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severe gum disease

(79 Posts)
skymonkey Sat 04-Apr-09 13:49:12

hi all, i've lurked but not posted before, but i'd really like to know if there is anyone in a similar situation to me?
i've got severe gum disease which has got rapidly worse over the past few years while i've been pregnant and breastfeeding and generally neglecting myself.
i'm now being treated at a dental hospital and am sure i'll get good professional care and advice there but would really love to chat with fellow sufferers as i don't know anyone else with this condition and i suspect there aren't many since the consultant did say i was a very severe case especially for my age.
so anyone else desperately clinging on to their lovely teeth set in dreadful gums?

southeastastra Sat 04-Apr-09 14:03:50

hello skymonkey!

how severe is it? do they bleed all the time?

did have quite bad gum disease but cured with lots of trips to hygenist

Hi Skymonkey....been in a very similiar situation myself and got really bad during my 4th really affected me mentally and my whole days revolved around obsessing about my teeth and worry when they where all gonna drop out, and only in the last year do I feel I can actually "talk" about my gums and teeth....

I have always went to the dentist every 6 months but the severity of the final attack was ferrocious and involved lots of costly work to rectify everything. I am still obsessed with my teeth and floss and clean my teeth to the best I can and jsut hope I can keep it at bay...not much help but if you need any questions answered I may be able to help. Should say my best friend is now my Sonicare electric toothbrush...its the DB's. grin

skymonkey Sat 04-Apr-09 14:22:50

Hi, thanks for your reply. It is very bad, my gums have receded badly and I've lost a lot of bone. They're going to do what they can for me but basically I should expect to lose some teeth, of not all of them...

skymonkey Sat 04-Apr-09 14:26:50

Hi cositjustisok, yes I'm in the obsessive phase after a few years of denial. Popping vitamin supplements, brushing, flossing all the time. Was there anything in particular that you found helped in your hygiene routine? I have an electric toothbrush, use intradental brushes, and corsodyl mouthwash. have just got some corsodyl toothpaste too. and am always chewing gum too. hope I start to relax soon. apparently stress is very bad for gums too, aargh!!!

skymonkey Sat 04-Apr-09 14:30:09

oh also, what treatment did you have? I think i am going to get some really thorough cleaning and antibiotics at the hospital, and then who knows....

Hi Skymonkey...can I ask how old you are, and if you have ever smoked and how many pregnancies...sorry all the questions jsut trying to build a picture of you and try and see if we have any similarities...My hygiene routine is now fine tuned and my dentist says it is working brilliantly.

Sonicare tootbrush morning and night
Floss with tape and about once a week extra floss with the "fluffy" Oral B expands or something
Never put water on my toothbrush to brush my teeth
Never rinse my mouth after brushing
About half an hour after brushing my teeth I use a as not to wash away the toothpaste benefits.
NEVER EVER EVER brush my teeth within an hour of eating anything!!!
Use interdental sticks and floss a wee bit to get any food out of my teeth after eating.
Chew gum after every meal.
USe an enamel strengening tootpaste like Arm and Hammer..expensive..but think it is the best and my teeth are so worth it.

See told you I obsess about my teeth....but it is so important to me to do my best with what I have left.

After my 4th pregnancy I had severe recedding gums and this also resulted in bone lose. It was particularly bad on my front teeth which are crowned..and I had to have these replaced as the black margins made me look like a witch!!!!..I had some other crowns replaced but not with the materials used on the expensive front ones...too save a bit of money. I also had a deep clean..think it was done over 4 visits to the hygenist and this was to get any plaque and tartar out that was pushing the gums away fromt he teeth.. I had pockets on some teeth which is a sign of gum disease and these have since gone so I know my treatment has helped it.

Right that should give you a wee bit to think about..happy to answer any more questions cos I just know how upsetting this is and will do all I can to help you

skymonkey Sat 04-Apr-09 15:26:20

Hi again, thanks for sharing all that info with me, I'll try follow your routine. Which mouthwash do you use?
I'm 32, and have 2 children. The consultant said that I'm genetically susceptible for some unknown reason (although neither of my parents has this) she mentioned a heightened immune response to the bacteria and also took some blood tests. I'm wondering if I'm deficient in something perhaps after 2 pregnancies. The disease is actually called aggressive periodontitis and mine is a severe case. My teeth are actually pretty good, I have a few fillings in molars but otherwise nothing, so it will be pretty gutting to lose them :-(. I feel like such an idiot for letting it get this bad
I think I have lots of deep pockets so I'm really hoping the deep cleaning plus antibiotics has an effect. I've had cleaning by the hygienist before but unfortunately this doesn't seem to have helped.
Hospital appointment is in a few weeks so until then I'll try maintain a good routine and eat healthily
Thanks for your support

I use the dentyl PH but do also like the Oral B one and will buy either if they are on offer..if none on offer then I will buy Dentyl long as there in no alcohol in your mouthwash that is most important.. I was also told that I had the immune response to the bacteria that makes you susceptible to problems then. You may never loose a tooth as you are dealing with it any shakey or fee loose...even if there is they can put a little thing on the back of the teeth to brace them together . the antibiotic gel stuff is meant to be really successful to. What is also important is if you do smoke then the treatment you are about to have is not as successful.....and they will (if you do smoke) tell you this and encourage you to give up. You are doing everything right getting treatment in time and not hiding from the proble,..let us know how you get on at your appointment and good luck..will be thinking of you. If you have any more questions ..feel free to ask..happy to help

Tying too quick there apologies for typo's


skymonkey Sat 04-Apr-09 16:21:10

Thanks for the ray of hope there cositjustisok, I've been reading so much stuff on the internet that's pretty much doom and gloom. A few teeth do feel a bit loose but most seem pretty solid to me. I've never smoked so that's not a problem. And I'm now very committed to sorting myself out so hopefully the disease can be halted. The consultant did warn me about losing teeth though, I just hope this can be delayed a while... I'll let you know how treatment goes anyway. Cheers again. It's so good to know I'm not alone, I feel a lot better, you've really helped me chill out a bit.

