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Help diagnose me please (sorry a bit long).

(59 Posts)
lozwil Wed 24-Feb-16 09:31:37

So after a mmc in August at 12 ish weeks I have had a lot of random health niggles and various Dr's appointments (at one point they even mentioned lymphoma) but I still have no idea what is wrong with me so feel free to comment as any ideas are welcome as I cannot remember the last time I didn't have some sort of pain and I feel like a rubbish mum to ds and we also want to ttc ASAP but I don't feel like it would be sensible at the moment until I feel better able to cope my symptoms are as follows:
Pain in my shoulder all the time this sometimes is accompanied by numbness in my arm and hand and pins and needles especially in the middle of the night.
Since December I have had pain in my lower back that radiates down my left bum cheek and leg sometimes as far down as my ankle which had been know to wake me up sometimes it is worse than others last week was fine this week it has woken me up at 4 am every morning.
I have had bloods done for thyroid, liver function and fb all fine, I have had a scan on my gall bladder all fine, periods are just getting back to normal after mc and I have ibs and have had for years so tummy sometimes sore but I have had this for years. My Gp says he thinks it is muscular and at first just gave me something for the pain and has now requested physio but I am not convinced as it has been going on so long. I am totally fed up that I am only 34 and my body has turned against me, plus it wasn't helped yesterday when a lovely colleague said that they knew someone with back ache like mine and they were dead within a few months cos it was cancer confused

MigGril Wed 24-Feb-16 09:41:34

I would go see a good private physio and get this assesed. I've had fantastic help from physio in the past but as I discovered resenting the one I got referred to in the NHS caused more problems. Did manipulation I've been told I should never have and I think was generally pants.

I'm sure they aren't all like that but he just didn't seem experienced enough really. A good physio should be able to say if it's a problem they can help you with our something that needs refurral onto someone else.

lozwil Wed 24-Feb-16 09:52:53

Thank you I will try it I am sure I get some health cover from work which may cover it, tbh saw dr over a week ago and got a txt this morris saying the referral has only just been done and I know I could be waiting months which fills me with dread x

ijustwannadance Wed 24-Feb-16 09:56:25

Shoulder and numb arm/pins and needles could be an issuse with the nerves in your neck.

Fusch Wed 24-Feb-16 10:53:01

Have you been checked for antiphospholipid antibodies?

www.hughes-syndrome.org/about-hughes-syndrome/what-are-the-symptoms.php

Fusch Wed 24-Feb-16 10:56:57

www.hughes-syndrome.org/about-hughes-syndrome/veins.php

Numbness and tingling is also a symptom

Re your mmc - how far had the embryo developed?

lozwil Wed 24-Feb-16 12:30:58

Thank you for all your replies I think they said it was measuring around 10 weeks although tbh it was all a bit of a blur we went for natural management but about a week later I ended up in emergency surgery due to loss of blood and part of the placenta being retained

Fusch Wed 24-Feb-16 13:03:58

You poor thing. What an awful time you have had!

It could well be APS, if you haven't been tested for it then I would ask your GP.
Xx

lozwil Wed 24-Feb-16 13:33:18

I will do tbh tho I don't hold out much hope they are not the best it's a large surgery and trying to see the same person more than once is a nightmare

lozwil Wed 24-Feb-16 15:41:04

Oh forgot to mention also had blood in 2 urine tests no other symptoms though

Klaptout Wed 24-Feb-16 19:35:46

Sounds like it could be nerve pain from a trapped nerve? Is it a cold pain?
Do both sides of your body feel the same temperature to the touch?

MissBeaHaving Wed 24-Feb-16 21:48:40

I'm so so sorry about the loss of your baby op,I've been through it myself &had a terrible time throughout.
It affected me for a long time after so I'm sending you my sympathies for your loss thanks

Has anyone in your family had an autoimmune diagnosis or similar?
I only ask as it seems like it's been a long time you've felt unwell & fibromyalgia springs to mind.

3littlefrogs Wed 24-Feb-16 21:54:46

I immediately thought autoimmune condition - possibly fibromyalgia.

I agree that a private, specialist physio would be a good idea too. Do your research and speak to a few.

Stress can make us very ill and is a trigger for autoimmune conditions.

