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PIP implant support group

(45 Posts)
RainbowSheep Sat 31-Dec-11 18:07:42

http://www.facebook.com/groups/121178307922642/?notif_t=group_activity Hi, sorry I know this is not AIBU but I know this section has high traffic and I have found this group a real lifeline and I want to share it with others in my situation smile

RainbowSheep Sat 31-Dec-11 18:08:13
loopsylou Sat 31-Dec-11 20:44:51

Maybe they shouldn't get implants then. Theres a lesson in this hmm

SiamoNellaMerda Sat 31-Dec-11 20:46:05

I'd have to agree loopsylou but given that they have and if it were you I'd imagine you'd find support helpful?

woahthere Sat 31-Dec-11 20:47:19

hmm back at you loopsylou, i wouldnt get them personally but its support for those that have and are now worried...jeez

baubleybobbityhat Sat 31-Dec-11 20:49:27

And what lesson would that be loopsy?

Sounds like you could learn a few lessons at the very least in common decency yourself!

MaisyMooCow Sat 31-Dec-11 20:52:43

It must be a worrying time for all those who have had these type of implants. I'm not sure what the answer is or who will foot the bill but I hope they find a solution soon. Perhaps going forward some kind of insurance policy should be available for purchase in the event of similar circumstances. At least it would give some peace of mind.

Emo76 Sat 31-Dec-11 20:56:02

loopsylu so what are your views on post masectomy implants then? People shouldn't have those either? Or that anyone with these doesn't deserve support whatever their reason?

slavetofilofax Sat 31-Dec-11 21:15:35

Surely people should foot the bill for removal or replacements themselves? Unless the NHS provided them, the cost should be up to the individual or depending on what the company said when they provided them, the company should pay.

mummymccar Sat 31-Dec-11 23:36:56

They were saying on the news today that quite a few of the implants were provided on the NHS.

RainbowSheep Sat 31-Dec-11 23:43:19

What an utterly idiotic and ignorant post loopsylou I hope that was a joke

Dani23 Tue 03-Jan-12 19:14:19

I have PIP implants and was assured at the time I had the op that i was getting top quality medical products hence he high cost (which i am still paying) I only had them done in 09 and I didnt go massive just a modest size that suits my body and I did it for self confidence and not because I am vain. It was not a desicion I took lightly and to now find out that I have dangerous non medical products in my chest is devastating especially as i am pregnant. I work for the nhs and so see first hand the strain money issues cause on the service however if the nhs treat smoking and weight releted issues why should they draw the line at women who have been victims of such a terribe crime. They are all life style choices. Personally I believe that the clinic I went to in the fist place should pay but If they dont I cant afford to put things right myself, so should I really be left with a ticking time bomb in my body?

StrandedBear Tue 03-Jan-12 19:39:39

Message withdrawn at poster's request.

FabbyChic Tue 03-Jan-12 19:43:13

Self confidence what whilst naked? Your choice, not my choice that the NHS should have to put right your operation. YOu could have worn a push up bra for effect.

I saw the news as to date there is no data to support there being problems with these implants, and as they have stated go back to where you got them done.

ThoseArentSpiritFingers Tue 03-Jan-12 19:48:54

I think people that had the work done on the NHS (masectomy, reconstructive work, and for genuine self confidence issues diagnosed my a health professional) should get them removed/fixed on the NHS. any private work shoud be fixed privately

slavetofilofax Tue 03-Jan-12 19:50:10

It's not a ticking time bomb though Dani. There is nothing that says these implants will do you any harm. And if you can afford to make the payments on your first set of new boobs then you can afford to make the payments on your second if the company won't pay. Or you can take it to court so that they do pay.

sailorsgal Tue 03-Jan-12 20:11:34

it is a lifestyle choice (except those after masectomy operations) though I think anyone should be able to get them removed on the NHS.

If someone had a car accident and had been drinking should we refuse to treat them?