Them few teeth that seem a wee bit loose now will tighten up nice and snug to the gum after you have your treatment done...the consultant is only telling you worse case scenario when he/she says "you may loose some teeth"...but it really does seem a long long way off...dont google ...... had me in a right state I tell you and only fuelled my anxieties about loosing my teeth. My dentist also told me due to the bone loss I could loose teeth..but like you this made me more committed to sorting it out....and i have not lost any.....the bone loss and gum disease can be stopped in it tracks.....and it will be with your treatment and with good oral hygiene I am sure you will have no problems...will follow this thread with interest..all the best skymonkey.

skymonkey Tue 21-Apr-09 17:40:23

hi just updating as I went to the hospital today. was hoping they'd get on with some treatment but it was just another baseline probing session, and photos- hope the dental students enjoy my case study! anyway I'll be getting the deep gum clean in 4 sessions starting in two weeks so hopefully things will improve after that. i'm trying to stay positive. the dentist I saw today didn't seem too horrified by my gums despite the large numbers he was reading out with each probe :-(. he also showed me how to brush my teeth, hmm... i actually do know this. and sent me out of the room with vaseline around my lips and purple teeth- thankfully I caught sight of myself in a mirror before heading to the bus stop! still feeling nervous about it all but no point in worrying, and in the mean time will get saving for those dentures...... x

noddyholder Tue 21-Apr-09 17:41:41

Apparently in the US co enzyme q10 a vitamin pill has been great in gum disease trials

Glad you have had your appointment skymonkey..least things can get started in 2 weeks...I remember jsut wanting them to start there and then but I had to wait too....more time for me to think!!!!!. Anyway was the purple stuff to show where plaque or tartar was? and what was the numbers like ie:3, 4, 5, 6 etc etc, also did he call a number out for each tooth?. Think he is measuring the depths of the pockets, I found this great to note down when I remember them cos the numbers will improve as you get the treatment underway. Thnks fo rletting us lnow how you got on.

Away to google about that vitamin pill noddyholder.

skymonkey Tue 21-Apr-09 22:09:15

Yes the numbers were read out, several around each tooth, ranged from 1 to 10!!!!!! And one tooth was wobbly, rated 1 I think. I've been taking coenzyme q10 and vitamin C too after reading some evidence about these being good for boosting the immune system. Also been taking some calcium just in case I'm deficient in that. Yes it is hard trying not to think about it too much for a couple of weeks....

skymonkey Tue 05-May-09 10:27:11

cositjustisok- what model of sonicare brush do you have?
i think i'm going to buy one. first treatment appointment got cancelled today as the dentist has hurt his arm. aargh!! feel like my teeth are just going to fall out before i get any treatment. so going all out to get home care routine perfect. i have an electric toothbrush but everyone seems to rave about the sonicare. just wondering if i have to get the very expensive one or if the other models are just as good for gum care? cheers for your help

Hi skymonkey...I have the cheapest model as had never used an electric toothbrush before I purchased one and did not want to make and expensove mistake. My thought was if it works then I will buy a more expensive one..Now I have it I am quite happy that it is the dogs Bo**** and the fancy expensove ones are no better. Mine was £40 about 4 years ago and still using it will try and get a link for you.

Cant find mine is the Sonicare Elite but dont seem to make it any more..all new names. I would look around for a good deal and buy the best one on offer in the Sonicare range....will look again when I come back in as got to go to nursery school now...back soon

Hi skymonkey..think I go for either of these models depending on your budget....I am now considering replacing mine as need new heads and your thread has got me thinking I deserve an update...tee hee!!!


also here

here too


skymonkey Tue 05-May-09 20:45:59

Thanks for all that, will go search out a good deal. Am feeling a bit sad as the gum around my only tooth that is wobbly has swollen up so I'm panicking a bit but trying not to disturb it too much. Happy shopping, hope you find a nice new swanky toothbrush x

angelcake99 Thu 07-May-09 10:36:42

I hope you don't mind me joining in, as I am in a similar position myself. My problems started during pregnancy and now I am begining to become tooth-less, its scarey at the age of 32 to be facing this. Off for my appointment at the dental hospital on monday to see what they can do but so far I have just been shown how to brush my teeth correctly and use interdental brushes. Thanks for the run down on your routines, i will try simliar, think i will also get a sonic toothbrush. Good luck to you both with your gum problems, and I will continue watching this thread.

Hi Angelcake....please do consider the sonic toothbrush it will save your teeth and strengthen the gums again... I think no amount of manual brushing will ever be as good as the thorough clean and tartar control that a sonicare will do. I hope your appointment goes well. Let me know if I can answer any questions. Good luck for Monday.

skymonkey Fri 08-May-09 12:25:50

angelcake, so sorry to hear you're in the same boat. it seems there are a few of us then. have you lost teeth already? agree that it is scary, and hard to stay positive.
best of luck with your appointment, and let us know how it goes. x

skymonkey Mon 11-May-09 14:31:28

angelcake have you had your appointment? hope it went ok for you.
well today i'm feeling pretty down. am sure the wobbly tooth is a gonner. the gum around it looks awful and feels really tender. have my first treatment appointment (finally!!!!!) tomorrow but am not at all hopeful. hope if/when they do pull out the tooth, it can be replaced with something as it's right at the front! x

skymonkey Thu 14-May-09 00:06:46

just updating. had my first root scraping session yesterday. hard to tell if it has improved the gum yet. i feel like they've all flared up a bit to be honest. and have a weird little lump in my cheek which from googling i think may be a lymph node or something indicating infection, yikes! off to dr to get it checked on friday, no dentist appointments available til next week. aargh, just want it all to be sorted out now but i know it's going to be a long journey......

bellavita Thu 14-May-09 00:36:31

Hello - I didn't see this thread the first time around.

About 5 years ago my dentist referred me to the dental hospital as my gums bled an awful lot and I also have a lot of "pockets". He could not do the indepth cleaning that was required.

