo. Do ask anything here though, as doubtless one of us will have thought/ felt similar or have a view. This place is genuinely a life line. I'm nearly 3 years post diagnosis (BC) and still here. Oh and I am a complete hypocrite, as was a complete Google addict when I was diagnosed. smile

Topsy, thanks for update on HND. I thought op must be soon. Please give her the hugest hug and tell her we'll store fbs for her on her return. Tell her too that a friend had similar reconstruction last year and is so delighted by it that she now flashes her breast to all comers. smile

Pen, two weeks must seem an age, but it will go quickly am sure now the holidays are over. Do you get results from nose trauma at your appt? confused

Night all. Off out tomorrow, but will nip in at end of day if I can. Have a great Saturday. x smile

AtoZandbackagain Sat 05-Jan-13 00:41:51

Thank you again - all of you. You've put my mind at rest re getting additional meds. This is all information about the practicalities that they didn't give me before, so it's really useful to hear from people who've been through the process and can answer these questions.

I'm doing 4 x VP which I'm told is bad stuff. DS is very concerned (and frightened) but I've told him that they haven't invested in very expensive scans and expensive surgery for me only to kill me off with dodgy chemo [black humour - sorry].

I have prepared by buying boiled sweets, ice cube containers, ginger biscuits, a thermometer, some jars of baby food, a day-by-day pill container and by making lots of mashed potato and meals, which I've frozen.

Can't really say if Psych is helping as my last appointment was before my op and the issues I wanted to talk about then (surviving the op) are very different to the issues that are troubling me now (i.e. chemo and a very empty life due to total inability to plan for the future). I think I'm moving from pre-op severe anxiety towards post-op depression - but I can recognise that and am determined not to let it get me.

Hearing about OTM's 11th chemo makes me feel like a wuss grin

Roll on April when this will be over and we can all enjoy the summer.

Gigondas Sat 05-Jan-13 07:31:36

Yay at no 11 ATM smile

Atoz - I would stay away from google as can only imagine what kind of stuff is on there. I had heavy duty inpatient chemo too (have sarcoma) - and can echo your fears but it was ok. Being inpatient means they can tweak it on the spot. My advice is to be up front about whatever you feel as they can act on the spot and hit the side effects. Aso if you have been pregnant then chemo will be no shock Except you can get drugged.

Stick with the therapy- it took me a awhile (and won't lie that still have my moments) to get my head round it but it does happen. Mindfulness (meditation and art of living in day) helps. I do sympathise as I was the original little miss plan ahead.

Home now so lots of cheese for fbs. Now enjoying being home for weekend.

welcome AtoZ - everyone has mentioned everything but yes,go through onc. for everything side effecty- they;ll know what's what. I'm having oral chemotherapy for lung mets following bc three years ago..complete shock as had no symptoms apart from a pain in my chest which led to chest xray,chest clinic and ct scan to diagnose...still getting my head around it. I was thinking maybe it was tb or pleurisy, cancer seemed so unlikely to me as had v good original bc prognosis.
Am sending good wishes for op to HND and waving to OTM
Ned you are doing just brilliantly and am glad the counselling is going well...
Waving to topsy smee kk gracie and pen
Have to run the clipper over dh's hair.

oh and welcome home gig !

Gigondas Sat 05-Jan-13 10:15:07

You are clearly better at me with clippers as dh won't let me near him.

Re charities, agree with all that has Been said and going for a general charity better.

