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Vagina problems really beginning to get me down.

(64 Posts)
Tittch Sun 02-Sep-12 16:04:41

Have name changed for this as find the whole situation so acutely embarrassing.
The last 9 months I have barely been able to have penetrative sex more than 4 times. Something is chronically wrong with my fanny but god only knows what. I have episodes (basically most of the time) of sore itchy vulva pain, with red raw skin (between inner and outer labia) and at the vagina entrance. Sometimes i want to scream the itching is so bad, sometimes it wakes me at night. Sometimes it goes. Sometimes it is more of a painful, scratchy feeling. Eurghh. I am sorry for TMI...
I live abroad and have been regularly seeing my gynaecologist who is very sympathetic. But I wonder if the practise used in the country am currently living in is less advanced than it could be. She constantly takes swabs, and here is the embarrassing bit, constantly finds an overgrowth of enterococcus faecalis. Basically: poo.

I don't think she believes me that I am not constantly having dodgy anal-then-vaginal sex and/or wiping back to front. OBVIOUSLY i do neither.
I have NOT A CLUE why i have this problem. And she seems not to know how to treat me.

I have tried all the obvious things like cotton only underwear, no g strings, no soap etc etc etc. And I did not have a complicated delivery when my son was born (I know this can lead to similar problems sometimes)

I think I may have had a similar problem as a young child. I certainly had some kind of vaginitis.

The whole issue is really beginning to damage my self confidence, my confidence in my marriage and my whole well being. I guess I am hoping someone somewhere may be able to help me with some advice. or maybe even someone I could see about it in the UK. I feel really really low about it today. Thank you, I am my wit's end. sad

Elibean Sun 02-Sep-12 16:20:50

Poor you, it sounds upsetting as well as painful.....having had occasional problems, I feel for you.

Have you been tested for lichen sclerosis? Don't know about it personally, but a friend's dd has it....and was misdiagnosed for ages.

Hope someone else comes along with more thoughts.

daffodillady Sun 02-Sep-12 16:28:13

Eli that was going to be my suggestion. I suffered and was undiagnosed by GPs and gynaecologists, it was eventually a skin specialist who realised what the problem was. I was prescribed a cream which soothes the area during a flare up but in the meanwhile zinc and castor oil cream would help.

Tittch Sun 02-Sep-12 16:38:41

Thank you both. I had seen LS mentioned online but thought it would be obvious to me and/or gynaecologist. I didn't realise it was so hard to diagnose. Daffodillady - what were your symptoms? I have pain at the vagina entrance too - that isn't the same thing is it?

daffodillady Sun 02-Sep-12 16:41:47

Symptoms? Itching, agonising soreness, screaming when I peed! Sex was just impossible, the pain during and afterwards was just unbearable. But the zinc and CO cream did help as a barrier as it is totally waterproof. Have you checked in a mirror? If your skin looks white (as mine did) this is a symptom but as it is quite rare not many medics recognise it.

Tittch Sun 02-Sep-12 17:11:35

Skin red raw not white... Patches of raw, inflamed skin.
You poor thing that sounds horrendous. I hope you have things under control now..

If there is persistently faecal cells on the swab, have they checked that there is definitely no kind of fistula at all?

I agree the lichen sclerosis also springs to mind. As does vulvodynia but that's no help really as it is more a description than a useful diagnosis.

The other suggestion, and please don't be offended, any chance of threadworms? They can cause awful vaginal irritation and travel from the bowel to the vagina at night (they don't live in the vagina but can pop over to visit)

jelliebelly Sun 02-Sep-12 17:24:17

Could it be thrush? Untreated this can get really bad - the only thing that sorted it for me was a change of diet/ supplements following visit to a dietician.

Tittch Sun 02-Sep-12 17:27:22

They haven't checked for a fistula, but it sounds as if they should.

Worms: not offended, I have 2 dogs so they actually treated me for it in case. It made no difference. However, I had had some anal itching in the past.
All so embarrassing.

My understanding was that (along with many other bacteria) enterococcus faecalis exists in the vagina, but an overgrowth is when you get irritation. So could it be, instead of a migration of the cells, a misbalance of the vaginal PH in general that is causing the overgrowth?
I still do not understand how that causes red raw skin and inflammation.