Hastagwhatever Wed 24-Feb-16 21:54:54

Have your antibodies been tested not just thyroid function?. I have a lot of the symptoms you describe and have hashimoto thyroiditis. It took a while to diagnose as my antibodies were not tested.

lozwil Thu 25-Feb-16 06:57:20

Thank you everyone, I think they just tested for thyroid.
I was also thinking autoimmune issue my gran has ra but the blood test was clear although I know you can still have it even with a clear test.

Fibro also crossed my mind too tbh I just want to get to bottom of it, it's the not knowing that is stressful if I know I can get on with it part of me just wants to start ttc now but I know that's not really the sensible thing to do especially if it is my back as it's asking for problems.

BatteryOperatedBoyfriend Thu 25-Feb-16 13:42:59

I'm no doctor, but to me (I have similar) sounds like bursitis in the shoulder and sciatica. Could that be it?

lozwil Thu 25-Feb-16 14:07:03

I was thinking that too I was carrying round a huge bag full of rubbish that I didn't need before my shoulder started hurting and my dad has sciatica which sounds a smiler sort of pain but all the GP keeps saying is it is muscular and gave me some stretches to do which are not really helping I am hoping to start phisiotherapy soon but I am worried as I haven't had a scan so they are not 100% sure what it is and I don't want to make it worse and without a scam how do they know it isn't sinister to used my gp'sfavourite term ???hmm

BatteryOperatedBoyfriend Thu 25-Feb-16 14:51:31

Could you give your shoulder a full rest by putting it up In a full sling for a few days?

lozwil Thu 25-Feb-16 18:28:41

I wish I could thankfully it's my left (I am right handed) but work full time in a job where I need to use it, I was off for half term last week and it seemed ok but it started playing up again this week

choccyp1g Thu 25-Feb-16 18:39:32

I suffered for years with pains in bum, and shooting pains down leg. Eventually the GP suggested arthritis, and sent me for an x-ray,"just to keep an eye on it". 6 months on and I am the happy owner of a total hip replacement.
I also used to wake up at night with numb and tingling arms, pains in legs etc. The thing is that when hip bones are rubbing together, it makes everything hurt, and your body does a thing called "referred pain" (I think) which moves the agony all over the place.

lozwil Fri 26-Feb-16 06:40:02

Woken up again with shooting pains in my bum going down to my ankle, choccy it does sound like you have been through the mill a bit and I hope the new hip as got rid of you symptoms, it sounds very much like what I have but I can't seem to get my gp to investigate further I am hoping that the physio will be able to push this forward
though, I want to get to the bottom of it as I want to be able to exercise again although I hope I don't need a new hip I am only just 34 😩

choccyp1g Fri 26-Feb-16 14:01:34

Hi lozwil, looking back my post was all about meeee, but the point I was trying to make is that until they did an x-ray, the GP was all for doing nothing, "wear and tear...pain management... Ibuprofen", but the consultant said the bones were rubbing together and put me straight down for a replacement.
I know someone else whose similar pains were called sciatica for years, then "suddenly" needed a hip replacement.
If you have already had an x-ray then my theory is rubbish, but at the moment I'm inclined to think metal hips can cure everything!

lozwil Sat 27-Feb-16 09:48:12

No I haven't had an xray, the Dr aparently knows what it is just by getting me to put my arms above my head I'm not convince tbh I am hoping for an xray or scan to try and find out what is going on x

lozwil Tue 01-Mar-16 07:18:24

Soooooo I have spend the weekend with a 48hr heart monitor attached so just waiting for results.

Hip and leg still sore not sure if to phone gp again as physio appointment isn't till the end of April and can't bear to wait that long someone mentioned possible ovarian cyst not sure if it's worth asking for a scan to rule this out?

Had a moment in the middle of the night where u thought what if I had a tumor on my spine that is causing it (mad I know) but can't help worry cos been going on months and I am not any better

gandalf456 Tue 01-Mar-16 14:23:53

I would push for a scan, personally. Physio might well help. I was referred for physio AFTER the scan, though. You need to know what's going on in there. In my case, it's wear & tear on the discs in my neck. If yours came on suddenly, you may well have pulled on a disc or have existing wear & tear you didn't know about until now.

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