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still having problems after gall bladder removal

(166 Posts)
Babyramone Sun 30-Dec-07 22:51:57

Hi have posted about this before.
Had my gall bladder removed in august since then have had 3 attacks similar to when I had gall stones. Had the 3rd atttack on friday and it was awful. Nearly phoned NHS24 but after taking both cocodamol and diclofenac got it under control. Anyway will be visiting G.P tomorrow but wondered if any onw else has experienced this.
I googled (bad idea i know)and there is a condition called Post Cholecystectomy Syndrome.
Has anyone had this?
I seem to remember someone mentioning this on a previous post, may be wrong though.

marycharlotte4 Fri 26-Jun-15 20:23:55

i had my gallbladder removed 3 yrs ago still had pain after but milder then it seemed to settle down however recently I have had 3 quite serious attacks after removal the scan showed no stones in the bile duct . where do i go from here i have lanzoprazole but it doesnt stop me being violently sick and in pain

whyme23 Sun 25-Jan-15 06:01:26

I had my gallbladder removed 1 year ago after living with the pain for almost a year, My first few attacks only lasted an hour or two and at the time I thought it was food poisoning. The attacks were spread out in the beginning, one a month or they would only last a few minutes so I would forget about it. The month before I went to the hospital was the worse, I was having an attack once every few days and they would last 12+ hours. The day I went to the hospital I had been having an attack for 48 hours straight, I went in they took blood and did a ultrasound test and sent me home telling me someone would call me in a few days. Well they called 2 hours later telling me I had acute pancreatitis and needed to come in right away, had surgery to remove my gallbladder the next day. I have felt great up until last night when I had an attack out of nowhere, same unbearable pain with sweating in the same location. I'm not really sure what to expect now. I found this forum post after searching google for help, I have read every post and it has helped me, knowing I'm not alone. I think I'm going to make a doctors appointment on Monday and hope for the best, also going to drastically change my diet low fat/low cholesterol.

The main reason I wanted to make this post was to share a way to reduce the pain and make it easier to breath during an attack, I found that if I sit on the edge of my bed and roll up a pillow and put it in the middle of my back and lay back on it, it reduces the pain by about half and allows me to breath in without the sharp pain.

I hope this helps.

yetwig Tue 30-Dec-14 13:05:50

I had my gb removed 2 years ago every month or so for 6 months I was having the same pains as before sad so I cut out most thing dairy and gone low fat. It has made a huge difference smile no more attacks x

Nikki1L Mon 29-Dec-14 19:43:25

All all, just stumbled on this and well I had my gall bladder removed 12yrs ago at 30 (I was told I was quite young for this) I too had acute pancreatitis I have never really been big on drinking. I have suffered constantly since, after the op it took me nearly a year to be able to eat properly was running for the loo with in minutes never sure what end to stick down the loo, this did eventually ease but have had pains ever since, I have put the weight back on (probably a little to much) but it's seems there is no reason to the pains I seem to really suffer with an acid like pain, some more intense than most to be honest, have been to the doctors many times over the years, have too been fobbed of with it being IBS, I have done food diaries to try to pin point triggers, was never big on fatty foods so it is not that but just can't get to the bottom of it. I too was not told about and of these problems that could come as a result of the op.. I am at my wits ends as sitting here typing this, with the same acid feeling and all I have eating is a brown bread sandwich with no marg/butter only sliced chicken, and have only had 2 coffees today what is wrong with that? I had lanprazole in the early days that didnt seem to do a thing so stopped. I was told by a dietitian, to cut out dairy, wheat and gluten, fatty foods red meats, but what does that really leave. I live with it most days and well just get on with it now but if any of you lovely people have and tips or food tips that would be great x