Someone on the radio today said there should be some kind of insurance taken out so if anything like this happened it could be covered.

cookcleanerchaufferetc Tue 03-Jan-12 20:23:11

As riding said ... Get them on the nhs, get a refund, or in this case, them taken out. If paid privately, go to the supplier.

Everything has risks and implants have always had a small risk of them leaking etc ... Not exactly news. Yes, a PITA to say the least but the possible side effect that you were told about has emerged ....

slavetofilofax Tue 03-Jan-12 20:30:20

There is an immediate medical need if someone has been drinking and had a car accident.

There is no immediate clinical need with these implants. There might not ever be any medical need.

The two things cannot be compared.

Avenged Tue 03-Jan-12 20:34:17

I don't think Loopsy is talking about taking out implants in mastectomy patients who were treated on the NHS. She's probably asking why women who CHOSE VOLUNTARILY to have their implants inserted for non-life-saving reasons should be treated on the NHS unless in an emergency.

No Dani you shouldn't be left with a potential time bomb in your chest, but as sympathetic as I am to this situation, it just wouldn't be fair that PCT's could release funding for women who chose to have implants for non-medical reason, and yet there are people dying, because the life-extending/saving drug which are necessary for their treatment, are not being funded because of cost. TBH, I would say that the immediate life-threatening illnesses are more of a priority than removing breast implants which are worrying women but aren't immediately threatening their lives.

One thing I've been wondering is why women, who have had implants, didn't opt for saline ones? I mean, if the saline implants leak, the saline is absorbed by the body. AFAIK, there are also very few side effects from the saline implants themselves, from what I have read, but I am off to do a bit more research. That info was just a smidgen of what I've found so far.

sailorsgal Tue 03-Jan-12 20:37:58

I see what you mean. Was just trying to show an example how money is wasted through the NHS. Smoking related diseases, obesity are better examples.

sleeplessinseatle Tue 03-Jan-12 20:55:18

avenged my understanding is that Silicone is offered more often, because the result is more like a real breast. So for women who have had a mastectomy, even though a liquid implant may be used during tissue expansion stage, this is often removed and replaced with a silicone implant.

The NHS choices website has information about this, and the NHS uses silicone implants a lot.

perceptionreality Sat 07-Jan-12 09:35:19

I agree with Dani's post. And it has now been established that PIP implants have a much higher rupture rate - they do represent a real risk, the stuff they are made of is not suitable to be put inside bodies! A lot of women have had theirs rupture even before this story became high profile in the news.

And yes, why is it ok for the NHS to treat people with smoking and alcohol related illnesses but not someone who paid money in good faith for what they honestly believed was a responsibly undertaken procedure?

BrigitBigKnickers Sat 07-Jan-12 09:43:31

I heard on the news this morning that the NHS will replace any implants originally provided by the NHS and will remove but not replace any that were done privately.

bringmesunshine2009 Sat 07-Jan-12 09:49:35

One rule for breasts, another for lungs tummies and hearts?

No help for selfish vain breast enhancers (there is of course no medical need for reconstructive surgery following mastectomy - you won't die from not having it done)

But get out the gastric bypass and heart ops for the obese.

Give away free lung transplants to smokers.

Refuse maternity care because gawdammit you chose to get pregnant and contraception exists you know.

Pass out a free liver to the drinkers.

As for private treatment gone wrong... Only aesthetics? What about private abortion, if you have a serious reaction to the medical termination should the ambulance deliver you back to the private clinic with no critical care?

For fucks sake, some of the responses on here are so judgemental of those who have had surgery it makes me sick. If I had something in my body there was a question over,I would be very worried. Have some sodding empathy.

perceptionreality Sat 07-Jan-12 10:30:59

Judgmental indeed........people seem to have a real bee in their bonnet about anyone who has plastic surgery. I've had breast implants (not PIP) and when I went for consultation the main risk presented was capsular contracture (which is when your body rejects the implant). The risk of rupture was presented as almost nil.

