Rheumatologist in London area (or Hertfordshire, North London-ish)

[mrsbadbody]

I've name changed because this would identify me. I'm in my twenties with a long standing diagnosis of Rheumatoid Arthritis, Sjogren's Syndrome and neuropathy. Drs agree that I have every symptom of Polymyalgia Rheumatica but it would be incredibly rare in people my age.

I want to pay for a second opinion because I'm getting nowhere fast on the NHS. Any recommendations please? I need a real expert because of my age and symptoms. I know there is the Rheum Hospital in Bath but I'm not well enough to make the long journey right now.

Thanks.

[casio4]

I know this is an old post but i'm in slightly the same situation and would love to know how you got on and how are you now? I have all the symthoms of polymyalgia and my doctor diagnosed it but when I was refered to a rheumatoid clinic I was told I have Rheumatoid Arthritis and put on Methotrexate which I am on 13 weeks now and have no relief, I am due to go back to rheumatoid clinic for a review but how can I tell a Professor of rheumatology he is misdiagnosing me? In my and my doctors opinion I have Polymyalgia, I tried the steroids and got little relief. I think because the tablets aren't working that's another reason to think ive been misdiagnosed

[casio4]

Just to add I'm 51 and one of the reasons the professor is not going down the polymyalgia route is he says i'm too young to have it