MNL0515 Mon 08-Dec-14 12:25:57

I had my gallbladder removed in April of this year. Found out I had gallstones while pregnant and had the removal surgery shortly after giving birth. I was one of the ones that had hundreds of tiny stones. I was in and out of the emergency so much while I had gallstones I didn't know what to do. And now that my gallbladder has been removed, I'm still having the same attacks as when I had it. I'm currently typing this while having an attack. I don't know what to do. My GP has put a referral in for me to see a GI doctor but I don't know what to do in the meantime to help with these episodes. I just want some relief and to be pain freeblush

PinkSparklyElephant Mon 13-Oct-14 13:01:56

claire could the omesprozole be causing problems? I was put on lansoperazole after I had my gallbladder removed and it made me feel constantly sick, tired and generally ill. My GP was going to send me for an endoscopy but I decided to try coming off the lansoperazole and I feel a whole lot better and didn't have to have the endoscopy.

rivetinla Sun 12-Oct-14 19:09:27

I just had gallbladder removed 9 days ago and everything has been fine until today. I am experiencing excrusitating back in my lower lumbar on both left and right. Deep breaths or any movement makes the pain worse. Anything I should worry about or will this pass?????

claire12004 Sun 05-Oct-14 16:20:39

hi guys i had my Gall bladder removed in feb 14 wish i had kept the damn thing had first attack in nov 13 thought i was having a heart attack. back pain stomach pain sickness sweats i had never experience pain like it. finally had it removed in Feb thought great get my life back to normal. little did i know nearly 1 year on from first attack i`m still in agony cant work due to stomach pain bloating constant diorreha. i have just had a colonoscopy everything was normal, was prescribed omesprozle for acid back in Aug this year absolute waste of time. i cant even eat a roast dinner (without gravy) after 2 mins of eating im on the toilet, if i knew then what i knew now i would never had the surgery. now i have to see yet another consultant to see if i can have endoscopy (camera down throat) all blood test have come back normal( liver, kidneys pancreas ) anyone else having these problems? i was on Tramadol and diclofenic which i stopped after surgery as i didnt want to get depended on them and they made like a zombie lol. please help if anyone has these same problems.

Qhuier18 Wed 11-Jun-14 08:22:23

hello is anybody here knows about the urso treatment ? i wanna know about it .

1 month ago i undergo surgery (gallbladder removal) due to ihave full of galstones , 1 week after the surgery i found out that the pain that i'm having before the surgery is still there , until now i'm having the pain almost everyday and im tired of it. then i found this thread and read about the urso treatment research and been thinking of theres anyone else knows about it ? i really want to solve this pain . it kills me everyday i am a mom of two kid. its sad that i cant even took them care because of this pain .

nannymary1 Sat 17-May-14 17:35:54

Thank goodness others have had problems after having their gall bladder removed, I thought I was going mad! I am unable to toleratevery much fat, if I do the outcome is not pleasant and very swift. It is over 6 years since my op and I have just had the most miserable holiday with really severe pain. I am due to hae a scan in a couple of weeks but in the meantime I have been perscribed Buscopan which does seem to cut down the time of the attacks.

Bethyboos Sat 05-Apr-14 00:02:33

I want to add that the ultrasound scan did not show the stone but the MRI did so make sure you push for an MRI.

Bethyboos Fri 04-Apr-14 23:35:51

I am writing this I case it could help anyone.

I had ERCP and then gallbladder removed last September. From about November last year I started getting the same pain as before gallbladder removed. The first pain lasted about 2 hours. After that I had the pain about twice a week and I learnt that if I kept drinking water and burping and lean forward then the intense (labour like) pain would go after about 10 minutes. The pain normally comes after eating large amounts of food or ice cream or margarine.

Saw GP and he gave me omeprazole but it didn't help.

