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Feeling sorry for myself tonight - fibromyalgia

(5 Posts)
sweetkitty Tue 26-Jul-16 23:35:43

My body feels like it's just given up on me. It's just sore all the time, I hurt, I ache.

I can't sleep right now as it feels like my back is on fire. Yesterday I slept for over 11 hours, I went to bed at 7.30pm as I kept falling asleep on the sofa, woke at four in agony from same back thing, was up an hour then went back to sleep. My head hurt yesterday too pain up my neck and shoulders.

The worst pain is in my pelvis, I took upbringing last year but I have unstable SI joints and my body basically couldn't cop so since then I've had pain in my pelvis, I can't exercise or do much anymore apart from walk the dog which takes a lot of energy.

To top it all I'm about to start a very demanding uni course, something ive wanted to do for about 15 years, I worked hard to get on the course and now I don't think I'll be able to do it. Some days I'm full of fight and think I won't let the fibro take over my life but days like today I'm very low and think in kidding myself I can do this.

Why did I end up with this shitty illness it's so hard being in constant pain. I'm on cocodamol 30/500mg which takes the edge off and pregabalin 100mg twice a day which isn't doing much.

Sorry for the woe is he post.

GenghisCalm Tue 26-Jul-16 23:54:55

Sorry that you feel so bad. I hope that you feel better soon.

Simmi1 Wed 27-Jul-16 10:47:11

Sorry as well Sweetkitty -I'm in a similar position although mine is more bowel/bladder issues. I was really healthy up until 10 months ago and just feel gutted - like my body has given up on me and I'm only 40. Some days I'm more positive but others I'm just soo fed up! Are you any better today. [hugs] I know how shit it is 😢💐

daisychicken Wed 27-Jul-16 11:12:34

Oh I'm sorry SweetKitty - how are you feeling today? Has it settled at all?

It is horrible when it takes over and does make you wonder about the future - I know, I've been there and still go there..

Have you worked out your baseline of activity? That is the minimum you can do that doesn't set a flare up?

Doing this helped me enormously because I can then plan a bit so for example, I know when I do my course (it's part distance learning and part classroom based but the classroom is only 2 days a month) in the classroom then I need to make sure I only do my baseline activities and no more for a couple of days or so before and a couple of days or so afterwards. Everyone's baseline is different but over time you can increase your baseline for example you might want to increase your exercise so you may only do 2-3 days of a very short walk - say 2-3 houses length and back again for a week, if that is ok then you'd do the same for another week and then perhaps add a 4th day and so on but if it sets off a flare, then you'd drop it down so say 1-2 houses length and back etc.. It's taken me a long time to figure this out and only by talking to people/reading Fibro blogs etc.. My GP kept saying do less but keep going - I couldn't figure out how to keep going but do less! It hasn't stopped flares but I'm more aware of what I'm doing and I'm consciously planning what I can do so I am finding it easier to cope if that makes sense? It might make it easier for you win your course and fitting it in around your home life.

We need to get our thread up and running again or would all us chronic pain/chronic fatigue mumsnetters like a Mumsnet Fibro support group? I'd find that helpful.

sweetkitty Wed 27-Jul-16 18:36:38

Thanks for the messages

I'm better today still sore though but about more bearable. Very tired today I have pushed myself I don't have a baseline of activity I just ache and feel constantly exhausted. Also makes me short tempered with the DC between them asking me things and me having to think, the bickering and them being ultra messy.

This time last year I was running 3 times a week and wasn't in pain, so frustrated with it

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