I feel so useless over DS's health

[Charleesunnysunsun]

It's really getting me down seeing DS so upset and ill.
We still don;t know what's wrong with him, his peadiatrician is concerntrating on his fits before he starts on his other problems but we have been told it could be anything from asthma or something more serious, Im worried sick and i feel totally helpless i can't help him.
His cough is so bad now he's bringing up everything i feed him because he's coughing so much and he's got so much phlem sown in his stomach. His nose is constantly running and he is still pooing 8-9 times a day and it stinks!

Im worried about his development, the health visitor has asked me to speak to the pediatrician about his height as he is incredably short
It's not just that though things like how am i going to potty train him? he goes so many times a day.
He wont eat properly, he wont eat without sitting on my knee as he is so scared of being sick, ditto with going to bed he seems to be scared of sleeping as thats when his cough gets the worst.

I'm just finding it so hard to cope, he needs me so much as he's feeling so rough, it's tough with DS2 to look after as well.

The hospital asked us to put him on a dairy free diet which i have done but it's making no difference at all, it's this cough that's worrying me most, DS also has a constant temperature which im not sure if it's caused by his constant coughing or not. Im not seeing the pediatrician again untill Jan.

[Heartmum2Jamie]

Awww, you have my utmost sympathy. I went through a very similar sounding dark period when my ds was small. He has been under a hospital all his life but didn't get his diagnosis until he was 9 months. Those 9 months of knowing that something was wrong, but not knowing what where the hardest of my life. Ds2 was also small for his age, pooped upto 10 times a day and were horrid smelling (he wasn't on solids at the time). They ran all sorts of tests and everything came back clear and I was starting to think I was imagining it all. I remember all too well how frustrated and helpless I felt.

You certainly are not alone. I just wanted to send some big hugs and say you are not useless. Whatever you do, try and get some help in from family & friends, make sure that you look after yourself as well.

I hope that the paediatrician cane start to get to the bottom of things for you.

[drosophila]

Heart what was the diagnosis?

[Heartmum2Jamie]

Significant heart defect diagnosed at 9 months old (and I am NOT suggesting that is the problem here). It was only through my constant pushing that we made it to a cardiologist. After the tests for coeliac disease, cystic fibrosis and various other stuff came back clear they were going to discharge him telling me that is just the way he was. It was just luck that the day before we were due to be discharged from a week long stay at our local hosp, we saw a ward dr we had not seen before and he picked up on ds2's murmur (that he'd had since birth and no-one thought to check on it ). They then asked if I would like to be refered to the children's hospital. I am not sure what the pooing 10 times a day was caused by at that point in time as he wasn't on solids (although suspect that may have been the reason, breastmilk imbalance of some kind maybe). Since then he was found to have multiple food allergies. His wheat allergiy causes him to have horrid smelling, funky nappies too.

Maybe he has allergies other than milk Charlee??

[Charleesunnysunsun]

They are currently waiting for results of a Coliac screening to see if he's intolerant of wheat. They have also checked to see if his immune systemis working properly and several other things that they told me but in medical terms so im not quite sure what they were but like i say they wont sort this out untill they get to the bottom of why he was fitting.

It just ruins the whole day when i wake up to him being really sick an his bed, i have to calm him down, clean him up, change the bed at the same time as trying to feed DS2 who is exclsivley breast fed so it's just so tiring.