I am quite nifty with the clippers- it's quite good fun-though T won't let anyone near him with them,including proper hairdresser... my hairdresser said best way with clippers is to go both ways...

jchocchip Sat 05-Jan-13 16:28:50

Must get the clippers out when I get home dh doesn't have much left on top so just a short back and sides...
Going out to get curry for tea once it opens, mmm.
On my phone so not good at replying to your messages. Hello to az bugger you have had to take this road, such a shock esp if you were feeling well before your op.
Have been negotiating with new boss and they are going to match my current salary. Feel quite pleased with myself as I could easily have said yes to taking the drop! Formal offer once refs are through then start mid Feb... Going to have to invest in new work clothes - I can get away with jeans most days in my current position! Actually side effect of bc is that I am less risk averse and more likely to 'go for it'

amberlight Sat 05-Jan-13 16:57:55

'evening all smile
AtoZ, welcome from me too! I'm two years post diagnosis of breast cancer now and had extensive chemo plus plenty of radiotherapy and a lumpectomy etc. I found chemo was doable (mostly because I'm quite mad so probably didn't notice that I was supposed to be having problems grin blush ). I even worked through mine (see, told you I was mad).
These lovely people propped me up. Now it's just six monthly checkups (eek) for another four years.
Good advice to stay away from Dr Google - unless you are a researcher and/or know all the terminology for the very latest research findings, you might as well be reading an ASDA till receipt.
Large hugs to HND
And for anyone else in need of one.
Never tried clippers. Dangerous enough with blunt ended scissors...
PS I'm alright after the exhausting couple of weeks, I think.

Copthallresident Sat 05-Jan-13 17:19:25

AtoZ It is indeed a bugger, sorry that you are here. I empathise with your mixed feelings about chemo, it is counter intuitive to choose to be poisoned but in the end after a lot of anger about the choice I faced I just felt I had to take every chance offered, though it improved my odds by a pathetic margin, given how sick it was going to make me it just wasn't good enough! I am 11 years on, who knows if it made the difference?

Gigs is right, I went through the treatment with a group of friends and we often likened it to pregnancy.

Lots of good tips below. I would just add that I had to be careful about what I eat before a treatment because my body would afterwards be repulsed by just the sight of that food , obviously assuming it was the culprit!! In the end it responded in the same way to the sight of the hospital as well. You can see it had a point. Anyway it was a bit annoying to find that I couldn't stand the sight of something that was previously a treat, it was a year before I could eat Asparagus again!

I also found it useful to look ahead and plan for the future, have things to look forward to . Both short term, I would plan treats for my "good week", and longer term for when I was healthy, things like standing on a mountain, my eldest starting secondary school etc. I also used them for visualisation at night to crowd out the bad 4am thoughts.

It is good to get the first chemo out of the way and know exactly how you react. They are good at reacting to how your body reacts, and whatever the side effect chances are one of us will have experienced it. I am your expert on low white blood cell counts and all related anxiety (which was clearly totally unfounded)

Hi to atoz but sorry you find yourself here. Everyone has given you great advice. I agree chemo is a bit like pregnancy - I had hyperemesis when pregnant and was VERY sick with chemo but onc tweaked my anti-sickness meds and gave me a syringe driver and whilst it certainly wasn't pleasant it was doable.

Welcome home gigs. Hope you had a good time in French France.

Good luck hnd for your op. Hope it all goes well. We will be thinking of you.

Hope everyone ok. Don't want to miss anyone out so waves to you all. otm wow 11 done, the end is in sight.

invicta Sat 05-Jan-13 21:25:26

Welcome ATOZ.

AtoZandbackagain Sat 05-Jan-13 23:22:38

Thank you all for taking the time to share your thoughts and experiences with me. I can see that pregnancy is a good analogy as everyone has their own unique experience.

Yes, the improved odds that chemo may deliver are tiny, so I agree it's very difficult to subject yourself to this harsh regime. But I also agree that I have to take that opportunity.

My big problem is looking beyond chemo. I don't want to sound gloomy but there's not a lot left of my 'old' life. Since my dx I no longer work (retired). The retirement I had planned with lot of travelling will not be possible (fitness and inability to get health insurance). I won't be able to get another job (too unwell and who'd employ me with my sickness record?). My house desperately needs renovating -something that I had planned to start when I retired (but don't know when I can schedule workmen etc because of my own treatment schedule).

I lost my darling elderly cat just before my operation and I'll never be able to have any more pets - which I find very, very difficult to deal with, as it's my pets that have always kept me going in the past. I burst into tears constantly and involuntarily, but there's no emotion behind the tears - they just happen and make me look stupid when I'm in a public place. I've tried ADs but they just make me feel ill. I can recognise that I'm starting to get very depressed. I think just too much has happened to me in a very short time and it's taking a lot of time to make sense of it all.

