Follow Up thread on Atypical Mycobacterium in 2.5yr old

[Tillyboo]

We went back to the specialists this week and were told that dd will need another operation to remove the lymph node. After Speaking to the leading experts in the country our consultants have told us that the general opinion is that if the node is accessible,then the preferred treatment is surgery.
There is an 85% chance that AB's won't be necessary after surgery but if they are then dd will have to take them for 4-6 months and they will be pretty toxic and a right old cocktail.
They will try to cultivate the bacteria when the node is removed to try and grow the exact bug so that they can match a specific AB.
DD also had a chest x-ray to rule out any TB in her lungs.
She is still well in herself and having lots of fun - you wouldn't think there was a problem at all.
Obviously the surgery is a big worry, not only because of the Gen An but there is a risk of damage to the facial nerves which may be on a short term or, at worse ,permanant basis.
We are expecting the op to be at the beginning of Oct so I'll post again afterwards.

I would strongly urge any parent whose child has enlarged lymph nodes not to be 'fobbed' off with 'Oh it's nothing to worry about'. We were initially told this, that it was probably an infected salivary gland. But something in my gut told me it was something more serious and went to see another GP who agreed and referred us to an ENT specialist.
This type of infection was very uncommon but we have been told it's on the increase. It's found in the environment but no-one knows exactly where it comes from.

[zippitippitoes]

I hope all goes well for you.

[Tillyboo]

Thank you very much !

[Pudmog]

Tillyboo- for dd1 it took 3 months of repeated chest infections, resulting in a collapsed lung to have a true diagnosis of mycoplasma pneumonia made. Ended up on 3 months of antibiotics of the drain cleaner type.She is absolutely fine now, with no visible scarring on her lung.