Saw private consultant and he told me this intense pain is not normal after GB removal. Had scan and MRI and it turned out to be a stone in bile duct. It is not blocking duct but travelling up and down. Must have got there after last ERCP but before GB removed. Have to have ERCP again.

nadarayon Fri 28-Mar-14 13:40:06

i had my gull bluder remove 15 years ago and still having the same attack horrible pain,,ive been in the hospital many times ,blood test always shows inflame in the Pancreas,last week i had a Hysterectomy,sinse 3 days each time I eat or take my medication im having same attack before my gol bluder remove with vometing,im in alot of pain im scard to eat or take antibiotic ,,,i liv in fear

Lancs1 Thu 09-Jan-14 11:07:24

You may find this abstract useful, published in the medical journal Gastrointestinal Endoscopy in 2008. Bear in mind that this is a small study and would need to be further investigated with a larger study.

BACKGROUND: Microlithiasis has been identified as a cause of idiopathic acute pancreatitis in patients with an intact gallbladder. Microlithiasis has also been identified in the bile of some patients who have undergone cholecystectomy. However, it is unknown whether bile microlithiasis causes postcholecystectomy pain.
OBJECTIVE: To identify bile microlithiasis in patients with postcholecystectomy pain and to investigate the therapeutic effect of ursodeoxycholic acid (urso) on such patients with microlithiasis in the bile.
DESIGN: Prospective randomized trial.
SETTING: Tertiary medical center.
PATIENTS: Patients with postcholecystectomy pain and bile crystals.
INTERVENTIONS: Urso treatment.
MAIN OUTCOME MEASUREMENTS: The severity and frequency of right upper-quadrant abdominal pain were compared with and without urso treatment, and before and after urso treatment.
RESULTS: A total of 118 patients with postcholecystectomy pain were screened for the study. Twelve patients (10%) were identified with bile crystals. In the first phase, 6 of these patients received urso treatment, whereas the other 6 patients did not receive urso treatment. In the second phase, the latter 6 patients were given the urso treatment. After using urso for a few months, their biliary-type abdominal pain significantly improved or resolved. In the control group, there was no improvement in symptoms. There was a significant difference between the 2 groups (P = .01).
LIMITATIONS: Single-center, small number of patients.
CONCLUSIONS: This study provided evidence that supports the hypothesis that bile microlithiasis is indeed a cause for postcholecystectomy pain. Patients with such postcholecystectomy pain may benefit from a microscopic examination of bile for crystals or microlithiasis, and urso treatment if bile crystals are identified.

I had my gb out on 30th nov.
I sadly got a chest infection post op which I am sure hasn't helped but I am getting horrendous back, rib and shoulder pain sad
I go back to see the cons on jan 8th..any tips? I don't want to take heavy pain killers and I have 2 young dc but it's pretty grim.
I am also trying to cut out wheat slough I have to say up to now it hasn't helped sad

lobsterkiller Wed 18-Dec-13 19:18:53

Well just to update, I had a scan and there has been damage to the bile duct, which is quite normal from a GB op and causing my bile duct to spasm so it feels like an attack. I decided to experiment and cut out gluten as a starter for ten.....I've had no more "attacks". Hope this helps.

filbs711 Wed 18-Dec-13 18:03:16

Hello Guys, I had my gallbladder removed 4 weeks ago and was fine no problems at all, back on normal diet and was fine then I over did the fat content i mean by miles so silly and ever since have been in so much pain as if have gallstones again, i feel as if been punched in stomach.
I went to doctors and he gave me pain killers and gaviscon even though I am on Omprozol (spelling could be wrong) which i take twice a day.

I am still in so much pain, can anybody help or suggest what to do? I've already gone back on low fat diet and water and still no reprieve

StevenTomer Mon 09-Dec-13 21:03:28

I forgot to mention this - she had also had an ERCP with sphincterotomy, and yet the pain continued. Try Ursodiol!

StevenTomer Mon 09-Dec-13 21:01:56

I want to post this for anyone that has this incredibly frustrating problem.

My wife had daily pain attacks, all in the upper-right quadrant. They lasted between 5 minutes and an hour, and could be incredibly severe. She had already had her gall bladder removed.

All the imaging she had came back as normal.

