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Sick mum, sick husband, full time job, two children. WWYD?(86 Posts)
I will try to be brief. Mum is extremely ill, has cancer and we fear is about to receive a terminal diagnosis. Mum and Dad live 4 hours away (and a nightmare journey at that). DH is also now ill, needs urgent endoscopy for suspected internal bleeding - possibly an ulcer, but God knows and extremely worrying. DH looks after two young DCs, one of whom is only 3 and just goes to nursery for two short days a week. DH so tired and unwell that he really isn't fit for doing this. And then there's me - trying to hold down a 40 hour a week job and not doing a great job of it at the moment. Have talked to work - repeatedly, as I've had my own heath troubles - and have the distinct sense that they are starting to lose patience with me.
Result, I feel torn at least three ways. What on earth do I do? Where do I start in picking my way through this? Feeling very very down today, sorry.
Thanks Lack, and thanks for your PM as well, which I know I haven't replied to yet but I will and I do appreciate it so much.
DH - well yes, there are very few issues he doesn't have to be quite honest. He has been on treatment for high blood pressure for years now, and when he had his collapse at the beginning of the year one possibility was that a new pill had suddenly dropped his blood pressure too low, but no one ever really got to the bottom of that. He's just on the one blood pressure pill at the moment, alongside statins and anti-depressants (which really don't seem to be working for him at the moment), and his blood pressure seems to be under control hovering around the 140/90 ish mark, give or take. The doctor isn't too concerned at the moment anyhow. He also has issues with migraines, cluster headaches, itchy skin, tingling, you name it, and I am somewhat worried that this might all add up to something which nobody has thought about yet. I kind of wish they'd give him a scan or something.
Mum now has her suggested treatment plan, a combination of two chemo drugs, but this isn't being started until into the New Year. They have warned her this is not expected to be curative but they aim to keep the cancer at bay for as long as they can. The selfish part of me is glad because it means we still get to spend Christmas with them and have a reasonably normal, happy, family time - perhaps the last one. The thinking part of me is worried because I feel that any more delay has to be a bad thing, something confirmed to me by others who know much more about this disease than me. But my gut feeling says that what Mum is comfortable with is the right thing, and if she has faith in the team who are caring with her and she is more comfortable having time to mentally and physically prepare for what's to come, then maybe that's more important than timescales? I am, however, terrified that she is being encouraged into an aggressive course of treatment when she will already be starting on the back foot through yet more delays. That seems like the worst of all possible options. That's quite a ramble I'm afraid, sorry.
(Wish I could offer something more useful.)
Thanks. Flowers are good. I spoke to the Macmillan helpline today and they have clarified things for me a lot. Where treatment is aimed at prolonging life and reducing symptoms, as in my Mum's case, then the exact timing of treatment does not really make a difference to the overall outcome. If it is going to be effective then it will be effective even if the cancer has grown a bit more and spread a bit more. If it isn't going to be effective then it won't be, regardless of when they start it. And they prefer to leave people while they are feeling relatively well, especially with Christmas coming up.
I feel reassured that there is reasoning behind the decisions being taken, and I'm glad she'll be well for Christmas.
So glad you've been able to get an explanation - and that your mum will be feeling as well as possible for Christmas.
I think the cancer teams really do get the importance of quality of life, and your DM staying comfortable enough to enjoy the time treatment will buy.
No worries gaelicsheep; I know you ahve your hands full xx
Thanks for the update here though; it must be one less worry knowing that there is a plan in place for your mum. Hopefully you can now organise the support that she needs locally to help both her and your Dad through the coming months.
I know how tiresome and worrying odd un-specific symptoms can be, so much though goes out to you and your DH; I hope he sarts to feel better soon. Have they tried changing his ADs though? Sometimes a particular one just doesn't suit.
Hope you have as peaceful and happy a Christmas as you can under the circumstances xxx
Thanks. Well an update here, if anyone's likely to see it. Mum's condition is certainly terminal. 3-4 months without chemo. Possibly 1 to 2 years with chemo if she's one of the lucky ones. She's getting worse by the day at the moment - pretty horrifying all round really. Chemo starts next week.
DH has now been coughing up some blood and xrays couldn't establish where from. Not loads but enough to worry him (and me, of course). They think he's anaemic from losing blood from somewhere for some time. Pills wise, they are going to see about changing his ADs, but not just yet because of the other things he has to deal with first.
I can't say I'm looking forward to the New Year. But we did have a lovely family Christmas and I'm holding onto that for now.
Hope the chemo works well for your mum.
I've just read this thru. Really sorry you are going thru this. I hope you got to enjoy a -relatively-normal Christmas break.
My God, mum is deteriorating fast. She hasn't kept anything down for two days solid and been in so much pain. She'll be having three anti sickness injections a day from now on. It's too fast and too cruel. We don't know if she will even be strong enough to start the chemo next week as planned. Right now that isn't looking good. Can't believe I only found all this out when I phoned them today. Dad sounds so weary,I'm so worried. Think I need to find a thread for people in a similar situation.
Oh Gaelic From what you've said I think I can guess what sort of cancer it is - sounds very much like my dad. I wish I could offer you some practical help but in the absence of that please do feel free to pm me if you want to talk.
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