After a lot of prodding, poking, x-rays etc, I had one side of my mouth done one week, whereby I had 9 injections on that side. The periodontist then proceeded to lift the gums up and actually jet washed underneath them. I had a huge course of antibiotics, then the following week the other side was done and another course of antibiotics.

They recommended one of the braun electric toothbrushes, interdental brushes and floss. (I used floss anyway)

Over the years, I have spent a lot of money on my teeth and always visit the dentist, so it is not lack of personal hygiene with me I just happened to be unlucky.

I use the interdental brushes and floss every day and haven't looked back, my gums don't bleed anymore.

Glad Skymonkey that you have started your treatment.....the gum will not show real signs of improvement yet but with using an electric toothbrush after the treatment ...then the improvements will show as the treatment alongside the electric toothbrush will help strengthen the gum so it tightens up around the tooth. LEt us know what the doc says. Good luck.

Hi Bellavita glad all your teeth problems are in the past...believe (fingers crossed) mine are too.

skymonkey Thu 14-May-09 08:17:51

bellavita- glad your treatment worked, thanks for sharing your story. it does give me hope. i'm also suffering despite looking after my teeth pretty well, i've just been slack in visiting the dentist (big mistake!), genetics has a massive role to play i think. the consultant seemed to think so anyway.
out of interest what antibiotics were you given, do you know? i've not been given any, ever, and am wondering if i need some as my body's obviously struggling with infection here.

cositjustisok- thanks again for your support, it's very much appreciated. will keep you updated on progress.

bellavita Thu 14-May-09 08:44:41

skymonkey - the antibiotics were metronidozol (sp).

Thanks cositjustisok smile

MsMaggieBeauregarde Thu 14-May-09 11:27:00

found your thread skymonkey!

I think I'm going to take q10 and buy a pro-enamel toothpaste.

skymonkey Fri 15-May-09 10:36:40

back from docs, lovely bloke. he thinks it is a lymph node and only to worry if it's still there in 3 weeks. also gave me a prescription for antibiotics for if anything flares up again. phew. right, off to enjoy the weekend now....

bellavita Fri 15-May-09 15:15:28

Yes, relax now.. smile

shivs72 Tue 16-Jun-09 23:40:54

Hi, just to let you know you are really not alone. I have had the same problem with boneloss and pockets which I had been totally unaware of. To make matters worse my dentist was my step father and when I had approached him with concerns about some gum recession he said all was fine - not till he retired did I get a diagnosis so I was, and still am pretty mad. I have seen a periodontist privately and all is stable now but I need to visit the hygenist every 3 months for a cleaning. I have some black triangles between some of my teeth where the gum has shrunk back as part of the healing process, and my bottom teeth feel slightly mobile. Although am pleased it is under control, I still feel very depressed about the whole thing and it has really shaken my world. I know I should get on with it which I do for the main but I do not feel able to smile like I used to and am always looking at people's teeth.

I have been to the dentist today and told I have really bad gum disease too. I had a baby in 2007 and am still breastfeeding and I just didn't take care of my teeth. I also need my wisdom teeth removing (which I am reall scared off) the dentist said that I would lose teeth, if I didn't get it under control. I am 30... he cleaned my teeth and gums today, as I have a very overcrowded mouth and some of my teeth are hard to get to with a brush as a result

What else can I do to get this under control, I don't want to lose teeth

skymonkey Wed 17-Jun-09 10:27:38

Hi all, just noticed some new posts so updating.

I had the full deep clean so am just waiting til mid July for my next appointment to see if it has worked and what needs to be done next. My gums have receded loads and some teeth are now a bit mobile, it's freaking me out a bit but not much I can do but keep up the good oral hygiene and wait.....

Shivs72- I can totally relate to your feelings, I'm in shock about the whole thing too, I've gone from not really thinking about teeth to being obsessed, it really has taken over my life and I just want to be able to relax and get back to my normal cheerful and unself-concious self. It's reassuring that you are stable now despite gum recession and some mobility as that's what my teeth are like now too. I hope we can both come to terms with our situation and move past it. I certainly never noticed other people's teeth and gums until this happened to me so I doubt other people are judging my teeth and gums too much (unless they themselves have bad teeth/gums).

SparklyGothKat- sorry you're in the same boat. I think pregancy and breastfeeding can really take their toll on susceptible people like us. As well as the periodontal treatment, there are a few things I'm doing to try and get my disease under control:

1) thoroughly flossing and cleaning my teeth and gums in the morning and before bed and using corsodyl mouthwash. i use interdental brushes to clean between the teeth as well as an electric toothbrush with soft bristled head, making sure I brush gently beneath the gum line

2) cutting out sugary food and drink, and trying to eat healthy wholesome food

3) eating big meals and no snacks

4) gently flossing out food debris after meals and rinsing with lots of water

5) taking vitamin supplements, a general one with iron as I have been prone to iron deficiency, plus extra vitamin c and co-enzyme q10 as these help with gum disease in some people

No idea if these measures are helping but they make me feel like I have a little control over my situation.

Good luck fellow sufferers, and thank you for sharing your stories, it's reassuring to know I am not alone and that there is hope.

3littlebears Wed 17-Jun-09 15:08:13

Hi. Reading this with interest as I have similar problems. My lower front teeth in particular are where I have a bit of bone loss, as they are crowded and overlap and are therefore really difficult to clean. I had a deep clean by the periodontist a couple of years ago which made a big difference, and my numbers (measuring the depth of the pockets of recession) were all improved. I use an oral b electric toothbrush (the one that goes in circles), floss lots, use interdental brushes and dentyl mouthwash (the one you shake to mix). My dentist was emphatic that this was the best one and to avoid corsodyl because it contains alcohol. Now contemplating a brace to straighten those lower teeth where it's really hard to clean. Oh, also visit hygienist every 3 months. Interestingly, I had a very premature baby which may be linked to gum disease. How guilty did I feel?!

