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Living with dizziness

(37 Posts)
Miggs28 Thu 27-Feb-14 12:57:11

I was diagnosed in October 2011 with vestibular neuritis which caused a lot of damage to my inner ear, after lots of testing (MRI etc.) I was given bethastine at first to manage the dizziness and then physiotherapy, the dizziness lasted for about 7 months. Things then went back to normal and I went on to have my DS who is now 9 months. The dizziness has now returned after a particularly bad virus, I have been to see my GP who has prescribed Cinnarizine to treat the dizziness and has told me to start my VRT again.

Does anyone else on here live with dizziness?

Do you have any coping strategies that might help me, especially with my DS!

AimeeDubucqdeRivery Sat 22-Mar-14 20:44:43

PS I was misdiagnosed as having labyrinthitis when it all started.

DumbleDee Tue 25-Mar-14 19:33:05

On my 2nd bout of Labs (or other yet to be confirmed). The best source if info that kept me same the first time around is wwww.dizzy times.com. Massive source of info and a specialist consultant posts on there.

Awful- I can empathise. Mine turned out to be related to migraines which noone picked up on. Vestibular migraines- I suffered for years and thought I was going mad.

AnnField Tue 25-Mar-14 19:39:03

I've suffered on and off since 2008 when I had labyrinthitis. Bright lights and being tired/run down seem to bring it on. I know this sounds terrible but I'm glad there are others who have this problem!

That sounds like migraine Ann- bright lights and tiredness trigger mine.

DumbleDee Tue 25-Mar-14 20:31:36

ann my Labs in 2007 left me with "heightened autonomic response" hyper sensitivity to certain lighting which send me dizzy, patterned carpets made me feel drunk.

It's tough because most GPs don't know much about it all and people that have never suffered do not understand how debilitating and scary it all is.

AnnField Tue 25-Mar-14 20:35:07

Travis, it does but I get migraines too and they're different! Very odd!

Dumble, that sounds very like me. Rubbish isn't it.

I get both types of migraine. Greedy me!

hennipenni Tue 25-Mar-14 21:16:38

I have suffered with BPPV for the past 7 years, not sure what caused the first episode but I constantly felt like I was walking into walls (which I wasn't) or on a boat in a storm when I turned over in bed etc. Each bout has got easier to deal with, probably because I've learnt to compensate with my movements. Stress and tiredness definitely make it worse and plenty of little things can make me feel dizzy during an episode - each episode usually lasting a couple of months.

it's good to know that other people who suffer from it know how debilitating it leaves you.

shewhowines Wed 26-Mar-14 08:53:44

My dd, who is 13, has silent migraines - probably. They have tested her heart etc but can't come up with anything else. She is regularly dizzy and often loses her vision for a few seconds or her vision is distorted.

I'm just worried that she will never be able to drive - especially with the vision problems. Do you all drive with the dizziness?
Have any of you noticed a link with your hormones? There could be a link there, but not an obvious one.
If she has a cold or is ill, the dizziness gets worse.

It's good that its being recognised early. I spent most of my teenage years having strange experiences that I thought were my own weirdness eg Alice in wonderland syndrome with distorted size. I drive and have never nor driven. I find hormones, tiredness and stress are major factors.

shewhowines Wed 26-Mar-14 16:48:59

Oh shock I was hoping she might grow out of it.
I'll have to google vestibular migraines. The neurologist only mentioned silent migraines as she doesn't get a headache very often.
Thanks

thanks for everyone else coping with the dizzyness. It isn't pleasant is it.

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