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can we have a worried and having tests thread?

(80 Posts)
Nerf Tue 19-Aug-14 22:06:26

Just that really. Panicking I have bowel cancer and at the start really of tests. Would be nice to do some mutual s
handholding.

Le1890 Tue 19-Aug-14 23:33:04

I'm a

Le1890 Tue 19-Aug-14 23:33:34

Im sorry you are having a tough time. What makes you think you have bc though?x

olaflikeswarmhugs Tue 19-Aug-14 23:36:29

Sorry your going through that op sad
Dh found a "scabby" as he put it mole on my back . I've not made a gp appointment yet I'm always too late and they're al gone sad

Have you spoken to your gp ?

Nerf Wed 20-Aug-14 07:38:26

Are you going to the gp though - we have a skin specialist one apparently.
You might have the same?
Slight anaemia, bleeding, discomfort, been told I'll be referred. Weirdly, I'm sort of furious too because things are finally good (work, family, finances) and I really don't want to not get to enjoy this part of our lives.

gingeroots Wed 20-Aug-14 10:00:05

excellent idea for a thread .

Everyone says that the tests and waiting for results bit is worse than getting the diagnosis you fear . Having been through this myself I agree . Also you feel as though you have to put a brave face on it and can't talk to people because ,of course it might turn out to be nothing much .

And of course often you're just in shock .

Not knowing what you're dealing with is torture .

But I know that's little comfort .

insanityscratching Wed 20-Aug-14 12:22:50

Hi nerf I'm plucking up the courage to go to GP's and scared. I've had no bowel trouble, regular as clockwork and no bleeding until a couple of days ago when I had horrendous cramps and diarrhea and have been passing blood ever since. Dh is away with the car and don't have the energy to get to GP's on foot so will go tomorrow when I have the car. I'm hoping it's some horrendous bug I've picked up or food poisoning as it started out of the blue and dd has had cramps too.

DontWannaBeObamasElf Wed 20-Aug-14 12:33:02

Hello, I'll join too if you don't mind! Had loose bowel movements for a few weeks on and off, passed blood once yesterday so my lovely GP has sent me away with a sample kit. Feeling pretty tired too.

Handsup Wed 20-Aug-14 13:07:59

Not bowel related but breast lump related - appointment with the breast clinic tomorrow. I think about it first & last thing at night.
It's weird but I don't want my mother or husband to come with me.

Nerf Wed 20-Aug-14 21:48:03

Hands up - I had an appointment like that and it was so good - answers there and then and access to a consultant. Maybe write down some questions? I saw my mammogram/ultrasound and was allowed to ask what the funny spots were on it (I knew I would have gone home and worried about it). Good luck.
The worst bit is straddling normal life with absolute fear.

Nerf Sat 23-Aug-14 10:01:36

Been referred now waiting for appointment.
Worst thing is dh saying if I die he'll give up work to look after childrenshock - erm not the reaction I wanted and then I had a mild tantrum over him giving up work and setting a poor example to the dcs and why couldn't my mum look after them!

feelingfitter Sat 23-Aug-14 11:12:33

I'm currently mid diagnosis. Soooo frustrating. I may or may not have OC. In the meantime if the cyst bursts and it turns out to be OC, then it spreads and that's a whole different story. Need two more scans before they will do biopsy/removal/diagnosis.

The worse part definitely for me is the 'is it, isn't it' period. All the tests so far are pointing to the likelihood that it is. Then again it may be nothing. (Hopeful)

feelingfitter Sat 23-Aug-14 11:16:59

Also have abdominal mass coming off the cyst (great sad )

BTW I need to name change, I certainly don't feel fitter smile

Nerf Sat 23-Aug-14 11:21:26

OMG fitter that's so stressful. How likely that it bursts? What do you / would you know?
Definitely not knowing is awful. You end up snappy and stressed but having to carry on.
Just realised we won't get insurance if I don't know by half term for going away - was going to book a last minute holiday.

feelingfitter Sat 23-Aug-14 11:33:49

It could burst at any time. I've been told if I get bad pain or feel at all unwell then to call ambulance and get to a&e ASAP. Sleepless nights a plenty at the moment.

As you have no diagnosis yet Nerf, won't you be able to get it without disclosing? Never been in this situation before so have no idea.

Hope you can get away for a nice break and relax.

wfrances Sat 23-Aug-14 12:27:27

me and ds 10 waiting on tests, so will join you.
ds waiting for dx on optic nerve swelling
im waiting to see upper gi surgeon to find out if he can fix my broken stomach ( in 2 weeks)
and a colorectal consultant for tests to dx bowel problems
urgent referal take 6 months here- unless i pay !!!

Nerf Sat 23-Aug-14 12:35:00

I think you have to disclose waiting on specialist referrals or tests.
Really sorry you have such a stressful time.
What are the possible outcomes with the optic nerve?

wfrances Sat 23-Aug-14 12:54:25

nerf - they told us there could be many reasons.(which means they dont know).
ct and lumbar puncture and routine bloods normal.
weve got instant access to pead neuro and ward if anything changes.
eye consultant in 9 days to see if its worse /better/same?

feelingfitter Sat 23-Aug-14 13:07:27

Wfrances 6months shock I am getting stressed out about things and I was referred under the TWR system for urgent tests.

I'd be doing all I could to go private if that were the case. What a nightmare.

Nerf Sat 23-Aug-14 13:24:19

Six months is scary. It's horrible isn't it, can't think what to do to take my mind of it.

wfrances Sat 23-Aug-14 13:34:59

gp has written again to see if theyll bring it forward ,if this doesnt change anything , i will get a private consultation-
no way can i wait until december - im wasting away, my hair is falling out, periods are stopping ect..

wfrances Sat 23-Aug-14 13:37:27

sorry posted too soon
but my last bloodwork -end of july came back normal so my gp thinks this is why theyr making me wait ,because im not anemic -yet!

feelingfitter Sat 23-Aug-14 13:47:06

I feel so blessed to have three brilliant GPs that are on my side. I can call at any time if worried about delays and they get right onto the hospital consultant/secretary to sort it. This has happened twice already.
All I want is for them to say all is ok, I'm fearful of a rupture which could change everything. Doesn't help that everyone seems to go on holiday during the month of August either lol.

I hope you get some answers soon and yes I agree dec is too far away.

Nerf Sat 23-Aug-14 17:45:22

Bloody hell that's awful. Agree a good GP makes a difference - at least you feel cared for medically.

Nerf Mon 25-Aug-14 10:38:55

I'm reading so much into 'symptoms' and need to avoid google.

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