Thank you for taking the time to help me. I could never talk to so openly to my closest friends (wonderful though they are) I find the whole situation excruciatingly embarrassing...

bamboobutton Sun 02-Sep-12 17:27:23

i had very similar symptoms, had a biopsy and was diagnosed as having eczema, joy! steroid cream seems to sort any flare ups.

get thee to the GP!

Tittch Sun 02-Sep-12 17:39:29

thanks bamboo - did you have bacteria present too, or just sore, inflamed skin? No one has ever mentioned a biopsy to me before. Sounds like i need to push much harder for more investigation.

NormaStanleyFletcher Sun 02-Sep-12 17:43:47

The first thing I thought was fistula.

Hope you get it sorted.

What age are you? Are you itchy anywhere else? Are you well otherwise?

Here's what sprung to my mind:
Thrush - should be easily diagnosed with swab
Lichen scleroris as others have said. NOT so easy to diagnose...
Atrophic vaginitis - if you are menopausal?
YY to worms
Contact dermatitis to washing powder/soap. Don't overwash; once a day is enough, soapy hand between your legs is fine, but don't every wash inside.

I was under the impression that enterococcus faecalis is more of a contamination rather than an infection?

I'd try a few days of a steroid cream ie Betnovate or Elocon or similar as a therapeutic trial. If you feel better after 3-5 days then it is likely to be LS or vaginitis or dermatitis/eczema.

Or try a few days of as little washing as possible wink with Sudocrem or other zinc based cream slathered on several times daily - if that works, it's most likely dermatitis/eczema due to overwashing. Surprisingly common, particular in women with a problem in that department.

Tittch Sun 02-Sep-12 17:58:06

Pacific. 31. Had first baby last year. I have back problems due damage to my sacrum during my very quick delivery. Health in general - OK... This vaginal problem, combined with back is definitely messing up my sleep a bit. And I am underweight, bmi about 17.5. But that is mainly genetic, and I have been stressed recently. Not had PND or anything like that though.

So if, by process of elimination, neither the steroid cream, nor the sudocrem make any difference - what would be my next port of call?

Again - thank you thank you.

Spookey80 Sun 02-Sep-12 18:00:07

I too have suffered from various similar complaints to you. Luckily I have a fab GP and she eventually diagnosed lichen sclerosis, so now steroid cream for flare ups and regular moisturiser seems to keep on top of things. She has told met will prob never go away.
But I can also empathise with you as before this I would be woken in the night with the agony of itching. I would be crying. I really feel for you.
A few things I have picked up talking to thers about this are.,.you may need antibiotics, and this may be at least worth a try? As its so bad for you.
Also, try taking a zinc supplement, as someone told me that they were tested for lack of zinc, and then when they started taking supplements, there vaginal itching cleared up?
Lastly if the gynae doc is not finding the prob, maybe you need to see someone else who is more sympathetic, as this most be awful for you to live with.

Tittch Sun 02-Sep-12 18:02:07

in ref to enterococcus faecalis - all I know is that my only symptoms are visual (red raw skin) and itching/pain - and then STRONG growth of EF shown on 4 different swab tests done over the last few months.

Nothing else shows up.

coldfuchsia Sun 02-Sep-12 18:05:09

I also had similar symptoms a while ago. It was a candidia albans yeast skin infection, it went from the opening of my vagina, to the folds of skin of the labia, right up to my groin. It was absolutely torturous in terms of itching and pain. I had cream to kill the infection and steroid cream. The only thing that stopped the itching and gave some kind of relief to the feeling of painful dryness was freezing cold plain yoghurt.

You poor poor thing, it sounds awful. Perhaps you need to see a dermatologist rather than a gyny?

Spookey80 Sun 02-Sep-12 18:08:45

Yes, the gynae doc needs to refer you to a dermatologist. That was going to be my gps next plan if other things didn't work.

Tittch Sun 02-Sep-12 18:10:14

Thank you cold fuchsia.. It is a great comfort hearing from other people who have solved their issues!
I presume your problem was diagnosed quite quickly through I swab. ie. candida is always identified when there? Someone did tell me that some yeast infections go undetected. I actually tried canesten cream but it gave me no relief so I presumed it couldn't be candida.

coldfuchsia Sun 02-Sep-12 18:15:25

I won't lie to you, it took about a month for it to go, even with treatment. It was there with the second swab, but not the first. It was a month of spraying cold water onto my poor bits in the middle of the night, skin falling off in huge pieces, sometimes leaving it bleeding. I was crying sometimes with the itching.

