Hi - I've just been diagnosed with EDS Hypermobility type and POTS.
So much to take in, I didn't really feel like I got to ask enough questions and bit uncertain about the future.
Anybody who has this and can share their experience / tips I would be really grateful.
Is it a progressive syndrome or is that an unknown? I have been reading lots on the internet but can't really find an answer to that?
I'm particular interested if anybody else has EDS and prolapses?
Everything has got progressively worse in the past year - 2 prolapses, one repair that failed after 4 months. My main (there are a lot!) symptoms are pain in joints, general weakness, massive anxiety, terrible indegestion, acid, constipation.
I've already started a no dairy no wheat diet which has helped massively. But not sure if this is something I will have to keep up forever?
Is it worth going to discuss with my GP do they even know anything about this?
If you have this how do you control the anxiety and palpitations? Sometimes I feel like I'm going to faint / be sick / have a panic attack just because I'm a bit hot / tired. I sound like such a weekling!
Thank you if you are still reading.
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General health
Anybody else have Ehlers Danlos Hypermobility
16 replies
Addictedtohotbaths1 · 25/04/2016 20:55
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