Prisma Tue 15-Sep-09 22:18:10

I'm a fellow sufferer - rare for my age and for the fact that I've always taken really good care of my stupid teeth! Talk to me!

Prisma Tue 15-Sep-09 22:37:51

If you're still following this thread, what a relief it has been to find people similarly in their thirties experiencing the same problems as me, following pregnancy etc. I've also been diagnosed with aggressive periodontitus, had the deep-cleaning treatment and antibiotics and now spend a ludicrous amount of time cleaning my teeth. I'm also obssessed with teeth and gums and I'm always caught staring at people's mouths! Must go, need to get on with my teeth-cleaning after succombed to Haagan Daas ice cream. Does anyone else now suffer from hideously sensitive teeth?

My mum suffers from horrifically sensitive teeth and the dentist prescribed her some toothpaste that you can only get on prescription, she raves about this and its really helped her

skymonkey Thu 17-Sep-09 00:15:40

Hello Prisma (and 3littlebears, sorry I missed you), it's comforting to know there are others out there going through the same thing, although sorry that you're suffering too with this stupid condition!!!

I'm still here, plodding along with trying to look after my gums and teeth. More chilled out now, it's not always at the forefront of my mind but I get a momentary panic every now and then. Still being seen at the dental hospital, had another thorough clean and a course of antibiotics which has hopefully sorted out some of the big pockets, next step surgery :-(, will find out later in the month...

I haven't had sensitive teeth but do use the boots sensitive pro-enamel toothpaste, I try and get toothpaste without SLS and abrasives as I don't want to use anything too harsh when I clean so much now. Hope you find something to help with the sensitivity.

Has anyone here had surgery for gum disease? I really have no idea what it entails, not sure I want to know though!

Prisma Sun 20-Sep-09 22:01:06

I don't know about surgery - had the deep clean though, with the metronidozole ABs. Gums have been fine since, but teeth are suffering as roots are exposed - my teeth are rubbish too! Is bain of my life as have always looked after my teeth, 6 monthly check ups, hygenist etc. I suppose I'm genetically pre-disposed. Do you know what toothpaste your mother was prescribed 3littlebears?

Prisma Sun 20-Sep-09 22:08:46

Meant to add a message of 'Good luck' for later on in the month! I still have the odd panic about losing my teeth as well. Is an embarrassing problem! Keep reminding myself that not so long ago people routinely had their teeth whipped out at the first sign of problems.

MummyHuff Wed 21-Oct-09 23:34:13

Me too! Like Prisma, I am relieved to find I am not the only one - its an embarassing problem and not one you can really talk to people about - or at least I don't feel I can.

Would be interested to hear how you are all getting on with your treatment?

Also, would like to add that I have been suffering with this problem for about 13 years now and it has only just reached a critical point. I don't think I have had such good treatment as some of you are getting either so with luck you may never lose your teeth smile.

Oh and I have recently been using the new Corsydol (sp?) toothpaste and found it to be excellent in reducing inflammation and general soreness - it tastes grim at first but you do get used to it after a while.

PS: this is my first post - wasn't going to start posting but feel like I could do with talking to people in the same boat....

skymonkey Thu 22-Oct-09 14:31:27

Hi MummyHuff, sorry to hear you're suffering too. I use that Corsodyl toothpaste, but my dp keeps pinching it cos he likes the taste!

Well the last appointment was so-so, saw the consultant again and I'm going to have to have some surgery in a couple of areas, and some more thorough cleaning. Not sure when, have to wait for an appointment. My gums have receded a lot (don't need a halloween costume, just a wide grin!) but the disease only seems active now in a few spots.

I'm also going to take something called Periostat which is a very low dose antibiotic, to see if that helps. Well I will once I manage to get a prescription as they didn't stock it in the hospital pharmacy and said I couldn't use the prescription anywhere else, hmmm.. Has anyone else used this drug?

HoneyPetal Sat 24-Oct-09 22:05:20

Hi All,

I have accidently come across this thread, and am compelled to post. I too am enduring the misery of periodontal disease. Mine started at 13, and pretty much never went away. I have shed many a tear over the thought of losing my teeth.

I should say, Im 32. I see a hygienist every three months for an intensive deep clean, which is agony, and have done for years. My pockets are 6-8mm at the back, 3-4mm at the front and I have some bone loss. My teeth are immaculate, not even a filling, and its so frustrating to have the pain/expense/worry of this condition. Interestingly, as periodontal disease has a genetic componant, my maternal grandmother (no teeth left), my mother (starting to lose teeth) and all my sibs have the same condition.

I have tried Dentamycin and the capsules they stick under your gums. Not sure how much they help, TBH. Of course, I do all the electric toothbrushing/flossing/interdental brushing etc etc. I tried to talk to my dentist about hospital treatment and he said the NHS wont see me as my teeth arent dropping out (great prevention rather than cure, then) and a private initial assessment costs over £200, so God knows how much the treatments are. What I dont understand is if I had another genetic condition that caused bleeding and tissue loss from, say, my ears or eyes, the NHS would treat me, no question.

I am also on the pill, which I know mimics pregnancy to some extent and has been linked to worsening periodontal disease. Does anyone here have any experience of coming off the pill and their gums improving?? I dont want to come off the pill and then get pregnant, though!

Sorry for the rant! Thanks for listening.

Prisma Tue 03-Nov-09 23:12:47

I'm procrastinating the big evening clean right now sitting on Mumsnet and grinding my teeth as I read! Is good to keep finding new fellow sufferers though - misery loves company! Thanks for mentioning about the pill, HoneyPetal. I was thinking about going back on it, but if it's likely to affect my gums I think I'll pass.

paisleyleaf Tue 03-Nov-09 23:22:43

I too have gum disease, and am waiting til I'm a bit flush to get it treated properly. I'm finding the whole thing depressing and worrying and feel just the same as you Honey, that the NHS would treat any other disease. Especially as it is linked to heart disease and other health problems.
There is a gum disease specialist I could see on the NHS apparently, but it is in London (about 70-80 miles away). So by the time I've taken a shift off work, organised childcare and payed travel (as well as that NHS treatment isn't totally free) - I might as well have a consultation with a local private periodontist.
I would love to have a new set of teeth.

