CD - at not knowing what my own nickname was and at not liking the stuff that I accidentally named myself after! Thanks for the website link. I have read it and may look into it further. It would be lovely to be better.
SecondHandRose - I'm not trying to be picky, but I don't think it is a question of mind over matter. I've missed out on going to funerals of family members that I really wanted to go to, and so many different things. Basically, if dh isn't there to do the driving, planning, etc then it doesn't happen. I've had to give up work for many months when I really enjoyed it. I don't know if or when I'll ever work again. I've had to give up my hobbies entirely. I had a large network of friends and relations that I used to write to regularly and now it's just a few words in their Christmas card. I hope that doesn't sound harsh. I don't mean it to be. I've been existing for the last 3 years, not living. I've done everything the doctor has suggested as best I could. I've seen a card for a group, but getting ready to go out is hard enough (getting showered and dressed is hard work when you're exhausted) without the added stress of getting there and back as well. If I was to do that, I would be shattered afterwards and then I wouldn't be able to fetch the children from school, make their tea, etc.
Chocol8 - Don't be worried about not having the energy to answer the phone or about feeling bad about admitting it. I've been the same and sometimes I am still, even though I've learnt to pace myself far better. Unless you've been in tears about having to do something (i.e. walk upstairs) that other people wouldn't think twice about doing, you can't understand the effect of M.E. on your life. I don't like even close friends knowing how bad it can make me feel and how tough it is even though I'm not working at all atm. When do you go to the M.E. clinic? What blood tests, adrenal tests or whatever have you had so far? Sorry, got to go, dd has had a nightmare. Will check back tomorrow.