I'm worried that I'm just not dealing with this mentally as well as feeeling very damaged and vulnerable post-op.

That's quite a list of woes from me - sorry.

BasketzatDawn Sun 06-Jan-13 00:56:59

Hello A2Z, I didn't want to read and run but tis past my bedtime. I loiter around this thread though don't have cancer, nor have I had. Ignore me if I've got it wrong.

Just reading your last post makes me wonder if you are expecting too much too soon. You've jsut had very major surgery, aftera huge shock diagnosis (you say earlier it was unexpected as you din't have symptoms) - also you've had the 'change' of retiring, and your pet dying - alone they are unsettling life changes, but everything together is huge. Utterly massive in fact. And now you are facing chemo iminently. 'Dealing with it mentally' is a huge task and maybe you just have to go with the flow, which at times will be more like a 'crawl'. What I'm saying is maybe it's too soon for that, and meantimne oyu just need to live the new and unwanted life, and worry about mental stuff as and when. See how the chemo goes - a few cycles in and you will have a clearer idea how you feel and which days are good and bad. Maybe you will feel well enough in a few months to sort the house, or begin that ask. perhaps though ta the moment it's enough just to focus on getting well physically and tackling the chemo.

BasketzatDawn Sun 06-Jan-13 01:17:11

oops, i meant 'begin that'task'. I have a great fear of doing long posts that then get lost in the MN ether - if that happene d I often don't redo, and my words of wisdom are lost forever ... so i type fast and carelesslysmile.

Just rereading your last post, and wonder if you KNOW you can't get travel insurance? Yes, maybe while you on chemo that would be hard, but you also say earlier they think the surgery has got rid of all the tumour, so once your chemo is behind you things will look different. I know you'd have only the one lung, but if you are otherwise well then you could possibly still travel and be insured. When you are ready, you might get advice frm some fo the cancer charities about insurance options. People do travel and get insurance after cancer. Others will know more than me on this.

I do see what you mean about your plans being utterly changed with this dx. It's like a sort of grieving process for the old life, the one you thought you had ahead of you if you hadn't become ill. And grieving does take time. It'sa constant process, some of it will ahppen without any effort from you, just by time passing and getting through the next few months of treatment. Sometimes help is needed - you can probably find someone who will discuss all this with you at the hospital, eg a specialist nurse or someone in the chemo unit. the 'new normal' is a term used here before, and gradually you will discover this - it won't be the life you planned for, it will be a different one, but some elements of your old one will, I am sure, be possible for you. I hope so anyway.

I hope this is helpful. I do need to sleep now. Back tomorrow probably, and others will be too. Much love to you, A2Z, and to everyone else too. xxx

jchocchip Sun 06-Jan-13 08:45:41

atoz so sorry to hear about your cat. And work and everything just seems like you have too much on your plate right now. Not surprised you are depressed - a normal reaction in the circumstances. But, although you find it hard to believe right now, you will get through the treatment and find you are able to get enjoyment from life again. 11 years ago after a period of mental ill health I was told I would never work again. But, I started small (with a paper round) and built up my confidence to talk to people and function on a day to day level then went temping and repaired my cv and finally got a permanent job. At the moment you say you can never have another pet, can't travel or get a job but once your chemo is done, reassess and concentrate on what you can do. Oue local cat shelter always needs foster carers for cats with kittens and volunteers to spend time with cats at the shelter. And what will be the bar to travel, insurance may sort eventually, once you feel well enough it may not be the bar you think it is. (I went away without insurance while on sick leave for bc - but that was to family and I thought I would take the risk of being able to get home...)

Sorry I've gone on a bit.
Hope everyone had a good night (or at least persuaded the power rangers to let them doze on the sofa!)

Time for a brew Mum says. She is up and porridge eaten so time for second coffee and toast and marmalade...