Hi there, just found this thread, are any of you still here? Would be interested in an update on how you are all getting on...

I have bleeding gums and my teeth are feeling wobbly and I am petrified of the dentist. Any happy endings for me?

deaddei Mon 03-May-10 21:32:32

I am 50 and have good teeth.
But my regular dentist went on maternity leave and I got this knob of a guy who was not long out of dental school, and slated the care I took of my teeth.
Apparantly I had severe gum disease- it scared the shit out of me- I have a fear of losing teeth. He talked to me as if I was 5 years old and had been eating too many sweeties- and suggested lots of treatment.
Bollocks to that- my dentist was back one day a week within 6 months, and she totally disagreed with him.
Needless to say, he has left the practice- many had complained about him- and my teeth are fine.
My sonic toothbrush is my best friend.

Hi there Sarfesticated...I am still here if I can help in any way...

Crikey, I wish mine was a misdiagnosis, gums have been bleeding on and off for 2 years. Am just petrified of the dentist now. No fillings for most of my life then one trip to the dentist for a clean had me shaking like a leaf - that jet of water down the back of your bottom teeth confused and so much blood, and the shame of it too. I do have to go, just can't bear it. Would I get more sympathetic treatment if I went private? We don't have that much money spare tbh....

Please talk me into going! --and come with me--

myrubicon Tue 04-May-10 15:10:46

I reckon I can trump most of you! Hopefully you won't feel so bad after you've read it (although if you really want to feel better about your receding gums take a look at the Embarrassing Bodies tooth problems...)

I have no fillings. I have clean, strong teeth. I have had a sonicare for years. I do all the flossing and interdentalling a dentist could wish for. Despite this... I also suffer from severe gum recession and associated bone loss (bone loss is only on upper jaw though)

The rate of loss has been rapid. I have 5 v. mobile upper molars on one side and three on the other side. I find tap water painfully cold.. to the extent that if a food or drink is slightly colder than the temperature of my mouth I'll yelp on contact.

I have pockets ranging from 1 to 12.

I am, by nature, a bit of a perfectionist; I get irritated if a coat hanger is hung the wrong way round in my wardrobe. So the idea of a grotty gob is a massive issue for me.

I have had three different diagnoses in as many years.

I recently found a dentist and asked for an optinion. He took a 3D x-ray thing and talked to me for an hour and a half. No one else had done that. It was not all good news, but he was very reassuring and pragmatic. He seemed to understand that dental issues can be emotionally charged.

I have a lot of horribly costly treatment ahead of me, but I am starting to feel so much better about all this, and if my loathesome mouth can be fixed, so can yours.

It sounds most of you are doing all the right things re deep cleaning etc. The only advice I can offer is to be very careful with corsodyl. Some dentists I know will not let patients use it unless they also book a cleaning session - corsodyl stains your teeth brown!

Good luck. It does get better...

Blimey rubicon, he sounds v. good, is he private? What treatment does he recommend? And is he in London?
Am looking for a nice dentist...
Does he offer much hope? and if you do lose teeth what can they do to replace them?
Thanks in advance!

myrubicon Wed 05-May-10 07:36:35

Sarf - he is good (I hope..). The molars that I will probably lose will be replaced with implants, which is why the treatment isn't going to be cheap sad.

I'd love to be able to say he's in london, but I live in Switzerland now so it'd be a bit of a hike from the UK! Everything here is private. It's an insurance based system, not unlike the US. My insurance is unlikely to cover me for this, so I'll be on bread & water for a while!

As for offering hope, he certainly did that, and said he expected a 100% 'recovery' both in terms of oral health and aesthetics.

He recommended a dentist in London in case I moved back half way through treatment, but having seen the website I doubt I could afford the London guy (website here).

skymonkey Sat 08-May-10 22:52:00

just came to update this thread and wow there are even more of us.

SarfEasticated- the main dentist at my practice is a bit patronising and seemed to be pretty much blaming me for my gums, don;t think he believed me when I said I did look after my teeth and didn't smoke etc. however everyone since then, those at the hospital and others I've seen at my practice have been lovely. they realise I am committed to treatment and do care about my teeth.
it is such a vulnerable place lying with your mouth wide open with all the shame of bad gums etc, but it does get easier i think, once you're there every month! good luck

myrubicon- sounds like you've got some complex treatment underway, fingers crossed for that.
i'm still nhs here so definitely will be conservative treatment from them, will have to think about private possibilities i guess, especially once the cosmetic issues get worse- one front tooth in particular seens to be wandering out at a funny angle!
out of interest, do you know why your upper jaw is affected more than your lower jaw?

so now to update on me. i still have all my teeth for the moment

the Periostat treatment went well, the consultant was impressed with that, wish I'd had it a bit sooner!

i had to have some gum surgery on one area which was much less scary than it sounds and healed up fine.

i now have enormous great gaps in my gums between the teeth where they have shrunk right back which look awful, and the front teeth still seem to be slowly shifting out of place. but the dentists all seem pleased that the gums are healthy now (what's left of them).

just on a 3 month clean schedule with the dentist again now, and will see the consultant again in June/July.....

getting more than a bit bored of cleaning my teeth but I guess it's still better than sticking them in a glass by the bed at night, for now!

Hi everyone, just reporting back just in case you are still here. I have been back to my dentist who has been replaced with a lovely lady dentist who is very friendly and kind. I have had them cleaned by the practice hygeniest but no improvement, so have been referred to either Eastman or Kings dental hospital in London for Perio treatment. In the meantime she also suggested I went to see a specialist privately, to see if was ok for me to leave my mouth untreated for the 3 months it would take to be seen on the NHS.
Blimey, private dentistry is fantastic! clean, spacious, state of the art technology, loads of time for appointments! Anyway, the very professional Perio specialist took lots of pocket readings (ranging from a few 2's to lots of 8's) and recommended immediate treatment. She trained in NY so not really au fait with NHS, but said that she imagined the quality of her treatment would be better as she has spent the last 2 years qualifying as a specialist in the area, rather than a general dentist at the hospital.
Left me in a bit of a quandary really, wait for 3 months and get them done on the NHS or get it done now and pay quite a lot for it. (don't know the exact figure)
I liked her and trusted her, so my instinct is to go with her, but maybe I would get fantastic treatment on the NHS for free.
Any advice? What would you do.