After substantial effort and MANY gastroenterologists, including one at the Mayo Clinic, we were able to come up with a solution - it is biliary microlithiasis. Essentially, small calcifications in the bile that flow through the common bile duct from the liver get stuck at the Sphincter of Oddi (where the bile duct enters the duodenum).

Imagine a grating where water is flowing through, but small rocks and pebbles are flowing also. Normally, these rocks and pebbles can pass through the grating, but if enough of them come at once, they can stop the water flow.

When this 'sludge' or these calcifications build up behind the Sphincter of Oddi, this causes pressure, and the pressure causes pain. Eventually the pressure pushes the calcifications through, which relieves the pressure.

Essentially you're feeling a gall bladder attack without the gall bladder.

And every GI doctor we went to thought the problem was IBS or nerve pain or just in her head. Incredible. But there is a medication that can make it go away!

We've found the drug Ursodiol to be a godsend. Ursodiol dissolves the calcifications as they pass through the bile duct. It's relatively inexpensive, we haven't noticed any side-effects. And it's like turning on or off a light bulb. If she's not on it - pain attacks extremely frequently. If she's on it, it's about 99% effective in removing the attacks altogether.

Please ask your doctor about this, if you have these symptoms. We are amazed how well it works!

DolphinZiggler Sun 25-Aug-13 23:38:23

Hi guys, so Im 29, I had my gallbladder removed n 06/07, I was pain free but in the last couple of years I was experiencing the pain I had before the GB was removed, however this time it was more sharp than before like able to take my breath away.

I found by accident that vomiting can relieve the pain somewhat but obviously this isn't a decent enough solution, I've been to my GP who gave me Lanzoprazole (sp?) It has made the vomiting less acidic and painful but still hasn't stopped the pain in my upper right abdomen which radiates through to my back and up to my right shoulder.

So after badgering my GP they took 2 lots of 4 sets of blood samples which showed my liver enzymes were raised, I don't have hepatitis or any other auto immune diseases, but my GP is no closer to coming up with an answer and I've got an ultrasound appointment on the 29th hopefully they'll see something they can tell me about.

widgets80 Thu 08-Aug-13 13:33:35

I had my gallbladder out over 8 years ago and my partner is currently in hospital after having surgery on Tuesday but has had a load of complications which is how I stumbled on this site. I suffer from Bile Salt Diarohhea which is an uncommon side effect, not very pleasant but can be managed. But the pain a lot of you have talked about on here is something I also experienced. I was so bad, the doctors put me on pethidine to manage the pain as it used to feel like I couldn't breathe! I had on and off occurances for 2 years after my surgery - I had scans, including an endoscopy, was prescibed Omeprazole and many other things until I figured it out and I stopped taking anything with codeine in. Yummymummy3maz I also suffer from migraines and this is how I discovered the link between my pain and codeine. I usually took migraleve for a migraine but since my gb removal, it made me worse - vomiting, severe pain and feeling like I can't breathe. Initially I put it down to being a very severe migraine until I made the connection. Look for migraine tablets that do not contain codeine in as most of them do. I use Sainsbury's migraine relief now or the nurofen one which only contains ibruprofen and lysine - both of which seem to be ok for me.

For everyone and anyone who is suffering pain after gb surgery whether it was one month or 20 years ago. It may not be what is causing your pain but check for any relations between any drugs you are taking and the pain. The liver is what processes many medications and the absense of a gallbladder and therefore the "store" for bile seems to cause an effect. Codeine is definitely one to avoid - once I discovered my migraine tablets were causing the problems and then realised it was specifically codeine, I have been pain free since smile now 6 years. It may not be everyone's cause but hopefully this will help some people stop suffering.

TattooAddict1986 Wed 03-Jul-13 15:27:04

Hi everyone im new here, I canny believe how many people are all having the same problems after GB surgery. I had my first GB attack when I was 19wks pregnant and ended up in hospital bent over in agony being really sick. After an ultra sound they found small stones in my GB but said it wasn't that and said I had bad acid reflux so put me on Ranitadine, and i took milk when I was having an attack which started to happen every 2/3wks.