NedSchneebly Sun 06-Jan-13 08:56:35

What sense you speak Basketz smile

Hi AtoZ but sorry that you find yourself here. I think you will feel "better" once you have the first chemo under your belt. I had chemo for BC last year and the sense of anticipation and fear of the unknown was so much worse than the actual reality. Yes, I still felt like shit, but it wasn't as awful as I had built it up in my head.

Also, I know that I am grieving for my old life and I think you need time to get your head around everything that has happened to you. DX on its own is one thing, but coupled with everything else you have been through is too much for you to handle all in one go. Yes, your life will be different after this, but can still be full of love, laughs and fulfillment - it will just take time. Perhaps you need to focus on one thing - getting through the first chemo, for example - and put the other stuff, like redecorating, in a box in your brain for now. I'm not saying don't deal with the way you feel about things, but I think you are being too hard on yourself if you try to juggle everything and come to terms with everything all in one go. It will take time, love, so give yourself that time and take things one step at a time. Stick with us, because we've all been where you are in some form or another and can hold your hand and help you through it. Thinking of you lots x x x

It was one year yesterday since my diagnosis. Bit of a landmark?

Waves to all you lovelies. Hope everyone has nice plans for today? Taking DS to meet friend at soft play - boys run around like mad things, mummies gossip. Excellent smile

NedSchneebly Sun 06-Jan-13 08:58:19

X post jchoc meant to say well done on the job front - great news that they'll match your salary in new position! You are obviously too valuable to risk losing smile

Copthallresident Sun 06-Jan-13 09:16:04

AtoZ Of course you are depressed, you wouldn't be human if you weren't, with all that has happened to you. Plus post operative depression is a recognised side effect. Please don't feel you have to be "positive". It can be a tyrrany imposed on those of us dealing with Cancer but there isn't a shred of evidence to prove that it makes a difference, being sad, angry , in denial are all natural and healthy reactions. Barbara ehrenreich wrote about this after she had bc mobile.alternet.org/alternet/#!/entry/the-relentless-promotion-of-positive-thinking-has-undermined-america,508811e0d7fc7b56702e1aa1 I would let your care team know how you are feeling and press for more counselling if you feel it would help, especially as chemo can make you depressed .

In terms of your worries about travel, I travelled abroad very soon after chemo, our insurers didn't quibble, but we did have existing cover. I think that once you are officially in remission they actually can't discriminate but you should check that out. And you can travel within the nhs , there's the uk to explore?

I also wonder why you can't have another pet? If it's the fear of infection, then I think your main worry is humans rather than cats! Having a pet is proven to make you more healthy, although goon dog challenges that a bit what with the reeking havoc with my herbaceous border playing football with a hedgehog incident...

You will find once you are having chemo that it is the little things that matter, normal becomes a treat. So make sure you plan little treats to spoil yourself, nothing heroic, but indulge yourself, you deserve it.

if you can get another pet AtoZ then that would I'm sure be brilliant therapy - I spend much time burying my face in my cats fur and taking huge comfort in her affection- from an infection point of view (and speaking as one having chemo) I can see no problem.
I also wonder if you've thought of Mindfulness meditation as a mens of focussing on the present moment,rather than the past or future - it helped me when struggling with anxiety. I'm sure that gig will agree. If you are interested I can post some info. (don't want to shove it at you if it's not your thing- it was very much not mine until I tried it)
Hooray,belatedly for jane's job !!
Am going to start work again tomorrow- several projects on my desk,feel a bit nervous as usual- any gap away from work makes me feel like that !

amberlight Sun 06-Jan-13 10:25:56

I also think another pet is a v good idea. I have a dog, cat and horse and all three were fantastic to share life with during chemo and everything else. If it's a decent chemo regime, you can have at least one workable week in three, which means you can still have holidays of some sort. I took a lot of short breaks, and they even moved a chemo so I could have a slightly longer one. There are also specialist insurers who will cover you for travel, and there are holiday companies that specialise in providing do-able holidays for people with health needs. It's a lot to think about, yes, but it's possible.
Definitely need a large unmumsnetty hug and a virtual brew too

