We live overseas. DH was diagnosed with a glioma in his right temporal lobe a couple of weeks ago. It is causing epilepsy for which he is now on medication. Treatment while he was actually in hospital was great, a million tests done in three days and diagnosis given. then he was sent home and the aftercare has been shocking. he's been given an MRI for three months time and a follow up a month after that. They suggested surgery wasn't really necessary. We have no contact or people who are willing to answer questions or give advice.
After calling an acquaintance who works at the hospital and sobbing on her we managed to talk to a neurologist (should really have been a neurosurgeon) in an unofficial capacity who at least gave us some information. He answered some of our questions, reassured us that it is a relatively routine issue but also said that he would probably opt for removal and he would head back to the UK for it.
So now we're trying to figure out how to proceed. His works' health insurance is an international policy and we can get treatment privately in UK - I would go NHS but if DH has to take LOTS of time off work they might let him go (there's not much protection), there aren't many of his jobs in the UK and he'd have to travel, not so easy if you can't drive for a year or more. in an ideal world we'd get it sorted and head back here. I just don't know if that's possible.
what sort of treatment can we expect? how long might recovery be? where is good to go (preferably north England)? We have a nurse friend asking opinions on the insurance company's preferred hospitals, we might have to go with a non-preferred one.
I just don't even know where to start.
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Brain tumour/Gliomas. Please talk to me about them.
10 replies
whostolemycamel · 07/05/2014 10:20
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07/05/2014 18:33
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