Also apparently my gums will shrink back and I will look like a horse with very long crooked teeth sad
Is there anything that can be done about that? <pathetically hopeful emoticon>

Oh and one other thing - anyone tried any alternative remedies? Am chugging down Vit C, D and Q10 like there's no tomorrow - does it help?

skymonkey Fri 09-Jul-10 19:49:40

Hi SarfEasticated,

Honestly if you can afford the private treatment I'd say go with that. I've had and am having NHS treatment which I think is good in terms of quality, but it really does take ages between appointments and they are forever getting put back. Waiting for those initial treatments was awful, I was so stressed and paranoid for months.

And yes, I now have the long crooked horse teeth (great description), they do look pretty dreadful at the gum line so I try not to smile too widely nowadays. I don't think there is really anything that can be done unfortunately

No idea whether the supplements help, I did take them to start with, whilst waiting for the deep cleans etc, but am not at the moment. There is certainly evidence to suggest Q10 is good, but it is expensive for high dose.

Let us know how you get on with treatment. I'm currently waiting for the next lot of hygienist stuff.....

Hi Skymonkey - it's going to cost £1130 to get it done privately, so we are taking money out of savings and going with her. Am actually having it done in one go on Monday - gulp. I could have waited for the NHS, but like you say, am feeling paranoid about the whole thing and just want it fixed.
Apparently it is possible to straighten them once all of the treatment has been done so maybe I might see if i can get that on the NHS?
It is all a complete nightmare isn't it. I'll find out from my lady if there is anything that can be done to make our teeth look better.... Keep thinking of all of the dentistry makeovers on that Nikky Hambleton Jones programme <dreams>

Anyway! at least we all have each other!
<gappy grin>

choclab Fri 09-Jul-10 21:06:18

i feel for you all , as i to am a gum sufferer ...have been to hygenist today ...trying to keep under control a child was terrified of the dentist as one occasion long long long ago the dentist hit me on the head so i had a fear for many years some years on i have a mouth full of fillings and crowns which need constant attention ...
i have found a fantastic dentist and hygenist who i see regularly and am alot better now ...

i hope you all get some comfort that at least not alone , there are others with this problem ..

christinechristine Tue 17-May-11 23:53:16

hi skymoney and everyone else on this forum
I have had the same problem as many of u av,concerns about my gums,neva had gum disease or bleedin apart from in pregnancy in 2004, however think it was aggressive brushin that caused it initially,however last 2 years the gums on bottom 6 teeth are still receeding!av been so worried and dentists are so annoying dont care a bit!
since last 8 months av receeded badly dont know wether cos sonic toothbrush stopped working and av got a rotating braun brush dis tym,but gums seem to av recedded wid dat,
i have since last year taken high strength vit c 1000mg,co enzyme,even bought alkaline water filter lately as read that drinking alkaline water causes the blood to become alkaline so bacteria in mouth dont like alkaline conditions,

Am really worried been dont know where to see a dentist and which ones to trust,current dentist doesnt care and i asked for gum specialist referal but that was nothig important also been to see sumne private but got ripped off as paid 200 for consultation and nothing else.

please someone let me know more about your advice and help as was thinking of getting pregnant dis year but know dreading after reading all this forum and effects o pregnancy


LeanneAndBump2013 Wed 08-May-13 20:32:39


I’m hoping people still check this discussion as I found it very relieving to read that other people are going thought what I am!

I am 24 years old and have just been diagnosed by my Dentists with advanced Periodontitis and I am completely devastated.

At first I was advised it was gum disease and I had my gum pockets measured, the measurements didn’t mean much to me as this was the first time I had these taken however following my appointment I realised how severe the disease was and how deep the pockets were so booked another appointment with my Dentist to discuss again. She confirmed with me that I have advanced Periodontitis and that my teeth would start coming loose in around 15 years (39 years old!). This was a massive shock to me and I have been devastated thinking about it since. My teeth are perfect and I don’t have a single filling but some of my pockets were 7/8mm deep.

I can’t believe I didn’t notice how severe it was sooner, my gums are visibly receding, much worse on the bottom set. I am pregnant so have been told the change in my hormones don’t seem to have helped the matter.

I was just wondering if anyone else suffered with this disease and how bad it can be? Would the Dentist just be giving me the worst case scenario by her saying my teeth would become loose in around 15 years? If the worst case scenario was to happen, are they still able to fit replacement teeth? It has also been confirmed that my bone has already been affected so I’m worried that if my bone and gums continue to deteriorate I will be left with gaps in my teeth and not be able to be fitted with implants / bridges / crowns to replace the teeth.

Any advice would be appreciated as I have got myself in a total state about it and convinced I am going to be totally toothless by the time I’m 40 blush help please!

OrangeMabel Thu 09-May-13 16:36:52

Leanne - when I was about 32 I went to a new hygienist who scared the hell out of me by telling me my gums were so bad that they would be loose in 10 years time. 18 years later they are all (knock on wood) firmly in my mouth.

I never returned to that hygienist and suggest you find yourself another dentist, have an assessment and take it from there. There's lots that can be done and you need a supportive dentist not one that scares you.

In my case I just got a sonic care toothbrush, alcohol free mouthwash and learned how to floss properly.

And, worse case scenario, if you were to lose teeth they can do bone transplants so that you can have implants. However, it probably won't come to that - just find a sympathetic dentist.