And some for anyone else that's in need.

jchocchip Sun 06-Jan-13 10:40:05

Hurray for ned's one year landmark. Hope you had a wine to celebrate smile. Soft play a good plan. Mine: sed to love that and ITS likrd that they could run off loads of bounce with minimal input smile
You will enjoy your work once you have started mas Good to have a break, though, How are your hands?
Must pack and make early dinner as driving home today and don't like driving in the dark...
Dd1 has all my batik kit now, she is back at college tomorrow.

jchocchip Sun 06-Jan-13 10:41:16

Duh - excuse the typos - on phone!

jchocchip Sun 06-Jan-13 10:42:51

Waves to amber snaffles a brew

topsyturner Sun 06-Jan-13 10:45:12

Morning All

AtoZ everyone else has spoken lots of sense .
And I think the feeling that (sorry forgot who said this and on phone so can't scroll back) we have to be positive all the time adds more pressure .

We do need to mourn what we thought we were going to have and do with our lives .
Then we can get on with our new lives .

I was given a terminal diagnosis 18 months ago .
I am presently in remission , but that could change at any point .
But I have decided to look at my cancer as any other chronic illness that people have to live with (diabetes etc)

You are at a very early stage still . And are still coming to terms with everything .
And ontop of it all you've got life changes like retirement and loss of a pet too .

Be kind to yourself , and give yourself a bit of time to adjust before you write yourself off !

Jane that's brilliant that the new employers will match your salary . Well done you !

Not sleeping too well these days . Combination of late nights whilst in Christmas mode , and not being in a routine probably . And also (photos on our Facebook group) truly truly mental hair !!!

I have woken up this morning looking like a cross between Rod Stewart and Spock !!!
Definitely a hat day today grin

amberlight Sun 06-Jan-13 11:11:26

Ooo yes, love the hair, Topsy :-D And thank you for proving that I am right to be wary of straighteners, too.

topsyturner Sun 06-Jan-13 12:04:45

Glad others learn from my mistakes Amber grin

AtoZandbackagain Sun 06-Jan-13 12:35:28

Well I woke up feeling much brighter than I was last night when I posted by long whinge. Thank you everyone who replied with encouragement and understanding. I really needed that.

I recognise that what I have is post-op blues. It's supposed to be very common in heart patients and my heart was slightly damaged in removing the tumour. So this all makes to me. I suppose recognising that you are depresssed is much better than being in denial and plodding on - at least I'm getting help.

Strange thing is that I didn't even like elements of my 'old life'. Detested my job and couldn't wait to escape - just not in these circumstances. Nowadays I feel like I'm living someone else's very empty life. Just going with the flow is what I've been doing since suspected dx in Sep so carrying on with it for a few more months will be OK. But afterwards I need to start looking for new interests and things to do.

I've tried Mindfulness but it's not for me at present. The way my treatment is going I have started off as a fit person and been damaged by a major op and will be further damaged (hopefully temporarily) by the chemo. Mindfulness just reminds of how well I am right now and how much of that health I shall be losing through future treatment. Perhaps it will be a good therapy post chemo. I used self-hypnosis to combat pre-op anxiety which was quite effective but I'm no longer anxious - just very teary.

Getting another pet is a huge moral dilema for me. I would dearly love to have another cat and it would definitely give me a purpose in life again but to me a pet has always been 'for life'. I could not bear to let down an animal if I became to unwell to look after it and it had to be rehomed. I would feel I had failed it through my own selfishness at taking on an animal knowing I may not be able to offer it a home for life. DS says I'm being ridiculous and that offering a home to one even if it's not for life is better than leaving a rescue cat to languish in a shelter He says he may be able to look after it in the future if he had to - unlikely I think. My best friend suggested getting an elderly cat but I've been through the illness and loss of my own cat recently and don't want to face that again for many many years. Maybe fostering is an option. I realise I've written a lot about pets here but I've always had animals throughout my life and to me a home is not a home without animals around, so they're important to me.