EdithWeston Sat 07-Jan-12 10:48:19

Those who had them on NHS can have them removed on NHS.

Those who went privately would have (or rather should have) been warned that all implants carry the risk of rupture over time, and I hope would have considered then what they would be doing for long term aftercare, including paying for replacements. Now is the time to be putting that plan into action.

One way ahead would be to sue the provider - you would need to show that the clinic or individual surgeon had been at fault in knowingly using an inappropriate implant. I don't think the manufacturer can be sued as they've already folded. If the clinic no longer exists, or goes bust because of other claims, then this doesn't look promising, though.

I read somewhere that even if NHS might remove implants, they won't be replacing them. So depending on the individual's desired end result, paying for private removal and replacement might be the best way if that can be done together, as it minimises the health risks which no doubt is important.

herbietea Sat 07-Jan-12 11:01:58

Message withdrawn

needanewname Sat 07-Jan-12 11:06:58

Dani. Whilst I have every sympathy for you and can only imagine how worried you are right now I don't believe he nhs should pick up the bill for the removal.

The clinic should pay. End of.

Though I do I course realise its not that simplegrin

I hope everything. Is resolved for you

ScottOfTheArseAntics Sat 07-Jan-12 11:09:11

If a PIP implant is leaking in to your body today then you should have that implant removed immediately and if that can't happen privately it should happen on the NHS. This is a human life we are talking about. I read a post yesterday from someone who is having their leaking PIP implant removed on Monday. So this is happening and there is an immediate clinical need. Poster didn't say if it was private or NHS but either way it needs to be dealt with and I personally would have no objection to the NHS doing this.

perceptionreality Sat 07-Jan-12 11:17:25

Modern implants should not rupture at all - that is what you are told at any consultation these days for a breast aug.

The PIP implants are made of stuff that is not supposed to be put inside people's bodies. If the clinics won't remove them, the NHS should of course.

These clinics are disgusting. I did not have my surgery with any of them because when I went for a consultation at one of them I got the distinct impression that they did not care much about what they were doing and just wanted you booked in and to get your money. They also employ surgeons who often don't live in the UK and many are not even plastic surgeons, they are 'cosmetic surgeons'.

needanewname Sat 07-Jan-12 11:32:28

Agreed if it ruptures we are talking about a life and it should be removed on the nhs, however of someone wants it removed as a precaution I still don't think it should be done in the nhs it is down to the clinic

ledkr Sat 07-Jan-12 12:50:34

I have implants for re construction after cancer,they have been in 15 yrs with no probs. I have no problem with anyone having them for cosmetic reasons as if you never consider it how can you ever have an idea of how women feel when they make that choice?
loopsy what a ridiculous statement to make. I notice you havent come back to defend your comment. Look within yourself to see why it bothers you so much.

Nagoo Sat 07-Jan-12 13:31:27

Can anyone explain why the clinics that put them in are not replacing them?

SardineQueen Sat 07-Jan-12 13:47:09

I have the same question as nagoo. Surely the private clinics should bear the cost - whoever put them in should take them out / replace them for free.

perceptionreality Sat 07-Jan-12 14:35:52

The clinics are not replacing them because they are money-grabbing rip off merchants who care not one iota for the well being of their patients. I went for a consultation at one of the well known ones and they tried to get me to book in for an operation the same week! They do not care about what they are doing and if there is a problem afterwards they don't want to know.

Their behaviour is disgusting - I have heard lots of stories of people who had other problems following surgery and could not see their original surgeon and were then fobbed off.

Bobby37 Sat 07-Jan-12 18:15:47

Message deleted by Mumsnet.

rabbitstew Sat 07-Jan-12 21:54:10

I think the problem with the small private providers is that rather than bear the cost of replacing all the implants they have inserted, they can just go into liquidation, thus evading all responsibility, and the surgeons can set up elsewhere. That's the big difference between private enterprise and state run concerns... one can find all sorts of ways to evade all responsibility and the other is always left on the hook. The taxpayer always ends up carrying the can one way or the other. Or hadn't anyone noticed?

perceptionreality Sat 07-Jan-12 22:18:56

I think you're right rabbitstew. The government has no way to make the companies take responsibility for their mistakes.