Renpc Tue 02-Jul-13 10:53:39

Hello everyone.
I have been diagnosed with a pretty severe level of Periodontitis just last week, and I don't have to tell you how scared I have been since. I had my teeth cleaned and I have started a proper oral hygiene with Sonic and interdental brushes, chewing xylitol gums after every meal. My teeth don't wobble or anything visible and that's what worried me the most..that I had no idea and no I am 15 weeks pregnant and read a lot about the interrelation of severe gum disease and preterm birth. It increase the risk of PB by 30% . I am really healthy and have been taking care of myself so well..except my mouth I's never too late though.I am really stressed out about the baby. that what matters the most to me. Has anyone had this experience or has consulted the doctor regarding this issue which is still subject of debate in the medical world? thanks a lot

Littleorangetree Tue 09-Jul-13 21:00:27

I am in the same boat as everyone here - severe case of peridontitis with alot of bone loss and I'm in my mid thirties. I was also told it was very rare to see in someone at my age and whose teeth were in good condition. When i was first diagnosed I was in complete shock and freaked out! I was referred to the dental hospital and I had treatment that involved a very deep clean around all my teeth (debridlement?), antibacterial gel around all my teeth and a course of heavy duty antibiotics.

I was told to clean thoroughly with interdental brushes and use mouthwash. I have to go for regular checks.

I feel so relieved that I'm not the only one going through this!

I'm trying not to think too hard about losing my teeth, but it may happen. My dentist has been very good about it and even though the treatment was pretty horrible, I'm feeling more positive now. Can't believe how different my teeth look compared to even a few years ago. They're all gappy now and my gums have receded alot.

mam29 Tue 06-Aug-13 23:31:05

Can I please join the bad gum club?

Had the worst week teeth wise.

gums been hurting for weeks

think lost a old filling about month ago.

been takng painkillers all week.

cath is have not been dentist in 10years have dental phobia since bad tooth extraction.

I also had horrid dentist a a kid.

I gave up smoking 8years ago
was just a casual smoker anyway
had 3kids in 8years.

since having kids noticed gums bled more.

they do look bit red and inflamed.

tried extra flossing, interdental brushes and brushing 10times a day.

but i can see visible gre plaque cant get off?

can I buy a tooth scraper as floss not working.

anyway booked appontment with nearest local njs dentist who had space.

I explained I had dental phobia

i was really nervouse.

They were not english just 1 lady dentst and her nurse plus rceptionst who seemed the nicest of the lot.

whilst waiting i heard rceoption ring loads people reminding the when their appoitments were which seemed bt odd as she must have rang least 5people.

The lady before me 3pm looked really upset when she came out.
hubby had kids iutside as was told they too noisy.

when i went in their engish was fine interpersonal skills not great.

she said i had advanced perondtas and could lose all my teeth by time im 40.

I was bit upset.

i had lost filling which she said she try refill or extraction.

as for treatment about gums she said needed 3cleans but would not expain how they clean and told me yes it be painful and she could seate me but if i couldent cope and acted like im being silly then dental hispital could put me under.

im really scared

she was really off and said take antibiotics/cordosol
keey brushing, flossing

the book in for more treatment if i want to keep my teeth.

she looked at me it total horror and sgust and made me feel quite crap.

I asked about pregancy and shes says that common excuse.

I admit not always flossed but always brushed
dont eat lots sugary stuff.

she dient even say goodbye i realy dident like them

is it too late to change?

i did search locally and all the ones who deal with dental ohobia are private.

today cost me £18 for 15min check up then any subsequent treatment be £49 as band 2.

if i need lots of treatment i think i need to go someone who puts my midn at ease.

i found current one through nhs find a dentist and had good 3star rating.

found another few miles away has 5stars looks much better modern bright practce says they good with dental phobias missedit before as was page 10.I ont mind travel find the right dentist.

horrifie how they can call it nhs no wonder uk has teeth problems.

im really scared and upset was she trying to scare me?

I dont disbelive i have gum disease but no teeth are loose apart from red inflamed gums and some visible plaque my teeth are fine.

Told my mum who said my fault as dont brush properly and not been for years.To which I say hows your dentist ad she says she hasent been in years and hates going same time as lecturing me for being slack.

will the antibiotics help?

i taking loads painkillers for the pain.

I hate chewing gum would chewing starburst have same effect?
whats a sonar brush?
any specific toothpaste I should be using?
apart from interntal brushes can i try get rd of plaque at home in any other way some bits has loosen over last few weeks and scraped away with nail knife.

im devestated and scared. I know I need treatment.

I guess next step is try reregister with someone more sypathetic,

woderng if i might be bettr off having 1 big clean at dental hosptal under general?

wish I had money to go private.

mys ssters training to be dentist bt has another 4years to go ad helping poor people in inda for next 2weeks.

shes in it for money and wants to get into high end cosmetic dentistry so maybe she be help further down the line.

my husband has awful teeth loads chipped, missing and fllings but he says his gums are fine..

Officiallyamazing Sat 17-Aug-13 23:25:19

Just thought I'd add my experience. I've also got advanced periodontal disease and have been having treatment for the last year. I have 80% bone loss in my 2 top teeth and 50% on 4 of my molars. I did have deep pockets, but these have all gone following deep cleaning/antibiotics. I've found that using a water jet has made a massive difference to my oral health, and for now my teeth are stable. I also have horrendous looking teeth following deep cleaning as my gums have shrunk back so much. However I have a gum shield/veneer which is basically a gum coloured bit of silicone (I think that's what it is, anyway!) that slots into the gaps in my gums (made to measure using moulds). It wasn't cheap (£750), but was worth every penny, as it means I can smile without worrying. I still hate my teeth though & spend a lot of time worrying about them...

Alexia123 Wed 08-Oct-14 10:45:13

Hi I'm just wondering if anyone on this thread could give me an update as yo how they have got on with this terrible disease! I've just been td I have advanced periodontal disease and that I will loose all my teeth . I am not coping at well with this ... I have such a fear and it's taking over my life!! I'm just wondering how you all are and if there is any ray of hope ...