Travelling abroad is really not that important. There's plenty of the UK I have yet to visit. I just miss the sun - but we all do after these recent dismal summers. I don't actually miss my old job but I had planned to get some part-time work in my retirement, however since my dx I'm adamant that I never want to work in paid employment ever again. Can't really explain why I feel this way.

Anyway, thank you everyone. Your experiences are really helping me. Tomorrow is chemo Day One.

Best wishes to everyone who is having treament, appointments or recovering from procedures nest week.

forgot to say- well done ned -if that's appropriate for 1 yr since dx - you're doing so brilliantly- am excited by all your classroom organising.

topsy the terminal bit you wrote, did they say that to you ? does it mean that secondaries are terminal ? I know incurable but terminal sounds so,well,final grin I keep wanting to ask how long I might live (obv. no one can know) and when I google (naughtily) it says lung mets have a poor outlook- onc. said 2 years....

KurriKurri Sun 06-Jan-13 12:55:43

Afternoon all smile

Just catching up with the posts. AtoZ -everyone has spoken a lot of sense, and there's not much I can add, - you are bound to feel very down my dear, - I sympathise enormously because i was very much the same in the first 3-4 months after DX, and like you I couldn't think about a future, and didn't dare to plan anything.
Sometimes I think we sort of protect ourselves by thinking nothing will ever be good again, we will never be able to do anything again etc. - that's very natural, - preparing for the worst so that we don't have expectations to be dashed.
I can only say it is a long haul - we get used to illnesses that can be treated in a short space of time and then we are better, Obviously cancer doesn't work that way, it takes time, and for that time some aspects of your life will be to some extent on hold. But not all aspects.
Once you start your chemo you wil be able to see when your good days are and maybe plan small things to do that make you happy and relaxed. On the bad days, don't fight it, go with the flow and look forward to the good days, knowing they will come.
Pets are really one of the best therapies IMO, - and it is very sad you lost your cat so recently, but don't rule a new pet out yet, - it's certainly a possibility.

Its a very tough place you are in now, - a limbo place, waiting for treatments, not knowing what to expect. Be very kind to yourself, treat yourself, do things you enjoy, be 'selfish', you will reach a better place - I can guarantee it smile Hang in there, keep posting, and let us support you as best we can smile oh and <<hugs>> and xx and wine and cake.

topsy - don't talk to me about hair - mine looks like a cartoon electrocuted person atm. I am getting through huge quantities of wax trying to keep it looking vaguely sensible. Hats all round grin

Went to DS's for a birthday tea yesterday which was lovely, his PIL were there too and they are really nice people so it was a jolly occasion. DDIL had made a lovely buffet, and DD made a cake (carrot with cream cheese frosting for the cake fans who like to know these things grin)

MAS - I wish DH would let me clip his hair, - he does his own and it looks very 'unusual', plus he leaves little heaps of hair all over the house as he can't seem to stay in one place while he does it hmm

amber - I didn't know you had a horse, - how brilliant, you lucky old thing smile

Love to all, and waving to everyone xx

Copthallresident Sun 06-Jan-13 13:34:56

Ugh! Another grey day, Off out to take down the Christmas lights. I may be some time. I always struggle a bit putting the deccies away. I still haven't enough confidence in life to be sure of being here to get them out again in a years time, still I've managed to do it 11 times since treatment so perhaps I need to put those thoughts into the box with the new addition to the front garden light display, the Christmas Seal hmm

AtoZ Glad you are feeling brighter and good luck for tomorrow. I hope that you are one of the lucky ones who have no problems. When I had my chemo I was given a lovely shiny pink pamphlet full of positive stories, a promotional brochure for Chemo!!! Such people must exist! The Consultant handed it to me with a straight face hmm.