Hippymum89 Wed 08-Feb-12 14:00:53

A few points....
I have PIP implants,
I am a nurse who coincidentally works on a breast/ gynae NHS ward.
I am having them removed on the NHS, I have seen first hand (in theatre) the mess these implants make of a woman's body (pus both around and inside the implant which wasn't even ruptured)
These implants were approved by the MHRA, so how is any private clinic to blame?

HomeBodMumster Fri 17-Feb-12 19:38:05

Is there any PIP group live on here though? Facebook is too public a forum for some people but still want support..? Anyone know? There must be quite a few women here who have them and want to discuss.

Oh, and interesting what a reaction this gets from some people - it's upsetting that so many people feel so judgemental about it. Certainly makes you wonder why...

AngryBeaver Sun 19-Feb-12 06:26:36

Yes,HomeBod.I agree,fb is too public and after scanning the posts,I don't feel I would have much in commom with 90% of the posters (hun,luv yas grin)
Although,let me tell you,I.am.terrified.And could do with talking.
I found out that I have pips,and along with the financial implications (we are broke) there is also the fact that I live on the other side of the world (had it done in a Liverpool clinic in 2004).
I see today the clinic is offering removal and replacements for £2995. We could possibly scrape that together.Then there is the cost of the airfare/accomodation. I wonder if they would stump up for that. Probably not.
Even if I could get there,I have 3 kids of 5 and under,the youngest is very clingy and it would distress both of us to be parted for probably a week plus.
Dh has just started a new job and couldn't take time off. How would I manage getting back when I can't lift anything etc The list goes on

I was thinking of ringing them and proposing that I pay them their 3 thou,and they make up the difference to a clinic of their choosing in NZ. Although I don't know if I have a leg to stand on with that.It's more expensive here,too.
I think between $12-14,000

I actually shaking as I write this.I just want the damn things out of me

Kagriff Tue 06-Mar-12 12:47:31

The thing to remember about these implants is that the British government in the form of the Medicines and Healthcare products Regulatory Agency (MHRA) approved these implants for use in the UK. And surely the UK government would then have made money off the imports of these implants. I found a website called TreatmentAdvisor which had some useful information on PIP implants - also I think they've got some really good surgeons on there who can give advice.

HomeBodMumster Sun 08-Apr-12 15:25:53

AngryBeaver, thanks for posting and sorry I haven't been back since. Only just seen your post today.
Has anything changed with your situation? It is an awful situation for all of us with PIPs but even harder for you being in a different country now..
I wish some people weren't so judging and nasty about the position we find ourselves in, the reasons women AND men chose to alter themselves through surgery are far more complex than some people understand.
Anyhow, that aside, I have researched it quite a lot in few months, since I found out in Jan that I have them too. Been terrified and quite low about it but feeling much more positive now I've had an MRI scan and found they are intact. Still want rid but trying to find best way to do this after recent govt select committee reports was published might change things with the private clinics maybe:

www.parliament.uk/business/committees/committees-a-z/commons-select/health-committee/news/12-03-22-pipreport/

Which clinic did you use? Many are now offering MRI in the first instance. Many are now replacing for free if there is a rupture I believe. I was advised by the GP to sit tight for a few weeks before agreeing to pay the clinic the £2500 for the replacement surgery as pressure on the clinics is growing and advice keeps changing....maybe they'll bow under pressure.
There's also the possibility of legal action - i can give you some info on this as looked into it a bit. Just because you're in a different country wouldn't exclude you from this option..
Let me know how you've got on in recent weeks.
If anyone else has any other info, please post!

JodieStantonFisher Wed 23-Apr-14 16:33:32

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

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