Im absolutely fine now, by the way. So it can get better.

coldfuchsia Sun 02-Sep-12 18:17:02

Sorry, yes mine was diagnosed at the first dermatologist visit. I have private health, so was seen right away. She had to scrape rather than just swab and got it diagnosed very quickly, which was not nice, but I went out of there with medication.

Tittch Sun 02-Sep-12 18:23:54

I am actually moving back to London very soon, and have private health - so FINGERS CROSSED I will get better care. But i have to survive until then!!

WhatYouLookingAt Sun 02-Sep-12 18:31:47

I had/have a very similar problem, and was eventually diagnosed with chronic vulval dermatitis and eczema. I have autoimmune issues and its probably linked to that, but I also have internal issues which are still undiagnosed.
I have daily baths using a special oil for eczema/dermatitis and its helps a lot, though its never entirely gone. I believe it is also hormonal though as it practically disappeared when I was on long term contraception but came back when I went off it.
Good luck and keep pushing for a diagnosis, in my experience its often fobbed off by doctors and downplayed, and it can seriously ruin your quality of life longterm. sad

PuppyMonkey Sun 02-Sep-12 18:38:15

OP, you've not by any chance being using aloe Vera toilet roll? I had really bad allergic reaction in fanjo cos of that.

bamboobutton Sun 02-Sep-12 18:41:00

i just had very itchy skin, scratching it was both agony and ecstasygrin it would also swell up really badly. i was convinced it was vulvodynia. i don't remember if bacteria was present.

i had to go back to the GP several times before they referred me to have a biopsy done.

i would see if you can get a mild steroid cream over the counter and give that a try, see if it helps.

Tittch Sun 02-Sep-12 18:42:14

Puppy - no, I try to avoid anything 'fancy' like that in case of irritants...

What - This is the longest I have been off contraception in many years (other than when pregnant) So that is interesting.

YY to seeing a dermatologist.

Seeing that you are quite slim, are you menstruating regularly?
Just another thought, considering a hormonal cause...

You said your delivery was quick (I know the feeling grinshock), but apart from that was it particularly traumatic?
Have you had lots of urine infections since you had your baby?

A fistula can be quite difficult to diagnose, may involve a proctoscopy (camera test up your backside to see if there is a connection to your vagina where there should be none IYKWIM) and repepated exams sometimes.

Another stoopid question: have you ever taken Flagyl/Metronidazole tablets or been given cream/pessaries to treat the Enterococcus? If so, did that help??

bamboobutton Sun 02-Sep-12 19:14:38

have you tried vagisil yet? it's what i used all the time before i was diagnosed.

tis great stuff

Tittch Sun 02-Sep-12 19:22:56

I had 3 stitches, but all fine apart from that - and my obstetrician examined me 12 weeks after etc, seemed I be no problems.
Regular periods, almost.
I have got to the point now where I find it hard to remember which creams made a difference as I have tried so many .. I have used Flagyl and I remember clearly that it did not help.
The strange thing with the enterococcus is that it only ever seems to be present around the vulva - but strong growth - but not actually in the vagina. Maybe that isn't strange at all... But i don't understand it.

Tittch Sun 02-Sep-12 19:24:40

Sorry started typing "almost to the hour", periods very regular.
I am ain't great typing on the old iPhone

coffeeinbed Sun 02-Sep-12 19:25:32

Cotton underwear's fine, do you iron it?
Also, probiotic supplements?

LackaDAISYcal Sun 02-Sep-12 19:39:31

an allergy?

After my first DC I had to stop wearing thongs as I developed major irritation; same thing with elastic in knicker legs. Intense itching, around my anus, top of my legs, over my vulva and into my labia, and vagina, everywhere really. It was hideous. Swabs all came back negative, but I got prescribed some steroid cream . That and some knicker free days helped, then It flared up again as soon as my knickers went back on. It took a while before I realised it was the knicker elastic causing the problem. I've worn short type Indies since with no problems. I recently put on some fancy pants to match a nice bra and it flared up again.

Doc concluded an allergic reaction to elastic, but I don't react anywhere else. Maybe it's worse because of the moist conditions?