My pockets were due to grinding and so moving my teeth in the night. I now wear a retainer each night to stop me doing so and it has made a huge difference so check that you are not doing this.

Alexia123 Wed 08-Oct-14 12:40:27

No it's not due to that I don't think ! I've had trouble with bleeding gums when I was 20 and then stopped .It reappeared when I had my son about 7 years ago for a short while and then since then no bleeding ! I've had three dentists in that time at the same practice and recently I went to get a filling done and a week later I noticed my gums were receeding quite badly ! I went back to the practice and they were surprised to see me . I told them about my gum fears and they probed me up and sent me to the hygentist for deep cleaning and to come back after a few months to see if that improves the pockets ! It didn't and now I have been referred to a periodontist in the nhs but the waiting list is 12 weeks! My dentist took more X-rays to send with my referral and at that stage I asked her if I was going to loose my teeth ? To which she replyed yes you are going to be wearing dentures ! As you have chronic gum disease !!! Well I started to get upset and she told me to came down as they wouldn't all fall out on my pillow !! I asked her how long they would last and she said I don't know how long is a piece of string !! That was three weeks ago and i havnt stopped crying and I have such a fear everyday ! I have multiple 6 mm pockets. I have been very stressed In the last three years and I Probablly have eaten more junk than normal but I associated that with tooth decay which I don't have alot off! I have been going to my dentist religiously ... I got a second opinion who said I do have gum disease but he thinks there's no reason why I shouldn't have the majority of my teeth when I am 60 . However i just can't believe him based on what my dentist has told me and how much my gums have receeded and the fact that I have multiple 6mm pockets and bone loss I'm feeling so anxious in case you can't tell ! I'm at work and feel so emotional . I've lost a stone in a half in three weeks due to the worry !


LightastheBreeze Wed 08-Oct-14 20:24:43

I've got bad gum disease and have had for years, started losing my teeth in my early 50's and now have a partial denture, will probably lose more in the next few years but hey ho there could be worse health issues than a few missing teeth. Alexia, are any of your teeth loose, because some of mine were loose for years before I had them removed and were sticking right out of the gum and were quite uncomfortable, if they're not really loose they could go on for years

Alexia123 Wed 08-Oct-14 23:04:50

Hi lightasthebreeze smile! Thx for posting ! Yes a few are loose .... Have you been told you will loose them all at some point? Do you mind me asking what age you were when you were told
that you had advanced gum disease and what were your pocket sizes ? I know there are many many worse things that could happen up me .. But I've just got myself into a terrible mindset about it all ! I'm going to have to get a grip !
Also can I ask did you ever get referred to a periodontist and have any deep treatments carried out ? confused

LightastheBreeze Thu 09-Oct-14 08:04:17

I have had gum disease since I was about 25-30, After I had DS age 34 it got worse, all my teeth are quite ropey anyway and heavily filled from the drill and fill culture in the 60s and 70s.

It just gradually got worse, I have deep cleaning under the gums every 3 or 6 months to keep it at bay, probably for about the last 15 - 20 years, I can't remember, it seems like forever and have also had the antibiotic treatment when I was about 50. All of this does help and the dental hygienist said it was not all my fault some people just have the sort of saliva that is bad for teeth and gums. My DH just give a quick brush to his and they are fine.

My pocket sizes are about 4-7 mm and have been like that for years, Now I just have them out if they get bad, I'm 56 and I guess by the time I'm 65 or perhaps before I will have a full set of dentures sad, I have had about 13 teeth out so far but 4 of these are my old ropey wisdom teeth and just have partial denture at the bottom. I'm resigned to it now as when you get older you see that other people have much worse health issues and I can even joke about my poor teeth and gums. At least having them out gradually and having a new false one put on my denture, I'm not having the horror of them all removed at once like my dad did when he was 40.

Alexia123 Thu 09-Oct-14 12:53:07

Lightasthebreeze thank you so much for taking the time out to chat to me ! It's really helped me ! I'm sorry that you too aren't blessed with good gums !! My husband sounds like yours brushes his teeth once a day and no issues and he's not lead a healthy lifestyle by any means ! I'm trying to get him to floss and clean more but he's not interested !! Which is amazing considering hes seen me in a bit of a state over the last few weeks ! He says I've never had good looking teeth nor any of my family which I do agree on. however this is to do with the gums ! If anything we can teach better oral health to our kids !! IBig hugs lightasthebreeze !! Thx so much again xxxsmile

Bettyla123 Wed 12-Nov-14 19:06:51

Hi, I'm Betty i also suffer from this embarrassing depressing gum disease for years too. I been going to my hygienist every three months and it has seems that my gums along with my teeth getting worse and worse. I floss twice a day brush my teeth twice or more and recently started chewing xytol gum after meals but nothing seems to be working. My lower gums have shurnk dramaticall to the point that they have shifted and now loose not to say my front teeth are also bad n gums had shurnk. I don't know what to do i don't have insurance i am basically out of pocket. I've lost all hope and resignated to use dentures. Anyone knows where i can go to save whatever teeth i can save? sad

Woozlebear Thu 13-Nov-14 14:36:59

I've just found this thread. Haven't been to dentist for years- huge huge phobia. And after sticking my head in the sand for a long time I have finally booked an appt for next week. My gums are badly receded in several places and I'm absolutely shit scared.

pinkfrocks Thu 13-Nov-14 15:59:22

Betty- can your GP refer you to a dental hospital? It might be worth asking because they can sometimes treat hard cases that normal dentists aren't managing.

As far as I know the treatment should be deep cleans of the sockets using a local anaesthetic if needed, antibiotics to kill bacteria, mouthwashes like Corsidol, tee pee brushes for cleaning between the teeth and of course avoiding food and drink that are sugary.

Mrsmorton Thu 13-Nov-14 19:55:41

Betty have you seen your dentist about it? Your GP would tell you to see the dentist (who can then refer you if necessary). IME, 99% of GPs won't take any responsibility for dental problems quite rightly IMO.

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