After giving birth to my daughter the attacks continued and after a ct scan with die put in through a drip and blood tests they finally said i should have my gall bladder removed and milk was probably irritating it more so I switched to water, it really helped stopping it lasting so long.

I finally got my surgery Jan 2012 when my daughter was 9mths. The surgery went really well and I recovered relatively quickly. Apart from the occasional bloated stomach and aching I was all good. Well until Jan this year I was hit with another agonising attack and another one a few weeks ago, again only water helps to relieve it.

Now for the past 3 days I've had mild pain under and around my ribs on the right side. I'm so fed up with it all now and at a loss. X

IsabellaPasta Tue 18-Jun-13 22:25:39

Thanks alwaysme I thought I was going abit bonkers and trying to describe the spasms to other people is often met with > hmm. I am glad I had my gallbladder out as the pain was immense and if it had stayed, I'd no doubt have far more problems due to stones on the move etc. However, Post-cholesystectomy syndrome - as I understand is the collective term for all of these issues - is so rarely acknowledged. I am going to try the doctor for the omeprazole as I sometimes get a warm feeling in my stomach too which is no doubt caused by the constant presence of bile, and will insist that I am referred to a specialist, even if I have to go for a private referral. I will let you know how I get on and share anything I hear that may be of interest. Look after yourself, you sound like you've been through the mill.

alwaysme Sat 15-Jun-13 01:23:00

Hi Isabella, are you me? !! I could have written your post word for word. I had my gall bladder removed in 2011 and then ERCP to remove 4 stones stuck in bile duct. Within days after ERCP I suddenly got those flutterings and spasms right at the top of stomach where the pain was before ERCP. They gradually got worse so that instead of discomfort it became pain.

Doctor put me on Omeprazole and although I still get the fluttering and spasms, they don't turn into pain. I seem to have to keep eating frequently or the spasms get worse. I did attempt to give up the omeprazole, big mistake. Was fine for 4 days and then the spasms were followed by real pain again. Took 3 days back on the pills to get it under control.

I did Dr Google and came up with the same answer as you re oddi dysfunction. I've had two hip replacements since this all started, just recovering from last one now so have just left this problem for now. Not much help but at least you know you are not on your own with this. If your doctor does suggest omeprazole it might just help if your spasms get really painful, mine certainly did.

If you do get anywhere with answers from your doctor please come back and say. Feel I have been stuck with this for ever.

IsabellaPasta Fri 14-Jun-13 22:23:56

I posted the following on a separate thread but got no replies. This thread might be a better place for it.

I had my gallbladder out a year ago after 8 months worth of tests, waiting, and finally an ERCP with sphincterotomy to release a stone stuck in my bile duct. Shortly after, within days actually, I started to get what I can only describe as fluttering and like my tummy was rolling from the inside - felt vey much like a baby moving about. I also got spasms in the same spot as the pain was when the stone was stuck, so the bile duct area. At first the spasms and fluttering weren't painful at all, just felt weird, but as time has gone on, the spasms have got more intense and rather painful. They mainly happen when I'm hungry and last no longer than 2 or 3 minutes but this still doesn't feel right and I get them every day. I am finding that I need to snack on the hour to avoid them. To my shame, I have been on Dr Google and the sphincter of oddi dysfunction describes my symptoms to a tee. I wondered if anyone had been through the same, particularly after a sphincterotomy - which ironically is the treatment for oddi dysfunction! Obviously, self diagnosis isn't the ideal way ahead so I intend to ask my GP to refer me back to the team that did my ERCP and lap chole, but I have a feeling that because I am not in chronic pain, I may not be taken seriously and fobbed off wth drugs. Really wondered if anyone had any advice for me or any experiences to share. Many thanks.

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