Luckily DH finds shorts, especially grey ones and a vest a la Ripley in Aliens, quite sexy grin

Tittch Sun 02-Sep-12 19:40:38

Yes ironed - should I not?
Have started taking probiotics, but read that very few actually change the balance in the vagina, as opposed to the gut. I have read about cider vinegar/ boric acid/ acidophilus applied locally. But I am not sure if those would address my problem.

LackaDAISYcal Sun 02-Sep-12 19:42:04

Indies = undies <ditto to teeny tiny phone keypad>

TattyCatty Sun 02-Sep-12 19:55:38

You mentionned that you had stitches - do you know if they all definitely either dissolved or were removed manually? I had months and months of agony - itching, burning, aching - which came on around 3 years after DD was born and after many repeat trips to my baffled GP, it became obvious that I had a retained stitch that should have dissolved, but never did. The microscopic hole that was around the stitch was enough for an infection to take hold. We treated it with antibiotic cream, which helped periodically, but in the end I had reconstructive surgery (Fenton's Procedure) to have all of the original scar tissue removed. Mine was an extreme case but all avenues are worth exploring if you are having so much misery from it.

Tittch Sun 02-Sep-12 19:56:10

That's interesting lacka.. I hadn't thought about elastic. I need to try steroid cream I think, and take make pants off obvs!

Shakey1500 Sun 02-Sep-12 20:22:43

I also second tatty's suggestion, or along those lines. My first thought was a fistula or something of that ilk. I also had a fentons procedure to sort out stitches and scar tissue issues following a fourth degree tear and subsequent infection (s). But it took a while for it to be diagnosed, and for me to be believed that there was A.VERY.REAL.PAIN!

I would ask to be referred and for some gynae investigations. All the best

Tittch Mon 03-Sep-12 10:27:37

Thanks all. Looks like further investigation is definitely needed. I knew that already, but at least I have some specific avenues to explore now. It does get confusing as to the whole dermatologist/gynaecologist question...

Are you absolutely SURE it's not thrush? I have had similar symptoms in the past but no discharge. Just intense itching, redness, burning and soreness. The GUM specialist I saw initially said that you don't always get a positive swab result for thrush ( I didn't one of the times). I was treated for that with pessary and cream and have self-treated a few times since now I know what I'm looking for. Each time I had to use a pessary AND cream as the cream did nothing to help the infection INSIDE. I have also had oral medication from the gp in the past too when I wa getting recurring bouts. The gp never swabbed me or examined me those times, she knew I'd had past infections and I knew what it was so prescribed the oral medixation anyway.

I have not had it for a few years thank god. I know you've tried the cream on the external bits but if it IS thrush and it's been present a while high up in your vagina I would think only a pessary would do the trick?

Tittch Tue 04-Sep-12 10:38:01

Thank you Curly, I have taken fluconazole which has not cleared it up, so i think it must be something else? However, Canesten cream seems to have brought the itching down a bit this last week, though not rid it completely. Whilst a relief - that has confused me!

Marking my place to look at suggestions later. Tmi but i have a similar problem yo yours op, except i don't have faecal traces. I keep treating myself for thrush, and was examined a while back and was told it was thrush but it just keeps coming back. The itching is horrendeus, especially my vulva and everytime i have sex it is painful and if i dare urinate afterwards it stings like fuckblush.
Im getting to the point where it is putting me off sex and avoid it at all costs unless my dh inisciates it.

Just thought i would try some of the suggestions on here and see if they work for me. I feel your pain op, its awful isn't it the itching, the burning then the pain after itchingblush.

Canesten cream is very soothing, so may give you a bit of relief without curing you IYKWIM.

Thrush is quite easy to pick up with a swab tbh. Some suptypes of candida are more stubborn and difficult to eradicate than the 'standard' C albicans, but should still be picked up in a culture done from a swab. Nevermind repeated swabs.

If thrush is still thought to be a possibility, the a longer course of oral Fluconazole sometimes works or 150mg taken weekly for several weeks or even months. I would NOT go down that route unless thrush had been proven.

pumpking, if thrush has been found before, get it treated again - either a longer course of oral or topical treatment or repeated treatment like outlined above. If you prefer a cream/pessary (the oral tablet is not 'stronger' and does not work; it's just a personal preference whether to swallow a medication which works systemically or whether to use something more tageted wink), you MUST treat inside the vagina as well as the vulva/perineum/affected skin. There is NO point in just putting cream on on the outside as the 'reservoir' of yeasts that cause thrush live inside the vagina.