Don't worry that you are going on about pets, you are amongst the like minded! When goon dog, hyperactive pain though he is, goes to the kennels before we go on holiday the whole family is bereft and the house feels very empty (given we all have to be constantly watching out for his talent for tripping you up). I really would put aside your worries about a cat's long term future, as you say offering a home and love now is the important thing. When we went to live abroad we had to rehome our cat and he was so happy there that I didn't have the heart to uproot him back to our family. He died a month or so ago having had a lovely long life in both homes, after a terrible start born feral on a building site. Now we have psycho cat, who smells and demands attention with menaces and takes great pleasure in ambushing goon dog. Whenever I take him to the vets I get told off about all the scratch marks on his face but what can I do??!! Do they do self defence classes for dogs?

Ned Yeah, a year! I seem to remember Dr Geek dusting off some nice new statistics for me at a year so I think it is a landmark.

Topsy Sleep from being my default state in the past, seems to have become a luxury in the last couple of years. Menopause apparently, means you are short of melatonin. All the doctor can offer is sleeping pills which go unused at the back of my bra drawer and advice on a routine of going to bed early in a cool room with no stimulation from TV or reading, no alcohol, perhaps a warm drink of Ovaltine? shock Not ready for that yet!!! So I stay tired and lie awake worrying about stupid things at 4 am....................

PenisColada Sun 06-Jan-13 13:50:29

Phew thanks for the link. I don't know what happened the thread just went and I had not hidden it.

Made me realise what a lifeline this thread is. Thanks for being so wonderful. I am in the middle of a busy day will be back later.

PenisColada Sun 06-Jan-13 13:53:22

Aaarrggghh - the thread is still not showing up for me unless I go through that link. Also not in my watch list . Sob.

topsyturner Sun 06-Jan-13 14:02:04

Mas I was told by Onc that lung mets meant 2/3 years .
But then she did go on to say that it could also be 30/40 years .
Basically they don't know .
Treatments are getting better and better on an almost daily basis . And it also depends on how your body and your cancer reacts to the treatments .

Onc said there is no reason why I couldn't carry on indefinitely , just getting treatment as and when necessary .

PenisColada Sun 06-Jan-13 14:13:58

Phew sorted it. I had hidden

smee Sun 06-Jan-13 14:15:24

Ned, a whole year! Wow, that's definitely one to celebrate. Put 2012 down and pick up 2013. Won't be hard for it to be a better year. smile

AtoZ, what you say sounds more than sane and sensible. After all, why wouldn't you feel low and like there's no point in planning lovely things such as a new pet or travel. I'd bet we'd all admit to having planned our own funerals, looked at our DC and sobbed quietly, loudly and mourned ourselves in lots of ways. Thing is though that you do get bored of that after a while. That isn't me being dismissive, as I am still terrified by cancer, but it's just that the further you go post diagnosis, the more you start to see that cancer is now part of your life, but that life goes on. It's like an exhausting conveyor belt or something which you have no choice but to stay on as best you can.

We're all different, but I honestly found the first few months the hardest. I'd say all you can do right now is take it day by day. You don't need to give up hopes of cats/ holidays/ whatever life you might have planned before, as you don't yet know what's next. Yes it could be awful, but equally they're putting you through all of this treatment because there's a point and a strong chance of a good outcome. V.hard to accept that I found, but it's true, and there will come a point when you're blasted by all the treatment and you look ahead and think well maybe, just maybe I do have a full life ahead. Might seem like a distant dream, but it's why you had that op and it's why you're having chemo, so it's got to be there somewhere.

With chemo, once you've done one you'll know how you're hit. I found there were always a few days at a certain point in the cycle when I felt okay enough to do things. Mine happened to be through the school summer holidays which was a sod, but I even went camping and swam in the sea during one cycle. Felt insane at the time, but it was v.life affirming! Are you having Rads too? Can't remember if you said so or not.

On travel insurance, you can get it still though obviously you wouldn't want to go v.far when having chemo and you can't go far if you have rads as you have to be at the hospital pretty much daily. What I've done since treatment finished is to pay for single trip insurance. They give you a choice, so you can opt to cover everything except cancer. That's what I've done up to now, as we're only ever away for a week or so and cancer's not going to make me collapse as if it comes