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Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

General health

In the last 6-10 week all my fillings have fallen out. I've just lost the last one -Lupus or Sjogrens?

26 replies

Cocolepew · 15/06/2014 12:38

Or both ?
I did have a dental appointment for last week (the first time I've needed to se a dentist for a problem for 15 years). I had to cancel due to pleurisy/flare.

It's going to cost me a fortune. Does anyone know if I would get anything towards the cost of it, if it is because of an auto immune disease?

I'm falling apart bit by bit.

OP posts:

Report

Iamaslummymummy · 15/06/2014 12:40

They have 3 price bands on the NHS. £18ish £48ish and around £200. Fillings come under the £18 category for all of them together. Maybe the next slot if more complicated?

Iamaslummymummy · 15/06/2014 12:42

Sorry £50 for fillings.

There are three NHS charge bands:
Band 1: £18.50 covers an examination, diagnosis and advice. If necessary, it also includes X-rays, a scale and polish and planning for further treatment.
Band 2: £50.50 covers all treatment covered by Band 1, plus additional treatment, such as fillings, root canal treatment and removing teeth (extractions).
Band 3: £219 covers all treatment covered by Bands 1 and 2, plus more complex procedures, such as crowns, dentures and bridges.

Cocolepew · 15/06/2014 12:47

Thanks, I had registered as an NHS patient.
I wondered if it was because of my Lupus I might get them done at hospital? My mouth is an utter mess atm.
It's so sore.

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Iamaslummymummy · 15/06/2014 12:50

It sounds awful :(

I know that my referral to King's college for complex root canal will cost the same as normal dental charges. I've got chronic health issues to and is just one thing after another isn't it

If you are claiming means tested benefits then you can get pep with the cost.

Hope it gets sorted soon x

Cocolepew · 15/06/2014 12:56

Thank you

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NoArmaniNoPunani · 15/06/2014 12:56

Have you got Sjögren's syndrome or are you asking if you might have it?

Cocolepew · 15/06/2014 13:03

I haven't been diagnosed with it no. I was wondering if it is common in lupus or would it more likely to be secondary sjogrens along side the lupus?

I have eye dryness as well, I was having a routine eye exam at my local eye clinic and the dr there mentioned sjogrens.

OP posts:

NoArmaniNoPunani · 15/06/2014 13:09

I know a bit about Sjögren's syndrome. You can get saliva replacement products - tablets, liquid, gum which can help. I sympathise, dry mouth is very painful

Cocolepew · 15/06/2014 13:13

I'm waiting to, hopefully, hear from my consultant this week, I had a pretty scary flare up and my GP has contacted the rheumatology team. I'll mention it to him and try to make another dental appointment.

Sorry this is a bit jumbled, pain meds are kicking in

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NoArmaniNoPunani · 15/06/2014 13:17

A number of medications can cause dry mouth too so it might be worth looking into that too

Cocolepew · 15/06/2014 13:21

Thanks I will.
I just feel so disheartened this week . It's one thing after another

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BigPawsBrown · 16/06/2014 23:30

Xx

Cocolepew · 16/06/2014 23:33

Aww thanks BPB.
I've been admitted to hospital today and have mentioned my amazing disappearing teeth

OP posts:

Cocolepew · 16/06/2014 23:33

Oh that toothy smiley is mocking me

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KatyMac · 16/06/2014 23:38

What are you in for?

How are you feeling?

Cocolepew · 17/06/2014 00:07

Needed to come in to try to control my lupus flare, I couldn't walk, which was scary.

Feeling better than before but it's taking a while.

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KatyMac · 17/06/2014 07:34

Poor you - that is so scary

What have they said about your teeth/fillings?

Cocolepew · 17/06/2014 08:28

Spoke briefly to dr last night who says sjogrens is very possible. The rheumatologist is coming round this morning. Dr said they will do different bloods to check for magnesium calcium deficiency etc.

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KatyMac · 17/06/2014 09:02

Will there be any help/support for replacing them (ideally with white rather than amalgam due to your auto-immune issues)

Cocolepew · 17/06/2014 09:33

I dont know but I will ask

One needs done qickly as its cutting my tongue

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KatyMac · 17/06/2014 09:41

I think they sometimes have dentists that visit in hospitals

Remember not amalgam....(it might cost more but with auto-immunes you should be very careful)

Cocolepew · 17/06/2014 09:55

My white one fell out too it did hang on later than the others though.

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KatyMac · 17/06/2014 18:23

How are you doing this evening; have they come up with anything positive?

Cocolepew · 17/06/2014 18:58

Well I'm home and none the wiser. Didnt get bloods done because they didn't get round early enough

Feeling a good bit better and prefer to be home as I'm still on steroids.

The blood test for Sjogrens was low so they said it's probably just the Lupus.

I'll make a dentists appointment in the next week for advice.

Thanks for asking

OP posts:

KatyMac · 17/06/2014 19:11

Random Ai symptoms are such a pain as they could be so many things

Glad you are a bit brighter tho'

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