Recurring thrush info for pumpkinsweetie - sorry about typo in your name

Thanku PacificDogwood hope to see the end of it. Doctors were useless, they knew it was a reoccuring bout but gave me a perscription for just one tabletangry
It has been costing me a fortune so i haven't been too great at repeating it and its so hard to get an appointment aswell

Sorry, just rereading my previous post: the oral tablet DOES of course work, just not any better than topical treatment -Gah!

Hope you get it sorted smile

vinetime Tue 04-Sep-12 17:10:02

tittch, sorry to hear you're going through this. this may sound really random but where you are living? I am now settled in the UK but my job took me round the world through my twenties. I lived in various cities and had a similar problem occur twice - when I was in Moscow and when I was in Delhi. Once I left the problems cleared up...my gynae in the UK reckoned that it may have been caused by less than great sanitation levels in the water systems and I was reacting to them....

orangeandlemons Tue 04-Sep-12 17:39:11

There are three things which spring to mind, all of which I have had.
1) Thrush that is resistant to treatment and not always detectable in a swab.
2) Vestibulitis which affects the vestibular glands around the entrance of the vagina. This is generally more painful but can be itchy and is related to overuse of anti-fungal creams
3) Itching vulva syndrome, which mainly affects people with sensitive skin/allergy prone. Again can be caused by too mch over us of anti fungal creams. They can all co-exist and or just two of them can.

Vestibulitis is actually meant to be nerve damage. I always had the last 2 for about 5 or 6 months AFTER I had got rid of thrush, as all the nerves were inflamed. However becasue they felt like thrush, I was treated with anti-fungals which eventually led to resistance and then more damage!

The cures: I don't believe much in alternative medicine but homeopathyput a rocket under the thrush where no medical cure would touch it.

Vestibulitis and itching vulva syndrome were treated by a mixed cream called trinaderm I think (bright yellow)

Tittch Tue 04-Sep-12 17:50:32

Vinetime!... I live in Moscow. How weird. And you know - when I was just in France for 3 weeks things improved a lot. So that is interesting. The water here is certainly not up to UK standards.

Tittch Tue 04-Sep-12 17:52:00

Orangeandlemons - So in the end homeopathy ended the vicious cycle for you?

WhatYouLookingAt Tue 04-Sep-12 18:03:25

please don't waste your time on homeopathic "cures", they are only sugar and water. There are herbal treatments that might help you, but homeopathy is a giant con.

Go get the water tested! How interesting - I'd've thought Moscow would have quite civilised water.
If it turns out you have enterococcus faecalis in the water, I hope for you have not been drinking it, bleurgh!

orangeandlemons Tue 04-Sep-12 18:11:47

Yes, despite my disbelief and Whatyourlookingat's it was fantastic, and has worked 4 times when nothing else touched it. Herbal stuff had no effect at all!

However it only worked for thrush, not the other stuff. The other stuff was more of, first of all recognising what was happening. However I was diagnosed bya guy who was doing cutting edge research on it at the time. Although the trhush was gone, the burning and itching carried on and on, but when I realised what he said, it did feel different from thrush.

It was then treated with the cream I . I would get realy bad flare ups after a thrush attack, but eventually they just went away. But anything which aggravated the nerve endings around the vagina would set it off again. Tampons, giving birth etc

orangeandlemons Tue 04-Sep-12 18:12:43

It sounds like itching vulva syndrome. That can have sore patches

WhatYouLookingAt Tue 04-Sep-12 18:21:15

its sugar and water, it didn't work. Something might of done, but it wasn't that. Honestly, I'm not being mean, but it is literally just sugar and water.

orangeandlemons Tue 04-Sep-12 18:27:47

It DID work. It's my fanjo, I know what happened!

At first it got worse and then it just went, in about 2 days. As I said I don't believe much in alternative meds, but that was the only one that worked, whereas, accupuncture, herbalism, food restrictions all failed dismally. I was desperate when I went, and I was initially precribed stuff bu a doctor who was also a medically qualified md.

