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General health

adalimumab (humira) for psoriatic arthritis, any experience?

5 replies

denialandpanic · 19/04/2014 10:29

It seems I'm to be offered this for my psoriatic arthritis. I'm currently on sulfasalazine, methotrexate and celebrex but my sacrolilliac /lower back is still inflamed and increasingly painful and disabling.

I'm delighted at the chance to try a drug that might actually give me a chance at being "normal"but worried about side effects /newness of drugs. The psoriatic arthritis probably won't kill me.......

I know there are some of you out there on anti tnf and i was wondering you could share your stories and bad please

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rosie39forever · 20/04/2014 19:49

Hi, my Dh has psoriatic arthritis, he also takes sulfasalazine, methotrexate and arcoxia. Three months ago after a massive relapse he was put on humira and it totally changed his life, literally the day after his first dose he started to improve.
He has gone from inflammation in multiple joints to totally pain free, before humira he couldn't walk upstairs or more than a hundred yards on the flat without crippling pain, now he sprints upstairs and spends every lunch break at work walking miles.

The results have been so positive that his consultant has taken him off arcoxia and halved his sulfasalazine dose and In the next few months will be weaned off methotrexate. The only side effect is the day after injection he gets a slight headache which is usually gone by lunch time.

Hope this is helpful good luck.

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wonkylegs · 20/04/2014 20:03

I don't have PA, I have RA and have been on Humira for nearly 2yrs now. It's been a fab drug for me.
I had a very frank conversation about the drug & it's possible side effects with my Anti-TNF nurse and he really put my mind to rest. I think the thing to remember is your treatment is closely monitored & if side effects (serious or mild) do appear they can react to them very quickly.
For me it's been great, injecting takes a while to get used to. I'd recommend taking it out of the fridge for a bit & taking an anti-histamine prior to injecting as this stops it hurting as much. I always inject into my leg as I have a very flat stomach and there isn't as much fat as my thigh (again hurts less)

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denialandpanic · 20/04/2014 20:52

It's so good to hear great positive stories.I'm absolutely terrified of getting my hopes up but I do really really hope it works for me!

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denialandpanic · 20/04/2014 20:54

wonky,I don't have to worry about a flat stomachWink

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NoIamAngelaHernandez · 20/04/2014 20:59

It worked like a dream for me. No side effects and it was like I did not have arthritis at all.

After 8 months, it stopped working - I had become 'immune' to it and was making antibodies to the drug!

I am now on etanercept, it is also brill, and so far 1 year with no reduction in effectiveness.

I do hope it has a similar affect for you :)

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