So don't tell me what works and doesn't. I think herbalism is a load of crap

WhatYouLookingAt Tue 04-Sep-12 18:30:54

Homeopathy and herbalism are not the same thing. I'm not going to argue with you, but if sugar and water cured illnesses it would be called medicine. There is literally nothing in it. It CANNOT affect you in any way, unless you have changed the laws of physics.

orangeandlemons Tue 04-Sep-12 19:44:29

Why would they be the same thing? It worked for me sugar and water or not

TheAgedPs Tue 04-Sep-12 20:52:41

I think you could have vulvodynia

There is a website - support.

I have this- redness, soreness, burning, feel like I can't even wear knickers at times.

Stress brings it on and some food intolerances.

I get some improvement with oestrogen creams.

TheAgedPs Tue 04-Sep-12 20:54:55

OP here you are- might be info here that wll help.

vulvalpainsociety.org/vps/index.php/vulval-conditions/vulvodynia

vinetime Wed 05-Sep-12 09:58:40

Hi again Tittch, interesting where you live. Another thing to consider is your low weight (a BMI of 17 is very very low as far as I know). I used to be underweight also and was suffering from a range of minor health probs (including the fanjo issue). A doctor basically told me that being so thin was exacerbating everything as my body simply wasn't strong enough to get over infections and what have you. You say your low weight is 'mainly genetic' - like you, I am naturally slim, but looking back I certainly had some issues surrounding food and deliberately kept my weight low..does this apply to you? Could you try to get your weight up into the normal range?

Forgive me if this is absolutely not the case, but one of the things that helped me was gaining weight. That, plus moving to where the water was better, and also taking a complete break from any sexual stuff (not just penetrative sex but anything in that region!) for at least 6 months. It sucked, but fortunately my partner at the time was understanding and I think it helped clear things up once and for all.

Finally, it's interesting what another poster said about hormonal contraception - I think this applied to me also looking back. Perhaps go back on the pill until you want to get pregnant again (if you plan to)....hope this helps x

Minkymum Tue 05-Feb-13 22:40:20

I know I am really late with this, but I had symptoms like yours for years. I kept going to the drs and they treated me for thrush but it never worked. Eventually a GP friend recommended the Genito Urinary clinic ( Gynae were completely useless) otherwise known as the STD clinic. Here i was finally diagnosed with a condition called Desquamative Inflammatory Vaginitis. No body knows what causes it, the only thing that all sufferers have in common is a lack of lactobacilli in the vaginal tract. They gave me a dose of Clindamycin cream and it was bloody miraculous. This is not to say that it didn't come back again, but this time I was ready for it. If you go to your GP and ask for Clindamycin he will look at you like you are a nut as it's an antibiotic used to treat bone infections. Go to the GU clinic and speak to a specialist.

Godgivemestrength Sat 09-Nov-13 16:10:43

Tittch,

I've just stumbled across this thread as I have been having exactly the same symptoms as you, been given the same reason (overgrowth of the same bacteria) and 3 months down the line, no doctor seems to know how to get rid of the inflammed, sore and red skin on the entrance/inside entrance of my foofoo.

I know this thread is old...so I'm hoping you eventually found a solution, got well, then forgot to update this thread! Really hope you post back.

Cheers smile

Godgivemestrength Sat 09-Nov-13 16:15:22

Tittch,

I've just stumbled across this thread as I have been having exactly the same symptoms as you, been given the same reason (overgrowth of the same bacteria) and 3 months down the line, no doctor seems to know how to get rid of the inflammed, sore and red skin on the entrance/inside entrance of my foofoo.

I know this thread is old...so I'm hoping you eventually found a solution, got well, then forgot to update this thread! Really hope you post back.

Cheers smile

laurenhoppers Sat 14-Dec-13 00:53:38

hello,

I've been reading the comments above, and I have had very much the same issue, I've got soreness in my vagina near the hole bit on the side of the walls and is red and inflammed, it really stings to pee, I've had it for a week now, I thought I just had a bladder infection, as I get them quite alot, i recently was trying sexual activities with my partner no pentration, and start to bleed this brown yellow stuff. I waited couple of days for it to clear and thought it was fine, and after having sex again, the pain was extremely painful, and properly hurts to pee. I've put sudocrem on and it feels a bit better, but still sore and hurts to pee

Anyone help?

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